crossthehurdles.orgcrossthehurdles.org/.../cth-magazine-dec-12.docx · web vieweditorial3....

wwwcrossthehurdlesorg

Editorial3

TravelAbility5

lsquoWO SUBAH KABHI TO AYGIrsquo10

Personality Of The Quarter13

The Expert Speaks16

What didnrsquot kill them only made them stronger21

Flowing and floating with water A journey24

Devi26

Stressed lives of the caregivers of special needs kids28

Do Dooni Chaar My Version Of The Story30

ldquoWings to abilityrdquo32

If Those People Can So I Can I amp I Will33

Technology to help people with disabilities35

I Am the Disabled Child37

MY MOTHER38

Graphics39

करोस डी हरदलस कया ह41

विकलागता पराकवितक ह45

सार वरत सिसरफ मर सिलय48

हर काम म सकषम विर भी समाज की नज़र म अकषम52

विकलागता और शारदी54

विशव विकलागता दिरदस56

आतमविशवास57

wwwcrossthehurdlesorg Page 2

Editorial To commemorate the International Day of Persons with Disabilities ie the 3rd of December I feel overwhelmed to announce the launch of our quarterly e-magazine and today I take immense pleasure while I sit down and write the first editorial column of this e-magazine lsquoCross The Hurdlesrsquo

It is a magazine which is lsquoFor the people By the People and Of the people with Disabilitiesrsquo It would not only educate but would also lsquoEncourage Enable and Empowerrsquo not only the people with disabilities but also the non disabled population

It is estimated that there are over one billion people or approximately 15 per cent of the worldrsquos population who live with some form of disability And unfortunately ldquothis largest minority of worldrdquo often faces all kinds of barriers in the journey of life Architectural environmental technological and attitudinal barriers hold them back from participating in any field including education employment health care transportation political participation or justice

Accessibility and inclusion of persons with disabilities are fundamental rights recognized by the CRPD They are the pre-requisites for the enjoyment of other rights Since we too stand for the principal of inclusion and accessibility for all our efforts are been directed towards the formation of a microcosm in the macrocosm of this society This is our own lsquoinclusive form of democracyrsquo where the contents of this magazine lsquoCross the Hurdlesrsquo happen to be for the people by the people and of the people with disabilitiesrsquo

In it we would have expert opinions tips regarding the coping up skills personal experiences of the persons with disabilities motivational write ups etc in English as well in Hindi language The objective is to stand together and work as a team so that not a single individual is left out Mainstreaming and independent living is what we aim at We have a two pronged strategy One is to bring the latent talents of the


Editorial Team

Chief EditorAbha Khetarpal

people with disabilities to the surface level Second we aim at sensitizing and educating the non disabled population about disability related issues directly or indirectly

Since the theme of International Day of Persons with Disabilities 2012 provides an opportunity to address exclusion by focusing on promoting accessibility and removing all types of barriers in society let us focus on the following points through this E-magazine

Include Organize Celebrate Act

I pray to the almighty that we are able to achieve what we intend to do If God remains gracious enough we would soon be able to take out this magazine in ink print and even Braille

Hope you would all love reading it Your comments and feedback would be a source of inspiration and guidelines for us so we would be waiting for them impatiently

Abha Khetarpal

President

Cross the Hurdles

(wwwcrossthehurdlesorg)

copy Cross the Hurdles

[Type a quote from the document or the summary of an interesting point You can position the text box anthe docuhe Text Box Tools tab to change the formatting of the pull quote


TravelAbility

Crossing the hurdles for the sake of beauty

Inaccessible Simrsquos Park Coonoor

ndash Dr Satendra Singh

I love venturing into the Nature and travel places to explore the natural beauty scattered throughout our beautiful country My love of lakes led me to Ooty this year and I also climbed the highest point of Ooty with the help of my crutches-my better half in quest of all my adventures While coming back I stopped at Coonoor The picturesque Ooty and Coonoor are talukas in the Nilgiris District Tamil Nadu No visit in the Nilgiris is complete without a trip to the very famous Simrsquos park of Coonoor The park is maintained by the Nilgiris districtrsquos Department of Horticulture Government of Tamil Nadu

Simrsquos Park is an unusual park-cum-botanical garden that was developed way back in 1874 by the secretary of the Madras Club Mr JD Sims and Major Murray

Naturally occurring trees shrubs and creepers are in the park as are many unusual species of plants that have been brought in from a variety of places around the world The park is situated in a deep ravine on the northern side of Coonoor and covers twelve acres of undulating land This botanical park is located at a height of 1780 meters above mean sea level The key attraction of the park is the annual fruit and vegetable show held in May


This park has resulted by the introduction of many rare species including Rudraksh and Cinnamomum Most of the plants here are exotic and introduced from almost all the countries There are graceful trees like Araucaria Quercus Phoenix Magnolia Pine Turpentine Tree ferns Camellia Eucalyptus Acacia Pinus and Cinnamomum etc

There is a glass house housing different ornamental plants and flowers On the other side of the park rose garden are maintained This park can take legitimate pride in having secured more than 1000 species of 255 generarsquos belonging to 85 families widely covering almost all the different group of the plant kingdom

The park is a natural garden and divided into 8 major sections (terraces) Each downward terrace has colorful flower beds lawns and rockeries carefully laid out to give a symmetric look to the park You will have to walk down the hill lined with exotic and old majestic trees Shola forests are left undisturbed and they add mystery to the park

Owing to the unique tropical mountain climate the garden receives ideal climatic conditions Uniform rain distribution and less temperature variation enable a long flowering season This tourist place is situated in Coonoor at a height of 1780 meters above mean sea level Here the maximum temperature goes up to 30 degree Celsius and the minimum falls to 5degC The average rain fall of this garden is 150 cm It extends over an area of 12 hectares of undulating land and possesses a number of natural advantages


Further down one can see the island garden where boating is also allowed The Lily ponds add beauty to this serene place and fishes in the pond add extra delight to kids The botanical garden is partly developed in the Japanese style and is a favorite destination of tourists

So far so good Unfortunately I have to pay happily for this whole description Not in turns of money but inaccessibility If you happen to be a person with disability then this whole pleasure becomes a torture I have physical impairment and use caliper in my right leg With this I perform most of the daily activities without much problem

When I entered the Simrsquos Park my first experience was that of delight I climbed down few stairs and it was then I realized that the whole Park is designed on a downhill The real problem was that subsequent terraces were having stairs but without any side support or hand railing There was nothing by which you can take support on your either sides I had two options One cursing the authorities and leave the park and second to fulfill my desire see the whole park albeit with assistance I opted for the second

I called my taxi driver and requested him to send my crutches Braced with my new armory I explored every corner of the parkThe winding footpaths all over the higher slopes of the park may look the most distinctive and picturesque feature of this park but they tease PwDrsquos as if saying ldquoYou are not welcomerdquo I also was destined to take up the challenge and despite shedding lots of my electrolytes I conquered the inaccessibility

As you move down you see great variety and colour which are great feasts to the eyes But the sight of a disabled or as a matter of fact an elderly struggling at uneven steps small kids falling


due to lack of support pregnant females giving this park amiss are not hypothetical sights but a harsh reality which the administration needs to address Why your accessibility should be different as mine Why canrsquot we envisage a place which is accessible to ALL- not only to PwD but also to elderly pregnant females small kids and even extra-terrestrials


The theme of the International Day of PwDrsquos this year is ndash lsquoRemoving barriers to create an inclusive and accessible society for allrsquo For people living with disabilities the situation of inaccessible parks is an illegal denial of our Human Rights I hope Government of Tamil Nadu will take an access audit of this historical venue at the earliest and come up with an appropriate strategy to make the Simrsquos park experience a memory to cherish rather than ruing it as another torture for PwDrsquos

(Dr Satendra Singh is founder of Infinite Ability Coordinator Enabling Unit at University College of Medical Sciences amp GTB Hospital and blogs at httptheenablistblogspotin )

(All pictures taken by Dr Satendra Singh)


lsquoWO SUBAH KABHI TO AYGIrsquo

That day will definitely come

any years ago one super hit Bollywood movie came lsquoTHE BURNING TRAIN which focused on the utilities available of the Indian Railway in Rajdhani Trains apart from a masaala story but it did not cover anything about medical facilities In

this section I am more concerned about the medical utilitiesaids which are the basic requirements of any patientsenior citizenmobility impaired person and need to be available for such passengers without any railway coachrsquos class discrimination travelling by Indian trains

M I am a Kyphosis patient in which patient feel breathlessshortness of breath due to the restricted chest wall and advisable by doctor to keep myself on mechanical ventilator along with oxygen supply 24 hoursas much as possible to protect me from any respiratory failure

Since few years I need to travel twice a year by train for my hometown as it is not advisable for me to have an air journey till lungs are fully optimized I am disappointed many times that despite being the capital of India Delhi is not fully disabled friendly for persons with locomotor disabilities and mobility is the biggest challenge or hurdle for such persons

I get the train from Hazrat Nizamuddin Railway station and prefer to travel with Karnataka Sampark Kranti which runs from Delhi to BanagluruHazrat Nizamuddin Railway station is one of the busiest stations in Delhi along with New Delhi and Old railway stations as number of trains arrivedepart from here

But there are no facilities for the mobility impaired persons or patients In comparison of South India Railway stations which now a days are more sensitized about this they donrsquot have any rampsbattery operated cars for such passengers while such facility is available in many smallbig stations of south India The only solution for the passengers is to hire a wheelchair which also they cannot get easily as lsquoCoolie Nexusrsquo works there which charges too much amount as such facilities are available free Also old age persons mobility impaired persons need to reach the train from outside of station to platform by stairs only

Anyhow after crossing all these hurdles many times this time I reached the train in a breathless condition As medically advised I travel with all my life saving instruments which run only on electric power First time I got the sleeper class coach due to non-availability of AC coaches and we all know that electric power is not easily available in these coaches But any how after exchange of the seat from some passengers I got my seat to the nearby electric power Just after few minutes of departure my machine suddenly stopped and started blinking Then I called the TT of the train who told me that my automated oxygen instrument requires 350 watt and


they supplied only 110 volts for charging devices in sleeper coaches He suggested me to shift to the AC coach as early as possible AC coach TT told me to wait till a seat was vacant Somehow I managed the journey by some breathing exercises but with many physiological hurdles

Next time I travelled in an AC coach and same non-working of the oxygen instrument continues I called the AC coach technician and he suggested me to bring one voltage stabilizer too Then I called to my Bhopal based relatives to deliver it on urgent basis in the train as my train covers Bhopal station too But stabilizer also not worked and my condition was downgrade more Then junior lady doctor came and suggested me to quit from the train and get admitted in railway hospital I requested her to arrange one big refilled oxygen cylinder that if I got there would be no hurdle but she was not ready to listen as she was unaware from the respiratory things despite I showed my doctorrsquos prescription

Image 1 Feeling Hypoxia in Indian Railway 3-AC coach due to insufficient oxygen in brain

Anyhow these days Irsquom managing my railway journeys on mechanical ventilator which can run on charging power in absence of oxygen machine to save my life

I donrsquot think so that It will be a difficult task to the Indian railway to arrange an oxygen supply in the Indian trains as which is a high-elevation railway that connects Xining Qinghai Province to Lhasa Tibet Autonomous Region in Peoples Republic of China and have an oxygen supply for each passenger while Every passenger train has a doctor


Image 2 (a) and 2(b) Inside View of Train for Oxygen supply in QinghaindashTibet railway

At Last I am requesting to the NGOrsquosRailway Ministry of India to focus in all such issues in future too for the fruitful journey of such persons who need medical assistancemobility assistance throughout their railway journey and finally I can hope that lsquoWO SUBAH KABHI TO AYGIrsquo

Mohd Faisal Nawaz (Polio Survivor) Research Engineer (IIAP) and Ex-Paramedical Professional (IHBAS)Bangalore IndiaEmail faisalngogmailcomJust Believe in Humanity and Simplicity


Personality Of The Quarter

Anita Sharma who can easily be called an lsquoindependent womanrsquo in the real sense of the term is an embodiment of inspiration hard work and determination Even the polio virus could not chain down her spirits and love towards life She has survived all odds coming her way Let us see what she has to tell about herself

Q What kind of childhood you had and did you face any problems in going to school or out with friends

My childhood was full of fun I and my siblings used to play a lot Intentionally we were put in the same school Whenever any help was required my siblings (specially my sister) were always there I miss them nowhellip

School friends were also very supportive from the beginning With them I never felt disabled But gradually I realized that I was put in a lsquobubblersquo of extra care and protection It was transparent I could see through but could not break it And it ultimately developed hardiness in me and I started looking for ways and means of independence

Q Who has been and what has been the greatest motivating force in your life

People usually claim that I CAN NOT DO IT but how helping they all are as these claims or challenges gives me immense pleasure and energy to develop I CAN and I WILL DO attitude be it driving a car or pursuing FPM from IIM or swimming Motivation just comes from with-in

Harivansh Rai Bachchanrsquos poem hellipkeeps me motivated

असलता एक चनौती ह इस सीकार करो कया कमी रह गई रदखो और सधार करोजब तक न सल हो नीरद चन को तयागो तम सघरष का मरदान छोड कर मत भागो तमकछ विकय विबना ही जय जय कार नही होती कोसिशश करन ालो की कभी हार नही होती

Apart from anything I am highly moved by Captain Navin Gulia He is a friend guide and philosopher

Q Tell me about your studies and higher education

I did BBA from Maharanirsquos College Jaipur Rajasthan University MBA (HR) from Banasthali Vidyapith Jaipur Entrepreneurship Educator Course certified from IIM Bangalore NEN and Stanford University UGC- NET (Management) and now I am pursuing Fellow Program in


Management (PhD) from Indian Institute of Management (IIM) Indore in Strategic Management and Entrepreneurship

Q Admission in IIM is a dream come true for the people how did you manage to get there and what course you opted for Was it difficult to manage in hostel or not

First thing which I want to tell you is that there is no reservation for people with disabilities in Fellow Program in Management Indore

Of course getting into an IIM was a dream come true I put my efforts appeared for the admission process (tests publications and interview)

Though all of us believe that IIMs have best of infrastructure disabled friendly environment etc but itrsquos not true To avail such facilities I ran to higher authorities told them that I am a person with disability and need some facilities like attached washrooms or parking space near the hostel

After umpteen visits and multiple proofs of my disability they heard my plea and made me realize that I am lsquodisabledrsquo hence they have done a great job for me by providing a room with attached washroomhellip

hellipit was embarrassing

And I had to face it

Q What do you like to do when you are not working

I seek out lsquohappinessrsquo in boundless space If I am not working than probably I play mouthorgan or I go out for a drive or I play with kids or I write abstracthellipI cook and experiment hellipI can do anythinghellipI do not have any hobby in particular

Q Where do you see yourself after 10 years from now

I do not know

Q How would you like to contribute in the disability sectorAh Well you have already said itndashdisability sector- here I would like to talk about my research work Currently I am working on lsquobusiness modelsrsquo of a couple social organizations which have contributed towards sustainable development through innovation

My focus is on innovations in disability and education

I would also like to study the rationale behind the development of hardiness in women with disability

Q What changes you want to see in our country


In our country majority of people is lsquoEducated Orthodoxrsquo We all are prisoners of our own socialization We are not governed by our wisdom or intellect but are governed by the people around us To make our country a better place to live in I wish rather than cribbing and poking into each otherrsquos lives all of us must develop lsquolive and let liversquo attitude

Q What do you think about disability and marriage

For me disability is not more than a taboo and marriage is companionship (better stay alone until you get a right companion)


The Expert Speaks Physical Therapy and Disability

Contributed by Dr Preetika Kalra (PT)

BPT MPT (NEURO) MDCPT MIAP

ldquoI have a Disability yes thatrsquos true but all that really means is I may have to take a slightly different path than yourdquosaid Robert Michael Hensel (May 8 1969) who was born with the birth defect known as Spina bifida is also a Guinness World Records holder for the longest non-stop wheelie in a wheelchair

Disability is not a brave struggle or lsquocourage in the face of adversityrsquo Disability is an art Itrsquos an ingenious way to live- NeilMarcus

World Health Organization defines disability as an umbrella term covering impairments activity limitations and participation restrictions

Impairment is a problem in body function or structure An activity limitation is a difficulty encountered by an individual in executing a

taskaction A participation restriction is a problem experienced by an individual in involvement in

life situations

Thus a disability is any restriction lack of ability to perform an activity in the manner or within the range considered normal for a human being A World bank study (1999) noted that the proportion of children with disabilities in developing countries is generally higher than in developed countries It is estimated that 6-10 of children in India are born with some disability and that because of low life expectancy possible a third of the population with disability are children

Physical therapy is a branch of rehabilitative health that uses forms of exercises and equipments which are specifically designed to assist people to either regain or improve their physical abilities People might need to pursue physical therapy anytime they experience a problem while moving that prevents them from performing their activities of daily living

A physical therapist assists people in maintaining their health through the prevention of future deterioration or illness They assist people to make environmental adaptations which enable people to function independently The role of the physiotherapist is to improve a persons mobility


and independence This could be through helping them recover from a chest infection controlling their pain or helping them to mobilize after a stroke or spinal cord injury This approach can prevent someone from being admitted to hospital speed up their recovery if in hospital and promote an early discharge

Physiotherapists treat both adults and children Their role is wide and varied which includes A major part of this role is 24-hour posture care which involves assessment for optimal

positioning day and night including wheelchairs seating orthotic provision and sleep systems

Another large part of the physiotherapistsrsquo role is management of long-term conditions This involves education and close links with family to understand the nature of the conditions

Finally a large part of the physiotherapistrsquos role is to be actively involved in health promotion This may include walking projects gym sessions swimming cycling groups etc

Physiotherapy services are delivered as part of the education program and are directed towards education outcomes for people with disabilities who have difficulties with posture and movement or neuro-sensory motor development

The type of physical therapy treatment a person receives is dependent upon their condition Complete physical therapy treatment can include some different elements

Pain reduction might include the use of ice heat relaxation massage joint mobilization stretches or the use of electrical stimulation or ultrasoundThey also include exercises designed to increase the persons flexibility and strength A physical therapist can help a person to learn how to sit bend stand and move as well as return to their sports activities and more without re-injuring themselves They can make suggestions regarding basic equipment to include lumbar supports chairs wrist rests and more

Approaches to Physiotherapy for the children with disabilities

1 Individual programme Children can have individual sessions of stretches and exercises to keep them supple and comfortable

2 Hydrotherapy the swimming pool is a popular place for the children with disabilities to enjoy freedom from their wheelchairs and experience the increased mobility that this load-bearing exercise affords These sessions are staff-intensive but hugely beneficial to the children

3 Keep-fit children should be encouraged to make use of multi-gyms with specially adapted equipment for example Motormed exercise bike that can be pedaled from a wheelchair using either arms or legs with therapist on hand to guide and support the children

4 Massage and relaxation for children who suffer from spasms and spasticity (especially associated with cerebral palsy) it is the most effective way to relieve pain


5 Chest physiotherapy Especially for children with Muscular dystrophy it is vital to ward off or aid recovery from colds and chest infections

6 Activities The most important part of physiotherapy for children with disabilities involves their active participation in the daily activities to an individual extent

Physiotherapy is a health discipline which specifically focuses on providing functional rehabilitation for people with disabilities In persons with chronic disabilities it is highly desirable that the person with the disability has an access to the knowledge and skills of a good physiotherapist at some stage of their lifetime preferably as early as possible after the detection of the disability In this way relevant therapy can be instituted as soon as possible


Tips Of The Quarter

Travel Tips For People Who Are Visually Impaired

The people with visual impairment too can go for holidays and trips if there is a proper planning and management of resources available beforehand

The first and foremost thing that the person needs to do is to plan ahead Reading about the destination before the trip so that he knows what to expect and what places he would like to visit is of great help He should make reservations whenever possible and call airports and airlines ahead of time to find out about services including seating arrangements special meals and shuttle services

Another important thing that one needs to do is to carry written directions with them before leaving It doesnrsquot matter that one would not be able to read but at least one can ask for help by showing them to someone else in case one feels lost at a new place Its also helpful to have a copy of the exact address of where one is going A driver may not know where a specific hotel is especially if there are several with the same name

The person before travelling must make it sure to keep necessities with him at all the time like money keys tickets and bus pass in a pocket Some extra money should be kept handy for tips

One must know the bus schedule The bus driver should be informed where one is going so that if one wants to get off the driver knows to call it out One must sit near the front of the bus

Others should also be notified about ones needs Travel agency or companies such as airlines must be told that one is visually impaired Do not hesitate to tell the companion or those around about onersquos visual limitations

Ask questions If one cannot see a monitor or find a gate at the airport or bus station one must ask a customer service representative or another traveller for help in finding the way

Carry a cane Whether one chooses to use it or not for mobility purposes the cane helps to notify others that one are visually impaired

Ask about amusement park or other tourist discounts Some of the amusement parks give discounts either to visually impaired visitors or to their sighted guides

Preboard and bring carry-on luggage Avoid the hassle of crowds and obstacles Packing only carry-on luggage saves time and trouble by eliminating a visit to the baggage claim terminal

If one has a suitcase remember its type and color It may be helpful to affix a colorful piece of yarn or sticker to help in assisting with easy identification


Make a plan for guide-dog restrictions Some countries such as Hawaii either do not allow guide dogs for short visits or have quarantine requirements

One should practice enhancing sensory experience by going on tours and visiting gift shops Some tour groups allow travelers who are visually impaired to experience an exhibit by touching object otherwise off-limits Gift shops often sell small scale replicas of monuments that one can touch

Research for accommodations Foreign destinations are likely to have accommodations or services different from ones home city One should prepare oneself by researching about the destination before the trip is planned

Internet cafeacutes donrsquot provide adequate zoom or speech technology for vision impaired users so if one cannot travel without the internet one must bring your own laptop cables wireless unit and software

It does not matter that one is visually impaired The person still can take pictures of the trip For that one would need some special software that would give customizable magnification and fontcolor programs

Since decent large print city maps are nearly impossible to come by one can simply enlarge Google maps on ones screen although software like JAWS sometimes has difficulty with map programs

Inform and educate others about blindness One should not keep the disability private in such conditions Tick the box at the airline saying lsquoblind passengerlsquo This can make the staff extra certain that the person is in the right place When using public transport also it would help immensely

Be prepared for curious questions Do not feel embarrassed Being a blind traveler is all about seeing the world in onersquos own way Any blind person can find the way in the world and create his own memorable travel stories

So let us summarize here with some quick tips

Dont be embarrassed to ask for help Identify yourself as visually impaired ahead of time Memorize identification numbers for creditdebit cards passport and bank account or

create a retrieval system in case you lose your wallet Request an airport guide for a wheelchair to get you to and from the plane easily a

wheelchair expedites clearing security Ask for security guidelines when booking reservations and how much time you should

allot to clear those requirements Ask for assistance when going through security checkpoints to ensure you retrieve all

your belongings


What didnrsquot kill them only made them strongerContributed by Sambhav Khetarpal Sports Journalist

165 nations over 4200 athletes 20 sports 70000 volunteers more than 26 million tickets sold ndash the 2012 Paralympics in London were not just the most successful Paralympics ever but one which will inspire a generation in years to come

When a congenital spinal cord trans-section ndash a condition of severing of spinal cord - meant that David Weir of England could never use his legs Weir a talented youngster from London made sure he didnrsquot let his disability hinder his dreams His propensity for athletics and never-say-die spirit made him take up wheelchair racing as a profession and by the time he ended up taking part in the 2012 Paralympics he had six Paralympic golds (four of which came in London) and the tag of the greatest wheelchair athlete of Britain by BBC even putting him at par with other British Olympic stalwarts like Jessica Ennis and Sir Chris Hoy

David Weirrsquos story of a Paralympianrsquos triumph over adversities is just one of the many that were on display at the London

Paralympics this year Each athlete at the Paralympics with his or her unique tale redefined the word lsquocouragersquo and made the London games a spectacle to remember

One man who was the cynosure of everyonersquos eye at this summerrsquos dual games was the famous ldquoBlade Runnerrdquo from South Africa - Oscar Pistorius Pistorius was born with fibular hemimelia - congenital absence of the fibula - and therefore had both his legs amputated between his knees and ankles when he was 11 months old In August this year Pistorius became the first double leg amputee to participate along with the lsquoable-bodiedrsquo athletes when he took part in the London Olympics He certainly did make his presence felt at the games when he reached the semi-final of the menrsquos 400 metres race becoming the first man to do so in the 116 year history of the modern Olympics

But not all competing athletes at the 2012 Paralympics were born with disabilities While some did grow up with disabilities others were victims of wars and accidents Malek Mohammed a double amputee swimmer from Afghanistan stepped on a landmine and severed both his legs when he was just 11 years old Then there was Martine Wright a British sitting volleyball


player also lost both her legs in the 77 London Bombings While there were sufferers of explosions and bombings others just victims of freak accidents South Africarsquos swimmer Achmat Hassiem injured his right leg when he was attacked by a great white shark

What is strikingly akin to all these athletes is that each one of them found in sports a medium to rebuild their lives which consequently helped them overcome all those odds and stereotypes they faced during their lives Never once did they let the so called lsquohealth chauvinistsrsquo stigmatize them in any which way

But it isnrsquot just the remarkable rising-from-the-ashes tales of paralympians that made the London Paralympics such a fascinating event What was also heartening to see was the wholehearted manner in which not only London but the whole world accepted the games and turned up in full attendance for every event

The mere fact that some 27 billion tickets were sold certainly showed that there was a definite surge in interest for the Paralympics No wonder IPC president Philip Craven described it as the lsquoGreatest Paralympic

Games everrsquo and one which has lsquochanged us all forever

The Olympics might be the ultimate sporting spectacle on earth right now but the Paralympics in London showed that primo event for the disabled certainly isnrsquot far behind and with the right attitude of the federations it can become the next big thing in the international sporting calendar

Girisharsquos leap to glory

In a nation where Olympic sports arenrsquot given the first priority leave aside Paralympics it must have come as a huge surprise to most Indians when an little-known Girisha Hosanagara Nagarajegowda won the silver

medal in the menrsquos high jump F-42 category at the London Paralympics


The 24 year old son of a daily wage labourer Girisha has impairment in his left leg and had to take up paralympic sports as his parents could not afford his surgery Considering the paucity of resources Girisha had his performance was certainly a remarkable feat and one which made the Indian public stand up and take notice

Girisharsquos journey from despair to glory is an inspiration an inspiration not only for the Indians with disabilities to take up sports but one that should awaken the parochial Indian society from itrsquos potholes of shallow imaginations and hopefully sow new seeds of change towards a much more brighter and liberated India

And amidst the glory there was agony

He contracted Polio when he was just one His wife had to sell all her jewellery to fund his trips to international events He fought through tumultuous times and went unto become the best power lifter among the people disabilities in the country bringing medals in various international events Even after giving so much to country when Farmaan Basharsquos request to provide him an escort during the London Paralympics was rejected by the Paralympic Committee of India (PCI) so that the PCI members could be accommodated at the games it once again posed serious questions marks on the federationrsquos willingness to boost the Paralympic sports in India

What it showed is that despite living in an era of rampant modernization and technological advancement the dreaded ghosts of nepotism and discrimination still exist in our society

But all said and done the Paralympics 2012 certainly did more good than harm for India The television or media coverage it received might not have been the same as it was for the Olympics but social platforms like twitter and facebook did make sure the London Paralympics did not go unnoticed to an average Indian The signs are encouraging the curiosity is rising among the general public and come the 2016 Paralympics in Rio we might see lot more Indians rooting for real life heroes like Farmaan and Girisha


Flowing and floating with water A journey

Dear friends it gives me immense pleasure to communicate with all of you because each one of you is an achiever in hisher own way

Today I am going to share my journey of Swimming Trust me I have never dreamt of swimming and I can also say I was feared of the same This fear was aggravated when I out of joy jumped over a small water reservoir and I was literally drowning and it was my sister who pulled me out I was terribly saved that day

But fortunately I was constantly being advised by one of my well wishers to try and swim I made up my mind and thought of giving a try

I went to the city Swimming Pool and I was accompanied by a well wisher of mine I can walk on calipers so I didnrsquot need any escort to lift me up to water I can still remember how I dared to put my body inside water it was chilled in the month of July 2010 Usually small pools have bars to hold I caught hold to the bar and left my body inside the water

The coachesvolunteers present at pool guided me and gave me courage to believe that I would swim some day I was a person with disability so I had apprehension if would be able to so So I was afraid of water but now I am participating in Paralympic Competitions both at state and national level on a regular basis since more than three years and in this short span of time I have been selected for Nationals twice

I started heeding to the coach These tips can also help you to learn swimming

1 Donrsquot fear water Human Body can float on water even without moving any part of the body so donrsquot fear water u can float and be safe if canrsquot swim or get tired

2 Breathing Exercise Breathing in water (ie inhaling out of water and exhaling inside water) this action helps increasing stamina swimming for long hours It also helps in

a Curing Breathing Problemsb Increase lung capacity

3 Propelling actions if u can imagine how a boat swims (one man sits at one corner and starts rotating the long wooden plates) in water u can easily understand how swimming


works That is to say that u r hands and legs (to the extent it works my both legs donrsquot work at all) should be moved in such a way to move your body forward and upward (for breathing)

The time required to learning this propelling action can vary from individual to individual I took almost one month to learn

Swimming helps you to maintain various things ranging from blood pressure metabolism cardiovascular muscles getting joints free and what not So go for it but consult your doctors before that Disability will not create a barrier if you want to swim or float

The only disadvantage I have noticed is that the skin gets a bit darker so you need to take extra care of your skin

Hope this would help you a lot if you want to go swimming

Nagarjunrao Akula (Polio Survivor) B Com ACMA(The author is an Aurangabad based Cost Accountant and can be reached at annraogmailcom)


Devi

Today is a special day for her Itrsquos really a good job The job of a radio announcer at the national airport At any moment departmental car would arrive to pick her up and she would have to report at 1000 AM sharp to her boss Now she would be able to support at least financially to her papa and mama She who herself always needed support she who even was unable to do anything herself couldnrsquot go to toilet eat or drink herself She was lsquouselessrsquo just a mass of flesh and bones

She exclaimed `thanks papa thanks mama you gave your whole life for me let me try to share some of your burdensrsquo

Of course teachers tried to educate and rehabilitate her at centre But they even couldnrsquot manage her toilets habits It was her mama who had been visiting centre to get her relieved She knew very well that she did get all her education at home only no any special teacher was educated enough to educate her they allowed her to go to centre only because she was alone She wanted to see the world outside She wanted to see and know people other than her parents

She exclaimed again `Papa what effort you have done you used to get up at 400 with me daily When mama did dress me up and fed me breakfast you used to carry me down the steps got me seated in wheelchair took at bus stop lifted and having put wheelchair in the bus returned just to wait for the time of my return in eveningrsquo

She used to hear always people say what a great and devoted parents her parents were They denied the second issue just for her A cerebral palsy useless child and completed her graduation just unbelievable All the doctors declared that she wonrsquot be able to stand on her feet wonrsquot be able to do anything by her hand whole life and they said her mind would always be like a small child


`But how did you take care of and taught this child miraculously How surprisingly did you always managed to arrange writer for me at exam times How did you managed to take me to examination centers sometimes so far awayrsquo She was thinking again

`Your companyrsquos car have come beta are you ready to go Is there any fear Should I accompany you to your officersquo

`No papa only take me to the car Attendant is not habitual yetrsquo

Òkay dear let me help you in to wheelchair Your driver told me that they have got a special vehicle designed for you You can sit along with your wheelchairrsquo

Òkay papa see you in the eveningrsquo

When attendant got into car and car started she closed her eyes

Filled with tears her fatherrsquos eyes were following her departing vehicle when her mother called

`Today is first day of `Navratrarsquo and wonrsquot we perform Pujarsquo

`Devi actually is living with us why should we perform Pujarsquo

Àre you kidding What does it meansrsquo

Òur daughter Durga has conquered the `Disabilityrsquo do you think any `Shaitaanrsquo could have been more powerful than it

(Anjani Kumar Ganeriwala is the father of a 17 year old boy Ashu with Downrsquos syndrome Ashu is a well behaved friendly and a loving boy Ashu is fond of music and drawing)

Ashu


Parents Speak

Stressed lives of the caregivers of special needs kidsIn India we donrsquot very often talk about care giver stress syndrome as usually in the west it is associated with a caregiver goes when caring and taking care of aging parents In India taking care of aging parents is part of our social and family like and we donrsquot talk about it much But here also care giver stress syndrome happens It happens with caregivers particularly parents of special kidsrsquo children It is something very real and happening right here in our lives It doesnrsquot only happen with single parents but as much as it happens when both parents are there even if only one is working other is taking care of the child full time It happens all the more if both the parents are working

Care giver stress syndrome has physical psychological and emotional aspects which are to be dealt with Very often there are prominent signs which we often overlook like sleep problems depression constant anxiety irritability continuous fatigue hypertension less immunity constant headaches etc All this leaves the care giver more prone to falling sick whereas the fact is that heshe canrsquot really afford to fall sick as it is a 247 job for them and there is hardly any respite care available There are so many appointments and therapist and doctor visits to be taken care of a regular schedule to be followed household chores to be finished taking care of other family members keeping relations with the spouse well balanced and if the care giver is working then add work demands If it s a single parent add to it total deprivation of rest and relaxation and financial worries It starts taking toll on the physical and emotional wellbeing of the care giver and if attention not being paid to it a total burn out may happen

I am not a single parent but my husband is abroad to earn enough to take care of financial needs and secure future of our kid so I end up coping with it alone more or less as I donrsquot have family support too Itrsquos difficult for me managing household chores his therapies and my son being a very hyperactive child keeping an eye on him round the clock and maintaining tight schedule for him It does leave me totally exhausted There is hardly any respite care available except for few days in a month when my mother comes from Mumbai to help me cope up It has started taking toll on my health I am undergoing counseling and under regular medication for high BP


diabetes and asthma which are enough to leave a well relaxed person exhausted too I canrsquot even think of falling sick and being confined to bed as it would leave my son unattended

So how do I cope uphellipI have found small means to relax myself I meditate in morning after dropping my son to school listening to music reading and regular walks really help me a lot I find the compassionate company and listening ears in the form of fellow parents on social networking sites It does relax me and makes me feel a little batter and just reminding myself that I need to take care of my son so I have to take care of myself also works as a big motivation And finally I play and giggle with my son and re-live childhood while I m with him That really makes me feel rejuvenated I let life go on hellip

(Nalini Srivastava is the mother of a six year old boy Kabir with Aspergers Syndrome Kabir 6yrs old is doing well in his studies in a mainstream school He follows schedules He is the first one to wipe his motherrsquos tears and offer her water if she is crying coughing or not well Nalini call him s an angel)


Do Dooni Chaar My Version Of The Story

e may talk about globalization may curse rising oil prices but the truth is today every family wants to have a car A car that will help to get rid of constant use of others autos and taxis and most important for many a car is a status symbol Today

having a car or not is a general argument in the family sometimes between parents and children or between couples My family was not an exceptionThe only difference is we donrsquot argue but dream and plan together for buying a car

WLast year when I had to go for an interview in TCS I had to hire a wheelchair accessible car for Rs1800- for 8 hours I didnrsquot get that job but that day I really understood the value of a car It wasnrsquot possible to spend this amount for every interview and it was impossible to buy a car without a job But you know what Shahrukh sayshellipitni shiddat se main tuze pane ki koshish ki hainhellip Something like this also happened with me I got an opportunity of doing freelance work and an opportunity to shape my dreams in my own way

Buying a car is difficult but buying a wheelchair accessible car is like fighting a war Keeping a track of every factor like wheelchairrsquos height modification cost other passengers and budget was like playing many musical chairs After more than six months my father was wandering


from one showroom to another in search of the perfect car for his daughter However sometimes height or sometimes paper for finance were insufficient Manytimes amount needed for modifications would cost even more than the car

In our societies view disability is a birth right for a donation hence I found many people wanted to donate money for the car However I wanted to feel proud while sitting in my car rather thankful or obliged So I decided that the car will only happen when I am capable of buying it Meanwhile my sister bought a Tata Nano an ideal car for a small family and budget It was the car I could afford but not the one that could accommodate me That day I had a strong urge to write a letter to Ratan uncle (Ratan Tata the CEO of Tata Motors) to tell him about his ignorance towards wheelchair users Did I write it No Shahrukh says it doesnrsquot happen in every case

Consumerism may be growing in India but it had never targeted the disability sector Tata Mahindra Bajaj all Indian automobiles are capable enough to design wheelchair accessible cars within a suitable budget but unfortunately people with disabilities are never seen as a target consumers (except for wheelchairs or other disability aids)

Anyways letrsquos get back to the journey of buying my car before I get on my soap box of economics or consumerism After one year of planning and execution I finally met Rodrigs

Fernandez (an expert in modification of cars for wheelchair users) who advised me to buy a modified Omni from one of his old customers I still remember the butterflies in my stomach when the owner called up in the morning and agreed to settle with my amount However I still hadnrsquot found any bank to finance me because of lack of documents For me it was now or never and like every time my super dadrsquos fantastic friends came to the rescue and loaned me the amount I needed On May 7th 2012 at 130 pm my dream for getting a car came true

I feel blessed every moment when my parent sit in the car and look at me proudly I live every moment when I donrsquot need to compromise my wishes and when I donrsquot need to choose between dignity and happiness Dreams do come true believe in them


(Mohini Sharma a girl with Spinal Muscular Atrophy is an ever smiling and bubbly girl is a content writer and a Tarot Card Reader She is the one who supports her family financially as well as emotionally)


Poem

ldquoWings to abilityrdquo We are all bound by disabilities

Perhaps some of them are visible some arenrsquot

Taking them as a problem is not the way

Let our inner strength stay

World around us may address it as a curse

But are we really obliged to accept what they say

Sometimes disability may limit our actions

But it doesnrsquot mean one should wail

Let our ideas nurture our actions

Give it a try and we ourselves be surprised to know

How skillfully featured we are with the abilities to beam

Unfortunately some people think that we aspire much more than what we are capable of

But do they really comprehend what they say

Though they are right that we aspire much but do they know what these things are

These things are neither sympathy nor appreciation but little acknowledgement to our say

Come on Let your deeds be sublime

Let our inner strength drive us through the obstacles of our pace

And we will witness how boldly we encounter the barriers in the way

(Divya Sharma(Bhvya) girl with visual impairment is a budding rock star Music is her passion but she equally is a wonderful and a dedicated student who really wants to achieve something in her life)


Something Inspirational

If Those People Can So I Can I amp I Will

ne positive step is to face the fact boldly accept the reality in the right spirit and look at things in an optimistic manner First find out what defect or deformity or deficiency which is bothers you Can this be remedied or improved upon Where one is born blind

hearing imapaired speech impaired or unable to walk he or she can certainly seek medical help and see if things could be improved upon If those things cannot be altered there is no sense in worrying about them Instead one should accept them as a challenge and go ahead to attain his objective with redoubled vigour Just consider those who have attained success in spite of such severe and serious handicaps Helen Keller went stone blind and yet she could do so much to alleviate the sufferings of the blind and otherwise incapacitated people Thomas Alva Edison was stone deaf and yet he was able to bring about thousands of inventions Franklin D Roosevelt was rendered invalid because of polio attack and yet he got elected four times in succession as the President of the United States El Greco the great painter could hardly see Mozart and Beethoven the music wizards suffered from serious aural handicaps Napoleon was short lacked height and yet gained incomparable stature and became one of the greatest generals that history could boast of Douglas Bader with wooden legs became the best fighter pilot of the German Luft WaffeUse the positive words like yes can will laugh good nice bold believe faith easy cheerful sweet enjoy confident happy warm energetic love affectionate and the like in place of pessimistic or negatives ones like no cannot cry bad nasty doubt difficult dull sour suffer afraid cold tired tears unwell etc You will find you are automatically becoming optimistic

The secret therefore is that if your problem is basic incurable or unalterable accept the fact take it as a challenge and make up your mind to make a mark in spite of the weakness Once you are on the job once you are on the move you will forget about the defect Your mind will be occupied about the tasks you have to perform and the problems you have to solve Do not worry fret and complain Get up and keep going You will find joy and confidence in our own country people with incurable diseases have become great business tycoons and benevolent philanthropists

O

Shelley MannAt the age of five she had polio Her parents took her daily to a swimming pool where they hoped the water would help hold her arms up as she tried to use them again When she could lift her arm out of the water with her own power she cried for joy Then her goal was to swim the width of the pool then the length then several lengths She kept on trying swimming enduring day after day after day until she won the gold medal for the butterfly strokemdashone of the most difficult of all swimming strokesrdquo


Wilma Rudolph Wilma Rudolph was born prematurely at 45 lbs the 20th of 22 siblingsAt the 1960 Summer Olympics in Rome she won three Olympic titles the 100 m 200 m and the 4 x 100 m relay As the temperature climbed toward 110 degrees 80000 spectators jammed the Stadio Olimpico Rudolph ran the 100-meter dash in an impressive 11 seconds flat However the time was not credited as a world record because it was wind-aided She also won the 200-meter dash in 232 seconds a new Olympic record After these wins she was being hailed throughout the world as the fastest woman in history Finally on September 11 1960 she combined with Tennessee State teammates Martha Hudson Lucinda Williams and Barbara Jones to win the 400-meter relay in 445 seconds setting a world record Rudolph had a special personal reason to hope for victorymdashto pay tribute to Jesse Owens the celebrated American athlete who had been her inspiration also the star of the 1936 Summer Olympics held in Berlin Germany

And Always Remember that If Helen Keller Thomas Alva Edison Franklin D Roosevelt Mozart and Beethoven Napoleon Douglas Bader Shelley Mann Wilma Rudolph amp others can lsquoDo Then Why CANrsquoT Wersquo

People Laugh BecauseI am Different ampI laugh because

They are all the Same

(Mr Mani Laxman Panse does Data Entry work He takes active part in Sports meet and has won Medals in the Field of Athletics He is a familiar face at every years Pune International Marathons Wheel Chair Race which takes places in Pune on 1st Sunday of December each year He loves to read a lot Mani contracted Polio at the tender age of 9 Months old)


Science and Technology--------

Technology to help people with disabilities

Prof Prabhat Ranjan

We are glad that we are able to develop a group of related technologies to help people with disabilities to communicate access computer and be able to control environment for eg TV lights fans air conditioners etc around them and in many cases they can even start earning their livelihood Input to the system is based on the ability of the user and slowly we are expanding this to cover various possibilities We also have made systems to use handleg gesture touch head movement facial expression and certain conscious thoughts In addition we are working on voice input muscle vibration and air sippuff In some of these we have been using Brain-Computer Interface (BCI) technology We are also trying to use BCI in other ways to help persons with disabilityWe have provided some of these systems to users and it has resulted in major improvement in their quality of life We are working with various organizations dealing with disability to make these systems available on larger scale One of such system is Touch Screen based computer access and communication system

Recent technological development in mass market product has brought many touch screen based systems to market such as mobile phonestablets etc In particular Android based system from multiple vendors has brought the price line so low that today in the Indian economic conditions they have become quite affordable and useful Based on our interaction with various users with disabilities and organizations serving them we decided to take up the development of touch screen based cheap computer and communication system from regular use as well as from teaching and learning point of view We have already developed couple of applications for this purpose during the last couple of months and some of them are already tried by users and user organizations as well as family members have shown interest in distributing them to their userswards Some of the applications are shown below and their users given

Speak-CePalndashThis has been developed to help those who are non-verbal but have slight finger movement This has been found to be in the case of many Cerebral Palsy Autism patients as well as many stroke patients in older age It has a number of predefined icons (default 8) which can be extended to 16 or 32 Each icon is associated with a prerecorded sound Currently we have sounds recorded for English Hindi and Gujarati in both male and female voices This would be extended slowly and more possible combinations of commonly used sentences would be added as well The first version of this application was released on Aug


13th 2012 to Polio Foundation Ahmedabad and some individual users like Rutvij an Autistic child and Devanshi dystonic child This has also been tried by number of users at Pearl Special Needs Foundation Ahmedabad and SPARSH Pediatrics rehabilitation clinic Ahmedabad

A screen shot of the default setup is shown in figure Touching any one of these speaks the corresponding sentence mapped to that icon in the languagegender of the selected option Both the recorded voice and icons can be customized by user If a person does not have fine finger control there is an option to let icons scroll one by one so that user can touch any part of the screen to activate the voice

An enhanced version of this is being developed to not only cover pre-recorded voice but also carry out speech synthesis of typed sentences Optimization is being carried out to minimize the number of key strokes needed to enter the needed sentences to save time and improve interactivity A special system is being prepared to let a person with cerebral

palsy use the system through her head pointer

(Prof Prabhat Ranjan who is a physicist research scientist and winner of many national awards is working for improving quality of life of persons with disability and developing environment control system based on input from body parts eg hand gesture voice brain etc)


Kids Korner


I Am the Disabled Child

I am the disabled child

I am your teacher If you allow me I will teachyou what is really important in life

I will give you and teach you unconditional loveI give to you my innocent trust my dependency upon youI teach you of respect for others and their uniquenessI teach you about the sanctity of life

I teach you about how very precious this life isand about not taking things for granted

I teach you about forgetting your own needsand desires and dreams

I teach you giving

Most of all I teach you hope and faith

I Am The Disabled Child

Unknown

MY MOTHERMy mother is precious as my lifeShe is also a good housewifeShe gives me the power to face the worldShe sayrsquos lsquoyour tears are minersquolsquoDonrsquot worry dear everything will be fineWhen she is with me I forget all the fearsShe is only the one who always shares my tearNobody in the world is like my motherShe always supports me to go furtherSometimes she scolds Sometimes she appreciatesMy mother is the best my mother is greatI just donno know what magic does she haveShe gets to know I have in my heartShe gives me everything Before I ask her to bringI love my motherAnd she loves me too

(Srishti Panday is fun filled energetic and positive towards life She studies in class 8th in VVDAV School Vikaspuri New Delhi She loves to write stories poems and makes wonderful drawings She is a sensitive and an ambitious young girl She has paraplegia with more than 40 disability)


Graphics by Gaurav Sharma

(Gaurav Sharma is budding graphic designer that speaks through his designs He is 17 having Spinal Muscular Atrophy II that reduced his physical activities to least but boost his vision and imaginaries that inspire him to create new designs Gaurav tells the tale of his success in his own way with his creative skills great sense of humor rock-solid will power and unbeatable confidence)



करोस डी हरदलस कया ह करोस डी हरदलस एक गर सरकारी ससथान या एक ाकयाश नही यह एक समपरण शाशवत विचार ह एक विचार जो सरद पररिरत करता ह बाधाओ को पार करन क सिलए य तो हर इसान की ज़िज़नरदगी म छोटी-बडी बाधाए आती ही रहती ह पर इस विचार क क दर बिबद म शारीरिरक अकषमता क साथ जी रह लोग ह कयविक उनह हर एक करदम पर रकाटो का सामना करना ही पडता ह विनशकत वयसिकत क माग म आन ाली विभिभनन बाधाओ को अगर गVकत विकया जाए तो उनह विनमन विबनदओ म बाटा जा सकता ह-

शारीरिरक बाधा - विकलागता का पयाय ही ह शारीरिरक बाधा इस परणतः हटाया तो नही जा सकता पर परौदयोविगकी क विकास की मरदरद स परभा कम विकया जा सकता ह या विर कछ सहायक उपकररणो की मरदरद स इस बाधा क साथ तारतमयता विबठा कर ज़िज़नरदगी को ज़िजया जा सकता ह अगर सकारातमक रय क साथ शारीरिरक अकषमता को सीकार कर सिलया जाए तो उतसाहपरण जीन जी लना कोई बडी बात नही शारीरिरक अकषमता क बाजरद लगभग हर काम को विकया जा सकता ह भल ही काम करन का तरीका आम लोगो स कछ अलग हो खशी खशी ज़िजसन भी काम करन का अपना एक अलग तरीका अपना सिलया समझो उसन अपनी शारीरिरक बाधा पर विजय परापत कर ली विजता ही ह विजता कोई अलग काम नही करत उसी काम को अलग तरीक स करत ह--सिश खडा

पारिरवारिरक बाधा - विकसी भी विकलाग वयसिकत की ज़िजनरदगी म सबस कषटकारी होती ह पारिरारिरक बाधा और उतनी ही अहम होती ह परिरार की भमिमका एक विकलाग वयसिकत क दवारा विकय जा रह जीन सघरष म हर आम इसान की तरह अकषम वयसिकत की भी यह चाहत होती ह विक हर परिरसथिसथवित म उसका परिरार विशरषतः माता-विपता उसक साथ खड रह पर परायः यह चाहत अधरी ही रह जाती ह माता-विपता अपन बचच की विकलागता को सहजता स सीकार नही पात और एक कठा म जीन लगत ह विकलाग अगर एक लडकी हो विर तो उनक सताप की कोई सीमा ही नही रह जाती और इसका सीधा असर पडता ह विकलाग वयसिकत क मन और जीन पर उनह अनचाहा उततररदामियत माना जान लगता ह घर क समारोहो तक म उनह शामिमल करन स परिरजन कतरान लगत ह लसरप विकलाग वयसिकत कमर की चार रदीारी म करद होकर रह जाता ह जान-अनजान ह खरद ही कमर क रदायर को घटाता हआ सिसमट जाता ह असारद क अधरो म जहा उस नज़र आती ह सिस अपनी लाचारी अपनी विशता और ह खरद भी खरद को परिरार राषटर और धरती पर एक बोझ क रप म रदखन लगता ह अगर सीध शबरदो म विकलाग सतान क मा-बाप स कह तो यह आपका खरद का चना ह विक आप अपन बचच को ज़िज़नरदगी भर बोझ क रप म ढोना चाहग या सिशकषा और अपन पयार क रदम पर उस इस काविबल बनायग की ह भी आपक बढ़ाप का सहारा बन सक उस बस आपक पयार साथ और विशवास की जररत ह विशवास कीज़िजय अपन बचच पर विक ह शारीरिरक रप स अकषम ह भानातमक रप स नही आपक हर तयाग और पयार का मोल ह जानता ह और पयार क बरदल पयार रदना भी उस आता हसामजिक बाधा - जब भी कोई विनशकत वयसिकत अपन परिरार क सहयोग स या विर सय अपन परयास स घर की चाररदीारी को लाघ कर सय को मखय धारा स जोडन का परयतन करता ह तब तब उस घरती हई सामाज़िजक बाधाओ का सामना करना पडता ह कई बार पारिरारिरक बाधा इसी समाज क काररण उतपनन होती ह कयविक परिरार समाज का ही एक विहससा ह परिरार क सिलए वयसिकत भल ही रदया का पातर ना हो पर समाज म उस बचाराबचारी जस तमगो स जरर नाज़ा जाता ह घर स बाहर विनकलत ही उस हर तर घरती हई नज़रो और कई बार बढगी


बतिबतयो को भी झलना पडता ह ज़िजसकी जह स कई बार उसका आतमविशवाश टट जाता ह कोई काम शर करन स भी पहल उस अयोगय मान लना भी समाज की परानी आरदत ह अगर इसान अपनी इचछा शसिकत को दढ कर ल तो यह बाधा भी पार की जा सकती ह हम समाज क एक-एक इसान की सोच को तो नही बरदल सकत इससिलए जररत ह खरद को थोडा बरदलन की बरदलन का अथ ह खरद क आतमविशवाश और आतमसममान को जगाना अकसर घरती नज़रो की चभन की जह स विकलाग वयसिकत नज़र ज़मीन पर गढ़ाए सोचता ह विक काश ो अदशय हो पाता बच पाता इन नज़रो स ऐसा सोचन की बजाय आतमविशवाश स उन आखो स आख मिमलान का परयास कर हलकी सी मसकराहट क साथ आध स अधीक नज़र जरर झक जायगी और रही बात बतिबतयो की तो अगर सीध तौर पर आपस कछ कहा जाए तो साभिभमान क साथ रदो टक जाब रदन म भी ना विहचविकचाए आपको परा हक ह साभिभमान क साथ जीन का और विकसी भी राह चलत इसान का यह कतई हक नही बनता ो आपक साभिभमान को ठस पहचाएवचारिरक बाधा - विकलाग वयसिकतयो को लकर कई तरह की अधाररणाय वयापत ह समाज म और यही विचार कई तरह की बाधाए बनकर आती ह अकषम लोगो क जीन म जब स एक विकलाग वयसिकत जीन जीना शर करता ह तब स ऐस कई सामाज़िजक विचारो का सामना करना पडता ह जस उसकी अकषमता विकसी प जनम क पाप का ल ह बहत जगहो पर शभ कामो म विकलागो का शामिमल होना अशभ तक माना जाता ह कही विकलागो को शारदी करक घर बसान स मना विकया जाता ह कयविक समाज का मानना ह विकलाग वयसिकत अपनी ज़िजममरदारिरया नही उठा सकता तो कभी य समभाना जतात हए की कही विकलाग का बचचा विकलाग ही ना हो माततविपतत क हक स सिचत रखन का परयास विकया जाता ह समाज क विचार स तो शायरद अकषम वयसिकतयो को सामानय जीन जी पान का हक ही नही ह इसीसिलए तो जयारदातर साजविनक सथल विकलागो क परश क योगय भी नही होत इन विचारो को एकरदम स बरदल पाना आसान नही इनह बरदलन क सिलए अभी हक की लमबी लडाई लडनी पडगी और जबतक सब बरदल तबतक बठ क इतज़ार करना कोई बज़िvमानी नही बविनयारदी ढाचो को बरदल क सिलए एकजट परयास की आशयकता ह और करोस डी हरदलस उसी परयास का एक विहससा ह बाकी मिमथको को तोडन क सिलए जररी ह सब कछ झल कर भी आग बढ़ना और सल होना कयविक भीड म खड होकर बोलन ालो की आाज़ ही रदब जाती ह सनाई रदती ह उसी की आाज़ जो भीड स अलग उचाई पर हो (सल हो)मानसिसक बाधा - सबस बडी बाधा ह मानसिसक बाधा कयविक हर बाधा का असर सीध इसान क मन पर ही होता ह और य तो सब जानत ह मन क हार हार ह मन क जीत जीत शारीरिरक बाधा की जह स सामानय ज़िजनरदगी जी पान की जरदोजहरद असपताल क अनविगनत चककर और मदिरदरो मजारो पर बार बार अनसनी होती दआए सब मिमलकर एक मानसिसक आघात पहचाती ह इन सबक अलाा परिरार और समाज स मिमलती उपकषाए हीन भाना स भर रदती ह इसान अनरदर ही अनरदर घटन लगता ह अपन आप को कोसन लगता ह जीन की विकसी भी कदिठनाई स जझन क सिलए बाधाओ को पार करन क सिलए सबस जररी ह मानसिसक रप स सदढ़ होना और इसक सिलए जररी ह सय को दसरो की नज़रो स रदखना बरद करना सय की इजज़त कर पयार कर खरद स और खरद को उसी रप म अपनाए जस आप ह ना की उस रप म जसा लोगो क अनसार आपको होना चाविहए था अपनी आतमशसिकत को जगाए विशवाश कर खरद पर और खरद क सपनो पर सपन रदखन और उनह परा करन का हक आपको ह और ो यही इसी दविनया म पर होग विकलागो की कोई अलग दविनया नही होती यह दविनया ज़िजतनी सामानय लोगो की ह उतनी ही आपकी भी ह इस बात को सिलखत हए एक मिमतर की सिलखी कछ पसिकतया यारद आ रही ह ज़िजनम उनहोन विकलाग जीन क हालातो को नीम सा कडा कहत हए सिलखा था इन नीम क पततो को रदीार मत समझो सतरगी सपनो की अलग दविनया नही होती


करोस डी हरदलस का परयास ह और रहगा आपक जीन म आन ाली हर बाधा को पार करन का उसिचत तरीका बताय सरदा आपको पररिरत करता रह हर मशकिशकल स जझन और ज़िजतन क सिलए लविकन बाधाओ को पार करन क सिलए करदम आपको ही बढ़ाना होगा ज़िज़नरदगी की राह खास करक एक विकलाग क सिलए इतनी आसान नही लविकन उन पर चल कर मज़िजल तक पहच पाना असभ भी नही

सपारदक अलोकिकता


किवकलागता पराककितक ह चार रष की उमर म जब मझ पोसिलयो हआ तब स लकर आज तक मर परवित समाज का वयहार ना कल मर सिलए चनौती और दख का विरषय रहा ह बशकिलक समाज क वयहार का अधययन भी मर सिलए कारफी रसिचकर रहा ह भारत म जनसामानय का वयहार बहत हरद तक अनौपचारिरक रहता ह लविकन यह अनौपचारिरकता कब असिशषटता की सीमा म परश कर जाती ह ndashपता ही नही चलता ज़िजस तरह मविहलाओ क साथ वयहार करन क कछ आरदाब होत ह ज़िजस तरह राषटराधयकषो क साथ

वयहार करन का अलग सिशषटाचार होता ह ज़िजस तरह बज~ग क साथ वयहार करन क कछ सलीक होत ह उसी तरह विकलाग वयसिकतयो क साथ वयहार करन क भी अपन कछ विनयम होत ह आम भारतीय वयसिकत अकसर इन विनयमो का पालन नही करत और इसकी सबस बडी जह यह ह विक अमिधकाश भारतीय इन विनयमो को जानत ही नही हआजकल म भारत सरकार क एक महकम म सलाहकार क रप म काय कर रहा ह सरकारी रदफ़तर म काय करन का यह मरा पहला अनभ ह इसस पहल म रिरसच ससथाओ अतराषटरीय ससथाओ कॉरपोरट एनजीओ इतयादिरद कई अलग-अलग तरह की ससथाओ क साथ काय कर चका ह मन भारत क अलाा और भी कई रदशो क समाज और हा की काय ससकवित को रदखा ह और हर जगह विकलागता को लकर जनसामानय क वयहार काय-ससकवित म बहत रफक पाया ह

मन विटन म पढ़ाई की और हा क एक बहत सममाविनत शोध ससथान म काम भी विकया विटन म करीब तीन रष क परास क रदौरान शायरद एक या रदो बार ही विकसी न मरी बसाखिखयो को रदखकर मझस पछा विक मझ कया हआ ह और मज़ की बात यह ह विक रदोनो ही बार परशनकताओ न सोचा विक म रगबी खलत हए चोदिटल हो गया और इसी काररण बसाखिखयो स चल रहा ह रदोनो ही बार परशनकता न बडी सधी हई और सपषट भारषा म परशन विकए ldquoओह लगता ह आपको रगबी खलत हए चोट लग गई ह नाrdquo मर यह बतान पर विक मझ पोसिलयो ह परशनकताओ न ldquoओह आई एम सॉरी ट हीयर रदटrdquo कहन की औपचारिरकता तो विनबाही लविकन तरत ही बातचीत क रख को मोड दिरदया और विर कभी मरी विकलागता का मददा परतयकष या परोकष रप म हमार बीच नही आया इन परशनकताओ न सहानभवित नही जताई बशकिलक ज़ररत पडन सहायता करन को ततपर रह विटन म लोग मझ ताकत नही थ ndashम अनय सभी वयसिकतयो की तरह हर जगह जाता था और लोग मझस विबना विकसी पागरह क मिमलत थ हा रहत हए मझ कभी भी सय को विकसी क सामन पहली बार जान क सिलए तयार नही करना पडता था इसक उलट भारत म नए लोगो क साथ मिमलन स पहल म सत ही उन लोगो दवारा अजीब ढग स रदख जान क सिलए तयार हो जाता ह भारत म अमिधकाश लोग जब मझ बसाखिखयो पर पहली बार रदखत ह तो उनकी परवितविकरया ldquoशॉकrdquo ाली होती ह और लोग इस शॉक को अपन चहर पर आन स रोक भी नही पात विटन म लोगो को इस तरह का कोई शॉक नही लगता था मझ और मरी बसाखिखयो को घरत नही थ हा लोग बसाखी को मर शरीर का अग ही मानत थसयकत राषटर म भी मन पाच साल काय विकया ह उस कायालय म करीब आध कमचारी भारतीय थ और बाकी कमचारी विभिभनन अनय रदशो स थ हा का ाताररण औपचारिरकता को छता ज़रर था लविकन मोट तौर पर अनौपचारिरक ही था सयकत राषटर म पाच रष क रदौरान मन बीसिसयो रदशो क लोगो क साथ काय विकया लविकन कभी भी विकसी न मरी बसाखिखयो क बार म नही पछा मरदरद की पशकश भी नही की लविकन मन जब भी सहायता मागी तो उनहोन तरत आग बढ़कर सहायता की अथात मरदरद मागनी ह या नही इसका विनरणय मझ पर छोड दिरदया जाता


था कछ भारतीय कमचारिरयो न मझस ज़रर मझस पछा विक मझ कया हआ ह ndashलविकन ऐसा कर सकन का साहस जटान म उनह कई बरस लग गए हा परशन कछ ऐस पछा गया ldquoआपको पर म कया हआ हrdquo

सरकारी रदफ़तर का अनभ इन सभी अनभो स अलग रहा ह इस रदफ़तर म सभी कमचारी भारतीय ह और यहा रिरषठता एक बहरद महततपरण चीज़ मानी जाती ह शरआत स ही मझ ऐसा लगा जस अमिधकाश लोगो की दिरदलचसपी मझम कम और मरी विकलागता म अमिधक थी लोग विबना सकोच मझ ताकत ह ताकत हए लोगो को लशमातर भी अनभ नही होता विक ज़िजस ताक रह ह ह वयसिकत असहज महसस करगा स य बात ज़रर ह विक ताकन की आरदत परद का महतत बढ़न क साथ-साथ कम होती परतीत होती ह शायरद इस सिशकषा स जोडकर भी रदखा जा सकता ह कम पढ़-सिलख कमचारी अमिधक ताकत ह एक और चलन मझ यहा रदखन को मिमल रहा ह लोग विकलागता क बार म सीध सपाट तौर पर पछन स कतई नही कतरात पभिमी रदशो म ऐसा करना सिशषटाचार क खिखलारफ माना जाता ह कयोविक इस बात स यह सरदश जाता ह जस विक आपक सिलए वयसिकत कम और विकलागता अमिधक महततपरण ह मर तमान रदफ़तर क बहत स कमचारिरयो न मझ बसाखिखयो पर चलत रदखकर सीध-सीध पहली ही बार म परशन विकया विक आप को कया हआ ह

मर जाब रदन पर मझ अपकषानसार ldquoकम क विधानrdquo और ldquoभगान की मज़Vrdquo का जञान थमा रदत ह कई लोग तो सीध-सीध विकलागता को विपछल जनमो म मर बर कम का नतीजा बता रदत ह और साथ म सलाह भी रद रदत ह विक इस सज़ा को काट लो आग सब ठीक होगाभारत का आम आरदमी जब तक विकलागता को लकर इस तरह असरदनशील बना रहगा ndashतब तक भारत म विकलागता एक अभिभशाप बनी रहगी और विकलागो क जीन म सधार की सभानाए कभी ासतविकता म नही बरदल पाएगी भारतीयो को इस सतय स ाविकरफ होना

चाविहए विक विकसी अग का ना होना उतना ही सभाविक ह ज़िजतना विक उस अग का होना सभाविक ह ससथ शरीर और विकलागता क बीच आकशकिसमकता नामक एक अतयत महीन रखा होती ह विकसक जीन म यह रखा कब कहा कस चटक जाती ह इसक बार म कछ नही कहा जा सकता आकशकिसमकता क इस खल को कम स जोडकर रदखना ना कल मखता ह बशकिलक अमानीयता और सरदनहीनता का उरदाहररण भी हलसिलत कमारससथापक कविता कोरष


सार वरत सिसरफ मर सिलयआज शाम अपन विभाग की एक पराधयाविपका स बात करन की इजछा हई तो तरनत यारद आया विकmdashआज करा-चौथ ह सभी वयसथ होगी तभी री जी का एक गीत मशकिसतषक म गजन लगाmdash

चौधबि का चारद हो

या अताब हो

जो भी हो तम खरदा की कसम

लाज़ाब हो

तरनत ही मन समपरण विभाग की पराधयाविपकाओ को एसएमएस भज दिरदया

हम चौधबि का चारद ह

तम चौथबि का

चौथबि तो हमन पज ली

चौधबि कयो खाली रही

मसज भजन क बारद भी मन बराबर चचल बना रहा एक क बारद एक खयाल मर हरदय को छन लगा और मशकिसतषक स टकरान लगा

सबस पहल मझ यारद आया जब म मिमविडल कलास म पढ़ती थी तब मन जाना विक अब चारद पर पहचना समभ हो गया ह तो म सोचन लगी विक आखिखर अभी भी मविहलाए करा-चौथ का वरत कयो करती ह

मर इस साल का ज़ाब मर ही मन न दिरदया ज़िजन दिरदनो म एम विल का रिरसच- पपर सिलख रही थी

मर मन न कहा शायरद औरत यह सोच कर करा-चौथ का वरत रखती ह विक उनक पवित सरद चौथबि क चारद की तरह शीतल बन रहा कर घर की ज़िज़ममारिरयो बाहर की परशाविनयो का गससा उन पर न उतारा कर ज़िजसस घर म परम ए सख का ातारण बना रह


लविकन आज मन विकसी तरह शानत होन को तयार नही ह

बार-बार बस री जी की पसिकतया यारद आती ह और मशकिसतषक साल कर उठता ह हम शकल-पकष की चौधबि का ह चारद ह जो अपनी पनदरह कलाओ क साथ रोशनी ा शीतलता विबखर रहा ह तो विर हमार सिलय कोई वरत कयो नही रखता अभी-अभी मर हरदय न उततर दिरदया ह विक जब यह विनय ही नही हो पाया विक हम चौधबि का चारद ह या दिरदन का सय तो विर ऐस असमजस सनरदह की सथिसथवित म भला कोई पररष हमार सिलय कस वरत कर

मर इस भाक हरदय क उततर को बज़िv न सिसर स खारिरज कर दिरदया एक क बारद एक परशन मर दिरदमाग म उठत चल गय

कया सतरी-पररष रदोनो समिषट रचना क आधार-सतभ नही ह

कया मान-समाज रपी-गाडी क रदो पविहय नही ह

सार वरत भाई पवित बट क सिलय ही कयो होत ह

कोई वरत बहन पतनी बटी क सिलय कयो नही होता

वरतो की समाज म आखिखर कया भमिमका ह

पररष-परधान समाज बना और दिरदन परवित दिरदन मज़बत होता गया सतरी न कोई आपतती नही की आखिखर कयो

इन सभी परशनो पर विचार करती ह तो रदो काररण परमख रप स मर सामन आत हmdash

एक पररष का परकवित स ही बसिलषट होना और दसरा परकवित स ही योविनक सरकषा

मझ लगता ह इन रदो काररणो न पररष परधान सामाज की सथापना म महत परण भमिमका ह

पररष न जहा एक ओर अपन बाह-बल का परयोग विकया ही उसकी परजनन-शसिकत को कमजोरी बना कर आतविकत विकया

सतरी न भी महसस विकया की गाशथा तथा जब उसकी सतान शरष असथा म होती ह तब उस विकसी क विशरष सहार की आसयकता होती ह अथपारजन की ज़िजममारी अपन कधो म लकर यह सहारा दिरदया पररष न बरदल म चाहा तयार बोजन मनोरजन ज़िजसस ह शारीरिरक माशकिनसक थकान दर करक सरद तरोताजा रह सक सतरी न सहरष यह शत सीकार कर ली

विर कया था घर की चाररदीारी म करद हई बालो म लगाए पषप-गचछ उसको परसनन ए सनतषट करन क हर परयास करन लगी जब अपन-आप को अपन परयासो म असल पाया तो विनराशा म डब कर परमातमा की शरण म गई जहा ह खोज पाए अपन विपरय क हरदय को जीत पान का कोई उपाय


विनयम-विनमाता ऋविरष-मविनयो न रष क कछ दिरदन भाई पवित बटा आरदी क वरत क सिलय विनधारिरत विकय और विनधारिरत विकय उस स परापत होन ाल शभल सतरी न भी सोचा सारा जीन विकसी न विकसी पररष क आधीन रहना ह उसक अपरसनन होन पर सारा जीन रोत-कलपत भख-पयास ही बीतता ह अगर रष क कछ विनभित दिरदनो म वरत क नाम पर अनन-जल तयागन स अपन आशरय-रदाता क हरदय को जीता जा सक तो यह हमारा सौभागय होगा विर कया था पवित की परापती स पहल पवित क सिलय बट की परापती स पहल बट क सिलय ह वरत करन लगी

विकनत पराधीनता का जो दःख होता ह ह सरद उसक साथ रहा उसक इस पीडा को न वरत मिमटा सक न रद-उपविनरषरद सिलखन ाल ऋविरष-मविनयो की ारणी न अदशय म बठा परमातमा

पररष की इचछा अनसार हर काय करना उसक हसान स हसना और उसक रलान स रोना सतरी न अपना कतवय भागय सब कछ मान सिलया उममीरद और आसथा अभी भी बाकी रही उसका पवित चाह जसा भी ह उसकी लजजा का रखाला ह उसका तथा उसकी सनतान का भररण-

पोरषरण करन ाला ह इस सिलय उसकी भी उमर पवित को मिमल जाए जीत-जी उसक सामी को कछ न हो

इस तरह वरत जीवित रह वरतो स सबबतित कथाए जीवित रही वरतो स परापत होन ाल शभल जीवित रह

विकनत अब तो सभी घर स बाहर विनकल कर पररष की ही भाती हर कषतर म खडी ह उसका ऐहम तो और भी जयारदा घायल विकया जाता ह ह विकसस उममीरद कर

रीता नामरद दिरदलली विशवविदयालय क भविगनी विनदिरदता कॉलज क बिहरदी विभाग म सहायक परकता ह नतरहीनता न इनकी सोच का रदाएरा कभी छोटा नही विकया और ना ही इनका नजरिरया कभी सकसिचत हआ ह


हर काम म सकषम किर भी समा की नज़र म अकषम

हमार समाज म आजारदी क इतन साल बारद भी शारीरिरक रप स कोई कमी होन क काररण वयसिकत को अकषम मान सिलया जाता ह अकषम यानी जो कोई कषम नही कर सकता अब कछ काम ऐस होत ह ज़िजन म कषम स जयारदा मानसिसक सतक ता की जररत होती ह लविकन मानसिसक रप स सकषम होन क बाजरद भी अकषम का टग लग जाता अगर शरीर का कोई अग काम नही करता हआप सोचग म कोई धीर गभीर आरोप परतयारोप करना चाहती ह नही म कल इतना चाहती ह ो हर वयसिकत जो विकसी जह स भी दसरो स पराकरवितक रप स भिभनन ह ो समाज की चिचता ना कर और अपन को परण इसान समझ हर बीमारी विकलागता सबस पहल अपन दिरदमाग म होती ह और ो हम कमज़ोर बनाती ह हम अपनी इस कमज़ोरी को सबस पहल ज़िजतना होगा हम सबस पहल अपन को पयार करना होगा हम चाह जस भी ह हम इशवर न ही बनाया हजो लोग शारीरिरक रप स अकषम ह लविकन मानसिसक रप स सकषम ह ो विकसी भी तरह विकसी स कम नही ह लविकन उनको धयान रदना होगा की उनकी शारीरिरक अकषमता की जह स उनह विकसी सहार की हमशा जररत रहगी अब ऐस लोगो क सिलय हमारा समाज कहता ह की शारदी एक अचछा विकलप ह बहत बार अचछा जीन साथी मिमल भी जाता ह बहत बार विाह करक भी नही मिमलता पर सोचना य चाविहय की अगर आप म कोई शारीरिरक कमी ह तो कया आप को अमिधकार ह विक आप विकसी ऐस वयसिकत स विाह कर जो परणता सकषम ह ऐस विाह हमार समाज म बहत ह लविकन या तो ो अचछा रदहज़ रदन क काररण होत ह या जहा लोग गरीब घर स ध लात ह रदोनो ही कस म मामला शोरषरण का बन जाता ह और विाह होकर भी जीन साथी का साथ नही मिमलता ह मिमलती ह तो कठा ही अगर शारदी ना करक आप आरथिथक रप स अपन को सकषम बनाल और विर अपन सिलय कोई सहायक रख ल तो ो आप विकसी को नौकरी रद सकतसकती ह यानी आप अकषम ना होकर सकषम बन जात ह अकषम और सकषम म अगर आप कही भरद भा रदखत ह तो उसक खिखला आाज भी उठानी जररी ह अगर कोई आप को बविजल सरदना दिरदखाता ह तो विबना ज़िझझक उसको समझा रद की आप अपनी सथिसथवित म खश ह और आप को विकसी क कध का सहारा नही चाविहय आस बहान क सिलय आप को य बात सखती स कहनी होगी ताविक आप को कोई भी lsquoइमोशनली बलक मलrsquo ना कर सक आप को कमजोर नही बहादर ना कल बनना हो अविपत दिरदखना भी होगा कयकी जब आप ऐसा करग तभी समाज आप स कोई सहानभवित नही रखगा तभी समाज को य अहसास होगा की विकसी भी परकार का विभरद गलत ह एक बात हमशा धयान रद सरकार न बहत सी राहतअमिधकार दिरदय ह सबक सिलय अगर आप कही जात ह और हा आप को ो राहत या अमिधकार नही मिमलता ह तो माग कर ल कयविक अगर समाज असरदनशील ह तो कानन ह आप की तरचसिलय अब उदिठय और अगर आप अपन को अकषम समझत ह तो सकषम बनन क सरफर की शरात करिरय और अगर आप सकषम ह तो आपन आस पास कोई भी अकषम हो तो उसकी ज़िज़नरदगी को आसान बनान की


ओर अगरसर हो विनमारण करिरय एक बहतर समाज का जहा कोई भरद भा ना हो जहा बस इसान रहत हो रचना ी नारी बलॉग नाम क सामविहक बलॉग की ससथापक और सचालक ह ज़िजस रदशक क पाच सशरषठ बलॉगो म स एक चना गया ह य नारी का कविता बलॉग रदाल-रोटी-चाल बलॉग और बलॉग डाइरकटरी ॉर मन ह बलॉग इन बिहरदी भी तयार विकया ह इसक अलाा उनका एकसपोट का विनजी वयसाय ह ज़िजसकी शरात भी उनहोन खरद ही की ह ज़िजसम हाथ करघ स बनायी गयी रदरिरया जापान भजी जाती ह


किवकलागता और शारदीविकलागो की ज़िजनरदगी म अकलापन एक काी महतपरण समसया ह इस समसया क विनाररण हत जररी ह एक सही जीन साथी का मिमलना जो काी मशकिशकल होता ह

सही जीन साथी क न मिमल पान की एक बडी जह ह एक ऐस मच की कमी होना जहा सब एक साथ मिमलकर खल दिरदल

स अपनी जररतो पर सारद कर सक जहा कल यक ही नही अविपत यवितया भी अपन दिरदल की बात आसानी स कह सक दसरी सबस अहम जह ह विक जयारदातर विकलाग तथा उनक परिरजन भी शारदी क सिलए एक शारीरिरक रप स सामानय वयसिकत को ही तरजीह रदत ह इसकी भी एक ाज़िजब जह नजर आती ह ो यह विक परिरार क सिलए एक विकलाग क सिलए ही घर म हर तरह की सविधाए रदना काी मशकिशकल भरा होता ह ऐस म एक और विकलाग सरदसय क आ जान स परिरार ाल और खरद उस विकलाग वयसिकत क सिलए दसर की हर जररत को परा कर पाना मशकिशकल हो जाता ह यदिरद रदो विकलागो की शारदी हो भी जाती ह तो परिरार ाल य सोच कर परशान रहत ह की उनकी कोई सतान होगी अगर ो भी विकलाग विनकल जाय तो परिरार ालो और खरद उस रदपभितत को काी मशकिशकलो का सामना करना पड सकता ह ऐसा जररी तो नही विक विकलाग रदमपवित की सतान विकलाग ही हो पर सभानाए तो रहती ही ह इस तरह की मानसिसकता अगर एक विकलाग क परिरार ालो की दसर विकलाग क परवित रहगी तो सामानय लोगो स यह आशा कस रखी जा सकती ह विक उमर भर क सिलए एक विनशकत वयसिकत का हाथ थाम अगर इन सब समसयाओ क साथ भी एक सामानय इसान विकसी विकलाग स परम विाह या सहानभवितश शारदी कर भी लता ह तो इस शारदी की कामयाबी म एक परशन सिचनह हमशा रहन की सभाना होती ह

इस कडी म एक और समसया जो विक खास कर क यवितयो को होती ह ो यह ह की ज़िजस शहर म रहती ह जहा पली-बढ़ी ह अथा कोई नौकरी या कछ काम भी करती ह उसको छोड कर विकसी दसर शहर म शारदी करना नही चाहती कयविक अपन घर शहर तथा काय छतर म अपना सामजसय विबठा चकी होती ह उनह हमशा य डर लगा रहता ह की ो दसर क घर म उनक परिरार ालो क साथ और अपनी कमज़ोरिरयो क साथ सामजसय विबठा पायगी या नही अगर शारदी उसी शहर म भी हो तब भ उनह इस डर का सामना करना पडता हविकलागो को उनकी शारीरिरक अकषमताओ क साथ एक सामानय जीन रदन तथा मखय धारा स जोडन क सिलए आज यह ज़ररी ह विक उनकी इन समसयाओ पर बातचीत करक इन समसयाओ क समाधान की राह तलाशी जाए

किकशन भीमानी विकशन मसकलर विडसटरोी क बाजरद भी एक आतमविनभर वयसिकत ह य शयर टरबिडग का वयसाय करत ह इनकी सोच म एक खलापन और विचारो म परिरपकता दिरदखती ह


ककिवता

किवशव किवकलागता दिरदवसचलो वितरसकार स सममान तक की गाथा सनाता हम ह ज़िजनका परवितविनमिध उनकी ही बात बताता हअषटाकर -हलन-हॉबिकग सी शत शत कहाविनया ह पास मरआओ तमह अकषम शरीर क सकषम योvाओ स मिमलाता हल विकस विकस का नाम यहा यह भी बडी एक दविधा हछोडो नामो को बस वयसिकतवितत स परिरचय कराता हअधर म जीन ालो को भी जग आलोविकत करत रदखा हवितल वितल कर जलत इन रदीपो स ही म भी जगमगाता हसममाविनत तो कछ हए ह सामानयतः पर वितरसकत ही हउसी रदसिलत ग क अशकिसतत की म यारद दिरदलाता हज़िज़नरदगी जीन को हर पल ही सघरषरत स दिरदखत यविनराशा-आशा की लहरो पर म भी डबता उतराता हउसिचत सममान कई अमिधकारो स सिचत समाज का विहससापा जाएगा सामिधकारो को य सोच क मन बहलाता हबपर ही विहममत क रदम पर उडत दिरदख जात ह य पछीखोकर उस उडान म ग स म भी आहलादिरदत हो जाता हहर रष विशव पटल पर इनका ही परवितविनमिध बन कर आता हअतए विशव विकलागता दिरदस क नाम स जाना जाता ह

आलोकिकता वहीलचायर पर होन क बाजरद य अचछी तरह स जानती ह विक मन की उडान ऊचाईयो तक कस भरी जाती ह आलोविकता नाम ह एक खिखलखिखलात हए सभा का एक तज़ मशकिसतषक का और एक बलरद हौसल का

आतमकिवशवास आतमविशवास हमारी आतमा का आशरय ह कछ करन की परररणा कछ पान का परोतसाहन ह कामयाबी और आतमविशवास का एक गहरा आपसी समब ह और एक दसर क परक ह छोट स छोट काम म कामयाबी क सिलए हमम आतमविशवास का होना बहत ज़ररी होता ह और हमार आतमविशवास को बढान म छोटी स छोटी कामयाबी उतनी ही सहायक होती ह


आतमविशवास की कमी स हम असरकषा और हीनता का आभास होता ह अगर हमारा आतमविशवास कम हो तो हमारा रयया नकारातमक रहता ह और हम तना स गरसत रहत ह नतीजतन हमारी एकागरता भी कम हो जाती ह और हम विनरणय लत समय भरमिमत और गवितहीन स हो जात ह इसस हमारा वयसिकतत परी तरह स खिखल नही पाता ऐस म सलता तो कोसो दर रहती हआतमविशवास की कमी क दःषपरीरणाम जान लन क पात यह हमारा रफज़ बनता ह विक हम इस बढ़ान क सिलए ठोस करदम उठाय कयोविक हम सभी ज़िज़नरदगी म और विकय गए काय म सलता चाहत ह

चसिलए रदखत ह किक य आतमकिवशवास आखिखर ह कया परिरसथिसथवितया वयसिकत विशरष स कछ अपकषा करती ह और हर वयसिकत की उस अपकषा को परा करन की अलग-अलग कषमता होती ह अगर विकसी वयसिकत की अपकषा उसकी कषमता स जयारदा हो तो ह आतमविशवास की कमी महसस करता ह और अगर उसकी कषमता उस सथिसथवित की अपकषा को परा करन म सकषम हो तो ह अपन अरदर भरपर आतमविशवास महसस कर पाता हअगर कदि8न परिरसतितसियो की अपकषाओ को हम परा करना सीख ाए झन की कषमताओ को बढा पाय तो आतमकिवशवास को कायम रखन म कभी कदि8नायी महसस नही होगी और इन सब क सिलए हम खरद ही की नज़र म पहल उ8ना होगा हम रदखना होगा विक खरद को विकसी स कम तो नही समझत ना हम अपना मलयाकन करना चाविहए और ना ही विकसी को ऐसा करन की इजाज़त रदनी चाविहए हम सब अपनी-अपनी जगह पर सही परण ह और जब-जब हम अपनी तलना विकसी और स करत ह तब-तब हम अपन साथ एक बहत बडा अनयाय करत ह

नकारातमक परिरसथिसथवितया जो मायस कर रद उनस अगर खरद को अलग कर पाय तो हम अपना आतमविशवास बढान म कामयाब हो सकत ह नकारातमक सोच रखन ाल वयसिकत हमार आतमविशवास को कषीरण कर रदत ह ज़ररत ह हम अपना उतसाह बढान की एक सकारातमक चारिरक-सरदश रदत रहन की खरद को य जतलात रहना आशयक ह विक म सबस शरषठ ह समपरण ह मझम कोइ कमी नही ह म कोइ भी काय करन म सकषम ह

अपन अरदर आतमविशवास जगान क सिलए हम कई बार इतना तक परयास करना ज़ररी हो जाता ह विक हम अभिभनय तक करना पड सकता ह विक हमार अरदर भरपर आतमविशवास ह ऐसा अभिभनय कारफी मरदरदगार साविबत हो सकता ह एक आतमविशवास स परसथिललत वयसिकत क शारीरिरक सकत कछ अलग ही होत ह उरदहाररण क तौर पर

उसक चहर क हा-भा विशरामपरण होत ह उसक चहर स आतमविशवास और परभानीयता झलकती ह उसकी शारीरिरक करीया आरामरदायक सहज शात होती ह उसकी दषटी सीधी धयानपरण रचीपरण और परभाशाली होती ह उसकी आाज़ सरीली आसानी स सन जान की सीमा तक ऊची होती ह

हम अपनी दिरदखाट शभरषा बता इतयारदी को ठीक-ठाक रखना चाविहए ज़िजसस विक अनय वयसिकत पर अचछा परभा पड हम विनरतर अपन सामानय-जञान को बढ़ात रहना चाविहए इन सभी उपरोकत करदमो स हम खरद को अपनी ही नज़रो म उठा पायग और अगर इन सब क बाजरद हम कभी गलत हो तो हम यह सोचना चाविहए ndash कया हआ अगर म गलत ह म ऐसी ही ह मन ऐसा विकया कयोविक मन अपन अनभ स इस ही सही जाना हकदिठन परिरसथिसथवितयो स भाग जान की बजाए हम उनका डटकर मकाबला करन की ठान लनी चाविहए कदिठनाईयो स जझन हत हम अपन को हमशा परसिशभिकषत करत रहना होगा और ऐसा करन क सिलए ज़ररी हो जाता ह विक हम


अपन जञान म लगातार vी करत रह हर वयसिकत म एक परवितभा सिछपी रहती ह और हमारा उददषय होना चाविहए विक हम उस परवितभा को खोज उस उभार

और य सब चटकी बजात ही नही हो सकता ना ही यह परविकरया रातो-रात समपनन हो सकती ह बलकी धीर-धीर सयम रखत हए एक एक करदम उठा कर विकया जा सकता ह हम विनरतर कोसिशश जारी रखनी होगी विक कस धीर-धीर कदिठन परिरसथिसथवितयो स सामना कर क उन पर विजय पात हए आग बढ़ हम विल भी हो तो चिचता नही हम विबना मायस हए उसी पथ पर चलत रहना पडगाकई बार हम अपना मलयाकन करन लग पडत ह और अपनी कषमताओ पर सरदह करन लगत ह हम इस आरदत का परिरतयाग करना होगा ऐसी बातो स हमारा आतमविशवास टट जाता ह इससिलए सिसरफ काय करो उसक परिररणाम क बार म सोच कर वयथ समय न नषट करोय सब करन क सिलए हम तना को भी झलना आना चाविहए शारीरिरक तना कम करन की तकनीक गहर सास लन की तकनीक बर परिररणामो क बार म न सोचन की आरदत हर परिररणाम म कछ अचछा ही रदखना डरन स न डरना इतयादिरद कछ ऐस करदम ह ज़िजनह विबना उठाय काम नही बन पायगा कछ और मरदरदगार तकनीक ह जस विक -- अरदर स बचनी होन पर भी उस दसरो को ज़ाविहर न होन रदना अपन जीन क अचछ पलो को यारद करत रहना एक बात जो सबस महतपरण ह ो ह अभयास अभयास अभयासयह तभी समभ ह जब हम परणताारदी बनना बरद कर हम यह समझ लना चाविहए विक हम हर काम परणता पराकाषठा स नही कर सकत कयोविक हम कोई भगान नही ह और ऐसा धयय रखना अपनी शसिकतयो पर बजह ज़ोर डालना ही होगा हम औरो को बजह हर समय परभावित करना छोडना पडगा रना नतीजा होगा--आतमविशवास म सधइस तरह की तकनीको विचारो स हम अपन आतमविशवास को कायम रखन म कामयाब रहग विशवास की यह तरग जो आपक अरदर ह उन चीजो को आपकी ओर आकरषिरषत करती ह जो आप चाहत ह इस तरह सारी सकारातमक चीज आपक जीन म आन लगती हविचार विशवास का आइना ह मन स जो विचार विनकलत ह उनह रदखकर ही पता चलता ह विक विचारो क पीछ विकस तरह का विशवास ह हमार विचार ही बतात ह विक हमार अरदर कसा विशवास ह और विशवास यह बताता ह विक हम कया करन विक योगयता रखत ह लोगो स जब यह साल पछा जाता ह आजकल आपक अरदर कौन स विचार चल रह ह और जाब रदत ह विक सबह उठकर ऐस-ऐस विचार आत ह तब उनक विचार उनका आतमविशवास बतात ह

एक इसान कहता ह सबह उठकर मझ पहला विचार यह आता ह विक मदिरदर विकतन बज खला ह इसान अपन शरीर को मदिरदर कहता ह ह यह समझता ह विक शरीर एक मदिरदर ह उसक सिलए सबह उठना यानी मदिरदर का खलना ह अब इस मदिरदर क अरदर स कौन झाकगा मदिरदर जब बरद होता ह तब उसक सामन कोई खडा नही होता मदिरदर जब खल जाता ह तब उसक सामन अलग-अलग लोग आना शर हो जात ह सबह उठकर यदिरद आपको यह विचार आए विक शरीर उठा यानी मदिरदर खला अब पजारी (आप) कया कर तब विनभित ही ऐस शरीर स ज़िजसम विशवास भरा हआ ह सकारातमक आनरदरदायक सभी क मगल क सिलए काय शर हो जात हसबह उठन क बारद एक इसान को विचार आत ह म उठामन कया-कया विकया और दसर इसान को विचार आता ह विक मदिरदर खला इन रदोनो विचारो म छोटा सा क ह मगर यही क एक को असलता दिरदलाता ह और दसर को सलताकयोविक दसर इसान न अपन आपको जान सिलया इससिलए उसम यह विचार आया मगर यह विचार आन क सिलए उस इसान न न जान विकतन सिशविर विकए होग घटो बठकर सतय का शररण मनन विकया होगा तब जाकर उसस ऐसी पसिकत विनकलती ह रना विकसी स कहा जाय विक सबह उठकर आपको यह पसिकत कहनी ह तो ह कहगा


अर आपन कहा था लविकन मझ यारद ही नही आया मझ तो यह यारद आया विक ऑविस विकतन बज पहचना ह कॉलज म आज कया सशकिबमशन ह महमान आएग तो कया खाना बनाए इससिलए कहा गया विक आपक विचार ही बतात ह विक आपकी कया असथा ह आपक विचारो क पीछ जो झाक रहा ह आपका आतमविशवास बचारा विकस असथा म ह यह पता चलता हअगर आपक अरदर विशवास ससथ असथा म ह तो आपक विचार कस होग ससथ असथा म हर-भर विचार होग ज़िजस इसान का विशवास ससथ ह उस इसान को रदखकर ही लोगो को लगगा विक यह आम खरीरदना चाविहए यानी इस तरह क लोगो को साथ रहना चाविहए इनका विशवास करना चाविहएज़िजन लोगो म विशवास परण होता ह उन लोगो क साथ आप अपन आप को सरभिकषत महसस करत ह आप ऐस लोगो क साथ रहना चाहत ह शकाल कपटी अविशवासी और अनमानी लोगो स आप दर भागना चाहत ह इससिलए अपन आप स पछ विक लोग आपक साथ रहना पसरद करत ह या नही यदिरद नही तो आज स ही अपन विचार बरदल आपक विचार ही आपक विशवास की खबर रदत ह आज स ही अपन विचारो म आतमविशवास की महक डालना शर कर विकसी भी घटना म ह चाह नकारातमक ही कयो न हो अपन विचारो को सकारातमक ही रख अपन आप पर विशवास रख विक आप सब काम कर सकत ह ज़िजनह करन क विचार आपक अरदर उठत हइससिलए हमशा यारद रख आतमकिवशवास एक मानसिसक ए आधयाबतितमक शसिकत ह आतमविशवास स विचारो की साधीनता परापत होती ह और इसक काररण ही काय क समपारदन म सरलता और सलता मिमलती ह इसी क दवारा आतमरकषा होती ह जो वयसिकत आतमविशवास स ओत-परोत ह उस अपन भविषय क परवित विकसी परकार की सिचनता नही रहती आभा खतरपाल अधयकष करोस डी हडल





I am your teacher If you allow me I will teach you what is really important in life

I will give you and teach you unconditional love I give to you my innocent trust my dependency upon you I teach you of respect for others and their uniqueness I teach you about the sanctity of life

I teach you about how very precious this life is and about not taking things for granted

I teach you about forgetting your own needs and desires and dreams

I teach you giving



Editorial

TravelAbility


The Expert Speaks


What didnrsquot kill them only made them stronger


The mere fact that some 27 billion tickets were sold certainly showed that there was a definite surge in interest for the Paralympics No wonder IPC president Philip Craven described it as the lsquoGreatest Paralympic Games everrsquo and one which has lsquochanged us all forever



Devi

Stressed lives of the caregivers of special needs kids


ldquoWings to abilityrdquo


MY MOTHER

करोस डी हरदलस कया ह

विकलागता पराकतिक ह

सार वरत सिरफ मर लिय

हर काम म सकषम फिर भी समाज की नज़र म अकषम

विकलागता और शादी

विशव विकलागता दिवस

आतमविशवास

Editorial3

TravelAbility5

lsquoWO SUBAH KABHI TO AYGIrsquo10

Personality Of The Quarter13

The Expert Speaks16

What didnrsquot kill them only made them stronger21

Flowing and floating with water A journey24

Devi26

Stressed lives of the caregivers of special needs kids28

Do Dooni Chaar My Version Of The Story30

ldquoWings to abilityrdquo32

If Those People Can So I Can I amp I Will33

Technology to help people with disabilities35

I Am the Disabled Child37

MY MOTHER38

Graphics39

करोस डी हरदलस कया ह41

विकलागता पराकवितक ह45

सार वरत सिसरफ मर सिलय48

हर काम म सकषम विर भी समाज की नज़र म अकषम52

विकलागता और शारदी54

विशव विकलागता दिरदस56

आतमविशवास57








Editorial Team







Abha Khetarpal

President

Cross the Hurdles





TravelAbility





































































I do not know


















life situations























Tips Of The Quarter



























your belongings














































Devi



















Ashu


Parents Speak
























Poem


























O











Prof Prabhat Ranjan











Kids Korner








I teach you giving



Unknown












































































ककिवता

























I teach you giving



Editorial

TravelAbility


The Expert Speaks







Devi





MY MOTHER














Editorial Team







Abha Khetarpal

President

Cross the Hurdles





TravelAbility





































































I do not know


















life situations























Tips Of The Quarter



























your belongings














































Devi



















Ashu


Parents Speak
























Poem


























O











Prof Prabhat Ranjan











Kids Korner








I teach you giving



Unknown












































































ककिवता

























I teach you giving



Editorial

TravelAbility


The Expert Speaks







Devi





MY MOTHER













Abha Khetarpal

President

Cross the Hurdles





TravelAbility





































































I do not know


















life situations























Tips Of The Quarter



























your belongings














































Devi



















Ashu


Parents Speak
























Poem


























O











Prof Prabhat Ranjan











Kids Korner








I teach you giving



Unknown












































































ककिवता

























I teach you giving



Editorial

TravelAbility


The Expert Speaks







Devi





MY MOTHER








TravelAbility





































































I do not know


















life situations























Tips Of The Quarter



























your belongings














































Devi



















Ashu


Parents Speak
























Poem


























O











Prof Prabhat Ranjan











Kids Korner








I teach you giving



Unknown












































































ककिवता

























I teach you giving



Editorial

TravelAbility


The Expert Speaks







Devi





MY MOTHER





































































I do not know


















life situations























Tips Of The Quarter



























your belongings














































Devi



















Ashu


Parents Speak
























Poem


























O











Prof Prabhat Ranjan











Kids Korner








I teach you giving



Unknown












































































ककिवता

























I teach you giving



Editorial

TravelAbility


The Expert Speaks







Devi





MY MOTHER




















life situations























Tips Of The Quarter



























your belongings














































Devi



















Ashu


Parents Speak
























Poem


























O











Prof Prabhat Ranjan











Kids Korner








I teach you giving



Unknown












































































ककिवता

























I teach you giving



Editorial

TravelAbility


The Expert Speaks







Devi





MY MOTHER


























Tips Of The Quarter



























your belongings














































Devi



















Ashu


Parents Speak
























Poem


























O











Prof Prabhat Ranjan











Kids Korner








I teach you giving



Unknown












































































ककिवता

























I teach you giving



Editorial

TravelAbility


The Expert Speaks







Devi





MY MOTHER





















your belongings














































Devi



















Ashu


Parents Speak
























Poem


























O











Prof Prabhat Ranjan











Kids Korner








I teach you giving



Unknown












































































ककिवता

























I teach you giving



Editorial

TravelAbility


The Expert Speaks







Devi





MY MOTHER




















































Devi



















Ashu


Parents Speak
























Poem


























O











Prof Prabhat Ranjan











Kids Korner








I teach you giving



Unknown












































































ककिवता

























I teach you giving



Editorial

TravelAbility


The Expert Speaks







Devi





MY MOTHER




















Ashu


Parents Speak
























Poem


























O











Prof Prabhat Ranjan











Kids Korner








I teach you giving



Unknown












































































ककिवता

























I teach you giving



Editorial

TravelAbility


The Expert Speaks







Devi





MY MOTHER








Parents Speak
























Poem


























O











Prof Prabhat Ranjan











Kids Korner








I teach you giving



Unknown












































































ककिवता

























I teach you giving



Editorial

TravelAbility


The Expert Speaks







Devi





MY MOTHER



























Poem


























O











Prof Prabhat Ranjan











Kids Korner








I teach you giving



Unknown












































































ककिवता

























I teach you giving



Editorial

TravelAbility


The Expert Speaks







Devi





MY MOTHER













O











Prof Prabhat Ranjan











Kids Korner








I teach you giving



Unknown












































































ककिवता

























I teach you giving



Editorial

TravelAbility


The Expert Speaks







Devi





MY MOTHER
















Prof Prabhat Ranjan











Kids Korner








I teach you giving



Unknown












































































ककिवता

























I teach you giving



Editorial

TravelAbility


The Expert Speaks







Devi





MY MOTHER














Kids Korner








I teach you giving



Unknown












































































ककिवता

























I teach you giving



Editorial

TravelAbility


The Expert Speaks







Devi





MY MOTHER



















































































ककिवता

























I teach you giving



Editorial

TravelAbility


The Expert Speaks







Devi





MY MOTHER




























I teach you giving



Editorial

TravelAbility


The Expert Speaks







Devi





MY MOTHER








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