three levels of nami nami wake mission, history, legal structure, philosophy programs: support,...
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Three Levels of NAMI NAMI Wake Mission, History, Legal
Structure, Philosophy Programs: Support, Education,
Advocacy Community Awareness & Outreach Board Structure and Function Volunteer Opportunities
WHAT IS NAMI?
nami.orgnaminc.org
nami-wake.org
Largest grassroots mental health organization in US NAMI has National, State & local organizations 1,100 local affiliates—34 in North Carolina NAMI Wake is largest NAMI Affiliate in NC
• National Office • maintains a strong presence on Capitol Hill in
Washington, DC, by educating legislators and policymakers.
• NAMI has developed unique education programs, F2F, Peer to Peer, BASICs
• NAMI developed and supports NAMIWalks• Information Helpline: (800) 950-NAMI
NAMI NCAdvocates at the state level within the legislative, executive, and judicial branches for goals and objectives of NAMI NC Board
• Monitor the budgets and activities of state agencies; and• support affiliate growth and development by working with new and small local
affiliates• Publishes a quarterly state-wide newsletter • Organizes NAMIWalks.• Statewide coordination for Education Programs, Membership, NAMI on
Campus, Consumer Council• NAMI NC HELPLINE: 800- 451-9682 ( NC only)
Monday - Friday 8:30 am to 5 pm.
How we are ALIKE
• We are grassroots, membership organizations • One dues payment provides membership to all 3
levels.• Some education programs are developed by
NAMI national; NAMI NC arranges & tracks training sessions and reports to national; Volunteers in NAMI affiliates organize & teach classes
• We are aligned in our overall mission
How we are Different
• Each is a separate 501 (c)(3), tax exempt corporation• We compete for donations and program funding• While we are aligned in our overall mission, we form
our own public policy positions which sometimes differ.• NAMI Wake offers its own support and education
programs in addition to those developed by NAMI• NAMI and NAMI NC have salaried staff & Executive
Directors• NAMI Wake accomplishes our goals through
approximately 140 active volunteers.
MISSION
The mission of NAMI Wake County is to provide
support, education, and advocacy for persons with mental illness and their
families and friends.
HISTORY Founded 1987 as “Friends and Families
in Alliance for the Mentally Ill” (FFAMI) Original agent was Mary Virginia
Welles, mother of a daughter with mental illness.
In Nov., 1989, the name was changed to Wake County Alliance for the Mentally Ill (WC AMI).
In 1998, the name of the organization was changed to NAMI Wake County to reflect the naming and identity standards of NAMI.
LEGAL STRUCTURE
Tax exempt, nonprofit corporation 501(c)(3) status under the IRS
Membership organization Affiliate of NAMI and NAMI NC—each
organization a separate 501(c)(3) corporation
NAMI WAKE – GRASSROOTS ORGANIZATION
Many volunteers in the community united to give their time and support to one another and the local affiliate in advocacy initiatives as well as other mission-related activities.
The “lived experience” is critical to developing and implementing informed public mental health policy and programs.
Majority of board members have lived directly or indirectly with mental illness
This philosophy is at the soul of NAMI Wake County and must be preserved.
VOLUNTEERS ARE KEY TO SUCCESS
Passion from volunteers with “lived experience” lead our education programs, support groups, and advocacy efforts.
Organizational leadership and logistics are provided by volunteers
WHAT MAKES NAMI WAKE UNIQUE? Only organization primarily serving Wake County
that advocates for issues impacting people with mental illness and their families.
Volunteers serve on county and state committees related to mental health and actively advocate with elected officials for funding, policies and legislation
Only organization in Wake County offering family education programs and support groups for different diagnoses.
Only independent advocacy group (not receiving state dollars) publishing reports on mental health issues.
Have approximately 500 dues paying members more than 3,000 households in our data base.
RECOGNIZED BY PRESS
Press calls NAMI Wake leaders for comments on stories related to mental health N&O TV Stations Winston Salem Journal Associated Press
Letters to the Editor & Point of View Articles
WHAT NAMI WAKE OFFERS
All NAMI Wake programs for families and consumers are FREE.
Education Programs Family to Family BASICS Peer to Peer Family Connections for BPD
Support Groups - Ongoing MH Consumers Family & Other Caregivers
Monthly Education Meetings Volunteer Opportunities
Peer to Peer: A course for consumers containing individual relapse prevention planning, a debriefing/storytelling week, and an advance directive for psychiatric care.
In Our Own Voice: A one-and-a-half hour interactive, multimedia presentation by consumers that offers hope and provides insight into the recovery now possible for people with mental illness.
FAMILY TO FAMILY (F2F)
The NAMI Family-to-Family Education Program is a free, 12-week course for family caregivers of individuals (primarily adults) with severe mental illnesses.
The course is taught by trained family members All instruction and course materials are free to class
participants Over 115,000 family members have graduated from
this national program Location & Time: Vary by class Contact: Andrea Chase, NAMI Wake F2F Coordinator
FAMILY TO FAMILY (F2F)
What does the course include? Current information about schizophrenia, major
depression, bipolar disorder (manic depression), panic disorder, obsessive-compulsive disorder, borderline personality disorder, and co-occurring brain disorders and addictive disorders
Up-to-date information about medications, side effects, and strategies for medication adherence
Current research related to the biology of brain disorders and the evidence-based, most effective treatments to promote recovery
FAMILY TO FAMILY (F2F)• Gaining empathy by understanding the
subjective, lived experience of a person with mental illness
• Learning in special workshops for problem solving, listening, and communication techniques
• Acquiring strategies for handling crises and relapse
• Focusing on care for the caregiver: coping with worry, stress, and emotional overload
• Guidance on locating appropriate supports and services within the community
• Information on advocacy initiatives designed to improve and expand services
FAMILY CONNECTIONS FOR BORDERLINE PERSONALITY DISORDER (BPD)
Family Connections Class taught in NC. Family CONNECTIONS is a research-based,
manualized course for family members with a relative with borderline personality disorder (BPD) or symptoms of the disorder.
The program seeks to provide the most current information and research on BPD
Teaches coping skills based on Dialectical Behavior Therapy (DBT) and to develop a support network.
Modeled after NAMI’s Family-to-Family program, the National Education Alliance for BPD developed Family Connections classes which are led by family members
Contact: Ann or Gerry Akland, [email protected]; [email protected]
FAMILY CONNECTIONS FOR BPD
The effort of Family Connections is coordinated by the National Education Alliance for Borderline Personality Disorder (NEA-BPD); with preliminary research supported by the National Institute of Mental Health.
Course Content - Topics Addressed Include: Education on BPD Emotion Regulation Skills Research on BPD Effective Communication Skills Family Perspectives and Experiences Validation Skills Relationship Mindfulness Skills Problem Management Skills This class is taught by family members who are not mental
health professionals, and it is not a therapy group. Data from NIMH research documents that family members
experience a decrease in depression,
NAMI BASICS
NAMI Basics is an education program for parents and other caregivers of children and adolescents living with mental illnesses. The NAMI Basics course is taught by trained teachers who are the parent or other caregivers of individuals who developed the symptoms of mental illness prior to the age of 13 years.
The course consists of six classes, each lasting for 2 ½ hours. Classes may be offered weekly for six consecutive weeks, or may be offered twice per week for three weeks to accommodate the hectic schedules of parents. All instruction materials are FREE to participants.
Location & Time vary by class
Contact: Shea Cleveland, NAMI Wake Basics Coordinator @ [email protected]
NAMI BASICS
Introduction to the stages of emotional reactions of the family to the mental illness; including crisis, shock, denial, grief and acceptance.
Insights into understanding of the lived experience of the child living with the mental illness, including learning to separate the child you love from the illness that alters their behavior and abilities
Examples of strategies that have been found helpful in handling challenging behaviors in children and adolescents
Information about the systems that are major players in the lives of children and adolescents with mental illness – the school system and the mental health system
NAMI BASICS
Current information about Attention Deficit Disorder, Major Depression, Bipolar Disorder, Conduct Disorder, Oppositional Defiant Disorder, Anxiety Disorders, Obsessive Compulsive Disorder, Childhood Schizophrenia and Substance Abuse Disorders
Current research related to the biology of mental illness and the evidence-based, most effective treatment strategies available, including medications used to treat mental illness in children and adolescents
Specific workshops to learn problem solving, listening and communication skills
NAMI BASICS
Exposure to personal record keeping systems that have proven to be effective for parents/caregivers in their interactions with the school and healthcare systems
Information on planning for crisis management and relapse
Information on locating appropriate supports and services within the community to build a community of support for the parent/caregiver
Information on advocacy initiatives designed to improve and expand services, with an emphasis on personal advocates for the parent/caregiver and child on an individual level
Contact: Cynthia Daniels-Hall, [email protected]
CRISIS INTERVENTION TEAM PROGRAM Initiated by NAMI Wake & Wake County Human
Services Partnership between Alliance Behavioral Health, all
law enforcement agencies in Wake County, and NAMI Wake
Jail diversion program involving one week training program related to mental health services, deescalation and policies to allow transfer of custody to officer at WCHS Crisis Facility rather than taking person to Wake County Jail.
NAMI Contact: Tom Hadley, [email protected], 787-5999
MONTHLY EDUCATION MEETINGS
NAMI Wake Free Monthly Education Meeting 4th Monday of each Month, Highland United
Methodist Church, 1901 Ridge Rd., Raleigh, Conference Room, 7-8:30 pm
Topics vary – Examples of recent speakers Dr. Michael Zarzar, Bipolar DisorderDr. Terry Clapacs, DepressionDr. Shane Rau, UNC, SchizophreniaDr. Zachery Rosenthal, Duke, Borderline
Personality DisorderContact: Ann Akland, aakland@nami-org; 919 266 0766
NEWSLETTER
The Iris – Published Monthly Meeting Announcements Support Group & Education Classes
Calendar Volunteer Opportunities Special Events Fundraising events Contributed articles NAMI Wake’s “editorials” Contact: Ann Akland;
[email protected] 919-266-0766
COMMUNITY AWARENESS OUTREACH Serve on public sector boards and
committees Attend health fairs Speak to civic groups, communities of
faith and other organizations. Annual Celebration of Courage Event
Contact: Ann Akland [email protected] 919 266 0766
NAMI Wake Information/Support Line:919-848-4490
NAMI CONNECTION RECOVERY SUPPORT GROUPS
NAMI Connection is a weekly recovery support group for people living with mental illness in which people learn from each others’ experiences, share coping strategies, and offer each other encouragement and understanding.Time: First 3 Mondays of each Month, 7- 8:30pLocation: Highland United Methodist Church, 1901 Ridge Rd., Raleigh, NC Time: Second, Third and Fourth Thursdays of each Month, 6:30 -7:30pGarner United Methodist Church, 201 Methodist Drive, Garner, NC, Contact: Heather Scott, [email protected]
FAMILY SUPPORT GROUPS
Trained volunteer facilitators Uses the NAMI Support Group model which offers a set of key structures
and group processes for facilitators to use to encourage full group participation in support group meetings.
Christ the King Lutheran Church, Room 101, 600 Walnut St, Cary, NC, 2nd & 4th Thursdays, 7-8:30pm. Contact Judith Dehavilland, [email protected] for more information.
HIghland United Methodist Church, 1901 Ridge Rd., Raleigh, NC., Rooms 202 & 204, 7-8:30 p.m. on the first three Mondays of each month. For more information contact Gordon Gogola ([email protected]), phone (919) 601-3996.
Wake Forest United Methodist Church, 905 S. Main St., Wake Forest, NC, 7 - 8:30pm, 2nd and 4th Tuesdays of each month. For more information contact Gordon Gogola
([email protected]), phone (919) 601-3996.
SUPPORT GROUP FOR FAMILIES OF CHILDREN
Support meeting for parents and caregivers
Under the age of 18 who have a behavioral health diagnosis.
Meetings are for sharing and supporting one another especially in reference to the education system.Group currently not available due to lack of trained facilitator.
COMMUNITY SUPPORT GROUPS
Initiative with WCHS Groups primarily for people with mild to
moderate depression but individuals with any diagnosis are welcome
St. Bernadette Catholic Church, 1005 Wilbon Road, Fuquay
Varina, NC First & Third Thursday of each month: 7- 8:30 pm
Wake County Human Services,.220 Swinburne St., Raleigh, NC,
Every Friday: 2 - 3 pm, Rm 1151
Contact: Gerry Akland, [email protected] 919 266 0766
FAMILY MEMBERS OF PEOPLE WITH BORDERLINE PERSONALITY DISORDER
For Graduates of the Family Connections for BPD Class or by permission of facilitator 3rd Sunday of each month First Step Services, 211 E. Six
Forks Rd., Suite 117, Raleigh, NC, Contact Melonia Carroll, [email protected].
IN OUR OWN VOICE (IOOV)
In Our Own Voice (IOOV) is a unique public education program developed by NAMI, in which two trained consumer speakers share compelling personal stories about living with mental illness and achieving recovery.
Program administered by NAMI NC Contact: Jennifer Rothman, NAMI NC, [email protected] Attachment: NAMI Wake IOOV Reimbursement Policy
VOLUNTEER OPPORTUNITIES
Consumer Affairs Committee
Advocacy Committee Program Committee Development Committee Criminal Justice
Committee Data entry Phone calls Newsletter mail out
Support Group Facilitators
Education Program Teachers
CIT Logistics Health Fairs Speakers
CELEBRATION OF COURAGE
Nineth Annual NAMI Wake CountyCelebration of Courage
Celebrate the Hope, Recovery. amd Courageof People with Mental illness
Recreation of Van Gogh's Painting
"Irises"
Vincent showed signs of mental disturbance and after a fight with a fellow painter, Gauguin, cut off part of his own ear. He spent time [1889-90] in an asylum but continued to produce great works of art. He shot himself at the scene of his last painting 'Cornfields with Flight of Birds' in 1890.
Van Gogh referred to his mental illness as “an illness “like any other.” Share his message!