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Resource Name: URL:http://www.1in9.org
http://www.11qusa.org17q21.31 Research Project
http://www.1p36dsa.org22q11 Ireland http://www.22q11ireland.org22qcentral.org http://22qcentral.org2q23.org http://2q23.org/4p- Support Group
4th Angel Mentoring Program http://www.4thangel.org5p- Society http://www.fivepminus.orgA Foundation Building Strength
A Place to Remember
A Twist of Fate-ATS
Aarons Ohtahara http://www.ohtahara.org/
About Special Kids
AboutFace International http://aboutface.ca/
AboutFace USA http://www.aboutfaceusa.orgAccelerate Brain Cancer Cure http://www.abc2.org
Accord Alliance
Achalasia 101 http://achalasia.us/http://www.amda-pompe.org
Acoustic Neuroma Association http://anausa.org/Action to Cure Kidney Cancer http://www.ackc.org/
http://www.addisons.org.uk/http://www.accoi.org/
http://www.accrf.org/
List of organizations from the Genetic and Rare Diseases (GARD) Information Center3/12/2015
1 in 9: The Long Island Breast Cancer Action Coalition11q Research and Resource Group http://www.17q21.com/en/
index.php1p36 Deletion Support & Awareness
http://www.4p-supportgroup.org/
http://www.buildingstrength.orgA National Support group for
Arthrogryposis Multiplex Congenita (AVENUES)
http://www.avenuesforamc.com
http://www.aplacetoremember.com/http://www.atwistoffate-ats.com/
http://www.aboutspecialkids.org/
Accelerated Cure Project for Multiple Sclerosis
http://www.acceleratedcure.orghttp://www.accordalliance.org/
Acid Maltase Deficiency Association (AMDA)
Addison's Disease Self Help GroupAdenoid Cystic Carcinoma Organization InternationalAdenoid Cystic Carcinoma Research Foundation
http://www.naadvocacy.org
AFE Foundation http://www.afesupport.orgAHC Association of Iceland http://.www.ahc.isAHC Federation of Europe http://www.ahcfe.euAicardi Syndrome Foundation
AISDSD Support Group http://www.aisdsd.orgAIS-DSD Support Group http://www.aisdsd.org/AKU Society http://www.alkaptonuria.info/AKU Society of North America http://www.akusocietyna.org/Alagille Syndrome Alliance http://www.alagille.orgAlbinism Fellowship http://www.albinism.org.ukALD Life http://www.aldlife.org/
http://aliber.org/
http://www.aanma.org
Alliance for Cryoglobulinemia http://allianceforcryo.org/
Alliance for Lupus Research http://lupusresearch.org/Alopecia Support Group
Alopecia World websiteAlpha-1 Advocacy Alliance
Alpha-1 Association http://www.alpha1.org/
Alpha-1 Awareness UK
Alpha-1 Canada http://www.alpha1canada.caAlpha-1 Foundation
Alpha-1 UK Support Group http://www.alpha1.org.ukAlport Syndrome Foundation
ALS Puerto Rico Support
Alstrom Syndrome International http://www.alstrom.orghttp://www.ahckids.org
http://www.alzdiscovery.org
Advocacy for Neuroacanthocytosis PatientsAdvocacy for Patients with Chronic Illness, Inc.
http://www.advocacyforpatients.org
http://www.aicardisyndrome.org
Alex's Lemonade Stand Foundation
http://www.alexslemonade.org/Alianza Iberoamericana de
Enfermedades Poco FrecuentesAllergy & Asthma Network Mothers of Asthmatics
http://www.alopeciasupport.org/http://www.alopeciaworld.comhttp://www.alpha1advocacy.org
http://www.alpha1awareness.org.uk
http://www.alpha-1foundation.org/
http://www.alportsyndrome.orgAlport Syndrome Hope for the
Cure Foundationhttp://www.hopeforthecure.orghttp://alsprsupportgroup.ning.com/
Alternating Hemiplegia of Childhood Foundation (AHCF)Alveolar Capillary Dysplasia Association
http://www.acd-association.com
Alzheimer’s Drug Discovery Foundation (formerly, Institute for the Study of Aging)
Alzheimer's Association http://www.alz.org
http://www.alzfdn.org
AMC Cancer Research Center http://www.amc.org/AMD Alliance International http://www.amdalliance.org
http://www.aad.org/http://www.aao.org/
http://www.aaomp.org
http://www.aaos.org/
http://www.aapsm.org/
American Acedemy of Pediatrics http://www.aap.orghttp://www.aaksis.org
http://www.aapos.org/
http://www.aasld.org/
http://www.aakp.org/
http://www.aaidd.org
http://www.aarda.org/
American Autonomic Society
http://www.behcets.com
http://www.abta.orgAmerican Cancer Society http://www.cancer.org
http://www.acca.org
http://www.theacpa.org
http://www.acog.org
American Diabetes Association http://www.diabetes.org
American Dietetic Association
American Dystonia Society http://www.dystonia.us/American Epilepsy Society http://www.aesnet.org
Alzheimer's Disease Education and Referral Center (ADEAR)
http://www.nia.nih.gov/alzheimers
Alzheimer's Foundation of America
American Academy of Allergy Asthma and Immunology
http://www.aaaai.org/home.aspx
American Academy of DermatologyAmerican Academy of OphthalmologyAmerican Academy of Oral & Maxillofacial Pathology (AAOMP)American Academy of Orthopaedic SurgeonsAmerican Academy of Podiatric Sports Medicine
American Association for Klinefelter Syndrome Information and SupportAmerican Association for Pediatric Ophthalmology and StrabismusAmerican Association for the Study of Liver DiseasesAmerican Association of Kidney PatientsAmerican Association on Intellectual and Developmental DisabilitiesAmerican Autoimmune Related Diseases Association (AARDA)
http://americanautonomicsociety.org/American Behcet's Disease
AssociationAmerican Brain Tumor Association
American Childhood Cancer OrganizationAmerican Chronic Pain Association (ACPA)American College of Obstetricians and Gynecologists (ACOG)
http://www.eatright.org/Public/
http://www.afsafund.org/
American Foundation for the Blind http://www.afb.org/http://www.gastro.org/patient
American Hair Loss Association http://americanhairloss.orghttp://www.achenet.org
http://www.ahaf.org/
American Heart Association http://www.heart.org/
http://www.americanhs.org
http://www.aicr.org
American Kidney Fund, Inc. http://www.kidneyfund.orgAmerican Liver FoundationAmerican Lung Association http://www.lung.org/
http://www.macular.org/
http://www.amensupport.org/
http://aofas.org/
http://www.aocd.org/
http://www.apfed.org
http://www.apma.org/
American Pregnancy Association
American RSD Hope Group http://www.rsdhope.orghttp://www.ascaa.org
American SIDS Institute http://sids.org/American Skin Association, Inc. http://www.americanskin.org
http://www.sleepapnea.orgAmerican Sleep Association
American Fibromyalgia Syndrome Association, Inc.
American Gastroenterological Association
American Headache Society Committee for Headache Education (ACHE)American Health Assistance FoundationAmerican Hearing Research Foundation
http://www.american-hearing.org
American Hemochromatosis Society, Inc.
American Institute for Cancer Research
http://www.liverfoundation.org/
American Macular Degeneration FoundationAmerican Multiple Endocrine Neoplasia SupportAmerican Orthopaedic Foot & Ankle SocietyAmerican Osteopathic College of DermatologyAmerican Parkinson Disease Association
http://www.apdaparkinson.org/
American Partnership For Eosinophilic DisordersAmerican Podiatric Medical Association, Inc.
http://www.americanpregnancy.org
American Sickle Cell Anemia Association
American Sleep Apnea Association http://
www.sleepassociation.org/
http://www.deafchildren.org/
http://www.asrm.org
http://www.asha.org/
American Stroke Association
http://www.asap.org
American Thyroid Association http://www.thyroid.org
American Urogynecologic Society http://www.augs.org/
American Uveitis Society http://www.uveitissociety.org/
Ameriface http://www.ameriface.orgAmniotic Band Syndrome
Amputee Coalition of America
Amyloidosis Australia, Inc.
Amyloidosis Foundation http://www.amyloidosis.org/
Amyloidosis Support Groups Inc.
http://www.alsa.org
http://www.als.ca
http://cureanca.com/
http://www.aissg.org/
Angelman Syndrome Foundation http://www.angelman.org/
Angioma Alliance
Aniridia Foundation International http://www.aniridia.netAnnabelle's Challenge
American Society for Deaf Children (ASDC)
American Society for Reproductive Medicine
American Speech-Language-Hearing Association
http://www.strokeassociation.org/
American Syringomyelia Alliance Project, Inc.
American Urologic Disease Foundation
http://www.auafoundation.org/
American Vitiligo Research Foundation
http://www.avrf.org/index.htm
http://www.amnioticbandsyndrome.com/http://www.amputee-coalition.org/index.htmlhttp://www.amyloidosis.com.au/
http://www.amyloidosissupport.com
Amyotrophic Lateral Sclerosis Association (ALSA)Amyotrophic Lateral Sclerosis Society of CanadaANCA Associated Vasculitis FoundationAndrogen Insensitivity Syndrome Support Group
http://www.medhelp.org/www/ais
Androgen Insensitivity Syndrome Support Group UK
http://www.angiomaalliance.org
http://www.annabelleschallenge.org
Anorchidism Support Group http://www.asg4u.org/http://www.adaa.org
Any Baby Can, Inc. http://anybabycansa.orghttp://www.aosupport.org/
APBD Research Foundation http://www.apbdrf.orgApert International, Inc.
Aphasia Hope Foundation http://www.aphasiahope.org/
http://www.aamds.org/
http://www.aaomf.org
APS Foundation of America, Inc. http://www.apsfa.org/
http://www.parseghian.org
Arachnoid Cyst Support Group NZ
http://www.arc-wisconsin.org
ARPKD/CHF Alliance http://www.arpkdchf.orgArthritis Foundation http://www.arthritis.org
Arthrogryposis Group http://tagonline.org.ukhttp://www.amcsupport.org
http://www.ashermans.org
www.acelaweb.org
http://asedh.org
www.asociacionela.org.ar/
Asociación Española de ELA http://www.adelaweb.com/
Anxiety and Depression Association of America
AOSupport: Uniting Families Affected by Adams-Oliver Syndrome
http://www.apert-international.org
Aplastic Anemia & MDS International Foundation, Inc. Aplastic Anemia and Myelodysplasia
http://www.aamac.ca/index.html
APLASTIC ANEMIA AND OMID'S MISSION FOUNDATION
Ara Parseghian Medical Research FoundationArachnoid Cyst Awareness Network
http://arachnoidcystawareness.com/ http://www.arachnoidcyst.org.nz/
Arachnoiditis Sufferers Action and Monitoring Society (ASAMS)
http://www.arachnoiditis.info/index.html
Arc Wisconsin Disability Association, Inc.ARM (Advancement of Research for Myopathies)
http://www.hibm.org/arm/home
Arthrogryposis Multiplex Congenita Support Inc.Asherman's Syndrome Int'l Support GroupAsociación Colombiana de Esclerosis Lateral AmiotróficaAsociación de Charcot-Marie-Tooth
http://www.cmtausa.org/index.php?option=com_content&view=category&id=55&Itemid=244Asociación de Síndrome de
Ehlers-Danlos e Hiperlaxitud Sede CentralAsociación ELA Argentina (ALS Association of Argentina)
Asociación Española de Ictiosis http://ictiosis.org
Asociación Española de Pediatría http://www.aeped.eshttp://www.asebewi.org/
http://ae3com.eu/
www.galactosemia.es
Asociación Piel de Mariposa http://www.debra.es
http://www.xfragil.net
Asociación X Frágil Colombia
http://www.ahany.org
http://www.ela-asso.com
http://www.acds.org
http://www.theaftd.org/
http://www.agsdus.org
http://www.agsd.org.uk/
http://www.macula.org
http://www.amp.orghttp://www.amend.org.uk
http://www.asbah.org
Asociación Española del Síndrome de Beckwith-WiedemannAsociación Española para el Estudio de los Errores Congénitos del MetabolismoAsociación Española para la GalactosemiaAsociacion Española Síndrome de Noonan
http://asociacionnoonan.wordpress.comAsociación Pequeños Gigantes de
Colombiahttp://www.pequenosgigantesdecolombia.com/
Asociación Síndrome de Down de la República Argentina
http://www.asdra.org.ar/que-es-el-sindrome-de-down/
Asociación Síndrome X-Frágil de MadridAsociación Todos Unidos Enfermedades Raras Uruguay
http://www.enfermedadesrarasuruguay.org.uy/http://www.asociacionxfragilcolombia.org/#!formulario/c10feAsperger Syndrome and High
Functioning Autism AssociationAssociation Européenne contre les Leucodystrophies (ELA)Association for Children with Down Syndrome, Inc. Association for Frontotemporal DementiasAssociation for Glycogen Storage Disease Association for Glycogen Storage Disease UK
Association for Macular Disease, Inc.Association for Molecular PathologyAssociation for Multiple Endocrine Neoplasia Disorders (AMEND)
Association for Spina Bifida & HydrocephalusAssociation for the Bladder Exstrophy Community
http://www.bladderexstrophy.com
http://www.genetic.org
Association P.A.V.E.L. http://www.asociatiapavel.roAssociation Paratonnerre
http://www.ring14.org
A-T Children's Project http://www.atcp.org
Ataxia UK http://www.ataxia.org.uk
http://www.addresources.orgAustralasian Genetic Alliance
http://www.allergy.org.au/
http://www.taag.org.au/
http://www.alds.org.au/
Autism Science Foundation
Autism Society of America http://www.autism-society.org
Autism Speaks http://www.autismspeaks.orgAutoimmune Encephalitis Alliance https://aealliance.org/Autoinflammatory Alliance http://www.nomidalliance.orgAVM Survivors' Network http://www.avmsurvivors.org/Baby's First Test http://www.babysfirsttest.orgBald Girls Do Lunch Inc
http://www.bardetbiedl.org/
Barth Syndrome Foundation
http://www.bdsra.org/
Association for X and Y Chromosome VariationsAssociation of Gastrointestinal Motility Disorders, Inc. (AGMD)
http://www.agmd-gimotility.org
Association of Genetic Support of Autralasia, Inc.
http://www.agsa-geneticsupport.org.au/
Association of Peyronie's Disease Advocates
http://www.peyroniesassociation.org/http://www.associationparatonnerre.org/medias/files/newsletter-2-en-web-jan2013.pdfAssociazione Internazionale Ring
14 Per La Ricerca Sulle Malattie Neurogenetiche
Attention Deficit Disorder Resources http://
www.australasiangeneticalliance.org.au/Australasian Society of Clinical
Immunology and AllergyAustralian Arthrogryposis Group (TAAG), Inc.Australian Leukodystrophy Support GroupAustralian Trimethylaminuria Foundation
http://www.tmaufoundation.org.auhttp://www.autismsciencefoundation.org
http://www.baldgirlsdolunch.org
Bardet Biedl Syndrome Family Association
http://www.barthsyndrome.orgBasal Cell Carcinoma Nevus
Syndrome Life Support Networkhttp://www.gorlinsyndrome.org
Batten Disease Support and Research Association (BDSRA)
BCCNS Life Support Network http://www.bccns.org/Beautiful You MRKH Foundation
http://www.ncbegin.org
Behcet's Organisation Worldwide http://www.behcets.org/Bell's Palsy Network http://www.bellspalsy.net/
Ben's Friends http://www.bensfriends.org/http://www.beyondbatten.org/
BHD Foundation http://www.bhdsyndrome.org
http://www.birthdefects.org/
http://www.bcan.org/http://www.bpes.org.uk
Bloom's Syndrome Foundation
http://www.bluefaery.org
BOKS vzw http://www.boks.beBoomer Esiason Foundation http://www.esiason.orgBrachial Plexus Palsy Foundation
Brain Foundation
Brain Injury Association http://www.biausa.org
Breast Cancer Options
http://www.beautifulyoumrkh.org/Info.htmlBeckwith Wiedemann Support
Group (UK)http://www.bws-support.org.uk/
Beckwith-Wiedemann Children's Foundation
http://www.beckwith-wiedemannsyndrome.org
BEGINNINGS For Parents of Children Who Are Deaf or Hard of Hearing, Inc.
Benign Essential Blepharospasm Canadian Research Foundation
http://www.blepharospasm.ca/
Benign Essential Blepharospasm Research Foundation
http://www.blepharospasm.org
Beyond Batten Disease Foundation
Biotinidase Deficiency Family Support Group
http://biotinidasedeficiency.20m.com/Birth Defect Research for
Children, Inc.Bladder Cancer Advocacy NetworkBlepharophimosis, Ptosis, Epicanthus Inversus Family NetworkBloom's Syndrome Association, Inc
http://www.bloomssyndromeassociation.org/http://www.bloomssyndrome.org/
Blue Faery: the Adrienne Wilson Liver Cancer Association
http://www.brachialplexuspalsyfoundation.org/http://www.brainaustralia.org.au/
Brain Tumor Foundation for Children, Inc.
http://www.braintumorkids.org
Breast Cancer Network of Strength
http://www.networkofstrength.orghttp://www.breastcanceroptions.org
Breast Friends http://www.breastfriends.org
Breathtakers (UK)
Bright Focus Foundation http://www.brightfocus.org/Bright Pink http://www.brightpink.org
http://www.bad.org.ukBrittle Diabetes Foundation http://www.bdtype1.com/
C3: Colorectal Cancer Coalition
CADASIL-Together We Have Hope
CAH Support Group http://www.livingwithcah.com
http://www.ccpkuad.org
http://thecasn.org/
Canadian Diabetes Association http://www.diabetes.ca/http://www.cdss.ca
Canadian Hemophilia Society http://www.hemophilia.cahttp://cipo.ca
Canadian Marfan Association http://www.marfan.ca
http://mensociety.ca/
http://www.raredisorders.ca/
http://www.mpssociety.ca
Canavan Foundation
Canavan Research Foundation http://www.canavan.org
Breath of Hope: Congenital Diaphragmatic Hernia (CDH) Awareness
http://www.breathofhopeinc.com
http://www.breathtakers.org.uk
British Association of DermatologistsBrown-Vialetto-Van Laere International (BVVL International)
http://www.bvvlinternational.orghttp://www.FightColorectalCancer.orghttp://home.earthlink.net/~cadasil/
California Coalition for PKU and Allied DisordersCanadian Amyloidosis Support NetworkCanadian Angelman Syndrome Society
http://www.angelmancanada.org
Canadian Association for Williams Syndrome
http://caws.sasktelwebhosting.com/
Canadian Down Syndrome Society Canadian Fanconi Anemia Research Fund
http://www.fanconicanada.org/en/
Canadian Immunodeficiencies Patient Organization (CIPO)
Canadian Multiple Endocrine Neoplasia Society, Inc.Canadian Organization for Rare DisordersCanadian Pulmonary Fibrosis Foundation
http://www.canadianpulmonaryfibrosis.ca/Canadian Society for
Mucopolysaccharide and Related Diseases Inc. (Canadian MPS Society)
http://www.canavanfoundation.org
Canavan Research Illinois
Cancer Hope Network
http://cisncancer.org/
Cancer Support Community
Cancer.net http://www.cancer.net/CancerCare http://www.cancercare.org/Cantu Syndrome Interest Group http://cantu-syndrome.org/
http://www.longqt.org/
Cardiomyopathy Association
http://www.cmaa.org.au/
Caring for Carcinoid Foundation
Caring for the Caregiver
Caring Voice Coalition,Inc, http://www.caringvoice.orghttp://www.morquio.com/
Cavernoma Alliance UK http://www.cavernoma.org.ukCCARE Lynch Syndrome http://www.fightlynch.org/CDG Family Network http://www.cdgs.comCDH UK http://www.cdhuk.co.uk/CDKL5 Canada http://www.cdkl5canada.ca/
CDKL5 UK http://www.cdkl5uk.org
CdLS Foundation http://www.cdlsusa.org/CdLS World http://www.cdlsworld.orgCeliac Sprue Association USA, Inc. http://www.csaceliacs.orgCenter for Jewish GeneticsCenter for Loss in Multiple Birth http://www.climb-support.org
http://www.cvvd.org/http://www.cpirf.org
Cerebral Palsy Network
CFC International http://cfcsyndrome.org/http://www.cfids.org
CGD Society http://www.cgdsociety.org
http://www.canavanresearch.orghttp://www.cancerhopenetwork.org/
Cancer Information & Support Network
http://www.cancersupportcommunity.org/
Cardiac Arrhythmias Research and Education Foundation, Inc.
http://www.cardiomyopathy.org
Cardiomyopathy Association Australia
http://www.caringforcarcinoid.org/http://caringforthecaregiver.org/
Carol Ann Foundation & International Morquio Organization
http://www.jewishgenetics.org
Center for Parent Information and Resources
http://www.parentcenterhub.org/
Centers for Vulvovaginal DisordersCerebral Palsy International Research Foundation
http://thecpnetwork.org/megalencephaly.html
CFIDS Association of America, Inc.
http://www.chadd.org
Chagas Disease Foundation http://www.chagasfound.org/Charcot-Marie-Tooth Association
http://www.cmt.org.au/
CHARGE Syndrome Foundation
Charles E. Holman Foundation http://www.thecehf.org/
Charley's Fund, Inc. http://www.charleysfund.org
http://www.chelseashope.org/
Cherab Foundation
CHERUBS http://www.cherubs-cdh.orghttp://www.csfinfo.org/
http://www.apraxia-kids.org
http://www.climb.org.uk
http://www.csma.org.ua
http://www.classkids.org
http://cnsfoundation.org/
Children’s PKU Network http://www.pkunetwork.org/Children's Alopecia Project, Inc.
http://www.cbtf.orgChildren's Brittle Bone Foundation http://www.cbbf.org/
http://www.childrenscbf.org
http://www.ccakids.com/http://www.cdhnf.org/
CHADD (Children & Adults with Attention-Deficit Hyperactivity Disorder)
http://www.charcot-marie-tooth.org/
Charcot-Marie-Tooth Association of Australia
http://www.chargesyndrome.org
CHASER (Congenital Heart Anomalies -- Support, Education & Resources, Inc.)
http://www.csun.edu/~hcmth011/chaser/contact.html
Chelsea's Hope: Lafora Children Research Fund
http://www.cherabfoundation.org
Chiari & Syringomyelia Foundation, Inc.Chicago Center for Jewish Genetic Disorders
http://www.jewishgeneticscenter.orgChildhood Apraxia of Speech
Association of North America (CASANA)Children Living with Inherited Metabolic Diseases (CLIMB) Children with Spinal Muscular AtrophyChildren’s Liver Association for Support ServicesChildren’s Neurobiological Solutions Foundation
http://www.childrensalopeciaproject.orgChildren's Brain Tumor
FoundationChildren's Cancer & Blood FoundationChildren's Cardiomyopathy Foundation
http://www.childrenscardiomyopathy.org/Children's Craniofacial
Association Children's Digestive Health & Nutrition FoundationChildren's European Mitochondrial Disease Network
http://www.emdn-mitonet.co.uk
http://www.cureGSD.org
Children's Glaucoma Foundation
http://www.classkids.org/
http://www.cncfhope.org/
http://www.cscfkids.org
https://www.csdf.org/
Chordoma Foundation
Chordoma Support Group
http://www.choroideremia.ca/
http://choroideremia.org/
http://www.c22c.org
http://www.c22c.org/
http://www.c22c.orghttp://chromosome9.org
Chromosome 9pminus Network http://www.9pminus.orgChromosome Disorder Outreach
http://www.cfids.org
http://www.cgd.org.uk/
http://www.cgdsociety.org/
http://www.cllinfogroup.org
Children's Fund for Glycogen Storage Disease Research, Inc.Children's Gaucher Research Fund
http://www.childrensgaucher.orghttp://www.childrensglaucoma.com
Childrens Interstitial Lung Disease (ChILD) Foundation
http://www.child-foundation.com
Children's Liver Association for Support Services (C.L.A.S.S.)Children's Liver Disease Foundation
http://www.childliverdisease.org/
Children's Neuroblastoma Cancer FoundationChildren's Sickle Cell Foundation, Inc.Children's Skin Disease Foundation
http://www.chordomafoundation.org/http://www.chordomasupport.org
Choroideremia Research Foundation Canada, Inc.Choroideremia Research Foundation, Inc.Christopher and Dana Reeve Foundation
http://www.christopherreeve.org
Chromosome 18 Registry & Research Society
http://www.chromosome18.org/
Chromosome 22 Central - LatinoaméricaChromosome 22 Central - Main OfficeChromosome 22 Central - US OfficeChromosome 9 Disorder Advocates
http://www.chromodisorder.orgChronic Fatigue and Immune
Dysfunction Syndrome Association of America, Inc. Chronic Granulomatous Disease Association, Inc.
http://www.cgdassociation.org/
Chronic Granulomatous Disorder Research Trust (CGD)Chronic Granulomatous Disorder SocietyChronic Lymphocytic Leukemia Information Group
http://www.cssassociation.org
http://www.carfintl.org
CIDPUSA Foundation http://www.cidpusa.org
http://www.cqscc.org
http://www.CUREepilepsy.org
CJD Aware! http://www.cjdaware.comCJD Voice
http://www.preventsma.orgCleft Palate Foundation http://www.cleftline.org/
ClinicalTrials.gov
Clot Connect http://www.clotconnect.org/
CLOVES Syndrome Community
CLOVES Syndrome Foundation http://clovesfoundation.org/http://www.caregivernews.org
CMT United Kingdom http://www.cmt.org.uk
CMTC http://www.cmtc.nlCMTC-OVM
Coalition Duchenne
Coalition for Pulmonary Fibrosis http://www.coalitionforpf.org/
Coalition for Usher Syndrome
http://www.coatsdisease.org
Churg Strauss Syndrome AssociationCicatricial Alopecia Research Foundation (C.A.R.F.)
Cincinnati Center for Eosinophilic Disorders
http://www.cincinnatichildrens.org/service/c/eosinophilic-disorders/default/Cincinnati Children's Hospital -
HLHhttp://www.cincinnatichildrens.org/service/h/hlh/about/Circadian Sleep Disorders
Networkhttp://www.circadiansleepdisorders.org/Citizens for Quality Sickle Cell
Care-SCDAA-Northern, CT Chapter, Inc.Citizens United for Research in Epilepsy
http://creativegumbo.net/cjdvoice/
Claire Altman Heine Foundation, Inc.
http://www.clinicaltrials.gov/ct2/results?cond=%22Acanthocheilonemiasis%22
http://www.clovessyndrome.org/
C-Mac Informational Services/Caregiver News [For Alzheimer's-Type Dementia Caregivers]
http://cmtc.nl/index.php?lang=en&Itemid=105http://www.coalitionduchenne.org
Coalition for Heritable Disorders of Connective Tissue
http://www.chdct2.org/index.htm
http://www.usher-syndrome.org/
Coats Disease Information for Parents
http://clsf.info/
Cohen Syndrome Association http://cohen-syndrome.org/http://www.cgaicc.com
Colon Cancer Alliance http://www.ccalliance.org
Compassionate Friends
http://www.cah.org.nz/
http://www.cchsnetwork.org/
http://tchin.org/
http://www.tchin.org
http://www.congenitalhi.org/
http://www.csidinfo.com
Conquer Chiari
Conversations! http://www.ovarian-news.orgCooley's Anemia FoundationCOPD FoundationCORE http://www.corecharity.org.uk
http://www.cornea.org
Corneal Dystrophy Foundation
http://www.cdlsusa.org
Coffin-Lowry Syndrome Foundation
Collaborative Group of the Americas in Inherited Colorectal Cancer (CGA)Colorectal Cancer Association of Canada
http://www.colorectal-cancer.cahttp://www.compassionatefriends.orgCongenital Adrenal Hyperplasia
Education and Support Networkhttp://www.congenitaladrenalhyperplasia.orgCongenital Adrenal Hyperplasia
Research Education and Support (CARES) Foundation
http://www.caresfoundation.org
Congenital Adrenal Hyperplasia Support Group of NZ or CAHNZ TrustCongenital Central Hypoventilation Syndrome (CCHS) Family Support Network Congenital Heart Anomalies, Support, Education, & Resources, Inc. (CHASER, Inc.)
http://www.csun.edu/~hcmth011/chaser/chaser-news.html
Congenital Heart Information NetworkCongenital Heart Information Network (C.H.I.N.)Congenital Hyperinsulinism InternationalCongenital Sucrase-Isomaltase Deficiency (CSID) Parent Support Group
http://www.conquerchiari.org/index.htmlhttp://www.cooleysanemia.orghttp://www.copdfoundation.org
Cornea Research Foundation of America
http://www.cornealdystrophyfoundation.orgCornelia de Lange Syndrome
Foundation, Inc.
Corpus Callosum Research Program
http://emotion.caltech.edu/agcc/index.html
Cortical Foundation http://cortfoundation.org/
http://www.cappskids.org
http://www.cjdfoundation.org/
Crigler-Najjar Association http://www.criglenajjar.comhttp://www.ccfa.org
CSID Cares http://csidcares.org/http://curecmd.org/
Cure Dystonia Now
Cure HHT http://curehht.org/
Cure SMA http://www.curesma.orgCURED FoundationCureDuchenne http://www.cureduchenne.org
http://www.psp.org/
http://csrf.net
Cutaneous Lymphoma Foundation http://www.clfoundation.org/Cutis Laxa Internationale http://asso.orpha.net/cutislax/
http://www.cvsaonline.org
Cystic Fibrosis Foundation http://www.cff.org
Cystic Fibrosis Research, Inc. http://www.cfri.org
Cystinosis Foundation
Cystinosis Research Foundation
Cystinosis Research Network http://www.cystinosis.org/Cystinuria Support Network http://www.cystinuria.com/
Dandy-Walker Alliance, Inc. http://www.dandy-walker.org
Daniella Maria Arturi Foundation
Danon Disease Support Network
DanonDisease.org http://www.danondisease.org/
Costello Syndrome Family Network
http://www.costellosyndromeusa.org/Craniofacial Foundation of
Americahttp://www.craniofacialfoundation.orgCraniosynostosis and Positional
Plagiocephaly Support IncCreutzfeldt-Jakob Disease Foundation, Inc
Crohn's & Colitis Foundation of America
Cure CMD - Congenital Muscular Dystrophy
http://www.curedystonianow.org/index
http://curedfoundation.org/site/
CurePSP (Society for Progressive Supranuclear Palsy)Cushing's Support and Research Foundation
Cyclic Vomiting Syndrome Association
http://www.cystinosisfoundation.org/http://www.cystinosisresearch.org
Dancing Eye Syndrome Support Trust
http://www.dancingeyes.org.uk
http://diamondblackfananemia.orghttp://danon-disease-support.webs.com/
DebRA Chile http://debrachile.cldebra Costa Rica http://www.debracr.orgDebRA International
http://www.dbsalliance.org
http://www.dtrf.org/
http://www.behcet.de
Developmental Delay Resources http://www.devdelay.org/http://www.devdelay.org
Devic's Disease UK http://www.devic.org.uk/
Diabetes Hands Foundation
Diabetes New Zealand http://www.diabetes.org.nz/
http://www.trisomy16.org/
DNAandU.org http://www.dnaandu.org/
Down EspañaDown Syndrome Alabama
http://www.dsaa.info
http://www.dsaatl.org
http://www.dsagsl.org
http://downsyndromeinfo.org/
http://www.dsrtf.org/
Down Syndrome: Health Issues http://www.ds-health.com/http://www.dslrf.org
Dravet Syndrome Foundation
Dravet.org http://dravet.org/
http://www.debra-international.org/
Depression and Bipolar Support AllianceDesmoid Tumor Research FoundationDeutsches Register Morbus Adamantiades-Behçet eV
Developmental Delay Resources (DDR)
Diabetes Action Research and Education Foundation
http://www.diabetesaction.orghttp://www.diabeteshandsfoundation.org
Diamond Blackfan Anemia and You
http://www.diamondblackfananemia.com/Diamond Blackfan Anemia
Foundation, Inc.http://www.dbafoundation.org/
Disorders of Chromosome 16 Foundation
Doose Syndrome Epilepsy Alliance
http://www.doosesyndrome.org/http://www.sindromedown.net/http://www.downsyndromealabama.orgDown Syndrome Association of
AcadianaDown Syndrome Association of AtlantaDown Syndrome Association of Greater St. LouisDown Syndrome Information AllianceDown Syndrome Research and Treatment Foundation
Dr. Susan Love Research Foundation http://
www.dravetfoundation.org/
Dubowitz Syndrome Family Support
http://www.dubowitzsyndrome.net
Duchenne Connect
Dup15q Alliance http://www.dup15q.org/Dysautonomia Foundation, Inc
Dysautonomia International
Dysautonomia Support Network
http://www.dynainc.org/
http://www.debra.org
http://www.debra.org/espanol
EB Medical Research Foundation http://www.ebkids.org/Ebstein's Anomaly Foundation
ECD Global Alliance
EDS Today http://www.edstoday.orghttp://www.edfnz.org.nz
http://www.ednf.orgEhlers-Danlos Support UK http://www.ehlers-danlos.org
Ehlers-Danlos Syndrome Network
http://www.niams.nih.gov
Ellie White FoundationEmmanuel's Foundation
Encephalitis Global Inc.
Encephalitis Ireland
Encephalitis Society http://www.encephalitis.info/
Endometriosis Association
Dubowitz Syndrome Family Support Network
http://www.ric.edu/sherlockcenter/dsyndrome/https://www.duchenneconnect.org
http://www.familialdysautonomia.org/http://www.dysautonomiainternational.org/http://www.supportdysautonomia.org/Dysautonomia Youth Network of
AmericaDystonia Medical Research Foundation
http://www.dystonia-foundation.org
Dystrophic Epidermolysis Bullosa Research AssociationDystrophic Epidermolysis Bullosa Research Association of America
http://www.ebsteinsanomaly.org/http://www.erdheim-chester.org
Ehlers Danlos Foundation of New ZealandEhlers Danlos National Foundation
http://www.ehlersdanlosnetwork.orgEl Instituto Nacional de Artritis y
Enfermedades Musculoesqueléticas y de la Piel (NIAMS) http://
elliewhitefoundation.org/http://www.EmmanuelsFoundation.orghttp://www.encephalitisglobal.orghttp://www.encephalitisireland.ie/
http://www.endometriosisassn.org
Energy 4 a Cure Foundation
Ependy Parents http://ependyparents.org/EpendyKids http://ependykids.com/
http://www.ebkids.org
Epilepsy Action https://www.epilepsy.org.uk/
Epilepsy Foundation
ErfocentrumErythromelalgia Association
http://www.ECAware.org
http://www.euro-ataxia.eu/
EuroGentest http://www.eurogentest.org/EuroMX Consortium Registry http://www.euromrx.com/
http://www.eamda.net
http://11q.chromosome11.eu/
European LAM Patient Federation
http://www.enerca.org
http://www.eurordis.org
Evanosky Foundation
everyminute.org http://www.everyminute.orgEye on Vision Foundation http://eyeonvision.org/
http://www.rvclresearch.org/index.php
Epidermolysis Bullosa (EB) Center http://www.cincinnatichildrens.org/svc/alpha/e/epidermolysis-bullosa/Epidermolysis Bullosa Medical
Research Foundation
http://www.epilepsyfoundation.org/
Epilepsy Support Network of Orange County
http://www.EpilepsySupportNet.orghttp://www.erfocentrum.nl/newhttp://www.erythromelalgia.org
Esophageal Cancer Awareness Association, Inc.Euro-Ataxia (European Federation of Hereditary Ataxias)
European Alliance of Neuromuscular Disorders AssociationsEuropean Chromosome 11 NetworkEuropean Federation of Autonomic Nervous System Societies
http://www.efasweb.com/efas/http://www.europelamfederation.org/European Network for Rare and
Congenital Anaemias (ENERCA)European Skeletal Dysplasia Network
http://www.esdn.org/eug/Home
EURORDIS Plateforme Maladies Rares
http://www.evanoskyfoundation.org
Evans Syndrome Community Network
http://www.evanssyndrome.net/
EveryLife Foundation for Rare Diseases
http://www.everylifefoundation.org/
http://www.fabry.orghttp://www.faces-cranio.org/
Facial Paralysis Foundation
http://www.fdhope.org
http://www.fdnow.org
Families of SMA http://www.fsma.org/http://www.curesma.ca/
http://www.caregiver.org
Family Connect
Family Empowerment Network
http://www.frcd.org
Family Support Network
Family Voices in Oklahoma http://OKVoices.orgFamily Voices of California
http://www.fanconi.org
Fat Disorders Research Society http://www.fatdisorders.org
http://fadepof.org.ar/contacto
http://www.fecoer.org
http://www.metabolicos.es/
http://www.fedeal.org/
http://www.asem-esp.org
http://www.xfragil.org/
http://fepepco.blogspot.com/
Fetal Hope Foundation http://www.fetalhope.orgFEVR.net http://www.fevr.net/
Fabry Support & Information GroupFACES: The National Craniofacial Association
http://www.facialparalysisfoundation.org/Familial Dysautonomia Hope
FoundationFamilial Dysautonomia Now Foundation (FD NOW)Familias de la Atrofia Muscular Espinal
http://www.fsma.org/FSMACommunity/understandingsma/spanishunderstandingbook/
Families of Spinal Muscular Atrophy CanadaFamily Caregiver Alliance/ National Center on Caregiving
http://www.familyconnect.org/Family Connect: for parents of
children with visual impairmentshttp://www.familyconnect.org/parentsitehome.asphttp://www.pregnancyandalcohol.orgFamily Resource Center on
Disabilitieshttp://www.familysupportnetwork.org/http://www.familyvoicesofca.org
Fanconi Anemia Research Fund, Inc (FARF)
Federación Argentina de Enfermedades Poco FrecuentesFederación Colombiana de Enfermedades RarasFederación Española de Enfermedades Metabólicas HereditariasFederación Española de las Asociaciones de LinfedemaFederación Española de las Enfermedades NeuromuscularesFederación Española del Síndrome X FrágilFederación Peruana de Enfermedades Raras
FG Syndrome Family Alliance http://www.fgsyndrome.org/Fibrolamellar Cancer FoundationFibromyalgia Association UK http://www.fmauk.orgFibromyalgia Network http://www.fmnetnews.com
Fibrosing Mediastinitis
Fibrous Dysplasia Foundation, Inc.Fight ALD http://www.fightald.orgFightSMA/Andrew's Buddies http://www.fightsma.orgFirst Candle/SIDS Alliance http://www.firstcandle.org
FMD Chat http://www.fmdchat.orgFMF Montreal.org http://www.fmfmontreal.org/FND Hope http://fndhope.org/
FOCUS Families http://www.focusfamilies.org
http://www.focusoncll.org
http://www.fodsupport.org
http://www.facingourrisk.org
Foundation Fighting Blindness http://www.blindness.org
http://www.fnms.net
http://www.fpwr.org/
Foundation for Retinal Research http://www.tfrr.org/
http://www.duchennemd.orgFRAXA Research Foundation http://www.fraxa.org
http://www.fspsg.org
http://www.fsrgroups.org/
Friedreich's Ataxia Parents' Grouphttp://www.curefa.org/
Friends of Autism, Inc.
http://www.fibrofoundation.org/
http://www.fibrosing-mediastinitis.com/http://www.fibrousdysplasia.org
Floating Harbor Syndrome Support Group
http://www.floatingharborsyndromesupport.com/
Focus On Chronic Lymphocytic LeukemiaFOD (Fatty Oxidation Disorder) Family Support GroupFORCE: Facing Our Risk of Cancer Empowered
Foundation for Angelman Syndrome Therapeutics
http://www.cureangelman.org/
Foundation for Children with Atypical Hemolytic Uremic Syndrome
http://www.atypicalhus.ning.com/
Foundation for Ichthyosis and Related Skin Types (FIRST)
http://www.firstskinfoundation.org/
Foundation for Nager and Miller SyndromesFoundation for Prader-Willi Research
Foundation for Sarcoidosis Research
http://www.stopsarcoidosis.org
Foundation to Eradicate DuchenneFreeman-Sheldon Parent Support GroupFreeman-Sheldon Research Group, Inc.
http://www.faparents.org/fapg/Friedreich's Ataxia Research
Alliance (FARA)http://www.friendsofautism.org
Friends of ET Research
Friends of FSH Research http://www.fshfriends.org/http://www.friendsoflks.com
http://www.ftdsupport.com
http://www.ftlda.org/
FSH Society, Inc. http://www.fshsociety.orgFSHD Global Research Foundation http://www.fshdglobal.org/
http://www.fcsd.org/es
Fundación ACAR
Fundación ALPEhttp://angiopediatria.com.co/
http://www.fundame.net
Fundación Cromos
Fundación Geiser
Fundación Magar
http://www.fundacionela.com
FVL Thrombophilia Support Page http://www.fvleiden.org/Galactosemia Foundation http://www.galactosemia.orgGalactosemia Support Group
http://www.geeps.co.uk/
http://www.gbs-cidp.orgGenetic AllianceGenetic Interest Group http://www.gig.org.uk
http://www.gmdi.org/
Genetic Skin Disease Center
http://www.gsnv.org.auGenetics Home Reference (GHR)
Georgia PKU Connect http://www.georgiapku.orgGetty Owl Foundation http://www.gettyowl.org
http://www.friendsofetresearch.org
Friends of Landau-Kleffner Syndrome (FOLKS)Frontotemporal Dementia Caregiver Support CenterFrontotemporal Lobar Degeneration Association (FTLDA)
Fundació Catalana Síndrome de Down
http://acondroplasia.jimdo.comhttp://www.fundacionalpe.org/Fundación Angiopediatría
ColombiaFundación Atrofia Muscular Espinal
http://www.fundacioncromos.orghttp://www.fundaciongeiser.org/
http://www.acondroplasia.com/index2.phpFundación Para la Investigación
de la Esclerosis Lateral Amiotrófica
http://www.galactosaemia.org/
Gastroparesis and Dysmotilities Association (GPDA)
http://www.digestivedistress.com/main/page.php?page_id=1Gastroschisis Exomphalos
Extrophies Parents SupportGBS/CIDP Foundation International http://
www.geneticalliance.org/Genetic Metabolic Dietitians International
http://dermatology.stanford.edu/contact/Genetic Support Network of
Victoria http://ghr.nlm.nih.gov/condition=abetalipoproteinemia
GiGi's Playhouse http://gigisplayhouse.org/
GIST Cancer Research Fund http://www.gistinfo.org/
GIST Support International http://www.gistsupport.orgGlaucoma Research Foundation http://www.glaucoma.org
Global CDHhttp://www.thegfpd.org
http://globalgenes.org/
http://www.goldinfo.org/
Glut1 Deficiency FoundationGluten Intolerance Group http://www.gluten.net
http://www.gdatf.org/
Graves’ Disease Foundation http://www.ngdf.org
Greipp, Philip R, M.D.
http://www.gepac.es/
Gwendolyn Strong Foundation http://theGSF.orgHaemochromatosis Australia.
Hailey-Hailey Disease Society http://haileyhailey.comHailey's Wish http://www.haileyswish.org/
Hands & VoicesHannahs Hope Fund
http://hesaonline.org/
HCS Support Group http://hajdu-cheney.com/Healthy Smiles, Healthy Children
http://www.hearingloss.orgHeart Rhythm Society http://www.hrsonline.org/
Glaucoma Research Society of Canada
http://www.glaucomaresearch.ca/http://globalcdh.org/Home.htmlGlobal Foundation for
Peroxisomal DisordersGlobal Genes - Allies in Rare DiseaseGlobal Hydranencephaly Foundation
http://www.hydranencephalyfoundation.org/Global Organization for Lysosomal
Diseaseshttp://www.G1DFoundation.org
Goldenhar Syndrome Support Network Society
http://www.goldenharsyndrome.org
Graves' Disease and Thyroid Foundation
Greenberg Center for Skeletal Dysplasias
https://igm.jhmi.edu/content/greenberg-center-skeletal-dysplasias-welcomehttp://www.mayoclinic.org/bio/10157425.html
Grupo Español de Pacientes con CáncerGuthy-Jackson Charitable Foundation
http://www.guthyjacksonfoundation.org/http://www.haemochromatosis.org.au
Hajdu-Chaney (HCS) Support Group
http://www.hajdu-cheney.com/http://www.handsandvoices.orghttp://www.hannahshopefund.org/
Hashimoto’s Encephalopathy SREAT Alliance
http://www.aapd.org/foundation/
Hearing Loss Association of America
Helping Hands Foundation
Hemophilia Federation of America http://hemophiliafed.org/Hepatitis Foundation International
Hereditary Disease Foundation http://www.hdfoundation.orghttp://www.hlrccinfo.org/
http://www.hnf-cure.org/
Heterotaxy Foundation http://www.heterotaxy.org/HHV-6 Foundation
http://www.hideandseek.org
http://www.hs-foundation.org/
http://www.hirschsprungs.info
http://www.histio.org/http://www.histiocytosis.ca
Hope 4 Tyler and Luke!
http://hopeforhh.org/Hope For Trisomy
http://www.hopefortwo.org
HOPES http://hopes.stanford.eduHuman Growth Foundation http://www.hgfound.org/Hunter Patients
Hunter's Hope Foundation http://www.huntershope.orgHuntington Society of Canada
http://www.hdsa.org/
Hydrocephalus Association http://www.hydroassoc.org
Helping After Neonatal Death (HAND)
http://www.handonline.org/resources/handgroups.htmlhttp://www.helpinghandsgroup.org/
Hemimegalencephaly Family Support Network
http://www.hemimegalencephaly.com/http://www.hepatitisfoundation.org
Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC) Family AllianceHereditary Neuropathy Foundation Inc.Hermansky-Pudlak Syndrome Network, Inc.
http://www.hpsnetwork.org/en
http://www.hhv-6foundation.org
Hide and Seek Foundation for Lysosomal Storage Disease ResearchHidradenitis Suppurativa Foundation, Inc.Hirschsprung's & Motility Disorders Support NetworkHistiocytoid Cardiomyopathy Registry
http://www.pathology.emory.edu/AdminFacultyMember.cfm?Name_seq=709Histiocytosis Association of
AmericaHistiocytosis Association of CanadaHITS (Worldwide) Family Support Network
http://www.e-fervour.com/hits/http://www.hope4tylerandluke.com
Hope for Hypothalamic Hamartomas http://
www.hopefortrisomy.orgHope for Two...The Pregnant with Cancer Network
http://www.hunterpatients.com/
http://www.huntingtonsociety.org/
Huntington's Disease Society of America
http://www.ghrforg.org/http://www.4hcm.org
http://www.hpth.org/Hypoparathyroidism UK http://www.hpth.org.ukHypophysitis Research Center
http://www.HEAinfo.orgI - CAN http://child-amputee.net/Ichthyosis Support Group http://www.ichthyosis.org.uk/ICP Care http://www.icpcare.orgICP Support http://www.icpsupport.org/IDIC15 Canada http://www.idic15canada.ca/
IgA Nephropathy Support Network http://www.igansupport.org/http://www.idfa.org.au/
Immune Deficiency Foundation
In Need of Diagnosis, Inc.
http://www.ipif.org/
India Cancer Care Network (ICCN) http://www.iccn.in/
http://www.idsociety.org/
http://www.eraseibc.com/
http://www.go-ipad.org
http://www.theibta.org/
http://www.anophthalmia.org
Hydrocephalus Research FoundationHypertrophic Cardiomyopathy AssociationHypoparathyroidism Association, Inc.
http://pathology2.jhu.edu/hypophysitis/Definition.cfm
Hypospadias Epispadias Association
Immune Deficiencies Foundation Australia
http://www.primaryimmune.org/http://www.inod.org/home0.aspx
Incontinentia Pigmenti International Foundation
Infectious Diseases Society of AmericaInflammatory Breast Cancer FoundationInstituto Canguru - Support Group for Inborn Errors of Metabolism and Disorders
http://www.institutocanguru.org.br
Instituto Nacional del Cáncer (NCI)
http://www.cancer.gov/espanolIntermountain PKU and Allied
Disorders AssociationInternational Aicardi-Goutieres Syndrome Association (IAGSA)
http://www.aicardi-goutieres.org/index.jsp?lingua=ENG
International Alliance of Patients' Organizations
http://www.patientsorganizations.org/International Birth Defects
Information Systemshttp://www.ibis-birthdefects.org/start/found.htmInternational Brain Tumour
AllianceInternational Castleman's Disease Organization
http://www.castlemans.org/about
International Children's Anophthalmia Network (ICAN)International Cluttering Association
http://associations.missouristate.edu/ica/
http://costellokids.com/
http://www.costellokids.com
http://www.idf.org/
International Dyslexia Association http://www.interdys.orgInternational Eosinophil Society
http://www.ilep.org.uk
http://www.ifopa.org/
http://www.cdkl5.com
http://www.iffgd.org/
http://www.ifond.org
http://www.marfanworld.org
International FoxG1 Foundation http://www.foxg1.com/http://www.iga.org.uk
http://www.hipdysplasia.org/
http://www.SweatHelp.orghttp://ilads.org/
http://www.imdsa.org
International Myeloma Foundation http://myeloma.org/http://www.myotonic.org/
International OCD Foundation http://www.ocfoundation.org
http://www.iofbonehealth.org/
International Collaborative Study of Susac's Syndrome
http://www.ucalgary.ca/susac/clinicalstudyall
International Costello Syndrome Support GroupInternational Costello Syndrome Support Group International Cystinuria Foundation
http://www.cystinuria.org/resources/education/
International Diabetes Federation (IDF)
http://www.eosinophil-society.org/
International Essential Tremor Foundation
http://www.essentialtremor.org
International Federation of Anti-Leprosy Associations (ILEP)International Fibrodysplasia Ossificans Progressiva Association International Foundation for CDKL5 ResearchInternational Foundation for Functional Gastrointestinal DisordersInternational Foundation for Optic Nerve Disease (IFOND) International Foundation of Marfan Syndrome Organizations
International Glaucoma AssociationInternational Hip Dysplasia InstituteInternational Huntington Association
http://www.huntington-disease.org
International Hyperhidrosis SocietyInternational Lyme and Associated Diseases SocietyInternational Mosaic Down Syndrome Association
International Myotonic Dystrophy Family FoundationInternational Myotonic Dystrophy Organization
http://www.myotonicdystrophy.org
International Organization of Glutaric Aciduria
http://www.glutaricacidemia.org/
International Osteoporosis Foundation
http://www.ipopi.org/
http://www.pemphigus.org
http://www.ipwso.org
http://www.ipofa.org/
http://www.irsa.org
http://www.rettsyndrome.org/
http://www.sclero.org/
http://www.isid.org
http://www.ispad.org/
http://www.stillsdisease.org
http://www.wagr.org
http://www.iwmf.com/
http://www.isna.org/
Interstitial Cystitis Association http://www.ichelp.org
http://www.ihrfoundation.org
http://www.ice-epilepsy.org/
http://www.iffcmh.org
Iron Disorders Institute Inc. http://www.irondisorders.org/http://www.ironoverload.org
http://www.registromyh9.org/
ITP Foundation http://www.itpfoundation.org
It's My Heart, Inc. http://www.itsmyheart.org
International Palindromic Rheumatism Society
http://www.palindromicrheumatism.org/International Patient Organization
for Patients with Primary Immunodeficiencies International Pediatric Hypertension Association
http://www.pediatrichypertension.orgInternational Pemphigus &
Pemphigoid FoundationInternational Prader-Willi Syndrome OrganisationInternational Premature Ovarian Failure AssociationInternational RadioSurgery AssociationInternational Rett Syndrome Association
International Scleroderma Network (ISN)International Society for Infectious DiseasesInternational Society for Pediatric and Adolescent DiabetesInternational Still's Disease FoundationInternational WAGR Syndrome Association International Waldenstrom’s Macroglobulinemia FoundationIntersex Society of North America (ISNA)
Intracranial Hypertension Research FoundationIntractable Childhood Epilepsy AllianceIowa Federation of Families for Children's Mental Health
Iron Overload Diseases Association, Inc.Italian Registry of MYH9-Related Disease
Jacob's Cure http://www.jacobscure.orgJain Foundation
http://www.jsof.org
JDRF Monogenic Diabetes Section
http://www.info4pi.org/
http://www.jeunesfamily.org/
JMML Foundation, Thehttp://www.jdfaf.org
http://jonahsjustbegun.org/
Joshua Frase Foundation http://www.joshuafrase.org
http://www.jsrdf.org
http://www.jdrf.org/
Juvenile Scleroderma Network http://www.jsdn.orgKabuki Syndrome Network http://kabukisyndrome.com/
Kawasaki Disease Foundation http://www.kdfoundation.org/Kawasaki Support Group http://www.kssg.org.ukKennedy's Disease Association
KFS Circle of Friends:
KickAS.org http://www.kickas.orgKidney Cancer Association http://KidneyCancer.orgKids v Cancer http://www.kidsvcancer.org/
http://www.kidswithheart.org
Kleefstrasyndrome.org
http://www.klsfoundation.orgKlippel-Feil Syndrome Alliance http://kfsalliance.org/
https://www.jain-foundation.org/
Janine's sarcoidosis outreach foundation
http://www.monogenicdiabetes.org/index.htmlJeffrey Modell
Foundation/National Primary Immunodeficiency Resource CenterJeunes Syndrome Family FoundationJewish Genetic Disease Consortium (JGDC)
http://www.JewishGeneticDiseases.orghttp://www.jmmlfoundation.orgJohn Douglas French Alzheimer's
FoundationJonah's Just Begun-Foundation to Cure Sanfilippo Inc.
Joubert Syndrome & Related Disorders Foundation
http://www.joubertfoundation.com/
Joubert Syndrome and Related Disorders FoundationJustin E. Rodgers Foundation for Lemierre's Awareness, Inc.
http://www.lemierresyndrome.com/
Juvenile Diabetes Research Foundation International
Kartagener's Syndrome and Primary Ciliary Dyskinesia Foundation
http://www.kartagener-syndrom.org/cms/index.php?lang=en
http://www.kennedysdisease.orghttps://sites.google.com/site/kfscircle/
Kids With Food Allergies Foundation
http://www.kidswithfoodallergies.orgKids with Heart National
Association for Children's Heart Disorders http://
www.kleefstrasyndrome.org/Kleine Levin Syndrome Foundation
Klippel-Trenaunay Support Group http://k-t.org/Kniest SED Group
http://www.ksibcf.org
Kure It http://www.kureit.org
http://www.femexer.org/
La Leche League International http://www.llli.org
LAM Action http://lamaction.org/LAM Treatment Alliance http://www.curelam.orgLaryngeal Cleft
Laryngeal Cleft Kids
http://www.lmbbs.org.uk/
http://www.lmbbs.org.uk
http://www.ldnz.org.nz/
http://www.ldaamerica.org
http://www.lhon.org
Les Turner ALS Foundation http://www.lesturnerals.org/
http://www.lesch-nyhan.org
Let's Face It
Leukemia Foundation http://www.leukaemia.org.au/Lewy Body Dementia Association http://www.lbda.org/
http://www.ksginfo.org/kniest.html
Kommah Seray Inflammatory Breast Cancer Foundation
La Asociación de Afectados de Neurofibromatosis
http://www.neurofibromatosis.es
La Federación Española de Enfermedades Raras (FEDER)
http://www.enfermedades-raras.org
La Federación Mejicana de Enfermedades Raras (FEMEXER)
La Sociedad Americana Contra el Cancer
http://www.cancer.org/espanol/
http://www.laryngeal-cleft.comLaryngeal Cleft European Support
Grouphttp://laryngeal-cleft-support-group.ning.com/http://laryngealcleftkids.ning.com/
Late Onset Tay-Sachs Research and Education Foundation
http://www.lateonsettay-sachs.org/
Laurence-Moon Bardet-Biedl Society UKLaurence-Moon-Bardet-Biedl Society (LMBBS)LDNZ (Lysosomal Diseases New ZealandLearning Disabilities Association of AmericaLeber's Hereditary Optic Neuropathy Website
Lesch Nyhan.org and Lesch Nyhan International Study Group
http://www.lesch-nyhan.org/en/research/
Lesch-Nyhan Disease International Study Group
http://desica.dent.umich.edu/faceit/
LGS Foundation
Liam's Land Organization, Inc. http://www.liamsland.org/http://www.lfsassociation.org/
Lighthouse International http://www.lighthouse.orgLimb Differences http://limbdifferences.org/Lissencephaly Contact Group
Little People of America
Little People of America, Inc. http://www.lpaonline.org/Littlest Tumor Foundation http://www.littlesttumor.org
http://www.livestrong.org/
Living Beyond Breast Cancer http://www.lbbc.orgLiving with CIDP http://www.livingwithcidp.org/Living With Trisomy 13 http://www.livingwithtri13.orgLivingWithEagle.org
http://www.lmsdr.org
Locks of Love http://www.locksoflove.org/
http://www.loeysdietz.org/
Lowe Syndrome AssociationLPLD Connect http://www.lpldconnect.orgLung Cancer Alliance
Lupus Foundation of America http://www.lupus.org/
http://www.lgdalliance.org/
Lymphedema Family Study
Lymphedema People
http://www.lymphoedema.org
Lymphoma Research Foundation http://www.lymphoma.orgLynch Syndrome International
http://lgsfoundation.org/index.html
Li-Fraumeni Syndrome Association
http://www.lissencephaly.org.ukhttp://www.lpaonline.org/informacin-en-espaol
LIVESTRONG.- Lance Armstrong Foundation
http://www.livingwitheagle.org/LMSarcoma Direct Research
Foundation
Loeys-Dietz Syndrome Foundation - Canada
http://www.loeys-dietzsyndromecanada.org
Loeys-Dietz Syndrome Foundation (US)
http://www.lowesyndrome.org/http://www.lungcanceralliance.org
Lymphangiomatosis & Gorham's Disease AllianceLymphatic Education and Research Network
http://www.lymphaticnetwork.orghttp://www.hgen.pitt.edu/projects/lymphhttp://www.lymphedemapeople.com/wiki/doku.php?id=lipedemaLymphoedema Support Network
(LSN)
http://www.lynchcancers.com/
http://www.migraines.org/
M.I.S.S. Foundationhttp://www.macs.org.uk/
Macula.ORG http://www.macula.org/Macular Degeneration Foundation http://www.eyesight.orgMacular Degeneration Partnership http://www.AMD.orgMacular Degeneration Support http://www.mdsupport.orgMacular Disease Society
Madisons Foundation
Malia's Cord Foundationhttp://www.mhaus.org/
http://www.msud-support.org/
March of Dimes
March of Dimes
Marfan Association UK
Marigold Foundation
http://www.mdsc.org
M-CM Network http://www.m-cm.net/
mct8.org
https://www.medicalert.org
Medscape Reference - Cylindroma
Melorheostosis Association
Mended Hearts, Inc. http://www.mendedhearts.org
M.A.G.N.U.M. (The National Migraine Association)
http://www.missfoundation.orgMACS - The Micro and
Anophthalmic Children's Society
http://www.maculardisease.org/http://www.madisonsfoundation.org/http://www.cordfoundation.orgMalignant Hyperthermia
Association of the United States (MHAUS)Maple Syrup Urine Disease Family Support Group
http://www.marchofdimes.com/http://nacersano.marchofdimes.com
http://www.marfan-association.org.uk/http://marigoldfoundation.org/Marinesco-Sjogren Syndrome
Support Grouphttp://www.marinesco-sjogren.org
Massachusetts Down Syndrome Congress
http://www.mct8organization.org
MdDS Balance Disorder Foundation
http://www.mddsfoundation.orgMEBO Research: Systemic Body
Odor and Halitosishttp://www.meboresearch.org/aboutmebo.htmlMedicAlert Foundation
Internationalhttp://emedicine.medscape.com/article/1056630-overview#a0101Melanoma International
Foundationhttp://www.melanomainternational.orgMelnick-Needles Syndrome
Support Grouphttp://www.melnickneedlesyndrome.com/http://www.melorheostosisassociation.org
Meniere's Network
http://www.musa.org/
Mental Health America http://www.nmha.org/
http://www.curemeso.org
http://www.mheandme.com/
MHE Coalition http://www.mhecoalition.orgMHE Research Foundation
Michael J. Fox Foundation http://www.michaeljfox.org/http://www.michigan-pku.org/
http://www.macpad.org
http://www.mwva.org
Migraine Research Foundation
Missouri Family to Family
MitoAction http://www.mitoaction.org
Mitochondria Research Society http://www.mitoresearch.org
MLD Foundation http://mldfoundation.org/Moebius Syndrome Foundation
Moebius Warriors International http://www.moebius1.org
http://www.mend.org
Mowat Wilson Support http://www.mowatwilson.org
MPD FoundationMPDSUPPORT.ORG http://www.mpdsupport.org
http://www.earfoundation.org/programs.asp?content=menieres_networkMeningitis Foundation of America
(MFA)
Mesothelioma Applied Research FoundationMHE and Me- A Support Group for Kids with Multiple Hereditary Exostoses
http://www.mheresearchfoundation.org/
Michigan PKU & Associated Disorders, Inc.Mid-Atlantic Connection for PKU and Allied DisordersMidwest Women's Vascular Advocates
http://www.migraineresearchfoundation.orghttp://www.mofamilytofamily.org
http://www.moebiussyndrome.com
Mollaret's Meningitis Support Group
http://mollaretsmeningitus.ning.com/Mommies Enduring Neonatal
DeathMontgomery Heart Foundation for Cardiomyopathy
http://www.hopkinsmedicine.org/cardiomyopathy/Motor Neurone Disease
Association http://www.mndassociation.orgMovement Disorder Society
International Secretariathttp://www.movementdisorders.org/
Mowat-Wilson Syndrome Support Group
http://www.mwsupport.pwp.blueyonder.co.uk/http://www.mpdfoundation.org
MPN Research Foundation
MPN Education Foundation http://www.mpdinfo.org/http://www.marshallsmith.org
http://www.ml4.org/
http://www.themmrf.org/
http://www.msassociation.org
Multiple Sclerosis Foundation http://www.msfocus.org
Muscular Dystrophy Association http://www.mdausa.org/Muscular Dystrophy Campaign
http://www.mdff.org
My Child Without Limits
Myasthenia Gravis Association-UK http://www.mga-charity.org/#http://www.myasthenia.org
Myasthenic Kids UK http://myasthenickids.org/Myelin Project http://www.myelin.org
Myeloma CanadaMyeloma UK http://www.myeloma.org.uk/
Myocarditis Foundation
Myotonic Dystrophy Foundation http://www.myotonic.org
http://www.mtmrg.org
Myotubular Trust
Nail Patella Syndrome UK http://www.npsuk.org
Nail Patella Syndrome Worldwide http://www.npsw.org
Narcolepsy Network, Inc.
Nathan's Battle Foundation
http://www.mpnresearchfoundation.org/
MSS (Marshall-Smith Syndrome) Research FoundationMucolipidosis Type IV Foundation, Inc.Multiple Myeloma Research FoundationMultiple Sclerosis Association of America
http://www.muscular-dystrophy.org/
Muscular Dystrophy Family Foundation
http://www.mychildwithoutlimits.org/
Myasthenia Gravis Foundation of America, Inc.
http://www.myelomacanada.ca
Myeloproliferative Disease Support Group Daily Digest
http://www.myeloproliferative.orghttp://myocarditisfoundation.org/
Myotonic Dystrophy Support Group
http://www.myotonicdystrophysupportgroup.org/Myotubular Myopathy Resource
Grouphttp://www.myotubulartrust.com
http://www.narcolepsynetwork.orghttp://www.nathansbattle.com
http://www.nadf.us/
http://www.eyeresearch.org/
http://www.nbcam.org
http://www.nami.org/
http://www.naaf.org
http://www.nass.co.uk
National Aphasia Association http://www.aphasia.orghttp://www.anad.org
http://www.nafc.org/
http://www.nads.org
http://www.napvi.org
http://www.pxenape.org
National Association of the Deaf http://www.nad.orgNational Ataxia Foundation http://www.ataxia.orgNational Blood Clot Alliance http://stoptheclot.org/
http://www.nbmtlink.org
http://www.nbpepa.org
National Brain Tumor Society http://www.braintumor.orgNational Breast Cancer Coalition http://www.natlbcc.org
http://www.ncld.org
http://www.ncfsfa.org
http://nationaldb.org
http://www.ndsan.org
http://www.ndsccenter.org
National Down Syndrome Society http://www.ndss.orghttp://www.ndrf.org
National Adrenal Diseases FoundationNational Alliance for Eye and Vision Research (NAEVR)National Alliance of Breast Cancer OrganizationsNational Alliance on Mental Illness (NAMI)National Alopecia Areata Foundation (NAAF)National Ankylosing Spondylitis Society
National Association Anorexia Nervosa & Associated Disorders, Inc.National Association for Continence (NAFC)National Association for Down SyndromeNational Association for Parents of Children with Visual Impairments (NAPVI)
http://www.spedex.com/napvi/
National Association for Parents of the Visually ImpairedNational Association for Pseudoxanthoma Elasticum, Inc. (NAPE)
National Bone Marrow Transplant LinkNational Brachial Plexus/Erb's Palsy Association, Inc.
National Center for Learning DisabilitiesNational Chronic Fatigue Syndrome and Fibromyalgia Association National Consortium On Deaf-BlindnessNational Down Syndrome Adoption NetworkNational Down Syndrome Congress
National Dysautonomia Research Foundation
National Eczema Association
http://www.nemsn.org
http://www.fabrydisease.org/
National Federation of the Blind http://www.nfb.org/National Fibromyalgia Association http://www.fmaware.org
http://www.fmpartnership.org
http://www.nfra.net
http://www.celiaccentral.org/
http://nfed.org/
http://www.nffr.org
http://www.nfid.org
National Fragile X Foundation http://www.FragileX.org
National Headache Foundation http://www.headaches.orgNational Hemophilia Foundation http://www.hemophilia.org/
http://www.nhpco.org
http://nhfonline.orghttp://www.nidcr.nih.gov/
National Keratoconus Foundation http://www.nkcf.orgNational Kidney Center
National Kidney Foundation, Inc. http://www.kidney.org
http://www.nlmsf.org
National Lipedema Association http://www.lipedema.orgNational Lung Cancer Partnership
http://www.nationaleczema.orgNational Endowment for
Alzheimer's Researchhttp://www.memorymatters.org
National Eosinophilia-Myalgia Syndrome NetworkNational Fabry Disease FoundationNational Family Caregivers Association
http://www.thefamilycaregiver.org
National Fibromyalgia Partnership, Inc.
National Fibromyalgia Research AssociationNational Foundation for Celiac AwarenessNational Foundation for Ectodermal DysplasiasNational Foundation for Facial ReconstructionNational Foundation for Infectious Diseases
National Gaucher Foundation (NGF)
http://www.gaucherdisease.org/
National Gaucher Foundation of Canada
http://www.gauchercanada.ca/
National Hospice and Palliative Care Organization /Natl. Hospice FoundationNational Hydrocephalus FoundationNational Institute of Dental and Craniofacial Research
http://www.nationalkidneycenter.org
National LeioMyoSarcoma FoundationNational Lichen Sclerosus Support Group
http://www.lichensclerosus.org/
http://www.nationallungcancerpartnership.org
http://www.lymphnet.org
http://www.mardenwalker.org
National Marfan Foundation http://www.marfan.org
National MPS Society http://www.mpssociety.orgNational Multiple Sclerosis Society
http://www.nf.org
National Neutropenia Networkhttp://www.nnpdf.org
http://www.rarediseases.org
http://www.nodcc.org
http://www.novanews.org
http://www.nofas.org/
National Osteoporosis Foundation http://www.nof.org/
National Ovarian Cancer Coalition http://www.ovarian.org/National Pancreas Foundation
http://www.parkinson.org/
National PKU Alliance http://www.npkua.org/National PKU News http://www.pkunews.org/
http://www.info4pi.org
National Psoriasis Foundation http://www.psoriasis.org
http://www.naric.com/
http://www.help4adhd.orghttp://www.archrespite.org
National Rosacea Society
National Lymphedema Network (NLN)National Marden Walker Organization
http://www.nationalmssociety.org
National Neurofibromatosis Foundation
http://www.neutropenianet.orgNational Niemann-Pick Disease
Foundation, Inc.National Organization for Rare Disorders (NORD)National Organization of Disorders of the Corpus CallosumNational Organization of Parents of Blind Children
http://www.nfb.org/parents-and-teachers
National Organization of Vascular AnomaliesNational Organization on Fetal Alcohol Syndrome (NOFAS)National Osteonecrosis Foundation
http://www.nonf.org/index.html
http://pancreasfoundation.org/
National Parkinson Foundation, Inc.
National Primary Immunodeficiency Resource Center
National Rehabilitation Information CenterNational Resource Center on ADHDNational Respite Network and Resource CenterNational Reye's Syndrome Foundation
http://www.reyessyndrome.org/http://www.rosacea.org/index.php
National Scoliosis Foundation http://www.scoliosis.org/
National Shingles Foundation
National Sleep Foundationhttp://www.nspku.org/http://www.dysphonia.org
http://www.torticollis.org
http://www.spinalcord.org/
National Stroke Association http://www.stroke.org/http://www.ntsad.org
http://www.nucdf.org
http://www.nuff.orgNational Vitiligo Foundation Inc http://www.mynvfi.orgNational Vulvodynia Association http://www.nva.org
NBIA Disorders Association http://www.nbiadisorders.orgNephCure Foundation http://www.nephcure.org/
http://www.ndif.org
NET Patient Foundation
Neurofibromatosis Mid-Atlantic http://www.nfmidatlantic.org/Neurofibromatosis Midwest http://www.nfmidwest.orgNeurofibromatosis Network http://www.nfnetwork.org/Neurofibromatosis, Inc. California http://www.nfcalifornia.org
http://www.nfincne.orghttp://www.mdachina.org
http://www.ndf-hibm.org/
Neuropathy Association http://www.neuropathy.org/http://www.neutropenia.ca
http://www.vzvfoundation.org/http://www.sleepfoundation.orgNational Society for
PhenylketonuriaNational Spasmodic Dysphonia AssociationNational Spasmodic Torticollis AssociationNational Spinal Cord Injury AssociationNational Spinal Cord Tumor Association
http://www.spinalcordtumor.org
National Tay-Sachs and Allied Diseases AssociationNational Tay-Sachs and Allied Diseases Association, Inc
http://www.ntsad.org/index.php/the-diseases
National Urea Cycle Disorders FoundationNational Uterine Fibroids Foundation
Nephrogenic Diabetes Insipidus Foundation
http://www.ndif.org/public/pages/36-Welcome_to_NDI_Foundation
Nephrogenic Diabetes Insipidus Network
http://www.netpatientfoundation.org/
Neurofibromatosis, Inc., NortheastNeuromuscular Disease Association of ChinaNeuromuscular Disease Foundation
Neutropenia Support Association, Inc.
Nevus Network http://www.nevusnetwork.orgNevus Outreach, Inc. http://www.nevus.org/
Niemann-Pick Disease Group (UK)NIH Clinical Trials and You
No Stomach For Cancer
http://www.nkh-network.org
http://www.nlovca.org
Norrie Disease Association http://www.norriedisease.org/NORSEepilepsy.org http://norseepilepsy.org/
Northwest Parkinson's Foundation http://www.nwpf.orghttp://www.nimbl.eu/ni/Home
http://www.uveitis.org
Ocular Melanoma Foundation
Oklahoma Family Network
Organic Acidemia Association http://www.oaanews.org/
Organization for Autism Research
http://www.opdsyndrome.org/
Ovarian Cancer National Alliancehttp://www.ohf.org
Pachyonychia Congenita Project http://www.pachyonychia.org/Paget Foundation http://www.paget.org
http://www.niemannpick.org.ukhttp://www.nih.gov/health/clinicaltrials/index.htmhttp://www.nostomachforcancer.org/Nonketotic Hyperglycinemia
International Family NetworkNorma Livingston Ovarian Cancer Foundation
Nuclease Immune Mediated Brain & Lupus-like Conditions O.A.S.I.S. Online Asperger Syndrome Information and Support
http://www.aspergersyndrome.org
Ocular Immunology and Uveitis Foundation
http://www.ocularmelanoma.org/home.htm#http://www.oklahomafamilynetwork.orgOnline Mendelian Inheritance in
Man (OMIM)http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=603358Opsoclonus - Myoclonus U.S.A.
and International http://www.omsusa.org/index.htm
Organización Argentina “Gente Bajita”
http://www.gentebajita.org.ar/
Organización Mexicana de Enfermedades Raras (OMER)
http://omer.drupalgardens.com/es/nodehttp://www.researchautism.org/
Organization for Understanding Cluster Headaches (O.U.C.H.)
http://www.ouch-us.org/index.shtml
Orthostatic Tremor - information and forum
http://www.orthostatictremor.org/
Osteogenesis Imperfecta Foundation
http://www.oif.org/site/PageServer
Oto-PalatelDigital Syndrome Family Research Network
http://www.ovariancancer.org/Oxalosis and Hyperoxaluria
Foundation (OHF)
Pain Relief Foundation
PAN Support Network 2009
Pancreatic Cancer Action Network http://www.pancan.org/Panniculitis Support Group
PARENT TO PARENT OF NYS
http://www.prisms.org
http://www.PICKonline.org
http://www.pdf.orghttp://www.ppsg.org
http://www.prsresource.com
Pathfinders for Autism
Patients Connect http://patients-connect.com/PCDH19 Alliance http://www.pcdh19info.orgPedal with Pete (Cerebral Palsy)
http://www.reflux.org
http://www.pbtfus.org
http://pedsibd.org/
http://www.pndassoc.org/
Periodic Paralysis Association
Periodic Paralysis News Desk http://www.hkpp.orgPFIC A Resource for Parents http://www.PFIC.orgPGAD Support http://www.psas-support.com/PHCentral http://www.phcentral.org
http://www.22q13.org
http://www.painrelieffoundation.org.uk/http://www.pansupportnetwork.org/
http://www.groups.yahoo.com/group/panniculitis/Parent Project Muscular
Dystrophyhttp://www.parentprojectmd.org
Parent Technical Assistance Center Network
http://www.parentcenternetwork.org/parentcenterlisting.htmlhttp://www.parenttoparentnys.org/
Parents and Researchers Interested in Smith-Magenis Syndrome (PRISMS)Parents of Infants and Children with KernicterusParkinson's Disease Foundation, IncParkinson's Patients Support Groups, Inc.Parry-Romberg Syndrome Resource, Inc.
http://www.pathfindersforautism.org
http://pedal-with-pete.org/cerebral-palsy/
Pedal with Pete [For Research on Cerebral Palsy]
http://www.pedalwithpete.com
Pediatric Adolescent Gastroesophageal Reflux AssociationPediatric Brain Tumor Foundation of the United StatesPediatric Inflammatory Bowel Disease FoundationPediatric Neurotransmitter Disease AssociationPelizaeus-Merzbacher Disease Foundation
http://www.pmdfoundation.orghttp://www.periodicparalysis.org
Phelan-McDermid Syndrome Foundation
Pheo Para Troopers
Pierre Robin Network http://www.pierrerobin.org/Pioneering Unique Cures for Kids http://www.puckfund.orgPitt Hopkins Research Foundation http://pitthopkins.org/
Pituitary Network Association http://www.pituitary.org/http://www.prp-support.org
PKD Foundation http://www.pkdcure.orgPKS Kids http://www.pkskids.net
http://www.canpku.org/
http://www.pdsa.org/
PMG Awareness Organization, Inc. http://pmgawareness.org/
PML Consortium http://pmlconsortium.orgPMP Awareness Organization
PMP Pals http://www.pmppals.orgPMP Research Foundation, Inc. http://www.pmpcure.orgPoland Syndrome Suppport Group http://www.pssgcharity.org/Polio Experience Network http://www.polionet.org/Polycystic Kidney Disease Charity http://www.pkdcharity.org.uk
http://www.pcosupport.org
http://www.pfsfoundation.org/
Post-Polio Health International http://www.post-polio.org
Prader-Willi Syndrome Association http://www.pwsausa.org/http://www.pwsa-kansas.org
Preeclampsia Foundation http://www.preeclampsia.orgPrevent Blindness America
http://www.pcdfoundation.org
http://www.pcdsupport.org.uk
http://www.pheoparatroopers.org/
Pitt Hopkins Syndrome Support Group
http://groups.google.com/group/pitt-hopkins
Pityriasis Rubra Pilaris (PRP) Support Group (on-line)
PKU (Phenylketonuria) and Allied DisordersPlatelet Disorder Support Association
http://www.pmpawareness.org/
Polycystic Ovarian Syndrome AssociationPost Orgasmic Illness Syndrome (POIS) Forum
http://poiscenter.com/forums/index.php
Post-Finasteride Syndrome Foundation
Potentials Foundation - A Cause for Chloe
http://www.potentialsfoundation.org/Potocki-Lupski Syndrome
Outreachhttp://potockilupskisyndrome.org/
Potocki-Lupski Syndrome Outreach Foundation, Inc
http://www.PTLSfoundation.org
Prader-Willi Syndrome Association-Kansas
http://www.preventblindness.org/
Primary Ciliary Dyskinesia (PCD) FoundationPrimary Ciliary Dyskinesia Family Support Group
http://www.pia.org.uk/
http://www.pohdisease.org/
ProjectAccept.org http://www.projectaccept.orgPropionic Acidemia Foundation
http://www.paresearch.org
http://proteinsdeficiency.com/
Proteus Syndrome Foundation
Proteus Syndrome Foundation, UK
http://www.prunebelly.orgPSC Partners Seeking a Cure http://www.pscpartners.org/
http://www.pxe.org.uk/
PubMed Central website
Pull-thru Network
Pulmonary Fibrosis Foundation
Purine Research Society
PVNH Support & Awareness http://pvnhsupport.com/PXE International http://www.pxe.org
QT Syndrome.ch http://www.qtsyndrome.ch/Rachel's Well http://www.rachelswell.orgRamon Brugada Sr Foundation http://www.brugada.orgRare Anemias Foundation http://www.rareanemias.orgRare Cancer Alliance http://www.rare-cancer.orgRare Cancers Europe
http://rareadvocates.org/
RareChemo.org website http://www.rarechemo.orgRareConnect https://www.rareconnect.org/RareShare http://www.rareshare.org/RASopathies Network U.S.A. http://rasopathiesnet.org
http://www.raynauds.org.uk
Primary Immunodeficiency Association (UK)Progeria Research Foundation, Inc.
http://www.progeriaresearch.org
Progressive Osseous Heteroplasia Association
http://www.pafoundation.com/Propionic Acidemia Research
NetworkProtein S Deficiency and Thombophilia (online support)
http://www.proteus-syndrome.orghttp://www.proteus-syndrome.org.uk/
Prune Belly Syndrome Network, Inc.Pseudotumor Cerebri Support Network
http://www.angelfire.com/ok/PTCSupportNetwork/
Pseudoxanthoma Elasticum (PXE) Support Group (PiXiE)
http://www.pubmedcentral.nih.govhttp://www.pullthrunetwork.org/http://www.pulmonaryfibrosis.org/
Pulmonary Hypertension Association
http://www.phassociation.org/Page.aspx?pid=197http://www.purineresearchsociety.org/
http://www.rarecancerseurope.org
Rare Disease Legislative Advocates
Raynaud's & Scleroderma Association
Raynaud's Association http://www.raynauds.org/RDH12 Fund for Sight http://www.rdh12.org/RE Children's Project http://rechildrens.com/R-E Children's Project
RE Children's Project Inc http://rechildrens.org/
http://www.reach.org.uk
http://www.rrpf.org/
Red de Amor http://www.reddeamor.orghttp://www.rsds.org/
http://www.polychondritis.org
Related Brain Diseases http://www.psp.org/Renal Support Network http://www.rsnhope.org/ResearchMatch
http://www.resolve.org
Rest Ministries, Inc. http://www.restministries.orgRestricted Growth Association
Retina International
Retinitis Pigmentosa InternationalRett UK
http://www.rirdf.org
Ring Chromosome 20 Foundation http://www.ring20.orgRobinow Syndrome Foundation http://www.robinow.org/
http://www.rmdsa.org/
http://www.ropard.org
http://rtsplace.org/
RTS Canada
http://www.rechildrens.org/blog/
Reach Out for Youth With Ileitis and Colitis Inc.
http://www.reachoutforyouth.org/
Reach: The Association for Children with Hand or Arm DeficiencyRecurrent Respiratory Papillomatosis Foundation (RRPF)
Reflex Sympathetic Dystrophy Syndrome Association of America (RSDSA) Relapsing Polychondritis Awareness and Support Foundation, Inc
https://www.researchmatch.org/?route=gardResolve: The National Infertility
Association
http://www.restrictedgrowth.co.ukhttp://www.retina-international.orghttp://www.rpinternational.orghttp://www.rettuk.org/rettuk-public/rettuk.html
Rheumatic Heart Disease Network
http://www.world-heart-federation.org/rhd
Rhode Island Rare Disease Foundation
Rocky Mountain Down Syndrome AssociationROPARD:The Association for Retinopathy of Prematurity and Related DiseasesRothmund-Thomson Syndrome FoundationRoyal National Institute of Blind People
http://www.rnib.org.uk/Pages/Home.aspxhttp://www.rtscanada.org/what_is_canada.htm
SADS FoundationSarcoid Networking Association
Sarcoidosis Research Institute
Sarcoma Alliance
Sarcoma Foundation of America http://www.curesarcoma.orghttp://www.savebabies.org
SCAD Research http://www.scadresearch.org/
http://anausa.org/Scleroderma Foundation http://www.scleroderma.org/
http://www.srfcure.org
Scleroderma Society of Canada http://www.scleroderma.ca/Scoliosis Research Society http://www.srs.org
http://www.scotmnd.org.uk
Selective Mutism Foundation, Inc.
Self Help Queensland, Inc. http://www.selfhelpqld.org.auhttp://www.scid.net/
SHARE
http://www.nationalshare.org/
http://cockaynesyndrome.net
Sharsheret http://www.sharsheret.orgShwachman-Diamond America
Sibling Support Project
Rubinstein Taybi Syndrome Children's Foundation
http://www.facebook.com/RTSCF
Rubinstein-Taybi Syndrome Website
http://www.rubinstein-taybi.org/http://www.sads.org/StopSADShttp://www.sarcoidosisnetwork.orghttp://www.sarcoidosisresearch.orghttp://www.sarcomaalliance.org
Save Babies Through Screening Foundation, Inc
Schinzel-Giedion Syndrome Patient Support Group
http://www.schinzel-giedion.org/
Schiz Kidz Buddies Online Support Group for Schizencephaly
http://www.schizkidzbuddies.com/
Schwannoma Patient Support Group
Scleroderma Research Foundation
Scottish Motor Neurone Disease Association
http://www.selectivemutismfoundation.org
Severe Combined Immunodeficiencies Patient Support http://
www.sharecancersupport.orgSHARE - Pregnancy and Infant Loss Support, Inc.Share and Care Cockayne Syndrome Network Inc.
http://www.shwachmandiamondamerica.org/index.htmlShwachman-Diamond Syndrome -
Australia, Inc.http://www.shwachmandiamondsyndrome.com.auShwachman-Diamond Syndrome
Foundationhttp://www.shwachman-diamond.orghttp://www.siblingsupport.org/Sickle Cell Disease Association of
Americahttp://www.sicklecelldisease.org/
http://www.scdfc.org/
http://sctpn.org
http://www.sidelines.org
http://www.sickkids.ca/SÍNDROME X-FRÁGIL en Argentina http://www.xfragil.com.ar
Sjögren's Syndrome Foundation http://www.sjogrens.org/
Sjogren's World http://www.sjogrensworld.org
SMS Research Foundation
Sneddon's Foundation
http://eimaep.com/
http://www.mpssociety.co.uk
Society for Vascular Surgery
Soft Bones Inc. http://www.softbones.org
http://www.sssac.com
Spastic Paraplegia Foundation http://www.sp-foundation.orghttp://www.sbhao.on.ca
Spina Bifida Association
Spina Bifida Resource Network http://www.thesbrn.org
Spondylitis Association of America http://www.spondylitis.org/Starkey Hearing Foundation
Starlight Children's Foundation http://www.Starlight.orghttp://www.stars.org.uk/
Sickle Cell Disease Association of America, Inc-Eastern NC Chapter
http://www.sicklecelleasternnc.org
Sickle Cell Disease Foundation of CaliforniaSickle Cell/Thalassemia Patients NetworkSidelines High Risk Pregnancy SupportSimpson-Golabi-Behmel Syndrome
Smith-Lemli-Opitz/RSH Foundation
http://www.smithlemliopitz.org
Smith-Magenis Syndrome Foundation
http://www.smith-magenis.co.ukhttp://www.smsresearchfoundation.orghttp://www.sneddonsyndrome.org/
Sociedad Española de Errores Innatos del MetabolismoSociety for Mucopolysaccharide (MPS) Diseases
http://www.vascularweb.org/index.html
Sotos Syndrome Support Association
http://www.sotossyndrome.org/
Sotos Syndrome Support Association of Canada Spasmodic Torticollis ST/Dystonia, Inc.
http://www.spasmodictorticollis.org
Spina Bifida & Hydrocephalus Association of Ontario
http://www.spinabifidaassociation.org
Spinal Muscular Atrophy Foundation
http://www.smafoundation.org
http://www.starkeyhearingfoundation.org/
STARS- Syncope Trust and Reflex Anoxic Seizures
http://www.sjsupport.org/
Stickler Involved People http://www.sticklers.orgStone Circle of Friends
StopCAIDnow http://www.stopcaidnow.org/Stupid Cancer http://stupidcancer.orgSturge-Weber Foundation http://www.sturge-weber.orgSturge-Weber Foundation UK
http://www.sads.org
SuperHands http://www.superhands.us/
http://www.spohnc.org
http://www.sakks.org
Syndromes Without A Name USA
Taking Control of Your Diabetes http://www.tcoyd.orgTAR Syndrome Support Group http://www.ivh.se/TAR/Tarlov Cyst Disease Foundation
Team Sanfilippo Foundationhttp://www.tefvater.org
Testicular Cancer Society
Tetrasomy 18p Canada http://www.tetrasomy18p.ca/http://www.texasnf.org
http://www.aldfoundation.org
The Alkaptonuria Society
The ALS Association http://www.alsa.org
Statewide Parent Advocacy Network
http://www.spanadvocacy.org/Stevens Johnson Syndrome
Foundation
http://www.stonecircleoffriends.com/
http://www.sturgeweber.org.uk/
Sudden Arrhythmia Death Syndromes Foundation
Support For People With Oral And Head And Neck CancerSupport Group for DiGeorge and Velo-Cardio-Facial Syndromes
http://www.vcfsconnect.org/index.php?option=com_content&task=view&id=17&Itemid=33Support Organization for Trisomy
18, 13, and Related Disorders (SOFT)
http://www.trisomy.org/index.php
Supporting Aussie Kids with Kabuki SyndromeSupporting Families with Koolen-de Vries Syndrome
http://www.supportingkdvs.com/http://www.undiagnosed-usa.org
Taiwan Foundation for Rare Disorders
http://www.tfrd.org.tw/english/
http://www.tarlovcystfoundation.orghttp://www.teamsanfilippo.org/TEF VATER International Support
Networkhttp://www.testicularcancersociety.org/
Texas Neurofibromatosis FoundationThalassaemia International Federation
http://www.thalassaemia.org.cy
The Adrenoleukodystrophy Foundation
http://www.alkaptonuria.info/en/home.php
The Arc of East Central Iowa http://www.arceci.orgThe Arc of Illinois http://www.thearcofil.org/The Arc of the United States http://www.thearc.org
The Arthritis Society
http://www.best.org.il/
The Balanced Mind Foundation
The Bartter Site http://barttersite.org/
http://www.bcnf.bc.ca
The Brittle Bone Society http://www.brittlebone.org/
http://www.carcinoid.org/
The Children's Heart Foundation
The Children's Tumor Foundation http://www.ctf.org/The Cochrane Collaboration http://cfgd.cochrane.orgThe Cortical Foundation http://cortfoundation.org
The Dempster Family Foundation
http://www.ddnc.org/
The Ectodermal Dysplasia Society
The Endocrine Society http://www.endo-society.org
The Feingold Center for Children
The FH Foundation
http://www.fmdsa.org/
The FM Foundation
The American Porphyria Foundation
http://www.porphyriafoundation.com
The Arms of an Angel- Trisomy 18 Association
http://www.trisomy18dallas.orghttp://www.arthritis.ca/custom%20home/default.asp?s=1The Association for Fighting Best
DiseaseThe Bachmann-Strauss Dystonia & Parkinson Foundation
https://www.dystonia-parkinson.orghttp://www.thebalancedmind.org
The bonnie j addario lung cancer foundation
http://www.lungcancerfoundation.orgThe British Columbia
Neurofibromatosis Foundation
The Carcinoid Cancer Foundation, Inc.The Center for Peripheral Neuropathy
http://peripheralneuropathycenter.uchicago.edu/http://www.childrensheartfoundation.org/
The Degos Disease Support Network Web site
http://www.degosdisease.com/http://www.DempsterFoundation.orgThe Digestive Disease National
Coalitionhttp://www.ectodermaldysplasia.org/
http://www.thefeingoldcenter.org/http://www.thefhfoundation.org/
The Fibromuscular Dysplasia Society of America (FMDSA)
http://thefmfoundation.org/index.html
The Focus Foundation
http://www.atypicalhus.org
The Fragile X Society http://www.fragilex.org.uk
The G6PD Favism Association
The Glaucoma Foundation
The Haemophilia SocietyThe Hageman Foundation
The Heterotaxy Network
The Hormone Foundation http://www.hormone.org
The Hyperacusis Network http://www.hyperacusis.net/http://www.22q.org
http://www.ismrd.org/
http://www.iacfsme.org/
http://www.inciid.org
http://iois.in/
http://www.jtsma.org.uk
The J-Pouch Group http://www.jpouch.org/The Kidney Foundation of Canada http://www.kidney.on.ca
The LAM Foundation
The Lee Spark NF Foundation http://nfsuk.org.uk/http://www.leukemia.org/
http://sarcomahelp.org/
The Life Raft Group http://www.liferaftgroup.orgThe Lustgarten Foundation http://www.lustgarten.org
http://www.thefocusfoundation.org/FF/index.phpThe Foundation for Children with
Atypical HUS
http://www.g6pd.org/favism/english/http://www.glaucomafoundation.orghttp://www.haemophilia.org.uk/http://hagemanfoundation.org/The Hemispherectomy
Foundationhttp://hemifoundation.intuitwebsites.com/welcome.htmlhttp://www.theheterotaxynetwork.org
The Hughes Syndrome Foundation
http://www.hughes-syndrome.org/
The International 22q11.2 Deletion Syndrome Foundation, Inc.The International Advocates for Glycoprotein Storage Diseases (ISMRD)The International Association for CFS/METhe InterNational Council on Infertility Information Dissemination, Inc.The International Ocular Inflammation SocietyThe Jack McGovern Coats Disease Foundation
http://www.coatsdiseasefoundation.orgThe Jennifer Trust for Spinal
Muscular Atrophy
The Kimberly D. Holland Hodgkins Disease Foundation
http://www.hodgkinsfoundation.orghttp://www.thelamfoundation.org/about-lam.html
The Leukemia and Lymphoma SocietyThe Liddy Shriver Sarcoma Initiative
The MAGIC Foundation http://magicfoundation.orgThe Mastocytosis Society http://www.tmsforacure.org/
The Migraine Trust http://www.migrainetrust.org/
The Myositis Association http://www.myositis.org
http://www.thenccs.org
http://www.nnff.org/
http://www.albinism.org
http://www.nfauk.org
The Neuropathy Association http://www.neuropathy.orghttps://nf1registry.wustl.edu/
The Oral Cancer Foundationhttp://www.cdiffsupport.com/
The PBCers Organization http://www.pbcers.org/
The Pituitary Foundation http://www.pituitary.org.uk/The Pituitary Society
The PSP Association http://www.pspeur.orgThe Rarer Cancers Forum
The Romberg’s Connection
The Sickle Cell Information Center http://www.scinfo.orgThe Skin Cancer Foundation http://www.skincancer.org/
http://www.nsnet.org/smdi/
The Stennis Foundation
The Multiple System Atrophy Coalition
http://www.multiple-system-atrophy.org/
The National Breast Cancer Coalition/Fund
http://www.stopbreastcancer.org/
The National Children's Cancer SocietyThe National Coalition for Cancer Survivorship
http://www.canceradvocacy.org
The National Necrotizing Fasciitis FoundationThe National Organization of Albinism and Hypopigmentation (NOAH) The Neurofibromatosis Association
The NF1 Patient Research Initiative (NPRI)The Opsoclonus Myoclonus Syndrome Support Network, Inc.
http://www.omsupportnetwork.org/http://oralcancerfoundation.orgThe Original Clostridium Difficile
Support GroupThe Pancreatitis Supporters Network
http://www.pancreatitis.org.uk/
The Patty Brisben Foundation for Women's Sexual Health
http://www.pattybrisbenfoundation.com/
http://www.pituitarysociety.org
http://www.rarercancers.org.ukhttp://www.therombergsconnection.com/
The Society for Developmental and Behavioral Pediatrics
http://www.sdbp.org/index.cfm
The Society for Muscular Dystrophy Information International http://
www.stennisfoundation.org
The Stop ALD Foundation http://www.stopald.org
http://ww5.komen.org/
The VHL Family Alliance http://www.vhl.orghttp://www.thyca.org
Thyroid Cancer Forum-UK
TMJ Association, Ltd. http://tmj.orghttp://www.endthepain.org
TNA The Facial Pain Association http://www.fpa-support.org/
Tourette Syndrome Association http://tsa-usa.org
http://www.tourette.ca/
Transverse Myelitis Association http://www.myelitis.org
TREAT-NMD http://www.treat-nmd.eu/Tremor Action Network http://www.tremoraction.org
Trichotillomania Learning Center http://www.trich.org/Trisomy 18 Foundation
Tuberous Sclerosis Alliance http://www.tsalliance.org/
Turner Syndrome Foundation
Turner Syndrome Support Society http://www.tss.org.uk/
The Stuttering Foundation of America
http://www.stutteringhelp.org/
The Susan G. Komen Breast Cancer FoundationThe Twin to Twin Transfusion Syndrome Foundation
http://www.tttsfoundation.org/
ThyCa: Thyroid Cancer Survivors' Association, Inc.
http://www.thyroid-cancer-forum-uk.org
TNA -- Facial Pain Association (formerly the Trigeminal Neuralgia Association)
Together for the research on PCDH19 (Italy)
http://www.pcdh19research.org/ENG/index_ENG.html
Tourette Syndrome Foundation of CanadaTownes-Brocks Syndrome International Support Network
http://health.groups.yahoo.com/group/Townes-Brocks-Syndrome/
Treacher Collins Family Support Group
http://www.treachercollins.net/
http://www.trisomy18.org/site/PageServer
Trisomy 9 International Parent Support
http://www.trisomy9.org/9tips.htm
Turner Syndrome Aorta Dissection Registry
https://www.ohsu.edu/pedscardturner/TSform-test.htmhttp://www.turnersyndromefoundation.org/Turner Syndrome Society of the
United Stateshttp://www.turnersyndrome.org/
UCSF Fibrodysplasia Ossificans Progressiva Clinic
http://www.ucsfbenioffchildrens.org/conditions/fibrodysplasia_ossificans_prog
UKD Foundation http://www.ukdcure.org/
http://www.rarechromo.org
http://www.ubpn.orgUnited Cerebral Palsy (UCP) http://www.ucp.org
http://www.ucpa.org
http://www.ulf.org/
http://www.umdf.org
United Pompe Foundation
United Spinal Association http://www.unitedspinal.orghttp://www.usidnet.org
Urology Care Foundation http://www.urologyhealth.org/
http://www.haea.org
Vascular Birthmarks Foundation http://birthmark.org/Vascular Disease Foundation http://vasculardisease.org/Vasculitis Foundation
Vasculitis Foundation Canada http://www.vasculitis.ca/VCFS 22q11 Foundation http://www.vcfsfa.org.au
http://www.vcfsef.org
Vestibular Disorders Association http://www.vestibular.org
Virginia Breast Cancer Foundation http://www.vbcf.org
http://www.visionsvcb.org
Vital Options International http://www.vitaloptions.orghttp://vrfoundation.org
Vitiligo Support International
http://www.vor.net
Wagner Syndrome Website
Wake Up Narcolepsy, Inc.
http://wendtcenter.org/
Unique – Rare Chromosome Disorder Support GroupUnited Brachial Plexus Network, Inc.
United Cerebral Palsy Association, Inc.United Leukodystrophy Foundation (ULF)United Mitochondrial Disease Foundation
http://www.unitedpompe.com/index.cfm
United States Immunodeficiency Network (USIDNET)
US Hereditary Angioedema Association, Inc.
http://www.vasculitisfoundation.org/
Velo-Cardio-Facial Syndrome Educational Foundation
Vision of Children Foundation (VOC)
http://www.visionofchildren.orgVISIONS: Services for the Blind
and Visually Impaired
Vitiligo Research Foundation (VR Foundation)
http://www.vitiligosupport.org/front_page.cfmVOR-Speaking up for people with
intellectual & developmental disabilities
http://www.wagnersyndrome.eu/http://www.wakeupnarcolepsy.org/
Washington State Fathers Network
http://www.fathersnetwork.orgWendt Center for Loss and
Healing
Williams Syndrome Association
Willis-Ekbom Disease Foundation http://www.willis-ekbom.org
http://www.wicfs-me.org/Wiskott-Aldrich Foundation http://www.wiskott.org
http://www.ilep.org.uk/links/
World Craniofacial Foundation http://www.worldcf.org/World Federation of Hemophilia http://www.wfh.org/
http://lichensclerosus.org/
Wynne Foundation Inc.
http://www.xps.org
http://www.xlhnetwork.org/
XLP Research Trust
XP Family Support Group http://xpfamilysupport.com/XP Support Group
XXYY Project Organization
Yahoo! TarSupport
Young Survival CoalitionZellweger Baby Support Network http://zbsn.org/
http://www.williams-syndrome.org
Williams Syndrome Changing Lives Foundation
http://www.wschanginglives.org/
Williams Syndrome Family of Hope
http://www.wsfamilyofhope.org
Wilson Disease Association International
http://www.wilsonsdisease.org
Wisconsin ME/CFS Association, Inc.?Wolf-Hirschhorn Syndrome Trust (UK)
http://www.whs4pminus.co.uk/
Wolfram Syndrome UK Support Group
http://www.wolframsyndrome.co.uk/Working for A World Without
LeprosyWorld Arnold Chiari Malformation (ACM) Association
http://www.pressenter.com/~wacma/
Worldwide Lichen Sclerosus SupportWorldwide Society of Wolfram Syndrome Families
http://www.wolframsyndrome.org/http://www.wynnefoundation.org
Xeroderma Pigmentosum Family Support Group
http://www.xpfamilysupport.org
Xeroderma Pigmentosum Society, Inc (XP Society)XLH (X-linked Hypophosphatemia) Network, Inc.
http://www.xlpresearchtrust.org/
http://www.xpsupportgroup.org.uk
http://xxyysyndrome.org/english.php
Yahoo! Duane Syndrome Online Support Group
http://health.groups.yahoo.com/group/duanes/http://health.groups.yahoo.com/group/TarSupporthttp://www.youngsurvival.org/
Email Address: Add1: Add2:
[email protected] 1641 Hunter Road
[email protected] 906 NE Greenwood Ave.
131 Green Cook Road
[email protected] P.O. Box 268
[email protected] P.O. Box 5192
123 Edward Street Suite 1003 Toronto ON M5G 1E2
[email protected] 300 Fifth Avenue
531 Route 22 East #244
[email protected] P.O. Box 700248
150 West 75th St. Suite 4
[email protected] P.O. Box 15482
P.O. Box 442
List of organizations from the Genetic and Rare Diseases (GARD) Information Center3/12/2015
Radboud university medical center
Department of Human Genetics, 849
1885 University Avenue, Suite 110
http://www.atwistoffate-ats.com/contact.htmlhttps://sites.google.com/a/ohtahara.org/ohtahara2/contact-us
http://www.accordalliance.org/contact/email-us.html
http://www.ackc.org/contact-us/
http://www.accrf.org/html/contactus.php
[email protected] 32 Launceston Place London W8 5RN
http://aisdsd.org/contact P.O. Box 2148
[email protected] 10500 SW Starr Drive
[email protected] PO Box 43642
P.O.Box 103
[email protected] 28 West 44th Street Suite 501
PO Box 202 103 Rapidan Church Lane
[email protected] Alpha-1 Association
[email protected] 1638 Northway Avenue Windsor N9B [email protected]
[email protected] 1608 E. Briarwood Terrace
[email protected] 14 Whitney Farm [email protected] 2000 Town Center, Suite 1900
[email protected] c/o Steve and Donna Hanson 5902 Marcie Court
[email protected] 1414 Avenue of the Americas Suite 1502
http://allianceforcryo.org/contact-us/
2937 SW 27th Avenue, Suite 106
2937 SW 27th Avenue Suite 302
[email protected] 225 N. Michigan Ave., Fl. [email protected] P.O. Box 8250
[email protected] 322 Eighth Avenue 7th Floor
[email protected] 3401 Quebec St, Suite [email protected] 211 Wacker Drive Suite 1700
555 East Wells Street Suite 1100
930 E. Woodfield RoadP.O. Box 7424
[email protected] 214 North Hale Street
[email protected] 6300 North River Road
[email protected] 3796 Odgen Lane.
[email protected] P.O. Box 193832
[email protected] 1001 North Fairfax, Suite 400
444 North Capitol Street, NW Suite 846
18915 Inca Ave
[email protected] P.O. 869
[email protected] Williams Street NW
[email protected] P.O. Box 850
[email protected] 1701 North Beauregard Street
[email protected] 17 Suffolk Lane, Suite [email protected] 342 North Main Street
3505 E. Frontage Rd., Suite 315
22100 Gratiot Avenue Eastpointe
http://americanautonomicsociety.org/contact/
8550 W. Bryn Mawr Ave, Ste 550http://www.cancer.org/asp/
contactUs/cus_global.asp
120 South Riverside Plaza, Suite 2000
PO Box 32698
[email protected] 2 Penn Plaza, Suite [email protected] 4930 Del Ray Avenue
23679 Calabasas Road # [email protected] 19 Mantua Road
7272 Greenville Avenue
[email protected] Unit #104 PMB 416
[email protected] 6110 Executive Boulevard Suite [email protected] 39 Broadway, Suite 2700
1301 Pennsylvania Ave NW Suite 800
PO Box 515
1027 Hampshire Drive
[email protected] 6300 N. River Road, Suite 510
[email protected] P.O. Box 7525
[email protected] 135 Parkinson Avenue
[email protected] PO Box 29545
9312 Old Georgetown Road
PO Box 875Suite DD1-201
110 W. Ninth Street, Suite 826
8 South Michigan Avenue, Suite #814
4044 West Lake Mary Boulevard
http://www.lung.org/about-us/contact-us.html
http://www.amensupport.org/contact-us/
http://www.apma.org/Footer/[email protected]
1431 Greenway Drive, Suite 800
DD Building at the Cleveland Clinic,
346 Park Avenue South, 4th floor
http://www.sleepassociation.org/index.php?p=contactus
800 Florida Avenue Northeast #2047
[email protected] 1209 Montgomery Highway
2200 Research Boulevard
National Center 7272 Greenville Avenue
[email protected] PO Box 1586
[email protected] 6066 Leesburg Pike, Suite 550
[email protected] 2025 M Street NW, Suite [email protected] 1000 Corporate Boulevard Suite 410
PO Box [email protected] PO Box 7450
[email protected] PO Box 751112
[email protected] 900 East Hill Avenue, Suite 205
[email protected] 131-133 Napier Street St. Arnaud,
7151 N. Main Street Suite 2
232 Orchard Drive
[email protected] 27001 Agoura Road Suite 250
[email protected] 265 Yorkland Boulevard Suite 300
[email protected] PO Box 435
[email protected] 930 Madison Ave, Suite 3145 Wilby Close Bury
http://www.deafchildren.org/index.php/contact.html?view=foxcontact
Resources for patients page: http://www.asrm.org/Patients/mainpati.htmlhttp://www.asha.org/Forms/
National-Office-Contact-Form/
http://www.amyloidosis.org/[email protected],[email protected]
http://www.angelman.org/contact-us/
4255 Westbrook Drive, Suite 219502 W. 21st Street, Suite G2-411
[email protected] 8 West 37th Street
P.O. Box 26304
[email protected] 100 Park Avenue, Suite 108
[email protected] 11181 Yonge Street Suite 321
P. O. Box 801
P.O. Box 261926
[email protected] PO Box 70P.O. Box 7669
[email protected] PO Box [email protected] P.O. Box 1883
[email protected] Carrera 66 # 79 A – 82 Apt 3-102
[email protected] c/Plutón, 43 Ático 1ª
[email protected] Avenida Belgrano 687 Piso 8, Oficina 33
http://www.aosupport.org/contactus.htm
http://www.apsfa.org/contact.htm
http://hibm.org/arm/about_arm:contact_us
http://www.arthritis.org/EMF/email.asp
C/ Hierbabuena, 12- local, bajo dcha
[email protected] Montserrat Querol Sanchís
Aguirre 1, 1º izquierda Bajo derecha C/Escorial, 20 Alcobendas 28100
asociació[email protected]
Solymar, km. 23500 Ciudad de la Costa
[email protected] 53 cours Léopold
4 Fern Place
[email protected] Radnor Station Building 2 Suite 320
[email protected] PO Box 896
Old Hambledon Racecourse Sheardley Lane
210 East 64th Street 8th Floor
[email protected] The Warehouse No 1 Draper Street
Avda. Ballester, n.º 3 · 3.º-2.ª
http://asociacionnoonan.wordpress.com/contacto/
C/ Jacinto Benavente Nº 12 29601http://www.asdra.org.ar/
consultas/Uriarte 2011 (C1425FNA) C.A.B.A
[email protected],[email protected]@[email protected]
European Leukodystrophy Association
https://www.agsd.org.uk/AboutAGSDUK/Home/Contactus/tabid/1011/Default.aspx
2901 W Kinnickinnic River Pkwy, Suite #311
[email protected] P.O. Box 872
[email protected] 11 North Street
PO Box 62865
16 Rue Masaryk 69009 Lyon
[email protected] 5300 W. Hillsboro Blvd Suite 105
[email protected] Lincoln House Kennington Park
[email protected] PO Box 450 Balgowlah NSW 2093
[email protected] 10 Mitchell Street Mentone Victoria 3194
[email protected] 1 East 33rd St. 4th Floor920 Urban Avenue
[email protected] P.O. Box 590354
[email protected] P.O. Box 618
[email protected] 166 Humphries Drive
AGMD International Corporate Headquarters
http://www.peyroniesassociation.org/contact-us/[email protected]
http://www.autism-society.org/about-us/contact-us.html
4340 East-West Highway, Suite 350
https://aealliance.org/contact/
[email protected] PO Box [email protected] c/o Amy Lossie 3811 Woodridge Avenue
[email protected] The Drum and Monkey Hazelbury Bryan
Head Office PO Box 27
[email protected] 637 North 7th Street, Suite 102 PO Box 12468
[email protected]@gocougs.wsu.edu SE 820 Meadow Vale Drive
P.O. Box 727
[email protected] 7095 Hollywood Blvd. #583
210 Spring Haven Circle
[email protected] P O Box 579 Crows Nest, NSW
6065 Roswell Road, Suite 505
212 West Van Buren Suite 1000
976 Lake Baldwin Lane, Suite 1044915 St. Elmo Avenue, Suite 202
http://www.bloomssyndromeassociation.org/general/?type=CONTACT
http://www.braintumorkids.org/web/contactus.asp
[email protected] PO Box 6627
[email protected] 22512 Gateway Center Drive670 N. Clark St., Suite 2
[email protected] 19 Fitzroy Square London, UK W1T [email protected] PO Box [email protected] 4940 Knox Court
1225 King Street 2nd Floor
2 Windrush Close Flitwick
PO Box 2115
[email protected] 1400-522 University AVE Toronto ON M5G 2R5811 - 14th Street NW Calgary
[email protected] 400-1255 University St Montreal, QC H3B [email protected] 362 Concession Road 12 RR #2
[email protected] Centre Plaza Postal Outlet 128 Queen Street South
[email protected] P.O. Box 30034, RPO Parkgate
[email protected] 450 West End Avenue, #6A
[email protected] 88 Route 37
http://www.breathtakers.org.uk/index.php?option=com_flexicontact&am
http://www.livingwithcah.com/contact.html
North Vancouver, BC V7H 2Y8
[email protected] PO Box 8194
2 North Road, Suite A
1050 17th St NW Suite 500
[email protected]@cancercare.org 275 Seventh Ave, Floor [email protected]@careforhearts.org 427 Fulton Street P.O. Box 69
[email protected] Chiltern Court Asheridge Road
[email protected] One Kendall Square PMB 180
[email protected] 127 W. Oak Unit CEmail:[email protected] PO Box [email protected] The Denes, Lynn Road Tilney All Saints
55 Glen Rd.
35 Halsey St, 4th floor
[email protected] 1025 Connecticut Avenue Suite 701
[email protected] 183 Brown [email protected] PO Box [email protected] 199A Victoria Street
http://www.cdkl5canada.ca/contact-ushttp://www.cdkl5uk.org/contact/
[email protected] 2700 Chestnut Street
[email protected] 141 Middle Neck Road
[email protected] 2112 North Wilkins Road
[email protected] PO Box 1984
[email protected] 3650 Rogers Road #290c/o Paul Farrell
[email protected] 30 South Wells St.
416 Lincoln Avenue 2nd Fl.,
[email protected] Climb Building 176 Nantwich Road
[email protected] 1223 Wilshire Blvd., #937
[email protected]/ 3790 Via De La Valle, Suite 120
[email protected]@cbbf.org 7701 95th Street
P.O. Box 547
[email protected] 13140 Coit Road Suite [email protected] 1501 Bethlehem Pike PO Box 6
http://www.thecehf.org/contact.html
333 Earle Ovington Blvd. Suite 701
25379 Wayne Mills Place, Suite 143
274 Madison Avenue, Suite 1004
[email protected] 917 Bethany Mountain Road
P.O. Box 2123
2 Longfellow Place Suite 201
P.O. Box 721051
[email protected] 36 Great Charles Street Birmingham, B3 3JY
[email protected] P.O. Box 6635
PO Box 4562
[email protected] 16 Candlewood Drive Brantford, ON N3R 6A1
[email protected] 23 East Brundreth Street
[email protected] 636 Morris Turnpike Suite 3A
[email protected] 7155 Oakridge Drive
[email protected] Robinson Crusoe 1209 Las Condes
[email protected] Stephanie St. Pierre 338 Spruce St. North
[email protected] Murney Rinholm 7108 Partinwood Drive
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The Epidermolysis Bullosa Center
Cincinnati Children's Hospital Medical Center
New Anstey House Gate Way Drive
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Wellcome Trust Centre for Cell-Matrix Research
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Stanford Medicine Outpatient Center
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Down Syndrome Awareness Centers
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Division of Child Neuropsychiatry
IRCCS C.Mondino Foundation
c/o Center for Developmental Medicine and Genetics
5501 Old York Road Genetics
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90 Parkfield Road North New Moston
PO Box 271004
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555 East Wells Street, Suite 1100
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3333 Burnet Avenue, MLC 7002
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30 Old Kings Hwy South, Suite 275
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P.O. Box 4079
10 High Cross Road
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Calle Avda. América, 33-2º B- 28002 Madrid
C/ Pamplona 32 – CP: 28039 Madrid
[email protected],[email protected]://www.llli.org/contact/contact_ushttp://www.cancer.org/aboutus/howwehelpyou/app/contact-us.aspx
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St. Luke's Crypt Sydney Street
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https://interland3.donorperfect.net/weblink/weblink.aspx?name=lupus&id=27
University of Pittsburgh, Department of Human Genetics
100 N Union Street Suite B
MACS (Registered Office) PO Box 92
PO Box [email protected] 6222 Wilshire Blvd Suite 260
P.O. Box 241956
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1275 Mamaroneck Avenue
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http://www.macs.org.uk/contact-us.html
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1400 Wallace Blvd, Suite 258
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459 South State Road 135 South
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Department of Neurology University of Chicago
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Leckhampton
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17 Bethea Drive
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Vissum -Instituto oftalmologico de Alicante
Avda. de Denia, s/n (Edificio VISSUM)
4015 Executive Park Dr., Suite 320
1311 Mamaroneck Avenue , Suite 310
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[email protected] 31 Cloverhill Place
[email protected] PO Box 959
[email protected] Quayside House
[email protected] 110 W. 40th Suite #1804
2116 Casa Linda Drive
3419 Via Lido #[email protected]
[email protected] Flat 15 Mayfield Court Off Mayfield Road
161 Commerce Blvd
1430 Garden Road
[email protected] P.O. Box 1944 Bristol BS99 2UBVA Medical Center 423 East 23rd Street
The Great Barn Godmersham Park
[email protected] PO Box 109 Grady Memorial Hospital149 Madison Avenue Suite 901
[email protected] 6728 Old McLean Village Drive
[email protected] P.O. Box 7490, Bridgewater Nova Scotia, B4V 2X6
http://www.tmsforacure.org/contact.php
38 High Street, Kingston-on-Thames
[email protected]@oralcancerfoundation.org
[email protected]@pbcers.org
http://www.pituitarysociety.org/members/contacthttp://www.rarercancers.org.uk/contact
[email protected] P.O. Box 11749
[email protected] 5005 LBJ Freeway Suite 250
[email protected] International Office 411 Longbeach Parkway
[email protected] 2001 Beacon Street Suite 208
[email protected] 408 W. University Ave. Suite 602
925 NW 56th Terrace Suite C
[email protected] c/o Francesca Squillante Via A. Polizano, 8
[email protected] 42-40 Bell Boulevard Suite 205
[email protected] #206, 194 Jarvis Street Toronto, Ontario
[email protected] 1787 Sutter Parkway
[email protected] P.O. Box 5013
[email protected] 207 McPherson Street, Suite [email protected] 4491 Cheshire Station Plaza Suite 157
[email protected] 801 Roeder RD, Suite [email protected] Attn: Krista Gaeta 707 SW Gaines Road
533 Parnassus Ave. UC Hall U-504 Box 0734
http://www.fpa-support.org/contact.html
425 Madison Ave, 9th Floor
[email protected] P.O. Box 2189 Caterham
1610 Kent [email protected] 1660 L Street, NW Suite 700
[email protected] 224 North Second Street Suite 2
[email protected] 8085 Saltsburg Road, Suite 201
[email protected] c/o David W. Hamlin 5100 N. Sixth Street #119
1000 Corporate Boulevard
[email protected] Seven Waterfront Plaza
[email protected] 550 M Ritchie Highway [email protected] P.O. Box 28660
[email protected] PO Box 874
P.O. Box 13305
P.O. Box 4008
[email protected] PO Box 501 5000 AM
http://www.ukdcure.org/contact
500 Ala Moana Blvd., Suite 400
http://www.vestibular.org/about-veda/contact-veda.php
12671 High Bluff Drive, Suite 300
http://www.vitiligosupport.org/contact.cfm?process=form
[email protected] 570 Kirts Blvd Suite 223
[email protected] PO Box 76021
[email protected] 5572 North Diversey Blvd.
9 Church Way Tarring
31 Newtown Woods Road Newtown Square
[email protected] P.O. Box [email protected] 1425 Rene Levesque Blvd. W. Suite 1010
[email protected] 437 Syndertown Road
[email protected] 9426 Turnberry Drive
60 Winchester Road Romsey
8495 Folsom Blvd #12 Strawberry Close Prestwood
[email protected] PO Box 2172
[email protected]@wolframsyndrome.co.uk
http://www.xlpresearchtrust.org/[email protected]
Add3: Add4: Add5: Add6: Add7:
Postbox 9101
List of organizations from the Genetic and Rare Diseases (GARD) Information Center3/12/2015
6500 HB Nijmegen
10900 Carnegie Avenue
Victoria, 3478
BL8 1XU
Toronto Ontario M2J 1S5
C1092AAG
Canelones 15005
BP 267 - 54005
Southborough
08840 - Viladecans, Barcelona
290 King of Prussia Road
Droxford, Hampshire, SO32 3QY
Tunbridge Wells Kent TN4 0PG
1-3 Brixton Road London SW9 6DE
Dorset DT10 2EE
Watchet Somerset TA23 0YJ
1585 Suite 21 Regent House 37-43
Alexander Street Crows Nest, NSW 2065
Bedfordshire MK45 1PX
Alberta, T2N 2A4 4032708500
P.O. Box 42257
Hastings Ontario K0L 1Y0
Mississauga Ontario L5M 4Z0
Unit 10
Kings Lynn Norfolk PE34 4RT
Chesham Buckinghamshire HP5 2PX
Crewe CW2 6BG
Ontario
Wimborne BH21 9BU
116 Manning Dr.
West Sussex BN13 2HQ
Oamaru
L - 10 28043
Waipawa 4273 Hawkes Bay
MLD 3004
P.O. Box 9101
Gzira, Intl GAR 04
Barcelona
Oxford Road
3333 Burnet Avenue
Yeadon, LEEDS LS19 7XY
C/Villarroel, 170 · 08036University of Manchester
Michael Smith Building
Manchester M13 9PT
London WC2A 3XL
11 B 50009
T3A 1S9
450 Broadway
Mendoza, Argentina/ Serrano, 669
Ciudad Autónoma de Buenos Aires
Pavilion B, 4th Floor
Blalock 1008600 North Wolfe Street
Suite 466
Kelowna, B.C. V1W 4A7Devon
Children's Healthcare of Atlanta at Egleston
1405 Clifton Road
Assam
Levy 2
Via Mondino, 227100 Pavia
Room C4-348
Manchester, M40 3RQ
W14 0HJ
Henwood Ashford
Alberta Children's Hospital
2888 Shaganappi Trail NW
Calgary, Alberta T3B 6A8
Kent TN24 3DH
Cornwall PL11 3LE
Costozza 1-36023
2 Pavia 27100
Regina, Saskatchewan S4Y 1J3
Potters Green Coventry CV2 2FR
London SW3 6NH
Holyhead LL65 9AW
Fleet Hampshire GU51 3NG
East Sussex, TN40 2ST
Editor-in-Chief, Mitochondrion
Department of Cancer Genetics
Roswell Park Cancer Institute
BLSC Building, Room # 3-316
Elm and Carlton Streets
The Netherlands NL 2593 SZ
Derby
Glasgow G74 1YW
East Sussex Intl TN20 6ZL
Dorset DT7 3ZU
5601 Loch Raven Blvd.
Stratford Road B94 6EAHockley Heath
Winnepeg, Manitoba, R3M 3S7
Liverpool L9 7AL
London, SW1H 0QS
Bexhill-on-Sea East Sussex TN39 5EJ
Cheshire ST7 2JA
Dorset, Intl DT2 9FA
Luton LU1 2NA
London WC1H 9NE
Vic 3442
HP7 9LP
Quebec Intl H3P 2R9
Ste 1006
King's Lynn Norfolk PE31 6LG
Toronto, Ontario, M5V 3B1
DD1 5BS
5841 S. Maryland Ave MC 2030
Cheltenham Gloucestershire GL53 7ER
SE1 7EH
03016 Alicante
Ribchester Preston PR3 2XE
Great Dunmow, Essex, CM6 1DA
St Thomas' Hospital London
SURREY KT1 1HL
Moseley, Birmingham
Room 16048aW
West Midlands B13 9HS
Canterbury, Kent CT47DT
80 Jesse Hill Jr Drive SE
00184 ROME
M5B 2B7
Mail code: CDRC-P
Surrey CR3 5GN
Tilburg
Worthing West Sussex
Hampshire SO51 8JA
Montreal, Quebec H3G 1T7
Great Missenden Buckinghamshire HP16 0SG
Add8: City: State: Zipcode: Phone:
Waukesha WI 53189 678-267-3586
Bend OR 97701
Sunbury OH 43074
Lakewood CA 90714-0268 888-970-0777
Sonora CA 95370
St. Paul MN 55104
416-597-2229
Waltham MA 02451 781-487-0008
NJ 08889 908-349-0534
San Antonio TX 78270 210-494-6144
New York NY 10023 212-714-5341
San Diego CA 92175-5482
Needham MA 02494 (781) 248-9699
+31 24 361 3946
Whitehouse Station
020 7409 0092
Duncan OK 75354-2148
Tualatin OR 97062 503-885-0455
London SE22 0XR 020 8473 7493
Barrington NJ 08007
New York NY 10036 212-218-2840
Wolftown VA 22748 540-948-6777
Miami FL 33133
519-258-1444 Miami FL 33133 305-567-9888
Phoenix AZ 85048-9414 480-460-0621
Mount Desert ME 04660Southfield MI 48075 313-663-7772
Garland TX 75044-4958
New York NY 10019 212-935-2402
856-448-4085 or 925-315-RARE
Chicago IL 60601-7633 Silver Spring MD 20907-8250 301-495-3311
New York NY 10001
Denver CO 80207 303-233-6501Chicago IL 60606Milwaukee WI 53202-3823 (414) 272-6071
Schaumburg IL 60173 847-330-0230San Francisco CA 94120-7424 415-56-8500
Wheaton IL 60187 630-510-4552
Rosemont IL 60018-4262 847-823-7186
(301) 845-9887
Mundelein IL 60060-6038
San Francisco CA 94119-3832 (415) 561-8505
Alexandria VA 22314 703–299–9766
Tampa FL 33607-1796 813-636-8100
Washington DC 20001-1512 (202) 387-1968
East Detroit MI 48201-2227 586-776-3900
Lakeville MN 55044 952-469-5837
Smithtown NY 11787-0869 631-656-0537
Chicago IL 60631 847-827-9910 Atlanta GA 30329
Rocklin CA 95677-0850 916-632-0922
Alexandria VA 22311–1742
Chicago IL 60606-6995
Princeton Junction NJ 08550 310-237-5478West Hartford CT 06117-2507 860-586-7505
866-AFA-8484 (232-8484)
Tucson AZ 85751 520-733-1570
New York NY 10121 212-502-7600Bethesda MD 20814 301–654–2055
Calabasas CA 91301-1502Mt. Royal NJ 08061 856-423-0043
Chicago IL 60603-4539 (312) 726-9670
Dallas TX 75231-4596 214-373-6300
Lake Mary FL 32746–2012
Rockville MD 20852 301-881-3052New York NY 10006Washington DC 20004 202-785-3355
Northampton MA 01061-0515 413-268-7660
Maryville TN 37801 865-238-5842
Rosemont IL 60018 847-698-4654
Kirksville MO 63501 660-665-2184
Staten Island NY 10305 718-981-8001
Atlanta GA 30359 713-493-7749
Bethesda MD 20814-1621 301 581 9200
Irving TX 75038 972-550-1040
Harrison ME 04040-0875 207-583-4589 Cleveland OH 44106 216-229-8600
New York NY 10010 212-889-4858
Wilmington DE 19801
1–888–655–IRON (4766) or 407–829–4488
Washington DC 20002-3695 202-644-9204
Birmingham AL 35216-2809 205-978-5000
Rockville MD 20850-3289 301-296-5700
Dallas TX 75231 888-478-7653
Longview TX 75606-1586 800-272-7282
Falls Church VA 22041
Washington DC 20036 202-367-1167 Linthicum MD 21090 410–689–3990
Miami FL 33101-6880 305-326-6377Clearwater FL 33758
Las Vegas NV 89136 702-769-9264
Knoxville TN 37915 865-524-8772
03 9001 9312
Clarkston MI 48346
Wood Dale IL 60191 847-350-7540
Calabasas Hills CA 91301-5104
Jackson WI 53037 262-339-2733
Aurora IL 60504 630-978-4245
Norfolk VA 23517 757-623-0615
Memphis TN 38163 (901) 448-23800161 207 8337
1–800–THYROID (849–7643) or 703–998–8890
800-782-4747 (patient hotline)800-267-4ALS (800-267-4257)
New York NY 10018 212-643-1221
Shawnee Mission KS 66225-6304 913-839-8083
Rockville MD 20850 (301) 279-7202
Richmond Hill, ON 905-780-0698
LaCrosse WI 54602-0801 608-782-2626
Encino CA 91426-1926 (800) ARM-2000
Kirkwood PA 17536 717-529-5555Atlanta GA 30357-0669
Lincolnshire PE11 9EY 0800 028 4447Salyersville KY 41465
Bogotá 57 1 250 46 45
Barcelona
Buenos Aires
Madrid 91 311 35 30
934296529-695835411-4334-4844, 5411-4343-2706
28009 Madrid Madrid 656679317
(571) 2740520
Marbella (Málaga) 952 816 434011 4777 7333
Madrid
598(2696) 1914
3182392561
Plainview NY 11803 516-933-4700
Radnor PA 19087 267-514-7221
Durant IA 52747 563-785-6038
New York NY 10065 212-605-3719
Milwaukee WI 53215
91 710 45 61 (mañanas)
333 83 30 93 34
0300 123 2790 (Office hrs, Mon-Thurs) or 0300 123 2799 (Out of hours)
+ 44 (0)1892 516076
414-385-7100 (US) and 519-679-8774 (Canada)
Pine CO 80470-0872 303-400-9040
Lexington MA 02420 781-275-1300
Colorado Springs CO 80962
Coconut Creek FL 33073
Bethesda MD 20814-3067 301-657-0881
New York NY 10016 212-252-8584 Durham NC 27701San Francisco CA 94118 415-831-8782
Larchmont NY 10538 850-273-6947
Reynoldsburg OH 43068 740-927-4298
+33 (0)6 60 65 00 91
800-5-HELP-AT (800-543-5728); 954-481-6611 0845 644 0606 or 020 7582 1444
+61 3 9584 7070
Burton OH 44021 440-834-0011 Silver Spring MD 20902 (765) 337-8683
508-994-4839
Beaumont TX 77726-2468 409-832-0788
Orlando FL 32814 407-895-0802
Bethesda MD 20814 301-215-9099Pullman WA 99163 509-332-6628
Hanover NH 03755-0727 603.643.2850
Los Angeles CA 90028
Royersford PA 19468
61 2 9437 5967
Atlanta GA 30328-4015 404-252-4107
Chicago IL 60607 312-986-8338
01258 817573 (evenings) 07889 211000 (mobile)
+44(0)20 7193 8921
Charlottesville VA 22906-6627
Clarksburg MD 20871Chicago IL 60654
0207 383 0266East Norwich NY 11732Denver CO 80221 601-942-2053
Alexandria VA 22314 703-548-1225
877-519-HOPE
01525 717536
Vancouver, BC V6B 3T5 604-853-0231
514-848-0503
905-826-3223
604-924-5130
New York NY 10024 212-873-4640
New Fairfield CT 06812 203-746-2436
877-262-2476 (toll-free)
Rolling Meadows IL 60008-8194
Chester NJ 07930 908-879-4039
DC 20036 202-659-9709
571-483-1780New York NY 10001
314-454-6093Seymour WI 54165
Cambridge MA 02139 857-222-5492
Chicago IL 60610 312-725-9769Plano TX 75074 800-250-5273
0800 731 6991Toronto, ON M4W 2V3
Newark NJ 07102
Washington DC 20036 202-496-5060
Vestal NY 13850 607-772-9666Charlotte NC 28222-0398 704-364-0466 London SW1E 5NE 0800 987 8988
920-833-7000 or 425-785-5836+44 01494 791 224
Chester PA 19013-4867 610-499-9264
Sands Point NY 11050
0
Swanton OH 43558 419-825-5575
Danville CA 94526 925-963-7122
Wake Forest NC 27587 919-610-0129Uniondale NY 11553 516-228-3565
Chicago IL 60606 312-357-4717
Pittsburgh PA 15209
Valencia CA 91355 1–877–679–8256
Santa Monica CA 90403 310-889-8611
Del Mar CA 92075
New York NY 10016 Pleasant Prairie WI 53158 866-694-2223
Tenafly NJ 07670
Dallas TX 75240 214-570-9099 Flourtown PA 19031 215-233-0808
800-442-7604; 516-684-4720
0800 652 3181 (toll free)
Cheshire CT 06410 203-272-2873
Granite Bay CA 95746-2123 916-797-3700
Boston MA 02114 617-227-3011
Norman OK 73070 405-550-2979
Valencia CA 91355
Bloomingdale IL 60108 866-671-2623
925-947-3825
Greensboro NC 27404 919-809-6779
519-758-0847
Springfield MA 01109-2110 413-781-2274
Short Hills NJ 07078 973-379-2690
San Antonio TX 78229
Santiago 02 3251262
705-268-3099
Fuquay-Varina NC 27526 919-567-8167
Boca Raton FL 33429 561-395-4252 Charlotte NC 28222-0398 704-365-2343
San Marino CA 91108 626-441-4118
01725 517 977
+44 (0) 121 212 3839
Southampton MA 01073-0671 413-862-3636
Geneva IL 60134 310-801-3450
513-636-2233
Cincinnati OH 45229 1-513-636-4200
New Orleans LA 70118-3013
Chapel Hill NC 27514-2820 919-933-9044
Chapel Hill NC 27599 919-966-2809
West Kennebunk ME 04094 207-281-2130
Forest VA 24551Cookeville TN 38501-8946
01202 .481161
Washington DC 20008-2304 202-362-9599
Culver City CA 90232
Issaquah WA 98027
Middlefield OH 44062
Washington DC 20005 202-628-0123
Oak Brook IL 60522-3696 630-990-0010
Catossa OK 74015
Union NJ 07083
Swanton OH 43558 (419) 825-5575
Margate City NJ 08402-1195 609-822-1572
0
Wexford PA 15090 724-940-0116
New York NY 10001 800-522-7222
020-74-86-0341Indianapolis IN 46260 317-844-5610
San Jose CA 95120 866-807-8965
Avon CT 06001
Pasadena CA 91125
425-427-0939 (Best time to call is between 6pm-9pm
800-223-8355 (Toll-free Support Line); 860-676-816
Austin TX 78720 512-761-4375Woodinville WA 98072-0516
Akron OH 44334
Witchita KS 67226 New York NY 10017
Olathe KS 66051
Farmingdale NY 11735 516-584-4156
Monkton MD 21111
Elk Grove IL 60007 847-367-7620
Hunt Valley MD 21031 410-785-7004
Boston MA 02110-3389 617-723-3674
Birmingham MI 48012 248-644-9014
Elkhorn WI 53121 414-342-7880
Bethesda MD 20814-5200 301-951-4422
Mountain View CA 94043 650-404-9975
Moraga CA 94556 925-631-1588
Irvine CA 92612 949-223-7610
Lake Forest IL 60045 847-735-0471Redmond WA 98053 425-868-2996
01925 654654
Kensington MD 20895
Mattituck NY 11952
848-228-CSFN (2736)
800-659-1991; 330-665-5590
307-END-CMD0(zero)
410-357-9932 (Outside U.S.)
Santiago 56 2 2228 6725San José 2120 506 2244 3318
Chicago IL 60654-7225
Suffern NY 10901
Pittsburgh PA 15217
West Seneca NY 14224
Lawrenceville NJ 08648 609-219-9449
Colorado Springs CO 80935-5224 (855) 366-7366
Madrid 34 917 160 710
Palo Alto CA 94304 (888) 731-5557
Baltimore MD 21239-6599
+43 1 876 40 30-0
Warwick RI 02889 401-737-3138
404-778-0553
Fayetteville NY 13066 855-dup-15qa
East Moriches NY 11940
Navarre FL 32566
Chicago IL 60601-1905 312-755-0198
New York NY 10004 212-868-1573
513-638-7931
Piedmont CA 94611 510-530-9600Coopersburg PA 18036 610-659-9870
06 856 5577
McLean VA 22102 703-506-28920208 736 5604
Muskego WI 53150 262-514-2851
Bethesda MD 20892-0001 301-495-4484
Golden CO 80403 720-217-2885
+44 (0)1653 699599
Firsco TX 75033
Cincinnati OH 45229-3039 513-636-2009
Beverly Hills CA 90211 650-804-4820
East Landover MD 20785-2238 301-459-3700
Wallingford PA 19086 610-566-0797
3216345860+31 24 3614017
0 313-174-23345
Bologna 40123
0161 276 3202
West Des Moines IA 50265 515-276-1836
Novato CA 94949 415-884-0223
0113 210 8800 (UK) or +44 (0)113 210 8800 (international)
011 353 45 401218
003-56 -21 346688
+390512092929
(34) 93 451 5950
33 1 56 53 52 10
Concordia MO 64020-0510 660-463-1355Chattanooga TN 37401 423-266-1632
San Francisco CA 94104 415-434-3388
Eugene OR 97401 541-687-4658
Glenview IL 60025
Bogotá
910 828 820
Barcelona 93 451 65 44
Madrid 91 7398040
511 795 0304
Littleton CO 80127 303-932-0553
(+57-1) 520 53 76
Corvallis OR 97330 617-577-9050Greenwich CT 06830 203-862-3196
Tucson AZ 85751–1750
Washington DC 20003
Richmond VA 23226 804-515-0080
Harmony NC 28634 336-492-2641
Gilbert AZ 85296
New York NY 10006 212-349-2910
Okemos MI 48805-0054 517-381-1940
Tampa FL 33647
Columbia MD 21046
Downers Grove IL 60515-0608
Colmar PA 18915 215-997-9400
Auburn WA 98092
Los Angeles CA 90036 760-536-3027
Northbrook IL 60062 224-927-5063Chicago IL 60603 312-341-0500
Newburyport MA 01950 (978) 462-1866 Salt Lake City UT 84103 (801) 364-7060
Springfield VA 22151 (703) 426-1576
800–853–2929 (free of charge)
866-FOCUS-50 (866-362-8750)
410-423-0600 (local)630-852-FAST (3278)
West Palm Beach FL 33412 561-253-8061
0870 8470707
San Antonio TX 78209 210-824-9510
Lexington MA 02420 617-669-1706
Barcelona España 34 932 157 423
Asturias 985 176 15Bogotá 1 7037833
Zaragoza 634 238 004
Buenos Aires 011 4988 0531
678 704 625
Alicante
Mandeville LA 70470-2401
403-247-3215
Narberth PA 19072 610-667-0131Washington DC 20008-2369 202-966-5557
Fort Worth TX 76162
Redwood City CA 94063 650-723-6316
5411 15 2192 9717
(54) 261 4291987 | 0800 333 3353
965424866-69546
Hoffman Estates IL 60169
New City NY 10956
San Francisco CA 94108 415-986-3162
Tulsa OK 74135 347-470-4373
Aliso Viejo CA 92656
573-280-2412
Las Vegas NV 89136 702-769-9264
Williamsville NY 14221 Baltimore MD 21287 410-614-0977
Rochester MN 55905 507-284-9094
Madrid
San Diego CA 92121 858-638-7638
Harrison MI 48625
Rexford NY 12148 518-383-9053
0
Chicago IL 60611-2637 (312) 337-2169
Bethesda MD 20814 301-657-2248Washington, DC DC 20005 202-464-3400
847-885-PLAY (7529)845-634-6060 or 845-634-1174
949-248-RARE (7273)
1–877–643–3123
Los Gatos CA 95031 888-908-4263
Medfield MA 02052
New York NY 10032 212-928-2172Boston MA 02135-7787
New York NY 10128 212-722-8396
Oyster Bay NY 11771-1905
Santa Barbara CA 93101
Long Beach CA 90803 877-621-1122
Torrennce CA 90509 310-781-1396
Atlanta GA 30322 404-785-1390
Pitman NJ 08071 856-589-6606250-764-6104
0 TQ2 7JQ 01803 401018
Waddell AZ 85355Springtown TX 76082
Glen Head NY 11545
Orchard Park NY 14127 716-667-1200 519-749-7063
New York NY 10018 (212) 242-1968
San Francisco CA 94102 415-732-7040
617-277-5667 ext. 709
Idaho Falls ID 83403 208-524-3857
Abilene TX 79604-0514
Shelburne Falls MA 01370 413–625-9339800-100-198
Towson MD 21230
New York NY 10021 212 452-1231
Arlington VA 22209 703-299-0200
Bethesda MD 20892-9760
+39 382 380236
Santa Fe NM 87508 505-424-7947
West Philadelphia PA 19141 215-456-8722
250-320-5877 or 778-989-1210
+91-9854904063
Fort Collins CO 80527-1004 970-204-0031
+32-2-5385511
Milwaukee WI 53202 414-276-3349
Lenexa KS 66285-4005 913-341-3880
Winter Springs FL 32719 407-365-4194
Wadsworth OH 44282 330-612-2751
Milwaukee WI 53217 414-964-1799
Cornwall NY 12518 845-534-7250
Port Washington NY 11050
Orlando FL 32806
31-573-431595
Quakertown PA 18951 610-346-6008Bethesda MD 20827 301-263-1080
North Hollywood CA 91607-3421 818-487-7455
+ 44 (0)20 7602 6925
(044) 1233 64 81 70
+41 22 994 0100
Cincinnati OH 45229 513-636-8265
Sacramento CA 95825 916-922-1298
39 0444 555557
Alexandria VA 22304 703-913-4787
Harrisburg PA 17110 717-260-9808
Cincinnati OH 45246 513-874-3020
Edina MN 55435-4702 952-583-5735
Brookline MA 02446 617-277-0551
Panama City FL 32404 (850) 871-6656
Allen Park MI 48101
Sarasota FL 34238 941-927-4963
Rockville MD 20850 301–610–5300
Vancouver WA 98661 360-693-4473
Lewisville NC 27023 336-96-1570
Taylors SC 29687
Darien CT 06820 203-655-6954
44-01503-250-668
39 0382 526284 or 39 0382 501385
Bellevue WA 98005 425-882-1492
New York NY 10017 212-819-0200
Highlands Ranch CO 80163 303-683-1508 New York NY 10018 212-362-4675
Los Angeles CA 90025 310-445-4650
Ponte Vedra Beach FL 32004Rockville MD 20850 614-864-1362
Cincinnati OH 45215 (614) 864-1362
New York NY 10005–4001
San Pedro CA 90731 310-519-9511306-543-8715
Ipswich MA 01938 978-356-2070024 7661 2178
Coarsegold CA 93614-1105 559-658-5950
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