HOMEWORK REVIEW

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PROJECT LEADERSHIP: CHAPTER 2

PROJECT LEADERSHIP: CHAPTER 2

Rules of the Road:Systems, Laws, and Entitlements

PURPOSE

To learn about:

How policies are made

Important laws and public systems

Making the link between individual advocacy and public policy advocacy

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HOW POLICIES ARE MADE

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GLOSSARY OF TERMS

Appropriation Entitlement Programs Family-Centered Care Laws Legal Mandate Regional Centers Regulations Statutes 8

WHAT IS POLICY?

Policies vs. laws

Everyday examples of policies

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POLICY BREAKDOWNS

Is the problem related to:

Intent or language of the law?

Regulation or ruling that tells how a law is to be implemented?

Implementation of the policy?

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IMPLEMENTING POLICIES

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Policy

Regulation

Implementation

GOVERNMENT POLICY LANDSCAPES

LegislativeFederal: Senate and House of RepresentativesCA State: Senate and Assembly

Executive Federal: Departments and AgenciesCA State: CA State Departments and Agencies

JudicialFederal: Federal CourtsCA State: State Courts

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GOVERNMENT POLICY LANDSCAPES

Local County: Boards of Supervisors, County

Commissions, County Departments

City: City Councils, Departments, Commissions Planning Councils

Agency: Boards, Councils, Departments, Committees

Regional: Councils of Governments13

IMPORTANT LAWS AND PUBLIC SYSTEMS

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This slide is from the Health Care in Transition presentation by Dr. Ann Kuhns, California Children’s Hospital Association

PUBLIC PROGRAMS FOR CHILDREN

Title V CSHCN ProgramsCalifornia Children’s Services (CCS)

MedicaidMedi-Cal

SSI for Children

CHIP/SCHIP Healthy Families Medi-Cal 16

LAWS PERTAINING TO CHILDREN

Section 504

Individuals with Disabilities Education Act (IDEA)

Lanterman Act

Family-School Partnership Act

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IDEA Part C(birth to 3 yrs)

FEDERAL

California Department of Developmental Services

(DDS)

Regional CentersCalifornia Early Start

LANDSCAPELegal Mandates & Agencies Responsible for Services

for Children with Special Health Care Needs

REGIONAL CENTER and CA EARLY START

California Lanterman

Act(3yrs and up)

STATE

LOCAL

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Title V Maternal & Child Health(birth to 21 years)

FEDERAL

California Medical Services Branch (CMS), Dept. of Health Care Services

(DHCS)

California Children’s Services (by county)

LANDSCAPELegal Mandates & Agencies Responsible for Services

for Children with Special Health Care Needs

California Children’s Services

STATE

LOCAL

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Family Feud

MAKING THE CONNECTION:FROM INDIVIDUAL TO PUBLIC POLICY ADVOCACY

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MAPPING OUR SYSTEMS

What services and systems do you or your family members use?

Which of those are services?

Which of those are systems?

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INDIVIDUAL ADVOCACY

Being an individual advocate means working, speaking, writing, andproblem solving; and finding solutions

and resources to ensure you and your family’s needs are met.

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INDIVIDUAL ADVOCACYExamples:

Find information & support Keep records Choose a health plan Find the right primary care physician Practice partnerships Negotiate your coverage/health plan Practice self care 28

PUBLIC POLICY ADVOCACY

Sometimes individual advocacy is not enough.

When programs and the policies that guide them do not support the family-centered care philosophy, you get inspired to make things work better.

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STRATEGIES TO BECOME A PUBLIC POLICY ADVOCATE:

Know the law and its intent. Keep track of opposing arguments. Be familiar with pros and cons of policies. Understand different agendas and establish

common ground. Build a core group of allies and other

advocates. Propose alternate solutions. Provide input on policies. Inform general public about the issue. 31

CHANGING THE SCOPE OF FOCUS

Individual experience is your best tool for becoming a public policy advocate!

Examples of advocacy focus:- Family-centered - Coordinated- Responsive - Culturally competent

- Flexible

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Individual

Public policy regarding individual issue

System-wide approach

PARTNERS AND ALLIES

Find partners to help you!

Possible partners• Primary Care Physicians• Organizations• Parent Groups• Legislators

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BE INFORMED Talk to other families about their experiences.

Get on the mailing list of an advocacy group focused on your issue (or start your own!) Examples:

FVCA to subscribe, email: FVCAFamAdv-subscribe@yahoogroups.com

The California Advocacy Network for Children with Special Health Care Needs (LPFCH) http://www.lpfch.org/programs/cshcn/collaborative.html

Research your issue in the media – look for articles, reports, and statistics.

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TAKING THE NEXT STEP:

Volunteer at an Independent Living Resource Center, Family Resource Center, or other advocacy organization.

Attend a conference or public meeting about an issue of interest to you.

Organize a meeting with some potential allies.

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MAKE A COMMITMENT!

Set specific goals.• Both long-term and short-term• Incremental and overall

Set up a concrete timeline with deadlines.

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Chapter 2 Review

HOMEWORK

Action Planning Template: Allies, Opposition, Laws/Policies, Statistics/Data, and Relevant Reports/Articles boxes

Fill in the blanks: Systems & Services worksheet

Complete some portion of the Make a Commitment worksheet

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EVALUATION

PurposeoTo get feedback on the effectiveness of this training

oTo identify what participants are learning

oTo find areas that can be improved

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