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To Support Caregiving Youth Dr. Connie Siskowski February 25, 2014 BREAKING THE BARRIERS 1

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Page 1: 1 BREAKING THE BARRIERS · 2014-02-18 · Trends - Caregiving At least 65.7 million adult family caregivers and 1.3 million child caregivers in the United States (Caregiving in the

To Support Caregiving Youth

Dr. Connie Siskowski

February 25, 2014

BREAKING THE BARRIERS 1

Page 2: 1 BREAKING THE BARRIERS · 2014-02-18 · Trends - Caregiving At least 65.7 million adult family caregivers and 1.3 million child caregivers in the United States (Caregiving in the

Trends - Population is Changing

Economic influences Women working Single parent & multi-generation households Grandparents as parents Health care/long term care system

Increased home care Increased complexity of care in home Cultural variances

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Page 3: 1 BREAKING THE BARRIERS · 2014-02-18 · Trends - Caregiving At least 65.7 million adult family caregivers and 1.3 million child caregivers in the United States (Caregiving in the

Trends - Caregiving

At least 65.7 million adult family caregivers and 1.3 million child caregivers in the United States (Caregiving in the US, 2009; Young Caregivers in the US, 2005)

Adult family caregivers contribute $450 billion each year in services – will increase as population ages (Estimating the Impact of Caregiving and Employment on Well-Being, 2010

Family Caregiving – National Health Priority (CDC – 2008)

37% of caregivers have children younger than 18 years of age – little is known about their role (Caregiving in the U.S. – 2004)

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Page 4: 1 BREAKING THE BARRIERS · 2014-02-18 · Trends - Caregiving At least 65.7 million adult family caregivers and 1.3 million child caregivers in the United States (Caregiving in the

Help from Media – CNN Top Ten Hero 4

http://www.cnn.com/video/#/video/us/2012/12/05/cnnheroes-tribute-siskowski.cnn-heroes

Page 5: 1 BREAKING THE BARRIERS · 2014-02-18 · Trends - Caregiving At least 65.7 million adult family caregivers and 1.3 million child caregivers in the United States (Caregiving in the

Who Do They Help?

In the United States 38% care for grandparent 34% parent 11% sibling 9% other relative 8% non-relative

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Page 6: 1 BREAKING THE BARRIERS · 2014-02-18 · Trends - Caregiving At least 65.7 million adult family caregivers and 1.3 million child caregivers in the United States (Caregiving in the

What Do They Do?

U.S. study – 50% reported to help with ADL’s: Bathing, Dressing Transferring/mobility assistance Toileting, Continence care Feeding

Other Administer medication Shopping, housework, meal preparation,

childcare

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Page 7: 1 BREAKING THE BARRIERS · 2014-02-18 · Trends - Caregiving At least 65.7 million adult family caregivers and 1.3 million child caregivers in the United States (Caregiving in the

What Do They Do?

U.S. study – 50% reported to help with ADL’s: Bathing, Dressing Transferring/mobility assistance Toileting, Continence care Feeding

Other Administer medication Shopping, housework, meal preparation,

childcare

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Page 8: 1 BREAKING THE BARRIERS · 2014-02-18 · Trends - Caregiving At least 65.7 million adult family caregivers and 1.3 million child caregivers in the United States (Caregiving in the

Why be Concerned?

Academic Challenges Physical Strain & Somatization Emotional Distress Socialization Impacts Childhood Lost

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Page 9: 1 BREAKING THE BARRIERS · 2014-02-18 · Trends - Caregiving At least 65.7 million adult family caregivers and 1.3 million child caregivers in the United States (Caregiving in the

Support Services

In School At Home Out of School Continuing Care

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Page 10: 1 BREAKING THE BARRIERS · 2014-02-18 · Trends - Caregiving At least 65.7 million adult family caregivers and 1.3 million child caregivers in the United States (Caregiving in the

Evaluation – Internal & External

Reduced isolation – no longer alone Positive dyad results – student’s feedback matched

with family Improved grades – progress to next grade and

graduate Increased confidence in caregiving and personally Skills Building/Support Groups

91% of 114 students agreed or strongly agreed that they are using skills learned in group

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Page 11: 1 BREAKING THE BARRIERS · 2014-02-18 · Trends - Caregiving At least 65.7 million adult family caregivers and 1.3 million child caregivers in the United States (Caregiving in the

Number/Student Cared For

2009-10 – 277 Family Members 2012-13 – 392 Family Members

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0

10

20

30

4050

60

264 Youth

One Person(n=136)Two People(n=94)Three or >People (n=34)

0

10

20

30

40

50

60

193 Youth

One Person(n=115)Two People(n=72)ThreePeople (n=6)

Page 12: 1 BREAKING THE BARRIERS · 2014-02-18 · Trends - Caregiving At least 65.7 million adult family caregivers and 1.3 million child caregivers in the United States (Caregiving in the

CYP Eligibility Results 2013 12

Page 13: 1 BREAKING THE BARRIERS · 2014-02-18 · Trends - Caregiving At least 65.7 million adult family caregivers and 1.3 million child caregivers in the United States (Caregiving in the

Nov. 15, 2013 - Chris Miller Diane Sawyer’s Person of the Week

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http://abcnews.go.com/WNT/video/young-caregiver-races-home-school-day-care-grandma-20907196?tab=9482931&section=4

Page 14: 1 BREAKING THE BARRIERS · 2014-02-18 · Trends - Caregiving At least 65.7 million adult family caregivers and 1.3 million child caregivers in the United States (Caregiving in the

What can YOU do?

Raise awareness about caregiving youth Bring support to caregiving youth in Florida Work for system change and collaboration between

healthcare, education and the community Assist AACY to find funding to expand services – no

child should have to drop out of school to care for a family member

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Page 15: 1 BREAKING THE BARRIERS · 2014-02-18 · Trends - Caregiving At least 65.7 million adult family caregivers and 1.3 million child caregivers in the United States (Caregiving in the

THANK YOU!

www.aacy.org

561.391.7401 [email protected]

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