12 june 2012 due data – improving midwives’ use of data and access to information julie...

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12 JUNE 2012 DUE DATA – IMPROVING MIDWIVES’ USE OF DATA AND ACCESS TO INFORMATION JULIE TINDALE-MIDWIFE Maternity Data Update on issues

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12 JUNE 2012

DUE DATA –

IMPROVING MIDWIVES’ USE OF DATA AND ACCESS TO

INFORMATION

JULIE TINDALE-MIDWIFE

Maternity DataUpdate on issues

Julie Tindale : Heart of England NHS Foundation Trust

Biog:

Clinical Midwife-

Lead for Information and Communications for Women’s Health

Governance Dept

• Member of CCIO Leaders Network Advisory Group

• Chair NN4B Closure Programme working Group

• Member of Maternity Dataset (MCDS) Implementation Group

• Member of National Nursing (and midwifery)Informatics Strategic

Taskforce (NNIST)

• 4 years as National Clinical Lead for Midwifery – DH Informatics

Directorate (DHID) and Connecting for Health (Feb 2008 to Apr 2012)

Due Data

Overview:

NN4B

MCDS (Maternity and CYPHS and CAMHS)

PbR and Metrics

Clinical Information Systems

Leadership- A Maternity CCIO-how do we progress?

12/06/2012

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Julie Tindale : [email protected]

NHS Number for All Babies born in England

NHS Number for All Babies born in England

Electronically Since October 2002

Electronically Since October 2002

1. Contract ends June 2014 (was 2013)

2. The software is now very out of date

3. Previous expectation Trusts would all be PDS compliant now

4. INNS was a temporary solution only

1. Renegotiation of business contracts on-going with BT

2. Trusts are not all PDS compliant

3. Trusts expected to have a working clinical maternity information system

Maternity Data: NN4B

12/06/2012

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Julie Tindale : [email protected]

Maternity Data: NN4Bhttp://www.connectingforhealth.nhs.uk/systemsandservices/nhsnumber

System Providers are engaged with the CFH team

Early adopters based in Manchester : Silverlink for Maternity and iSoft for Child Health systems

Maternity services to provide a Clinical Lead as focus for communications / compliance

Regular updates are circulated- when there is news/progress

Website is updated with information

Contact : for further information

[email protected]@nhs.net

12/06/2012Julie Tindale : [email protected]

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MDSMDS CYPHS and CAMHS

CYPHS and CAMHS

Maternity Units – including a Midwifery clinical lead!

Units must be working with their Data management departments to ensure the correct definitions working

Child Health units must be working with their Data management departments to ensure the correct definitions working

Mental health systems also need to adjust definitions and consider data capture methods

Maternity data: MCDS June 2013http://www.ic.nhs.uk/maternityandchildren/maternity

12/06/2012

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Julie Tindale : [email protected]

Approved by ISB

Maternity data: MCDShttp://www.ic.nhs.uk/services/maternity-and-childrens-data-set/maternity-services-secondary-uses-data-set

Key Areas Routine Booking Appointment activities Maternity Care Plans Dating Scan Antenatal Screening Tests Structural Fetal Anomaly Screening Labour & Delivery Postnatal Demographics Newborn Screening Maternal and Neonatal Death

12/06/2012Julie Tindale : [email protected]

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Maternity data: MCDShttp://www.ic.nhs.uk/services/maternity-and-childrens-data-set/children-and-young-peoples-health-services-cyphs-secondary-uses-data-set

Children and Young People's Health Services (CYPHS) Secondary Uses Data Set Key areas

Personal and demographic Social and personal circumstances Relationships and household Breastfeeding and nutrition Care event Screening activity Inpatient stays Observations of BMI

12/06/2012Julie Tindale : [email protected]

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Maternity data: MCDShttp://www.ic.nhs.uk/maternityandchildren/CAMHS

CAMHS key AreasReferrals to CAMH services Demographics Background and Family history Targeted needs Encounters Care planning and Interventions Outcome measures Inpatient stays Presenting problems and diagnoses

12/06/2012Julie Tindale : [email protected]

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Maternity data: MCDS Benefits

The Information will flow real time to a national data warehouse reducing burden on service delivery organisations

Information will use same definitions- comparators will be more robust

Babies/ Children records directly linked to Mother’s pregnancy record* Outcomes directly linked with significant events in

pregnancy and deliveryRecords for subsequent pregnancies and deliveries for the

same mother will be linkedPowerful for public health: Smoking history linked to

outcome trends, Breastfeeding prevalence and persistence

12/06/2012Julie Tindale : [email protected]

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Maternity data: PBR mailto:http://www.dh.gov.uk/health/2012/04/guidance-maternity-services/

STANDARD INTERMEDIATE AND INTENSIVE

Pathway payment system to be introduced in shadow from April 2012

Payment split into 3 modules antenatal care; birth spell to discharge; postnatal care

Each module split into pathway levels by intensity of care needed; based on a woman’s characteristics and factors

Estimation of onset of conditions during pregnancy to enhance pricing

12/06/2012Julie Tindale : [email protected]

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Maternity Data :PbRhttp://www.dh.gov.uk/health/2012/04/guidance-maternity-services/

12/06/2012Julie Tindale : [email protected]

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Antenatal Births Postnatal

Standard £1,12665.5% of casemix

£24364.2% of case Mix

Intermediate

£1,80327.3% of case Mix

£30735.0% of Case Mix

Intensive £3,0007.1% of case Mix

£8250.8% of Case Mix

With CC £2,434 28.6% of case mix

Without CC £1,506 71.4% of case mix

IssuesIssues Solutions?Solutions?

12/06/2012Julie Tindale : [email protected]

Finding an up-to-date system that has a support department that is able to ‘speak Maternity’

What does the best of breed maternity system look like?

Sharing best practiceSignposting to

systems that workLocal networks

choosing shared or collaborative systems

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Maternity Data :Clinical Information Systems

Access for service usersAccess for service users Solutions?Solutions?

12/06/2012Julie Tindale : [email protected]

Health Bill: No decision about me without me

Information strategy: access to own medical records

Data sharing & securitySchedulingLearning Disability, Language

difficulty and equality

Access for laboratory and diagnostic results

RedBook on linePregnancy records on

lineNavigation of

proliferation of on-line pregnancy and birth advice

A Role for Information ‘Observatories’?

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Maternity Data :Clinical Information Systems

Chief Clinical Information Officer for Maternity

12/06/2012Julie Tindale : [email protected]

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(Discussion)How to grow the future leaders for

Information and CommunicationsInformatics is not IT Information and Communications is key-

Better Safer Care?Sharing for better safer services- Local and

Regional Collaboration?Who speaks for front line midwives who are

‘drowning’ under weight of the Data requirements, old equipment, no equipment?