1 . 2017 International Vasculitis Symposium Schedule Vasculitis Foundation . Providing Support . Awareness . Research

2017 INTERNATIONAL VASCULITIS SYMPOSIUM JUNE 23-25, 2017Chicago Marriott O’Hare | 8535 West Higgins Road, Chicago, Illinois 60631 LEARN. CONNECT. ENGAGE.

VASCULITIS SYMPOSIUM2017

Chicago, Illinois, USA June 23-25

INTERNATIONAL

REGISTRATION FEEThe Registration fee includes meals (Friday afternoon break, evening dessert reception, Saturday breakfast, morning break, lunch, afternoon break, banquet, Sunday breakfast and morning break), educational materials, handouts and admittance to educational sessions and exhibit area, refreshment breaks and a VF Symposium 2017 t-shirt!

US $200 for VF membersUS $230 for non-VF members

Please contact the VF office to confirm your membership status.Register online: https://goo.gl/u5SBeXOr, call the VF office to register by phone: 816.436.8211Pre-registration is required! The deadline for registering is Saturday, June 17, 2017.

Hotel Headquarters:Chicago Marriott O’Hare, 8535 West Higgins Road, Chicago, IL 606313 miles from O’Hare International AirportRoom block available June 21 – 26, 2017 (Room block is limited so book now.)Room Rate: $119 per night plus taxes (Deadline is May 31, 2017 to reserve under VF room block)Reserve online: http://www.marriott.com/hotels/travel/chiap-chicago-marriott-ohare/Phone: 773.693.4444Note: Pediatric Patients: Only pediatric vasculitis patients are permitted to attend symposium sessions and a parent or legal guardian must accompany any patient 15 years of age or younger to the sessions.

10:00 a.m. - 8:00 a.m.

INFORMATION DESK OPEN

1:00 p.m. - 1:45 p.m.

BREAKOUT SESSION IPlease choose one session to attend:

Breakout Session

Vasculitis 101For Newly Diagnosed Patients – How to Symposium!

Alex Villa-Forte, M.D., Cleveland Clinic

Breakout Session

Vasculitis 201Experienced Patients - What’s New for You?

Peter A. Merkel, M.D., University of Pennsylvania

Breakout Session

Pediatric Vasculitis – Parents & Children (this session will meet from 1:00 - 4:00 p.m.)

Marinka Twilt, M.D., The University of Calgary, Pediatrics RheumatologyLinda Wagner-Weiner, M.D., University of Chicago Pediatrics RheumatologyMarisa S Klein-Gitelman, M.D., Northwestern University Pediatrics Rheumatology

2:00 p.m. - 4:00 p.m.

BREAKOUT SESSION IIOverview of Specific DiseasesThese sessions provide the opportunity for patients diagnosed with the same types of vasculitis to gather in smaller groups for discussions on treatments and side affects with our vasculitis experts. All of the sessions will include time for Q&A. The final groups will be arranged based on the number of attendees. Please choose one session to attend:

Breakout Session

Behcet’s DiseaseYusuf Yazici, M.D., NYU Langone Medical CenterRob Micheletti, M.D., University of Pennsylvania

Breakout Session

Eosinophilic granulomatosis with polyangiitis (Churg-Strauss Syndrome)

Paul Monach, M.D., Ph.D., Boston University Antoine Sreih, M.D., University of Pennsylvania

2017 International Vasculitis Symposium Preliminary Schedule | FRIDAY, JUNE 23, 2017

Breakout Session

Giant cell arteritis/Polymyalgia Rheumatica/Takayasu’s arteritis

Tanaz Kermani, M.D., University of California - Los AngelesJason Springer, M.D., University of Kansas

Breakout Session

Granulomatosis with polyangitiis (GPA/Wegener’s) Geetha Duvuru, M.D., Johns Hopkins University Robert Lebovics, M.D., FACSPeter A. Merkel, M.D., University of Pennsylvania

Breakout Session

Microscopic polyangiitis (MPA)Patrick Nachman, M.D., University of North CarolinaAnisha Dua, M.D., University of Chicago

Breakout Session

Orphan Vasculitides: Cogan’s syndrome, Cryoglobulinemic vasculitis, IgA vasculitis (Henoch-Schönlein purpura), Primary central nervous system vasculitis, Polyarteritis nodosa, Urticarial vasculitis and other cutaneous vasculitis Alex Villa-Forte, M.D., MPH, Cleveland Clinic Vasculitis Clinic

4:15 p.m. - 5:00 p.m.

BREAKOUT SESSION III - Special InterestsPlease choose one session to attend:

Breakout Session

Introducing the Northwestern Vasculitis ClinicAmy Archer, M.D., Northwestern University Memorial Hospital

Breakout Session

Parents’ Meeting without PatientsMarinka Twilt, M.D., The University of Calgary, Pediatrics RheumatologyLinda Wagner-Weiner, M.D., University of Chicago Pediatrics RheumatologyMarisa S Klein-Gitelman, M.D., Northwestern University Pediatrics Rheumatology

Breakout Session

Social Media Round Table for FaceBook Vasculitis Group Moderators

Friday Schedule continued on page 2

2 . 2017 International Vasculitis Symposium Schedule www.VasculitisFoundation.org

FRIDAY SCHEDULE continued from page 6

Schedule continued on page 3

Breakout Session

Young Adults (15-22) – patients only, no parents/guardians

Allison Lint, Ben Wilson, Brandon Hudgins (moderators)

Breakout Session

Youth Moviemaking without their ParentsEd Becker, Vasculitis Foundation

5:00 p.m. DINNER WITH YOUR FELLOW ATTENDEES! Groups will be organized for attendees wishing to have dinner with other people with the same form of vasculitis. The Rosemont’s Mini Mile of Entertainment offers a variety of restaurants! www.Rosemont.com

7:30 p.m. DESSERT RECEPTIONWelcome and Introductions and Keynote AddressJoin us for dessert and the opportunity to visit with other attendees and hear a positive and powerful talk about living well with vasculitis.

PRELIMINARY SCHEDULE | SATURDAY, JUNE 24, 2017

6:00 a.m. Sunrise Yoga

7:00 a.m.- 8:00 a.m.

Continental Breakfast

8:00 am. - 11:00 a.m.

MORNING SESSION IN THE BALLROOM

Welcome and IntroductionsKaren Hirsch, President, VF Board of Directors

Practicing Mindfulness James Sosebee, Sinclair College

Dermatology/Skin Involvement in Vasculitis and the 2017 ARAMIS Study

Robert Micheletti, M.D., University of Pennsylvania

Research and Fellowship Advances Funded by the Vasculitis Foundation

Jason Springer, M.D., University of Kansas

Pain Management and Health PromotionPaul Monach, M.D., PhD., Boston University

The Role of Genetics in VasculitisSharon Chung, M.D., MAS, University of California - San Francisco

11:00 a.m. - 12:00 noon

BREAKOUT SESSION IVPlease choose one session to attend:

Breakout Session

Ear/Nose/Throat Involvement in VasculitisRobert Lebovics, M.D., Head & Neck Surgical Group

Breakout Session

Inflammatory Eye DiseaseAnjum Koreishi, University of Chicago

Breakout Session

Kidney Involvement in VasculitisGeetha Duvuru, M.D., Johns Hopkins UniversityPatrick Nachman, M.D., University of North Carolina

Breakout Session

Practicing Mindfulness: Hands-on PracticeTanaz Kermani, M.D., University of California - Los Angeles

Breakout Session

Steroids 101Amy Archer, M.D., Northwestern University Memorial Hospital

12:00 p.m - 1:00 p.m.

LUNCH

1:00 p.m. - 1:45 p.m.

Vasculitis Patient-Powered Research Network (V-PPRN) Update & Q&A

Peter A. Merkel, M.D., MPH, University of PennsylvaniaGeorge Casey, MBA, Co-InvestigatorKalenYoung,V-PPRN Network Manager

2:00 p.m. - 2:45 p.m.

BREAKOUT SESSION V - New Disease Specific Therapies and Research For:Please choose one session to attend:

Breakout Session

Eosinophilic granulomatosis with polyangiitis (Churg-Strauss Syndrome)

Paul Monach, M.D., Ph.D., Boston University

Breakout Session

Giant cell arteritis/Polymyalgia Rheumatica/Takayasu’s arteritis

Tanaz Kermani, M.D., University of California - Los AngelesJason Springer, M.D., University of Kansas

Breakout Session

Granulomatosis with polyangitiis (GPA/Wegener’s) and Microscopic Polyangiitis

Ulrich Specks, M.D., Mayo Clinic

Breakout Session

Orphan Vasculitides: Cogan’s syndrome, Cryoglobulinemic vasculitis, IgA vasculitis (Henoch-Schönlein purpura), Primary Central Nervous System vasculitis, Polyarteritis nodosa, Urticarial vasculitis and other cutaneous vasculitis

Alex Villa-Forte, M.D., MPH, Cleveland Clinic Vasculitis Clinic

2:45 p.m. - 3:00 p.m.

AFTERNOON BREAK

3:00 p.m. - 3:45 p.m.

BREAKOUT SESSION VI -Please choose one session to attend:

Breakout Session

Balancing Life, Work and Vasculitis3-Patient Panel

Breakout Session

Caregiving for Family Members Juggling Family, Career, and Vasculitis(This sessions is for family members only, no patients please)

Jeff Fishbein, Psy.D., and Sharyl Fishbein

Breakout Session

Caregiving for Pediatric Patients(This session is for parents and guardians only, no patients please)

Marinka Twilt, M.D., The University of Calgary

Breakout Session

Is it Time for DisabilityTeri Bodeman, Benefit Boost, Inc.

Breakout Session

Lung Involvement in Vasculitis Ulrich Specks, M.D., Mayo Clinic

4:00 p.m.- 4:45 p.m.

BREAKOUT SESSION VII Please choose one session to attend

Breakout Session

Caregiving for Senior Citizens(This session is for family members only, no patients please)

Jeff Fishbein, Psy.D., and Sharyl Fishbein

Breakout Session

Fertility Considerations for Patients with Vasculitis

Breakout Session

ANCA Associated Vasculitis Research ReportDivi Cornec, M.D., Ph.D., Mayo Clinic

Breakout Session

Pediatric Patients & Parents/Guardians Check-inMarinka Twilt, M.D., The University of Calgary

6:00 p.m. CELEBRATION AND RECOGNITION BANQUET

PRELIMINARY SCHEDULE | SUNDAY, JUNE 25, 2017

7:00 a.m. - 8:00 a.m.

Continental BreakfastVasculitis Foundation Annual Membership Meeting

8:00 a.m. - 8:30 a.m.

Vaccinations and VasculitisEric Ruderman, M.D., Northwestern University Memorial Hospital

8:30 a.m. - 9:00 a.m.

NutritutionSpeaker to be announced

9:00 a.m. - 9:30 a.m.

2017 ANCA Workshop UpdateAnisha Dua, M.D., University of ChicagoAntoine Sreih, M.D., University of Pennsylvania

9:30 a.m. - 10:00 a.m.

MORNING BREAK

10:00 a.m. - 11:30 a.m.

The Future for Patients: What is Ahead? Research as Self-Care

Peter A. Grayson, M.D., NIH, NIAMSPeter A. Merkel, M.D., University of Pennsylvania

11:30 a.m.- 11:45 a.m.

Wrap-Up and Good byeKaren Hirsch, President, VF Board of Directors

3 . 2017 International Vasculitis Symposium Schedule Vasculitis Foundation . Providing Support . Awareness . Research

Symposium Speakers List Amy Archer, MD . Northwestern University George Casey, MBA . V-PPRN Co-InvestigatorSharon Chung, MD . University of California - San FranciscoGeetha Duvuru, MD . Johns Hopkins UniversityAnisha Dua, MD . University of ChicagoJeff Fishbein, PsyD . Fishbein & Associates, Performance ConsultingSharyl FishbeinPeter Grayson, MD . NIAMS Translational Research ProgramTanaz Kermani, MD . University of California - Los AngelesAnjum Koreishi . University of ChicagoCarol Langford, MD . Cleveland Clinic Robert Lebovics, MD . Head & Neck Surgical GroupPeter Merkel, MD . University of PennsylvaniaRobert Micheletti, MD . University of PennsylvaniaPaul Monach, MD . Boston University Patrick Nachman . University of North CarolinaEric Ruderman, MD . Northwestern UniversityUlrich Specks, MD . Mayo ClinicJason Springer, MD . University of KansasTony Sreih, MD . University of PennsylvaniaMarinka Twilt, MD . University of CalgaryAlex Villa-Forte, MD . Cleveland Clinic Yusuf Yazici, MD . New York UniversityKalen Young, MA . V-PPRN Network Manager

“My wife and I have attended two prior symposiums, one in Philadelphia and one in Jacksonville. We are already registered for the Chicago symposium to be held in June. We look forward to making new friends, attending breakout sessions for the latest information on my illness, and learning about new studies or trials. At each event, we have gained greater knowledge about vasculitis and GPA.” Victor James

12 REASONS TO ATTEND the 2015 INTERNATIONALVASCULITIS SYMPOSIUMAttendees from previous International Vasculitis Symposia have shared their comments, and we want to share them with you. REGISTER NOW!

1 Good topics and good program.2 Awesome information.3 I’m not alone anymore.4 ery informative, even entertaining.5 Great. Very informational. Broke it down to

our level.6 Research talks offered me hope that things

will be okay.7 The entire event was incredibly well

organized.

8 As a newly diagnosed patient, it was great to see others who’ve been around for awhile doing well. They inspired and reassured me.

9 My first time to attend. Good to hear people’s stories; most excellent to have so many leaders in one place.

10 Value was better than the registration price!11 The absolute best part was how accessible

the doctors were!12 Wonderful! Pertinent! Innovative!

SATURDAY SCHEDULE continued from page 7

4 . 2017 International Vasculitis Symposium Registration Form 4.2017 www.VasculitisFoundation.org

REGISTRATION FORMMARRIOTT CHICAGO O’HARE . 8535 W HIGGINS RD . CHICAGO, IL 60631TEL: 773.693.4444REGISTRATION DEADLINE: JUNE 17, 2017

REGISTRATIONONLINE: https://www.gifttool.com/registrar/ShowEventDetails?ID=1232&EID=23610FAX: Please complete form and fax to: 816.436.8211MAIL: Please complete form and mail to: Vasculitis Foundation, PO Box 28660, Kansas City, MO 64188-8660PHONE: Please call the VF office to register: 800.277.9474

Registration fee includes: Meals ((Friday afternoon break, evening dessert reception, Saturday breakfast, morning break, lunch, afternoon break, banquet, Sunday breakfast and morning break), educational materials, handouts, and admittance to educational sessions and exhibit area, and VF Symposium 2017 t-shirt.

HOTEL: If you plan to stay at the Marriott, you will need to book your own room. Please reference the Vasculitis Foundation for our special room block. $119 + taxes/night https://goo.gl/KciPzQ or 773.693.4444

FIRST ATTENDEEFirst Name MI Last Name Address City State ZIP Country Phone Cell Email Please check: Patient (Disease ) Family/Friend Medical ProfessionalSymposium t-shirt size: Small Medium Large X-Large XX-LargeIn case of emergency, please contact Please list any special needs (dietary, other) you have

SECOND ATTENDEEFirst Name MI Last Name Address City State ZIP Country Phone Cell Email Please check: Patient (Disease ) Family/Friend Medical ProfessionalSymposium t-shirt size: Small Medium Large X-Large XX-LargeIn case of emergency, please contact Please list any special needs (dietary, other) you have

REGISTRATION FEENo. of ( member) attendees x 200.00 = TOTAL No. of ( non-member) attendees x 230.00 = TOTAL

PAYMENT INFORMATIONPaying by check PAYMENT must be received no later than June 17, 2017.Visa MasterCard Discover American Express Name on Card Card # Billing Address (if different from above) Expiration Date TOTAL Signature

CONFIRMATION: Please bring a copy of your registration confirmation to the symposium.SUBSTITUTIONS: If a registrant is unable to attend, substitutions are welcome.REFUNDS: Refund requests must be made in writing and MUST be received no later that June 17, 2017. After that time, we are sorry that no refunds can be made for any reason.pediatric patients: Only pediatric vasculitis patients are permitted to attend symposium sessions and a parent or legal guardian must accompany any patient 15 years of age or younger to the sessions.

LEARN. CONNECT. ENGAGE.

VASCULITIS SYMPOSIUM2017

Chicago, Illinois, USA June 23-25

INTERNATIONAL

REGISTRATION FEE: US $200 for VF membersUS $230 for non-VF membersPlease contact the VF office to confirm your membership status. 816.436.8211 or vf@vasculitisfoundation.org