50 disease specific websites for seniors, caregivers and aging parents

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Here are some disease specific and health related agencies and websites to receive information, support and assistance - whether you are a family caregiver, a professional caregiver, or looking for additional information on issues related to family caregiving.

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  • 1.50 Disease Specific Websites for Seniors, Caregivers and Aging parents

2. Whether you are a caregiver by trade or you are providing care for afamily member in need, caregiving is a challenging job. One of the bestsupport strategies for caregivers is to make sure they are aware of andunderstand the resources that are available to them. 3. Here are some disease specific and health related agencies andwebsites to receive information, support and assistance - whether youare a family caregiver, a professional caregiver, or looking for additionalinformation on issues related to family caregiving.For the caregiver - these resources might help to cope with your role asthe caregiver. 4. 1 Disease Specific Websites for Seniors, Caregivers and Aging parents 2The Alzheimers Association is the American Autoimmune Relatedleading, global voluntary health Diseases Association, is dedicated toorganization in Alzheimer care and eradicating autoimmune diseasessupport. through patient education, autoimmune disease research, public awareness, and advocacy and patient services. 5. 3 Disease Specific Websites for Seniors, Caregivers and Aging parents 4The American Cancer Society is a The American Diabetes Associationnationwide, community-basedis leading the fight against thevoluntary health organizationdeadly consequences of diabetesdedicated to eliminating cancer as and fighting for those affected bya major health problem.diabetes. 6. 5Disease Specific Websites for Seniors, Caregivers and Aging parents 6American Foundation for AIDSAmerican Heart Association - LearnResearch - Founded in 1985, amfAR more about the American Heartis dedicated to ending the global Associations efforts to reduceAIDS epidemic through innovativedeath caused by cardiovascularresearch. disease. 7. 7 Disease Specific Websites for Seniors, Caregivers and Aging parents 8American Kidney Fund - is aAmerican Liver Foundation -volunteer health organizationprovides information on liverdedicated to providing kidneydiseases, as well as advocacy forservices and programs for people education, treatment and researchwith or at risk of kidney disease. funding. 8. 9Disease Specific Websites for Seniors, Caregivers and Aging parents 10The American Lung Association is American Pain Foundation - is anthe leading organization working toindependent nonprofit 501(c)3save lives by improving lung healthorganization serving people withand preventing lung disease throughpain through information,Education, Advocacy and Research.advocacy, and support. 9. 11Disease Specific Websites for Seniors, Caregivers and Aging parents 12The American Parkinson Disease American Stroke Association - offersAssociation APDA focuses its support and information for strokeenergies on research, patientpatients, caregivers and theirservices, education and raisingfamilies.public awareness of the Parkinsonsdisease. 10. 13Disease Specific Websites for Seniors, Caregivers and Aging parents 14American Tinnitus Association is aThe ALS Association is a leadingnon-profit organization working tosource of information for thoseimprove the resources, information, battling ALS and for people lookingand assistance available to sufferers for the latest news andof tinnitus.information about the disease. 11. 15Disease Specific Websites for Seniors, Caregivers and Aging parents 16Asthma & Allergy Foundation of Cancer and Careers offers supportAmerica provides free informationfor women with breast and otherand resources from the leading cancers: career coaches, diaries,national nonprofit organization forcancer wigs, legal advice, freepeople with allergies and asthma.publications, support for employers, coworkers and caregivers. 12. 17Disease Specific Websites for Seniors, Caregivers and Aging parents 18Cancer Financial AssistanceCancer Research and PreventionCoalition - (CFAC) is a coalition of Foundation - Provides Cancerorganizations helping cancer prevention and early detectionpatients limit their financial through research, education andchallenges.community outreach to all populations, including children and the underserved. 13. 19Disease Specific Websites for Seniors, Caregivers and Aging parents 20CHADD (Children and Adults withCrohns & Colitis Foundation ofAttention-Deficit/HyperactivityAmerica - is a non-profit, volunteer-Disorder) is the nations leadingdriven organization dedicated tonon-profit organization servingfinding the cure for Crohns diseaseindividuals with AD/HD and their and ulcerative colitis.families. 14. 21Disease Specific Websites for Seniors, Caregivers and Aging parents 22Cystic Fibrosis Foundation - is theEaster Seals provides exceptionalleading organization in the United services, education, outreach, andStates devoted to cystic fibrosis. advocacy so that people living with autism and other disabilities can live, learn, work and play in our communities 15. 23Disease Specific Websites for Seniors, Caregivers and Aging parents 24The Epilepsy Foundation ofThe Foundation Fighting Blindness -America is the national voluntaryis a publicly-supported charityagency dedicated solely to theraising money to fund research forwelfare of the almost 3 million macular degeneration, retinitispeople with epilepsy in the U.S. andpigmentosa (RP), related diseases,their familiesand providing information,resources and referrals. 16. 25Disease Specific Websites for Seniors, Caregivers and Aging parents 26Kidney Cancer Association (KCA) is a The Huntingtons Disease Societycharitable organization made up of of America, Inc. (HDSA) is apatients, family members,National, voluntary healthphysicians, researchers, and other organization dedicated tohealth professionals globally. improving the lives of people with Huntingtons Disease and their families. 17. 27Disease Specific Websites for Seniors, Caregivers and Aging parents 28The Leukemia & LymphomaLupus Foundation of America - (LFA)Society - (LLS) is the worlds is the foremost national nonprofitlargest voluntary health voluntary health organizationorganization dedicated to fundingdedicated to finding the causes of andblood cancer research, education cure for lupus and providing support,and patient services.services and hope to all people affected by lupus. 18. 29 Disease Specific Websites for Seniors, Caregivers and Aging parents 30Mesothelioma Web - The Most March of Dimes Birth DefectsComprehensive MesotheliomaFoundation - is a nonprofit charitWebsite providing mesotheliomaprovideing information and answerssymptoms, diagnosis, Malignantabout pregnancy, your baby, folicmesothelioma treatment andacid, prematurity, genetic disorders,traditional and new treatment birth defects and much more.options 19. 31 Disease Specific Websites for Seniors, Caregivers and Aging parents 32Muhammad Ali Parkinson Center and Myasthenia Gravis FoundationMovement Disorders Clinic is aof America - (MGFA) is the onlyNational Parkinson Foundation Centernational volunteer healthof Excellence, and a wonderfulagency dedicated solely to theresource for people with Parkinsonsfight against myasthenia gravis.and their families. 20. 33Disease Specific Websites for Seniors, Caregivers and Aging parents 34Myositis Association - (TMA) is a National Down Syndrome Society - isnon-profit, voluntary healththe main source of information foragency dedicated to improving the people with Down syndrome.lives of people affected by myositis. 21. 35Disease Specific Websites for Seniors, Caregivers and Aging parents 36The National HemophiliaNational Mental Health Association -Foundation is dedicated to Mental Health America is thefinding better treatments andcountrys oldest and largest nonprofitcures for bleeding and clottingorganization addressing all aspects ofdisorders and to preventing themental health and mental illness.complications of these disordersthrough education, advocacyand research. 22. 37Disease Specific Websites for Seniors, Caregivers and Aging parents 38National Multiple Sclerosis SocietyNational Organization for Rare- is a collective of passionateDisorders - is a unique federation ofindividuals who want to move voluntary health organizationstogether toward a world free ofdedicated to helping people withmultiple sclerosis.rare "orphan" diseases and assisting the organizations that serve them. 23. 39 Disease Specific Websites for Seniors, Caregivers and Aging parents 40National Osteoporosis Foundation- National Psoriasis Foundation(NOF) is the leading consumer and - is the largest psoriasis patientcommunity-focused health organization advocacy organization in thededicated to the prevention ofworld.osteoporosis and broken bones. 24. 41Disease Specific Websites for Seniors, Caregivers and Aging parents 42National Sleep Foundation - is a 501(c)3Osteogenesis Imperfectacharitable, educational, and scientific Foundation - is a voluntarynot-for-profit organization dedicated tonational health organizationimproving sleep health and safety dedicated to improving thethrough education, public awareness,quality of life for individualsand advocacy. affected by OI. 25. 43Disease Specific Websites for Seniors, Caregivers and Aging parents 44The Paget Foundation - provides Partners Against Pain - is a resourceinformation for patients andthat serves patients, caregivers, andmedical professionals for Pagets healthcare professionals to helpdisease of bone, fibrous dysplasia, alleviate unnecessary suffering byosteopetrosis, and skeletal leading efforts to advance standardscomplications of breast and prostateof pain care through education andcancer. advocacy. 26. 45 Disease Specific Websites for Seniors, Caregivers and Aging parents 46Sjogrens Syndrome Foundation is a The Spina Bifida Association (SBA)national non-profit, multi-faceted is the only national voluntaryorganization focused on increasing health agency solely dedicated toresearch, education and awarenessenhancing the lives of those withfor Sjgrens syndrome.Spina Bifida and those whose lives are touched by this challenging birth defe

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