51884-1 b english cover.qxp:english 9/20/07 8:28 am page 1 als... · 9/20/2007 · tion dedicated...

51884-1 B English Cover.qxp:English 9/20/07 8:28 AM

Amyotrophic lateral sclerosis, or ALS, is a

devastating neuromuscular disease. ALS is some-

times called Lou Gehrig’s disease after legendary

New York Yankees first baseman Lou Gehrig,

who lost his battle with ALS at age 38. As the dis-

ease progressively takes hold, motor neurons

(the nerve cells that carry messages to the mus-

cles that tell the muscles to contract) begin to

die. When the motor neurons degenerate, the

muscles weaken, resulting in paralysis.

ALS leaves the senses unimpaired and the

intellect is often unaffected. People with ALS can

still think and feel, but become trapped in a body

that will eventually lose all ability to move with

free will. Death typically occurs from respiratory

failure within two to five years of diagnosis. There

is no known cause for ALS, and, to date, no

known cure. Research is our only hope.

Some 20,000 to 25,000 Canadians who are alive

and in good health today will die from ALS. World-

wide estimates are seven in 100,000 people are

living with ALS. With a world population of 6.5 bil-

lion, this means there are approximately

one-half million people worldwide with the disease.

ALS is a disease that bankrupts families emo-

tionally, physically and financially. The course of

the disease costs families approximately $140,000,

most of which is not covered by government

funding. Ninety per cent of care for those with

ALS is shouldered by family caregivers.

The only way to stop the pain and devasta-

tion caused by ALS is to find a cure.

About the ALS Society of Canada

The ALS Society of Canada, founded in 1977,

is the only national voluntary health organiza-

tion dedicated solely to the fight against ALS and

support for those living with ALS.

Our mission The ALS Society of Canada funds research

towards a cure for ALS, supports our provincial

partners in the provision of quality care for

those living with ALS, and provides information

to build awareness about the disease.

Our visionThe vision of the ALS Society of Canada is to

find a cure for ALS.

Amyotrophic Lateral Sclerosis Society of Canada

In our hands...

Amyotrophic Lateral Sclerosis

Table of Contents

Report from the Chair and the President & CEO. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1ALS Research . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 2Education and Awareness . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 4Provincial Partnerships and Programs. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6Board of Directors . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6Volunteer Profile . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 7ALS Canada Awards . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 7Our Donors and Sponsors. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 8Report from the Treasurer. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 10Financial Statements . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 11

1In Our Hands Annual Report 2006

rests the hope of thousands of people living with ALS.

Report from the Chair and the President & CEO

The ALS Society of Canada is a leading source

of funds for ALS research in Canada. We support

ALS research nationwide and abroad to search for

the cause and to find a cure for this devastating

disease. Through our provincial partners,

ALS Canada also strives to improve the quality of

life of those affected by this fatal disease.

The year 2006 was a pivotal one for the

ALS Society of Canada. It marked our most suc-

cessful year to date, as we surpassed the $1 million

mark in research funding contributions.

Our main research program, the Neuromuscular

Research Partnership (NRP), funds health research

through operating grants in the area of neuromuscu-

lar diseases with a mandate to find a cause, treatment

options, and eventually a cure for ALS. Our partner-

ship with the NRP is just one of many research

programs that ALS Canada has in place to help com-

bat ALS. The NRP, in collaboration with Muscular

Dystrophy Canada and in partnership with the Cana-

dian Institutes of Health Research (Institute of

Genetics, Institute of Musculoskeletal Health and

Arthritis and the Institute of Neurosciences, Mental

Health and Addiction), has funded $21 million in

research since its inception in 2000. In 2007, the NRP

will jointly invest in excess of $1.75 million in

research for neuromuscular diseases.

As a founding member of the International

Alliance of ALS/Motor Neurone Disease Associa-

tions, the ALS Society of Canada will host the 18th

International Symposium on ALS/MND in Toronto,

December 1-3, 2007.

ALS Canada offers numerous awards and

scholarships to help draw young researchers to the

ALS field and seed the future for further research

developments. These awards are granted using a

peer-review process to deter-

mine the scientific merit of the

application and to ensure that

research funds are allocated

where they will have the most

impact.

With Dr. Denise Figlewicz

on board as the new director of

research, 2007 holds additional

promise for the development of

new and productive research

partnerships aimed at putting an

end to ALS. And, with more than $1 million in

research funding committed for 2007, we believe

that a treatment leading to a cure is within reach.

The WALK for ALS illustrates our partnership

with the provincial societies. Through this col-

laboration we raised $2 million in 2006 in

support of provincial services and ALS Canada-

funded research.

Volunteers are the heart and soul of every

charitable organization and ours is no exception.

We offer a special thank you to the members of

the board of directors for their commitment and

dedication, as well as to our generous donors,

devoted volunteers, event participants, researchers

and staff. The above achievements represent

only a snapshot of the many activities that

ALS Canada undertook in 2006, and will contin-

ue to pursue in 2007.

The quest for a cure for ALS is in our hands.

Sean McConkey David Cameron

Chair of the Board President & CEO

Left to right: Sean McConkey and David Cameron

2 Amyotrophic Lateral Sclerosis Society of Canada

In our hands...

ALS Research Canadian ALS researchers are on the cut-

ting edge of worldwide research that we

believe will one day lead to a cure for ALS. The

key to maintaining successful research in the

future is to develop new research partnerships,

fund excellent and relevant research, cultivate

relationships within the research community

and encourage a new generation of scientists

to study ALS. We are proud to say that we are

doing all of that and more.

Our main research program, the Neuromus-

cular Research Partnership, is

the cornerstone of our partner-

ship arrangements. This past

year, the NRP jointly invested

a total of $2.28 million in

research on neuromuscular

disorders, supporting nine

research scientists in their

quest to find a cause and cure

for neuromuscular diseases.

New research grants

Dr. Salvatore Carbonetto McGill University

Dystroglycan function and dysfunction in the fly CNS

Dr. Milton Charlton University of Toronto

Analysis of transmitter release mechanisms

Dr. Heather Durham McGill University

The role of protein chaperones in regulating neurofilament dynam-

ics in health and neuromuscular disease

Dr. Margaret Fahnestock McMaster University

Mechanism of sensory protection of denervated muscle

Dr. Elizabeth Meiering University of Waterloo

Folding and aggregation of ALS-associated mutant superoxide dismutases

Dr. Janice Robertson University of Toronto

Peripherin abnormalities in ALS

Dr. Jacques Tremblay Centre hospitalier de l’Université Laval

Development of immunological tolerance in monkeys for therapies

for muscular dystrophies based on cell transplantation

In 2006, the ALS Canada partnership with

The ALS Association in the United States jointly

funded the following three prominent Canadian

researchers:

Dr. Christopher Shaw University of British Columbia

Role of sterol glucoside neurotoxicity in ALS-PDC

Dr. Sanjay Kalra University of Alberta

The neurochemical profile of cognitive impairment in ALS

Dr. Minh Dang Nguyen University of Calgary

The roles of Ndel1 in motor axon/neuron degeneration and regeneration

Research awards

With the ALS Society of Canada-CIHR

INMHA Doctoral Research Award we fund two

young researchers who receive grants, renew-

able for a maximum of three years, of $21,000

per year. These researchers work in established

laboratories under senior scientists. The 2006

recipients are:

Rishi Rakhit Ontario Cancer Institute

Investigating protein folding/misfolding in vivo

Jennifer Solomon Simon Fraser University

Bone marrow-derived cells in the central nervous system in a

mouse model of ALS

The Tim E. Noël Fellowship in ALS Research

funds post-doctoral ALS research, with grants val-

ued at up to $55,000 per year, renewable for

three years. Tim E. Noël was the former deputy

governor of the Bank of Canada; he died of ALS

in 200 1. The 2006 recipients are:

Joe Chakkalakal Harvard University

The establishment of motor unit homogeneity during development

and after axon regeneration


is the promise of a treatment and a cure through research funding.

François Gros-Louis Centre Hospitalier de l’Université Laval

Identification of misfolded proteins associated with sporadic ALS

through innovative proteomics approaches

Edor Kabashi Centre Hospitalier de l’Université de Montréal

Developing and characterizing novel models of ALS and other neu-

rological disorders in zebrafish and mice

In the fall of 2006, the opportunity arose for

ALS Canada to join the University of Toronto in

funding ALS-focused research. This partnership

will support the multidisciplinary research team

of doctors Janice Robertson and Lorne Zinman,

who will use DNA and tissue samples from peo-

ple living with ALS, and healthy controls, to look

for genetic or protein changes specifically asso-

ciated with the ALS disease process.

Research forum

“Inspiration” was the theme of ALS Canada’s

second annual Research Forum, which took

place March 24-26, 2006, at the Bank of Montre-

al Institute for Learning in Toronto. The forum

addressed the issues of researching the underly-

ing biology of ALS, developing and

implementing effective therapies, and improv-

ing quality of care, with a focus on how the

ALS Society of Canada can best facilitate these

efforts.

New research directions

The year 2006 has been excit-

ing for ALS research, both in

the sphere of new discoveries

and in research collabora-

tions for ALS Canada. In

September 2006 ALS Canada

welcomed Dr. Denise Figlewicz

to the newly created position of

director of research.

Figlewicz is well known

and respected in the ALS

research milieu, and in 1993,

along with Dr. Guy Rouleau,

was part of the international

consortium that discovered the

first gene responsible for the

familial form of ALS. This

breakthrough paved the way

toward the development of

treatments for the hereditary form of the disease.

Since joining the ALS Society of Canada,

Figlewicz has made it her goal to identify and

facilitate new research partnerships. “With part-

nerships, we can take small amounts of money

that are insignificant on their own, and put them

together to fund substantial research projects,”

she says. “I like the philosophy of people join-

ing together for a common goal.”

According to Figlewicz, research directions

in 2006 largely focused on the misfolding of pro-

tein SOD1. “It was in familial cases of ALS that

we first discovered misfolded proteins play a

significant role early in the degeneration of cells

in ALS. Scientists are currently using the infor-

mation about SOD1 to search for effective

therapies for those affected by the disease,” she

explains.

One such therapy involves a new drug

called Arimoclomal, which turns on the cell

mechanism for getting rid of waste proteins.

Arimoclomal will soon be employed in clinical

trials, a valid process for determining the effects

of new drug therapies.

2007 holds much promise for future ALS ther-

apies and research developments. Figlewicz is

committed to work with and bring together ALS

researchers and clinicians in Canada and beyond.

“We need to work together to find a cure for

ALS,” says Figlewicz.

Dr. Denise Figlewicz


In our hands...

Education and AwarenessWe spread the word about how important it

is to support and fund ALS research through

awareness activities such as the WALK for ALS,

Cornflower Days, Coast to Coast newsletter,

Research News and radio and television public

service announcements.

We reach thousands of Canadians each year

with our educational and awareness programs.

WALK for ALS

The WALK for

ALS, the ALS Society

of Canada’s national

signature fundraising

and public awareness

event, is held in partnership with the ALS

provincial societies. The majority of the nation-

wide Walks are held in June, which is ALS

awareness month.

Volunteer driven, the Walk has a mobilizing

effect on the individuals who participate. It pro-

vides the means for people who have ALS, and

their family and friends, to help build awareness

of ALS and to connect with others who have

been affected by the disease. So often people

touched by ALS want to help in some way, and

the Walk provides this opportunity.

From its modest beginning

in 2001 in just five communi-

ties, the Walk has grown

significantly. In 2006, 14,000

participants in 78 communities

across Canada raised $2 mil-

lion, bringing the overall

amount raised since the Walk’s

inception to $8.8 million.

In 2006, the WALK

for ALS gained a commit-

ted volunteer national

chair and spokesperson

in Zack Werner. Werner

is well-known for his

role as a judge on the

popular CTV television

series Canadian Idol. He

has first-hand knowledge of the devastating

effects of the disease, as he lost his father to ALS

in 1997.

“I am very proud to be associated with this

event and to be able to be a part of finding a cure

for this devastating disease,” says Werner. “I have

seen first-hand what this disease does to a person

and we must find a cure.”

The funds raised through the Walk are of vital

importance in sustaining ALS Canada-funded

research and helping people living with ALS.

Forty per cent of the funds raised through the

Walk are used to fund ALS research through the

ALS Society of Canada. Sixty per cent of the funds

raised stay with the provincial societies to assist

people with ALS and their families with much

needed equipment and services.

Radio PSAs

ALS Canada developed a series of com-

pelling radio public service announcements to

help promote the 2006 WALK for ALS. Created by

ALS volunteer Donna Wilson, at Arctic Radio in

Thompson, Manitoba, the PSAs featured the

music of popular rock group U2, who graciously

allowed ALS Canada the rights (for the duration

of the walk) to their song Walk On.

Zack Werner


we reach thousands of Canadians.

als411

For children, it is often dev-

astating to be forced to cope

with the life-altering experi-

ence of having a parent being

diagnosed with ALS. Between

the pain of watching a parent

succumb to the disease, and

watching the other parent (or adult) in the

household take on the demanding and time-con-

suming role of caregiver, it is often difficult for a

child to come to terms with feelings of guilt,

abandonment, sorrow and confusion.

Launched in December 2006, als411 — avail-

able online at www.als.ca/allforkids — provides

children with resources to gain knowledge about

the disease and how

to deal with its effects

on the family. The site

includes information

from how to cope

with one’s feelings, to

interviews and testimonials from other children

who survived the loss of a parent to the fatal dis-

ease. The site also features a nationwide list of

bereavement centers geared specifically towards

children .

Publications

Research News, our

newest electronic pub-

lication, provides our

readers with the latest

research findings and

clinical research from

Canada and around

the world, in French

and English.

Research News won a Silver Mercury Award

for its creativity, originality, determination, func-

tionality and innovative thinking from the

20th Annual International MERCURY 2006/07

Awards competition. Over 900 entrants from 21

countries competed in more than 290 categories

and classifications that honor excellence in public

relations and corporate communications. Award

recipients range from large PR firms to not-for-

profit organizations to unique individual efforts.

The ALS Society of Canada’s 2005 Annual

Report, Hope & Help, won a 2007

Gold Hermes Creative Award. The

report was evaluated on its con-

cept, writing and design quality and

creativity. Of the more than 3,500

entries submitted, approximately

18 per cent received a Gold Award.

The cornflower

The blue cornflower is the

national symbol of the ALS

Society of Canada. Though it

appears fragile, it is a long-last-

ing, hardy flower that grows

across the country. When a

cornflower is planted, aware-

ness of ALS grows along with

it. The cornflower symbolizes

the courage and strength of

character that people with ALS possess — in

spite of the degenerating nature of the disease.


In our hands...

Provincial Partnerships and Programs

The ALS Society of Canada has developed

and nurtured a unique relationship with the 10

provincial ALS societies, whose focus is to pro-

vide equipment, care, and support services to

people affected by ALS. Our federation of 11

Canadian ALS societies provides a framework

through which the partners work together and

share responsibilities, allowing for an efficiency

not often seen in national health charities.

ALS Canada works with the provincial societies

to provide care to those affected by ALS, and to

help fulfill our vision to find a cure for this dev-

astating disease.

SEED Grant Program

The Service and Education Enhancement

and Development Grant Program is a capacity-

building initiative funded by ALS Canada, for the

benefit of the 10 provincial societies. The pro-

gram provides provincial ALS societies with an

opportunity to receive financial assistance. They

use the grant to expand their capacities to serve

and to implement new projects, activities or

innovative outreach approaches to better serve

members of the ALS community.

The ALS societies of Quebec, British Colum-

bia, and Newfoundland and Labrador used

SEED funding to expand their services geo-

graphically. ALS Manitoba hosted the province’s

first Healthcare Professional ALS Conference.

And, ALS Ontario developed a program to

address the unique needs of newly diagnosed

people with ALS and their caregivers throughout

the Greater Toronto Area.

This peer-reviewed competition will grant

up to $100,000 in assistance in 2007.

Chair, Sean McConkey Ontario

Vice-Chair, Ben Wendland British Columbia

Treasurer, Jylan Khalil Alberta

Marcel Bertrand Manitoba

Dr. Monique D’Amour Quebec

Kathleen Denman Prince Edward Island

Lise Deschesnes Quebec

Dr. Heather Durham Quebec

Menno Froese British Columbia

Michael Gardner British Columbia

John Garroway Nova Scotia

Deborah Lavender Ontario

Cathy Martin Alberta

Michael Mayne Ontario

Gloria Miller Saskatchewan

Réjean Moreau Quebec

Katherine Pollock Ontario

Peter Puddester Newfoundland and Labrador

Janika Smit New Brunswick

Doretta Thompson Ontario

Sidney Valo Ontario

Nigel Van Loan Ontario

Lori Weir New Brunswick

Board of Directors 2006-2007


volunteers nationwide are provided with motivation and leadership.

Volunteer Profile: Sidney ValoSidney Valo, a prominent Toronto business-

man, was diagnosed with ALS in April 2005. Valo

joined the ALS Society of Canada’s board of

directors in May 2006, and has been an active

member of ALS Canada ever since. “I have served

on many volunteer boards in my career. I am a

firm believer in giving back to the community.

That belief, coupled with my experience with

not-for-profit organizations, gave me the confi-

dence that I needed to contribute to the work of

ALS Canada. I have always had a strong interest

in science. ALS Canada’s focus on research was

therefore a natural choice,” says Valo.

In 2006 Valo created the Sidney Valo Fund,

dedicated to raising money for ALS research —

and ultimately, a cure.

“I am very interested in how research is con-

ducted and more importantly, how the process

can be improved. Research is the key to finding

therapies and a cure. In addition to doing what I

can to raise funds for research, I am focused on

new and innovative ways to ensure all funds

raised generate the most value,” explains Valo.

To date, the Sidney Valo Fund has raised more

than $60,000. The target is $75,000 for ALS research,

a mandate Valo is confident he can achieve.

“I have spent a good deal of time finding and

examining examples of new and innovative

research initiatives,” says Valo. “I have also spent

some time reading and thinking about the issues

and limitations upon the classic research

process. All of this is driven by concern about

how long it takes for research to yield results,

and how best to use funds for research. I hope,

with this work, to generate some discussion

about current research policy and practices and

how they might be improved.”

Valo received the 2006 ALS Canada Excep-

tional Fundraising Program Award (individual). In

2006, Team Valo, his WALK for ALS team

based in North York, Ontario, were the

top fundraisers in all of Canada, con-

tributing more than $29,000 towards ALS

research, patient services, and equip-

ment, while promoting awareness about

the disease throughout the community.

“I made a conscious decision not to

hide my condition but rather disclose it

to one and all in an attempt to build

awareness,” says Valo. “I resolved to

accept this as my ‘new normal’ and to do

all that I could to help those afflicted by

ALS. ALS is one of the most common

neuromuscular diseases. The rapid pro-

gression and terminal nature of ALS

result in a lack of visibility and awareness of what

is truly one of the most devastating diseases to

befall an individual and their family,” says Valo.

“Accelerating the search for an effective medical

treatment for ALS requires significant funding and

must rely upon the generosity of all of us. It’s one

way to give this devastating disease a purpose.”

ALS Canada Awards

The following individuals and groups were honored for their exceptional contributions to the ALS Society of Canada in 2006:

Carrie Smith Mary Pollock WALK for ALS Award

Janice Davidson William Fraser Leadership Development Award

Ishtar Gabriel Exceptional Support Services Program Award

Marcel Bertrand Honorary Life Member

Jean Pearmain Myra Rosenfeld Volunteer Award

Sidney Valo Exceptional Fundraising Program Award (individual)

Donna Wilson Exceptional Public Awareness Program Award (individual)

Tim Spelliscy and the Global Alberta News Team Exceptional Public

Awareness Program Award (group)

Sidney Valo, QC


In our hands...

Our Donors and Sponsors

Individuals

Edvard AndersonWilhelmina E. BakkenesLorne BarskyMagnus BaynePatricia BraggNeil & Rosalind BrownLouis BurgosDavid CameronGunars CekstersFrances CowanShirley DaveyHerman & Elly de JonghDaniel A. DevlinSandra & Paul DirksenAnna EspositoJames D. FlaniganP. Harvey GriggsMichel HakimGeorge & Linda HellerGregory HoodBeryl A. HudsonGarry L. HurvitzMontgomery JohnsonNavaz KassamMary J. KelleyKathryn Kennedy

Jylan A. KhalilGeorge KuzmarovBernie LeeboshIrene Leslie-BlakeJames & Danielle

MacDonaldPeter McArthurJames C. McCarthyRichard D. McCloskeyGarry McDonellCheryl MulhollandHelen NathansonSol NaymanDrew PallettIan PenneyNina & Anthony PetronaciMichael PriceKen ReedJohn RochonRay & Ana RomanoWilliam L. SauderWilliam SchaefflerRobert ScottScott SeatterBarbara J. SimmonsPeter & Dorrene SloanJames K. StewartMarcia Sweet

In memory of AngelaThacker

Gordon ThiessenDoretta ThompsonAnn Thompson &

Stephen GurmanSadie TiffinSidney ValoMilan & Catherine VotickyHelen WardGordon WaughBen WendlandDon & Jennifer WrayAndrew WrightKenneth YollesWilliam & Janet Young

The estates of:

Louella Ada BeeseGeorge Kenneth BensonEdwin J. HartLeonard Aloysius HeschMildred Vivian HiltonBeryl Marguerite JeffreeLeo Joseph LafreniereMabel Eleanor Marlatt

Donald C. McDermidBernice Mary Margaret

RamsayMargaret Elizabeth ShuterDorothy Stechly

Employee funds

Bell Canada — HelpingHands Open Hearts

CanadaHelps donorsHealthPartners —

Government Employeedonors

Ontario Power GenerationEmployees’ & Pensioners’Charity Trust

United Way donors

Events and funds

Jill Cumming’s FundElizabeth’s Concert of HopeSidney Valo Fund

The ALS Society of Canada extends its

gratitude to the many individuals, founda-

tions, corporate donors and media sponsors

who supported ALS Canada in 2006. Impor-

tant and crucial research and care funding

would not occur without these generous con-

tributions.

A very special thank you goes to the following

donors and sponsors who were leaders in sup-

porting our mission this past year.

We have many donors who help us reach our goals but

only limited space to recognize them. Accordingly, these pages

are intended to reflect individuals and organizations who

have donated $1,000 or more during 2006.


rests the confidence of thousands of donors from across the country.

Event and othersponsors

BBDO TorontoButler PrintingCanon Canada Inc.Hudson’s Bay Company

(Hbc)Legend Corp.National Bank FinancialPepinMedia Inc.Phillips, Hager & North

Investment Management Ltd.

Foundations

Al Roadburg FoundationAllard Foundation Ltd.Astellas USA FoundationDorice P. Johnston Memorial

Fund at the Toronto Community Foundation

F.K. Morrow FoundationGeorge Cedric Metcalf

Charitable FoundationHarrison McCain

FoundationHarry & Toby Jordan

FoundationRBC FoundationThe BLG FoundationThe EJLB FoundationThe Herbert Green Family

Charitable Foundation Inc.The Lillian & Don Wright

FoundationThe Mayvon FoundationWallenstein Feed

Charitable Foundation

Corporations

1155599 Ontario LimitedAber Diamond CorporationAbrahamse Berkis Pinto &

Associates LLPadidas Canada Ltd.Aecon Buildings GroupAnderson Carpet &

Home Ltd.Bank of Nova ScotiaBelle RiveBlack & McDonald LimitedBosch Rexroth

Canada Corp.Bozzo Rea InvestmentsBurlington Professional

FirefightersCIBC Mellon Trust CompanyCIBC World MarketsCitywide Door &

Hardware Inc.CNC Global LimitedCocoon Furnishings Inc.Covington Capital

CorporationCROWN Metal Packaging

Canada LPDelgant (Civil) Ltd.Dell Chemists Ltd.Deloitte & Touche LLPDesjardins Credit UnionDeutsche Bank AG,

Canada BranchDofasco Inc.Fame Jeans Inc.Gibson Energy Marketing Ltd.Goodman & Company,

Investment Counsel Ltd.Greater Toronto Airports

Authority

Hickory Dickory DecksHildebrand Motors Ltd.Hurley CorporationICI Canada Inc.JCI Realty LimitedJoan of Arc Academic

SocietyKraft Canada Inc.Lowell John van Zuiden

Professional CorporationManulife FinancialMarc Bruneau SalesMathews, Dinsdale &

Clark LLPMsiamo Collections Inc.MTS Allstream Inc.Muscular Dystrophy of

BurlingtonNewdon Industries Ltd.Nortroloc Inc.Ontario Lottery Gaming

CorporationPatenaude Kung Fu OuestPCL/Aecon Joint VenturePricewaterhouseCoopersProtax Financial

Services Inc.RBC Dominion

Securities Inc.Ryding Regency Meat

Packers Ltd.Russel Metals Inc.Sanofi-Aventis Canada Inc.Scotia Capital MarketsShadowcorp Investments

LimitedSkinworks For You Inc.Skyservice AirlinesThe Great West Life,

Canada Life and London Life

The Lawyers of the BCFamily MaintenanceEnforcement Program

The Lions Club Of ParisThe OysterToyota Canada Inc.Tyler Investments Inc.Whittington FurnitureWindermere HouseXerox Canada Ltd.

Funding partners

ALS Society of Alberta(and Northwest Territories)

ALS Society of BritishColumbia

ALS Society of ManitobaALS Society of New

BrunswickALS Society of Newfoundland

and LabradorALS Society of Nova ScotiaALS Society of Ontario

(and Nunavut)ALS Society of Prince

Edward IslandALS Society of QuebecALS Society of

Saskatchewan


In our hands...

Report from the TreasurerI am pleased to report that for the first time in

ALS Canada’s history, we surpassed the $1 mil-

lion mark in research funding contributions.

Our research funding included:

$557,000 in Neuromuscular Research Partner-

ship grants, which, in collaboration with

Muscular Dystrophy Canada and in partner-

ship with the Canadian Institutes of Health

Research (Institute of Genetics, Institute of

Musculoskeletal Health and Arthritis and the

Institute of Neurosciences, Mental Health and

Addiction), was leveraged to $2.3 million in

new neuromuscular research

$225,000 in ALS Research Fellowships awarded

and funded by income from the Tim E. Noël

Endowment Fund

$226,000, comprised of $110,000 in Doctoral

Research Awards; $83,000 in a Canadian co-

funding partnership with our American

counterpart, The ALS Association; and $33,000

for a New Initiatives Program in partnership

with the University of Toronto

For the first time in our history, we added

the new position of director of research in late

2006 and as a result several new research grant-

ing opportunities have been identified and are

in development. We are excited at the implica-

tions for ALS research in the near future.

In 2006, the ALS Society of Canada continued its

support of the provincial ALS societies across Cana-

da through a variety of initiatives including the

Service and Education Enhancement and Develop-

ment capacity-building grant program, revenue-

sharing programs and a one-time transfer of assets to

the ALS Society of Newfoundland and Labrador on

the occasion of its attaining registered charity status

in Canada. In addition, our work included: provid-

ing programs to raise public

awareness of ALS across Cana-

da; providing A Manual for

People Living with ALS to all

who need it; supporting the

ongoing professional devel-

opment of Canadian ALS

health-care professionals; and

developing a new kids’ pro-

gram to address the needs of

children who have a parent with ALS.

I want to thank the many generous donors

who made the work of the ALS Society of Canada

possible. In 2006, we received $2.28 million in

proceeds from the sale of property in British

Columbia, thanks to the generous estate of Ber-

nice Ramsay. A research program is in

development for these funds with an announce-

ment expected in 2007. Through the national

WALK for ALS, volunteers helped to raise

$526,000 for research in 2006, in addition to rais-

ing funds for provincial client services and

equipment programs. In its 10th year, Betty’s Run

for ALS in Calgary, Alberta, contributed $150,000

for research plus contributed to client service and

equipment programs in that province. Many

more donors are listed in the pages of this Annu-

al Report and we are grateful for all donations.

In closing, I would like to thank the donors,

researchers, volunteers and staff for their continued

dedication, commitment and contributions to the

financial success of ALS Canada. Working together,

we are making steady progress towards the day

when we can celebrate the eradication of ALS.

Jylan A. Khalil, CA

Treasurer

Jylan Khalil


is the future of ALS research.

Financial StatementsStatement of Financial PositionDecember 31, 2006

NeuromuscularTim E. Noël Research

Endowment Fund Partnership Fund Research Fund General Fund 2006 Total 2005 Total1

$ $ $ $ $ $ASSETSCurrentCash 384,020 384,020 1,390,316 Short-term investments 2,688,694 2,688,694 1,238,072 Accounts receivable ,346,969 ,346,969 ,594,522 Prepaid expenditures ,046,534 46,534 ,042,770

— — — 3,466,217 3,466,217 3,265,680

Long-termAdvances to ALS provincial societies ,o500 500 ,001,000 Long-term investments 1,413,548 ,373,712,832 5,126,380 2,914,554Inter-fund transfers (113,548) 1,765,776 3,293,854 (4,946,082) — —Capital assets 932 932 3,726

1,300,000 1,765,776 3,293,854 ,0((1,231,818) 5,127,812 2,919,280

1,300,000 1,765,776 3,293,854 ,2,234,399 8,594,029 6,184,960

LIABILITIESCurrentAccounts payable and accrued ,038,944 38,944 ,085,096Current portion of research grants payable ,561,935 157,160 719,095 ,537,278 Deferred revenue ,59,401 59,401 ,228,647

— ,561,935 ,157,160 ,98,345 817,440 ,851,021

Long-termLong-term research grants ,356,878 97,000 453,878 439,019

— ,918,813 ,0254,160 ,98,345 1,271,318 1,290,040

NET ASSETS 1,300,000 846,963 3,039,694 2,136,054 7,322,711 4,894,920

NET ASSETS REPRESENTED BYSurplus 1,300,000 846,963 3,039,694 2,136,054 7,322,711 4,894,920

Note 1: Certain comparative amounts have been reclassified to conform to the current year financial statement presentation.


Hope is in our hands.

Statement of OperationsYear ended December 31, 2006



$ $ $ $ $ $REVENUEFundraising and donations 41,000 1,309,329 3,054,247 4,404,576 2,341,226Direct mail campaign 4,005 1,031,164 1,035,169 1,115,797Project grants 18,093 18,093 19,260Interest and investment income 113,548 258,974 372,522 112,523

113,548 41,000 1,572,308 4,103,504 5,830,360 3,588,806

EXPENDITURESResearch grants 557,470 451,031 1,008,501 653,002Public awareness 1,881 511,811 513,692 591,157Volunteer & organizational development 149,886 149,886 168,412Services and education 249,734 249,734 271,124Support to ALS provincial societies 75,597 478,553 554,150 486,588Project costs 18,093 18,093 19,260Other research support 16,709 87,538 — 104,247 43,795

574,179 616,047 1,408,077 2,598,303 2,233,338

OTHERFundraising 144,893 409,274 554,167 666,597Administrative 185,039 185,039 182,925Governance 65,060 65,060 68,273

144,893 659,373 804,266 917,795

547,179 760,940 2,067,450 3,402,569 3,151,133

EXCESS (DEFICIENCY) OF REVENUEOVER EXPENDITURES 113,548 (533,179) 811,368 2,036,054 2,427,791 437,673

Statement of Changes in Net AssetsDecember 31, 2006



$ $ $ $ $ $BALANCE, BEGINNING OF YEAR 1,300,000 1,030,142 2,464,778 100,000 4,894,920 ,4,457,247

Excess (deficiency) revenue over expenditures ,0113,548 (533,179) 811,368 2,036,054 2,427,791 437,673Inter-fund transfers (113,548) 350,000 (236,452)

BALANCE, END OF YEAR 1,300,000 846,963 3,039,694 2,136,054 7,322,711 4,894,920

Note 1: Certain comparative amounts have been reclassified to conform to the current year financial statement presentation.

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