A National Gateway to Self-Determination

funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

SCALING-UP SELF-DETERMINATION Tools from the National Gateway to

Self-Determination

A National Training Initiative on Self-Determination

A National Gateway to Self-Determination

funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

AGENDA • Introduction to the National Gateway to Self-Determination

Carl Calkins, Ph.D. and Michael Wehmeyer, Ph.D., Co-PIs of the National Gateway to Self-Determination

• Role of Self-Advocates in the National Gateway to Self-Determination Activities

Tia Nelis, Institute on Disability and Human Development, University of Illinois- Chicago; and

Laura Jackson, MPA, Institute for Human Development, University of Missouri- Kansas City

• Resources Available through the National Gateway to Self-Determination

George Gotto, Ph.D., Institute for Human Development, University of Missouri- Kansas City

• Questions and Answers

George Jesien, Ph.D., Executive Director, Association of University Centers on Disability

A National Gateway to Self -Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

UCEDD Leadership Consortium Members

• Carl F. Calkins, PhD, Co-PI • Institute for Human Development at University of Missouri-Kansas City

• Michael L. Wehmeyer, PhD, Co-PI • Kansas University Center on Developmental Disabilities at University of

Kansas

• Ansley Bacon, PhD • Westchester Institute for Human Development in affiliation with New

York Medical College

• Tamar Heller, PhD • Institute on Disability and Human Development at University of Illinois

• Hill Walker, PhD • Center on Human Development at University of Oregon

A National Gateway to Self -Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

National Self-Determination Alliance Members

• Self-Advocates Becoming Empowered (SABE)

• AUCD, including the Council on Community Advocacy (COCA)

• National Leadership Consortium on Developmental Disabilities

• College of Direct Support (CDS)

• National Association of Councils on Developmental Disabilities (NACDD)

• National Disability Rights Network (NDRN)

• National Association of State Directors of Developmental Disabilities Services (NASDDDS)

• National Sibling Leadership Network

• National Family Voices including Kids as Self-Advocates

A National Gateway to Self -Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Defining Self-Determination

We understand self-determination to refer to a characteristic of a person that leads them to make choices and decisions based on their own preferences and interests, to monitor and regulate their own actions, and to be goal-oriented and self-directing.

A National Gateway to Self -Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Self-Determination in Practice

Mediating Variables

• Social Capital

• Social Effectiveness

• Social Inclusion

All of our work is framed through a social ecological approach which reflects the interaction of factors in both the personal and environmental domains.

A National Gateway to Self -Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Self-Advocates Define Self-Determination

What is Self-Determination and Why is it Important?

A National Gateway to Self -Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Purpose The overall goal of this project is to:

• Build the capacity of UCEDD network to scale-up self-determination;

• Establish a sustainable, evidence-based training system that promotes self-determination;

• Integrate these efforts through the DD network including individuals with disabilities, family members, professionals, and policy-makers.

A National Gateway to Self -Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Task Forces

Through an extensive literature review, the National Gateway to Self-Determination identified a number of barriers and training gaps. Based on this review, we developed five task forces, each of which are responsible for scaling-up research to practice efforts in their focus areas.

A National Gateway to Self -Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Task Force Priorities

• Self-Advocacy (Research to Practice Issue #1, April 2011)

– chaired by Carl Calkins, PhD (Missouri)

• Employment (Research to Practice Issue #2, October 2011)

– chaired by Michael Wehmeyer, PhD (Kansas)

• Health (Research to Practice Issue #3, December 2011)

– chaired by Ansley Bacon, PhD (New York)

• Aging (Research to Practice Issue #4, January 2012)

– chaired by Tamar Heller, PhD (Illinois)

• Community Living (Research to Practice Issue #5, April 2012)

– chaired by Brian Abery, PhD (Minnesota)

A National Gateway to Self -Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Role of Self-Advocates

• 2010 National SABE Conference SABE Survey using National

Core Indicators

• Research to Practice Issue #1

• Reviewed and Participated in all products and publications

A National Gateway to Self -Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Resources Available through the National Gateway to Self-Determination

A National Gateway to Self -Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Self-Determination in Practice

Includes videos of self-advocates discussing self-determination in their lives on subjects including:

• Employment

• Education

• Community Living

• Housing

• Many, many more

A National Gateway to Self -Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Resource Guide

• Search products

• Review products

• Nominate products

A National Gateway to Self -Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Related Materials

Aging

Abuse & Neglect

Health

Technology

Person-Centered Planning

Employment

Self-Advocacy

Community living

Education & Transition

Siblings

Family Roles

A National Gateway to Self -Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

• Self-Advocacy

• Employment

• Health

• Aging

• Community Living

Scaling-Up Self-Determination

A National Gateway to Self -Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

News and Events

A National Gateway to Self -Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Publication Highlights • Research to Practice

Issues

• White Papers

• Practice Guides

• Papers on Scaling-Up Efforts in Self-Determination

• National Gateway to Self-Determination Releases.

A National Gateway to Self -Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Social Media

• Facebook (http://www.facebook.com/gatewaytosd)

• Twitter (http://twitter.com/#!/gatewaytosd)

• YouTube (http://www.youtube.com/user/GatewaytoSD

• Listserv (http://www.aucd.org/ngsd)

A National Gateway to Self -Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Resources in Development • UCEDD Self-Determination Self-Assessment

Checklist is intended to provide each UCEDD with a tool to determine the degree to which its policies, activities, and staff are promoting self-determination for people with I/DD and their families.

• Research to Practice briefs in each additional task force priorities

– aging, community living, employment, health

• Toolkit for developing social capital

• Resources for advising self-advocates

A National Gateway to Self -Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Coming in 2012

• Self-Determination Program Development and Resources Workshop at AUCD 2012 for Directors and Key Leadership

A National Gateway to Self -Determination funded by the US Department of Health and Human Services, Administration on Developmental Disabilities

Questions, Suggestions, Input contact:

Carl Calkins (MO) - calkinsc@umkc.edu

Mike Wehmeyer (KS) - wehmeyer@ku.edu

Tamar Heller (IL) - theller@uic.edu

Ansley Bacon (NY) - ABacon@wihd.org

Hill Walker (OR) - hwalker@uoregon.edu