A Program of the UCLA-LIVESTRONG® Survivorship Center of Excellence

Patricia A. Ganz, M.D.UCLA Schools of Public Health & Medicine

UCLA-LIVESTRONG® Survivorship Center of Excellence: Testing Models

of Survivorship Care

UCLA

Los Angeles County as a Laboratory

• Most populous and diverse county in the US – 9,818,605 residents – 74.5 % 18 years and older – 10.9% 65 years and older – 50.3% White, 8.7% Black or African American,

13.7% Asian, 0.7% American Indian or Alaska Native, 0.3% Native Hawaiian/Other Pacific Islander, 23.5% some other race, 4.9% two or more races; 44.7 % self-identified as Hispanic or Latino ; 27% non-Hispanic white

– 35.6% foreign born

(source, US census data, 2010)

COE Management

Team

Internal RelationshipsExternal Relationships

External ScientificAdvisory Committee

Community Advisory Board

Internal Steering Committee

CommunityCollaborators

UCLA-LIVESTRONG® Survivorship COE Organizational Chart

UCLA/JCCC Perspective on Survivorship

• The Patients and Survivors program has as its major goal the reduction in avoidable morbidity and mortality among patients with cancer including long-term survivors

• Our research focuses on quality of life across the developmental life span and the measurement and evaluation of the quality of cancer care

and UCLA Medical Center

Fifth ranked medical center in the US

Best Cancer Care in California

VITA stands for.... “Vital Information and Tailored Assessment”

The VITA Program is the clinical arm ofUCLA-LIVESTRONG Survivorship COE

http://vita.mednet.ucla.edu/

•Fully accredited, full-service, 376 bed, nonprofit community medical center. •The South Bay’s first hospital, founded in 1971•Highest recognition in the community for quality and state-of-the-art medical

services in a 2004 survey conducted by National Research Corporation. •Selected as a Top 100 U.S. Hospital (2004, Solucient). •Accredited by the American College of Surgeons Cancer Program•Hospital cancer registry, with 1300 incident cases/year•Physicians at Health Care Partners Medical Group admit to TMMC

•A 377-bed-state-of-the-art County facility built in 1987

•In 1992, Olive View incorporated UCLA in its name becoming Olive View-UCLA Medical Center

•In May 1997, Olive View-UCLA Medical Center became a part of ValleyCare, a healthcare delivery system for the north San Fernando Valley, Los Angeles County Department of Health Services

Michelle Doose-Peña, MPH, CHESProgram CoordinatorUCLA Healthy Lives After Cancer Program…supporting teen & young adult survivors!Email: mdoose@mednet.ucla.eduFacebook: www.facebook.com/HealthyLivesAfterCancer Webpage: www.cancer.ucla.edu/HealthyLivesAfterCancer

Fertility Preservation Services

• UCLA Survivorship Center NP attended MSKCC Conference in October 2011 and met with NP in charge of fertility services consultation

• Conducted survey among UCLA oncologists and other providers to assess knowledge and attitudes towards these services

• Working with reproductive endocrinologists to develop in house referral program as well as regional resources

CDC Funding Received in September 2011 for three years.

www.facebook.com/YBCSprogram

Scope of Project

Needs Assessment

• Community Organization Assessment

• Patient / Survivor Interviews

23 Community Organization Interviews

Triple StepToward the Cure

Needs Assessment – Community Organizations - Summary of Findings

Gaps in services

#1 – Programs targeted toward young adults 21-45

-Fertility-Early menopause/menopause symptoms-Sexual functioning issues-Body image-Managing work/career

Top recurring issues

-Fatigue-Fear of recurrence-Side effects of treatment-Chemobrain-Psychological issues-Fertility-Return to work

Needs Assessment – Patient Interviews - Summary of Findings

Gaps

-Support groups for younger women-Fertility-Mentor/buddy matching program

Recurring Issues

-Fatigue-Cognitive issues – Chemobrain-Fear of recurrence

Needs

-Coping with the “new normal” post treatment – long term survivorship -Healthy lifestyle changes-Support groups for younger women

Total 18 interviewsAge range (at diagnosis): 27 to 45Age range (current): 29 to 54

Needs Assessment – Comparison of Findings

Gaps in services

-Programs targeted toward young adults 21-45-Fertility-Early menopause/menopause symptoms

- Sexual functioning issues-Body image-Managing work/career

Gaps

-Support groups for younger women-Fertility-Mentor/buddy matching program

Community Organizations Breast Cancer Patients

Needs Assessment – Comparison of Findings

Recurring issues

-Fatigue-Fear of recurrence-Side effects of treatment

-Chemobrain-Psychological issues-Fertility-Return to work

Recurring Issues

-Fatigue-Cognitive issues

- Chemobrain-Fear of recurrence

Community Organizations Breast Cancer Patients

Needs Assessment – Comparison of Findings

Needs

-Coping with the “new normal” post treatment – long term survivorship -Healthy lifestyle changes-Support groups for younger women

Breast Cancer Patients

Needs assessment – Lessons Learned

- Confirmed literature and clinical experience- Identified specific regional gaps in services- Helped to prioritize strategies for program development- Honing in on unique population needs that are difficult to address within large organizations

Internal Advisory Committee - Notes

PrioritiesFear of recurrenceCoping with the “new normal”ChemobrainFatigueReproductive & fertility servicesEarly menopause/menopause symptoms

Sexuality & Intimacy issues

Mission Statement

Mission Statement

The Young Breast Cancer Survivorship (YBCS) program is dedicated to enhancing the health and wellness of young

survivors of breast cancer. Our goal is to address the unique gaps in services that exist for this population by providing a regionally refined community resource listing of programs

and services that cater to the specific challenges that young survivors face. The YBCS program especially focuses on

psychosocial support services and educational programs aimed at providing education on coping with various

psychosocial issues.

Next Steps – Program Implementation

Psychosocial program development in process

Online resource libraryAwarded grant funding from UCLA’s Clinical and Translational Science Institute (CTSI)

Development of regional resources focused on reproductive services and fertility preservation

Media/Marketing

Facebook Pagewww.facebook.com/YBCSprogram

UCLA Jonsson Comprehensive Cancer Center Websitewww.cancer.ucla.edu/YBCS

Upcoming Events

Survivor Education Day*Special YBCS afternoon session

Questions?