‘back to normal’ difficult months after connor’s death · 2013-05-07 · c onnor haughn was...
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By JOY LEIKER • [email protected]
‘Back to normal’ difficultmonths after Connor’s death
"#
Connor Haughn was tougher than
anyone knew.
Though his life was cut short, the
5-year-old lived twice as long as the few other
children known to have his same form of cancer.
“In everything, he was just special,” said his father
Jeff Haughn, relaying the amazement of doctors at
Riley Hospital for Children in Indianapolis.
The Star Press followedConnor and his familythrough the final months ofthe little boy’s life. He diedin January, and an autopsyreport issued months laterfinally revealed the exactmakeup of the tumors thatfirst attacked his brainstem, and later invaded hisspinal cord.There are only eight
other documented casesof medulloepithelioma,and those children lived anaverage of 6 months.Connor lived 11 months.
‘I’ll always have three’It’s been seven months
since Connor died. The bit-ter cold and wind and snowfrom the day of his funeralseem like forever ago. And
his family is left to figureout its new normal.But normal is what is so
difficult most days.“How many kids do you
have?”It’s a question asked
often. But the Haughnsdon’t know how to answer.Sometimes, on the bad
days where she wants tocry and bemad that her son
is gone, Michelle Haughn’sreply is something like this:“A 14-year-old, a 7-year-oldand one who will alwaysbe 5.”Usually, the other per-
son’s mouth drops open.Unable to say anotherword, the person runsaway.
PHOTOS BY CHRIS BERGIN / THE STAR PRESS
MICHELLE HAUGHN and her daughter, Sarah, play with their new kitten, Boo Boo Kitty. The kitten was a welcome distraction for the familyfollowing Connor’s death in January. Connor’s favorite stuffed animal (below) sits in a basket in the living room next to the television.
" See HAUGHNS, 2A
About this storyThis is the seventh and final story in a series about Connor Haughn,
a 5-year-old who died Jan. 21 after an almost-year-long battle with
tumors that invaded his body. Reporter Joy Leiker and photographer
Chris Bergin have followed Connor’s, and his family’s, progress.
By SETH [email protected]
PORTLAND — Manure applied tofarm fields surrounding Grand LakeSt. Marys in western Ohio has helpedpoison the 13,000-acre lake.Andoneof thestateofOhio’s solutions
— transporting future manure to farmfields outside the watershed, includingfields in Indiana — has alarmed someHoosiers in East Central Indiana.“That’s literally passing the buck,
isn’t it?” asked Portland resident TonyGiltner, a radio personality in AdamsCounty who says manure from Ohio isalready being applied in Indiana.The fact that the Jay County Drainage
Board clearcuts ditch vegetation thatcould act as a buffer to trap manure run-off from farm fields is another reasonGiltner is concerned. “I thought clear-cutting went out with the Dust Bowldays,” he said.Grand Lake St. Marys, Ohio’s largest
inland lake, is degraded by blue-greenalgae that can produce neurotoxinsaffecting the nervous system and hepa-toxins that affect the liver.
Ohio wantsto dumpmanureproblemon ECI
By MICHELLE [email protected]
MUNCIE — John Norton called it afamily reunion.They gathered at Shelter No. 4 at
Westside Park on Saturday afternoon.There were hot dogs and hamburgers,fruit salad and paper plates. Therewere stories. There were kids blowingbubbles. There was laughter.Yes, this was a family reunion all
right. But this was a different kind offamily.“We are all very different people,”
Ray Ashbaugh, 81, said as he leanedback against the picnic table and lookedaround. “But we all have this one thing,this one place, in common.”“This place” is the Delaware County
Children’s Home, which stood for90 years on Kilgore Avenue beforebeing replaced in 1993 by the YouthOpportunity Center.
# An excess of excrement isfueling an algae bloom that’spoisoning Grand Lake St. Marys.
‘FAMILYREUNION’# Former residents of theDelaware County Children’sHome gather for a reunion.
" See REUNION, 2A
" See MANURE, 4A
WWW . T H E S T A R P R E S S . C OM
There are other days it’seasier to talk only aboutGray, 14, and Sarah, 5. Shecan beat herself up later fornot mentioning Connor.“To me, I’ll always have
three (kids,)” said Jeff.Of course, sometimes,
the search for normal isgood. This summer hadsome All-American high-lights.Gray hit his first home
run, and Sarah — never tobe topped by her brother’sstorytelling — is proudthat after a softball seasonwhere she struggled at theplate, in her last at bat shehit one down the third baseline.The back yard of
their home along SouthBurlington now features aswimming pool. It had beenConnor’s dream to have apool at home. In fact, lastsummer Michelle had start-ed the paperwork to makeConnor’s dream come truewith the Make a WishFoundation, but the paperswere never completed.Now, it’s Jeff and
Michelle’s dream to makethe back yard somethingtruly special with landscap-ing and a plaque or statueto remember their son.“When they were putting
(the pool) up, it was OK,”Michelle said. “But wheneverybody left, that was thehard part. Knowing he’llnever be able to partake inwhat he wished for.”
‘It gets frustratingsometimes’There are many smaller
reminders of Connor scat-tered around the Haughnhome.Framed photos.
Decorative butterflies thatwere part of the flowerarrangements at his funer-al. And his favorite toy, astuffed dog that he lovedand carried since he was ababy. Michelle removed itfrom his casket and tuckedit under her arm the day ofthe funeral.It’s part of a small dis-
play in the family’s livingroom.But it’s too much for any
of Connor’s grandparentsto bear. Jeff said his par-ents will come and standinside the front door fortheir entire visit. Michelle’sparents prefer to breeze
through the living roomand head for the kitchen.“It gets frustrating some-
times,” Jeff said.But everyone grieves
differently. The Haughnsknow that. So they takeanother deep breath and goon. And they give plenty ofthanks for the distractionsthat have come their way.In April Sarah’s two gold-
fish died, “so we flushedthem and sent them toConnor,” the second-gradersays matter of factly.The next day, they found
four tiny kittens outsidetheir home. Sarah’s con-
vinced Connor sent them.So the Haughns became
rescuers. They fed the kit-tens with bottles and oohedand aahed as they even-tually opened their eyes.Every three hours it wasfeeding time.They found homes for
three of the kittens andkept one, Boo Boo Kitty.“They were a great dis-
traction,” Michelle said.“Just kept me busy.”
‘Maybe they’re sick oftalking to me’In addition to dealing
with their loss, Connor’s
cancer prompted someother big changes in theHaughn house. Jeff, whohad worked an unpredict-able schedule at RuralKing, recently took a newjob with Warner Supply,a plumbing supplier inMuncie. He now worksdays and has his weekendsfree.“After all that I wanted
to spend time with myfamily,” Jeff said.Sarah, just 13 months
older than Connor, wasmore like his twin than hisbig sister. They shared aroom, so now Sarah trulyis queen of her kingdom.And even though there’s alot more pink and purplenow, she kept one of hisposters on the wall. Andher hair is shorter now.Last month she choppedoff 10 inches to donate toLocks of Love.Michelle has sorted
Connor’s clothing, butcan’t bring herself to getrid of any of his toys yet.“I think I’ve been pro-
crastinating on that,” shesaid.Sitting in the living room,
it’s easy for this family totalk about Connor. Graytalks about the songs his
little brother sang, and howfor a while Connor wantedto eat only one thing.As if on cue, they each
yell, “I want a chicken chi-michanga!”They see and feel him
in tons of tiny ways everyday.The black and blue but-
terflies in the yard areexactly like the pretty onesfrom the funeral flowers.Michelle’s cell phone playsasongtheysungatConnor’sfuneral. “Godspeed, littleman. Sweet dreams littleman.”She worries that she
talks about him too much.That her friends are sickof hearing Connor stories.That she’s taking too longto get over it.“Maybe they’re sick of
talking to me. I start towonder if people are likethat,” Michelle said. “Youput on that front in front ofother people.”
‘Getting backto normal’There is good news in
the Haughn house.They believe every med-
ical bill is paid. (The billfor the last 100-plus dayswas $2 million.) The socialworker assigned to Connorat Riley was a lifesaver,they say, as was the factConnor was approved forMedicaid.“If we went to a normal
hospital, we’d be in medi-cal bankruptcy for sure,”Jeff said.And even bigger than
that: they can finally restknowing Gray and Saraharen’t going to developConnor’s same cancer. Itusually rears its ugly headby age 5.“I think we’re getting
back to normal,” Michellesaid.
# Contact education reporterJoy Leiker at 213-5825.
MU_MN_1ST_08-30_N_B_A_2_K
Page designer: Chris Simons, 213-58532A • Monday, August 30, 2010 www.thestarpress.com FROM THE FRONT PAGE
CORRECTIONS & CLARIFICATIONS
The names of DaneCook and Gary Friendwere omitted from the BallState University dean’slist published Aug. 25. Anannouncement is on page4A today.
We regret the error.
# The Star Press makesevery effort to publish fair andaccurate information, and it isour policy to acknowledge andcorrect errors promptly. Readersare urged to call mistakes to ourattention by telephone, 747-5754,9 a.m.-10 p.m. weekdays, 3-10p.m. weekends and holidays.
HAUGHNSContinued from 1A
They see and feel him in tons of tiny ways every
day. The black and blue butterflies in the yard
are exactly like the pretty ones from the funeral
flowers. Michelle’s cell phone plays a song they
sung at Connor’s funeral. “Godspeed, little man.
Sweet dreams little man.”
Connor is pictured (at left) before he got sick
PHOTOS BY CHRIS BERGIN / THE STAR PRESS
JEFF HAUGHN smiles as his family talks about Connor seven months after his death. Jeff started a newjob with better hours to spend more time with his family after Connor’s death.
GRAY HAUGHN plays with the family’s new kitten at the Haughnhome. The kitten was a welcome distraction following the death ofConnor, Gray’s little brother.
Ashbaugh lived therewith his two younger broth-ers for four years, beginningin 1938.“We had some good times
there,” he said with a smile,his wife of 63 years, Roberta,at this side. “I don’t remem-ber much, but I do remem-ber making bead braceletsand catching butterflies toput on display. I remem-ber dipping them in alcoholand them putting them on aboard with pin.”He doesn’t remember
why he was there. At leastnot the specifics.“Who knows?” he said
softy. “My folks were break-ing up at the time.”Nearby, John Norton,
organizer of this reunion,was catching up with Dee(Brown) Humbles.Both lived at “the home”
in the 1980s. They spokeof the weekend movies andtrips to Shakey’s Pizza. Theyrecalled the chore lists.Then they mentioned the
“level zero” punishments— the worst you could get— for violations such asrunning away or fighting.“You couldn’t talk to any-
one; that was torture for a
teenager,” Humbles saidwith a laugh.“Didn’t you run away?”
Norton asked her. Shegrinned sheepishly. “Wedon’t need to talk aboutthat.”Norton, who now lives in
Hartford City and runs theIron Skillet on I-69, decidedto put up a DCCH Facebookpage a few months ago. “Ijust thought it would beneat to see who would findit,” he said.Within a few weeks, 30
people had made their wayto the page and were post-ing pictures and updates ontheir lives.“So I threw out the idea
of a reunion and peopleseemed interested,” he said.Nearly 10 former resi-
dents, as well as employees,showed up, along with theirfamilies.“I loved it there,” Norton
said of DCCH. “I guesssome people have horrorstories about it. We all hadour trials and tribulationsthere. But, to me, it was themost enjoyable time of mylife. They were my family.”After Norton’s mother
moved to Vegas, he wasshuffledamongrelativesandfoster homes before land-ing in the county children’shome in 1984. He left a year
later to join the Army.“Then, I didn’t tell any-
one where I lived. … kidscan be cruel,” Norton said.“But now I don’t have aproblem telling anyonewhere I was.”Jill Edmonds, who trav-
eled from Ohio for thereunion, was a “house par-ent” and office worker atthe home from 1982 to 1986.“As a house parent, you
pretty much lived therewith them,” she said. “I stillcall those girls my kids.”One of those girls was
Humbles, who is now a reg-istered nurse in Portland.“You know, I hated it
when I was there,” she said.
“But it was the best thingthat ever happened to me.”She put her arm around
Edmonds and gave her asqueeze.Humbles lived in the
girls’ dorm from age 13 to 17.“I was in a very abusive andneglectful environment,”she said, referring to hermother’s home. She addedthat some of the kids wholived at the children’s homewere delinquents, but mostof them were from “badhomes.”Evelyn Green, 70, spent
about a year at the home,beginning in 1955.“I likedmydormmother a
lot,” she said. “Mrs. Hughes.
She was real sweet.”She laughed. “Of course,
she didn’t like it when Itried to do tricks on my roll-er skate, because I only hadone leg. That really scaredher!”Green moved into DCCH
after her mother died andliving arrangements “didn’twork out” with other familymembers.She said she was a “good
kid” most of the time. “ButI had my moments,” shewhispered.As people mingled at the
reunion, the smell of grilledburgers began to fill the air.Donald Walsh was the manbehind briquettes.
“I was nominated,” Walshsaid of his “Grill Master”status as he began to pileburgers onto a foil-coveredplatter.Walsh spent 14 years at
the home. “I think I wasnine or 10 when I went in,”he said.When asked why, he
paused and put down hisspatula.“I just didn’t have any-
where else to go,” he said.“You know, abusive family.”He grabbed the platter
and headed toward the shel-ter.“I loved it there,” he said.
“I remember the bunk bedsand the foot lockers every-one had at the end of theirbeds.” His voice trailed offas he placed the burgers onthe picnic table.“Does anyone remember
the grace we said beforeevery meal?” he askedHumbles and Norton. “I’llnever forget it.”Humbles encouraged him
to share it.“Grace, the Lord, thank
thee for this food we areabout to receive for thenourishment of our bod-ies. In Jesus name we pray,Amen.”“Yep, that was it,” Norton
said with a grin before grab-bing a bun.
REUNIONContinued from 1A
KURT HOSTETLER / THE STAR PRESS
DEE HUMBLES leads the group in a prayer before they eat at the Muncie-Delaware County Children’sHome reunion Saturday in Westside Park. Dee’s last name was Brown when she lived in the home from1984-1987.
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