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ACTION ON PRE ECLAMPSIA- WHY ARE WE STILL NEEDED?
Marcus Green, CEO, APEC
ARE WE HERE FOR THE APEC BURTON AND DERBY STUDY DAY?
HOUSEKEEPING
HISTORY AND HEADLINES
APEC WAS SET UP IN 1992 BY ISABEL WALKER, A SUFFERER AND
PROFESSOR CHRIS REDMAN
Our vision is one of a future in which there
should be no deaths from pre eclampsia due to
sub-standard care.
UNDERSTANDING PRE-ECLAMPSIA
SOME ACHIEVEMENTS
PRECOG Guidelines (The Pre-eclampsia Community Guideline) 2004 and 2009
NICE Guidelines (2001)
Online training (2018)
Overseas growth (2017- date)
THE TEAM
KEY PEOPLE
THE LANDSCAPE
WHAT IS THE CURRENT LANDSCAPE
UK has the lowest recorded pre-eclampsia mortality rate globally
Since 2010,
• 18.8% reduction in stillbirths
• 5.8% reduction in neonatal mortality
• 8% reduction in maternal mortality
• Maternal mortality occurs in fewer than 1 in 10,000 pregnancies.
• Of the term babies who died in 2016, different care might have led to a different outcome for 71%
• Women from the poorest backgrounds and mothers from BAME groups are at higher risk of their baby dying in the womb or soon after birth
Shennan AH, Green M, Chappell LC. Maternal deaths
in the UK: pre-eclampsia deaths are avoidable. Lancet
2017; 389: 582-83.
GLOBAL PERSPECTIVE
Land Population density
Maternal mortality Perinatal mortality
WHAT APEC DOES
SOME OF WHAT WE DO
Helpline
Training materials
Publications
Midwife Study Days
Walker Redman Scholarship
Cradle VSA
Research
Working overseas
HELPLINE CALLS – COMMON THEMES
Fear for the future– previous bad experience, bereavement, don’t understand what has happened – WILL IT HAPPEN AGAIN?
Isolation – don’t know who to turn to, do not ‘get on’ with GP, don’t want to be a nuisance
Mistrust – don’t feel GP/midwife understands pre-eclampsia and potential risks
Aspirin – will it harm my baby? – very common
Debriefing – why did this happen?
What did I do wrong?
Support – I just need to talk to someone
WHAT YOU WILL LEARN ON THIS COURSE
Definitions used in hypertensive disorders of pregnancy.
The global burden on hypertensive disease
Maternal cardiovascular adaption in normal pregnancy
Pathophysiology of hypertensive disease in pregnancy
Risk factors for hypertensive disorders in pregnancy
Pre-conception care; reducing the risk factors.
Diagnosis
Complications
Eclampsia
HELLP syndrome
Monitoring
Correct measurement of blood pressure in pregnancy
Urine analysis
Management
Antenatal
Intrapartum care
Postnatal
Counselling women after a pregnancy complicated by pre-eclampsia
Care of women with chronic hypertension
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Action on Pre-Eclampsia
Walker, Redman
Scholarships
Recognising 25 years of supporting families, research and developing globally
RESEARCH
We back great science
We add the PPI voice
MBBRACE and NMPA
Trial Name Lead Organisation
BuMP RCT Professor Richard McManus The University of Oxford
CATCH Professor Anne Cathrine Staff University of Oslo and Division of Obstetrics and Gynaecology, Oslo
University Hospital, Norway
WATCH Professor Anne Cathrine Staff University of Oslo and Division of Obstetrics and Gynaecology, Oslo
University Hospital, Norway
Giant PANDA HTA Prof Lucy Chappell King’s College London
HAPPEE Professor Andrew Shennan and Professor
Mickias Musiyiwa
King's College London and University of Zimbabwe (UZ)
PHOENIX CIG Professor Lucy Chappell and Professor
Andrew Shennan
King's College London
PET RoR RT Asma Rosemary Townsend The Fetal Medicine Unit, Academic Department of Obstetrics and
Gynaecology, St George’s Hospital Medical School, London
iPLACENTA Kevin O’Reilly/Colin Murdoch Aston Medical School
Raya Vinogradov Newcastle upon Tyne NHS Foundation Trust
Maternal and Neonatal
Health and Care
Jane Sandall King's College London
Wellbeing of women
project grant
Mel Griffin
Pre-eclampsia research Dr James Cobley University of Highands and Islands, Inverness
Networks in Pregnancy
Project
Lisa Hinton University of Oxford
CRADLE VSA “We’re very proud of this device, it is unique for use in pregnancy. Not only can it accurately detect when a woman is in danger from high blood pressure or shock, but it also indicates, to untrained people when to act on this. I use it in my NHS clinic as it is superior to most existing devices for measuring blood pressure. - Prof Andrew Shennan OBE
GHAPEC
Approached by group in Feb 2017
Agreed to support
Launched in May on World Pre-eclampsia Day
We’ve supported
Access to CRADLE VSA
Access to Cowan, Redman, Walker book
Midwife training
Planning exchange programme in 2019
OUR GROWING VISION
We will be the go-to organisation for researchers needing patient/public involvement
We will campaign on behalf of mums, families and for babies
We will continue to widen our focus globally
We will support you to create great patient centred research
We will continue to be a source of advice and support to families
We will provide more excellent learning resources for midwives
We will not stop!
Follow us on Twitter @apec_uk and Facebook
Use our resources for research
Support our study days
Use the Cradle Device
Feedback how we can support you
Keep telling people about us
Anyone fancy running the London Marathon?
PLEASE CARRY ON SUPPORTING US!
Action on Pre-eclampsia
The Stables
80B High Street, Evesham
Worcestershire, WR11 4EU
twitter.com/APEC_UK
facebook.com/APEC.UK
01386 761848