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Delegate Resource Pack Adults with learning disabilities living in the community: combating isolation and supporting well-being and resilience A conference for practitioners on using creativity, nature, positive relationships, friendships, empowering family support and financial inclusion 20 November 2014 A conference

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Page 1: Adults with learning disabilities living in the community ... · reference group 11.45 Coffee 12.00 BUILDING FINANCIAL CAPABILITY AND RESILIENCE Kristina Leonnet, Project Manager,

Delegate Resource Pack

Adults with learning disabilities living in the

community: combating isolation and supporting

well-being and resilience

A conference for practitioners on using creativity, nature, positive relationships, friendships, empowering family support and financial inclusion

20 November 2014

A conference

Page 2: Adults with learning disabilities living in the community ... · reference group 11.45 Coffee 12.00 BUILDING FINANCIAL CAPABILITY AND RESILIENCE Kristina Leonnet, Project Manager,

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Page 3: Adults with learning disabilities living in the community ... · reference group 11.45 Coffee 12.00 BUILDING FINANCIAL CAPABILITY AND RESILIENCE Kristina Leonnet, Project Manager,

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Contents

Programme 4

Presentations 5

Page 4: Adults with learning disabilities living in the community ... · reference group 11.45 Coffee 12.00 BUILDING FINANCIAL CAPABILITY AND RESILIENCE Kristina Leonnet, Project Manager,

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Programme

9.15 Registration

10.00 INTRODUCTION AND PROGRAMME

Gerard Lemos, Partner, Lemos&Crane

10.15 COMBATING ISOLATION AND BUILDING WELL-BEING

Sue Grant, Team Manager, KeyRing

Leanne Dillon, Regional Manager, Community Integrated Care

Catherine Murray-Howard, Deputy CEO, Community Integrated Care

11.00 SOCIAL NETWORKS AND KEEPING SAFE ONLINE

Philip Vaughan-Williams, Lead Project Worker: ‘My Safe Social Network’, Papworth

Trust

Members of the Foundation for People with Learning Disabilities Voice and Community

reference group

11.45 Coffee

12.00 BUILDING FINANCIAL CAPABILITY AND RESILIENCE

Kristina Leonnet, Project Manager, Quaker Social Action

Rick Jensen, ‘Quids In’ Project Coordinator, The Camden Society

12.45 SPIRITUALITY AND EMOTIONAL WELL-BEING

John Coleby, Director, St Joseph's Pastoral Centre

13.15 Lunch

14.00 NATURE AND THE ENVIRONMENT FOR WELL-BEING

Sarah Vaughan-Roberts, Project Manager, Forty Hall Community Vineyard Ltd

14.30 CREATIVITY AND THE ARTS

Natalie Chivers, Community Projects Manager, London Symphony Orchestra

Mark Williams, Artistic Director and CEO, Heart n Soul

Mark Burgess, Vice-Chair, Heart n Soul

Paul Richards, Director, Stay up Late

4.15 Close

Page 5: Adults with learning disabilities living in the community ... · reference group 11.45 Coffee 12.00 BUILDING FINANCIAL CAPABILITY AND RESILIENCE Kristina Leonnet, Project Manager,

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Adults with learning disabilities living in the community: combating isolation and supporting well-being and resilience

A conference for practitioners on using creativity, nature, positive relationships, friendships, empowering family support and financial inclusion

An Action Against Cruelty conference produced by Lemos&Crane

20 November 2014 #AACWellbeing

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INTRODUCTION

Adults with learning disabilities living in the community: combating isolation and supporting well-being and resilience

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Gerard Lemos,

Partner,

Lemos&Crane

Adults with learning disabilities living in the community: combating isolation and supporting well-being and resilience

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Presentations

Page 6: Adults with learning disabilities living in the community ... · reference group 11.45 Coffee 12.00 BUILDING FINANCIAL CAPABILITY AND RESILIENCE Kristina Leonnet, Project Manager,

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Programme

10.00 INTRODUCTION AND PROGRAMME

Gerard Lemos, Partner, Lemos&Crane

10.15 COMBATING ISOLATION AND BUILDING WELL-BEING

Sue Grant, Team Manager, KeyRing

Leanne Dillon, Regional Manager, Community Integrated Care

Catherine Murray-Howard, Deputy CEO, Community Integrated Care

11.00 SOCIAL NETWORKS AND KEEPING SAFE ONLINE

Philip Vaughan-Williams, Lead Project Worker: ‘My Safe Social Network’, Papworth Trust

Katy Bessent and Michelle McDermott, Members of the Foundation for People with Learning Disabilities Voice and Community reference group

11.45 Coffee

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Programme

12.00 BUILDING FINANCIAL CAPABILITY AND RESILIENCE

Kristina Leonnet, Project Manager, Quaker Social Action

Rick Jensen, ‘Quids In’ Project Coordinator, The Camden Society

12.45 SPIRITUALITY AND EMOTIONAL WELL-BEING

John Coleby, Director, St Joseph's Pastoral Centre

13.15 Lunch

14.00 NATURE AND THE ENVIRONMENT FOR WELL-BEING

Sarah Vaughan-Roberts, Project Manager, Forty Hall Community Vineyard Ltd

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Programme

14.30 CREATIVITY AND THE ARTS

Natalie Chivers, Community Projects Manager, London Symphony Orchestra

Mark Williams, Artistic Director and CEO, Heart n Soul

Mark Burgess, Vice-Chair, Heart n Soul

Paul Richards, Director, Stay up Late

4.15 Close

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Page 7: Adults with learning disabilities living in the community ... · reference group 11.45 Coffee 12.00 BUILDING FINANCIAL CAPABILITY AND RESILIENCE Kristina Leonnet, Project Manager,

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COMBATING ISOLATION AND BUILDING WELL-

BEING

Adults with learning disabilities living in the community: combating isolation and supporting well-being and resilience

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Sue Grant,

Team Manager,

KeyRing

Adults with learning disabilities living in the community: combating isolation and supporting well-being and resilience

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Sue Grant

Team Manager

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Who are KeyRing and What do We do?

• Registered Charity started in 1990

• We support vulnerable people to live independently

• Over 100 Networks

• Support approx 1000 people

• Over 40 Local Authorities

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What is a Network?

• People with support needs (our Members) live in a small geographic area

• Facilitated by a volunteer, Network Members meet regularly, support each other and become meaningfully involved in their community

• This powerful model develops the skills and confidence of Members while adding value to the community

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KeyRing Networks

This is how a KeyRing

Network might look

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Gifts and Abilities

• Peer Support

• Identifying Skills

• Sharing Skills

• Community Integration

• Flexible support

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Positive Stories

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And More

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And More

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And More…

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Barriers that

prevent positive

relationships

Family history

Low self

esteem

How to do

it

Media

Negative

Influences

Avoiding

labels &

shame

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Page 11: Adults with learning disabilities living in the community ... · reference group 11.45 Coffee 12.00 BUILDING FINANCIAL CAPABILITY AND RESILIENCE Kristina Leonnet, Project Manager,

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Partners/Friends & Family

• Threats of and actual violence

• Financial abuse

• Sexual abuse

• Taking control of the flat

• Using drugs

• Psychological abuse

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JOHN

CASE STUDY 1

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JANE

CASE STUDY 2

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Page 12: Adults with learning disabilities living in the community ... · reference group 11.45 Coffee 12.00 BUILDING FINANCIAL CAPABILITY AND RESILIENCE Kristina Leonnet, Project Manager,

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Reflections

• Listen to your ‘inner voice’

• Take time

• Be there

• Don’t give up

• Look at all possible connections

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Positive Families

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Leanne Dillon,

Regional Manager,

and

Catherine Murray-Howard

Deputy CEO

Community Integrated Care

Adults with learning disabilities living in the community: combating isolation and supporting well-being and resilience

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Page 13: Adults with learning disabilities living in the community ... · reference group 11.45 Coffee 12.00 BUILDING FINANCIAL CAPABILITY AND RESILIENCE Kristina Leonnet, Project Manager,

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Who has the power?No need for people to feel isolated

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We’re pleased to meet you!

• Leanne – Regional Manager.

• 13 services for people with Learning Disabilities.

• Supported Lemos & Crane report – Loneliness and Cruelty.

• Cath – Deputy Chief Executive.

• Passionate about people we support having a voice

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Page 14: Adults with learning disabilities living in the community ... · reference group 11.45 Coffee 12.00 BUILDING FINANCIAL CAPABILITY AND RESILIENCE Kristina Leonnet, Project Manager,

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Why do people become lonely?

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Don’t get on with people they live with

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Not enough hobbies and interests

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Page 15: Adults with learning disabilities living in the community ... · reference group 11.45 Coffee 12.00 BUILDING FINANCIAL CAPABILITY AND RESILIENCE Kristina Leonnet, Project Manager,

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People not getting to know you

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Communication difficulties

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We’re a changing organisation…

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Community Integrated Care

One of UK’s largest charities.

Support 5,000 people

Employ 5,000 staff

£102m

Learning disabilities, autism, mental health concerns and

age-related needs.

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How we’re now supporting people so much better than before…

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Page 17: Adults with learning disabilities living in the community ... · reference group 11.45 Coffee 12.00 BUILDING FINANCIAL CAPABILITY AND RESILIENCE Kristina Leonnet, Project Manager,

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Personalisation ….

Matching staff

Knowing person

Recruitment

Hours

Active and full,normal lives

Valued member ofsociety

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4 Key Parts to the plan

10,000

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4 Key Parts to the plan

Support Plans

10,000

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4 Key Parts to the plan

Support Plans

10,000

More time for Managers

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Page 19: Adults with learning disabilities living in the community ... · reference group 11.45 Coffee 12.00 BUILDING FINANCIAL CAPABILITY AND RESILIENCE Kristina Leonnet, Project Manager,

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4 Key Parts to the plan

Support Plans

10,000

More time for

ManagersTraining

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Person Centred Tools…

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One Page-Profiles…

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Matching support…

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Communications Charts…

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Page 21: Adults with learning disabilities living in the community ... · reference group 11.45 Coffee 12.00 BUILDING FINANCIAL CAPABILITY AND RESILIENCE Kristina Leonnet, Project Manager,

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Also….we’re changing the balance of power…

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The Voice...of the people we support

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Driving up Quality (or ‘good’ to ‘great’)...

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Page 22: Adults with learning disabilities living in the community ... · reference group 11.45 Coffee 12.00 BUILDING FINANCIAL CAPABILITY AND RESILIENCE Kristina Leonnet, Project Manager,

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Ways we’re using the standards

• PUBLIC PLEDGES which are based on the standards

• New support planning documentation.

• PAID EMPLOYMENT to people who use our services

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Meet our Peer Reviewers!

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Do we meet the Quality of Life standards?

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Page 23: Adults with learning disabilities living in the community ... · reference group 11.45 Coffee 12.00 BUILDING FINANCIAL CAPABILITY AND RESILIENCE Kristina Leonnet, Project Manager,

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They are our change makers!

• Training on values and attitudes

• Challenge our management teams

• Status & respect – paid employees

• They’ve opened eyes – rotas enhanced, support plans improved, inspired many people!

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This is what it means to our Assessors!

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What is their impact?

Shortlisted for the Putting People First

Award at upcoming Great British Care

Awards!

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Don’t take our word for it…

People we support speak for themselves…

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“They all shout too much and I get annoyed, I would like to have my own home.”…

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“Although this is my own home I don’t know about a tenancy agreement and don’t have my own front door keys.”…

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“It took me a while to settle in my new home, as the residential college that I came from didn’t give my new staff good information about how best to support me. ”

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“I take a real pride in my appearance and love music, which I have an excellent ear for! Understanding the importance of my routine is vital to best support me”

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“The staff that support me have a useful tool that charts when my behaviours are good and not so good.”

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Page 26: Adults with learning disabilities living in the community ... · reference group 11.45 Coffee 12.00 BUILDING FINANCIAL CAPABILITY AND RESILIENCE Kristina Leonnet, Project Manager,

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Some final thoughts…

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Our final thoughts…

• People they support are citizens, not tourists

• STARTS…being valued!

• Great support is built upon great relationships

• Support is about things that are important to people, not just important for them.

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Thank youAny questions?

[email protected]@c-i-c.co.uk

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SOCIAL NETWORKS AND KEEPING SAFE

ONLINE

Adults with learning disabilities living in the community: combating isolation and supporting well-being and resilience

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Philip Vaughan-Williams,

Lead Project Worker: ‘My Safe Social Network’,

Papworth Trust

Adults with learning disabilities living in the community: combating isolation and supporting well-being and resilience

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My Safe Social Network

An approach to Digital EmpowermentThe Museum Street Centre, Ipswich, Suffolk

Philip Vaughan-Williams

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Who and Where?

• Day care environment for disabled adults

– Running skill based learning sessions

– Delivered by qualified teachers of Adult Education

• Staff team that are passionate about ensuring:

– Empowerment

– Inclusivity

• Clients who want to take part in all aspects of daily life

– In the same way that their peers, family and friends do

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Identifying the Need

• ‘Sometimes it isn't fair’

• ‘Its just the way it is’

• ‘They wont let me’

• ‘I'm bored in the evenings at home’

• ‘I cant afford to get out every night’

• ‘Mum doesn’t think I can do it’

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What We Did About It…

• Email address and blogs for clients

– to have their say about all aspects of their centre by committee

– to showcase their work

• Introductory 6 week course to online safety and privacy

• Working with other organisations

– (E.g. Suffolk Hate Crime Service)

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What We Did About It…

• In-house course on setting up social media with a focus on security and privacy settings

• Developing unit qualification in partnership with Gateway Qualifications (formerly OCN Eastern region)

• Introducing self directed E-Learning using My

Guide

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Of Course There Are Barriers…

• A shift in the power balance between service providers/funders and client

• Parental concern of perceived risk, preventing people using their skills in their home

• Clients not feeling empowered to speak up and challenge those who stood in their way

• Cost

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Removing The Barriers

• Learning, learning and more learning!– Driven by our clients desire to connect with their

friends and being included in the digital world

• Conversation, inclusion and discussion has been a valuable tool in removing barriers– When everyone understands what is happening there is

less fear of the unknown

• Quantifiable and measurable approaches– e.g. qualification courses for learners and training for

staff and volunteers

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The World Moves On…

• Organisations used to have PCs that clients

used to access the internet

– Easily monitored

• Now clients have their own tablets and

smartphones with 3G

– Not easy to monitor

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Developing The Project

• Up-to-date devices and a new E-safety course

– Written by Gateway Qualifications

• Pilots for parent and carers evenings to provide learning, clients and staff have been running training together

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Where Next?

“I know with absolute certainty that the answer to

this lays with each and every person that I support

on a daily basis, that we must not be fearful, but

embrace our shared digital journey”

Philip Vaughan-Williams

November 2014

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Katy Bessent and Michelle McDermott,

Members of the Voice and Community Reference

Group,

Foundation for People with Learning

Disabilities

Adults with learning disabilities living in the community: combating isolation and supporting well-being and resilience

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Social networking

and staying safe

online

Katy Bessent

Michelle McDermott

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The hate crime, bullying

and harassment project

− The Foundation for People with Learning

Disabilities (FPLD) and Lemos and Crane

worked together on a project about bullying,

hate crime and harassment of people with

learning disabilities

− A reference group of people with learning

disabilities helped the Foundation and Lemos

and Crane to think about this work

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Aims of the project

There were two parts to the project:

1. Research into the experiences of

people with learning disabilities of hate

crime, bullying and harassment

2. Looking at how we can prevent people

with learning disabilities from

experiencing hate crime, bullying and

harassment in the future

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Resources from the project

− Lemos and Crane wrote the Loneliness and

Cruelty report (2012). FPLD and the reference

group helped with this

− FPLD with the reference group wrote two easy

read guides on ‘Staying Safe on Social Media and

Online’ and ‘Staying Safe Out and About’

- FPLD ran a campaign to improve the way people

with learning disabilities are shown in the media

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Staying Safe on social

media and online

The reference group and FPLD met to talk about some

of the ways we could help stop hate crime, bullying and

harassment towards people with learning disabilities

A lot of people with learning disabilities have

experienced abuse on social media websites like

Twitter and Facebook

Some people feel too scared to use these websites as

they are worried about their safety or about being

abused

We chose to write an easy read guide to using some of

the most common websites like Twitter, Email and

Facebook to show people how they can stay safe

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Social media is

good because:

Helps you connect with

people

Keeps people up to

date about news and

gossip

Good way to

share pictures

and stories

you like

You can play games

online

Its helps you keep

in touch with

people who live far

away or who you

don’t see often

You can find out

about things you

are interested in

It helps you meet

new people who

like the same

things you do

It helps you find

out about jobs

and network

with people

It is important people

with learning

disabilities learn about

new technology

It helps stop

people being

lonely

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Our key messages about using

social media and the internet

1. Information is really important for people with

learning disabilities and those who support them.

Its good to know about:

• Privacy settings

• How the sites work

• Who can access your information

• What problems there might be

• Passwords

2. Having support to use social media helps to keep

people safe. Knowing what to do if things go

wrong and having someone to ask for help is

important

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Our key messages about using social media and the internet

3. Knowing who to connect with online is important.

Websites like Skype, Twitter and Facebook all

have different ways of connecting with people. Its

important to know who you should be ‘friends’ with

on these sites

4. Knowing about viruses and scams is important to

keep people safe. Having good anti-virus software

will help

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Our key messages about using social media and the internet

5. Knowing the difference between using

social media for your job and using social

media for your personal life is important

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What we would like in the

future:

a. Social media is seen as a way of keeping

people safe because they are connected to

others

b. Courses are run in schools, colleges and

community centres on how to safely use

social media

c. Support staff learn how to use social

media and use this to help the people

they support e.g. to talk to their friends,

speak up about what’s important to them

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d. Family carers know about the benefits of

social media and how they can help to make

sure it is used safely

What we would like in the

future:

e. More accessible information to support

people with learning disabilities to safely use

social media. People know about the Staying

Safe on social media and online guide and

use it to keep safe.

(This can be found on FPLDs website)

www.learningdisabilities.org.uk/hatecrime

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Our experiences of social

media

Katy Bessent

Michelle McDermott

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The Foundation for People with Learning Disabilities promotes the

rights, quality of life and opportunities of people with learning

disabilities and their families. We do this by working with people

with learning disabilities, their families and those who support

them to:

- Do research and develop projects that promote social inclusion

and citizenship

- Support local communities and services to include people with

learning disabilities

- Make practical improvements in services for people with

learning disabilities

- Spread knowledge and information.

For more information contact us on:

[email protected]

0207803 1100

Foundation for People with Learning Disabilities

For more information on this work see

www.learningdisabilities.org.uk/hatecrime

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BREAK

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BUILDING FINANCIAL CAPABILITY AND

RESILIENCE

Adults with learning disabilities living in the community: combating isolation and supporting well-being and resilience

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Gerard Lemos,

Partner,

Lemos&Crane

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93% of people interviewed

had experienced some

form of harassment, abuse

or related crime in the

community

Building financial capability and resilience

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“I think people go into

relationships with me

because I am vulnerable

and they think they can get

away with things.”

Building financial capability and resilience

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Research phase

“[I have a] money

bank account. I don’t

know what it’s called.”- Baseline questionnaire

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Research phase

• Relationships hugely significant

• Money a short-term, routine experience

• No concept of price

• Future planning

• Lack of confidence

• Low aspirations

• Clear priorities for good quality of life

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Kristina Leonnet,

Project Manager,

Quaker Social Action

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Made of Money

Image Sebastien Braun

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Made of Money

an award winning financial education project

run by east London charity Quaker Social Action

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Made of Money

Futureproof

MoneytalkBournemouth

Skint!

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Made of Money Parent Workshops

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Made of Money Family Learning

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Made of Money Capacity Building

Training

Made of Money Facilitator Training

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Our beliefs about financial literacy…

•Need to take into account the whole family- children, carers, parents, extended family, partnerships

•Support changes in behaviours and attitudes, not just teach new skills

•Need to give people room to reflect, talk, express emotions around money and the pressures they face

•Need to look not just at money skills- budgeting, debt, saving, but also looking at the ‘credit’ culture, advertising, branding, peer pressure, communication, emotions

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What Made of Money Covers

Budgeting

Values, Attitudes, and Emotions

Credit & Debt

CommunicationChildren and Money

SavingsAdvertising, Branding, & Consumer Culture

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•96% felt greater control over their finances•99% were making active changes, such as keeping a spending diary, budgeting, or saving money

•94% felt less stressed / anxious about money•92% said their conversations around money had improved•84% felt more confident dealing with banks and businesses•98% share what they learnt with family and friends•93% of people were better off financially after coming to a course, with 44% over £10 a week better off

Some key impacts from our work with parents:

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What are its credentials?

• Made of Money won a Centre for Social Justice Award 2011• New Philanthropy Capital has recognised it as an “innovative approach”

to financial literacy• QSA won a CAF Charity Award for ‘Made of Money’

•Parents are more in control of their money•More confident about dealing with money issues

•Have better communication in and outside the home around money

Made of Money has rigorous evaluation to show its impact on parents:

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Made of Money020 8983 5043

[email protected]/madeofmoney

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Rick Jensen,

Project Coordinator: ‘Quids In’,

The Camden Society

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Quids In

Financial literacy for people with learning disabilities

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Origins

• Based on Made of Money by QSA

• People with disabilities rarely have control:

– Are often taken advantage of

– Have a severe lack of basic education around money

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Focus group outcomes

• Little understanding of basic values

• Literacy

• Reliant on benefits

• Differences in age groups

• Modest or highly unrealistic ambitions

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The Course

• Addresses mostly the same issues as Made of Money

• More focus on safety/abuse

• More focus on understanding values

• Developing a one to one model

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SPIRITUALITY AND EMOTIONAL WELL-BEING

Adults with learning disabilities living in the community: combating isolation and supporting well-being and resilience

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John Coleby,

Director,

St Joseph’s Pastoral Centre

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Working with people

with learning disabilities

Caritas St Joseph’s

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Active Faith

Transforming Communities

Values

Background

Approach

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Values

Dignity of the Human Person

Community of welcome and Belonging

Love expressed in Friendship and personal

commitment

Creativity which both challenges and lifts the

spirit

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Why?

Motivation?

Triggers?

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How?Relationships

Listening

Recognition

Training

Learning

Awareness raising

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What?

Family Support

Worship

Teaching- Awareness raising

Life Long Learning

Spirituality

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Where?

Parish and local Communities

Schools

Life Long learning Centre Hendon

Satellite Centres

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SpiritualitySPRED

L’Arche

Foundation for People with Learning

Disabilities

John Swinton

Kairos Forum

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Building relationships

Within family and community

With friends

With local community and work

With oneself : self-esteem

With one’s world

With God

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Enriching My LifeWho am I?

Why am I alive?

What can I do?

Who do I share my life with?

What is love? Where do I find it?

Knowing and Feeling the Holy One Amongst Us.

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Friendship and Belonging ‘..rely on their relationships with others for the development of

their understanding, not only of who and what they are in themselves, but also of who and what God is’

‘Friendship offers a spiritual key to changing the life experiences of people who find themselves in this situation. As such it is a highly significant form of spiritual care’

‘a space to listen’Meeting the spiritual needs of people with learning disabilities: John Swinton The University of Aberdeen

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The Future

Journey

Solidarity

No ‘us and them’ only ‘us’

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SEEDS

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Meeting spiritual aspirations of adults

with learning disabilities

• Spiritual belief and practice important to

many people with a learning disability

• Expression, not comprehension

• Lack of confidence and clarity in faith

communities and adult social care

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Meeting spiritual aspirations of adults

with learning disabilities

• Practitioner action research group

• Research role and value of spirituality and

faith for service users

• Development and dissemination of practical

guidance and resources

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Meeting spiritual aspirations of adults

with learning disabilities

• Initial meeting 15 January 2015

[email protected]

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LUNCH

Adults with learning disabilities living in the community: combating isolation and supporting well-being and resilience

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NATURE AND THE ENVIRONMENT FOR WELL-

BEING

Adults with learning disabilities living in the community: combating isolation and supporting well-being and resilience

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Sarah Vaughan-Roberts,

Project Manager,

Forty Hall Community Vineyard Ltd

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CREATIVITY AND THE ARTS

Adults with learning disabilities living in the community: combating isolation and supporting well-being and resilience

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Natalie Chivers,

Community Projects Manager,

London Symphony Orchestra

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LSO Create

LSO Discovery programme for adults with learning disabilities and their

carers

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Overview

• LSO performs over 60 concerts per year at the Barbican Centre in London

• Regularly tour Europe, the US and other places such as India, and Australia

• They do a lot of recording for films such as ‘Star Wars’, ‘Harry Potter’, ‘Superman’, ‘James Bond’ and a lot more

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LSO Discovery

LSO Discovery runs hundreds of projects and events every year away from the main concert platform

Children in hospitals and nurseries

School children (including special schools)

Young musicians of any standard

Families

Adults with learning disabilities

Music students & Composers

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LSO Create

Four areas:

– Monday Club at LSO St Luke’s

– Intensive project resulting in a performance

– Outreach Visits

– Concert opportunities for participants as audience members

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Monday Club

• Takes place 10 times a year

• For regular members and new people

• Mix of individual members and day centres

• At Monday Club, participants are given lunch and a chance to socialise

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Music leaders and LSO musicians help the participants:

– Create their own music based on LSO concert programmes

– Learn new instruments

– Lead and follow and make their own decisions

– Think about turn-taking and silences

Monday Club

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London Symphony Orchestra

LSO Discovery

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Music leaders and LSO musicians help the participants:

– Create their own music based on LSO concert programmes

– Learn new instruments

– Lead and follow and make their own decisions

– Think about turn-taking and silences

Monday Club

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Music leaders and LSO musicians help the participants:

– Create their own music based on LSO concert programmes

– Learn new instruments

– Lead and follow and make their own decisions

– Think about turn-taking and silences

Monday Club

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London Symphony Orchestra

LSO Discovery

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Music leaders and LSO musicians help the participants:

– Create their own music based on LSO concert programmes

– Learn new instruments

– Lead and follow and make their own decisions

– Think about turn-taking and silences

Monday Club

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Intensive Project

• Chance for a small group of participants to perform their work

• Performances usually held at:

– LSO St Luke’s

– The Barbican Centre foyer before LSO Concerts

• Often cross-arts, so music and dance, or music and drawing

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Photos

• Barbican Centre / Cross arts

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June 2014 concert:Rites of Passage

• First time the group have played with the whole string section of orchestra

• First time they have played on the Barbican stage

• The participants created their own piece ‘Unease’ with composer Howard Moody

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Challenges so far

• Space of building

• Capacity

• Ability to reach everyone as much as possible

• Challenges of working with participants with profound and multiple learning disabilities

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From 2014 onwardsFunding from City Bridge Trust enabled us to continue and expand the programme!

The Monday Club has helped Dina to control many of her autistic mannerisms; she can now keep calm and quiet, while taking part playing her cello. Dina is now taking notice and being a lot calmer. It is a pleasure now to take her out to shows. The Monday Club can give a carer ideas on calming down someone in a 'tantrum' and I thank you all for some of my ideas with Dina. I sometimes play a CD of one of our concerts - Dina then talks to me about what we did and what happened; this makes her focus on 'our' music instead.Thank you to all who help us. You all help to make life easier and more enjoyable. Please, please be doing what you do for us for a long, long time to come.

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Funding will enable us to…

• Continue doing what we’re already doing

• Offer more opportunities for LSO Create existing members and new participants across the country

• Develop new partnership with Drake Music and other organisations

• Begin a new series of visits to daycentres and residential settings

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Coming to LSO events

“Many disabled people are excluded from experiencing arts and culture due to the barriers society places on them”

-Understanding Disabled People as Audiences 2012-13, Shape, August 2013

• New series of LSO Open Rehearsals for participants around the country

• All free Friday Lunchtime Concerts at LSO St Luke’s have been publicised to adults with learning disabilities throughout the country

• Three creative music-making sessions per year are offered to wider group, following these events

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Outreach visits• A series of visits to up to 8 centres tailored to meet the needs

of each setting

• Each setting will meet with LSO musicians and management to plan together

• Service-users will be encouraged to be part of the process

– Creative music making

– Learning instruments

– Further work with PMLD participants

– Piggy-backing on their existing work – i.e. summer concerts

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Future considerations/our learning

• More activity will be participant led:

• Focus groups

• Portfolios

• Reflection and feedback

• Developing knowledge and awareness of our colleagues and/or venues

• How to consider our space more and make everything more accessible

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THERE IS A HUGE NEED FOR MORE!

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Thank you

To all the wonderful carers and participants

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Mark Williams,

Artistic Director and CEO,

and

Mark Burgess,

Vice-Chair,

Heart n Soul

Adults with learning disabilities living in the community: combating isolation and supporting well-being and resilience

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Paul Richards,

Director,

Stay Up Late

Adults with learning disabilities living in the community: combating isolation and supporting well-being and resilience

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Paul Richards

Director

@heavy_load

www.stayuplate.org

@stayuplateuk

‘promoting full and active social lives for people with learning disabilities’

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1.8M people in UK with learning disabilities

47% - spend most time at home

51% - say they feel lonely

64% - don’t see their friends

‘Company is most important factor in reducing risk of dying’

Gig Buddies

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Paul Richards

Director

@heavy_load

www.stayuplate.org

@stayuplateuk

‘promoting full and active social lives for people with learning disabilities’

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We value your feedbackPlease leave completed feedback forms

on your table or return to a member of staff.Thank you.

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