advocacy session sarcoma research funding by the nonprofit sector
DESCRIPTION
Advocacy Session Sarcoma Research Funding by the Nonprofit Sector. Jody Cummings, MPH Executive Director. Sarcoma Foundation of America - Mission. - PowerPoint PPT PresentationTRANSCRIPT
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Advocacy SessionAdvocacy Session
Sarcoma Research Funding by the Nonprofit SectorSarcoma Research Funding by the Nonprofit Sector Advocacy SessionAdvocacy Session
Sarcoma Research Funding by the Nonprofit SectorSarcoma Research Funding by the Nonprofit Sector
Jody Cummings, MPHJody Cummings, MPH
Executive DirectorExecutive Director
Jody Cummings, MPHJody Cummings, MPH
Executive DirectorExecutive Director
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Sarcoma Foundation of America - Sarcoma Foundation of America - MissionMission
Sarcoma Foundation of America - Sarcoma Foundation of America - MissionMission
Our mission is to act as an Our mission is to act as an advocate for sarcoma advocate for sarcoma medical researchmedical research AND AND provide funding to provide funding to support researchsupport research focused on discovering and focused on discovering and developing new weapons with which to treat developing new weapons with which to treat and eradicate sarcomaand eradicate sarcoma
Our mission is to act as an Our mission is to act as an advocate for sarcoma advocate for sarcoma medical researchmedical research AND AND provide funding to provide funding to support researchsupport research focused on discovering and focused on discovering and developing new weapons with which to treat developing new weapons with which to treat and eradicate sarcomaand eradicate sarcoma
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To achieve our mission, the SFA, will To achieve our mission, the SFA, will focus on the following three goals:focus on the following three goals:
To achieve our mission, the SFA, will To achieve our mission, the SFA, will focus on the following three goals:focus on the following three goals:
Funding of research grants through our internal Funding of research grants through our internal mechanism as well as by giving financial mechanism as well as by giving financial support to outside foundations, such as ASCO support to outside foundations, such as ASCO and AACR. and AACR.
Grassroots Awareness and Education Grassroots Awareness and Education CampaignsCampaigns
Research AdvocacyResearch Advocacy
Funding of research grants through our internal Funding of research grants through our internal mechanism as well as by giving financial mechanism as well as by giving financial support to outside foundations, such as ASCO support to outside foundations, such as ASCO and AACR. and AACR.
Grassroots Awareness and Education Grassroots Awareness and Education CampaignsCampaigns
Research AdvocacyResearch Advocacy
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The SFA will achieve its goals by:The SFA will achieve its goals by:The SFA will achieve its goals by:The SFA will achieve its goals by:
Continuing to fund state of the art Continuing to fund state of the art sarcoma researchsarcoma research
Creating a critical mass of sarcoma Creating a critical mass of sarcoma patients and caregiverspatients and caregivers
By convincing state and federal legislators By convincing state and federal legislators to pay attention to sarcomato pay attention to sarcoma
Continuing to fund state of the art Continuing to fund state of the art sarcoma researchsarcoma research
Creating a critical mass of sarcoma Creating a critical mass of sarcoma patients and caregiverspatients and caregivers
By convincing state and federal legislators By convincing state and federal legislators to pay attention to sarcomato pay attention to sarcoma
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Call for Grant ProposalsCall for Grant ProposalsCall for Grant ProposalsCall for Grant Proposals A call for grant proposals is currently activeA call for grant proposals is currently active Deadline for applications is January 31, 2005Deadline for applications is January 31, 2005 For this funding cycle, grant amounts will be a For this funding cycle, grant amounts will be a
maximum of $25,000maximum of $25,000 For more information visit our site at For more information visit our site at www.www.
curesarcomacuresarcoma.org.org The SFA is also funding a Young Investigator The SFA is also funding a Young Investigator
Award through ASCO.Award through ASCO.
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Medical Advisory BoardMedical Advisory BoardMedical Advisory BoardMedical Advisory Board
Murray Brennan, M.D.Murray Brennan, M.D. Larry Baker, D.O.Larry Baker, D.O. Charles Forscher, M.D.Charles Forscher, M.D. Lee Helman, M.D.Lee Helman, M.D. Jonathan Lewis, M.D.Jonathan Lewis, M.D. Alberto Pappo, M.D.Alberto Pappo, M.D. Vernon Sondak, M.D. Vernon Sondak, M.D.
Murray Brennan, M.D.Murray Brennan, M.D. Larry Baker, D.O.Larry Baker, D.O. Charles Forscher, M.D.Charles Forscher, M.D. Lee Helman, M.D.Lee Helman, M.D. Jonathan Lewis, M.D.Jonathan Lewis, M.D. Alberto Pappo, M.D.Alberto Pappo, M.D. Vernon Sondak, M.D. Vernon Sondak, M.D.
George Demetri, M.D.George Demetri, M.D. Bob Benjamin, M.D.Bob Benjamin, M.D. Richard Gorlick, M.D.Richard Gorlick, M.D. Marc Ladanyi, M.D.Marc Ladanyi, M.D. Robert Maki, M.D., Ph.D.Robert Maki, M.D., Ph.D. Peter Pisters, M.D.Peter Pisters, M.D.
George Demetri, M.D.George Demetri, M.D. Bob Benjamin, M.D.Bob Benjamin, M.D. Richard Gorlick, M.D.Richard Gorlick, M.D. Marc Ladanyi, M.D.Marc Ladanyi, M.D. Robert Maki, M.D., Ph.D.Robert Maki, M.D., Ph.D. Peter Pisters, M.D.Peter Pisters, M.D.
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2004 Research Grants2004 Research Grants2004 Research Grants2004 Research Grants Sarcoma Cell Line Resource with Molecular and Sarcoma Cell Line Resource with Molecular and
Kinase Annotation – Jonathan Fletcher, MDKinase Annotation – Jonathan Fletcher, MD Molecular Classification of Sarcoma Cell Lines – Molecular Classification of Sarcoma Cell Lines –
Matt van de Rijn, MD, PhDMatt van de Rijn, MD, PhD Molecular Dissection of a Subset of Gene Molecular Dissection of a Subset of Gene
Fusion-Associated Sarcomas that Lack that Lack Fusion-Associated Sarcomas that Lack that Lack the Gene Fusion – Frederic Barr, MDthe Gene Fusion – Frederic Barr, MD
The Role of RECQ Helicases in the Pathogenesis The Role of RECQ Helicases in the Pathogenesis of Osteosarcoma – Lisa Wang, MDof Osteosarcoma – Lisa Wang, MD
Sarcoma Cell Line Resource with Molecular and Sarcoma Cell Line Resource with Molecular and Kinase Annotation – Jonathan Fletcher, MDKinase Annotation – Jonathan Fletcher, MD
Molecular Classification of Sarcoma Cell Lines – Molecular Classification of Sarcoma Cell Lines – Matt van de Rijn, MD, PhDMatt van de Rijn, MD, PhD
Molecular Dissection of a Subset of Gene Molecular Dissection of a Subset of Gene Fusion-Associated Sarcomas that Lack that Lack Fusion-Associated Sarcomas that Lack that Lack the Gene Fusion – Frederic Barr, MDthe Gene Fusion – Frederic Barr, MD
The Role of RECQ Helicases in the Pathogenesis The Role of RECQ Helicases in the Pathogenesis of Osteosarcoma – Lisa Wang, MDof Osteosarcoma – Lisa Wang, MD
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Critical MassCritical MassCritical MassCritical Mass
Mobilizing our membership to get others Mobilizing our membership to get others involved in the causeinvolved in the cause
Outreach to all medical institutions to educate Outreach to all medical institutions to educate and expand sarcoma community reachand expand sarcoma community reach
Public relations campaign Public relations campaign Grassroots fundraisersGrassroots fundraisers
Mobilizing our membership to get others Mobilizing our membership to get others involved in the causeinvolved in the cause
Outreach to all medical institutions to educate Outreach to all medical institutions to educate and expand sarcoma community reachand expand sarcoma community reach
Public relations campaign Public relations campaign Grassroots fundraisersGrassroots fundraisers
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Sarcoma Foundation of America Sarcoma Foundation of America Research AdvocacyResearch Advocacy
Sarcoma Foundation of America Sarcoma Foundation of America Research AdvocacyResearch Advocacy
Mobilization of our constituents to write, call, Mobilization of our constituents to write, call, fax, and email their representatives in fax, and email their representatives in governmentgovernment
Creation of strategic alliances within DC to Creation of strategic alliances within DC to increase funding for sarcoma researchincrease funding for sarcoma research
Focus on establishing a united, strong, and vocal Focus on establishing a united, strong, and vocal sarcoma community sarcoma community
Mobilization of our constituents to write, call, Mobilization of our constituents to write, call, fax, and email their representatives in fax, and email their representatives in governmentgovernment
Creation of strategic alliances within DC to Creation of strategic alliances within DC to increase funding for sarcoma researchincrease funding for sarcoma research
Focus on establishing a united, strong, and vocal Focus on establishing a united, strong, and vocal sarcoma community sarcoma community
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SFA - MembershipSFA - MembershipSFA - MembershipSFA - Membership
01002003004005006007008009001000
2002 2003 2004
Members
01002003004005006007008009001000
2002 2003 2004
Members
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SFA - DatabaseSFA - DatabaseSFA - DatabaseSFA - Database
010002000300040005000600070008000900010000
2002 2003 2004 2005
2002
2003
2004
2005
010002000300040005000600070008000900010000
2002 2003 2004 2005
2002
2003
2004
2005
1212
SFA Website Hits Per DaySFA Website Hits Per DaySFA Website Hits Per DaySFA Website Hits Per Day
0
100
200
300
400
500
2002 2003 2004 2005
2002
2003
2004
2005
0
100
200
300
400
500
2002 2003 2004 2005
2002
2003
2004
2005
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SFA Funding SFA Funding SFA Funding SFA Funding
01000002000003000004000005000006000007000008000009000001000000
2002 2003 2004 2005
2002
2003
2004
2005
01000002000003000004000005000006000007000008000009000001000000
2002 2003 2004 2005
2002
2003
2004
2005
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The people in this room will find The people in this room will find the cure(s) for sarcoma!the cure(s) for sarcoma!
The people in this room will find The people in this room will find the cure(s) for sarcoma!the cure(s) for sarcoma!
We want to helpWe want to help..We want to helpWe want to help..
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THANK YOUTHANK YOUTHANK YOUTHANK YOU
WWW.CURESARCOMA.ORGWWW.CURESARCOMA.ORG
OrOr
[email protected]@curesarcoma.org
WWW.CURESARCOMA.ORGWWW.CURESARCOMA.ORG
OrOr
[email protected]@curesarcoma.org