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Page 1: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures
Page 2: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Mary

Wisconsin

Bob

Indiana

Jane

Kansas

Case Studies

Page 3: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Interview

System ConfigurationCare Plans

Source of Information

Page 4: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

MEET MARYAge: 20

Primary: Mild MR (Downs Syndrome)

Secondary: Seizure Disorder (infrequent), Speech Difficulties

Behavioral: None

Medical: Infrequent Seizures

Desires: Independence (be at home alone)

Living Situation: Family Home

Page 5: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Good At

Struggles With

Requires Assistance

• Stranger safety• Knowing her limits• Being alone for long periods• Dietary restrictions

• Socialization (cell phone)• Medication administration• Uses PC• Personal care needs

• Using oven/stove• New tasks with multiple steps

Page 6: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Supports Prior to Rest Assured

High School

After School Program

Paid Staff

Natural

Support

sFamily

Page 7: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Mary’s Desires/Goals• Maximize independence

• Be home alone

• Continue social life

• Feel safe at home alone

Family’s Desires/Goals• Health/Safety needs met

• Maximize independence

• Protection from outside

• ADL assistance

• Personal growth

• Decrease need for unreliable staff

Page 8: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Technology SupportsACTIVE SUPPORT

• Continuous oversight/support• Family gives RA weekly schedule• Occasionally - On-Demand

3rd Party Access

• Family monitors • Mom & dad from work• Dad travels and does virtual visits• Sister at college also provides

support

Page 9: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Main Floor

Page 10: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Upstairs

Page 11: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Basement

Page 12: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Programmatic Issues/Challenges

Family Rest Assured• Interface with AI phone

• 3 floor installation – electrician

• Monitoring schedule

• Detailed care protocols

• Communication with family

• Self Directed Waiver funding

• Protecting family privacy

• Designing care protocols• Grade card• Practicing routines

• Coordinating with other providers• Taxi service• Local licensing• Police

Page 13: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Outcomes for MaryINDEPENDENCE• Live without family• “Feels like she lives alone”• Private time - privacy

Health/Safety Needs Met• Feels safe at home alone• Structure care protocols to meet needs

Connections• Family via 3rd Party Access• Friends• Relationship with Tele-Caregivers

Page 14: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Outcomes for Family• Peace of mind

• Family remote support

• On-demand Tele-caregivers

• Both parents can continue to work

• Stopped revolving door of direct care staff• Scheduling, no-shows, etc.

• Cost savings after 1.5 years (purchased equipment)

Page 15: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

MEET BOB Age: 34

Primary: Mild MR

Secondary: Cerebral Palsy, Hearing impairment

Behavioral: Manipulative, physical assault, refusals, verbal abuse, temper outburst, exploitation by others

Medical: None

Desires: Independence, NO roommates, alone time without staff

Living Situation: Supported Living (no roommates)

Page 16: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Good At

Struggles With

Requires Assistance

• Being too trusting of others• Living peacefully with others• Compliance with staff direction• Managing frustrations

• Self directing• Friendly & sociable

• Transportation• Community Inclusion

Page 17: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Supports Prior to Rest Assured

Workshop Behavior

Management

Family Case Management

Paid Staff

Page 18: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Bob’s Desires/Goals• Maximize independence

• Be home alone

• NO roommates

Family’s Desires/Goals• 24/7 support

• Health and safety needs met

• Protection from others

• ADL assistance

• Personal growth

• To be happy

Page 19: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Technology SupportsACTIVE SUPPORT

• Continuous Oversight/Support• Set schedule of 8 hours/day• Weekdays 11p-7a• Weekends 9p-9a

Emergency Watch

• Monitoring via sensors for emergencies

• Weekdays 7a-9a & 9p-11p• Weekends 9a-11a & 7p-9p

Page 20: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures
Page 21: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Programmatic Issues/Challenges

Provider Rest Assured• “Post honeymoon phase”

reality

• Dealing with non-monitoring time requests

• Staying neutral with feuding family & provider

• Needed to find a way to provide 24/7 support with limited budget

• How to structure on-call staff for only one home

• Getting family “on-board”

Page 22: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Outcomes for Bob

INDEPENDENCE• NO roommate• More alone time without staff• Private time - privacy

Health/Safety Needs Met• Protection from others• Has 24/7 support

Page 23: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Outcomes for ProviderPositives• 24/7 support within budget allocation

• Decrease in staff related behavioral episodes

• Flexibility in hours of support

• 3rd party access

Negatives• Administration of telecare services

Page 24: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

MEET JANEAge: 37

Primary: Mild MR

Secondary: Intermittent explosive disorder, borderline personality, bi-polar

Behavioral: Self-injurious behaviors, pica, attention seeking, false accusations, overindulge in sugar

Medical: Diabetes, obesity, psychogenic seizures

Desires: Independence

Living Situation: Supported Living

Page 25: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Jane’s History

Supported Living w/Roommate

Roommate Dies

Set’s Fire to Apt. Group Home

State Institution

Mom’s House Supported Living Alone

Issues with Dog and Staff

Rest Assured

Page 26: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Good At

Struggles With

Requires Assistance

• Managing diabetes• Following dietary requirements

• Meal prep• Self care with prompting

• Medication administration

Page 27: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Supports Prior to Rest Assured

Rest Assure

d Mental Health Attendant Care

Family Case Management

On-site Staff

Page 28: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Jane’s Desires/Goals• Independence

• Group living won’t work for her

• Stay in her apartment

• Not have staff in her bedroom

Provider’s Desires/Goals• Reduce cost of 2:1 staffing

• Combative with staff

• Protection against false accusations

• Health/Safety of Jane

• Give some feeling on independence to Jane

• “Decrease the drama”

• “Just manage day to day with her”

Page 29: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Technology SupportsACTIVE SUPPORT

• Continuous Oversight/Support• 24/7 • Staff in home from 7a-10:30p

Page 30: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures
Page 31: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Programmatic Issues/Challenges

Provider Rest Assured• Implementing/training on

BSP

• Tele-Caregiver overcoming privacy concerns

• Coordinating with on-site staff

• Interacting with police officers

• Camera location to protect staff while protecting Jane’s privacy

• Uncertainty of how she would view privacy aspect

• Private time

• Controlling environment

• Back-up staff set-up

• Significant attention seeking

Page 32: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Outcomes for JaneIndependence• No longer has 2:1 staffing• Alone time overnight• Private time protocol• In her own apartment

Health/Safety• Decreased incidents of self-injurious behavior and other targeted

behaviors• Prevented suicide attempt

Self Determination• Has expressed interest in Special Olympics• Wants to get GED

Page 33: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Outcomes for Provider• Lower staff turnover

• “Managing day to day”

• “Cost savings of $43,431 per year”

• Few incidents involving law enforcement

• Few behavioral episodes

• Video recording of everything (false accusations)

• Ability to keep her within their agency

Page 34: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Ethical Issues

Group Discussion

Page 35: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

TECH SUPPORT SOLUTION

That meets desired

Support Budget

HomeNeeds & Desires

OUTCOMES

Page 36: Age: 20 Primary: Mild MR (Downs Syndrome) Secondary: Seizure Disorder (infrequent), Speech Difficulties Behavioral:None Medical:Infrequent Seizures

Dustin WrightGeneral Manager

Rest Assured®

877-338-9193 x [email protected]

www.restassuredsytem.com