AHF Advocacy

AGENDA

INTRODUCTIONSADVOCACY• Definition• Strategies• AHF Advocacy

ADAP• What is ADAP?• Current ADAP Crisis

MEDIA FORMULA

ADVOCACY

What is Advocacy ? Communicating needs and voicing them to

people who can help. Aimed at influencing public policy and

decisions. In the case of people living with HIV and

AIDS; advocacy is a tool for social and political change, to improve the quality of life for those infected and affected by the epidemic.

Advocacy Strategies Letter Writing Campaign Make phone calls Talk to others Banners Legislative Visits Form coalitions Protest Social Media Be active

Legislation MEDI-CAL (MEDICAID) to cover hospice care for

people dying of AIDS (1989) Insurance companies covering HIV testing (2008)

Engaging Elected Officials Senator Nelson of Florida Speaker Pelosi

Reduced Drug Pricing Merck – Isentress BMS – Reyataz Boehringer Ingelheim - WelVista

AHF Advocacy Efforts

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ADAP

What is ADAP? AIDS Drug Assistance Program It provides life saving medications to low-

income, uninsured, & under-insured individuals living with HIV

It’s a federal match program, to which both state and federal governments contribute

It is the payer of last resort for people with no other resources to pay for their medications

ADAP Funding

** Taken from NASTAD Presentation at USCA 2010

Why are state ADAP’s in Crisis? More need: Higher unemployment rate + uninsured people

more people are eligible for ADAP

Economic Downturn has created budget deficits @ state level need to cut spending

More expensive program: Over the last 10 years the price of HIV meds have increased

ADAP CRISIS

Advocacy Calculus Identify & Understand The Issue Identify the Players – Who is your target? What is your “ask”? – Be Specific

Media Formula Press Advisory

2 weeks, 2 days, Day of

Press Statement 3 Speakers, 10 Words

Press Release Day Before, Send and Call

*Press Kit (Hard Copies) to Reporters

Why you? We are in this together Its your right Its your life and your experience If not now…when? Accountability