aian state challenges
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CDC Southeast American Indian/Alaska Native Regional Cancer Conference “Building Partnerships for Cancer Control “ July 25-27, 2012 Nashville, TN Presenters: Sonya Younger and Vonda Evans . AIAN State Challenges. Native American History in SC. - PowerPoint PPT PresentationTRANSCRIPT
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AIAN State Challenges
CDC Southeast American Indian/Alaska Native Regional Cancer Conference“Building Partnerships for Cancer Control “
July 25-27, 2012Nashville, TN
Presenters: Sonya Younger and Vonda Evans
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Native American History in SC From the coast to the
mountains, South Carolina State Parks protect some of the most important and interesting Native American sites in the state.
Almost all State Parks contain remnants of the lives and culture of Native Americans.
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Ancient Peoples
Walk the Spanish Mount Trail at Edisto Beach State Park that leads to the Spanish Mount Shell Midden Site. The site dates to approximately 3,000 to 4,000 years ago and features a 12-foot high circle of shells that may have been a Native American ceremonial site or a midden (trash heap).
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Native American Day Oconee Station State
Historic Site in the Blue Ridge foothills explores what life was like for the settlers and Indians on the American frontier.
The park is the site of the annual Native American Day featuring demonstrations such as pottery making, bow making and flint knapping that help visitors learn about the culture of Native Americans before and after European colonization.
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South Carolina Native American Affairs
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Native Americans in South Carolina
Once had 29 distinct tribes (1763)
Currently have 7 (2012): Catawba Pee Dee Chicora Edisto Santee Chicora-Waccamaw Cherokee
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Native Americans in South Carolina
Source: SCIWay
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SC Population by Race: 2010
Native Hawaiian
AIAN
Asian
Mixed Race
Other
Hispanic
Blacks
Whites
0.0% 10.0% 20.0% 30.0% 40.0% 50.0% 60.0% 70.0%0.1%
0.4%
1.3%
1.7%
2.5%
5.1%
27.9%
66.2%
Source: 2010 Census Results
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SC Population Trends by Race: 2010
Population Totals by Race, S.C.
0
500,000
1,000,000
1,500,000
2,000,000
2,500,000
3,000,000
3,500,000
Year
WhiteBlackAI/ANAPI
Source: SCCCR
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SC Cancer IncidenceAge-Adjusted Cancer Incidence Trends by Race, S.C.
All Cancer Sites Combined1
0
100
200
300
400
500
600
1996
1997
1998
1999
2000
2001
2002
2003
2004
2005
2006
2007
2008
2009
Year
Rat
e/10
0,00
0
AllWhiteBlackAI/ANAPI
1. Invasive cases only except for bladder, which includes in situ cancers
Source: SCCCR
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SC Cancer Mortality
Age-Adjusted Cancer Mortality Trends by Race, S.C.All Cancer Sites Combined
0
50
100
150
200
250
300
350
400
Year
Rate
/100
,000 All
White
Black
AI/AN
API
Source: SCCCR
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SC Cancer RatesAge-Adjusted Cancer Incidence and Mortality Rates by Race, S.C.
All Cancer Sites Combined, 1996-20091
0
100
200
300
400
500
600
All White Black AI/AN API
Rat
e/10
0,00
0
IncidenceMortality
1. Incidence data include invasive cases only, except for bladder, which includes in situ cases
Source: SCCCR
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SC Central Cancer Registry Challenges Identification of individual AIANs
Collecting race for this population is directly related to two things:▪ 1) availability of the recorded race in the patient medical
record/pathology reports, and ▪ 2) accuracy of the recorded race.
The SCCCR collects data from hospitals, path labs, freestanding treatment centers and MD offices (urology, oncology, and dermatology). Race is absent from most pathology reports as this is not reported to the pathologist from the surgeon. So, when the path report is the primary source document identifying the new cancer case to the SCCCR, they follow back to the diagnosing physicians to obtain race from physician source records.
Accuracy of race is more difficult to assess through data quality control
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SC Central Cancer Registry Challenges
Additional steps taken to identify AIANs in SC Cancer Registry Indian Health Service Linkage
▪ Part of the SCCCR’s data submission preparation and process annually to the North American Association of Central Cancer Registries (NAACCR)
▪ SCCCR links its entire database to the Indian Health Service (IHS).
▪ The detailed breakdown of the link results are returned and a variable is kept in the ‘research’ data file showing the link result for individual patients.
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SC Best Chance Network
Provides eligible South Carolina women with free breast and cervical cancer screenings
Has screened 92,568 women since its beginning in 1991
261 (0.28%) of these women are Native Americans
109 (42%) of the Native Americans screened came back in subsequent years for rescreening
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SC Best Chance Network
June 30, 2007-June 29, 2008
June 30, 2008-June 29, 2009
June 30, 2009-June 29, 2010
June 30, 2010-June 29, 2011
June 30, 2011-June 29, 2012
010203040506070
45
6054
2514
Native Americans Screened by Program Year, 2007-2012
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Post Conference Goals
Seek to identify Tribal Leaders (Chiefs)
Seek to listen to leaders and determine best ways to stress importance of cancer screening
Seek to access available tribal information Best approaches needed Ways to keep engaged
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Post Conference Goals
Seek State Cancer Plan representation and implementation
State Coalition (SCCA) and ACOS partnership Request review/revision of medical
reporting methods to more accurately capture population identification and data
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SC Tribal Contact Information CATAWBA INDIAN NATIONChief: Bill HarrisPhone: 803-366-4792Email: [email protected]
PEE DEE INDIAN TRIBE OF SCChief: James CaulderEmail: [email protected]: 843-862-3566
CHICORA INDIAN TRIBE OF SC Chief Timothy CreelPhone: 843-397-6557
EDISTO INDIAN ORGANIZATIONChief Anthony DavidsonPhone: 843-871-2126
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SC Tribal Contact InformationSANTEE INDIAN NATION OF SCChief William KoonPhone: 864-541-8759
SANTEE INDIAN ORGANIZATIONChief Randy CrummiePhone: 803-308-7991Email: [email protected]
THE WACCAMAW INDIAN PEOPLE OF AYNOR, SCTribal Chief Harold D. HatcherPhone: 843-358-6877Email: [email protected]
PIEDMONT AMERICAN INDIAN ASSOCIATION - CHEROKEE
Chief Gene NorrisPhone: 864-683-1421Email: [email protected]
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Contact Information
Sonya Younger, MBA, ManagerComprehensive Cancer ControlPhone: (803) 545-4114Email: [email protected] Website: www.scdhec.gov/cancer
S.C. DEPT. OF HEALTH AND ENVIRONMENTAL CONTROL (SCDHEC)
AMERICAN CANCER SOCIETY
Vonda Evans, MPH, CHES Recruitment Senior Manager(843) 744-1922Email: [email protected] Website: www.cancer.og
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Contact Information SC CENTRAL CANCER REGISTRYSusan Bolick, MSPH, CTR, DirectorEmail: [email protected] Phone: (803) 896-2100 Website: www.scdhec.gov
SC CANCER ALLIANCE Steve Lovelace, Executive
Director Email:
Phone: (866) 745-5680 (Toll Free)
Website: www.sccanceralliance.org
SCDHEC NCCCP MANAGEMENTVirginie Daguise, PhD, DirectorDivision of Cancer Prevention and ControlPhone: (803) 545-4942Email: [email protected] Website: www.scdhec.gov/cancer
Dianna Lydiard, PhD, DirectorNBCCEDPPhone: (803) 545-4116Email: [email protected] Website: www.scdhec.gov/cancer
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SC Native American Resources South Carolina Indian Affairs Commission
www.southcarolinaindianaffairs.com Native American in South Carolina
www.sciway.net/hist/indians South Carolina Native American Affairs
www.state.sc.us/cma/nativeai.html South Carolina Native American Culture
http://studysc.org/elementary/native-american-culture