alzheimer cafes in the netherlands growth, support and structure
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Alzheimer Cafes in the Netherlands Growth, support and structure Marco Blom director Research and Policy Toronto, March 28, 2011. Conflict of Interest Disclosure. Marco Blom MSc Has no real or apparent conflicts of interest to report. Topics. Start and growth of the Alzheimer Cafes - PowerPoint PPT PresentationTRANSCRIPT
Alzheimer Cafes in the Netherlands
Growth, support and structure
Marco Blomdirector Research and PolicyToronto, March 28, 2011
Conflict of Interest Disclosure
Marco Blom MSc
Has no real or apparent conflicts of interest to report.
Topics
Start and growth of the Alzheimer CafesEffectiveness of the Alzheimer CafesBack office (strategy, support and standards)Quality as a key issueInternational development .....
Alzheimer Cafes: start and growth
Alzheimer Cafes: start and growth
TV-documentary ‘Living with dementia’Alzheimer Cafe: location and TV-format
Manual for setting up Alzheimer CafeSpecial symposium and workshopsDevelopment of training for leadersSupportive material
Dementia Award 2010
Topics
Start and growth of the Alzheimer CafesEffectiveness of the Alzheimer CafesBack office (strategy, support and standards)Quality as a key issueInternational development .....
Alzheimer Cafes: effectiveness
Growth as a sign of successNumber of people with dementia attendingNumber of family aregivers attendingMajority of people ‘stamgasten’ (core guests)Anecdotical information (satisfaction is high)
No scientific proofPart of the Dementia Guideline (NL)Recommended as good practice by Interdem (EUR)
Alzheimer Cafes: indirect effects
Gives a face to the disease Less tabooEmpowering people with dementia and family membersBalancing the emphasis on medical ‘treatment’
Platform for advocacy and lobbyFree publicity in local newspapers Educate professionals and other visitors (politicians)
Average number of visitors
Number of AC’s< 20 32
20 – 40 6340 – 60 56
> 60 29
Number of AC’sNone 11
5 -10 % 108> 10 % 61
People with dementia attending
Number of AC’s< 30% 0
30 - 50 % 5850 - 70 % 104
> 70 % 18
Family caregivers attending
Average number of visits per year
Alzheimer Cafes: in numbers
Every month: Number of visitors > 7.000Number of people with dementia > 600Number of family caregivers > 4.000
Every year: Number of unique visitors in a year: ± 35.000 Stamgasten are in majority people with dementia and family caregivers. Some professionals as well. Number of people with dementia we reach: ± 2.000.Number of family caregivers we reach: ± 15.000.
Topics
Start and growth of the Alzheimer CafesEffectiveness of the Alzheimer CafesBack office (support and standards)Quality as a key issueInternational development .....
Back office: support (2000 – 2005)
Manual with practical guidelinesInformation materials (flyers, posters)Workshop at annual national Volunteers DayNational meetings for regional branchesNational training for discussion leaders by Bere Miesen
Back office: support (2006 – 2010)
Manual with practical guidelinesInformation materials (flyers, posters)Workshop at annual national Volunteers DayNational meetings for regional branchesNational training for discussion leaders
Manual with practical guidelinesInformation materials (flyers, posters)Regional meetings for volunteers in CafesRegional training for discussion leadersTrain-the-trainers programme by Bere Miesen
Back office: standards
Alzheimer Cafe, registered by a European trademarkDevelopment of a set of quality criteriaBi-annual survey amongst Alzheimer Cafes
Regular contact with working groupVolunteer of the regional branch as contact personAlzheimer Nederland ‘owns’ information table
Alzheimer Cafe is part of the ‘Dementia’ guidelines (drawn by Ministry of Health, National body of Health Insurance companies and Alzheimer Nederland)
Topics
Start and growth of the Alzheimer CafesEffectiveness of the Alzheimer CafesBack office (strategy, support and standards)Quality as a key issueInternational development .....
Some quality criteria
Non-profit; free admission, normal prices for drinksMonthly / At least ten times a yearAvoid cancelling two meetings in a row
Year programme should cover whole range Emphasis on emotional and psychosocial aspects Information preferably by means of an interview
A variety of professionals play an active roleInvolvement of regional branch of Alzheimer NederlandIf there are no people with dementia, it is not a ‘real’ Alzheimer Cafe
Trained discussion leader
Experienced in supporting people with dementiaExperienced in supporting family caregiversMultidisciplinary knowledge about dementiaTherapeutic / Counselling and group workIs a role model in communicatingEmphasis on openness versus avoidanceResponsibility and continuity
Topics
Start and growth of the Alzheimer CafesEffectiveness of the Alzheimer CafesBack office (strategy, support and standards)Quality as a key issueInternational development .....
International development
BelgiumUnited KingdomDenmarkGermanyFinland
ItalySpainGreeceMaltaCyprus
Canada !!Australia
ArubaCuraçao
Alzheimer Tearoom
International development: proposal
Support other countries in founding and running Alzheimer Cafes according to the original modelDraw up international criteria and guidelines for Alzheimer Cafes to improve the quality of lifeSelf-evaluation method for Alzheimer Cafes throughout the worldInternational research on the effectiveness of Alzheimer Cafes in several countries
Working together .... and .... setting the agenda
In collaboration with ….
All our volunteers Bere Miesen