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Alzheimer’s Disease International Annual Report 2007 2008

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Page 1: Alzheimer's Disease International Annual Report 2007-8 · Annual income of ADI (2007) $ 800,000 Annual income of ADI members (estimated) $ 500,000,000 ADI Board members (31 December

Alzheimer’s Disease International

Annual Report2007–2008

Page 2: Alzheimer's Disease International Annual Report 2007-8 · Annual income of ADI (2007) $ 800,000 Annual income of ADI members (estimated) $ 500,000,000 ADI Board members (31 December

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2008 2030 2050

30million

59million

104million

Alzheimer’s Disease International

Vision and aims

ADI wants to improve the quality of life for people with dementia and their families throughout the world.

We aim to build and strengthen Alzheimer associations and raise awareness about dementia worldwide.

We work by facilitating the sharing of expertise and resources that exist within our community. ADI is a forum through which established and emerging Alzheimer associations can learn from one another. Stronger Alzheimer associations are better able to meet the needs of people with dementia and their carers.

What we do

• Encouragethecreationofnew Alzheimer associations in countries where there is no organisation

• Supportthedevelopmentand activities of our member associations around the world

• BringAlzheimerorganisationstogether to share and learn from each other

• Raisepublicandpoliticalawareness of dementia at national and international levels

• Stimulateresearchintotheprevalence of Alzheimer’s disease and dementia in populations around the world

Dementia

Dementia is the general term used to describe brain disorders that affect a person’s memory and behaviour. Alzheimer’s disease accounts for 50-60% of all cases of dementia. In 2001 the number of people worldwide with Alzheimer’s disease and other forms of dementia was estimated to be 24 million. In 2008 the number will increase to 30 million. As a result of global ageing with people living longer, researchers expect this number to rise to 59 million by 2030 and over 100 million by 2050.

Every7secondsthereisanewcase of dementia somewhere in the world. Dementia affects more people than those who have the illness, as the pressure on families

is immense. This is why they need support mechanisms such as national Alzheimer associations.

At the moment, researchers are working hard to understand what causes dementia. There is no cure for Alzheimer’s disease and only a few drugs that slow it down, mostly in the earlier stages. Therefore early detection is vital but because of the lack of awareness and stigma surrounding dementia it is very

difficult for people to realise or accept that they may have the disease. One of the main roles of Alzheimer’s Disease International (ADI) is to break the taboos and raise awareness about dementia, stressing that it is a disease and not a normal part of ageing. If we talk openly about dementia, we can also educate people so that they can understand and cope with it and achieve a better quality of life.

ADI was founded in 1984 in Chicago with pioneers from the Alzheimer’s Association in the USA and similar groups from Canada, Australia and the UK. In the 24 years since then, the number of members has risen to 77, coming from all continents of the world

Projected growth of dementia 2008–2050

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Facts and figuresADI founded 1984

ADI’s legal status Incorporated in Illinois, USA, 501(c)(3) non-profit

Estimated people with dementia worldwide in 2008 30 million

Estimated people with dementia worldwide in 2050 Over 100 million

Estimated global cost of dementia $ 315,000,000,000

Number of ADI member associations 77

Number of provincial and local chapters Over 2,000

Annual income of ADI (2007) $ 800,000

Annual income of ADI members (estimated) $ 500,000,000

ADI Board members (31 December 2007) 17

ADI staff (31 December 2007) 5

Following 2006, a year of transition at the end of which I took over asExecutiveDirector,theyear2007–2008wasusedtosolidifyADI’s fundraising income for the future, further develop our important Alzheimer University and Twinning programmes for member associations, organise the annual conference in Caracas and work towards getting the World Health Organization (WHO) to put dementia on their agenda.

These were not easy tasks, but with the help of my dedicated staff, the involved members of theExecutiveCommittee,theElectedBoardandmanyofoursupportive member associations we were able to do all these things. It took some time in fundraising to develop the right proposals and find the right foundations and corporate sponsors. After spending a considerable part of our

reserves thanks to a large donation made in 2005, we were convinced bytheendof2007thatfurtherfunding was within reach for our programmes. This could not have been done without the efforts of our Chairman,OrienReid,whoplayedan important role in developing new contacts and convincing potential sponsors that their support was crucial to ADI.

Alzheimer University programmes took place both in London for emerging associations and in Taipei for ADI members from the Asia Pacific region. The Twinning Programme had results from the first three pairs of twinned associations, three more pairs startedin2007andafurtherthreein 2008. The preparation of the conference in Caracas, Venezuela, met with some challenges, but with the hard work of Mira Josic de Hernández, Aquiles Salas and

Jesús Mazzei from the Fundación Alzheimer Venezuela and their colleagues, an excellent meeting took place in October, again gathering people from around the world from all disciplines and backgrounds. I also want to mention the role of our Vice Chairman Daisy Acosta, who played a crucial role in making this event successful and alsobecameChairman-Electatthemeeting.

Finally we were able to take our first steps towards a greater role within the WHO and advocating successfully for the needs of people with dementia and their families at an international level.

I want to thank everyone for their warm and ongoing support, especially our members who contribute with their dues, but also with their time and involvement. It has been an exciting year.

Message from the Executive Director

Marc Wortmann

Page 4: Alzheimer's Disease International Annual Report 2007-8 · Annual income of ADI (2007) $ 800,000 Annual income of ADI members (estimated) $ 500,000,000 ADI Board members (31 December

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Annual international conferenceOur conference is unique in that it brings together everyone with an interest in dementia: people with dementia, families, health and care professionals, researchers and staff and volunteers of Alzheimer associations around the world.

Alzheimer UniversityA training programme to build and strengthen the capacity of Alzheimer associations.

Twinning ProgrammeA formal, two-way partnership between two Alzheimer associations for mutual benefit.

World Alzheimer’s DayThe opportunity to raise awareness about dementia and its impact on families and the important work of our members throughout the world.

Key activities and programmes

At the ADI conference members of the 10/66 Dementia Research Group came together from all over the world to share their latest research

10/66 Dementia Research GroupThe network of researchers in developing countries, affiliated to ADI, that does research into the prevalence, incidence and other aspects of dementia in developing countries and works to disseminate the results.

Advocacy and the World Health OrganizationWe want to make Alzheimer’s disease and dementia a global health priority and put them on the agenda of the World Health Organization and governments worldwide.

Providing informationWe produce a regular newsletter, a range of printed materials and a website to ensure our members and stakeholders are informed about topics relevant to running Alzheimer associations, as well as developments in dementia care and research.

This is a brief summary of ADI’s key activities. How these were carried out in 2007–2008 is expanded on the following pages

Page 5: Alzheimer's Disease International Annual Report 2007-8 · Annual income of ADI (2007) $ 800,000 Annual income of ADI members (estimated) $ 500,000,000 ADI Board members (31 December

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Regional meetingsThe 10th Asia Pacific regional meeting took place inPerth,Australiaon29May–1June2007,inconjunction with the conference of Alzheimer’s Australia. ADI held a one-day business meeting with its members from the Asia Pacific region who exchanged ideas and agreed on future collaborations. Delegates also visited several dementia care services in Perth. ADI is very grateful to Alzheimer’s Australia WA (Western Australia) for organising this event and providing some travel grants to participants.

ADI was also represented at other regional conferencesandmeetings.TheAlzheimerEuropeconferencewasheldinEstoril,9-12May2007,andthe Alzheimer Iberoamerica meeting took place on

9 October in Caracas, before the ADI conference. There was also a conference attended by members intheMiddleEastregionon27-28OctoberinAthens,Greece.

Annual International Conference

ADI’s multi-disciplinary conference attracted medical professionals, researchers, family carers, people with dementia and volunteers of Alzheimer associations. ADI’s conference provides an environment where people can come together and learn from one another. It is also a great opportunity for ADI to help support and develop its members with the provision of information and training workshops.

The diverse programme in October2007presentedthelatestdevelopments in medical research and included a look at the use of non-pharmacological interventions in the treatment of dementia.

Due to changes in the timing and organisation of the conference, there was no conference in 2008. In2007,anewrotationschemewasintroduced to ensure that members in all regions are able to benefit and participate in a key ADI activity and to help strengthen ADI’s global outreach.

The mayor of Caracas pledges his support alongside Orien Reid, Chairman of ADI and Mira Josic de Hernández, President of the Fundación Alzheimer de Venezuela

The preparation for ADI’s 24th conference is well underway and will be held in Singapore, 25-28 March 2009. It is set to be an exciting event that encourages everyone to come together to make dementia a global health priority which is reflected initstheme‘Dementia:EngagingSocieties Around the World’.

‘New Perspectives, New Hope’ was the theme of ADI’s 2007 conference in Caracas, Venezuela. Over 700 people from 45 countries attended a unique meeting with a Latin American flavour

Delegates in Perth, Australia

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Taipei June 2008

For the first time ADI conducted a one-day Alzheimer University event entitled ‘Fundraising to make a difference’. This event took place during ADI’s Asia Pacific regional meeting, organised by TADA Chinese Taipei. Participants from Alzheimer associations within the Asia Pacific region took part in a full day of workshops and group activities all aimed at building their capacity to fundraise effectively.

Alzheimer University

The Alzheimer University is a training programme that ADI runs each year with the aim of building the organisational capacity of Alzheimer associations

Depending on demand and funding, we run two types of course: one for emerging associations and the other for more developed associations to help them increase their effectiveness in specific areas.

Over the last year we have run two Alzheimer University workshops. The first was in London, UK, for associations just starting out, and was made possible by the kindsupportoftheHelenBaderFoundation. The other was focused on fundraising for more established associations, and was held in Chinese Taipei, supported by a donationfromatrust.Botheventswere additionally supported by a grantfromEliLilly.

London April 2008

Volunteers from new and emerging associations in Armenia, Aruba, Ethiopia,Kenya,MauritiusandSuriname travelled from across the globe to attend the Alzheimer University training programme in London.

RepresentativesfromestablishedAlzheimer associations and a leading development training body, together with ADI staff, led the programme and over three days guided the attendees through a range of topics that aimed to equip them with the skills to run a successful and sustainable Alzheimer association.

Keith Turner and Patricia Nobrega at the Alzheimer University for emerging associations, London, UK

Participants at the training day in Taipei

‘What an exceptional, positive experience. I feel lucky to have a clearer vision of our future plans. I am very enthusiastic to put what I have learnt into practice’. Hovhannes Manvelyan, Armenia

‘Today I have learnt that nothing is impossible’ Lorraine Tamitegama, Sri Lanka

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living in the UK and this has resulted in the formation of a new organisation called Friends of ARDSI,whichisnowaregisteredcharity in the UK with the purpose of fundraisingonbehalfofARDSI.Theyhave already held events including a photography exhibition and sale.

In Pakistan, with the help of Western Australia, a new day care centre was inaugurated in Lahore in February2007.Alltheothertwinshave been conducting site visits and establishing their plans of action.

Twinning Programme

We are now entering the third year of the ADI Twinning Programme, a project that forms a relationship between a pair of member associations to exchange ideas and provide mutual support to their organisations

The project has been kindly supportedbyA&SBurton1960Charitable Trust.

Along with the twinning relationships establishedin2006and2007,weannounced new twins for 2008: BrazilandPortugal,MaltaandTheNetherlands and Sri Lanka and Scotland. ADI provides financial and administrative support for the twins and monitors the development of the reciprocal relationship.

We are happy to report stories of success from earlier twinning relationships. The Alzheimer’s Society(England,WalesandN.Ireland) have visited the Alzheimer’s andRelatedDisordersSocietyofIndia(ARDSI)twiceandhavedeveloped a comprehensive action plan on how they can work together over the coming years. They have jointly held several meetings in the UK involving the Indian community

Twinned associations

2006Canada and Trinidad and TobagoPakistan and Australia (WA)Greece and Ireland

2007IsraelandBulgariaUK and IndiaMexico and USA (Los Angeles chapter)

2008Malta and The NetherlandsSri Lanka and ScotlandBrazilandPortugal

Opening of care home in Lahore, Pakistan, developed with the collaboration of Alzheimer’s Australia WA

Debbie Benczkowski, Canada, and Norma Inniss, Trinidad & Tobago, promote their twinning work

Page 8: Alzheimer's Disease International Annual Report 2007-8 · Annual income of ADI (2007) $ 800,000 Annual income of ADI members (estimated) $ 500,000,000 ADI Board members (31 December

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which secured them three television interviews and provided a great start to their awareness campaign, as well as being visited by Keith and Lillian Turner from the UK. Keith has dementia and has worked with the Alzheimer’s Society in the UK as an advocate.

A survey was conducted to find out the needs of people with dementia and their carers. People with dementia and carers wereinterviewedinBrazil,Canada,France, Germany, Spain and the USA. The main findings were presented on several occasions and will be publicised in a leading journal in 2008. Key findings were that most people with dementia and carers maintain a warm relationship with their families and want to go on with their normal lives as much as possible. The survey also found that the main source of information for people is their primary physician and that the use of services provided by Alzheimer associations is more significant in EuropethaninBrazilorNorthAmerica.

The participation of governments and policy makers was another prominent featureofWorldAlzheimer’sDay2007,with the involvement of government leaders and ministers in Argentina, China and the Philippines.

World Alzheimer’s Day

Raising awareness

ADI coordinates World Alzheimer’s Day on 21 September every year. ADI produces materials including a bulletin, posters and stickers for member associations to use and adapt. ADI also provides advice and support to members in their awareness raising activities, and facilitates international communication of the events taking place. These events attract media attention, including radio and TV interviews.

Thechosenthemefor2007,‘Notimetolose–peoplewithdementiaspeakout!’was embraced by associations, many of whom used the day to focus on the reality of life with dementia as seen by the people with the disease themselves.

As the tradition of World Alzheimer’s Day grows and ADI’s membership expands we are very pleased to see the day being celebrated by many new and emerging Alzheimer associations. The Caribbean island of Aruba launched the

Alzheimer’sTealRibbonWeek,includinga fundraising concert. In Lithuania, a marathon was held in the capital, Vilnius, and in Armenia a memory walk and round table attracted the attention of the country’s media and research community.

The association in Jamaica received a visitfromOrienReid,chairmanofADI,

The Caribbean island of Aruba

Students in the Philippines parade in Baguio City to raise awareness of dementia

Alzheimer associations ran a wide range of activities for World Alzheimer’s Day 2007, including lectures and symposia, Memory Walks, open days, fundraising events, national awareness weeks, art and music activities

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10/66 Dementia Research Group

An estimated 66% of people with dementia live in developing countries but only 10% of all population-based research into dementia is conducted in those countries. The 10/66 Group comprises over 130 researchers from 36 countries, and aims to add information about dementia in developing countries to that already available in the developed world.

The 10/66 team has now completed studies of the prevalence, impact, health service utilisation, and risk factors of dementia in eight developing countries. The Group is developing an intervention to be delivered by local health workers which teach carers how to cope with the day-to-day tasks of caring and to deal with the behavioural problems that are associated with dementia. The intervention has shown benefits when evaluated in randomised controlled trials in India andRussia,andmoretrialsareunderway.

The 10/66 Group works to disseminate results widely through its website and newsletter as well as publications in journals, including The Lancet.

Cuba

Mexico

DominicanRepublic

Venezuela

Puerto Rico

Peru

Brazil

IndiaNigeria

Argentina South Africa

China

RussiaUK

The 10/66 Dementia Research Group has research centres worldwide

Providing informationWe pride ourselves on communicating effectively with our members and stakeholders about the activities of ADI and our members

Global Perspective, the ADI newsletter, is produced three times a year and tells stories of individuals and associations around the world working hard to fight dementia. ADI also produces factsheets, booklets and leaflets to provide members with up to date information on dementia and care. The ADI website, www.alz.co.uk, has extensive information about dementia and caring as well as ADI’s activities, and there is also an intranet site with resources for members. Only through frequent communication can we maintain a strong international network.

Global Perspective – ADI’s newsletter

Researcher Mr Jotheeswaran assessing a patient for dementia in India

ADI’s 10/66 Dementia Research Group works to redress the imbalance in research activity into Alzheimer’s disease and the other dementias that exists between the developed and developing world

Page 10: Alzheimer's Disease International Annual Report 2007-8 · Annual income of ADI (2007) $ 800,000 Annual income of ADI members (estimated) $ 500,000,000 ADI Board members (31 December

Involving people with dementia

The two Alzheimer University programmes in the past year included speakers with dementia. This encouraged members to involve people with dementia in their organisations and recognise the power this can have in raising awareness and reducing stigma.

After a visit from Keith Turner, who has dementia, and his wife Lillian, Dundeen Ferguson of Alzheimer’s Jamaica said:

‘Keith’s visit certainly had an impact in raising awareness of Alzheimer’s disease in Jamaica. The sharing of his personal experience living with dementia made it real to many persons and his affirmation of early detection was meaningful. Speaking as a carer, Lillian’s personal

Advocacy and collaboration

Advocacy and the World Health Organization

After discussion at the Asia Pacific meetinginJune2007inPerth,themembers in the region asked ADI to formulate a strategy aimed at getting the World Health Organization (WHO) to make dementia a global health priority. ADI created an Advocacy Working Group with members from Australia, Canada, DominicanRepublic,Germany,Scotland, Sri Lanka, Switzerland and USA. The group developed the text of a charter, to be released on World Alzheimer’s Day 2008. The group also discussed further implementation of the WHO Strategy. In September and October 2008, ADI representatives will visit the six WHO RegionalCommitteemeetingstomake statements and encourage the WHO to put dementia on its agenda.

experiences and challenges was something a lot of families and carerscouldrelateto.Bysharingtheir life experiences on living with dementia Keith and Lillian’s visit had an enormous impact in changing people’s perceptions of the nature of the disease and its effects.’

The theme for World Alzheimer’s Day2007focusedonpeoplewithdementia speaking out which was backed up by an international survey that ADI, with the support of Novartis, undertook investigating the unmet needs, challenges and communication gaps faced by people with mild-to-moderate Alzheimer’s disease and their carers.

People with dementia spoke out at the conference in Venezuela, sharing directly their experiences and demonstrating how they can make a difference and inspire others to take action.

The Global Alzheimer’s Disease Charter has been produced in 16 languages

Involving people with dementia and forging partnerships with appropriate organisations are integral to ADI’s work

Tamiji Yoshida from Japan – a person with dementia speaking out for World Alzheimer’s Day

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Page 11: Alzheimer's Disease International Annual Report 2007-8 · Annual income of ADI (2007) $ 800,000 Annual income of ADI members (estimated) $ 500,000,000 ADI Board members (31 December

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How people with dementia and their carers benefitPeople with dementia and their carers benefit directly from the work of our members. If there is no Alzheimer association in a country, the voices of people with dementia and carers are not heard and there are no basic services like helplines, support groups or independent websites. Alzheimer associations also advocate for and advise on improving health care systems, reimbursement of drug use and recognition of the disease.

Australia was the first country in the world that made dementia a national health priority in the year 2004, followed by South Korea in 2006. France started a major initiative in early 2008 and several other countries are successfully campaigning for similar national plans.

ADI brings together information about all these issues and supports associations through its conferences, training and twinning programmes and individual communication with staff. Through this exchange many good practices are transferred from one country to another, including not only medical practice, but also care

practice, day care centres, training of professionals or volunteers, the support people with dementia and their families or even advocacy. Our work creates stronger and more effective Alzheimer associations which are better able to meet the needs of people with dementia and carers.

Working with our allies

Over the years, ADI has started to work together with several other international organisations. One of the purposes of ADI, expressed in our original governing document, is ‘To facilitate and promote cooperation among international organizations serving and related to the field of aging’.

We have signed or exchanged documents with some organisations to make clear how we collaborate. The main issues covered are the promotion of each other’s conferences, being welcome at each

Maurice O’Connell, Chair of Alzheimer Europe, and Orien Reid, Chairman of ADI, sign the partnership agreement between the two organisations

other’s conferences and general meetings and informing each other on a regular basis about activities. In 2007,duringtheAlzheimerEuropeconferenceinEstoril,Portugal,apartnership agreement was signed betweenADIandAlzheimerEurope.ADI also started to work together with the International Psychogeriatric Association (IPA) by inviting them to the Alzheimer University in Milwaukee. ADI and IPA are exploring possibilities of working together on improving the quality of life of people with dementia and their families, by raising awareness and setting up future projects.

Keith Turner has dementia and was one of the speakers at the Alzheimer University for emerging associations along with Lillian, his wife and carer. He is pictured with representatives from Alzheimer’s Jamaica and the Tunisian Alzheimer and Memory Diseases Society

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Income

ADI is a 501(c)(3) non-profit organisation, incorporated in the state of Illinois, USA.

ADI member Alzheimer associations pay dues according to their own income,whichin2007madeup42% of the income total. ADI also receives contributions and grants from corporations, individuals, foundations and trusts.

Totalincomein2007wassomewhatlower than in recent years, due mainly to achieving a lower level of large grants and contributions from corporations and foundations. Intensive work on fundraising in 2007hasseenresultsfor2008.Thefinancialstatementsfor2007include some $318,000 of income restricted for projects to be carried out in 2008 or future years. This means that the level of unrestricted net assets (‘reserves’) at the end of2007hasbeensignificantlyreduced.

Treasurer’s report

During 2005 it was acknowledged that ADI could not continue as a financially sustainable organisation without some radical re-appraisal of its resource base. In essence ADI had been fortunate to have been in receipt of a significant one-off contribution that allowed some short term respite but a longer term re-alignment was necessary.

Althoughtheaccountsfor2007reflect a further application of reserves this was anticipated in the new five year financial review reflecting the momentum of the past. More encouragingly I am pleased to report that the first signs of financial improvement are beginning to become evident. For example, new fundshavebeensecuredin2007that can be applied in 2008 and the

Martin Else

Interest, investments and other

Dues

Contributions and grants

Conference

Conference

Information

Member supportand development

Promotion and awareness

42%

44%

2%

12% 11%

18%

17%

7%

28%

4%

15%

Research

Management andadministration

Fundraising

Income Expenditure

reduction in costs, in the ADI office in particular, will begin to have a full year impact in 2008.

Despite these difficult financial circumstances ADI has been able to maintain its ambitious strategies of raising awareness and supporting member associations across the world. The new financial plan, as it becomes increasingly embedded, is designed to facilitate these objectives.

As ever we remain greatly indebted to those trusts, foundations, corporations and individuals that support the work of ADI. In particular we would like to thank those donors listed opposite. We are also very grateful for the continuing support of our member associations.

Finally I would like to thank the Chairman,Council,Board,ExecutiveCommittee and especially the staff who have worked so hard in these challenging times to maintain the vision of ADI whilst achieving a new financial context.

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Thank you

Organisations that supported ADIandFriendsofADIin2007:

HelenBaderFoundation

Novartis Pharma

GlaxoSmithKline

GEHealthcare

A&SBurton1960CharitableTrust

Alzheimer’s Australia WA

Loke Won Tho Memorial Foundation

Mark Krueger & Associates

Perspective newsletter, website, factsheets and booklets. The key event for ‘Promotion and awareness’ is World Alzheimer’s Day, but ADI staff and board also take part in other conferences and meetings to promote our work and our cause. The spendingon‘Research’isthroughsupport of the 10/66 Dementia ResearchGroup,andthereisaheading for the ADI International ‘Conference’.

In2007ADIreceivedgrantstosupport specific projects managed by member associations, in addition to core activities run by the ADI staff.

Reserves policy

At the end of each year, unrestricted net assets held by ADI should broadly represent between six and eight months of total annual expenditure, excluding any exceptional variations. This policy is considered appropriate in light of ADI’s aims and its ongoing commitments to members, donors and staff.

ADI receives a share of the revenue from the international conference. In2007thatcontributioncamefromFundación Alzheimer de Venezuela, which hosted the conference in Caracas, Venezuela.

ADI also received support from Friends of ADI, the UK registered charity which enables ADI to receive support tax-effectively from donors in the UK. Friends of ADI does not runanyprogrammesofitsown–itexists to support the work of ADI.

Expenses

ADI’s expenses are classified into seven functions: the five main areas of programme work, management and administration, and fundraising.

‘Membership support and development’ includes the Alzheimer University training programmes, the ADI Twinning Programme and other support and advice provided to Alzheimer associations. ‘Information’ covers the Global

Interest, investments and other

Dues

Contributions and grants

Conference

Conference

Information

Member supportand development

Promotion and awareness

42%

44%

2%

12% 11%

18%

17%

7%

28%

4%

15%

Research

Management andadministration

Fundraising

Income Expenditure

Investment policy

ADI aims to effectively invest funds that are held in reserve or for planned future use. ADI seeks to maximise the long-term growth of funds while maintaining a level of income necessary for current programmes. Investments will be a mix of low and medium risk, so as to maximise return without unduly risking invested capital. Direct investments in companies that have a significant interest in the tobacco, alcohol and pharmaceutical industries will be avoided.

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14 These are extracts from the financial statements, which are available in full from www.alz.co.uk/financial

Statements of activities and changes in net assetsFOR THE YEARS ENDED DECEMBER 31, 2007 AND 2006

2007 2006

Temporarily Percent of Temporarily Percent of Unrestricted Restricted Support & Unrestricted Restricted Support & Funds Funds Total Revenue Funds Funds Total Revenue $ $ $ $ $ $Support and revenue Dues 337,580 337,580 42.38% 313,409 313,409 49.73% Contributions and grants 33,494 318,168 351,662 44.14% 46,527 44,204 90,731 14.40% Share of conference revenue 14,031 14,031 1.76% 53,001 53,001 8.41% Fundraising event 720 720 0.09% 0 0.00% In kind contributions 25,000 25,000 3.14% 29,856 29,856 4.74% Interest and other 13,062 13,062 1.64% 19,997 19,997 3.17% Realized gain on investments 7,084 7,084 0.89% 0 0.00% Unrealized loss on investments -3,287 -3,287 -0.41% -3,073 -3,073 -0.49% Gain (loss) on currency exchange transactions 50,765 50,765 6.37% 126,340 126,340 20.05% Net assets released from restriction: Satisfaction of program restrictions 65,000 -65,000 0 16,399 -16,399 0

Total support and revenue 543,449 253,168 796,617 100.00% 602,456 27,805 630,261 100.00%

Expenses Program services Conference 166,225 166,225 20.87% 125,255 125,255 19.87% Information 70,617 70,617 8.86% 97,430 97,430 15.46% Member support and development 277,092 277,092 34.78% 188,315 188,315 29.88% Promotion 150,358 150,358 18.87% 163,756 163,756 25.98% Research 44,248 44,248 5.55% 10,575 10,575 1.68%

Total program services 708,541 0 708,541 88.94% 585,332 0 585,332 92.87%

Support services General administration 180,910 180,910 22.71% 170,724 170,724 27.09% Fundraising 108,704 108,704 13.65% 76,311 76,311 12.11%

Total support services 289,613 0 289,613 36.36% 247,035 0 247,035 39.20%

Total expenses 998,154 0 998,154 125.30% 832,367 0 832,367 132.07%

Increase (decrease) in net assets -454,705 253,168 -201,537 -25.30% -229,911 27,805 -202,106 -32.07%

Net assets Beginning of year 845,462 35,000 880,462 1,075,373 7,195 1,082,568

End of year 390,757 288,168 678,925 845,462 35,000 880,462

Statements of financial position

DECEMBER 31, 2007 AND 2006 2007 2006

Temporarily Temporarily Unrestricted Restricted Unrestricted Restricted Funds Funds Total Funds Funds Total $ $ $ $ $ $Assets Cash and cash equivalents 191,852 191,852 107,007 107,007Dues receivable 629 629 629 629Due from conference 0 0 55,380 55,380Grants receivable 257,057 257,057 35,000 35,000Due from Friends of ADI 3,982 3,982 105,365 105,365Investments 299,577 299,577 601,810 601,810Prepaid expenses & other 40,427 40,427 13,413 13,413Fixed assets, net of accumulated depreciation of $34,572 in 2007 and $22,278 in 2006 8,668 8,668 18,213 18,213Interfund balance -31,111 31,111 0 0 0

Total assets 514,024 288,168 802,192 901,817 35,000 936,817

Liabilities and net assets Liabilities Accounts payable 123,267 123,267 56,355 56,355

Total liabilities 123,267 0 123,267 56,355 0 56,355

Net assets Unrestricted 390,757 390,757 845,462 845,462 Temporarily restricted 288,168 288,168 35,000 35,000

Total net assets 390,757 288,168 678,925 845,462 35,000 880,462

Total liabilities and net assets 514,024 288,168 802,192 901,817 35,000 936,817

Page 15: Alzheimer's Disease International Annual Report 2007-8 · Annual income of ADI (2007) $ 800,000 Annual income of ADI members (estimated) $ 500,000,000 ADI Board members (31 December

15

Alzheimer’s Disease International

Elected Board (asatDecember2007)

Princess Yasmin Aga Khan, USA, President MrsOrienReid,USA,ChairmanDrDaisyAcosta,DominicanRepublic,ViceChairmanMrMartinElse,UK,TreasurerProfBengtWinblad,Sweden,ChairmanofMSAPMrsLilianAlicke,BrazilDr Ang Peng Chye, Singapore Mrs Wendy Fleming, New Zealand Mrs Norma Inniss, Trinidad and Tobago Mr Hussain Jafri, Pakistan DrClaudiaLai,HongKongSARChinaMr Pekka Laine, Finland Mrs Christine McGregor, UK DrJuandeJLlibreRodriguez,CubaDrJacobRoy,IndiaMrJA‘Tony’Salgado,PuertoRicoMr Niall Tierney, Ireland

Honorary Vice Presidents (asatDecember2007)

ProfHenryBrodaty,AustraliaDr Nori Graham, UKMrBrianMoss,AustraliaMr Jerome Stone, USA

Staff (as at June 2008)

MarcWortmann,ExecutiveDirectorJodie Cross, Membership Development ManagerMichael Lefevre, Finance and Technology ManagerJane Cziborra, Conference and Administration Officer

ArgentinaAustraliaAustriaBarbadosBelgiumBermudaBrazilBulgariaCanadaChilePRChinaColombiaCostaRicaCroatiaCubaCyprusCzechRepublicDenmarkDominicanRepublicEcuadorEgyptElSalvadorFinlandFranceGermanyGreeceGuatemalaHondurasHongKongSARChinaHungaryIcelandIndiaIndonesiaIranIrelandIsraelItalyJapanLebanon

MalaysiaMaltaMexicoNetherlandsNew ZealandNigeriaNorwayPakistanPanamaPeruPhilippinesPolandPortugalPuertoRicoRomaniaRussiaScotlandSerbiaSingaporeSlovakRepublicSouth AfricaSouth KoreaSpainSri LankaSwedenSwitzerlandSyriaTADA, Chinese TaipeiThailandTrinidad and TobagoTurkeyUgandaUkraineUnited KingdomUnited StatesUruguayVenezuelaZimbabwe

Members (asatDecember2007)

Page 16: Alzheimer's Disease International Annual Report 2007-8 · Annual income of ADI (2007) $ 800,000 Annual income of ADI members (estimated) $ 500,000,000 ADI Board members (31 December

Alzheimer’s Disease International: The International Federation of Alzheimer’s Disease and RelatedDisordersSocieties,Inc.is incorporated in Illinois, USA, and is a 501(c)(3) not-for-profit organization

Alzheimer’s Disease International64 Great Suffolk StreetLondonSE10BLUKTel:+442079810880Fax:+442079282357www.alz.co.uk

The cover photo of Nicole Haas and Ruth Nelly Stocker was taken by Ruedi Haas, Switzerland. It was a runner up in the amateur category in ADI’s centenary photo competition in 2006