building community for brain injury survivors conference/annual conference 2014/ann… · traumatic...
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Hello Massachusetts!
Building Community for Brain
Injury Survivors
Lisa Hanson, BWS, CCM, CBIS
Barb Kresge, MS, OTR/L, CBIS
Also contributing: Kelly Redwine, MS, OTR/L and Heather Soldner, MA, CMHC
Questions we hope to
answer today
What is Krempels Center?
What is community?
What is social capital?
Why are these important?
How can you increase your own social
capital or that of your clients living with BI?
We are Krempels Center!
A community-based, nonprofit organization dedicated to improving the lives of people living with brain injury
A unique, non-medical model, which provides opportunities for members and families to share their new lives with others who care and “get it”
Founded by a brain injury survivor, David Krempels
Engages members in meaningful & productive experiences
Member driven, member choice
Making the world a
smaller place…
What is Community?
“A feeling of fellowship with others, as a result of sharing common attitudes, interests, and goals” (Simpson & Weiner, 1989)
The elements of community include:
Network of people
Commonality of celebration or cause
Regularity (ideally)
comm (with) + unity (connectedness)
Community “Culture”
As a community meets on a regular basis, it
begins to frame behaviors and patterns,
forming a “culture.”
Culture may be
implied/tacit or
explicit
Today’s group norms:
Everyone’s opinion is valid
Raise hand if you have something to say
Opportunities for participation are built in to
the presentation – Please save questions
until the end whenever possible
Presenters may redirect or put off a
question/comment to later in order to stick
to the time schedule
Let’s find out about you and
your communities.
SOCIAL CAPITAL “The connections and relationships that
develop around community and the value
those relationships hold for the members”
(Condeluci, 2002)
Why is social capital important?
Research shows that social capital, social
integration and a sense of community leads
to increased life satisfaction and wellness.
Decreased isolation and depression
Increased longevity
Improved health
Increased quality of life
(Burleigh, Farber & Gillard, 1998)
(Tomberg, Toomela, Pulver & Tikk, 2005)
How has brain injury impacted
your social capital? Brain injury survivors – Think about this
from your own perspective
Family members – Think about this from
your own perspective
Professionals – Think about this from the
perspective of your clients and their families
Strategies for improving social capital for
brain injury survivors and families
What YOU can do…
Participate in communities on a regular basis
Make an effort to understand cultural norms
Find similarities/subgroups within communities (Look for conduits)
Choose a support person with strong social skills who values social capital
Find ways to contribute to a community
Consider sharing your challenges and letting people know if/how they can help
What YOU can do continued…
Tell your story!
Improve awareness (especially “anticipatory awareness”) about your challenges
Look for opportunities to spend time with BI peers (e.g. Peer support groups)
Understand and utilize the power of community gatekeepers
Hone and utilize networking skills
Hone conversation skills and general knowledge
What caregivers/professionals
can do Make cultural norms explicit
Choose a support person with strong social skills who values social capital
Offer opportunities to improve social skills (therapy, role-playing)
Include social capital goals in IEP’s and agency plans of care
Get survivors out in their own communities sooner!
What OTHERS can do
part two… Be certain to use person-centered goals (Therapists take on a “coach/consultant” role)
Include peer-support opportunities in all settings (experts and therapists are paid professionals, not peers)
Make every effort to adapt the environment to support the person, not vice-versa
Offer opportunities for control and choices “Nothing for me without me.”
YOU have the power to
make it happen!
www.krempelscenter.org
References
Burleigh, Susan A., Ruth S. Farber, and Marian Gillard. "Community Integration and Life Satisfaction after Traumatic Brain Injury: Long Term Findings." The American Journal of Occupaional Therapy 52.1 (1998): 45-52.
Condeluci, Al. "The Power and Potency of Social Capital." Brain Injury Professional 2011: 8-11.
Evans, Lizzie, and Claire Brewis. "T Efficacy of Community-based Rehabilitation Programmes Fr Adults with TBI." International Journal of Therapy and Rehabilitation 15.10 (2008): 446-58.
Flaherty, Patti. "Social Capital and Its Relevance in Brain Injury Rehabilitation Services." Journal of Vocational Rehabilitation 29 (2008): 141-46.
References
Hoofien, Dan, Assaf Gilboa, Ei Vakil, and Peter Donovick. "Traumatic Brain Injury (TBI) 10-20 Years Later: A Comprehensive Outcome Study of Psychiatric Symptomatology, Cognitive Abilities and Psychosocial Functioning." Brain Injury 15.3 (2001): 189-209.
Krych, David, and Joanne Finegan. "Balancing the "Cost" of Contra-Social Behavior with One's Social Capital: Considerations for Brain Injury Professionals." Brain Injury Professional 2011: 16-21.
Parris, Angela, and Tamara Granger. "The Power and Relativity of Social Capital." Journal of Vocational Rehabilitation 29 (2008): 165-71.
References
Seaton, David. "Life, Liberty and the Pursuit of Happiness: The Applications of Culture Change T Improve Long-Term Care Ater Brain Injury." Brain Injury Professional 2011: 22-25.
Simpson, J. A., and E. S. C. Weiner. The Oxford English Dictionary. Oxford:Clarendon, 1989
Tomberg, T., A. Toomela, A. Pulver, and A. Tikk. "Coping Strategies, Social Support, Life Orientation and Health Related Quality of Life following Brain Injury." Brain Inury 19.14 (2005): 1181-190.
Williams, Janet. "Social Capital: What Are the Community CLUES?" Brain Injury Professional 2011: 12-15.
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