crafting collaboration in an un-collaborative world

Crafting Collaboration in an Un-Collaborative

WorldResources and Ideas for Families with Children with

Special Needs

• Mary Reaves-Program Manager

• Cara Senterfeit-Executive Director

• Christy Sears-Associate Director

Our Part• Explain the critical characteristics of

children with special needs!

• Clarify the roles of select agencies in SC that work with families of children with special needs!

• Provide knowledge/ideas applicable to participants’ current caseload

Your Part

List 3 families with whom you work that need additional supports

Each Family is Different

Cycle of grief

Each Family is Different

Each Family is Different

Family  Connec-on  is  a  statewide  nonprofit  organiza-on  that  links  families  who  have  a  child  or  family  member  with  special  healthcare  needs  or  disabili-es  with  resources,  support  and  educa-on.    !We  provide  support  around  any  special  healthcare  need,  such  as  an  upcoming  surgery,  developmental  delays,  premature  birth,  physical  limita-ons  and  all  diagnoses  including  au-sm,  Down  syndrome,  ADHD  and  cerebral  palsy.  

Hearing Loss• 30 Million Word gap?

• Incidental language

• 1/5

• 3-4 per 10 kids

• 1 in 7

• Warning signs for late onset hearing loss

• Then what?

Role:

Our  support  for  families  includes  a  vast  family-­‐to-­‐family    network,  statewide  offices  and  a  host  of  programs  that  educate,  inspire  and  empower  families  and  their  children  to  live  rich,  fulfilling  lives  in  spite  of  many  challenges.

• New Diagnosis Support

• Parent to Parent Matching

• Resource Parents

• Project Breath Easy

• Support Groups

• Healthcare Connection

• BabyNet Connection

• Staff trainings with other organizations, like Beginnings SC

Role:

• Parent Education and Counseling

• OAE Screening

• Training Modules

• Awareness and Advocacy

• Consultation and Technical Assistance

Collaboration

Collaboration-How to

Family Connection and Beginnings Collaboration

• Referrals

• Targeted expertise

Your turn, again

• Evaluation, please!

Mary Reaves—Beginnings SC mreaves@scbegin.org

!Christy Sears—Family Connection csears@familyconnectionsc.org

!Cara Senterfeit—Beginnings SC

csenterfeit@scbegin.org