european donationec.europa.eu/chafea/documents/...06_2013/...for_european_donation_… · the...

Toolk i t for Event Organizers

DONATION DAY

EUROPEANTISSUE

ORGAN

“This publication arises from the project “Developing Guidelines for the Organisation of a European Donation Day” which has received funding from the European Union in the framework of the Health Programme.”.

Danica Avsec, MD Institut of the Republic of Slovenia for the Transplantation of Organs and TissuesContact: danica.avsec@slovenija-transplant.si

The major outcomes of the survey show that after the EDD event in 2010:

• Publicreceivedmoreinformationonorgandonation.• Informationofsomeparticularsubjectsoforgandonationwasbetterspreadout.• AwarenessofEDDcelebrationamonggeneralpublicwashigher.• Apartofthegeneralpublicgotnewandinterestinginformationaboutorgandonation; newinformationinfluencedtheiropinion,feelingsanddecisionmakinginapositive way.

TheconductedsurveycouldbeusedasabaselineforfutureevaluationofimpactofEDDs.Thesampleofthequestionnairefortheevaluationoftheeventisavailableonthewebsitewww.europeandonationday.org.

The most interesting results of the survey in a graphical presentation

TOOLKIT FOR EVENT ORGANIZERS ThemainresultoftheprojectwasabookletToolkitforeventorganizersofEuropeanDona-tionDaywhichfilledtheabsenceoftheappropriateframeworkonaEuropeanlevel.TheguidelinesareseenasausefultoolfortheorganizationoffuturecelebrationsofEuropeanDonationDay.Withtheeventthegeneralpublic,healthcareprofessionals,mediaandpo-liticalaudienceshouldbeaddressed.Theyallplayacrucialroleinthefurtherdevelopmentofefficienttreatmentwithtransplantation.

ToolkitoffersmoreinformationaboutthemotivationbehindtheorganisationofEDD,itshistoryandrelevancetocommunicationwithpublic.Moreoveritproposesallpracticalguidelineshowtoorganizeandstructuretheeventfromthestarttillitsend.Toconclude,thereareinstructionshowtoevaluatetheeffectoftheeventonthepublic.

Toolkit is available on the EDD website www.europeandonationday.org.

PROJECT PARTNERS Associated partners

Slovenija-transplant(Slovenia),TransplantCoordinatingCentrePraga(CzechRepublic),MartinFacultyDepartmentofTransplantandVascularSurgery(Slovakia),MinistryofHealthandSocialWelfareRepublicofCroatia,DepartmentforSpecialHealthCareandTransplantation(Croatia),MedicalUniversityofVienna,DepartmentofSurgery,UnitofTransplantation(Austria)

Collaborating partners

EuropeanDirectoratefortheQualityoftheMedicines,EurotransplantInternationalFoundation,ClinicalCentrePodgorica(MonteNegro),MinistryofHealthoftheRepublicofSerbia(Serbia),MinistryofHealthoftheRepublicofBosniaandHerzegovina(BosniaandHerzegovina),GeorgianAssociationofTransplantologists(Georgia)

BACKGROUND Themajorobstacleinthetransplantationmedicineremainstheshortageoforgans.NearlyallEuropeancountriesarefacingwiththechallengeofhowtoincreasepublicawarenessandparticipationinorgandonation.AlthoughseveralstudiesdemonstratethatthemajorityoftheEuropeanpublicsupportstheideaoforgandonation,thereisavastgapbetweentheideaandpublicparticipation,sincethenumberoforgandonorsisbyandlargeindecline.TheEuropeanaverageisaround16deceaseddonorspermillionpopula-tion(pmp),whichisconsideredaratherlowrate.

Oneofthemostimportantfactorsthatinfluencestheorgandonationrateissocialawareness.

Promotionofthetransplantationmedicineandincreasingpublicawarenessforthedonationofhumanbodypartsforthetreatmentisamultilevel,ongoingandchallengingactivity.

OneoftheresponsesoftheEuropeanhealthpolicyofhowtoaddressthesechallengesisincludedintheActionPlan(2009-2015)whichtheCommissionoftheEuropeanCommunitieshaslaunched.ToachievegoalsofActionplan,therewasaneedtoestablishonedaydedicatedspecificallytoorganandtissuedonationandtransplantationinordertoattractmoreattentiontotheissue,tospreadcredibleinformationandtosensitizethepublic.HowevertherewasnovasttraditionorguidelinesdevelopedfortheogranisationofaEuropeanDonationDay(EDD).

EU FUNDED PROJECT: DEVELOPING GUIDELINES FOR THE ORGANISATION OF A EUROPEAN DONATION DAY

Inordertohelpraisepublicawarenessandattracttheattentionofthepublictotheissueoforgandonationandtransplantation,acommonframeworkfortheEuropeanDonationDay(EDD)celebrationwasneeded.Schemeofthecelebrationhasbeendevelopedduringtheproject“DevelopingguidelinesfortheorganizationofaEuropeanDonationDay”(2009–2011)fundedbyEUHealthProgrammeframework.Moreoverthegoaloftheprojectwastoevaluateevent’sawarenessraisingpotential.

EuropeanDonationDayisshorternameforEuropeanDayforOrganDonationandTransplantation.Tissueandcelldonationandtransplantationareintegratedintheconceptofthedayaswell.

The main goals and objectives of a unified EDD celebration are:

• Toraisepublicawarenessinthefieldoforganandtissuedonationandtransplantation.• Toexpressacknowledgmenttoallthepeopleinvolvedintransplantprocess (whoaretransplantpatientsandtheirfamilies,organdonorfamilies,healthcare professionals).• Toestablishtrustamonggeneralpublictowardsresponsible,highethical, non-commercialandprofessionalorgandonationandtransplantation.• Toshareanddiscusschallengesandinnovationsintransplantmedicineamonghealth careprofessionals.• Inalongtermtoincreasethenumberoforganandtissuedonors;withcontinuousand yearlyrepetitiveEDDeventswecanachieveabiggerimpact.

WithyearstheoccasionofEDDisseentobecomeaprimaryawareness-raising“voice”andeventregardingorganandtissuedonationandtransplantationinEurope.

Towards a unified European Donation Day: second Saturday in October.

PROJECT SURVEY: MEASURING AWARENESS POTENTIAL OF EDDPartoftheprojectwasanevaluationsurveyoftheEuropeanDonationDaythatwascon-ductedinSlovenia,Austria,Croatia,CzechRepublicandSlovakia(in2010).TheaimofthesurveywastomeasureawarenessraisingpotentialofEDDcelebrationamonggeneralpublic.Webinterviewing(CAWI)wasperformedintwowaves:Amonthbeforetheeventandagainrightaftertheevent.Questionsaboutpublic’sinformation,knowledge,opin-ionaboutorgandonationandawarenessofEDDcelebrationwereasked.Ineachcountryasampleof700respondents,representativeaccordinggender,ageandregionwasused.ThecomparisonoftheresultsbeforeandafterthecelebrationshowedanimpactoftheEDDcelebrationonmeasuredvariables.Thesurvey’sstatisticalresultsconfirmedthepur-poseofhavingEDDcelebration.

Thisposterarisesfromtheproject“DevelopingguidelinesfortheOrganizationofaEuropeanDonationDay”,whichhasreceivedfoundingfromtheEuropeanUnion,intheframeworkoftheHealthProgramme.

Allrightsreserved.

Picture 3:Percentageofrespondentswhore-ceivedneworinterestinginformationaboutorgandonationduringtheEDDreportedthatthegainedinformationhasinfluencedtheiropinion,feelingsordecisionmaking.Thema-jorityreportedaboutthepositiveinfluenceoftheinformation.

Picture 1: Theamountofinformationreceivedaboutorgandonationandtransplantationinthelastyear:comparisonoftheresults(before-1stwave/after-2ndwave)inallparticipatingcountries.

1INFORMATIONABOUTORGANDONATIONANDTRANSPLANTATION

Picture 2: InformationaboutEDDcelebration:comparisonoftheresults(before-1stwave/after-2ndwave)inallparticipatingcountries.

2EUROPEANDONATIONDAY

3INFLUENCEOFEDDEVENTONTHEBEHAVIOUR/OPINION

Slovenia

Toolk i t for Event Organizers

DONATION DAY

EUROPEANTISSUE

ORGAN

“This publication arises from the project “Developing Guidelines for the Organisation of a European Donation Day” which has received funding from the European Union in the framework of the Health Programme.”.