hammersmith_the promise of patient engagement_ bionanotechnology seminar_01292013
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January 29, 2013
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BIOLOGICAL SAMPLES
DATA
Decision-makingFundingPatient access to data – Electronic Health RecordsPatient-curated data
CLINICAL TRIALS
Data collectionImproved standard of careEvidence-based outcomes
ADVOCACY
Funding – Grants, LegislativeResearch Questions – YSC Research Think TankRecruitmentMotivationCollaboration
COMMUNITY OUTREACH
Patient ExperiencePatient CollaborationEducation (Bench to Bedside)Patient Engagement (Social Media?)
Seeking What Matters: Patients as Research Partners
http://adisonline.com/thepatient/Fulltext/2012/05020/Seeking_What_Matters__Patients_as_Research.1.aspx
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