healthtalkonline.org - ann mcpherson

Objectives of this talk

• To demonstrate www.healthtalkonline.org

• Aims of www.healthtalkonline.org

• How we achieve our aims and why different from ‘standard’ case studies

• Why we present the studies in this way and ooutputs

Aims of www.healthtalkonline.org. are to………….

• identify the questions and problems that matter to patients when they are ill or have a health related problem using ‘case studies’ based on interviews

• provide support and information to patients, their family and carers.

Continued……

• be an educational resource for medical students, doctors in training, nurses and other health professionals

• promote a balanced encounter between patients and health professionals

• provide a patient centered perspective to researchers, managers and commissioners

How do we achieve this?

• Based on qualitative research• Advisory panel• For each condition -sample of 40-50 plus

patients from all over U.K from different backgrounds and with different experiences (maximum variation sample)

• Keep interviewing until no new themes, ideas, or experiences are voiced using thematic analysis

• Patients recruited via GPs, support groups, hospitals, media etc

• Narrative interviews -‘tell us your story’ unstructured and semi-structured interviews rather than ‘tick box questionnaire’

• Outputs as video, audio and written interviews (to avoid bias)

• Short summaries of main themes are written which include all experiences set with other research context

Presentation of results

• Research is presented on one website whether you are a patient, carer, doctor, researcher

• Links to other relative information• Fora for patient feedback• Freely available

Outputs

• 2000 interviews/patients case studies• 50 different illness and health issues available• 70+ peer reviewed papers• 1million hits a month

• www.healthtalkonline.orgwww.youthhealthtalk.org