informationist services for deafness research : a case study

Informationist Services for Deafness Research: A Case Study

Karen Hanson

Theodora Bakker

NYU Langone Medical Center, Health Sciences Library

Presented: NLM Board of Regents, February 11, 2014

The Informationists

Karen HansonKnowledge Systems Librarian

Theodora BakkerAssoc. Dir., Divisions of Knowledge

Informatics, and Systems and Technology

NYU Langone Medical Center

Selecting Partners for Informationists

Click for a video of Neil Rambo explaining the process of selection for Informationist

proposals

CLINICAL MANAGEMENT OF COCHLEAR IMPLANT PATIENTS WITH CONTRALATERAL HEARING AIDS

Mario Svirsky & Arlene Neuman

Mario Svirsky & Arlene Neuman

Click for a for a video of the PIs explaining their underlying R01 project

INFORMATIONIST SUPPLEMENT

Specific Aims

1. Data Model, database and data entry

2. Reporting Queries

3. Tool

Approach

•Document workflows and data•Analyze needs

MS Access

Subjects Research team

PIs

MS Access

MS Excel

Subjects Research team

MS Excel

PIs

MS Access

MS Excel

MS Excel

Subjects Research team

International researchers

MS Excel

PIs

Current State of the Data: Model

MS Excel data

MS Access data

International consortium data (Excel)

Current State of the Data: Content

MS Excel data

MS Access data

International consortium data (Excel)

Current State of the Data: Data Fields

MS Excel data

MS Access data

International consortium data (Excel) Date of Birth

Date of Encounter

Calculated Age

Recorded Age

Creating a New Data Model

DATA TOOL

Tool Assessment Criteria

• Support new data model • Support complex reporting• Usability• HIPAA• Future compatibility

Tool Evaluation

Support data model

Support complex reporting

Tool Evaluation

Usability

Support data model

Support data model

Support complex reporting

Tool Evaluation

Future compatibility

Support data model

Usability

Support data model

Support complex reporting

Custom Tool Benefits

• Meet all criteria• Web based• Add new features to improve data quality

Cleaner Data Entry

•Picture of old form•Picture of new form

Cleaner Data Entry

Extra Validation, Audit

Autocomplete

Data Import

Built-in and Custom Reporting

Additional Filters

CHALLENGES & OPPORTUNITIES

Challenges: Domain Knowledge

url: http://www.nidcd.nih.gov/health/hearing/pages/coch.aspx

Challenges: Creating New Tool

Challenges: the Model

Before

Challenges: the Model

After

Opportunities

•Data sharing and cross collaboration

•Value of complex Data Management

•New role for Librarians

Thank You

•NLM

•NIDCD

Contact the Informationists

•Karen HansonKaren.Hanson@med.nyu.edu

•Theodora BakkerTheodora.Bakker@med.nyu.edu