multiple myeloma patient support group (kpmm) activities and organization changes 26-27 march 2010,...

Multiple Myeloma Patient Support Group

(KPMM)Activities and organization

changes

26-27 March 2010, Olsztyn

for V. Congress of Polish Myeloma Patient Help Association

About usAbout us

Founded in May 2006, self-dependent from March 2007

Regional groups: Brno, Praha, Plzeň, Hradec Králové, Olomouc

190 members

General changeGeneral change

New function - group coordinator from August 2008

professional worker - free of disease any time availablewithout physical and psychical stress

What has improvedWhat has improved Continual, faster and easier interchange of information

between regional groups Cut-down of members (patients) paper work Well-arranged and actual websites, wider content of

patient journal Regular leaflets with new information Office with fixed working hours More time spent with leaders of regional groups New designe of published material

What more we wishWhat more we wish

Increase the number of membersReach out more patients with multiple

myeloma (non-members)Offer psychological and emotional support to the

patients and their relativesGet more partners for support of patient activities

Patient activitiesPatient activities

Patient activitiesPatient activities

Patient activitiesPatient activities

Thank you for your Thank you for your attentionattention

Roman Hajek for KPMM