my cancer. my life
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Impact Review 2008/09
www.clicsargent.org.uk
ContentsMessage from our Chair of Trustees ............2
Message from Manvir ................................. 4
Meeting our Charitable Objectives:
Section 1 – Improving health and wellbeing outcomes .........................................7
Section 2 – Reducing the practical and financial burden of cancer .............................15
Section 3 – Building support and understanding and reducing isolation ...........25
Section 4 – Researching better futures and investing in the development and improvement of services ...................... 35
Financial Overview .....................................41
Thank You .................................................45
Last year saw CLIC Sargent underline its authority in the child cancer arena. As an established provider of services for children and young people with cancer, we worked closely with the Department of Health to look at the future delivery of services.
CLIC Sargent highlighted that the support children and young people received when they were not in hospital was vital too, to bring about lasting improvements in care. And it was not only about clinical care but wider needs: emotional, educational, social, practical and financial.
This is all detailed in our report: More Than My Illness. It showed that the support and care was not always available to ensure that children and young people can be cared for at home safely - during or after their treatment. To bridge that gap we proposed a new model of care: a complete package of support services in and out of hospital.
For 2009, our focus is on continuing to deliver quality services right across the UK. Our new model of care sees us influencing what and how services are delivered to children, young people and their families in the future, at a local and national level too.
Without our supporters, none of this vital work would have been possible. In this review, you will read how they helped us to raise more than ever before and to raise our profile as the children’s cancer charity. The words of the children and young people in this review will show you just how much that support means - and why ongoing support is vital for our work in 2009/10 and beyond. Thank you.
Daphne Pullen
Message from our Chair of Trustees
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ContentsMessage from our Chair of Trustees ............2
Message from Manvir ................................. 4
Meeting our Charitable Objectives:
Section 1 – Improving health and wellbeing outcomes .........................................7
Section 2 – Reducing the practical and financial burden of cancer .............................15
Section 3 – Building support and understanding and reducing isolation ...........25
Section 4 – Researching better futures and investing in the development and improvement of services ...................... 35
Financial Overview .....................................41
Thank You .................................................45
Last year saw CLIC Sargent underline its authority in the child cancer arena. As an established provider of services for children and young people with cancer, we worked closely with the Department of Health to look at the future delivery of services.
CLIC Sargent highlighted that the support children and young people received when they were not in hospital was vital too, to bring about lasting improvements in care. And it was not only about clinical care but wider needs: emotional, educational, social, practical and financial.
This is all detailed in our report: More Than My Illness. It showed that the support and care was not always available to ensure that children and young people can be cared for at home safely - during or after their treatment. To bridge that gap we proposed a new model of care: a complete package of support services in and out of hospital.
For 2009, our focus is on continuing to deliver quality services right across the UK. Our new model of care sees us influencing what and how services are delivered to children, young people and their families in the future, at a local and national level too.
Without our supporters, none of this vital work would have been possible. In this review, you will read how they helped us to raise more than ever before and to raise our profile as the children’s cancer charity. The words of the children and young people in this review will show you just how much that support means - and why ongoing support is vital for our work in 2009/10 and beyond. Thank you.
Daphne Pullen
Message from our Chair of Trustees
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When I was told I had cancer, I was shocked. I just didn’t expect it. I was like… ‘what?’ I was 16 years old, with my whole life ahead of me. What could I do? I just got on with the treatment.
I’m not going to tell you about the weeks of chemo, my hair falling out… you probably know about all that. What affected me most was missing out on normal life — like going to the cinema, shopping, just chatting with friends.
The longer I was in hospital, the more it affected my confidence. What were my friends doing? Would I fit back in? How far behind would I be at college?
CLIC Sargent has found that there are lots of children and young people like me — who don’t want to stay in hospital a minute longer than they need to. CLIC Sargent’s focus is on making sure that specialist treatment can be given at home (or in a hospital closer to home) whenever it’s possible, so life can be as normal as possible.
CLIC Sargent knows that cancer affects you in lots of ways. For me, being sick was the easy bit. It was the other things — school, confidence, getting and having friends, my emotions — that were really difficult.
now I’m Manvir again, not a cancer patient Manvir, 19
I had CLIC Sargent to help me. But too many children and young people are being left to cope with all this on their own. In this review you will read how CLIC Sargent is changing that — and how your support is vital in helping to make it all happen.
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When I was told I had cancer, I was shocked. I just didn’t expect it. I was like… ‘what?’ I was 16 years old, with my whole life ahead of me. What could I do? I just got on with the treatment.
I’m not going to tell you about the weeks of chemo, my hair falling out… you probably know about all that. What affected me most was missing out on normal life — like going to the cinema, shopping, just chatting with friends.
The longer I was in hospital, the more it affected my confidence. What were my friends doing? Would I fit back in? How far behind would I be at college?
CLIC Sargent has found that there are lots of children and young people like me — who don’t want to stay in hospital a minute longer than they need to. CLIC Sargent’s focus is on making sure that specialist treatment can be given at home (or in a hospital closer to home) whenever it’s possible, so life can be as normal as possible.
CLIC Sargent knows that cancer affects you in lots of ways. For me, being sick was the easy bit. It was the other things — school, confidence, getting and having friends, my emotions — that were really difficult.
now I’m Manvir again, not a cancer patient Manvir, 19
I had CLIC Sargent to help me. But too many children and young people are being left to cope with all this on their own. In this review you will read how CLIC Sargent is changing that — and how your support is vital in helping to make it all happen.
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Every day ten families hear the devastating news that their child has cancer. Treatment can start straightaway and last up to three years.
CLIC Sargent is the only charity providing all round care and support every step of the way, with specialist services across the UK.
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Every day ten families hear the devastating news that their child has cancer. Treatment can start straightaway and last up to three years.
CLIC Sargent is the only charity providing all round care and support every step of the way, with specialist services across the UK.
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I was told that I had cancer, in the bone in my right leg, just before Christmas last year. I was really scared, but felt a bit confused too. It all seemed to happen so fast… being told, going into hospital and starting chemotherapy.
When I first had chemotherapy I felt really sick and had to spend quite long spells in hospital. When my hair started to fall out, I decided to have it cut short and I quite liked it. A big part of my treatment was to have an operation to remove the bone in my leg, and have it replaced with metal.
I’m at home now and I love it, because it feels like life is normal again. I’m lucky because I’ve got a CLIC Sargent nurse, called Liz. She explains everything to me and is very reassuring. She visits me to change my dressings, take blood, whatever I need. It means I don’t have to keep going back to hospital. Even a short appointment can take up a whole day, because of the drive there and back.
Liz has time to talk to my mum and dad, and it seems more relaxed at home compared to the hospital. I try to get into school when I can and Liz comes there to treat me. This means she can explain things to my friends and teachers too.
not everyone has a nurse like Liz, but it would be brilliant if they could. CLIC Sargent wants to see more special nurses like Liz to help children in hospital and at home. Sounds like a good idea to me. I don’t know what we’d do without Liz.
It’s great to be back home Sophia, 13
Find out more on the next page...
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I was told that I had cancer, in the bone in my right leg, just before Christmas last year. I was really scared, but felt a bit confused too. It all seemed to happen so fast… being told, going into hospital and starting chemotherapy.
When I first had chemotherapy I felt really sick and had to spend quite long spells in hospital. When my hair started to fall out, I decided to have it cut short and I quite liked it. A big part of my treatment was to have an operation to remove the bone in my leg, and have it replaced with metal.
I’m at home now and I love it, because it feels like life is normal again. I’m lucky because I’ve got a CLIC Sargent nurse, called Liz. She explains everything to me and is very reassuring. She visits me to change my dressings, take blood, whatever I need. It means I don’t have to keep going back to hospital. Even a short appointment can take up a whole day, because of the drive there and back.
Liz has time to talk to my mum and dad, and it seems more relaxed at home compared to the hospital. I try to get into school when I can and Liz comes there to treat me. This means she can explain things to my friends and teachers too.
not everyone has a nurse like Liz, but it would be brilliant if they could. CLIC Sargent wants to see more special nurses like Liz to help children in hospital and at home. Sounds like a good idea to me. I don’t know what we’d do without Liz.
It’s great to be back home Sophia, 13
Find out more on the next page...
All round care and support
As the children’s cancer charity, CLIC Sargent is there… with clinical, practical, social and emotional support, every step of the way.
We provide a whole range of specialist care professionals: nurses, play specialists, social workers, psychologists — and other services, in hospital and at home. Read about how they help children and young people with cancer at www.clicsargent.org.uk/Whatwedo
Leading the way
2008/09 saw us looking beyond our own services. Working with others — including the Department of Health — and drawing on our extensive experience, we set out a national picture for future care.
This picture — detailed in our report More Than My Illness — puts one person at the centre of co-ordinating the care that a child needs. It draws together care professionals, in hospital and in the community. It means that all children with cancer can be treated safely at home, so they can lead as normal a life as possible.
Young people speak outIn 2008/09, young people with cancer — and particularly survivors of childhood cancer — helped CLIC Sargent explain why all this is so important.
For example, Manvir helped CLIC Sargent outline the model to the All Party Parliamentary Group on Cancer. The result is that the Government now has a strong commitment to community-based children’s services. And they support the move towards a more integrated way of delivering care.
Young people attended Britain Against Cancer with us, the UK’s biggest annual cancer policy conference. We also made it possible for their voices to be heard at the International Paediatric Oncology Conference and at number 10 Downing Street, with the Prime Minister and other ministers.
In Scotland, CLIC Sargent influenced the development of the national Delivery Plan for Children and Young People’s Specialist Services and the new Scottish cancer plan, Better Cancer Care.
about More Than My Illness and its background?
Visit http://www.clicsargent.org.uk/MoreThanMyIllness
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All round care and support
As the children’s cancer charity, CLIC Sargent is there… with clinical, practical, social and emotional support, every step of the way.
We provide a whole range of specialist care professionals: nurses, play specialists, social workers, psychologists — and other services, in hospital and at home. Read about how they help children and young people with cancer at www.clicsargent.org.uk/Whatwedo
Leading the way
2008/09 saw us looking beyond our own services. Working with others — including the Department of Health — and drawing on our extensive experience, we set out a national picture for future care.
This picture — detailed in our report More Than My Illness — puts one person at the centre of co-ordinating the care that a child needs. It draws together care professionals, in hospital and in the community. It means that all children with cancer can be treated safely at home, so they can lead as normal a life as possible.
Young people speak outIn 2008/09, young people with cancer — and particularly survivors of childhood cancer — helped CLIC Sargent explain why all this is so important.
For example, Manvir helped CLIC Sargent outline the model to the All Party Parliamentary Group on Cancer. The result is that the Government now has a strong commitment to community-based children’s services. And they support the move towards a more integrated way of delivering care.
Young people attended Britain Against Cancer with us, the UK’s biggest annual cancer policy conference. We also made it possible for their voices to be heard at the International Paediatric Oncology Conference and at number 10 Downing Street, with the Prime Minister and other ministers.
In Scotland, CLIC Sargent influenced the development of the national Delivery Plan for Children and Young People’s Specialist Services and the new Scottish cancer plan, Better Cancer Care.
about More Than My Illness and its background?
Visit http://www.clicsargent.org.uk/MoreThanMyIllness
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A new theme for our running team!To provide our services, and to plan ahead, we rely on the money raised by our supporters. And last year £1.4 million was raised from our running events. Our thanks go to everyone who ran, and to those who cheered them on.
next year looks even more exciting for our runners! In May 2008, Virgin boss Richard Branson announced that CLIC Sargent had been nominated as the official charity for the 2010 Virgin London Marathon. This gives us an unprecedented opportunity — to raise £1.5 million in just one day and to dramatically raise our profile from this global event. As CLIC Sargent nurses are at the heart of our work for children with cancer, we have put them at the centre of our running team’s theme. See the whole story www.clicsargent.org.uk/virginlondonmarathon and watch our film ‘Run for Me’ narrated by 10-year-old Oliver, a young cancer survivor.
More national events There are lots of ways you can get involved — London to Paris Cycle,
our exciting mental and physical challenge 24seven, Yummy
Mummy merchandise and events, sponsored music, dance,
reading and football events. Altogether our national events
raised £1 million for children with cancer in 2008/09.
Our goal for 2009 is £1.4 million.
at www.clicsargent.org.uk/Getinvolved
Closer to home CLIC Sargent has fundraising groups and supporters across the UK,
who raised a phenomenal £5.7 million for children with cancer
last year through events in their communities. We would like
to say a huge thank you to everyone who got involved.
One new idea that raised £120,000 alone in 2008/09 was
nips & Dips. This saw people taking the plunge in icy waters in
north Devon, Hamble, Castlewellan in northern Ireland, Stonehaven,
Isle of Orkney, Isle of Rothesay, Gourock, Leven and Prestwick in
Scotland — all to help our work for children with cancer.
at www.clicsargent.org.uk/Inyourregion
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A new theme for our running team!To provide our services, and to plan ahead, we rely on the money raised by our supporters. And last year £1.4 million was raised from our running events. Our thanks go to everyone who ran, and to those who cheered them on.
next year looks even more exciting for our runners! In May 2008, Virgin boss Richard Branson announced that CLIC Sargent had been nominated as the official charity for the 2010 Virgin London Marathon. This gives us an unprecedented opportunity — to raise £1.5 million in just one day and to dramatically raise our profile from this global event. As CLIC Sargent nurses are at the heart of our work for children with cancer, we have put them at the centre of our running team’s theme. See the whole story www.clicsargent.org.uk/virginlondonmarathon and watch our film ‘Run for Me’ narrated by 10-year-old Oliver, a young cancer survivor.
More national events There are lots of ways you can get involved — London to Paris Cycle,
our exciting mental and physical challenge 24seven, Yummy
Mummy merchandise and events, sponsored music, dance,
reading and football events. Altogether our national events
raised £1 million for children with cancer in 2008/09.
Our goal for 2009 is £1.4 million.
at www.clicsargent.org.uk/Getinvolved
Closer to home CLIC Sargent has fundraising groups and supporters across the UK,
who raised a phenomenal £5.7 million for children with cancer
last year through events in their communities. We would like
to say a huge thank you to everyone who got involved.
One new idea that raised £120,000 alone in 2008/09 was
nips & Dips. This saw people taking the plunge in icy waters in
north Devon, Hamble, Castlewellan in northern Ireland, Stonehaven,
Isle of Orkney, Isle of Rothesay, Gourock, Leven and Prestwick in
Scotland — all to help our work for children with cancer.
at www.clicsargent.org.uk/Inyourregion
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Cancer changes lives in lots of ways. Parents take time off work. Finances can get tough. Families spend more time apart.
Cancer is more than an illness, and here you will read how CLIC Sargent helps people cope with the wider issues that they face.
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Achievements: 2008/09Supported 2,733 newly diagnosed children •and young people and their families.
Published • More Than My Illness — a vision for the future delivery of services for 0 to 16 year olds.
Set out Fit to Eat Guidelines for hospitals — •to serve better food for children with cancer see www.clicsargent.org.uk/Fittoeat
Aims: 2009/10Deliver the next phase of • More Than My Illness, focusing on the needs of an older age group (16 to 24 year olds).
Increase the amount of work we do with •16 to 24 year olds across all of our services.
Take the lead on recommending policy development, around •what is needed by community care professionals to best deliver support to children and young people with cancer.
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Cancer changes lives in lots of ways. Parents take time off work. Finances can get tough. Families spend more time apart.
Cancer is more than an illness, and here you will read how CLIC Sargent helps people cope with the wider issues that they face.
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Achievements: 2008/09Supported 2,733 newly diagnosed children •and young people and their families.
Published • More Than My Illness — a vision for the future delivery of services for 0 to 16 year olds.
Set out Fit to Eat Guidelines for hospitals — •to serve better food for children with cancer see www.clicsargent.org.uk/Fittoeat
Aims: 2009/10Deliver the next phase of • More Than My Illness, focusing on the needs of an older age group (16 to 24 year olds).
Increase the amount of work we do with •16 to 24 year olds across all of our services.
Take the lead on recommending policy development, around •what is needed by community care professionals to best deliver support to children and young people with cancer.
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When Megan’s younger sister Ellen was diagnosed with cancer, it changed her life too. That is because the family had to bring Ellen to Bristol for specialist cancer treatment, and it was too far to drive every day. So they stayed at Sam’s House, next to the hospital. It became their ‘home’ when Ellen was being treated, and meant the whole family could stay together.
It’s not our house, but it’s like being at home Megan, 11
Sam’s House is one of our Homes
from Home, which offer families
somewhere comfortable to stay
for free, close to their child.
In 2008 we opened CLIC Annexe at
CLIC House, another of our Homes
from Home in Bristol. It provides
a further four en-suite double
bedrooms, to the 14 rooms in
CLIC House. The Annexe also offers
a drop-in centre for families not
staying at the house, to meet with
other families away from the ward.
2008 saw us start to raise funds
for our eighth home, close to
the Queen’s Medical Centre
(QMC) in nottingham.
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When Megan’s younger sister Ellen was diagnosed with cancer, it changed her life too. That is because the family had to bring Ellen to Bristol for specialist cancer treatment, and it was too far to drive every day. So they stayed at Sam’s House, next to the hospital. It became their ‘home’ when Ellen was being treated, and meant the whole family could stay together.
It’s not our house, but it’s like being at home Megan, 11
Sam’s House is one of our Homes
from Home, which offer families
somewhere comfortable to stay
for free, close to their child.
In 2008 we opened CLIC Annexe at
CLIC House, another of our Homes
from Home in Bristol. It provides
a further four en-suite double
bedrooms, to the 14 rooms in
CLIC House. The Annexe also offers
a drop-in centre for families not
staying at the house, to meet with
other families away from the ward.
2008 saw us start to raise funds
for our eighth home, close to
the Queen’s Medical Centre
(QMC) in nottingham.
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new Home for 2009Over 80 children each year are referred for cancer treatment to Queen’s Medical Centre nottingham from a huge area covering six counties. Behind the appeal to raise the £2 million needed for the home was the Greenall family. Their son Billy — now a healthy eight year old — was diagnosed with cancer when he was just three.
Our grateful thanks go to Laura and Johnny Greenall, their tireless fundraising committee and supporters… who throughout 2008/09 organised special events, ran a marathon and more, to make it possible to open the door of Billy’s House in June 2009.
The Charity is fortunate to have the support of several dedicated committees, who lead on major fundraising initiatives. In 2008 The London Committee
celebrated a milestone. Founded 10 years ago by Sara Carello, now a Patron of the Charity, the committee has raised £4 million.
The Committee has brought a wealth of contacts to the charity too: companies such as Giorgio Armani, Ralph Lauren, Louis Vuitton and Lancôme.
We are also immensely grateful to Purple PR who introduced the Charity to Jade Jagger, to Gap and to the Morgans Hotel Group, who sponsored Evenings at Sanderson and the Burns Supper.
Our thanks to all the London Committee members and Events Committee members who have worked so hard and so loyally to raise funds for CLIC Sargent. You can read more on page 46.
London Home goes ahead in 2010 Thanks to the dedication and vision of Marie Jordan supported by her husband Eddie and a wonderful committee, we aim to open our next home at UCLH (University College Hospital London) in 2010 — with work finally getting underway in 2009. none of this would be achieved without the dedication of the Chair and her Committee — thank you to all who have worked so hard. Our thanks go to all of our Patrons, on page 44.
Visit www.clicsargent.org.uk/Billyshouse
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new Home for 2009Over 80 children each year are referred for cancer treatment to Queen’s Medical Centre nottingham from a huge area covering six counties. Behind the appeal to raise the £2 million needed for the home was the Greenall family. Their son Billy — now a healthy eight year old — was diagnosed with cancer when he was just three.
Our grateful thanks go to Laura and Johnny Greenall, their tireless fundraising committee and supporters… who throughout 2008/09 organised special events, ran a marathon and more, to make it possible to open the door of Billy’s House in June 2009.
The Charity is fortunate to have the support of several dedicated committees, who lead on major fundraising initiatives. In 2008 The London Committee
celebrated a milestone. Founded 10 years ago by Sara Carello, now a Patron of the Charity, the committee has raised £4 million.
The Committee has brought a wealth of contacts to the charity too: companies such as Giorgio Armani, Ralph Lauren, Louis Vuitton and Lancôme.
We are also immensely grateful to Purple PR who introduced the Charity to Jade Jagger, to Gap and to the Morgans Hotel Group, who sponsored Evenings at Sanderson and the Burns Supper.
Our thanks to all the London Committee members and Events Committee members who have worked so hard and so loyally to raise funds for CLIC Sargent. You can read more on page 46.
London Home goes ahead in 2010 Thanks to the dedication and vision of Marie Jordan supported by her husband Eddie and a wonderful committee, we aim to open our next home at UCLH (University College Hospital London) in 2010 — with work finally getting underway in 2009. none of this would be achieved without the dedication of the Chair and her Committee — thank you to all who have worked so hard. Our thanks go to all of our Patrons, on page 44.
Visit www.clicsargent.org.uk/Billyshouse
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Lots of mums must hear their child complain of tummy ache. So Valmire was shocked when the doctor sent her straight to the hospital and just the next day she heard that four year old Eraldo had a tumour in his bladder.
Coping with the shock was just half of the problem. Originally from Kosovo, Valmire found it particularly hard to understand what kind of help was available. Jason, a CLIC Sargent Social Worker, helped the family from the start.
Valmire said: “Jason really helped me understand what support was available to Eraldo, like Disability Living Allowance, Carer’s Allowance and grants. There were lots of things to pay for, like food and travel to the hospital. Jason helped me get a CLIC Sargent Grant, and it really helped me. The forms for the benefits were hard to understand, and Jason gave me so much help. Jason has given us much time and I thank him.”
Jason must have lots of people to help, but he always had time for us Valmire, Eraldo’s mum
CLIC Sargent Social Workers like
Jason are there for all families,
often from diagnosis. They are a
key part of the CLIC Sargent care
team, managing the non-clinical
side of care and support — from
help with benefits to emotional
support, when things
get tough. People like
Jason support parents,
children and the wider
family… in hospital, at
home and in the community,
wherever they are needed.
Last year we gave 5,054 grants to
families. And payments to families
totalled over £1.1 million.
CLIC Sargent continues to
campaign the Government for fair
and straightforward benefits.
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Lots of mums must hear their child complain of tummy ache. So Valmire was shocked when the doctor sent her straight to the hospital and just the next day she heard that four year old Eraldo had a tumour in his bladder.
Coping with the shock was just half of the problem. Originally from Kosovo, Valmire found it particularly hard to understand what kind of help was available. Jason, a CLIC Sargent Social Worker, helped the family from the start.
Valmire said: “Jason really helped me understand what support was available to Eraldo, like Disability Living Allowance, Carer’s Allowance and grants. There were lots of things to pay for, like food and travel to the hospital. Jason helped me get a CLIC Sargent Grant, and it really helped me. The forms for the benefits were hard to understand, and Jason gave me so much help. Jason has given us much time and I thank him.”
Jason must have lots of people to help, but he always had time for us Valmire, Eraldo’s mum
CLIC Sargent Social Workers like
Jason are there for all families,
often from diagnosis. They are a
key part of the CLIC Sargent care
team, managing the non-clinical
side of care and support — from
help with benefits to emotional
support, when things
get tough. People like
Jason support parents,
children and the wider
family… in hospital, at
home and in the community,
wherever they are needed.
Last year we gave 5,054 grants to
families. And payments to families
totalled over £1.1 million.
CLIC Sargent continues to
campaign the Government for fair
and straightforward benefits.
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Over £2 million of care Helpline answers record number of callsDuring 2008/09, CLIC Sargent was
the main beneficiary of the HBOS
Charity of the Year programme
called the £Million Challenge.
Every pound raised by HBOS staff,
customers and shareholders was
matched by the HBOS Foundation.
Over £2 million was raised and our
thanks go to everyone involved. Jillian
Baillie, Deputy Head of the HBOS
Foundation said “We’re delighted to
donate such a significant amount to
CLIC Sargent and extremely proud
that the funds raised will benefit
so many families across the UK.”
The money directly funded 5,000
care grants. It also helped the Charity
deal with an increase of 149% in
calls to our helpline about benefits,
by supporting the growth in our
specialist benefits advice service.
In 2008/09 our national Corporate
partners raised a total of £3.2
million. Our long term partners
JD Wetherspoon and Chelsea
Football Club were joined by
hmv and Virgin Trains whose
charity-wide support has been
unprecedented. Our thanks go
to these experts for generously
sharing their skills through training,
mentoring, internships, donating
redundant stock and volunteering
as well as fundraising with staff,
suppliers and customers.
In 2008/09 CLIC Sargent created
a new type of grant: Community
Support. The average grant was
£270 and families typically spend it
on childcare, cleaning, ironing and
other help around the home. Over
£14,500 was paid in Community
Support grants in 2008/09.
In 2008/09 the Helpline answered
4,665 calls and email enquiries.
The team despatched 56,309
leaflets and publications to families,
care professionals, teachers and
the general public. And the service
became accredited with the
Telephone Helpline Association,
recognising our commitment
to quality and service.
During 2008/09 we also secured a
sizeable grant from an anonymous
Charitable Foundation to pay for our
Helpline during 2009/10. This shows
the importance of grant-making
trusts and foundations. Much of the
very generous support we receive
is from smaller, local trusts that
support our work in their area.
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Over £2 million of care Helpline answers record number of callsDuring 2008/09, CLIC Sargent was
the main beneficiary of the HBOS
Charity of the Year programme
called the £Million Challenge.
Every pound raised by HBOS staff,
customers and shareholders was
matched by the HBOS Foundation.
Over £2 million was raised and our
thanks go to everyone involved. Jillian
Baillie, Deputy Head of the HBOS
Foundation said “We’re delighted to
donate such a significant amount to
CLIC Sargent and extremely proud
that the funds raised will benefit
so many families across the UK.”
The money directly funded 5,000
care grants. It also helped the Charity
deal with an increase of 149% in
calls to our helpline about benefits,
by supporting the growth in our
specialist benefits advice service.
In 2008/09 our national Corporate
partners raised a total of £3.2
million. Our long term partners
JD Wetherspoon and Chelsea
Football Club were joined by
hmv and Virgin Trains whose
charity-wide support has been
unprecedented. Our thanks go
to these experts for generously
sharing their skills through training,
mentoring, internships, donating
redundant stock and volunteering
as well as fundraising with staff,
suppliers and customers.
In 2008/09 CLIC Sargent created
a new type of grant: Community
Support. The average grant was
£270 and families typically spend it
on childcare, cleaning, ironing and
other help around the home. Over
£14,500 was paid in Community
Support grants in 2008/09.
In 2008/09 the Helpline answered
4,665 calls and email enquiries.
The team despatched 56,309
leaflets and publications to families,
care professionals, teachers and
the general public. And the service
became accredited with the
Telephone Helpline Association,
recognising our commitment
to quality and service.
During 2008/09 we also secured a
sizeable grant from an anonymous
Charitable Foundation to pay for our
Helpline during 2009/10. This shows
the importance of grant-making
trusts and foundations. Much of the
very generous support we receive
is from smaller, local trusts that
support our work in their area.
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A cancer diagnosis is hard enough. But what’s going to happen next? What information is out there to help? Who is there to talk to?
CLIC Sargent builds support and understanding about cancer, and helps reduce the isolation that many children, young people and their families face.
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Achievements: 2008/09Opened new Home from Home in nottingham.•
Dealt with 149% increase in enquiries about benefits.•
Despatched 56,309 leaflets requested from our Helpline.•
Helpline answered 4,665 calls and email enquiries. •
Continued to campaign for fair and straightforward benefits.•
Aims: 2009/10Increase the number of benefits advice contacts further.•
Look into the feasibility of opening •a new Home from Home in Belfast.
Develop the London Home from Home •site, ready to open to families.
Work with a charity called Home-Start to help •provide community support for families of children with cancer, by training their volunteers.
To develop our Community Support Grants for •families to get help in their own homes.
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A cancer diagnosis is hard enough. But what’s going to happen next? What information is out there to help? Who is there to talk to?
CLIC Sargent builds support and understanding about cancer, and helps reduce the isolation that many children, young people and their families face.
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Achievements: 2008/09Opened new Home from Home in nottingham.•
Dealt with 149% increase in enquiries about benefits.•
Despatched 56,309 leaflets requested from our Helpline.•
Helpline answered 4,665 calls and email enquiries. •
Continued to campaign for fair and straightforward benefits.•
Aims: 2009/10Increase the number of benefits advice contacts further.•
Look into the feasibility of opening •a new Home from Home in Belfast.
Develop the London Home from Home •site, ready to open to families.
Work with a charity called Home-Start to help •provide community support for families of children with cancer, by training their volunteers.
To develop our Community Support Grants for •families to get help in their own homes.
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I was 13 when I was diagnosed with Hodgkin lymphoma — a cancer which starts in white blood cells. I was off school for ages, and when I went back it was horrible. I felt let down by my friends who didn’t want to know me. It was like I was ‘cancer girl’. I felt so alone. But my CLIC Sargent Young People’s Worker Rachael really helped me get my confidence back.
Rachael introduced me to some other young people in the same boat as me, so we had loads in common. She organised trips out, which really helped me get to know people. Those people are my best friends now.
Rachael also suggested I get involved in making a film for CLIC Sargent, about my experience of going back to school. I was sent a video camera in the post to make my own ‘video diary’. My film was edited together with five other young people from around the country. I was so pleased to hear that some people had had a good experience at school… it made me cry. You can watch the film at www.clicsargent.org.uk/youthonfilm
Another film was made which focused on teachers talking about their experiences of children returning to school, and the help that CLIC Sargent gave — watch it online at www.clicsargent.org.uk/educationonfilm
We looked at the bigger picture too. For example, we worked with other charities to support the Schools (Health Support) Bill in Parliament. As a result,
we got Government support for more and better support at school for children and young people with cancer.
And we brought a Government Minister to Addenbrooke’s Hospital to meet with young people affected by cancer, so she could hear how they juggle treatment with having a normal life and keeping up with education or work.
It really helps to share experiences Marisha, 17
Visit www.clicsargent.org.uk/Campaignwithus
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I was 13 when I was diagnosed with Hodgkin lymphoma — a cancer which starts in white blood cells. I was off school for ages, and when I went back it was horrible. I felt let down by my friends who didn’t want to know me. It was like I was ‘cancer girl’. I felt so alone. But my CLIC Sargent Young People’s Worker Rachael really helped me get my confidence back.
Rachael introduced me to some other young people in the same boat as me, so we had loads in common. She organised trips out, which really helped me get to know people. Those people are my best friends now.
Rachael also suggested I get involved in making a film for CLIC Sargent, about my experience of going back to school. I was sent a video camera in the post to make my own ‘video diary’. My film was edited together with five other young people from around the country. I was so pleased to hear that some people had had a good experience at school… it made me cry. You can watch the film at www.clicsargent.org.uk/youthonfilm
Another film was made which focused on teachers talking about their experiences of children returning to school, and the help that CLIC Sargent gave — watch it online at www.clicsargent.org.uk/educationonfilm
We looked at the bigger picture too. For example, we worked with other charities to support the Schools (Health Support) Bill in Parliament. As a result,
we got Government support for more and better support at school for children and young people with cancer.
And we brought a Government Minister to Addenbrooke’s Hospital to meet with young people affected by cancer, so she could hear how they juggle treatment with having a normal life and keeping up with education or work.
It really helps to share experiences Marisha, 17
Visit www.clicsargent.org.uk/Campaignwithus
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Getting cancer a week before your GSCEs is bad… but that was just the start. Though I passed my exams based on my coursework, I started three years and three months of treatment for leukaemia. I met CLIC Sargent Young People’s Worker Alisha when I was on the ward. After treatment Alisha organised social events, so we all stayed in touch. My best mate is someone who I met through this group.
Last year CLIC Sargent invited me to be a Young Web Champion — it’s about learning how to make and update web pages on the CLIC Sargent youth site. As well as getting new skills (and looking good at an interview!) it’s a way of giving something back — letting others know what cancer is all about, and how to get through it.
In 2008, we wrote a new booklet
Cancer and Work, to help young
adults with cancer negotiate their
way through this minefield.
We also set up a formal way to get
the views of children and young
people like Marisha and Paul, by
employing someone dedicated to
working with them. We want children
and young people with experience
of cancer to engage with the Charity,
and participate in ways they feel
comfortable. At the centre of this is
our new Children and Young People’s
Advisory Group for 16-24 year olds.
The Government asked CLIC Sargent
to be a key player in the national
Cancer Survivorship Initiative. This looks
at ways to improve the treatment, care
and support for survivors of childhood
cancer. We asked young people to help
us and — at our Survivors’ Conference
— they highlighted five key areas
where extra help is needed: education,
employment, social isolation, health
and fitness and peer support.
I’m helping other young people understand cancer Paul, 20
Visit www.clicsargent.org.uk/Paulspage
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Getting cancer a week before your GSCEs is bad… but that was just the start. Though I passed my exams based on my coursework, I started three years and three months of treatment for leukaemia. I met CLIC Sargent Young People’s Worker Alisha when I was on the ward. After treatment Alisha organised social events, so we all stayed in touch. My best mate is someone who I met through this group.
Last year CLIC Sargent invited me to be a Young Web Champion — it’s about learning how to make and update web pages on the CLIC Sargent youth site. As well as getting new skills (and looking good at an interview!) it’s a way of giving something back — letting others know what cancer is all about, and how to get through it.
In 2008, we wrote a new booklet
Cancer and Work, to help young
adults with cancer negotiate their
way through this minefield.
We also set up a formal way to get
the views of children and young
people like Marisha and Paul, by
employing someone dedicated to
working with them. We want children
and young people with experience
of cancer to engage with the Charity,
and participate in ways they feel
comfortable. At the centre of this is
our new Children and Young People’s
Advisory Group for 16-24 year olds.
The Government asked CLIC Sargent
to be a key player in the national
Cancer Survivorship Initiative. This looks
at ways to improve the treatment, care
and support for survivors of childhood
cancer. We asked young people to help
us and — at our Survivors’ Conference
— they highlighted five key areas
where extra help is needed: education,
employment, social isolation, health
and fitness and peer support.
I’m helping other young people understand cancer Paul, 20
Visit www.clicsargent.org.uk/Paulspage
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At Malcolm Sargent House it’s quiet, peaceful and right by the sea. Stephen is completely different when he comes here. He can run about, he’s happy and feels free. During Stephen’s cancer treatment it can be difficult to spend time as a family, but here we can forget about the hospital, and relax. There are no doctors around to prod and poke. I really believe that without coming on a holiday like this, I don’t know how Stephen and his sister, would be able to get through it.
June started working as a volunteer housekeeper at Malcolm Sargent
House following the loss of her granddaughter Abbey to cancer. “The
staff are always very grateful to me, saying ‘thank you’
at the end of every shift. CLIC Sargent did so much to
help my family, it’s my way of giving something back”.
CLIC Sargent is grateful to over 1,000 volunteers who work all
over the UK, we could not do our work without their time and talents.
Our holiday really brought Stephen out of his shell Susan, Stephen’s mum
Visit www.clicsargent.org.uk/volunteering
At Malcolm Sargent House four weeks were dedicated
to bereaved families and a further five weeks to young
people, who have cancer or have survived it.
The Charity has four holiday homes around the coast,
where families can stay for free too. Altogether in
2008/09, 472 family holidays were taken.
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At Malcolm Sargent House it’s quiet, peaceful and right by the sea. Stephen is completely different when he comes here. He can run about, he’s happy and feels free. During Stephen’s cancer treatment it can be difficult to spend time as a family, but here we can forget about the hospital, and relax. There are no doctors around to prod and poke. I really believe that without coming on a holiday like this, I don’t know how Stephen and his sister, would be able to get through it.
June started working as a volunteer housekeeper at Malcolm Sargent
House following the loss of her granddaughter Abbey to cancer. “The
staff are always very grateful to me, saying ‘thank you’
at the end of every shift. CLIC Sargent did so much to
help my family, it’s my way of giving something back”.
CLIC Sargent is grateful to over 1,000 volunteers who work all
over the UK, we could not do our work without their time and talents.
Our holiday really brought Stephen out of his shell Susan, Stephen’s mum
Visit www.clicsargent.org.uk/volunteering
At Malcolm Sargent House four weeks were dedicated
to bereaved families and a further five weeks to young
people, who have cancer or have survived it.
The Charity has four holiday homes around the coast,
where families can stay for free too. Altogether in
2008/09, 472 family holidays were taken.
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Who helps fund services for young people like Marisha and Paul? Who helps families like the Brennans enjoy a holiday together? This year thousands of people from all walks of life helped, including Melanie Brown — aka Scary Spice.
While the media reported that Mel B was moving to Los Angeles, CLIC Sargent received a call to say that she had generously decided to give us the entire contents of her UK mansion, to auction in our eBay store.
The resulting sale of hundreds of items, from a pristine grand piano down to cups and saucers, resulted
in global media attention and half a million visitors to the
CLIC Sargent pages in one month.
Over £60,000 was raised to fund our work, and our thanks go to Mel B and her husband Stephen Belafonte.
eBay along with our 28 High Street charity shops, mail order, online shop (www.clicsargent.org.uk/shop) and recycling scheme raised £3.1 million for the Charity in 2008/09. And we would like to thank all of our customers.
Mel B spices up our fundraising
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Who helps fund services for young people like Marisha and Paul? Who helps families like the Brennans enjoy a holiday together? This year thousands of people from all walks of life helped, including Melanie Brown — aka Scary Spice.
While the media reported that Mel B was moving to Los Angeles, CLIC Sargent received a call to say that she had generously decided to give us the entire contents of her UK mansion, to auction in our eBay store.
The resulting sale of hundreds of items, from a pristine grand piano down to cups and saucers, resulted
in global media attention and half a million visitors to the
CLIC Sargent pages in one month.
Over £60,000 was raised to fund our work, and our thanks go to Mel B and her husband Stephen Belafonte.
eBay along with our 28 High Street charity shops, mail order, online shop (www.clicsargent.org.uk/shop) and recycling scheme raised £3.1 million for the Charity in 2008/09. And we would like to thank all of our customers.
Mel B spices up our fundraising
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Achievements: 2008/09Produced two new films and a key publication, to help young •adults get back into education and work. And set up a pilot work experience programme called Young Web Champions.
Influenced the Education and Skills Bill and •the Schools (Health Support) Bill.
Created new post dedicated to involving children •and young people in our work and set up Children’s and Young People’s Advisory Group.
Played a leading role in the national Cancer •Survivorship Initiative’s work.
472 family holidays were taken at Malcolm Sargent •House and at our holiday homes around the coast.
Aims: 2009/10To consult with more children, widening the age range •to include 7 to 13 year olds — and to develop new opportunities for 17 to 24 year olds to contribute.
To develop work experience and skill development •opportunities for young people, in partnership with our corporate fundraising partners.
To develop an active online community, and to •grow the Young Web Champions programme.
To increase opportunities for young people to gain nationally •accredited awards for programmes of activity they undertake.
CLIC Sargent is most visible through our range of services, from nurses to Homes from Home.
To make sure that we can deliver quality services right across the UK, we also work behind the scenes on staff training, procedures and research.
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Achievements: 2008/09Produced two new films and a key publication, to help young •adults get back into education and work. And set up a pilot work experience programme called Young Web Champions.
Influenced the Education and Skills Bill and •the Schools (Health Support) Bill.
Created new post dedicated to involving children •and young people in our work and set up Children’s and Young People’s Advisory Group.
Played a leading role in the national Cancer •Survivorship Initiative’s work.
472 family holidays were taken at Malcolm Sargent •House and at our holiday homes around the coast.
Aims: 2009/10To consult with more children, widening the age range •to include 7 to 13 year olds — and to develop new opportunities for 17 to 24 year olds to contribute.
To develop work experience and skill development •opportunities for young people, in partnership with our corporate fundraising partners.
To develop an active online community, and to •grow the Young Web Champions programme.
To increase opportunities for young people to gain nationally •accredited awards for programmes of activity they undertake.
CLIC Sargent is most visible through our range of services, from nurses to Homes from Home.
To make sure that we can deliver quality services right across the UK, we also work behind the scenes on staff training, procedures and research.
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Every moment on the cancer journey is difficult. And the experience is different for everyone. So CLIC Sargent is there at every step. For some this will mean palliative care and bereavement support — here is what some people have said:
“I would get in the car and just fall apart. I would cry and cry. Then I would get to my job and put on the other face, and get on with it” Parent
“Before he died, I expected the time after he died to be quite traumatic or hard to deal with. But it wasn’t as bad as I thought it would be. In some ways I thought I was coping too well. I thought ‘is there something wrong with me?’” Parent
“It took me three weeks before I could bear to tell anyone apart from my mum and dad that I was going to die. I had to practise with my social worker” Young adult, with terminal cancer
For the first few months after he died, we were just in shock really Parent
High quality services, delivered nationwide
Because grief is different for everyone,
last year our Bereavement Advisory
Group created a way to deliver a
unique care plan for each family.
So people receive the support that’s
individual to their situation.
This one-to-one work was supported by
new materials: Looking after Practical
Matters when Someone Dies, is a
factsheet especially written for parents.
And Facing Death and Talking About
It, written in consultation with care
professionals and young people.
The work of our Bereavement
Advisory Group reflects the way we
deliver our services as a whole:
we look at what individuals need,
and plan our services around them.
In 2008/09 we put a Team Leader
in place in each main paediatric
cancer treatment centre. We saw
a total of 2,733 newly diagnosed
children, teenagers and young
people registered to use our services.
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Every moment on the cancer journey is difficult. And the experience is different for everyone. So CLIC Sargent is there at every step. For some this will mean palliative care and bereavement support — here is what some people have said:
“I would get in the car and just fall apart. I would cry and cry. Then I would get to my job and put on the other face, and get on with it” Parent
“Before he died, I expected the time after he died to be quite traumatic or hard to deal with. But it wasn’t as bad as I thought it would be. In some ways I thought I was coping too well. I thought ‘is there something wrong with me?’” Parent
“It took me three weeks before I could bear to tell anyone apart from my mum and dad that I was going to die. I had to practise with my social worker” Young adult, with terminal cancer
For the first few months after he died, we were just in shock really Parent
High quality services, delivered nationwide
Because grief is different for everyone,
last year our Bereavement Advisory
Group created a way to deliver a
unique care plan for each family.
So people receive the support that’s
individual to their situation.
This one-to-one work was supported by
new materials: Looking after Practical
Matters when Someone Dies, is a
factsheet especially written for parents.
And Facing Death and Talking About
It, written in consultation with care
professionals and young people.
The work of our Bereavement
Advisory Group reflects the way we
deliver our services as a whole:
we look at what individuals need,
and plan our services around them.
In 2008/09 we put a Team Leader
in place in each main paediatric
cancer treatment centre. We saw
a total of 2,733 newly diagnosed
children, teenagers and young
people registered to use our services.
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Developing services around needAs well as having frontline staff assessing ongoing need, we used surveys and consultation too.
Community Care Review: in •December 2008 (Childhood Cancer Awareness Month) we highlighted that children with cancer were spending more time in hospital than they needed to often due to a lack of children’s community nurses and specialist cancer outreach nurses. The outcome was More Than My Illness, setting out a future plan of care nationwide.
We consulted widely about the priorities for our CLIC Sargent •Social Workers; this highlighted the vital need for their role, and will inform the way the service develops in the future.
Ongoing feedback from people who use our services helped •us to improve and adapt our services to meet changing need.
We awarded £404k to clinical and scientific research •projects and £82k to psychosocial research projects:
Clinical research looks at ways to improve –treatment, dosages, and managing the side-effects of certain treatments
Examples of psychosocial research include: –experience of diagnosis, the impact of hair loss or other altered appearances.
Supporters provide essential fundsSo that we can make a commitment to our services for children with cancer, we asked supporters to make an ongoing commitment to us. Our thanks go to over 19,000 people who — between them — donated £1,087,000 on a regular basis, through payroll or direct debit in 2008/09.
Over £3.9 million came to the Charity in 2008/09 by people who remembered us in their Will. This income is vital, giving us a firm foundation for the future. Last year we created new materials to show others how easy it is to remember children with cancer. Please find out more www.clicsargent.org.uk/legacies
More personal gestures of support came through our Especially for You Funds, set up in 2007. These have now raised a total of £246,589. We would like to thank all parents who have set up a fund in their child’s name. To find out more about our Especially for You Funds please visit: http://www.clicsargent.org.uk/Especiallyforyou
Read about how supporters raised £250,000 in essential funds through our appeals. Visit www.clicsargent.org.uk/2008AppealSuccess
MORE THAN MY ILLNESSDelivering quality care for children with cancer
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Developing services around needAs well as having frontline staff assessing ongoing need, we used surveys and consultation too.
Community Care Review: in •December 2008 (Childhood Cancer Awareness Month) we highlighted that children with cancer were spending more time in hospital than they needed to often due to a lack of children’s community nurses and specialist cancer outreach nurses. The outcome was More Than My Illness, setting out a future plan of care nationwide.
We consulted widely about the priorities for our CLIC Sargent •Social Workers; this highlighted the vital need for their role, and will inform the way the service develops in the future.
Ongoing feedback from people who use our services helped •us to improve and adapt our services to meet changing need.
We awarded £404k to clinical and scientific research •projects and £82k to psychosocial research projects:
Clinical research looks at ways to improve –treatment, dosages, and managing the side-effects of certain treatments
Examples of psychosocial research include: –experience of diagnosis, the impact of hair loss or other altered appearances.
Supporters provide essential fundsSo that we can make a commitment to our services for children with cancer, we asked supporters to make an ongoing commitment to us. Our thanks go to over 19,000 people who — between them — donated £1,087,000 on a regular basis, through payroll or direct debit in 2008/09.
Over £3.9 million came to the Charity in 2008/09 by people who remembered us in their Will. This income is vital, giving us a firm foundation for the future. Last year we created new materials to show others how easy it is to remember children with cancer. Please find out more www.clicsargent.org.uk/legacies
More personal gestures of support came through our Especially for You Funds, set up in 2007. These have now raised a total of £246,589. We would like to thank all parents who have set up a fund in their child’s name. To find out more about our Especially for You Funds please visit: http://www.clicsargent.org.uk/Especiallyforyou
Read about how supporters raised £250,000 in essential funds through our appeals. Visit www.clicsargent.org.uk/2008AppealSuccess
MORE THAN MY ILLNESSDelivering quality care for children with cancer
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Achievements: 2008/0991% of survey respondents rated the support they •received from CLIC Sargent as good or excellent.
Awarded £82,000 in grants for psychosocial research, •and £404,000 for clinical research grants.
We increased the number of development •days given to staff by nearly 50%.
Developed individual care plans for bereaved families.•
Aims: 2009/10Develop our quality assurance process, including setting •up an annual externally moderated assessment.
To make sure we offer the best support to patients and •to supporters, by developing our internal data system.
To continue to focus on providing an equitable •high standard of learning and development across the whole of CLIC Sargent.
To continuously review safeguarding, so we •can be highly confident that children feel safe and standards of care are exceeded.
Increase support to families most affected by their •bereavement and introduce specific support to ‘childless parents’ who have lost their only child to cancer.
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Achievements: 2008/0991% of survey respondents rated the support they •received from CLIC Sargent as good or excellent.
Awarded £82,000 in grants for psychosocial research, •and £404,000 for clinical research grants.
We increased the number of development •days given to staff by nearly 50%.
Developed individual care plans for bereaved families.•
Aims: 2009/10Develop our quality assurance process, including setting •up an annual externally moderated assessment.
To make sure we offer the best support to patients and •to supporters, by developing our internal data system.
To continue to focus on providing an equitable •high standard of learning and development across the whole of CLIC Sargent.
To continuously review safeguarding, so we •can be highly confident that children feel safe and standards of care are exceeded.
Increase support to families most affected by their •bereavement and introduce specific support to ‘childless parents’ who have lost their only child to cancer.
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Ongoing support in the face of adversity
Managing ourselves successfully
As well as actively seeking to manage ourselves through this recession, we are not seeing significant falls in fundraising either — and for this, our thanks go to our supporters.
Recession has stretched many of them too, but despite any financial challenges they have continued to help our work to support children and young people with cancer and their families.
We are so grateful for this commitment in these times of adversity. This support is vital because the recession has touched families where a child has cancer too, and on top of this they are dealing with the toughest challenge of their lives. CLIC Sargent’s support makes a huge difference to them.
Whatever happens to the economy, next year every day ten families will hear that their child has cancer. So our work must continue… in spite of everything. And we will continue to rely on the generosity, drive and commitment of our supporters.
Our Trustees and Senior Management Team worked closely together to ensure that we safeguarded our reserves. We took two courses of action:
as soon as we saw signs of recession, our treasury and •investment teams changed our equities into cash. As a result, we did not suffer from the collapse of banks and investment companies, unlike many in the non-profit sector
we also looked at our overall organisational strategy, cutting •expenditure and making significant savings wherever possible
These actions helped us to strengthen our foundations and to secure our long-term future, diverting a potential loss of millions of pounds. The details of these strategies are outlined in detail in our Annual Report and Accounts 2008/09 — you can download a copy at www.clicsargent.org.uk/publications
or request a copy from the Helpline on 0800 197 0068.
2008/09 A record year for fundraising
Last year marked a milestone in CLIC Sargent’s history. Thanks to our supporters, we raised the highest sum ever to support our work with children and young people with cancer and their families: £25.3 million raised during a 15 month period, ending 31st March 2009.
There were three notable highlights for the year, which helped us to get there. Being the main beneficiary of the HBOS £Million Challenge brought in over £2 million. The huge fundraising drive for our new Home from Home in nottingham raised almost £2million. And £3.9 million was secured in legacy income.
Yet during this time, the country was moving into a deep recession. It was key that we considered how the external environment may impact on our ability to sustain our fundraising.
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Ongoing support in the face of adversity
Managing ourselves successfully
As well as actively seeking to manage ourselves through this recession, we are not seeing significant falls in fundraising either — and for this, our thanks go to our supporters.
Recession has stretched many of them too, but despite any financial challenges they have continued to help our work to support children and young people with cancer and their families.
We are so grateful for this commitment in these times of adversity. This support is vital because the recession has touched families where a child has cancer too, and on top of this they are dealing with the toughest challenge of their lives. CLIC Sargent’s support makes a huge difference to them.
Whatever happens to the economy, next year every day ten families will hear that their child has cancer. So our work must continue… in spite of everything. And we will continue to rely on the generosity, drive and commitment of our supporters.
Our Trustees and Senior Management Team worked closely together to ensure that we safeguarded our reserves. We took two courses of action:
as soon as we saw signs of recession, our treasury and •investment teams changed our equities into cash. As a result, we did not suffer from the collapse of banks and investment companies, unlike many in the non-profit sector
we also looked at our overall organisational strategy, cutting •expenditure and making significant savings wherever possible
These actions helped us to strengthen our foundations and to secure our long-term future, diverting a potential loss of millions of pounds. The details of these strategies are outlined in detail in our Annual Report and Accounts 2008/09 — you can download a copy at www.clicsargent.org.uk/publications
or request a copy from the Helpline on 0800 197 0068.
2008/09 A record year for fundraising
Last year marked a milestone in CLIC Sargent’s history. Thanks to our supporters, we raised the highest sum ever to support our work with children and young people with cancer and their families: £25.3 million raised during a 15 month period, ending 31st March 2009.
There were three notable highlights for the year, which helped us to get there. Being the main beneficiary of the HBOS £Million Challenge brought in over £2 million. The huge fundraising drive for our new Home from Home in nottingham raised almost £2million. And £3.9 million was secured in legacy income.
Yet during this time, the country was moving into a deep recession. It was key that we considered how the external environment may impact on our ability to sustain our fundraising.
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Please note that all figures are subject to audit. Full details of our accounts are
available in our Annual Report & Accounts 2008/09 — available to download at
www.clicsargent.org.uk/publications or for a copy please call our Helpline on 0800 197 0068.
Who delivers our services?
Thank You
Lady Helen Taylor CLIC Sargent Ambassador
Lord Attenborough Legacy Ambassador
The Archbishop of Canterbury, Dr Rowan Williams
Lucy Alexander
James Allen
Alice Beer
Angellica Bell
nicola Benedetti
Cherie Booth
Sara Carello
Mark Chapman
Sir James Galway
Laura and Johnny Greenall
Tim Henman
Chris Hollins
Emma Johnson
Eddie and Marie Jordan
Gary Lineker
Laurence and Jackie Llewelyn-Bowen
Julian Lloyd Webber
Sally Magnusson
Barry and Sandra McGuigan
José Mourinho
Patsy Palmer
Steve Rider
Major General Garry Robison
Gaby Roslin
Michelle Ryan
Sharleen Spiteri
Richard Young
Kai Owen
Duncan Pow
Joanna Taylor
Patrons and Key Celebrity Supporters
Patrons and celebrity supporters give their time, energy, vision and
commitment to the Charity. This is invaluable in so many ways and for that
we are continually grateful.
They work tirelessly fronting campaigns, running marathons, supporting
corporate relationships, hosting events, talking about CLIC Sargent,
appearing on TV, chairing committees and making endless new introductions
— their work makes an enormous difference. Thank you.
Financial snapshot
How did we help children and young people with cancer and their families?
Improving health outcomes and wellbeing
Reducing the practical and financial burden of cancer
Building support and understanding and reducing isolation
Researching for better futures
Investing in the development and improvments of services
35%
23%
26%
11%
5%
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104
51
4
7
25
5
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6
2.5
Youth specialists
Social care
Nurses and other clinical
Psychologists
Play specialists
Family support workers
Research
Homes and holidays
Influencing and campaigning
Helpline and grants
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104
51
4
7
25
5
42
6
2.5
Youth specialists
Social care
Nurses and other clinical
Psychologists
Play specialists
Family support workers
Research
Homes and holidays
Influencing and campaigning
Helpline and grants
Where did our income come from?
£4.5m
£5.7m
£4.0m
£3.9m
£3.1m
£3.7m
Events
Community Fundraising
Corporate & Trusts
Legacies
Trading
Individual Donors
£0.4m Other
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Please note that all figures are subject to audit. Full details of our accounts are
available in our Annual Report & Accounts 2008/09 — available to download at
www.clicsargent.org.uk/publications or for a copy please call our Helpline on 0800 197 0068.
Who delivers our services?
Thank You
Lady Helen Taylor CLIC Sargent Ambassador
Lord Attenborough Legacy Ambassador
The Archbishop of Canterbury, Dr Rowan Williams
Lucy Alexander
James Allen
Alice Beer
Angellica Bell
nicola Benedetti
Cherie Booth
Sara Carello
Mark Chapman
Sir James Galway
Laura and Johnny Greenall
Tim Henman
Chris Hollins
Emma Johnson
Eddie and Marie Jordan
Gary Lineker
Laurence and Jackie Llewelyn-Bowen
Julian Lloyd Webber
Sally Magnusson
Barry and Sandra McGuigan
José Mourinho
Patsy Palmer
Steve Rider
Major General Garry Robison
Gaby Roslin
Michelle Ryan
Sharleen Spiteri
Richard Young
Kai Owen
Duncan Pow
Joanna Taylor
Patrons and Key Celebrity Supporters
Patrons and celebrity supporters give their time, energy, vision and
commitment to the Charity. This is invaluable in so many ways and for that
we are continually grateful.
They work tirelessly fronting campaigns, running marathons, supporting
corporate relationships, hosting events, talking about CLIC Sargent,
appearing on TV, chairing committees and making endless new introductions
— their work makes an enormous difference. Thank you.
Financial snapshot
How did we help children and young people with cancer and their families?
Improving health outcomes and wellbeing
Reducing the practical and financial burden of cancer
Building support and understanding and reducing isolation
Researching for better futures
Investing in the development and improvments of services
35%
23%
26%
11%
5%
48
104
51
4
7
25
5
42
6
2.5
Youth specialists
Social care
Nurses and other clinical
Psychologists
Play specialists
Family support workers
Research
Homes and holidays
Influencing and campaigning
Helpline and grants
48
104
51
4
7
25
5
42
6
2.5
Youth specialists
Social care
Nurses and other clinical
Psychologists
Play specialists
Family support workers
Research
Homes and holidays
Influencing and campaigning
Helpline and grants
Where did our income come from?
£4.5m
£5.7m
£4.0m
£3.9m
£3.1m
£3.7m
Events
Community Fundraising
Corporate & Trusts
Legacies
Trading
Individual Donors
£0.4m Other
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Major Fundraising
Our thanks go to all our Major Donors for their continued
support and to our committee members who work tirelessly
to ensure the success of our Major Fundraising Events.
Congratulations to: The London Committee who, in 2008, celebrated
ten years since its foundation by Sara Carello. They have raised £4m
for the Charity through a series of high-profile events. Amongst their
wealth of contacts is Purple PR who persuaded Jade Jagger to design
the Charity’s iconic friendship bracelet that has raised £500k to date.
We would like to offer our grateful thanks to our Past Chairs: Sara
Carello, Marie-Christine de Laubarède, Lady Helen Taylor, Allegra Hicks,
Philip Knatchbull and also to Andrea Dreesmann and Diana d’Hendecourt for
their enthusiastic Co-chairmanship of the St nicholas Committee. In Autumn
2008 we welcomed Rola Gordon and nadja Swarovski as the new Co-Chairs.
Special thanks to: The Carpaccio Club Committee chaired by Marie
Jordan was formed from the London Home from Home Appeal Board.
Having successfully raised the money needed, the committee continues
to fundraise to support CLIC Sargent, and in particular our nurses.
Committee: Anne-Louise Reilly Akers, nonie Bouverat, Benedicte
Clarkson, Michelle Cockayne, Adi Cook, Rae Feather, Caroline Grainge,
Marie Jordan, Melisa Lawton, Penny Lovell, Lady McAlpine, Carmel
McGee, Ally McGinley, Sandra McGuigan, Emma McQuiston, Dr Maria
Michelagnoli, Stephen Miron, Helga Olafsson, Alya Samokhvalova,
Michelle Thompson, Jackie Travers and Melanie White.
Corporate Supporters
Affinity Sutton, Allied Irish Bank (Hammersmith), Apex International Hotels
(Edinburgh), Botterils, Brandon Hire, Budgens, Century Radio, Chelsea
Football Club, Cisco, Clarks Shoes, Co-operative Imagine Childcare, Davis
Langdon, Debenhams (Livingstone), EDC, First Trust Bank (northern
Ireland), Forresters, Grass Roots, Greggs, HBOS Foundation, Hensons, Hmv
plc, Jessops, J D Wetherspoon, KCA Deutag, Lambert Smith Hampton,
Leapfrog Day nurseries, Lehman Brothers, MITIE South West, Options &
Choices Financial Services, Party Lite, Peters Foods, Perspective Financial
Management, Pipeline Industries Guild, Poolia, Quest Search, Ralph Lauren
(Watford), Ram FM, RBS Business Lending Unit, Real Radio, Royal Sun
Alliance, Sainsbury’s, Sequence Estate Agents, Silverburn Caves, Skyline
Roofing, Suffolk Gate Company, Tesco, The Mall (norwich), The Trafalgar
Hilton Hotel, Total, Trent FM, VIE at home, Virgin Trains, Woolworths.
Charitable Foundations and Trusts
BBC Children in need (Scotland), Big Lottery Fund (northern Ireland),
Big Lottery Fund (Scotland), Children’s Aid (Scotland) Ltd, Forman Hardy
Charitable Trust, Hugh Fraser Foundation, Kidani Memorial Trust, Margaret
Murdoch Charitable Trust, Miss Agnes H Hunter’s Trust, northern Health
Social Security Board, Press & Journal Year of Giving Trust, Radio Clyde
Cash for Kids, Southern Health Social Security Board, Spifox, Stafford Trust,
Strathclyde Police Benevolent Fund, The Albert Hunt Trust, Ampelos Trust,
The Annandale Charitable Trust, The Anthony Clifford Trust, The Barnwood
House Trust, The Christopher Laing Foundation, The Dinning Charitable Trust,
The Donald Forrester Trust, The Duke of Devonshire’s Charitable Trust, The
Edith Murphy Foundation, The Elizabeth and Prince Zaiger Trust, The Eranda
Foundation, The Foundation for Children with Leukaemia, The Fox Memorial
Trust, The Gloag Foundation, The Henry Smith Charity, The Imlay Foundation,
The James Tudor Foundation, The John and Lucille van Geest Foundation,
The John Coates Charitable Trust, The Kathleen Smith Foundation, The
Louis and Valerie Freedman Charitable Settlement, The Morgan Foundation,
The Olive Herbert Charitable Trust, The Openwork Foundation, The Rank
Foundation, The ScottishPower Energy People Trust, The Sheffield Town
Trust, The Sir Jules Thorn Charitable Trust,The Southworth Foundation.
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Major Fundraising
Our thanks go to all our Major Donors for their continued
support and to our committee members who work tirelessly
to ensure the success of our Major Fundraising Events.
Congratulations to: The London Committee who, in 2008, celebrated
ten years since its foundation by Sara Carello. They have raised £4m
for the Charity through a series of high-profile events. Amongst their
wealth of contacts is Purple PR who persuaded Jade Jagger to design
the Charity’s iconic friendship bracelet that has raised £500k to date.
We would like to offer our grateful thanks to our Past Chairs: Sara
Carello, Marie-Christine de Laubarède, Lady Helen Taylor, Allegra Hicks,
Philip Knatchbull and also to Andrea Dreesmann and Diana d’Hendecourt for
their enthusiastic Co-chairmanship of the St nicholas Committee. In Autumn
2008 we welcomed Rola Gordon and nadja Swarovski as the new Co-Chairs.
Special thanks to: The Carpaccio Club Committee chaired by Marie
Jordan was formed from the London Home from Home Appeal Board.
Having successfully raised the money needed, the committee continues
to fundraise to support CLIC Sargent, and in particular our nurses.
Committee: Anne-Louise Reilly Akers, nonie Bouverat, Benedicte
Clarkson, Michelle Cockayne, Adi Cook, Rae Feather, Caroline Grainge,
Marie Jordan, Melisa Lawton, Penny Lovell, Lady McAlpine, Carmel
McGee, Ally McGinley, Sandra McGuigan, Emma McQuiston, Dr Maria
Michelagnoli, Stephen Miron, Helga Olafsson, Alya Samokhvalova,
Michelle Thompson, Jackie Travers and Melanie White.
Corporate Supporters
Affinity Sutton, Allied Irish Bank (Hammersmith), Apex International Hotels
(Edinburgh), Botterils, Brandon Hire, Budgens, Century Radio, Chelsea
Football Club, Cisco, Clarks Shoes, Co-operative Imagine Childcare, Davis
Langdon, Debenhams (Livingstone), EDC, First Trust Bank (northern
Ireland), Forresters, Grass Roots, Greggs, HBOS Foundation, Hensons, Hmv
plc, Jessops, J D Wetherspoon, KCA Deutag, Lambert Smith Hampton,
Leapfrog Day nurseries, Lehman Brothers, MITIE South West, Options &
Choices Financial Services, Party Lite, Peters Foods, Perspective Financial
Management, Pipeline Industries Guild, Poolia, Quest Search, Ralph Lauren
(Watford), Ram FM, RBS Business Lending Unit, Real Radio, Royal Sun
Alliance, Sainsbury’s, Sequence Estate Agents, Silverburn Caves, Skyline
Roofing, Suffolk Gate Company, Tesco, The Mall (norwich), The Trafalgar
Hilton Hotel, Total, Trent FM, VIE at home, Virgin Trains, Woolworths.
Charitable Foundations and Trusts
BBC Children in need (Scotland), Big Lottery Fund (northern Ireland),
Big Lottery Fund (Scotland), Children’s Aid (Scotland) Ltd, Forman Hardy
Charitable Trust, Hugh Fraser Foundation, Kidani Memorial Trust, Margaret
Murdoch Charitable Trust, Miss Agnes H Hunter’s Trust, northern Health
Social Security Board, Press & Journal Year of Giving Trust, Radio Clyde
Cash for Kids, Southern Health Social Security Board, Spifox, Stafford Trust,
Strathclyde Police Benevolent Fund, The Albert Hunt Trust, Ampelos Trust,
The Annandale Charitable Trust, The Anthony Clifford Trust, The Barnwood
House Trust, The Christopher Laing Foundation, The Dinning Charitable Trust,
The Donald Forrester Trust, The Duke of Devonshire’s Charitable Trust, The
Edith Murphy Foundation, The Elizabeth and Prince Zaiger Trust, The Eranda
Foundation, The Foundation for Children with Leukaemia, The Fox Memorial
Trust, The Gloag Foundation, The Henry Smith Charity, The Imlay Foundation,
The James Tudor Foundation, The John and Lucille van Geest Foundation,
The John Coates Charitable Trust, The Kathleen Smith Foundation, The
Louis and Valerie Freedman Charitable Settlement, The Morgan Foundation,
The Olive Herbert Charitable Trust, The Openwork Foundation, The Rank
Foundation, The ScottishPower Energy People Trust, The Sheffield Town
Trust, The Sir Jules Thorn Charitable Trust,The Southworth Foundation.
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Contact DetailsCHILD CANCER HELPLINE
Tel: 0800 197 0068 Mon to Fri: 9am – 5pm E: helpline@clicsargent.org.uk
DONATIONS
Tel: 0845 120 4442 E: supporterservices@clicsargent.org.uk
MEDIA ENQUIRIES
Tel: 0117 314 8621 E: mediarelations@clicsargent.org.uk Out of hours: 0844 848 1189
LONDON (REGISTERED OFFICE) & GENERAL ENQUIRIES
Griffin House, 161 Hammersmith Road, London W6 8SG Tel: 020 8752 2800
Bristol
Abbey Wood Business Park, Filton, Bristol BS34 7JU Tel: 0117 311 2600
Glasgow
4th Floor, Mercantile Chambers, 53 Bothwell Street, Glasgow G2 6TS Tel: 0141 572 5700
Belfast
3rd Floor, 31 Bruce Street, Belfast BT2 7JD Tel: 028 9072 5780
Registered charity number 1107328 and registered in Scotland
(SC039857). Company Number: 5273638
Printed on chlorine free and environmentally
friendly paper, manufactured with pulp supplied
from sustainable managed forests.
www.clicsargent.org.uk
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