national disability rights network webinar with autism now march 22, 2011
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HISTORY OF THE DISABILITY LEGAL ADVOCACY NETWORK
Curt DeckerExecutive Director, NDRN
Amanda Mays
Disability Advocacy Specialist, NDRN
National Disability Rights Network
Vision: NDRN has a vision of a society where people with disabilities have equality of opportunity and are able to participate fully in community life by exercising choice and self determination.
Mission: NDRN’s mission is to promote the integrity and capacity of the P&A/CAP national network and to advocate for the enactment and vigorous enforcement of laws protecting civil and human rights of people with disabilities.
NDRN Activities
•Trade Association
•Training and Technical Assistance Provider
•Quality Assurance
•National Disability Rights Leadership
•Contractor and Fundraiser for Members
PADD$41M
PAVA $5.3M
PATBI $3.3M
PAIR$18.1M
Principles of Protection & Advocacy Systems
CLIENT-DIRECTED
LEGALLY BASED
INDEPENDENT ADVOCACY
CONSUMER-MANAGED
Priority Setting
•Consumer Involvement
a)Board of Directors
b)PAIMI Advisory Council
Continuum of Remedies
Authority
“Pursue legal, administrative& other appropriate remedies”
• Range of Issues
• Ranges of Remedies
• Ability to Respond
• Access Persons, Records, Facilities
PADD
• 1975 – Developmental Disabilities Assistance and Bill of Rights Act includes Protection & Advocacy
• 1977 – Planning grants to State ($20,000)
• 1978 – Protection & Advocacy agencies begin operations with State Designations
PADD$41.0M
PAIM
I
• 1984 – Client Assistant Program (CAP) reauthorized as formula grant program
CAP
• 1986 – Protection & Advocacy for Mentally Ill Individuals (PAIMI) program enacted (Institutions + 90 days)
• 2001 – Expansion of PAIMI to community
PAIR• 1989 – Protection & Advocacy for Individuals Rights (PAIR) demos
• 1991 – PAIR program reauthorized to formula grant
• 1993 – PAIR trigger reached
PAIR$18.1M
PAAT
• 1993 – Assistive Technology subcontracts
• 1998 – Protection & Advocacy for Assistive Technology (PAAT) funded
• 2004 – PAAT Reauthorized
PABSS• 1999 – Ticket To Work/Work Incentives Act (TTWWIA) passes
• 2001 – Protection & Advocacy for Beneficiaries of Social Security (PABSS) funded
PATBI
• 2001 – Protection and Advocacy for Individuals with Traumatic Brain Injury (PATBI) Authorized
• 2002 – PATBI Competitive Grants - $1.5 million – 33 Awards
• 2003 – PATBI moves to formula
PATBI$3.3M
PAVA
• 2003 – PAVA funded at $2 Million
• 2004 – PAVA funding raised to $5 Million
PAVA $5.3M
History of Disability Legal Advocacy Network
• 1994 – Native American P&A established
• 2005 – NATIONAL DISABILITY RIGHTS
NETWORK
• 2005 – Katrina Aid Today - $5.4 million
• SSA Representative Payee Oversight project
• CLASS Act P&A
CAP $11.7M
PADD$41M
PAVA $4.72 M
PATBI$2.97 M
PABSS$7 M
PAAT$4.45 M
PAIMI $34.0M
PAIR$16.489 M
PAVA $4.72M M
PATBI$2.97M
PABSS$8.6M
PAAT$4.3M
PAIMI $36.4M
PAIR$18.1M
Special Education Autism PAJJ
Class Act
Veterans
Emergency Preparedness
Rep Payee $1.4M
FY10 Primary Disability Data
# of Served % of Served• Mental Illness 19,525 36.11%• Mental Retardation 7,082 13.10%• Autism 4,928 9.11%• Orthopedic Impairments 4,413 8.16%• Specific Learning Disabilities 3,702 6.85%• Traumatic Brain Injury 2,659 4.92%• Cerebral Palsy 1,729 3.20%• Other Emotional/Behavioral 1,542 2.85%• Hard of Hearing / Deaf 1,500 2.77%• Blind / Visual Impairments 1,223 2.26%• Neurological Disorders 1,143 2.11%• Other Intellectual 1,004 1.86%• Epilepsy 549 1.02%• “Other” and All Others <1% 3,068 5.67%
* Data based on the73% of PPRs submitted.
Federal Government
WHAT CAN P&A’S HELP WITH?
• Special Education Advocacy• Abuse and Neglect investigations• Access to Service/Healthcare entitlements• ADA accessibility issues• Community integration and participation• Employment, Housing and Transportation
MORE INFORMATION ABOUT NDRN
NDRN website: www.ndrn.org
Contact your P&A:
http://www.ndrn.org/en/when-to-contact-your-state-paa-cap.html
Questions and Comments
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