people with autism in estonia today marianne kuzemtshenko
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People with autism in Estonia today
Marianne Kuzemtshenko
Facts about autism
Law about protection of personal data
The diagnosis is personal data
No one collects data how many persons we have with ASD or other diagnosis
If rely on statistics coming from other countries (10-20 cases from 10000 people), we have appr. 1400-2800 cases of ASD
April 21, 2023ACE project conference, Slovenia2
Facts about ASD in Estonia
The first diagnoses in the middle of 1980-s, so we have very small number of diagnosed middle-aged or old people with ASD
Most of young and adults with ASD (diagnosed) are in age 18-30
This group had not got the suitable teaching since kindergarten as lot of them had got diagnosis much later.
April 21, 2023ACE project conference, Slovenia3
Possibilites for education for adults with ASD
The basic education is obligatory for all children
High scool is optional, mostly available for young people with ASD and with normal intelligence, who are able to be sufficiently independant – not very high number
Higher education is available only for these young people, who have lightsome problems
Vocational education is available in specific groups for persons with disabilities and also in open groups together with all other students
April 21, 2023ACE project conference, Slovenia4
Adults with ASD and problems
No specific support services for only people with ASD in high schools and universities
Generally it is possible to have support person in universities, but this is occasional and depends on finacial possibilities as much as finding the suitable person for this job
April 21, 2023ACE project conference, Slovenia5
Some of possible occupations in vocational schools in specific groups
Baker, confectioner
Cleaning serviceman
Car repair mechanicer
Planting of greenery
Furniture maker
IT serviceman
Building serviceman
Hotel serviceman
April 21, 2023ACE project conference, Slovenia6
Vocational schools
Viljandi Vocational School
Väike-Maarja Vocational Center
Suuremõisa Technical School
Tallinn Building School
Tallinn Economical School
Tallinn Servicing School
Vana-Antsla Agricultural School
Tartu Art School
Astangu Vocational and Rehabilitation Center
Tartu Vocational Center
April 21, 2023ACE project conference, Slovenia7
Rehabilitation services
Rehabilitation services are available for all adults with ASD on the same basis as for adults with other disabilities
These services are: psychological councelling, speech therapists service, special teachers service, physiotherapists service. Individually or in group.
Too difficult to apply – a lot of papers to fill, insufficient number of service bidders, limited hours on some services, also financial limits.
On positive side: for psychiatrical diagnoses the finances for services are more higher than for other disabilities
April 21, 2023ACE project conference, Slovenia8
Services for independent living
Supported work
The aim of the service is to create an opportunity for a person who lives independently or uses the service of supported life to be engaged in a normal employment relationship. The organizations mediate part-time jobs in ordinary enterprises. The service constitutes the individual aid, advice and supervision of the employer and the employee according to the needs and agreement.
April 21, 2023ACE project conference, Slovenia9
Services for independent living
Supported housing (living)
The aim of the service is the independent life of the person in as ordinary environment as possible. The NGO possesses flats where people with similar problems live in the same flat (having the rights and responsibilities proceeding from the rental agreement). The service constitutes the aid, advice and supervision of the person at the management of everyday life and the flat.
April 21, 2023ACE project conference, Slovenia10
Services for independent living
Day Care Centers
The aim of the service is to decrease the need to institutionalize the person for a long term, offering them the possibilities of activity orientated to rehabilitation of the person and the support services in the ordinary environment. Every year the people take regular part in the art camps in Estonia and abroad.
April 21, 2023ACE project conference, Slovenia11
Services for independent living
There are no services which are meant for only adults with ASD, but considering the smallness of Estonia – it is not urgently needed.
The number of institutions is not sufficient
April 21, 2023ACE project conference, Slovenia12
Services from Employment service
Adaptation of the workplace (advices and financial support), mostly for physical disabilities
Special aids and equipment (special equipment that is needed in order to do job properly)
Assistance in job interviews (assistance to communicate with the employer during job interviews)
Working with the support person (possibility to have someone work alongside you, to assist you in your integration in the workplace. The cost for support persons is compensated to a limit, and for up to one year)
April 21, 2023ACE project conference, Slovenia13
What we need for adults with ASD more
Organized system of support services for students in vocational schools and universities
Sufficiently trained support persons in vocational schools and universities
More supported places for work, and with wider choices of work
Possibilities to work with support person more than one year
More supported living places
April 21, 2023ACE project conference, Slovenia14
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