survey results - welfare benefits

Action for M.E. and the Association of Young

People with M.E.

Survey 2008

Part 6Welfare Benefits and

Social Support

Part 6: Welfare Benefits and Social Support

Question 37. If you receive care from someone to help you with daily activities, what is their

relationship to you?

Family member (1673)

Friend (214)

Social services (115)

Private (paid) carer (170)

0 500 1,000 1,500 2,000

Part 6: Welfare Benefits and Social Support

Question 38. If your main or primary carer is a family member, how old are they?

0 - 11 years (4)12 - 17 years (14)18 - 25 years (65)36 - 65 years (1266)66 - 80 years (239)Over 80 years (73)26 - 35 years (43)

Part 6: Welfare Benefits and Social Support

Question 39. Has anyone in your immediate family been diagnosed with M.E.?

No (2125)Yes (403)

Part 6: Welfare Benefits and Social Support

Question 40. Are you currently on any of the following welfare benefits?

Incapacity Benefit

Severe Disablement Allowance

Income support

Disability Living Allowance

0 440 880 1,320 1,760 2,200

Yes No

Welfare Benefits : By Country

CountryIncapacity Benefit

Severe Disablement Allowance

Income Support

Disability Living

Allowance

Survey Responses

England 862 (41.05%) 77 (3.67%) 235 (11.19%) 778 (37.05%) 2100

Northern Ireland

13 (54.17%) 1 (4.17%) 1 (4.17%) 5 (20.83%) 24

Scotland 57 (43.18%) 4 (3.03%) 19 (14.39%) 52 (39.39%) 132

Wales 36 (41.38%) 3 (3.45%) 13 (14.94%) 37 (42.53%) 87

Total 968 (41.31%) 85 (3.63%) 268 (11.44%) 872 (37.22%) 2343

Welfare Benefits : NHS RegionsNHS Region Incapacity Benefit Severe Disablement

AllowanceIncome Support Disability Living

AllowanceSurvey Responses

East Midlands 85 (43.15%) 8 (4.06%) 17 (8.63%) 80 (40.61%) 197

East of England 114 (35.96%) 10 (3.15%) 36 (11.36%) 113 (35.65%) 317

Guerney (and Sark) 0 (0.00%) 0 (0.00%) 1 (50.00%) 1 (50.00%) 2

Isle of Man 0 (0.00%) 0 (0.00%) 0 (0.00%) 0 (0.00%) 1

Jersey 2 (33.33%) 0 (0.00%) 1 (16.67%) 0 (0.00%) 6

London 83 (43.23%) 8 (4.17%) 21 (10.94%) 63 (32.81%) 192

North East 29 (58.00%) 1 (2.00%) 5 (10.00%) 17 (34.00%) 50

North West 90 42.65%) 9 (4.27%) 23 (10.90%) 81 (38.39%) 211

South Central 70 (37.84%) 3 (1.62%) 16 (8.65%) 65 (35.14%) 185

South East Coast 89 (39.56%) 6 (2.67%) 28 (12.44%) 81 (36.00%) 225

South West 155 (38.08%) 22 (5.41%) 53 (13.02%) 162 (39.80%) 407

West Midlands 71 (43.56%) 4 (2.45%) 22 (13.50%) 57 (34.97%) 163

Yorkshire and the Humber

74 (51.39%) 6 (4.17%) 12 (8.33%) 58 (40.28%) 144

Total 862 (41.05%) 77 (3.67%) 235 (11.19%) 778 (37.05%) 2100

Welfare Benefits : NHS Regions

NHS Region Incapacity BenefitSevere Disablement

Allowance Income SupportDisability Living

Allowance Survey Responses

Ayrshire & Arran 3 0 0 0 5

Borders 0 1 1 1 1

Dumfries & Galloway 4 0 2 4 8

Fife 0 0 1 5 10

Forth Valley 6 0 2 5 11

Grampian 10 1 1 5 18

Greater Glasgow & Clyde 8 1 6 7 18

Highland 4 0 1 5 12

Lanarkshire 2 0 0 2 8

Lothian 7 0 4 8 22

Tayside 7 1 1 9 14

Western Isles 2 0 0 1 5

Total 57 4 19 52 132

Welfare Benefits : NHS RegionsNHS Region Incapacity Benefit Severe Disablement

AllowanceIncome Support Disability Living

AllowanceSurvey Responses

Anglesey 0 0 0 1 5

Bridgend 1 0 0 1 2

Caerphilly 0 0 0 0 1

Cardiff 2 1 3 4 9

Carmarthenshire 4 0 2 1 5

Ceredigion 3 1 1 3 6

Conwy 4 0 0 3 7

Denbigshire 1 0 0 1 3

Flintshire 2 0 0 1 4

Gwynedd 3 0 1 2 7

Monmouthsire 2 0 1 3 5

Neath Port Talbot 3 1 2 3 5

Newport 1 0 0 2 5

Pembrokeshire 1 0 0 1 1

Powys 5 0 2 4 7Rhondda Cynon Taff 0 0 0 0 2

Swansea 1 0 1 3 6

Torfaen 0 0 0 1 1

Vale of Glamorgan 3 0 0 2 5

Wrexham 0 0 0 1 1

Total 36 3 13 37 87

Part 6: Welfare Benefits and Social Support

Question 41. If yes, have you had to go to appeal / to a tribunal to get this benefits over the last three

years?

Incapacity Benefit

Severe Disablement Allowance

Income support

Disability Living Allowance

0 500 1,000 1,500

Yes No

Appeal/Tribunal : By Country

CountryIncapacity Benefit

Severe Disablement Allowance

Income Support

Disability Living

Allowance

Survey Responses

England 133 (6.33%) 10 (0.48%) 19 (0.90%) 277 (13.19%) 2100

Northern Ireland

2 (8.33%) 0 (0.00%) 0 (0.00%) 4 (16.67%) 24

Scotland 7 (5.30%) 1 (0.76%) 1 (0.76%) 25 (18.94%) 132

Wales 3 (3.45%) 0 (0.00%) 0 (0.00%) 14 (16.09%) 87

Total 145 (6.19%) 11 (0.47%) 22 (0.94%) 320 (13.66%) 2343

Part 6: Welfare Benefits and Social Support

Question 42. If yes, did you win your appeal?

Incapacity Benefit

Severe Disablement Allowance

Income support

Disability Living Allowance

0 100 200 300 400

Yes No

Won Appeal : NHS Regions

Incapacity Benefit Disability Living Allowance

Country NHS Region Went to appeal Won appeal Went to appeal Won appeal

England

East Midlands 15 10 (66.66%) 21 16 (76.19%)

East of England 15 9 (60.00%) 34 21 (61.76%)

London 10 6 (60.00%) 24 19 (79.17%)

North East 5 5 (100.00%) 9 6 (66.67%)

North West 17 11 (64.71%) 31 21 (67.74%)

South Central 11 11 (100.00%) 27 19 (70.37%)

South East Coast 18 16 (88.89%) 20 18 (90.00%)

South West 22 19 (86.36%) 67 54 (80.60%)

West Midlands 15 15 (100.00%) 19 13 (68.42%)

Yorkshire and the Humber

5 5 (100.00%) 25 18 (72.00%)

Total for all countries 145 119 (82.07%) 320 236 (73.75%)

Won Appeal : NHS Regions

Incapacity Benefit Disability Living Allowance

Country NHS Region Went to appeal Won appeal Went to appeal Won appeal

Northern Ireland

Eastern Health Board 0 0 2 1

Northern Health Board 2 2 1 0

Southern Health Board 0 0 1 1

Scotland

Ayrshire & Arran 0 0 1 0

Borders 0 0 1 1

Dumfries & Galloway 1 1 1 1

Fife 1 1 3 2

Forth Valley 1 1 0 0

Grampian 1 1 2 2

Greater Glasgow & Clyde 3 3 6 3

Highland 0 0 1 1

Lothian 0 0 6 4

Tayside 0 0 4 2

Total for all countries 145 119 (82.07%) 320 236 (73.75%)

Won Appeal : NHS Regions

Incapacity Benefit Disability Living Allowance

Country NHS Region Went to appeal Won appeal Went to appeal Won appeal

Wales

Anglesey 0 0 1 1

Bridgend 0 0 1 1

Cardiff 1 0 1 1

Carmarthenshire 1 1 0 0

Ceredigion 0 0 2 1

Conwy 0 1 (?) 0 0

Gwynedd 1 1 0 1 (?)

Monmouthshire 0 0 2 1

Neath Port Talbot 0 0 2 2

Newport 0 0 1 1

Swansea 0 0 1 2 (?)

Torfaen 0 0 1 1

Vale of Glamorgan 0 0 2 1

Total for all countries 145 119 (82.07%) 320 236 (73.75%)

Part 6: Welfare Benefits and Social Support

Question 43. Do you use a wheelchair?

Yes (627)No (1945)

Part 6: Welfare Benefits and Social Support

Question 44. If yes, has your wheelchair been prescribed for you?

Yes (336)No (565)

Comments and Queries

You can send any comments, queries or questions about this survey to :-

E-mail : survey2008@afme.org.uk

Action for M.E. Website : www.afme.org.ukAYME Website : www.ayme.org.uk

Thank You !!

Thank you for watching this presentation.

Thanks also go to the many people who participated in this survey.