the impact of public involvement sarah buckland director involve sbuckland@invo.org.uk

The impact of public involvement

Sarah BucklandDirectorINVOLVEsbuckland@invo.org.ukwww.invo.org.uk

National advisory group. Funded by the Department of Health, since 1996

INVOLVE is an National Institute for Health Research Programme

Promotes active involvement of the public in NHS, public health and social care research

INVOLVE

• Influencing policy and practice

• Increasing awareness and sharing experiences of others

- website- newsletters- databases

• Giving advice and guidance- publications- enquiries

Role of INVOLVE

• Research commissioners and policy makers

• Researchers

• Public e.g. service users and carers

Who needs evidence / knowledge and why ?

• examples

• narratives

• reflective accounts

• evaluations

• qualitative studies

• quantitative studies

What evidence / knowledge do we need?

• Examples of user controlled research

• Examples of involvement in social care research

INVOLVE Database of projects

• Nature and extent of involvement in health and social care research

• Reflections on involvement

• Impact of involvement

INVOLVE (2007) invoNET Bibliography Volume One

InvoNET library(www.invo.org.uk/invoNET.asp)

• To identify the benefits and value of public involvement in research

• To understand the best approaches to public involvement

• To reflect and learn from the evidence / knowledge

INVOLVE Impact Study: Aims

• Bibliography of resources

• Review of the literature

• Reflective analysis

INVOLVE Impact Study: Methods

• research

• research ethics

• service users and carers involved

• researchers

• implementation and change

Impact of involvement on:

Sarah BucklandDirectorINVOLVE

sbuckland@invo.org.ukwww.invo.org.uk02380 651088