an electronic patient record for the cleft lip and palate managed clinical network in scotland...

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An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark, Lead Clinician and Trudie McDonald, Network Manager

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Page 1: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

An electronic Patient Record for the Cleft Lip and Palate Managed

Clinical Network in Scotland (CLEFTSiS).

A solution not without challenges.

John Clark, Lead Clinician

and

Trudie McDonald, Network Manager

Page 2: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

• Background• Requirement for an EPR• Funding• Procurement• Development• Implementation• Rollout

Page 3: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

Multidisciplinary Care from birth to 20 yrs

Page 4: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

Concerns about the quality of care

The Clinical Standards Advisory Group (an independent source of advice to the UK Health Ministers and to the NHS) was asked to investigate the care provide in the UK.

Background to the UK cleft service

Resources should be concentrated in 8 - 15 UK centres instead of the current 57. There should be one centre in Scotland

Page 5: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

Reorganisation of Scottish services following the CSAG report

A Managed Clinical Network (CLEFTSiS) was established in April 2000 to provide and co-ordinate the highest standard of care for patients with cleft lip and/or palate, as far as possible in their own locality, to agreed national standards and guidelines.

There would be only one centre – Scotland – with not less than two WTE cleft surgeons vested in three people who undertake surgery according to an agreed common protocol.

Page 6: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

HDL (2002) 69

PROMOTING THE DEVELOPMENT OF MANAGED CLINICAL NETWORKS IN NHSSCOTLAND

“A key factor in the success of MCNs is the use of integrated clinical information systems that span traditional organisational barriers”

Page 7: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

• Background• Requirement for an EPR• Funding• Procurement• Development• Implementation• Rollout

Page 8: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

Combined clinic and treatment sites

Page 9: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

•Photographs

•Study models

•Radiographs

•Video/sound recordings

•Audit data•Surgery

•SLT

•Orthodontics/dentistry

•Audiology

•Clinical psychology

Records required for outcome assessments

Page 10: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

• Background• Requirement for an EPR• Funding• Procurement• Development• Implementation• Rollout

Page 11: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

Scottish Telemedicine Action Forum (STAF)

Funded a pilot to develop an EPR linking 5 sites;

Perth(Admin Centre for the MCN)

AberdeenEdinburghGlasgowInverness.

Page 12: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

• Background• Requirement for an EPR• Funding• Procurement• Development• Implementation• Rollout

Page 13: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

The CLEFTSiS EPR project

ProcurementUndertaken within the framework of EC/WTO rules governing Public Sector procurement under the direction of the Head of the Business Advisory Group of the Information Services Division (ISD).

commissioned to develop the EPR based on their system:

Page 14: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

• Background• Requirement for an EPR• Funding• Procurement• Development• Implementation• Rollout

Page 15: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

Dataset and protocols

Design

Page 16: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

A patient record familiar to clinicians

Page 17: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

Stages in a protocol clearly displayed with coloured

buttons providing links to other forms

Colour coded flags are set to show the status of interactions with the

patient

Page 18: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

Manage the clinical network by defining roles and including

participating hospitals or health authorities

Page 19: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

Examples of reports that can be generated by

Excelicare

Page 20: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

Patient review summary

Page 21: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,
Page 22: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

• Background• Requirement for an EPR• Funding• Procurement• Development• Implementation• Rollout

Page 23: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

NW Manager and Audit secretaries

Network Manager, Perth Royal Infirmary (0.5 WTE)

Audit Secretary, Perth Royal Infirmary (1.0 WTE)

Audit Secretary, Glasgow (Yorkhill/Dental Hospital) (0.6 WTE)

Audit Secretary, Edinburgh (RHSC) (0.6 WTE)

Audit Secretary, Aberdeen (RACH) (0.4 WTE)

CLEFTSiS Admin Support03/12/2003 - v3

Page 24: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

Architecture ExcelicareClient PC

ExcelicareData Store

Server

ExcelicareClient PC

TaysideFirewall

ExcelicareClient PC

InvernessFirewall

EdinburghFirewall

ExcelicareClient PC

Dial In Server

ExcelicareClient PC

NHSNet /Healthnet

GrampianFirewall

GlasgowFirewalls

ExcelicareClient PC

ExcelicareClient PC

Page 25: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

IT Infrastructure Challenges

Network firewalls

- chain of contacts/procedures

Switchover from CW to BT ( NHSNet / HNC)

Trouble-shooting - who can solve what?

Page 26: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

IT Infrastructure solutions?

raise awareness at local Trust IT level of usage of NHSNet/Firewalls for cross-Trust projects

central Technical person to oversee x-Trust interfaces / firewalls?

ensure support for tracing problems is part of HNC contracts (or provide TraceRoute type tools..)

Page 27: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

• Background• Requirement for an EPR• Funding• Procurement• Development• Implementation• Funding the rollout

Page 28: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

Cost to Health Boards

£0

£5,000

£10,000

£15,000

£20,000

£25,000

£30,000

£35,000

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Initial

Annual maintenance

Page 29: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

Achievements

Improved collection of audit records

Able to perform ad-hoc queries for analysis/research

National system with centrally held data (including multi media) and client connections into five Trusts

Software EPR tool with potential to grow with the service

Developing good relationships with IT staff in the five sites

Possibility that it will be adopted UK wide

Page 30: An electronic Patient Record for the Cleft Lip and Palate Managed Clinical Network in Scotland (CLEFTSiS). A solution not without challenges. John Clark,

Thank you!

to

You, the audience for your attention

STAF for funding the project

CLEFTSiS members for their contribution and on-going support

The staff of AxSys Technology