annual report - mcmaster faculty of health sciences · angelini p, boydell km, breakey v, kurkure...

ANNUAL REPORT 2016-2017

Annual Division Report for Pediatric Hematology/Oncology

HEMATOLOGY/ONCOLOGY ANNUAL REPORT

Page 1

Clinical Activity

Ambulatory Clinic Visits

Service

2015 – 2016 2016-2017

Change

(%)

Child Adult Total Child Adult Total

Oncology

2186 69 2255 2340 89

2429 +174 (+7.7)

Chemotherapy

1266 0 1266 1136 4 1140 -126 (-10)

Hematology

843 11 854 906 3 909 +55 (+6.5)

Hemophilia

468 497 965 447 632* 1079 +114 (+11.8)*

Aftercare

207 250 457 201 257 458 +1 (0)

Sedation

381 3 384 359 1 360 -48 (-6.3)

Thrombosis

423 9 432 412 17 429 -4 (-1)

Neuro-oncology

219 74 293 228 90 318 +25 (+8.5)

Hemoglobinopathy

141 207 348 229 250 479** +131 (+37.6)**

Total

6134 1120 7254 6258 1343 7601 +347 (+4.8)

New diagnoses: 71

Number of patients enrolled on an open clinical trial: 16

Number of patients enrolled on an open biology study: 25 (this number is high because the COG ALL protocol has a

biology study component)

Number of patients enrolled on an ancillary study: 61***

*Notable increase in adults with hemophilia as children enter adulthood

**Marked increase in attendances in the hemoglobinopathy clinic with more children diagnosed

***A continuing increase driven in large measure by Project Every Child


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Inpatient statistics Average daily census 8.7 Mean in-patient length of stay 7.9 days* Median in-patient length of stay 4 (4) days Figures in parentheses are from 2015-2016 Average RIW 1.98 (3Y 1.30, 3C 0.87, PICU 2.03) ** *Driven by a small number of patients who had extended stays **Increase in RIW from 2015-16 QoLA Care (Active as of November 2015) 71 new referrals; 69% Inpatient, 31% Outpatient Referral Source: PICU 19.4%, Surgery/Acute Pain 16.7%, Complex Care 15.2%, Hem/Onc 12.5%, Neurology 4.2%, Gen Peds 11.1%, Genetics/Metabolics 2.8%, NICU 6.9%, Neurology 4.2%, Gastroenterology 4.2%, Physiatry 2.8%, Psychiatry 1.4% 19 Deaths, 50% Critical Care, 18.8% Inpatient Unit, 18.8% Home, 12.5% Hospice


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Education

House staff who undertook full-time rotations in the service were: Fellows: Mihir Bhatt Hadeel Mohammed Chantel Cacciotti Residents:

Brittany Binnington / Fahad Masud – Block 1 Arenda Strikwerda / Melanie Tannenbaum – Block 2 Reynold Wuerth / David Zorko / Caroline Diorio – Block 3 Marija Kacar / Ranu Malhi – Block 4 Oyinkansola Oyefeso / Sarah Campos – Block 5 Eroshini Swarnalinam / Aban Baharbri – Block 6 Ahmad Jaafar / Mohammed Alrowayshed – Block 7 Kal Mungovan / Nadia Mansoor – Block 8 Ahmad Jaafar / Sarah O’Connor – Block 9 Lisa Brown / Noreen Choe / Brianna Empringham – Block 10 Paige Landy / Kendra Kosma – Block 11 Mohammed Alrowayshed / Julianna Sienna / Muneera Alhaddad – Block 12 Madeline Burdick / Hannah Weinstangel – Block 13

Students Visiting Electives

Madeline Edwards Pediatrics 8/1/2016 8/14/2016 University College Cork School of Medicine

Vanessa Zannella Pediatrics 9/5/2016 9/18/2016 University of Toronto

Meriem Latrous Pediatrics 9/26/2016 10/9/2016 University of Ottawa

Paul Webb Pediatrics 10/10/2016 10/23/2016 University of Western Ontario

Flora Shan Pediatrics 10/10/2016 10/23/2016 University of Toronto

Jonathan Krasinkiewicz Pediatrics 1/16/2017 1/29/2017 University College Dublin School of Medicine and

Medical Science

Daniel Martinez Pediatrics 2/27/2017 3/12/2017 University of Calgary

Ali Taqi Syed Pediatrics 3/20/2017 4/2/2017 C.M.H. Lahore Medical College and Institute of

Dentistry

Angelica Puopolo Pediatrics 5/22/2017 6/4/2017 University of Limerick Graduate Entry Medical

School

Mary Rose Pambid Pediatrics 6/5/2017 6/18/2017 University of Limerick Graduate Entry Medical

School


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Medical Students – 2 week electives Matthew Chan McMaster University June –July 2016 Nisha Kansel McMaster University Jan 20 & 27 2017

Clerkship Meirul Li Aug 16 – Aug 26, 2016 Kellee Stephens Sep 12 – Sep 23, 2016 Rebecca Chang Sep 26 – Oct 7, 2016 Carly Schenker Dec 5 – Dec 16, 2016 Sarah Woo Jan 30 – Feb 10, 2017 Ali Fawas Feb 13 – Feb 24, 2017 Marina Wang Mar 13 – Mar 24, 2017 Bradley Davis Mar 28 – Apr 7, 2017 Nikita Arora Apr 24 – May 5, 2017 Karen Ngo Jun 5 – Jun 16, 2017

Pre-Clerk – Elective Brody Duncan Jul 11 – Jul 22, 2017 Julie La Nov 21 – Dec 2, 2017 Lindsay Sheinfeld Nov 21 – Dec 2, 2017 Shagufta Panchbhaya Dec 5 – Dec 16, 2017 Natasha Mense-Dietrich Feb 13 – Feb 24, 2017


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Specific educational activities of staff include:

Dr. Uma Athale

Program Director: Pediatric Hematology/Oncology subspecialty training program – 3 MOH sponsored residents (2GY4 and one PGY6) and one international

Project supervision

Postgraduate

Chantel Cacciotti (Pediatric Hematology/Oncology Fellow): Transfusion-related iron overload in children with cancer

Undergraduate

Neha Parmar, (B.Sc. Life Sciences): Thrombocytopenia in children receiving myelosuppressive therapy and Central venous line dysfunction

Dr. Ronald Barr Supervisory Committee

Charlene Rae, PhD, Health Research Methodologies, McMaster University PhD supervisory Committee

Karina Viani, University of Sao Paolo, Brazil Dr. Vicky Breakey Undergraduate

Director, Pediatric Undergraduate Clerkship Committee, McMaster University Educational Resource Person, Peds Hematology/Oncology, McMaster University Research supervision

Claudia Nguyen, BEng, Ryerson University, Summer Studentship, Canadian Haemophilia Society, 2017 Dream of a Cure Summer0

Jennifer Herman, BHSc, Health Sciences, 3H03

Michele Zaman, BSc, Life Sciences, 4B06

Postgraduate

Meredith Austin-Appleton (PGY3), Research supervisor

Caroline Diorio (PGY2), Resident Advisor

Abeer Hegazi (PGY1), Academic Coach

Vidushi Khatri (PGY1), Academic Coach

Standing Committee Member, Education Advisory Committee, Department of Pediatrics

Appointed to the Royal College of Physicians and Surgeons Pediatric Hematology/Oncology Examination Committee

Dr. Anthony Chan Post-Doctoral Fellows • Mei Juan Huang (China), Research Fellow • Mihir Bhatt (Hamilton, Canada), Clinical Scholar; Research Advisor


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Graduate Students • Shana Aadl Shaya; (PhD Candidate); Member of Supervisory Committee, 2015-present Dr. Adam Fleming Undergraduate Medical Education

Medical Foundations 4 – Neoplasia Sub-unit Planner and Lecturer

PBL group tutor for Medical Foundations 4 Supervisory Committee Member

Maleeha Qazi, PhD Candidate, Biochemistry

Dr. Michelle Kameda, MSc Candidate, Biochemistry

Kuan-Wen (Katherine) Wang, MSc candidate, Medical Sciences Postgraduate Medical Education

Residency Program Committee, Resident Affairs portfolio; General Pediatrics

Residency Program Committee, Pediatric Hematology/Oncology

Dr. Dan Mulder (Pediatrics), Academic Coach

Dr. Luke Kieswetter (Pediatrics), Academic Coach Dr. Anne Klassen PhD Supervisor

Karen Wong; 2011-present

Abbey Torek; 2012-present

Elena Tsangaris; 2013-present Thesis Supervisor

Ali Tassi; 2016-present

Sarah Hyatt; 2016-present Postdoctoral Supervisor

Dr. Elena Tsangaris; 2017-2018

Supervisory Committee Member

Jonathan Norris, MSc Thesis: Developing a PRO instrument for adult facial palsy patients

Lott Poulson, PhD Thesis: The Psychological Impact of Body Contouring Surgery in Massive Weight Loss Patients: Validation of the BODY-Q in Denmark

Dr. Dave Lysecki Undergraduate Research supervision

Vivian Tam (Medical Student): 3 Wishes for Pediatric End-of-Life Care

Postgraduate supervision Standing Committee Member, Pediatric Hematology/Oncology Residency Training Council, McMaster University Standing Committee Member, Pediatric Palliative Care Postgraduate Education Committee, Canadian Hospice Palliative Care Association

Meredith Appleton-Austin, PGY1, Resident Advisor


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Research supervision

Dan Mulder (Pediatric Resident): NMDA-receptor antagonism for acute pancreatic pain: successful use of ketamine and methadone in a teenager with refractory pain

Brittany Anne Howson-Jan (Pediatric Resident), Vivian Tam (Medical Student): 3 Wishes for Pediatric End-of-Life Care

Khaled Alghamdi (Pediatric Complex Care Fellow): Can gabapentin reduce the need for high-risk medications in patients with stable severe neurological impairment?

Dr. Stacey Marjerrison

Coordinator of the Longitudinal CanMEDS curriculum for the pediatric residency program

Research Supervision:

Post-graduate students:

Lisa Brown, Pediatric Resident

Julianna Sienna, Radiation Oncology Resident

Chantel Cacciotti, Pediatric Hematology/Oncology Fellow

Caroline Diorio, Pediatric Resident

Masters Students:

Sarah Hyett, Health Research Methods, Evidence & Impact

Undergraduate supervision, Honours Thesis

Natalie Sloof, Health Sciences (4A12)

Student Advisorship:

Residents:

Brianna Empringham, PGY3 Pediatric Resident

Medical Students:

Allison Ouellette & Jimmy Zhang

Selina Zhang & Benny Zhang

Dr. Carol Portwine Postgraduate

Madeline Burdick (Pediatric Resident), advisor/mentor

Lindsay Fleming (Pediatric Resident), advisor/mentor Undergraduate

Brittany Howson-Jan, supervisor, block elective

Fahad Masud, supervisor, block elective

Arend Strikverda, supervisor, block elective

Melanie Tannenbaum, supervisor, block elective


Page 8

Research Supervision

Nini Nguyen, undergraduate medical sciences

Vanessa Burgess Clinical Supervisor/Preceptor

Meredith Reesor – MscOT candidate, Occupational Therapy program, McMaster University, Mar 6 – Apr 28, 2017


Page 9

Research

NEW GRANTS 2016-2017, Hendershot E, McKewen S, Wolfenden J, An evidenced based approach to blood product administration, Association of Pediatric Hematology Oncology Nurses, $2,500.

2016-2017, Timmons B, Breakey V, Fleming AJ, Marjerrison S, Obeid J, Thabane L, Exercise to boost the Immune system of children with leukemia, Pediatric Oncology Group of Ontario, $15,000. 2016-2017, Bhatt, M. Awarded the Can-Vector Grant. 2016-2018, Klassen A (PI), Wong K (co-PI), Pusic A, An international study to develop a patient-reported outcome instrument for conditions associated with a facial difference: FACE-Q Kids, CIHR, $378,427. 2016-2018, Klassen A (PI), Pusic A, Xie F, Zhong T, Bordeleau L, Pullenayegum E, Cano S, Maltros E, Kaur M, Including quality of life in breast cancer funding policy decisions: development of a preference-based measure from the BREAST-Q, Canadian Breast Cancer Foundation, $277,872. 2016-2018, Sun L, Breakey VR, Jackson S, Wu J, Outcomes indicators of transitional care in adolescents with hemophilia: A Delphi survey of Canadian hemophilia care providers and patient focus groups. Canadian Hemophilia Society, Care Until Cure Grant, $40,000. 2017-2018, Klassen A (PI), Dix D, Nathan P, Bouffet E, Establishing content validity of FACE-Q Kids for pediatric head and neck cancer, Pediatric Oncology Group of Ontario, $14,998. 2017-2018, Pusic A, Klassen A (co-PI), A qualitative phase I study to develop a new patient-reported outcome instrument for acute and chronic wounds: The WOUND-Q, The Plastic Surgery Foundation, $100,000 USD. 2017-2018, Timmons B, Breakey VR, Marjerrison S, Fleming A, Thebane L, Obeid J, Using exercise to boost the immune

system of children with ALL. Pediatric Oncology Group of Ontario Seed Funding Grant, $14,938.75.

2017-2018, Karen Strike and Sandra Squire (PIs), Physiotherapy and point of care ultrasonography for the assessment and management of acute muscle bleeding in patients with hemophilia A and B, Canadian Hemophilia Society Baxalta Fellowship, $39,382. 2017-2020, Anthony Chan (PI), Optimal anticoagulant therapy in the presence of factor VIII deficiency or low platelets, McMaster Research Agreement $ 120,000.


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Publications

Agarwal A, Firdouse M, Brar N, Yang A, Lambiris P, Chan AK, Mondal TK. Incidence and management of thrombotic and thromboembolic complications following the Norwood procedure: A systematic review. Clinical and Applied Thrombosis/Hemostasis 23:911-921, 2017.

Angelini P, Boydell KM, Breakey V, Kurkure PA, Muckaden MA, Bouffet E, Arora B. Pain management and use of opioids in pediatric oncology in India: A qualitative approach. Journal of Global Oncology 3: 331-337, 2017.

Anthony SJ, Selkirk E, Sung L, Klaassen RJ, Dix D, Klassen AF. Quality of life of pediatric oncology patients: do patient-reported outcome instruments measure what matters to patients? Quality of Life Research. 26:273-281, 2017.

Athale U, Laverdiere C, Nayiager T, Delva YL, Foster G, Thabane L, Chan AKC. Evaluation for inherited and acquired prothrombotic defects predisposing to symptomatic thromboembolism in children with acute lymphoblastic leukemia: A protocol for a prospective, observational, cohort study. BMC Cancer 17:313, 2017.

Barr R, Gomez-Almaguer D, Jaime-Perez JC, Ruiz-Arguelles G. Importance of nutrition in the treatment of leukemia in children and adolescents. Archives of Medical Research 47: 585-592, 2016.

Barr R, Ries L, Ferrari A, Whelan J, Bleyer A. Adolescent and young adult oncology: Historical and global perspectives. In – Cancer in Adolescents and Young Adults (second edition). Editors – WA Bleyer, RD Barr, LAG Ries, A Ferrari, J Whelan. Cham, Springer 2017 pp 1-6.

Barr RD, Mosby TT. Nutritional status in children with cancer – before, during and after therapy. Hematology 21: 199-205, 2016.

Barr RD, Ries L, Ferrari A, Whelan J, Bleyer A. Conclusions, perspectives and future considerations. In – Cancer in Adolescents and Young Adults (second edition). Editors – WA Bleyer, RD Barr, LAG Ries, A Ferrari, J Whelan. Cham, Springer 2017 pp 819-825.

Barr RD. Planning a comprehensive program in adolescent and young adult oncology – a collision with reality. Journal of Adolescent and Young Adult Oncology 5: 303-309, 2016.

Bhatt MD, Paes BA, Chan AK. How to use unfractionated heparin to treat neonatal thrombosis in clinical practice. Blood Coagulation and Fibrinolysis, 27:605-614, 2016.

Breakey VR, Harris L, Davis O, Ouellett C, Agarwal A, Akinnawo E, Stinson JS. The quality of information about sickle cell disease on the internet for youth. Pediatric Blood & Cancer 64: e26309. 2016

Chang GT, Atkinson HM, Berry LR, Chan AKC. Inhibition of plasmin generation in plasma by heparin, low molecular weight heparin and a covalent antithrombin-heparin complex. Blood Coagulation and Fibrinolysis 28:431-437, 2017.


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Chhina H, Klassen AF, Kopec J, Park S, Fortes C, Cooper A. Quality of life of children with lower limb deformities: A systematic review and development of a conceptual framework. Journal of Limb Lengthening and Reconstruction 3:19-29, 2017.

Cohen WA, Mundy L, Ballard TN, Klassen AF, Cano SJ, Browne J, Pusic AL. The BREAST-Q in surgical research: a review of the literature 2009-2015. Journal of Plastic, Reconstructive and Aesthetic Surgery 69:149-162, 2016.

Collins L, Beaumont L, Cranston A, Savoie S, Nayiager T, Barr R. Anthropometry in long-term survivors of acute lymphoblastic leukemia in childhood and adolescence. Journal of Adolescent and Young Adult Oncology 6: 294-298, 2017.

Cummings EA, Ma J, Fernandez CV, Halton J, Alos N, Miettunen PM, Jarenko JJ, Ho J, Shenouda N, Matzinger MA, Lentle B, Wilson B, Talback S, Stephure B, Stein R, Sbrocchi AM, Rodd C, Lewis VA, Laverdiere C, Lang B, Israels S, Grant RM, Dix DB, Couch R, Cairney E, Barr R, Atkinson S, Abish S, Moher D, Gaboury I, Hay J, Rauch F, Siminoski K, Ward LM. Incident vertebral fractures in the four years following diagnosis in children with leukemia. Journal of Clinical Endocrinology and Metabolism 100: 3408-3417, 2015.

Denburg A, Arora B, Arora RS, Auste C, Bagai P, Barr R, Challinor J, Eden T, Grynzspancholc E, Hoffman R, Link M. Access to essential medicines for children with cancer: A joint SIOP-CCI position statement. Lancet Oncology 18: 20-22, 2017.

deVeber GA, Kirton A, Booth FA, Yager JY, Wirrel EC, Wood E, Shevell M, Surmava AM, McCusker P, Massicotte MP, MacGregor D MacDonald EA, Meaney B, Levin S, Lemieux BG, Jardine L, Humphreys P, David M, Chan AKC, Buckley DJ, Bjornson BH. Epidemiology and outcomes of arterial ischemic stroke in children: The Canadian Pediatric Ischemic Stroke Registry. Pediatric Neurology 69:58-70, 2017.

East C, Badia L, Marsh D, Pusic A, Klassen A. Measuring patient-reported outcomes in rhinoplasty using the FACE-Q: A single site study. Facial Plastic Surgery 33:461-469, 2017.

Flank J, Robinson P, Holdsworth M, Phillips B, Portwine C, Gibson P, Maan C, Sung L, Dupuis L. Guideline for the treatment of breakthrough and the prevention of refractory chemotherapy-induced nausea and vomiting in children with cancer. Pediatric Blood and Cancer 63:1144-1151, 2016.

Fossey M, Li H, Afzal S, Carret AS, Eisenstat DD, Fleming AJ, Hukin J, Hawkins C, Jabado N, Johnston D, Brown T, Larouche V, Scheinemann K, Strother D, Wilson B, Zelcer S, Huang A, Bouffet E, Lafay-Cousin, L. Atypical teratoid rhabdoid tumor in the first year of life: the Canadian ATRT registry experience and review of the literature. Journal of Neuro-Oncology 132: 155-162, 2017.

Freyer DR, Chen L, Krailo MD, Knight K, Villaluna D, Bliss B, Pollock BH, Ramdas J, Lange B, Van Hoff D, VanSoelen ML, Wiernikowski J, Neuwelt EA, Sung L. Effects of sodium thiosulfate versus observation on development of cisplatin-induced hearing loss in children with cancer (ACCL0431): a multicentre, randomised, controlled, open-label, phase 3 trial. Lancet Oncology, 18:63-74, 2017.

Freyer DR, Wilder Smith A, Wolfson JA, Barr RD. Making ends meet: Financial issues from the perspectives of patients and their health care team. In – Cancer in Adolescents and Young Adults (second edition). Editors – WA Bleyer, RD Barr, LAG Ries, A Ferrari, J Whelan. Cham, Springer 2017 pp 667-686.


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Fuzesi S, Cano SJ, Klassen AF, Atisha D, Pusic AL. Validation of the electronic version of the BREAST-Q in the Army of Women Study. The Breast 33:44-49, 2017.

Ghanem KM, Dhayni R, Al-Aridi C, Tarek N, Tamim H, Chan AKC, Saab R, Abboud M, El-Solh H, Muwakkit SA. Cerebral sinus venous thrombosis during childhood acute lymphoblastic leukemia therapy: Risk factors and management. Pediatric Blood and Cancer – in press.

Gupta AA, Donen RM, Sung L, Boydell KM, Lo KC, Stephens D, Pritchard S, Portwine C, Maloney AM, Lorenzo AJ. Testicular biopsy for fertility preservation in prepubertal boys with cancer: Identifying preferences for procedure and reactions to disclosure practices. Journal of Urology 196:219-224, 2016.

Hay A, Fern L, Meyer R, Siebel N, Barr R. Clinical trials. In – Cancer in Adolescents and Young Adults (second edition). Editors – WA Bleyer, RD Barr, LAG Ries, A Ferrari, J Whelan. Cham, Springer 2017 pp 549-564.

Hepponstall M, Chan A, Monagle P. Anticoagulation therapy in neonates, children and adolescents. Blood Cells, Molecules and Diseases – in press.

Kahn JM, Athale UH, Clavell LA, Cole PD, Leclerc JM, Laverdiere C, Michon B, Schorin MA, Welch JJG, Sallan SA, Silverman LB, Kelly KM. How variable is our delivery of information? Approaches to patient education about oral chemotherapy in the pediatric oncology clinic. Journal of Pediatric Health Care 31:e1-e6, 2017.

Kam V, Hendershot E, Anderson L, Marjerrison S. Evaluation of a joint adult & pediatric clinic for cancer survivorship care. Pediatric Blood and Cancer 64:e26476, 2017.

Keegan THM, Ries LAG, Barr RD, Geiger AM, Daltke DV, Pollock BA, Bleyer WA. Comparison of cancer survival trends in the United States of adolescents and young adults with those in children and older adults. Cancer 122: 1009-1016, 2016.

Klassen AF, Cano SJ, Pusic AL. Use of FACE-Q to measure quality of life following aesthetic facial treatments. JAMA Facial Plastic Surgery 18:148-149, 2016.

Klassen AF, Cano SJ, East CA, Baker SB, Badia L, Schwitzer JA, Pusic AL. Development and psychometric evaluation of the FACE-Q scales for patients undergoing rhinoplasty. JAMA Facial Plastic Surgery 18:27-35, 2016.

Klassen AF, Cano SJ, Grotting JC, Baker SB, Carruthers J, Carruthers A, Van Laeken N, Sykes JM, Schwitzer J, Pusic AL. FACE-Q Eye Module for measuring patient-reported outcomes following cosmetic eye treatments. JAMA Facial Plastic Surgery 19:7-14, 2017.

Klassen AF, Cano SJ, Pusic AL. FACE-Q satisfaction with appearance scores from close to 1000 facial aesthetic patients. Plastic and Reconstructive Surgery 137:651-652, 2016.

Klassen AF, Cano SJ, Pusic AL. (2016). RHINO scale: a question about content validity. Plastic and Reconstructive Surgery – Global Open 4:e826, 2017.


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Klassen AF, Cano SJ, Schwitzer J, Pusic AL. Self-report scales to measure expectations and appearance-related psychosocial distress in patients seeking cosmetic treatments. Aesthetic Surgery Journal 36:1068-1078, 2016.

Klassen AF, Cano SJ, Schwitzer J, Pusic AL. Development and psychometric validation of FACE-Q skin, lips and facial rhytides appearance scales and adverse effect checklists for cosmetic procedures. JAMA Dermatology 152:443-451, 2016.

Knight KR, Chen L, Freyer D, Aplenc R, Bancroft M, Bliss B, Dang H, Gillmeister B, Hendershot E, Kraemer DF, Lindenfeld L, Meza J, Neuwelt EA, Pollock BH, Sung L. Group-wide, prospective study of ototoxicity assessment in children receiving cisplatin chemotherapy (ACCL05C1): A report from the Children's Oncology Group. Journal of Clinical Oncology 35(4):440-445, 2017.

Labarque V, Chan AKC, Williams S. Chapter 13. Thromboembolic events at specific organ sites. In: SickKids Handbook of Pediatric Thrombosis and Hemostasis. 2nd Edition. Blanchette VS, Brandao LR, Breakey VR, Revel-Vilk S(Eds), Karger, Basel, Switzerland, pp 200-216, 2017.

Ladas EJ, Marjerrison S, Arora B, Hesseling PB, Ortiz R, Antillon F, Jatia S, Afungchwi GM. Traditional and complementary medicine in pediatric oncology and low-middle income countries: Recommendations from the International Society of Pediatric Oncology (SIOP), T&CM Collaborative. Journal of the National Cancer Institute – In press.

Lassaletta A, Zapotocky M, Mistry M, Ramaswamy V, Honnorat M, Krishnatry R, Fleming AJ, Bouffet E, Hawkins C, Tabori U. Therapeutic and prognostic implications of BRAF V600E in pediatric low-grade gliomas. Journal of Clinical Oncology 35: 2934-2941, 2017.

Lawson W, Uy M, Strike KL, Iorio A, Stein N, Koziol L, Chan AKC. Point of care ultrasound in haemophilia: Building a strong foundation for clinical implementation Haemophilia, 23:648-651, 2017.

Lee EH, Klassen AF, Lawson JL, Cano SJ, Scott AM, Pusic AL. Patient experiences and outcomes following facial skin cancer surgery: A qualitative study. Australasian Journal of Dermatology 57:100-104, 2016.

Longmire NM, Wong Riff KWY, Bhoomika P, O’Hara J, Goodacre TEE, Forrest C, Klassen AF. Development of a new module of the FACE-Q for children and young adults with diverse conditions associated with visible and/or functional facial differences. Facial Plastic Surgery 33:499-508, 2017.

Mitra S, Chan AKC, Paes BA, on behalf of the Thrombosis and Hemostasis in Newborns (THiN) Group. The association of platelets with failed patent ductus arteriosus closure after primary course of indomethacin or ibuprofen: A systematic review and a meta-analysis. Journal of Maternal-Fetal and Neonatal Medicine 30:127-133, 2017.

Mundy LR, Homa K, Klassen AF, Pusic AL, Kerrigan CL. Understanding the health burden of macromastia: normative data for the BREAST-Q reduction module. Plastic and Reconstructive Surgery 139:846-853, 2017.

Mundy LR, Homa K, Klassen AF, Pusic AL, Kerrigan CL. Breast cancer and reconstruction: normative data for interpreting the BREAST-Q. Plastic and Reconstructive Surgery 139:1046-1055, 2017.


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Mundy LR, Homa K, Klassen AF, Pusic AL, Kerrigan CL. Normative data for interpreting the BREAST-Q augmentation module. Plastic and Reconstructive Surgery 139:846-853, 2017.

Mundy LR, Miller CM, Klassen A, Cano S, Pusic A. Patient-reported outcome instruments for surgical and trauma scars: A systematic review of their development, content, and psychometric validation. Aesthetic Plastic Surgery 40:792-800, 2016.

Nayiager T, Anderson L, Cranston A, Athale U, Barr RD. Health-related quality of life in long-term survivors of acute lymphoblastic leukemia in childhood and adolescence. Quality of Life Research 26: 1371-1377, 2017.

Nayiager T, Anderson L, Cranston A, Hay J, Barr RD. Physical activity in long term survivors of acute lymphoblastic leukemia in childhood and adolescence: a cross-sectional cohort study. Journal of Pediatric Hematology-Oncology – in press.

Nossair FF, Chan HHW, Gantioqui J, Atkinson HM, Berry LR, Chan AKC. In vitro assessment of the effect of dabigatran on thrombosis of adult and neonatal plasma: Comparisons using thromboelastography and microscopic visualization of fibrin clot structure. Blood Coagulation and Fibrinolysis 28:551-557, 2017.

O’Sullivan C, Dupuis LL, Gibson P, Johnston DL, Baggott C, Portwine C, Spiegler B, Kuczynski S, Tomlinson D, Tomlinson GA, Sung L. Evaluation of the electronic self-report Symptom Screening in Pediatrics Tool (SSPedi). BMJ Supportive and Palliative Care – in press.

Papneja K, Chan AK, Mondal TK, Paes B. Myocardial infarction in neonates: A review of an entity with significant morbidity and mortality. Pediatric Cardiology, 38:427-441, 2017.

Park CK, Paes BA, Nagel K, Chan AK, Murthy P; Thrombosis, Hemostasis in Newborns (THiN) Group. Neonatal central venous catheter thrombosis: diagnosis, management and outcome. Blood Coagulation and Fibrinolysis – in press.

Pole JD, Gibson P, Ethler MC, Lazor T, Johnston DL, Portwine C, Silva M, Alexander S, Sung L. Evaluation of treatment-related mortality among paediatric cancer deaths: a population based analysis. British Journal of Cancer 116: 540-545, 2017.

Portwine C, Rae C, Davis J, Teira P, Schechter T, Lewis V, Mitchell D, Wall DA, Pullenayegum E, Barr RD. Health-related quality of life in survivors of high risk neuroblastoma after stem cell transplant: A national population-based perspective. Pediatric Blood and Cancer 63: 1615-1621, 2016.

Poulsen L, Klassen A, Jhanwar S, Pusic A, Roessler KK, Michael R, Sørensen JA. Patient expectations of body contouring surgery: a qualitative study. Plastic and Reconstructive Surgery - Global Open. 4:e694, 2016.

Poulsen L, Rose M, Klassen A, Roessler KK, Sorensen JA. From pre bariatric surgery to post body contouring surgery: Measuring changes in patient-reported outcome using the BODY-Q. Plastic and Reconstructive Surgery - In press.

Poulsen L, Rose M, Klassen A, Roessler KK, Sorensen JA. Danish translation and linguistic validation of the BODY-Q: A description of the process. European Journal of Plastic Surgery 40:29-38, 2017.


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Pusic A, Matros E, Fine N, Buchel E, Gordillo G, Hamill JB, Kim HM, Qi J, Albornoz A, Klassen AF, Wilkins E. Patient-reported outcome 1 year after immediate breast reconstruction. Results of the Mastectomy Reconstruction Outcomes Consortium (MROC) Study. Journal of Clinical Oncology 35:2499-2510, 2017.

Rae C, Benger A, Fowler J-A, MacEachern J, Pullenayegum E, Stryker M, Barr RD. Need and use of health care services in survivors of Hodgkin lymphoma. Journal of Adolescent and Young Adult Oncology 5: 174: 174-180, 2016.

Rebelo JM, Sommer DD, Smriti, N, Choong K, Chan AKC, Fulford M. To anticoagulate? Controversy in the management of thrombotic complications of head & neck infections. International Journal of Pediatric Otorhinolaryngology 88:129-135, 2016.

Robertson J, Barr R, Shulman NL, Forte GB, Magrini N. Essential medicines for cancer: WHO recommendations and national priorities. Bulletin of the World Health Organization 94: 735-742, 2016.

Rusiecki D, Lach B, Manoranjan B, Fleming AJ, Ajani O, Singh SK. Progression of atypical extraventricular neurocytoma to anaplastic ganglioglioma. Human Pathology 59: 125-130, 2017.

Rustler V, Hagerty M, Daeggelmann J, Marjerrison S, Bloch W, Baumann FT. Exercise interventions for pediatric cancer patients during inpatient acute care - A systematic review of literature. Pediatric Blood and Cancer – in press.

Sergeant A, Kameda-Smith MM, Manoranjan B, Karmur B, Duckworth J, Petrelli T, Fleming AJ, Singh SK, Stein N. Analysis of surgical and MRI factors associated with cerebellar mutism. Journal of Neuro-Oncology 133: 539-552, 2017.

Setty BA, Stanek J, Mascarenhas L, Miller A, Bagatell R, Okcu F, Nicholls L, Lysecki DL, Gupta AA. Vincristine, irinotecan, and temozolamide in children and adolescents with relapsed rhabdomyosarcoma. Pediatric Blood and Cancer – in press.

Solh Z, Chan AKC, Heddle NM. Transfusion premedication practices among pediatric health care practitioners in Canada: Results of a national survey. Transfusion 56:2296-2302, 2016.

Sullivan KJ, Hunter Z, Andrioli V, Guerra L, Leonard M, Klassen A, Keays MA. Assessing quality of life of patients with hypospadias: a systematic review of patient reported outcome measures. Journal of Pediatric Urology 13:19-27, 2017.

Sung L, Dix D, Cellot S, Gillmeister B, Ethier MC, Roslin NM, Johnston DL, Feusner J, Mitchell D, Lewis V, Aplenc R, Yanofsky R, Portwine C, Price V, Zelcer S, Silva M, Bowes L, Michon B, Stobart K, Traubici J, Allen U, Beyene J, den Hollander N, Paterson AD . Single nucleotide polymorphism in ILIB is associated with infection risk in paediatric acute myeloid leukaemia. European Journal of Clinical Microbiology and Infectious Diseases 22:563-569, 2016.

Syed I, Nathan P, Barr R, Rosenberg-Yunger Z, D’Agostino NM, Klassen AF. Examining factors associated with self-management skills in teenaged survivors of childhood and adolescent cancer. Journal of Cancer Survivorship 10:686-691, 2016.

Tricoli JV, Bleyer A, Anninga J, Barr RD. The biology of AYA cancers. In – Cancer in Adolescents and Young Adults (second edition). Editors – WA Bleyer, RD Barr, LAG Ries, A Ferrari, J Whelan. Cham, Springer 2017 pp 43-67.


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Tsangaris E, Wong-Riff K, Goodacre T, Dreise M, Sykes J, Harman K, O’Mahony A, Forrest C, Pusic AL, Klassen AF. Establishing content validity of the CLEFT-Q: A new patient-reported outcome measure for cleft lip and/or palate. Plastic and Reconstructive Surgery - Global Open. 5:e1305, 2017.

Waespe N, Dhanraj S, Wahala M, Tsangaris E, Enbar T, Zlateska B, Li H, Klaassen RJ, Fernandez CV, Cuvelier CDE, Wu JK, Pastore YD, Silva M, Lipton JH, Brossard J, Michon B, Abish S, Steele M, Sinha R, Belletrutti MJ, Breakey VR, Jardine L, Goodyear L, Kofler L, Cada M, Sung L, Shago M, Scherer SW, Dror Y. The clinical impact of copy number variants in inherited bone marrow failure syndromes. Nature Partner Journal Genomic Medicine 2:18. doi:10.1038/s41525-017-0019-2, 2017.

Wang JY, Brossard J, Cellot S, Dix D, Feusner J, Johnston DL, Lewis V, Mitchell D, Portwine C, Price V, Sung L, Ethier MC, Gillmeister B. Invasive Rothia infections in children with acute myeloid leukemia: A report from the Canadian infections in AML research group. Pediatric Hematology and Oncology 33: 277-281, 2016.

Wang KW, Chau R, Fleming AJ, Banfield L, Singh SK, Johnston DL, Zelcer SM, Rassekh SR, Burrow S, Valencia M, deSouza RJ, Thabane L, Samaan MC. The effectiveness of interventions to treat hypothalamic obesity in survivors of childhood brain tumours: a systematic review. Obesity Reviews 18: 899-914, 2017.

Wang KW, de Souza RJ, Fleming AJ, Singh SK, Johnston DL, Zelcer SM, Samaan MC. Adiposity in childhood brain tumors: A report from the Canadian study of determinants of endometabolic health in children (CanDECIDE Study). Scientific Reports 7: 45078, 2017.

Wang KW, Fleming AJ, Johnston DL, Zelcer SM, Rassekh SR, Ladhani S, Socha A, Shinuda J, Jaber S, Burrow S, Singh SK, Banfeild L, de Souza RJ, Thabane L, Samaan MC. Overweight, obesity and adiposity in survivors of childhood brain tumours: a systematic review and meta-analysis. Clinical Obesity – in press.

Wang KW, Fleming AJ, Singh SK, Banfield L, de Souza RJ, Thabane L, Samaan MC. Evaluating overweight and obesity prevalence in survivors of childhood brain tumors: a systematic review protocol. Systematic Reviews 6: 43, 2017.

Wang TF, Dawson JE, Forman-Kay JD, Kahr WH, Williams S, Chan AK, Kumar R. Molecular structural analysis of a novel and de-novo mutation in the SERPINC1 gene associated with type 1 antithrombin deficiency. British Journal of Haematology 177:654-656, 2017.

Wei CH, Scott AM, Price AN, Miller C, Klassen AF, Jhanwar SM, Mehrara BJ, Disa JJ, McCarthy C, Matros E, Corderio PG, Sacchini V, Pusic AL. Psychosocial and sexual well-being following nipple-sparing mastectomy and reconstruction. The Breast Journal 22:10-17, 2016.

Wickert N, Wong K, Mansour M, Goodacre T, Forrest C, Pusic A, Klassen AF. Content validity of patient reported outcome instruments used with pediatric patients with facial differences: a systematic review. The Cleft Palate-Craniofacial Journal – in press.

Wong KWY, Tsangaris E, Goodacre T, Forrest CR, Pusic AL, Cano SJ, Klassen AF. An International multiphase mixed methods study protocol to develop a cross-cultural pediatric patient-reported outcome measure for children and young adults with cleft lip and/or palate (CLEFT-Q). BMJ Open 7:e015467, 2017.


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Communications at National and/or International meetings Dr. Uma Athale

Athale U. Newborn Screening for hemoglobinopathy: can I make the diagnosis? CME for NHSC Physicians SCD. St Catherine, Ontario, Canada, November 19 2016.

Athale U, Cacciotti C. Management of Sickle cell disease Crises. CME for NHSC Physicians SCD- 2 lectures. November 19 2016.

Athale U. Role of Asparaginase in DFCI protocols. Oncospar Consultancy Meeting. Toronto, Canada, November 28th 2016.

Athale U. Key Note Speaker at the 28th Annual Valentine’s Dinner and Dance, Thalassemia Foundation of Canada, Concord, ON, Canada, February 25th 2017.

Athale U. Recent Advances in the diagnosis and management of children with acute myeloid leukemia. Presented at the 12th Continental meeting of SIOP in Africa and 4th Childhood Cancer International Africa Regional Conference at Marrakech, Morocco April 6th 2017.

Athale U. Joint Hemoglobinopathy Clinic: A Novel Transition of Care Model. Grand Rounds, Department of Pediatrics, University of Buffalo, June 2nd 2017.

Athale U. Predictors of thrombosis in children with acute lymphoblastic leukemia. Divisional rounds, Pediatric Hematology/Oncology, University of Buffalo, June 2nd 2017.

Athale U. Cancer and thrombosis: case based discussion. Fellows’ educational rounds. Pediatric Hematology/Oncology, University of Buffalo, June 2nd 2017.

Dr. Ronald Barr

Sustainable improvement in outcomes in adolescents and young adults (AYA) with cancer in Canada: The role of the Canadian Task Force (TF) on AYA with cancer. International Pediatric Association. Vancouver, August 2016.

Comparing body composition and physical activity in adult survivors of childhood acute lymphoblastic leukemia (ALL) with and without fractures during treatment. North American Society for Pediatric Exercise Medicine. Knoxville, Tennessee. August 2016.

Characteristics of children with fractures at diagnosis of ALL: the influence of physical activity. North American Society for Pediatric Exercise Medicine. Knoxville, Tennessee. August 2016.

Nutritional status at diagnosis predicts long-term survival in children and adolescents with cancer in Central America. International Society for Paediatric Oncology. Dublin, October 2016.

A framework for the development of system performance indicators for adolescent and young adult (AYA) cancer care in Canada. International Society for Paediatric Oncology. Dublin, October 2016.


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The prevalence of osteonecrosis (ON) is high after treatment for acute lymphoblastic leukemia. International Society for Pediatric Oncology. Dublin, October 2016.

Sustainable improvement in outcomes in adolescents and young adults (AYA) with cancer in Canada: Cancer control perspective and system performance; the Canadian Task Force on AYA with cancer. World Cancer Congress. Paris, November 2016.

Oncofertility in the True North – a Canadian perspective. Oncofertility Consortium, 10th Annual Meeting, Chicago, November 2016.

Nutritional assessment. Brazilian Society of Pediatric Oncology, Rio de Janeiro, November 2016.

Nutrition and outcomes. Brazilian Society of Pediatric Oncology, Rio de Janeiro, November 2016.

The utility of HRQL measurement in clinical practice. Brazilian Society of Pediatric Oncology, Rio de Janeiro, November 2016.

Overview of metrics for adolescent and young adult (AYA) cancer care in Canada, Toronto, April 2017.

Development of system performance indicators for adolescent and young adult (AYA) cancer care in Canada. Innovative Approaches to Optimal Cancer Care in Canada. Toronto, April 2017.

Investment in adolescent and young adult cancer research in Canada. Applied Research in Cancer Control, Toronto, May 2017.

Place of death as an indicator for cancer care in adolescents and young adults (AYA) in Canada. Applied Research in Cancer Control, Toronto, May 2017.

Epidemiology of adolescent and young adult cancer in Canada: Incidence, prevalence, survival. Applied Research in Cancer Control, Toronto, May 2017.

Dr. Vicky Breakey

Pilot study of online learning modules for hemoglobinopathy education in Canadian hematology training programs. American Society of Hematology, San Diego, December 2016.

Physician factors determining treatment decisions in selecting second line agents for pediatric ITP. American Society of Hematology, San Diego, December 2016.

Clinical characteristics and quality of life of children with ITP starting second line treatments: Data from the ITP Consortium of North America ICON1 Study. American Society of Hematology, San Diego, December 2016.

Comparison of bleeding tools in a cohort of pediatric patients with ITP: Data from the Pediatric ITP Consortium of North America ICON1 Study. American Society of Hematology, San Diego, December 2016.


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Iron overload is highly prevalent in all disease severity states in pyruvate kinase deficiency (PKD). American Society of Hematology, San Diego, December 2016.

Improving influenza vaccination rates in paediatric oncology patients and their caregivers: A quality improvement initiative. International Society of Paediatric Oncology. Dublin, October 2016.

Online learning modules for hemoglobinopathies education for Canadian hematology training programs. International Conference on Residency Education, Niagara Falls, Canada, September 2016.

Using cognitive interviews and expert feedback to validate the Australian AYA distress thermometer and problem checklist for use in Canada. American Society of Clinical Oncology, Chicago, June 2017.

Fatigue in pediatric immune thrombocytopenia (ITP): Baseline prevalence in patients starting second line therapies in the first ITP Consortium of North America research study (ICON1). American Society of Pediatric Hematology and Oncology Annual Meeting. Minneapolis, 2016.

Dr. Anthony Chan

Kenet G, Chambost H, Male C, Lambert T, Alvarez-Roman MT, Halimeh S, Chan A, Barnes C, Chernova T, Blatny J, Mancuso ME, Meunier S, Komrska V, Laws HJ, Morfini M, Curtin J, Blazek B, Voigt C, Jacobs I, Santagostino E. Phase 3 trial results demonstrating efficacy and safety of rIX-FP in children with hemophilia B. 9th Congress of the Asian-Pacific Society on Thrombosis and Hemostasis (APSTH), Taiwan, October 2016.

Liesner R, Abashidze M, Aleinikova O, Altisent C, Bellutrutti MJ, Borel-Derlon A, Carcao M, Chambost H, Cha A, Dubey L, Ducore JM, Abubacker FN, Gattens M, Gruel Y, Kavardokova N, Khorassani M, Klukowska A, Konigs C, Lambert T, Lohade S, Sigaud M, Turea V, Wu JK, Vdovin V. Inhibitor development in previously untreated patients with severe hemophilia treated with Nuwiq, a new generation of recombinant FVIII of human origin. American Society of Hematology (ASH) 58th Annual Meeting and Exposition, San Diego, December 2016.

Strike K, Almonte T, Decker k, Goldsmith R, Nagel K, Waterhouse L, Chan AK. Adherence and the relationship to frequency of infusions in pediatric patients with hemophilia A and B. World Federation of Hemophilia (WFH) 2016 World Congress, Orlando, July 2016.

Cui V, Nagel K, Decker K, Walton M, Chan A. Central venous access device (CVAD) insertion procedure for pediatric patients with severe hemophilia A: trends in Factor VIII (FVIII) replacement therapy. World Federation of Hemophilia (WFH) 2016 World Congress, Orlando, July 2016.

Strike K, Squire S, Lawson W, Uy M, Chan A. Point of care ultrasonography in hemophilia: impact of prior experience and success on competency assessment/evaluation. World Federation of Hemophilia (WFH) 2016 World Congress, Orlando, July 2016.

Kenet G, Chambost H, Male C, Lambert T, Alvarez-Roman MT, Halimeh S, Chan A, Barnes C, Chernova T, Blatny J, Mancuso ME, Meunier S, Komrska V, Laws HJ, Morfini M, Curtin J, Blazek B, Voigt C, Jacobs I, Santagostino E. The efficacy and safety of recombinant fusion protein linking coagulation factor IX with albumin (Rix-Fp) in previously treated children with hemophilia B: Results of a phase 3 pivotal clinical trial. European Congress on Thrombosis and Haemostasis (ECTH), Netherlands, September 2016.


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Patel V, Bhatt M, Paes B, Chan A. Neonatal portal vein thrombosis: A single institutional experience of short and long-term outcomes. 6th Congress of the European Academy of Paediatric Societies (EAPS), Switzerland, October 2016.

Solh Z, Chan A, Heddle NM. Transfusion premedication practices in pediatrics: Results of a Canadian survey. American Association of Blood Banks (AABB) Annual Meeting, Orlando, October 2016.

Neufeld EJ, Abashidze M, Aleinikova O, Altisent C, Belletrutti MJ, Borel-Derlon A, Carcao M, Chambost H, Chan AKC, Dubey L, Ducore JM, Fouzia NA, Gattens M, Gruel Y, Kavardakova N, Ei Khorassani M, Klukowska A, Koenigs C, Lambert T, Liesner RJ, Lohade S, Sigaud M, Turea V, Wu JKM, Vdovin V. Inhibitor development in previously untreated patients with severe haemophilia A treated with human-cl rhFVIII, a new generation recombinant FVIII of human origin. 10th Annual Congress of the European Association of Haemophilia and Allied Disorders (EAHAD), Paris, February 2017.

Russo A, Altisent C, Borel-Derlon A, Chambost H, Gattens M, Gruel Y, Klukowska A, Koenigs C, Lambert T, Liesner RJ, Sigaud M, Abashidze M, Aleinkova O, Belletrutti MJ, Carcao M, Chan AKC, Dubey L, Ducore J, Fouzia NA, Kavardakova N, El Khorassani M, Lohade S, Turea V, Wu JKM, Vdovin V. Inhibitor development in previously untreated patients with severe hemophilia A treated with human-cl rhFVIII, a new generation recombinant FVIII of human origin. 61st Annual Meeting of the Society of Thrombosis and Hemostasis Research (GTH), Switzerland, February 2017.

Movilla RV, Lucier KJ, Parvizian MK, Siddiqui R, Gabriele E, Bourque M, MacIsaac J, Moorehead P, Chan A, Heddle NM, Lane SJ. Parent preferences in obstetrical and perinatal care in hemophilia: A survey of hemophilia treatment centre providers. Canadian Society for Transfusion Medicine (CSTM) Annual Conference, Ottawa, April 2017.

Solh Z, Rajagopal R, Thachil J, Chan A, Heddle N, Monagle P. International survey of the management of disseminated intravascular coagulation among pediatric and neonatal health care practitioners. American Society of Pediatric Hematology/Oncology (ASPHO) 30th Annual Meeting, Montreal, April 2017.

Every Vein that Clots is Not in the Extremities: A Critical Mini-Review of Non-extremity Venous Thromboembolism in Neonates and Children (ASPHO Essentials - Hematology). XV Brazilian Congress of Pediatric Oncology – SOBOPE 2016, Brazil, November 2016.

Thrombosis and Long-Term Catheter (Nursing and Pediatric Surgery Joint Symposium). XV Brazilian Congress of Pediatric Oncology – SOBOPE 2016, Brazil, November 2016.

Risk Factors for Inhibitor Development in Haemophilia A. Hemophilia Update (Supported by Novo Nordisk), Hamilton, December 2016.

Thrombophilia in Pediatric Cancer (State of the Art - Pediatric Thrombosis). 61st Annual Meeting of the Society of Thrombosis and Hemostasis Research (GTH), Switzerland, February 2017.

Inhibitors in Hemophilia - Risk Factors. Western University/Schulich Medicine & Dentistry, Department of Medicine, Hematology Grand Rounds, London, ON, March 2017.


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Thrombosis in Inflammatory Bowel Disease (Part of “Blood Clots in Sick Kids: A Critical Mini-Review of Venous Thromboembolism in Selected High-Risk Pediatric Populations” Session). American Society of Pediatric Hematology/Oncology (ASPHO) 30th Annual Meeting, Montreal, April 2017.

Optimizing Prophylaxis Regimens in Hemophilia in Extended Half-life Era. Hemophilia Update (Supported by CSL Behring Canada), Hamilton, May 2017.

Bone Mineral Density in Canadian Children with Severe Hemophilia A or B: A Multi-centre, Cross-sectional, Observational Study. CHS/Pfizer Care Until Cure Research Program, Care Until Cure Research Knowledge Exchange Meeting, Toronto, May 2017.

Hemophilia Care: Factor Concentrates and Challenges. Blood Club (Learning Programs supported by Novo Nordisk Canada), Vancouver, June 2017.

Dr. Anne Klassen

SCAR-Q Kids: Developing a patient-reported outcome instrument for the pediatric burn, traumatic, and surgical scar populations. Canadian Society of Plastic Surgery. Winnipeg, June 2017.

The development of a patient reported outcome instrument in paediatric patients with facial differences. Plastic Surgery Congress. Australia, June 2017.

De eerste resultaten van de BODY-Q; een specifieke 'Patient Reported Outcome Measures' bij contourherstellende chirurgie. Dutch Society for Plastic Surgery Meeting. Amsterdam, May 2017.

Normative values for the BREAST-Q. Plastic Surgery Research Council. Durham, North Carolina, May 2017.

Using cognitive interviews and expert feedback to ensure content validity of the Australian AYA Distress Thermometer and Problem Checklist for use in Canada. Pediatric Oncology Group of Ontario Symposium. Toronto, Canada, November 2016.

SCAR-Q: Developing a patient-reported outcome instrument for a pediatric and adult burn, surgical and traumatic scar population. American Burn Association, Boston, March 2017.

PRO measurement in 2016: Instruments development and modern psychometrics. Council of Medical Specialty Societies and the Plastic Surgery Foundation PROS Conference, Washington DC, Nov 2016.

Determining content validity of distress screening tools for use by Canadian AYA cancer patients and survivors. Adolescent and Young Adult National Network Meeting. Toronto ON, April 2017.

Dr. Stacey Marjerrison

Measuring traditional and complementary medicine use in Africa. International Society of Pediatric Oncology Conference. Africa, April 2017.


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Models of clinical collaboration with indigenous populations and traditional healers. International Society of Pediatric Oncology. Dublin, October 2016.

Traditional and complementary medicine therapies used with curative intent in childhood cancer: A systematic review. International Society of Pediatric Oncology Conference. Dublin, October 2016.

Assessing public opinion of abandonment of conventional treatment for traditional and complementary medicine in pediatric oncology: Methodology of a grey literature review. International Society of Pediatric Oncology Conference. Dublin, October 2016.

Dr. Carol Portwine

Adenovirus infection in children with AML: A report from the Canadian infection in AML research group ASPHO 2017. Montreal, 2017.

Dr. John Wiernikowski

Paediatric Case Reports, ISOPP Annual Symposium, Budapest, Hungary; April 2017.

Global Oncology Pharmacy Leaders Summit, Co-Chair, Budapest, Hungary, April 2017.


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Other Highlights

Dr. Uma Athale Steering Committee Member, Provincial Pediatric Oncology Plan, Pediatric Oncology Group of Ontario Content expert and moderator, CME for Health Care Providers from Niagara Health Sciences Center and community physicians. November 19th 2016. Appointed as Associate Faculty, Department of Health Research Methods, Evidence and Impact (January 2017) Elected Member, Promotions and Tenure Committee, Department of Pediatrics, McMaster University (January 2017) Judge for poster session at the 12th Continental meeting of SIOP in Africa and 4th Childhood Cancer International Africa Regional Conference at Marrakech, Morocco April 5th to 8th 2017. Dr. Vicky Breakey

Dr. Breakey was promoted to Associate Professor in July 2017.

Dr. Breakey was a co-editor for the publication: The Hospital for Sick Children Handbook of Pediatric Hemostasis and Thrombosis. Second Edition January 2017 (Switzerland, Karger).

Appointed Director of the Clerkship Program in Pediatrics with effect January 1, 2017 for a 3 year term Dr. Anthony Chan McMaster Children’s Hospital/Hamilton Health Sciences Foundation Chair in Pediatric Thrombosis and Hemostasis, Renewal for second term McMaster Centre for Transfusion Research (MCTR), Associate Member Pediatric Oncology Group of Ontario (POGO), Treasurer, and member of Audit, Finance and Risk Management Committee (AFRMC) Appointed to the Order of Ontario in 2017 Dr. Adam Fleming Promoted to Associate Professor with effect July 1, 2018 Dr. Anne Klassen International Society for Quality of Life Research Task force member to determine collaboration between International Society for Quality of Life and International Consortium of Health Outcome Measurement (ICHOM) Member of Panel to award Emerging Leader Award for International Society for Quality of Life International Society for Quality of Life Research Board Member Liaison for 3 Special Interest Groups: Health Preference Research, Mixed Methods, Child Health Dr. Dave Lysecki Appointed to institutional (HHS) regional, provincial and national palliative care committees


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Dr. Stacey Marjerrison Member of the Financial Management Committee, Department of Pediatrics. Aided in the development of the Cancer Care Ontario Aboriginal Relationship and Cultural Competency Courses Pediatric Module. Member of the Pediatric Oncology Group of Ontario Provincial Pediatric Oncology Plan (PPOP) Working Groups: Therapeutic alliances with Indigenous Families, Survivorship and Research. Chair of the SIOP PODC Traditional & Complementary Medicine Working Group.

Dr. Carol Portwine

Appointed SMO for COG, DFCI and TINI (Infant ALL) clinical trials in Canada with effect July 1, 2017 Dr. John Wiernikowski Member, Planning Committee of 2017 POGO Symposium. Recipient of the 2017 CAPhO Merit Award

The first phase 1 clinical trial protocol for children with cancer opened at McMaster in August 2016.

Both of the SEED grants awarded by POGO in 2017 came to McMaster.

THANK YOU FOR ANOTHER SUCCESSFUL YEAR!

annual report - mcmaster faculty of health sciences · angelini p, boydell km, breakey v, kurkure...

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