*anzuruni barnabe msabahstore-confit.atlas.jp/ihhc/ihhc2020/static/20200312153635405_ja.pdf ·...
TRANSCRIPT
Refugees in Africa and the complexity of healthcare services
*Anzuruni Barnabe Msabah1,2
1. Stellenbosch University, 2. Pan Africa Christian University
The health of refugees is an issue linked to and influenced by various factors. This explains why the life of
a refugee is often characterized by difficult experiences and challenges. In the midst of such complex and
difficult challenges, refugees always find hope and strive to be healthy in a constant attempt to improve
their overall well-being. It is for this reason that the refugee phenomenon in sub-Saharan Africa forces us
to re-examine different migratory trends so that we know how they are linked to the health of forcibly
displaced populations. This paper highlights issues related to migration and health in Africa using the
findings of a recently conducted study. The paper points out that refugees are often victims of poor health
conditions and they usually encounter major problems in hospitals simply because they are refugees. The
paper provides evidence that refugees face varied challenges in obtaining appropriate care as a result of
medical xenophobia and attitudinal treatment by healthcare providers. The study from which this paper is
based was carried out qualitatively with refugee respondents from various countries in sub-Saharan Africa
through semi-structured interviews and focus group discussions.
Submission No.:C000024 Refugees in Africa and the complexity of healthcare servicesResearch[R-Other]Health or healthcare-related research in other f...
Language:EnglishPresentation type: 30-minute presentation (inclusive of 1...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
How can poetry support the understanding of psychotic experiences?
–A conceptual Review
*Mark Pearson1
1. University of Nottingham
Whilst the association between psychosis and creative individuals, especially poets, has been suggested
since antiquity, only limited research has been undertaken in this area. As part of ongoing PhD research,
exploring the potential of poetry to support meaning making and recovery for those who have
experienced psychosis, this paper presents a conceptual framework based on a synthesis of existing
literature.
The conceptual framework consists of three domains: i) psychotic language as meaningful poetics, ii)
poetry as an expression of psychosis and iii) poetic exchange as therapeutic practice. The first of these
domains relates to the way in which meaning making can be undertaken and achieved when working with
individuals who have experiences psychosis. The second domain explores the linguistic theory
underpinning the way in which poetry might present new linguistic opportunities to aid expression and
narration of self and experiences. The third domain focuses on the way in which poetry is, or can, be
utilised within therapeutic clinical practice.
This conceptual framework seeks to advance the discourse in relation to psychosis, suggesting a novel
understanding relation to poetry. This novel understanding proposes moving away from traditional
biomedical paradigms and instead placing greater importance upon individual narratives.
Submission No.:C000025 How can poetry support the understanding of psychotic exp...Research[R-LIT]Literature in health or healthcare-related researc...
Language:EnglishPresentation type: 30-minute presentation (inclusive of 1...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
On the Wings of The Pegasus: Creating and sustaining a creative
writing organization within an academic setting
*Jennifer Pien-Wong1
1. Stanford University School of Medicine
Founded in 2008, the Pegasus Physician Writers at Stanford now have over 120 active members. Housed
under the Medicine & The Muse Program of Medical Humanities at Stanford University, this organization,
comprised of medical undergraduates, trainees and faculty, has expanded to include sustained writing
critique groups, curated readings and symposiums, and ongoing educational seminars designed to
promote the emergent creative writing endeavors of physicians. This presentation will describe the
methodology, support, and resources utilized in sustaining this vibrant community of physician authors
that include Drs. David Eagleman, Daniel Mason, Irv Yalom, and others in the areas of medical humanities,
Narrative Medicine, and creative writing.
Submission No.:C000026 On the Wings of The Pegasus: Creating and sustaining a cr...Education[ED-LIT]Literature/narrative in HCP education
Language:EnglishPresentation type: 30-minute presentation (inclusive of 1...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
Qualitative Analysis of Syringe Services Program: Using Narrative
Medicine to Foster Changes in a Public Health Crisis
*Amira Nafiseh1
1. Indiana University School of Medicine
Various cases of addiction, ranging from substance use to impulse control disorders, have impacted
populations for centuries, and with the emerging field of narrative medicine, clinicians can address
individuals’ health and illness accounts in greater depth. By listening to people’s stories and
interpretations, qualitative researchers and health care professionals can, based on conversations with
key participants involved in the situation, foster changes in medical and public health issues, like the
opioid crisis in Indiana.
To determine how to most effectively move forward in combatting the challenges that Scott County and
Indiana as a whole currently face with opioid addiction and HIV and hepatitis C outbreaks, fifteen
interviews were conducted and coded via the qualitative data analysis program, NVivo 10, for recurring
themes related to the implementation of syringe services programs. Law enforcement, first responders,
and local health department employees were interviewed to discuss their experiences with the programs
and working directly with patients dealing with opioid addiction. Examining data obtained from
individuals who work with community members impacted by drug abuse and HIV outbreak cases led to
new recommendations and treatments to come to light.
Submission No.:C000027 Qualitative Analysis of Syringe Services Program: Using N...Practice (Implementation)[PR-OTHER]Other fields/topics applied to healthcare practice
Language:EnglishPresentation type: 30-minute presentation (inclusive of 1...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
The individual and public health benefits of musicians playing alfresco
in an Australian private hospital.
*Margaret McAllister1, Fiona Forrest
1. Central Queensland University
In 2019, classically trained musicians were contracted for six months to play twice a week in public areas
in a private hospital in Australia and the impact on patients and staff were evaluated. An ethnographic
study was designed and data collection involved unobtrusive observation using the Arts Observation
Scale, interviews with stakeholders and analysis of musicians’ journals. Descriptive statistics and
thematic analyses were completed.
Musical performances were observed on 12 occasions and 48 people were observed, including
musicians, patients, staff and visitors. Fourteen interviews were undertaken. Participants found the music
enriching, calming and sometimes exciting. It distracted patients from symptoms and replaced the tedious
and annoying mechanical sounds with tunes that were more pleasing. Patients reported that the music
engaged their imaginations, reminding and transporting them to places that evoked memories of
wonderful times. For clinicians, the music replaced the austere atmosphere with something more
beautiful, which reminded them of the outside world, the importance of aesthetics and their role in being
part of something positive for patients, rather than mundane or dismissive. The study provided details on
how Arts in Health program managers can plan for and ensure resources are in place to enhance success
for similar musical programs.
Submission No.:C000028 The individual and public health benefits of musicians pl...Practice (Implementation)[PR-MUSIC]Music in healthcare practice (includes music th...
Language:EnglishPresentation type: 30-minute presentation (inclusive of 1...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
“The Body Issue”: What Can a Graphic Novel Teach Us About
Global and Historical Perspectives of the Ideal Female Body?
*Nealie Tan Ngo1,2
1. University of Toledo College of Medicine & Life Sciences, 2. Yale University
The Body Issue: What Global and Historical Perspectives of the Ideal Female Body Can Teach Us AboutOur Own Present-day Bodies is a graphic novel that explores the cultural and social factors influencing
female body image and aims to be an educational, entertaining tool for teaching history and medicine.
Drawing from historical and contemporary sources, as well as personal experience, the author tries to
understand the overemphasis on women’s physical appearance. The graphic novel narrates the stories
of four different historical societies: Tang Dynasty China, the Efik people, Victorian England, and Sparta,
and invites readers to consider bodies as a means to individuality instead of assimilation, acknowledge
how social and cultural factors can impact body image, and recognize that no perfect female body exists.
Poor body image is a worldwide public health crisis disproportionately affecting females. Physical bodies
are social bodies; beauty is linked to perceptions of health, wealth, power, and overall success, which
affect women’s overall views of their capabilities, strengths, and worth. History can help expose ideals of
women’s beauty as arbitrary, suggesting fluidity and subjectivity of the notion of perfection. The BodyIssue aims to help readers value self-validation over social validation with respect to their bodies.
Submission No.:C000029 “The Body Issue”: What Can a Graphic Novel Teach Us About...Education[ED-ARTS]The arts in HCP education (and/or for practicing...
Language:EnglishPresentation type: 30-minute presentation (inclusive of 1...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
Apparitions and haunted hospitals: Using literature to prompt thinking
on the importance of spirituality, ethics and identity in healthcare
practice
*Margaret McAllister1, Donna Lee Brien1
1. Central Queensland University
This paper presents our recent research into Australian nursing ghost stories, which revealed a range of
themes: the wise protective ghostly nurse; uncanny experiences; and patient hauntings, where the dead
continue to reach out to staff. Intriguing though they are on their own terms, these ritually-told stories
contrast with ghost stories depicted in mainstream films about haunted hospitals because the nurses’
characters and motivations are very different. But they share what theorists have previously said about
ghost stories written by women and those in the social margins: that these narratives are veiled protests[1]
–about forgotten people; and also the embodiment of repressed anxieties[2] –revealing that nurses also
fear death and suffering. The stories also represent a challenge to prevailing rational ways of knowing. By
sharing ghostly narratives, we identify a long-silenced part of healthcare –nursing knowledge that is
intuitive, cultural and personal –and vital rituals that need to be articulated and heard.
[1] Woolf, Virginia. 1988. “Henry James’s Ghost Stories.” In The Essays of Virginia Woolf, vol. 3,
1919–1924, edited by Andrew McNeillie, 324. New York: Harcourt Brace.
[2] Briggs, Julia. 2012. “The Ghost Story.” In A New Companion to the Gothic, edited by David Punter,
176–85. London: Wiley.
Submission No.:C000030 Apparitions and haunted hospitals: Using literature to pr...Research[R-LIT]Literature in health or healthcare-related researc...
Language:EnglishPresentation type: 30-minute presentation (inclusive of 1...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
Preparing students for intentional conversations with older adults: A
narrative competence initiative.
*Colleen Ryan1, Margaret McAllister 1, Donna Brien1, Leanne Dodd1
1. CQ University
Aged care presents particular challenges for nursing clinical learning, because stigma and poorly
developed psycho-social skills compound first year nursing students’ feelings of inadequacy. Further,
aged care residents’ loneliness and social disconnection are issues that students could be empowered
to address.
A 2019 project intended to prepare students in making a positive difference through learning and using
narrative competence to increase networks of communication with older people. Narrative Competence is
the ability to deeply listen to a person’s story and then to communicate that story back so that it
becomes life-enhancing[1]. It involves three interrelated skills: intentional conversation; being conscious
of the self-in-relation to other; and creating client ease.
This presentation discusses the findings of an evaluation of an interactive workshop that combined the
narrative arts and nursing education utilising film discussion, biographical story-telling models, and
guided skills development.
A case study examined the impact of the learning experience. Focus groups provided qualitative data and
a questionnaire and self-efficacy scale were administered to understand students’ perceptions of
narrative competence and the impact of the workshop.
[1] Corbally, M, & Grant, A. (2015). Narrative competence: a neglected area in undergraduate curricula.
Nurse Education Today, 36: 7–9
Submission No.:C000031 Preparing students for intentional conversations with old...Education[ED-LIT]Literature/narrative in HCP education
Language:EnglishPresentation type: 30-minute presentation (inclusive of 1...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
The house as symbolic representation of the self
*Silvia Wyder1
1. University of Derby
My PhD-art therapy research investigates symbolic aesthetic representations of the self in the form of the
house. The study covers several cultures (Japan and Europe), incorporating fieldworks with art therapy
patients, artists and architects. Additionally, it searches for possible visual indications of Posttraumatic
Stress Disorder symptoms within house based aesthetic works.
Working on the theme of the house can be a means of expressing and reconstructing suffering selves
through art making. The topic of the house is both emotionally charged and universal; it proved to be
appropriate for cross-cultural research as people are concerned with its presence, or absence.
My research methodology is grounded in qualitative phenomenological approaches, including a
quantitative element via the Posttraumatic Stress Disorder test (IES-R, Weiss & Marmar, 1996). Fieldwork
procedures consisted of art therapy focus group workshops in clinical, and non-clinical settings where
participants are invited to paint houses. Analysis of obtained material builds on phenomenological coding
looking for emerging patterns.
The focus of this paper is to discuss overall findings gathered in Japan and Europe. Overlapping and
dissimilar patterns are investigated both theoretically and practically, while avoiding reductionist
approaches, highlighting distinct culturally grounded phenomena, which Mauss (1934) referred to as
"cultural moulding". The study's findings are conceptualized via notions of architectural and cultural
theory, art therapy and philosophy.
Submission No.:C000033 The house as symbolic representation of the selfResearch[R-Other]Health or healthcare-related research in other f...
Language:EnglishPresentation type: 30-minute presentation (inclusive of 1...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
Narrative care: writing workshops for people living with dementia to
support them in interpreting their world and build meaning.
*Sue Dean1, Joanne Lewis1
1. The University of Technology Sydney
Whilst caregiver or third person narrative life writing has proliferated in the literature around dementia,
what is missing are first person, dementia patient’s narratives. The telling of stories is a universal activity
and narratives connect meaning and comprehension, they can repair and restore significance when the
survival of the self or parts thereof are threatened and equally they can exclude the story of those people
with limits in voice or narrative space.
This paper reports on a series of workshops designed to facilitate the person with dementia, sharing their
experience of dementia and identity, through narrative writing. The process assists the person with
dementia to create a biological legacy story to interpret their world and maintain identity. It further
informs health care workers and caregivers how people with dementia navigate the uncertainties of their
impairment alongside relationships and social engagement. An alternative narrative of dementia that
transcends the dominant ‘tragedy’ discourse is created, supporting a care model for individuals with
dementia through knowing the person –past, present and future.
Submission No.:C000034 Narrative care: writing workshops for people living with ...Education[ED-LIT]Literature/narrative in HCP education
Language:EnglishPresentation type: 30-minute presentation (inclusive of 1...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
Finding the Medicine in Stories with Care Partners, People Living with
Dementia and Health Professionals
*Megan Voeller1
1. Director of Humanities, Thomas Jefferson University
This presentation details a project called Tangles in Time, a public storytelling performance about love,
loss, living with dementia, and providing care featuring a cast of six community members and six health
professions trainees. The project was developed between Jefferson, an academic medical center, and a
local nonprofit arts organization called Theater of Witness with the goal of building empathy between
medical and nursing students, medical residents, and community members with lived experience of
dementia as care partners and patients. This presentation will focus on the design of the program, how it
was integrated into other cocurricular and extracurricular humanities initiatives for students, results of
qualitative research into effects of participating on student and resident empathy, and feedback from
public audiences. Brief video clips will be shown featuring cast members. While the presentation focuses
on one specific project, general principles of the format and process—e.g., storytelling with participants
who include both health professionals and community members—will be shared as a model transferable
to other institutions.
Submission No.:C000035 Finding the Medicine in Stories with Care Partners, Peopl...Practice (Implementation)[PR-DR]Drama in healthcare practice
Language:EnglishPresentation type: 30-minute presentation (inclusive of 1...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
Designing for health; a collaboration between nursing, architecture
and landscape architecture.
*Sue Dean1, Samantha Donnelly1, Tracy Levett-Jones1
1. The University of Technology Sydney
Links between healthcare, architecture and landscape architecture, while sometimes evident in practice,
are less obvious in academic contexts. Design schools focus on spatial and environmental issues and
schools of nursing focus on patient care. However, there are recognised benefits when teaching and
learning initiatives transcend disciplinary boundaries.
This presentation reports on a project which facilitated an authentic learning experience allowing
students from three disparate disciplines, to make meaningful connections between their previous views
and experiences, and emerging understandings derived from encounters in the ‘real world’ of practice.
Students worked collaboratively to explore the health and social issues of women and children who have
experienced family violence and/or homelessness and this knowledge and understanding influenced
finally, the spatial design of a women’s refuge. New overarching frameworks and paradigms were created
and perhaps even more importantly, this novel learning approach resulted in the emergence of new
empathic understandings and insights.
Submission No.:C000036 Designing for health; a collaboration between nursing, ar...Practice (Implementation)[PR-ARCH]Architecture/design in healthcare practice
Language:EnglishPresentation type: 30-minute presentation (inclusive of 1...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
Makeway Lab, A hospital makerspace to build the self efficacy ofdialysis patients
*John William Waldron1
1. Queensland University of Technology (QUT)
Introduction - This presentation describes a creative, agency focused design response to the experience
of treatment for Chronic Kidney Disease (CKD). CKD is increasingly common and with high impact
treatment that results in reduced mental health of patients. The Makeway Lab, created by first author
Waldron, is designed to facilitate increased mental wellbeing for patients undergoing CKD treatment.
Hemodialysis (HD) is described as both a time-creating and a time-consuming process. People on HD are
required to modify their lifestyle, which can affect their quality of life. For many their diagnosis and
treatment triggers emotional instability and anxiety and them to devalue themselves and lose their sense
of agency and confidence.
These factors point towards a need to improve patient mental health and improve the quality of time
during dialysis. The Makeway Lab is a project designed to respond to this situation.
Description - The Makeway Lab is a clinical trial underway that examines the experience of a group of HD
patients and their interaction with a purposefully designed mobile makerspace during their treatment. The
participants undertake a series of interesting and educative ‘maker’ activities in digital design and 3D
printing to improve the quality of their treatment time.
Outcomes - For the participants the project will provide them interesting and engaging activities to
stimulate them socially, cognitively and physically. For the hospital the project can account for the social
and mental health of the participants and provide an innovative mental health intervention.
Discussion - At a time of growing international acceptance that participation in creative, participatory
activity can be beneficial for wellbeing and health, this study provides a unique hospital inquiry that will
add to the knowledge addressing HD patients and the in-hospital programs and activities that can assist
their social and mental health.
Submission No.:C000038 Makeway Lab, A hospital makerspace to build the self effi...Practice (Implementation)[PR-ART]Art in healthcare practice (includes art therapy ...
Language:EnglishPresentation type: 30-minute presentation (inclusive of 1...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
Metaphors of mental health. A research project on how sufferers and
professionals talk about severe mental illness
*Marta Coll-Florit1, Salvador Climent1, Martín Correa-Urquiza3, Eulàlia Hernández2, Antoni Oliver1, Asun Pié2
1. Universitat Oberta de Catalunya UOC, Arts and Humanities, 2. Universitat Oberta de Catalunya UOC, Psychology
and Education Sciences, 3. Universitat Rovira i Virgili, Anthropology - Philosophy and Social Work
In Cognitive Linguistics, Conceptual Metaphor is understood both as a mechanism for the
conceptualization of experiences and as a method for analyzing people's discourse. Multiple studies at
the intersection of Conceptual Metaphor Theory and Health Studies have revealed that metaphors can
play an important role in the analysis of sufferers' emotions, in public communication, and in
psychotherapeutic treatment in the case of mental illness.
In this framework, we present the MOMENT Project (Metaphors of Mental Health; FFI2017-86969-R
REA/ERDF, EU), a large effort to study the metaphors produced in the internet (blogs, twitter) by patients
of severe mental illness and health care professionals. Texts in Spanish (approximately one million words)
are analysed for four groups of patients (schizophrenia, depression, OCD and bipolar disorder) and
professionals (psychiatrists, psychologists, nurses and social educators), in order to detect the most
relevant metaphors issued by each group and compare the discourses.
Metaphors have been classified into three broad domains: sufferer’s life, social environment and
medical practice. We will present the most important frames detected in the study, highlighting those that
can contribute to sufferer empowerment. As a result of the project, an online repertoire of metaphors
detected in the discourses will be publicly available.
Submission No.:C000039 Metaphors of mental health. A research project on how suf...Research[R-LING]Linguistics in health or healthcare-related research
Language:EnglishPresentation type:Poster presentations (vertical orientat...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
Using art-based methods to engage the seldom heard voices of
homeless people: an inclusive approach to education and research
*Lee-Ann Fenge1
1. Bournemouth University
Homeless people often experience complex health and social care needs resulting in deep social
exclusion. They are subject to harassment, violence and abuse and can become 'othered' in a way which
can dehumanise understanding of their lives. Practitioner understanding can be complicated the
contested nature of homelessness and whether it is viewed as an individual problem, the result of
structural factors or an interaction between both.
A key challenge in developing appropriate interventions links to our ability to work in humanised ways
with homeless people. This presentation reports on an arts-based project which aimed to provide insights
into the lived experience of homeless people through participant poetry. This participatory approach is
grounded in social justice, engaging directly with the experiences and feelings of homeless people.
Consideration is given to how a Performative Social Science approach (Jones, 2006) can engage students
and practitioners to think differently about homelessness through engagement with poetry and film of the
project. Such an approach may change hearts and minds to build communities of practice that have more
humanised and nuanced understanding of homelessness.
Jones, K. 2006. A biographic researcher in pursuit of an aesthetic: QSR,21
Submission No.:C000040 Using art-based methods to engage the seldom heard voices...Education[ED-ARTS]The arts in HCP education (and/or for practicing...
Language:EnglishPresentation type: 30-minute presentation (inclusive of 1...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
Environment in relation to health, wellbeing and human flourishing:
the contribution of 20th century continental philosophy of life and of
the subject
*Marie Gaille1
1. CNRS
Health, wellbeing and human flourishing are related in various ways to the emplaced dimension of human
existence. In this presentation, we would like to highlight how a network of thinkers that are part of the
20th century continental philosophy gave a specific content to this general and broad idea of a
relationship between human health, wellbeing and human flourishing and environment: namely, K.
Goldstein, G. Canguilhem and M. Merleau-Ponty. K. Goldstein conceived of healthy and pathological
states as essentially related to the patient’s environment understood as “the others and the world”. G.
Canguilhem focused on the human capacity to tailor one’s milieu of living and conceived of it as the
basis of human health. In its turn, M. Merleau-Ponty’s conception of the “lived space” offers key tools
to consider this issue, especially when one wants to take into account the embodied dimension of human
life and the meanings of the “lived world”. Taking K. Goldstein’s inquiry as a starting point, one may
consider how rich is the continental dialogue between him and his French readers G. Canguilhem and M.
Merleau-Ponty to conceive of the relationship between health, wellbeing and human flourishing.
Submission No.:C000041 Environment in relation to health, wellbeing and human fl...Research[R-H]History in health or healthcare-related research
Language:EnglishPresentation type: 30-minute presentation (inclusive of 1...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
Development and Clinical Study of Interactive Art Programs for
Rehabilitation
*吉岡 聖美1
*Kiyomi Yoshioka1
1. 明星大学
1. Meisei University
We have studied two interactive art programs for rehabilitation. A virtual reality(VR) program was
developed in which patients perform standing-up and sitting-down rehabilitation exercises based on
interactive changes in VR images, and the level of exercises achieved is reflected in the images as
feedback. In a recovery-phase rehabilitation hospital, the patients who used the program rated their
enjoyment of rehabilitation significantly higher than those who did not use the program. The patients who
used the program also found that rehabilitation was more enjoyable after the exercise than before. In
addition, the number of movements increased significantly by continuing exercises over a long time
period. Furthermore, focusing on respiratory rehabilitation for maintaining and improving swallowing
function, we have developed a program that involves production of an artwork into which breath is blown.
The rehabilitation session consisted of strongly blowing into an artwork doll 10 times in a row per day for
30 days. The swallowing function of elderly people who need nursing care remained in as good condition
as before the sequence. As the participants completed the respiratory rehabilitation sessions for a full
30-days it indicates the program using their own artworks is effective for sustaining rehabilitation on a
long-term basis.
Submission No.:C000042実践[PR-ARCH]医療実践における建築/デザイン
Language:日本語Presentation type:30分間のプレゼンテーション...
第9回 国際ヘルスヒューマニティーズ学会The International Health Humanit...
Being ill in a risk society: patient narratives on the management of
uncertainty
*佐藤(佐久間) りか1、磯野 真穂2、菅野 摂子3
*Rika Sakuma Sato1, Maho Isono2, Setsuko Sugano3
1. 認定NPO法人健康と病いの語りディペックス・ジャパン、2. 国際医療福祉大学、3. 立教大学
1. DIPEx-Japan, 2. International University of Health and Welfare, 3. Rikkyo University
“Kyuni-guaiga-warukunaru” (“When you suddenly get sick”) is a title of a book, based on the
correspondence between a philosopher suffering cancer and an anthropologist. In the book, the two
women exchange their ideas about the contingencies of life, the risk management, and the “fateful”
decision making.
This panel discussion is inspired by their exchanges regarding the predicament that today’s patient must
face when medical professionals deliver information hoping that she/he would make a rational decision
based on the evidential information they provide. In contemporary society, individuals are held
responsible for managing risks which can only be identified by experts (Giddens1990; Beck 1992).
However, individuals often resist experts’ assessment of the risk and their advice when they try to
manage their uncertainty. The dichotomy between “rational” and “irrational” is not productive here.
We need to analyze how individuals mobilize resources such as trust or hope which are nurtured within
their experience-based knowledge.
We begin the panel discussion with the presentation of audiovisual narratives taken from the Database of
Health and Illness Narratives compiled by DIPEx-Japan, followed by two panelists’ (Setsuko Sugano, a
sociologist, and Maho Isono, the anthropologist who co-authored the book mentioned above) discussion
on patient strategies for managing uncertainty in a risk society.
Submission No.:C000043理論と展望[HH-T]ヘルスヒューマニティーズ全体にかかわる理論と展望
Language:日本語Presentation type:70分間のパネルディスカッシ...
第9回 国際ヘルスヒューマニティーズ学会The International Health Humanit...
Implementing Medical Humanities - the case of Kraków, Poland and
Narrative Medicine
*Adrianna Beczek1,2,3, Mateusz Potoniec1,2, Hubert Syzdek1,2
1. Uniwersytet Jagiellonski/Jagiellonian University, 2. Koło Naukowe Humanistyki Medycznej/ Student's Research
Group for Medical Humanities, 3. Interdyscyplinarne Centrum Etyki UJ/Interdisciplinary Centre for Ethics JU
Pellegrino (1984) claimed that 'medicine (...) sits between the sciences and the humanities being
exclusively neither one nor the other but having some of thequalities of both'. We are a group of people
who, following this thought, are trying to shift the weight of medical practice slightly more towards
humanities in our city of Kraków, Poland. Kraków has a profound history of humanistic medicine, which
seems to have been neglected over the recent years. In the proces of reintroducing humanities into
medical curriculum we see opportunities to create something new and ameliorate medical care both for
patients and for doctors. In the discussion we: Hubert, a student of Medicine and Philosophy, Mateusz, a
student of Literature, who have both recently translated the book "The Principles and Practice of Narrative
Medicine" into Polish and Adrianna, who is a researcher in Cultural Anthropology and Philosophy and a
student of Medicine, wish to demonstrate our views on the role of Medical Humanities, especially
Narrative Medicine, in the clinic, and search for further possibilites this perspective provides.
Submission No.:C000044 Implementing Medical Humanities - the case of Kraków, Pol...Practice (Implementation)[PR-LIT]Literature in healthcare practice (includes bibli...
Language:EnglishPresentation type:70-minute panel discussion (inclusive o...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
Evaluating the use of filmmaking as an activity for students in learning
disability centre and its effect on daily activities.
*Vignesh Vyas Vyas1
1. UEA
Background: Individuals with learning disabilities have difficulties undertaking activities of daily living and
this could have an impact on their social inclusion. This study aimed to identify the benefits of individuals
with learning disabilities taking part in a filmmaking group, where peer-peer support was used to help
individuals learn a specific activity of daily living skill.
Aims: To establish if filmmaking group has any effect on the individual’s activities of daily living.
Method: A pilot study was conducted at a learning disabilities center. Our participants, three females and
one male, all aged between 30 and 40 years with learning disabilities took part in the study. Sessions were
split into three stages - pre-production, production and post-production.
Results: All four participants’ specific functional performance of a daily living task improved in accuracy
and efficiency after taking part in the filmmaking project. The results were collated from interviews with
the participants and the questionnaires filled by staff members. All four participants improved
self-confidence, team working skills and communication.
Conclusion: Filmmaking could be used as an activity, which could help individuals with learning
disabilities learn specific activities of daily living skills. Taking part in the project could also improve
individual’s self-confidence and wellbeing.
Submission No.:C000045 Evaluating the use of filmmaking as an activity for stude...Practice (Implementation)[PR-ART]Art in healthcare practice (includes art therapy ...
Language:EnglishPresentation type: 30-minute presentation (inclusive of 1...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
Cultivating evidence based contemplative practices to transform
healthcare and leadership.
*Amit Biswas1
1. Consultant Adolescent Forensic Neuropsychiatrist, Film maker; St Andrews Healthcare
Caring for others is one of the most fulfilling and rewarding work in life but is not always easy and even
can be highly challenging. Professionals can feel increasingly disconnected and discontent in caring work
which seriously compromises their wellbeing and capacity to work at their peak!Understanding,
containing and resolving these overpowering emotions, creating space of inner harmony and self
compassion is highly important to live well, lead well and help others in suffering.
Increasing evidence is emerging about learning various contemplative practices and traditional
techniques from ancient wisdom and mystical traditions (such as mindfulness, loving kindness and other
meditations, Yoga, gratitude practices, embodied dance, chanting, ceremonies, self compassion and so
on) create positive impact on individuals in care profession and teams through a heightened level of intra
and interpersonal awareness, well being and openness enabling greater emotional intelligence,
authenticity and alignment with deepest values.
In healthcare, leaders who have undergone mindfulness and similar training and integrated contemplative
practices in their leadership roles, show significantly improved self awareness, clarity in decision making,
creativity/ innovation, increased ability to lead with courage, confidence and compassion and skillfully
guide change.
In this experiential, interactive and practical workshop, we will establish or deepen the knowledge about
the science and practices of these disciplines and learn a number of techniques to connect deeply with
self and others, increasing capacity to remain open ,compassionate, positive and resilient.
Submission No.:C000047 Cultivating evidence based contemplative practices to tra...Practice (Implementation)[PR-SPIRIT]Religion/spiritualism in healthcare practice (...
Language:EnglishPresentation type:30-minute workshop (inclusive of around...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
Using psychological theory to understand the need for relatedness
amongst people living with severe asthma
*Lorraine Smith1, Helen Reddel1,2, Kath Ryan3, Daniela Eassey1
1. University of Sydney, 2. Woolcock Institute of Medical Research, 3. Reading University
Background
Severe asthma affects 3-10% of the asthma population and is associated with a significant burden
affecting social and working life. The Self-Determination Theory (SDT) construct of ‘relatedness’
concerns the need for belonging both with individuals and community. However, this has not been closely
examined from the patient’s perspective.
Methods
In-depth semi-structured interviews were conducted with participants aged 18+ years and diagnosed with
severe asthma. Interviews were video and/or audio recorded, transcribed, and analysed inductively and
deductively, informed by the SDT construct of relatedness.
Results
Thirty-eight face-to-face interviews, lasting 1.5 - 4 hours, were conducted around Australia. Participants’
sense of relatedness was challenged by the impact of their illness. Two themes emerged: 1) the desire tobe understood: feeling isolated and 2) the desire to be accepted: ‘I’m supposed to be like everybodyelse’. Participants valued feeling cared for, understood, connected to others and having a sense of
belonging. Their overall psychological well-being was dependent upon their sense of connection to
others.
Conclusion
Using SDT and qualitative methods has enabled a more nuanced and rich understanding of living with a
debilitating and unpredictable illness. Findings such as these can inform future self-management
interventions for those living with severe asthma.
Submission No.:C000048 Using psychological theory to understand the need for rel...Research[R-PSYCH]Psychology in health or healthcare-related research
Language:EnglishPresentation type: 30-minute presentation (inclusive of 1...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
Integrating drawings into health curricula: university educators’
perspectives
*Lorraine Smith1, Bandana Saini1, Melissa Cheung1
1. University of Sydney
Background
Research shows that drawings offer a window into the authentic, insider view of health and illness. Based
on our earlier work this study explored university educators’ opinions regarding the implementation of
drawings as an educational tool for higher education healthcare students.
Objective
To explore pathways for utilising drawings as an art form in an educational context, and provide
recommendations for developing curricula and resources for further evaluation.
Methods
Focus group interviews with university educators. Materials included patient and healthcare professional
drawings of perceptions of the lived experience of asthma.
Results
Participating educators supported the use of drawings as a novel medium. Perceived benefits were that
drawings foster student appreciation of: (i) the holistic impact of illness, (ii) the importance of patients’
priorities, and (iii) the value of learning from the patient.
Conclusion
Drawings offer opportunities for students to explicitly reflect about the patient experience holistically
rather than view the patient as a ‘biomedical problem.’ Shifting students’ perspectives and
assumptions to be better aligned with and appreciative of patients’ experiences were noted as central to
adopting a person-centred approach to healthcare practice. Our findings suggest that incorporating
drawings as educational tools would be a valuable addition to health curricula.
Submission No.:C000049 Integrating drawings into health curricula: university ed...Education[ED-ARTS]The arts in HCP education (and/or for practicing...
Language:EnglishPresentation type: 30-minute presentation (inclusive of 1...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
Cultural Care: Art-based Intervention in old-age and end-of-life care in
East Asia
*Harry Yi-Jui Wu1, How Wee Ng3, Michael Koon Boon Tan2, Ian Thomas Ash
1. The University of Hong Kong, 2. Nanyang Technological University, 3. Westminster University
This panel discussion consists of four presenters from various intellectual and practical backgrounds.
They examine art-based projects related to old-age care in clinical and public settings based on their own
practices or subjects of observation. Literature has shown contested perspectives on explaining ageing,
dying and death in Asia. Some have argued that these topics are taboos commonly evading attention in
public discourses. On the contrary, some have claimed that they have been expressed in subtle ways in
people’s daily practices. In East Asia, creative efforts have been made to further open up discussion
about these agenda in health care practices. Art & Health scholar Michael Tan introduces art-based
toolkits suitable for nursing homes to improve residents’ well-beings in Singapore. Literature scholar
How Wee Ng analyses three films produced by Singapore’s Drama Box concerning its multidisciplinary
community art project to stimulate public discussion on death. Medical Humanities educator Harry Yi-Jui
Wu attempts to create a verbatim theatre project to assist students to explore burden of end-of-life care in
Hong Kong. Lastly, filmmaker Ian Thomas Ash explores multiple aspects of film making on death and
dying, including how related talks have been facilitated through public screening of his documentaries in
Japan.
Submission No.:C000050 Cultural Care: Art-based Intervention in old-age and end-...Education[ED-ARTS]The arts in HCP education (and/or for practicing...
Language:EnglishPresentation type:70-minute panel discussion (inclusive o...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
Experiences of people with disability seeking to become healthcare
professionals.
*瀬戸山 陽子1、射場 典子2
*Yoko SETOYAMA1, Noriko IBA2
1. 東京医科大学、2. NPO法人DIPEx-Japan
1. Tokyo Medical University, 2. DIPEx-Japan
Objective:
The promotion of worker-friendly environment and diversity of healthcare professionals(HP) is a major
issue in Japan today. This study explores the experiences of people with disability seeking to become, or
those who have become HP, in order to promote inclusive environment within the healthcare field.
Method:
Thematic analysis of qualitative data collected by narrative interviews conducted between December
2018 and October 2019. Data from 6 people with disabilities who have the experiences of being HP or
healthcare students was analyzed.
Findings:
A nurse with internal disability since the age of 16 found that his experience of disability had prompted
him to become HP, and a doctor using wheelchair said the disability might affect the relationship with
patients. Some felt ethical dilemma in being or seeking to be HP with disabilities.
Discussions:
HP with disabilities have recognized that their own disabilities affect both positively and negatively on
being or seeking to become HP. While people with disabilities have the right to choose their occupations,
in healthcare settings, patients’ safety and quality of care must take priorities. We need more discussions
on what the essence of being HP and how to provide reasonable accommodation to HP with disabilities.
Submission No.:C000051教育[ED-DIS]医療者教育における障がい学
Language:日本語Presentation type:30分間のプレゼンテーション...
第9回 国際ヘルスヒューマニティーズ学会The International Health Humanit...
Care and the Child-Grandparent Relationship in Children’s
Picturebooks in Japan
*Katsura Sako1, Sarah Falcus2
1. Keio University, 2. University of Huddersfield
In many ageing societies concerned about the growing demand for care, the health of older people has
become a significant issue with profound economic and social implications, promoting the perception of
old age as a time of ill health and dependency and in some cases, creating generational tension.
With their unique mixture of didacticism and aestheticism, children’s picturebooks can play a vital role
in interrogating and re-shaping the limited cultural perceptions of ageing. Bringing together ageing
studies and the childhood studies, we explore subjectivity, autonomy and dependency through the
connection between the child and the older adult depicted in Japanese picturebooks from the late 20th
and early 21st centuries. Specifically, the presentation will analyse books where ageing and associated
changes, such as increased frailty, threaten to upset generational roles that are organised around care.
These books emphasise the relationality between child and grandparent that stands upon both their
dependency and autonomy. Situating these texts within the cultural context of contemporary Japan, we
suggest that the model of relationality and responsibility that emerges in these books, whilst undoubtedly
contextually related, offers a way of rethinking subjectivity, health and our understanding of the
temporality of the lifecourse.
Submission No.:C000052 Care and the Child-Grandparent Relationship in Children’s...Research[R-LIT]Literature in health or healthcare-related researc...
Language:EnglishPresentation type: 30-minute presentation (inclusive of 1...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
Following the learning journey in Health Humanities- A narrative
analysis of written assignments by pre health students
*Sandra Carr1, Brid Phillips1
1. The University of Western Australia
Health Humanities in the context of educating health professions is increasingly seen as a vehicle to
provide a balance between the dichotomous teaching of the sciences, with the compassion, critical and
reflexive skills health professionals need. Properly used, reflective writing is one way of promoting and
assessing the development of these aspects of professionalism.This study explored the learning processes
demonstrated and learning outcomes achieved through a narrative analysis of reflective written
assessments of pre health students. Adapting the reflective writing model proposed by Shapiro in 2006,
the analysis explored how students engaged in the writing process to effect a change or learning of self.
Most demonstrated they were not yet constrained by specialized vocabularies, prescribed cognitive
frameworks and routine petterns of action often associated with health students. They demonstrated
capacity to think about other peoples situations abd contemplate their own reactions in relation to those
situations from a subjective and personal stance. The writing also illustrated their beginning transition
from lay person to health professional and how they were contemplating and in some instances adopting
the required attitudes and even values. How this writing resulted in reflective self assessment, values
clarification and professional identity formation with examples will be further explored at presentation.
Submission No.:C000053 Following the learning journey in Health Humanities- A na...Research[R-Other]Health or healthcare-related research in other f...
Language:EnglishPresentation type: 30-minute presentation (inclusive of 1...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
Bringing the Health Humanities to the next generation of health
professionals
*Sandra Carr1, Brid Phillips1
1. The University of Western Australia
The gap between patient expectations and the performance of health professionals appears to be
widening. With our crowded and shorter courses there is less time to shape the professional that can
appreciate diversity and uncertainty so as to become a person centred practitioner. Many educators
recognise the value of balancing the sciences with the arts and have been working to bring the Arts and
Humanities into health professions education. Most commonly this effort has resulted in small scale,
individual or short series’ of learning activities. We have introduced an undergraduate major in
Humanities for Health and Medicine. This presentation shares our journey to establish an undergraduate
degree in health humanities as a pathway to the heath professions. The course structure and curriculum
will be presented leading to a discussion around the resulting educational philosophy. How the learning
and assessment activities are utilising health humanities to achieve the development of observation,
listening, critical and reflective skills in students will be explored along with a summary of the planned
program evaluation strategy.The course development process has revealed the highly variable quality of
research into the effect of education using Health Humanities approaches and evaluation to substantiate
such programs remains a challenge.
Submission No.:C000054 Bringing the Health Humanities to the next generation of ...Education[ED-OTHER ]Other fields/issues in HCP education
Language:EnglishPresentation type: 30-minute presentation (inclusive of 1...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
Health communication and citizen empowerment: Exploring the value
of a social practice approach in research with health consumers
*Olaf Werder1, Kate Holland2, Mark Ferson3, Catherine Bateman-Steel3, Kelly-Anne Ressler3,
Theaanna Kiaos1
1. University of Sydney, 2. University of Canberra, 3. South-Eastern Sydney Local Health District
Personal health and its communication exist within a complex context. The way people make decisions
about how they prepare for any potential health problem, i.e., negotiate prevention and warning messages
in the contexts of their everyday social practices, is not fully understood.
In this workshop, we plan to demonstrate and let participants experience the methods we employed in
social practice projects. These consist of a small self-monitoring or evaluation exercise (photo analysis)
and the ethnographic interview technique. We plan to show that these methods can help to identify social
and health practices and the circumstances in which they occur, how these practices co-evolve, and how
connections between them become strengthened or weakened, including the awareness and/or
resonance of any intervention messages with those practices (we briefly introduce our research in cruise
travel health as an example).
Aside from demonstrating the value of participatory and inductive data collection practices for the
development of health interventions, we also aim to show the benefit social representation and narrative
models for health communication would provide in opposition to top-down models and approaches to
health campaigns (and their evaluation) that often neglect the contextual factors that shape everyday
practices, including people’s engagement with health promotion messages
Submission No.:C000055 Health communication and citizen empowerment: Exploring t...Research[R-ANTH]Anthropology/ethnography in health or healthcare-...
Language:EnglishPresentation type:30-minute workshop (inclusive of around...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
Student Led Staged Readings in Health Humanities Education
*Brid Phillips1
1. The University of Western Australia
Through the humanities, we develop skills in thinking reflectively, listening actively, and being present for
our patients. In particular, creating and staging a short creative piece focussed on health topics offers an
immersive learning experience which develops skills in empathy, communication, and self-reflection. This
presentation discusses the outcomes of the first UWA Health Humanities Staged Reading Project.
The project is designed to enhance the experiential learning for health humanities students and to bring
that learning to the wider community of undergraduate and postgraduate students across the campus.
Students are given support to devise a short creative piece based on a health topic which is then read for
an audience. Students lead a focussed discussion on the themes they have uncovered. A university grant
offered students the opportunity to travel to a rural satellite campus and perform their readings to a
diverse audience. Whilst developing personal skills was the main aim, the collaborative nature of the
project can demonstrate the positive benefits of community engagement as students embark on their
health professional journey. This project examines the use of creative writing and performance as an
educational tool to foster critical thinking and empathetic awareness about moral issues surrounding
health topics.
Submission No.:C000056 Student Led Staged Readings in Health Humanities EducationEducation[ED-LIT]Literature/narrative in HCP education
Language:EnglishPresentation type: 30-minute presentation (inclusive of 1...
The 9th International Health Humanities ConferenceThe International Health Humanities Network
Japan's "Tobyo-ki" transformed into medical resourced -its
significance, publication status, and actual situation in libraries
*和田 恵美子1、石井 保志2、金井 一弘3
*Emiko WADA Wada1, Yasushi Ishii2, Kazuhiro Kanai3
1. 認定NPO法人健康と病いの語りディペックス・ジャパン、2. 国際医療福祉大学大学院、3. 株式会社 星湖舎
1. DIPEx-Japan, 2. International University of Health and Welfare Graduate School, 3. Seikosya Co., Ltd.
(Background) In Japan, books written by patients with leprosy and tuberculosis have been for a long time.
Books describing the autobiographical internal experiences of illness are referred to as "Tobyo-ki" in
Japan. Due to the large number of self-published publications, it had been not consistently organized. The
citizen research group the Health Information Bookshelf Project tried to make a list by hand-searching
them.
(Purpose) To analyze the actual state of Tobyo-ki and examine its potential as a material that contributes
to humanities.
(Method) Using the data of publishers in Osaka and NDL database, analyze the current status of Tobyo-ki
in public and medical university libraries.
(Result) The Tobyo-ki database was released to NDL in 2007. In 2006, its installation method was
released, and it spread rapidly to public libraries. Tobyo-ki were published about 100 books each year.
There were more than 150 Tobyo-ki paperbacks nationwide.
(Conclusion) Tobyo-ki, which have been positioned as essays and literature, have been transformed into
medical resources by being assigned a classification. It is necessary to examine the needs of users in
libraries and consider the relationship with medical consultation services. The genre of Tobyo-ki has a
unique characteristic in Japan, and it is necessary to compare it with other countries.
Submission No.:C000057実践[PR-LIT]医療実践における文学(ビブリオセラピー・読書療法...
Language:日本語Presentation type:30分間のプレゼンテーション...
第9回 国際ヘルスヒューマニティーズ学会The International Health Humanit...
“It takes a village: building partnerships to deliver an Arts in Health
Program within a major paediatric Hospital”.
*Lynne Seear1,2
1. AHNQ, 2. CHQHHS
The Queensland Children’s Hospital opened at the end of 2014 and is the only standalone facility
offering tertiary and quaternary care to paediatric patients, newborn to 18 years, in the state of
Queensland. The hospital was designed from the earliest stages of planning to incorporate a multi-faceted
Arts in Health therapeutic program to enhance patient experience and recovery. This includes a bespoke
visual arts collection and a regular schedule of creative, participatory activities integrated into the daily
routines of patients, clinicians and visitors. The success and sustainability of this initiative are dependent
on formal partnerships with major cultural and educational institutions which provide direct programming
support. This presentation will demonstrate the potential that can be realised when the creative
community partners with the healthcare sector to care for the whole child - body, mind and spirit. Three
case studies will be described, involving innovative projects co-designed by clinicians and cultural
workers, to deliver specific, meaningful benefits. These include the commissioning of VR-based artwork;
the establishment of a hospital choir; and a narrative medicine workshop series.
Submission No.:C000058 “It takes a village: building partnerships to deliver an ...Practice (Implementation)[PR-ART]Art in healthcare practice (includes art therapy ...
Language:EnglishPresentation type: 30-minute presentation (inclusive of 1...
The 9th International Health Humanities ConferenceThe International Health Humanities Network