ArizonaArizona Statewide Independent Living Statewide Independent Living

Council (AZ SILC)Council (AZ SILC)The Disability Empowerment CenterThe Disability Empowerment Center

Suite 214Suite 214

5025 E Washington Street5025 E Washington Street

Phoenix, AZ 85034Phoenix, AZ 85034

602/262-2900, voice/TTY602/262-2900, voice/TTY

www.azsilc.org

AZ SILCAZ SILC

SILC Staff:

• Tony DiRienzi

Executive Director

tony@azsilc.org

• Linda Jane Austen

Director of Administration linda@azsilc.org

AZ SILCAZ SILC

SILC, with the support of the AZ Department of Health Services,

will conductworkshops

around the state related to Emergency Services and

Functional Needs. .

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The purpose of this presentation

is to acquaint you with

SILC and provide

an introduction to the content

of our

Functional Needs

Workshops.

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Workshop topics:

• What are Functional Needs?

• Who has Functional Needs?

• How Functional Needs Impact the Planning for and Delivery of Emergency Services.

• Best Practices

AZ SILCAZ SILCSILC is an AZ Governor’s advisory council and non profit organization, whose members:

• Are a majority of people with a disability,

• Represent the diversity of AZ,

• Assess and advocate for issues related to Independent Living.

AZ SILCAZ SILC

Independent Living is essentially

about theCivil Rights

of People with Disabilities.

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The goal of Independent Living

is to ensure that people with disabilities

have equal access to live and participate

in theircommunity.

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People with Disabilities

are the majority

of the

Functional Needs Population

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Integral to

Independent Living

is addressing

the Functional Needs

of people.

AZ SILCAZ SILCThere are 5 major categories of Disabilities

• Mobility,

• Sensory,

• Cognitive,

• Mental, and

• Multiple.

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The Functional Needs population

is a broad spectrum

of individuals that use

a wide range of

interventions

to independently accomplish

Activities of Daily Living.

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Activities of Daily Living

(ADLs)

are used to

describe and indicate

the functional level

of individuals.

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ADLs include:

• Walking

• Personal Hygiene

• Dressing

• Self Feeding

• Toileting

• Communicating

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An individual’s ability to accomplish

ADLsis used as a criteria

to measure their independence.

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Equipment, services,

and/or

pharmaceuticals

are interventions

used to support

Functional Needs.

AZ SILCAZ SILC

Equipment includes:

• Audio output electronic devices,

• Consumable Medical Supplies

(CMS, e.g. catheters),

• Durable Medical Equipment (DME, e.g. wheelchairs),

• Video telephones.

AZ SILCAZ SILC

Services include:

• American Sign Language (ASL) interpreters

• Computer Assisted Real-time Translation (CART),

• Personal Attendant Services (P.A.S.),

• Service Animals (e.g. dogs).

AZ SILCAZ SILC

Pharmaceuticals include:

• Insulin,

• Cardiac/Pulmonary,

• Psychotropic,

• Neurologic, and

• Antibiotic.

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People with

Functional Needs

do not have

“Special Needs”.

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The concept of

“Special”

discriminates

and

segregates.

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Understanding the concept of

Accessibility

will prevent

discriminatory practices

and promote

inclusive services.

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Accessibility

describes the degree

to which

a service or environment

is equally available to

as many people as possible.

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Major Attributes of Accessibility:

• Easy to use, enter, reach, apply,

• Being at hand when needed,

• Easy to meet, interact with, communicate with, or contact.

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Planning and implementing

supports for

Functional Needs

will greatly reduce

the stress on emergency services’

assets and resources.

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A Best Practice

is to involve

People with Functional Needs

in the

planning process.

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Functional Categories:• Onset

Prenatal/BirthAcquired

• DurationTemporaryProgressivePermanent

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Each category is subdivided into

various subcategories. Each subcategoryis subdivided into various subgroups.

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Mobility is the most visible because of anatomical characteristics or DME:

• Crutches,• Oxygen Concentrators, • Prosthetics,• Scooters,• Walkers,• Wheelchairs, etc.

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Mobility Subcategories:

• Non Ambulatory

• Partially Ambulatory

• Ambulatory

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Mobility Subgroups:

• Non AmbulatoryParalysisArthritisNeurologicalMultiple Amputations

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Mobility Subgroups:

• Partially AmbulatoryCardiac/Pulmonary,Temporary Medical Conditions (e.g. broken leg),

Pregnant Women, andAging.

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Mobility Subgroups:

• AmbulatoryParalysis of Arms/HandsAmputations of Arms/Hands

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There are specific

Emergency Preparedness

issues

related to all

categories

AZ SILCAZ SILCEmergency service issues related to mobility include:

• Evacuation

• Triage

• Transportation

• Sheltering (not only architectural but, also equipment)

• Reunification

AZ SILCAZ SILCFor Emergency Service Personnel:

• Do not assume what a person can or cannot do,

• Always speak directly to person, not to companion or interpreter, and

• Critical questions to ask,What is your Functional Need?How can I best assist you?

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Emergency Service Personnel:

• If an individual has a service animal,

• Please ask,Is this a service animal?What has this animal been trained to do?

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Individuals may use service animals in all Functional categories:

• Mobility,• Sensory,• Cognitive,• Mental, and• Multiple.

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How Service Animals are used:

• Wheelchair users – pulling, retrieving,

• People who are blind – way finding,

• Neurological – alert & protect,

• Cognitive – orientation to environment,

• Mental –prevent self injury, wake up.

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Emergency Services Personnel:

• Do not separate owner and animal,

• Not a pet, it’s a working animal, highly trained,

• Do not stroke, touch or give animal food without permission of owner.

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Service Animals (cont’d)

• Harness indicates animal is working, it is on duty,

• If you need to handle the animal use a leash, NOT THE HARNESS,

• Animal must be in a harness or on a leash, but need not be muzzled.

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To participate in a

Functional Needs

workshop and

table top exercise

contact either:

Tony DiRienzi tony@azsilc.org

Linda Jane Austen linda@azsilc.org