autism from the heart a mother’s unique perspective
DESCRIPTION
Introduction Bringing out the stars!TRANSCRIPT
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Autism From The Heart
A Mother’s Unique Perspective
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Introduction
Bringing out the stars!
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Within Each Star Gemstone
• Chatoyancy, a phenomena!
• In each star gem, many flaws called “silk” line up to form magical “stars” that float on the surface of the stones. Without these imperfections, there would be no star!
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Within Each Special Child
• It is our job as parents, educators and professionals to bring out the “stars” in these wonderful people.
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What Brought Me Here• Roots• Air Force• Gemology• Jonathan Autism• Near Death• Alexander• Autism Career
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Life is For The Living!
• Insert picture of me jumping out of plane
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United States Air Force
This is me
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Gemology
• Insert gemology picture
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Jonathan Autism
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Autism and Asperger’s Syndrome
Early Warning Signs!
• Discovering the truth early will provide the best outcome for a child on the autism
spectrum as well as the people that surround them.
• Learn to see through the camouflage of this
“invisible disability”.
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Mini Autism Spectrum Quiz
Are you wondering whether a pre-school aged child youknow may have an Autism Spectrum Disorder such as a typeof Autism or Asperger's (pronounced Ass-burgers)Syndrome?
The quiz is in your notes and on the website:
www.autismtoday.com
If you answer yes to three or more of these questions, havethem checked out by a professional who is recommended byyour local Autism Society.
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Near Death
• Picture of me in hosp – real yucky one
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Alexander
• Picture of Alex as baby
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Autism Career Beginnings
• Little Rainman• Keen Education Foundation• Exceptional Resources, Inc.• Keys To The Treasure Chest• AUTISMToday.com
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Little RainmanAutism Through The Eyes of a Child
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Most Recent Testimonial“Little Rainman shows that autism can be seen and
understood by everyone. After reading this book full of miraculous pictures, I feel greater love,
compassion and understanding of a situation that somehow touches us all sooner or later.”
Mark Victor Hansen, Co-creator, #1 New York Times
best-selling series Chicken Soup for the Soul
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First Paragraph
• My name is Jonathan. I have autism (aw-tis-um). My nose looks the same as other people’s and my ears and eyes do too. Except that I can see and hear a lot better than most people. My brain thinks different. Some things I do better, like reading and copying; other things I do worse, like making friends.
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More Career
• KEEN Education Foundation• Exceptional Resources• Keys To The Treasure Chest• Autism Today.com
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Keen Education Foundationsince 1996
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Exceptional Resources, Inc
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com
Heartwarming Autism StoriesNathan Ory, Resident Psychologist, Behavior Specialist
Mark Victor Hansen, Robert Allen and me Autism Artwork – looking for more
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Maria Wheeler and Vicki Harris
Nathan Ory and me
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Life At Home
• Parenting Style Differences• Feelings• Autism, Literally!• Acum Razor• Picking Battles• Sibling Resiliency and Solutions
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Parenting Differences
• Jim and Karen
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Same Page?Not even same media!
The whole Mars…Venus thing, special needs parents can be more like Jupiter and Mercury!
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Divorce Rate High, 80%Brianna Seigel's notes an 80% divorce rate for parents of autistic children.
Demonstrates struggles parents face!
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Feelings
• Hugging as baby• Hurt as mother –wave bye• Reading facial expression• Not showing emotions or read other• Hamburger Sabotage• Careful not to laugh “at” rather with
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Facial Expression
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Autism…Literally Speaking
To some autistic folks, “pie in the sky” literally means this!
Toasting the bride means to “pop her in the toaster”!
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Clear Deodorant Series
• I came home to find Jonny naked, sopping wet, glistening from head to toe with clear deodorant.
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Clear Deodorant Series
• I said "Jonathan, what on earth are you doing?
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Clear Deodorant Series
He said, "huh, I just wanted to see if it worked, mom".
"If what worked, Jonathan?”
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Clear Deodorant Series
He picked up the deodorant and said
"well, it says provides protection against wetness, so I got in the tub to see if it worked!
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Understanding Humor
Why is 6 scared of 7?
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Acum’s Razor
If the bed squeaks, that means the springs need oil!
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Picking Our Battles
• Knives• Socks• Fire in backyard• Computer time• Standing up to dad
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Sibling Resiliency and Solutions• Getting along at home….or not!• Protection of special siblings feelings• Understanding fair• Cartoon Therapy• Red Lobster
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Cartoon Therapy• Insert SLIDE
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Life At School
• Inappropriate Behavior• Collaboration• Invisible Disability• Learning vs. Testing• Labels• Transitions• Relentless Persistence
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Mooning Mr P…….
• Insert Cartoon SLIDE• In front of the rest of the class!
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Bus Story, Dear Pat…
Bugs me 99.9%Leftover chocolate puddingGang up on meSupreme targetGay not meaning happyRelease tension
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A Great School of Inclusion
• It helps to be part of a win-win team
• All player common goal…the child.
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Social Stories Work
SLIDE JUMPING OUT OF PLANE
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New Social Story Book
Carol Gray…Social Story Book and Video
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Invisible Disability
• Some disabilities aren’t visibly evident. They look the same, but are they?
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Learning vs. Testing
• Double edge sword • Funding• Plan for future• Funding• Adjust, Jonny, time and
type, he loves it!
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Testing for Giftedness
Jonny HFA key to future independence
Man testing used rapport by talking about Jonny's favorite things, computer games.
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Choose Best Tools
Choose proper evaluation toolsRemain sensitive to obstaclesthat skew results: • time limits• distractibility
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Managing Behaviors Chart
• Chart, What happened before & after• Meaning behind behavior• Alternate Behavior• How reinforce/teach alt behavior• Comments
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Labels Are Important
• Labels good and bad• Cat & Dog slide• Operations Manual• Value of right label,
example of bird story
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Transitions
• Going to grade 7• On/off computer• Preparing ahead of time• Provide list of structured activities
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Going to Grade 7Planning for next year
Visit ahead of time
Talk to coordinator
Aid to follow?
Bussing
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Relentless Persistence, Doing Whatever It Takes!
Boy planting seeds Making it work, no matter what
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Life In Between
• Football• Peers• Marriage• Extended Family• Intensive Support Program• Self Esteem and Attitudinal Healing
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Football
• Visible & Disability – no excuse• Melt down on field• Don’t want to play, Coach Rob• Going to Bathroom before• Stupid penalties• More disabilities….more abilities
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Jonny and Stephen 2 tired bro’s
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Jonny on the field
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Jonny with his teammates
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Picture of Cougar’s (Jonny Team)
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Jonny
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Situations with Peers
Boy at schoolRest of classDad say beat him up
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Mrs. L’s email to Jonny
• The truth…the whole truth• He annoys me• He makes fun of me• He falsely accuses me
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Stephen & Alex good friend
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Marriage
• Bringing the “wife” home• The wife giving “sex”
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Picture of Jonny and his wife
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Millinium Place
• Loves swimming• Playing in the gym• His eye
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Extended Family
• Grandparents• Aunts and Uncles• Peers
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Intensive Support Program Jonny & Alex
• Verbal outbursts• Biting, hitting• Interrupting• Chore completion• Odd behavior (lips, eye movement)• Chart for chores
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Self Esteem, Attitudinal Healing
• Spiritual Thought Meditation• Forgiveness is key• Live in the now• Take time for me• Say good-bye to guilt
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H O P E O N T H E H O R I Z O N
• RAISE AWARENESS• EMPATHY SKILLS• ADULT COPING• BEHAVIOR TOOLS• EXPLAIN AUTISM• BREAK CEILINGS – RES IPSA• MEET OUR FAMILY
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RAISE AWARENESS
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Hits skyrocket on site!
45,000
70,000
80,000
100,000
30.6
38.6
34.6
31.6
45.9
46.9
45
43.9
0 20,000 40,000 60,000 80,000 100,000 120,000
wek 1
week 2
week 3
4th Qtr
Dec Jan Feb mar
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EMPATHY SKILLS
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ADULT COPING - 4 C’s of Coping
• Cease what your doing• Control existing feelings• Choose new feelings• Commence later• Detach from outcome
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BEHAVIOR TOOLS - Essential Behavior Tips
• Teach independence• Empower them don’t do their work• Let them solve their own battles
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EXPLAIN AUTISM
• What Does It Mean To Me• I Am Special• Emergence, Labeled Autistic
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BREAK CEILINGS – RES IPSA
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Res Ipsa Loquiture
• Dream of Oprah• Picture of Doris…advocate. Poet• Got a contact. • Word got out, the thing itself speaks
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Oprah request
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Be Proactive – Break Ceilings!
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Meet Our Family
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ConclusionLike precious gems, our children with
different – abilities are on this earth to be loved and cared for. They also teach the rest
of us empathy, compassion and understanding.
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Conclusion
• As Albert Einstein says”
“No problem can be solved from the same consciousness that created it. We must learn to see the world anew.”