Autistic Spectrum Autistic Spectrum Disorder Strategic Disorder Strategic

Action Plan Action Plan 2008 – 2011: 2008 – 2011:

National UpdateNational Update

David PooleDavid PooleASD Regional Support Team ManagerASD Regional Support Team Manager

66thth May 2010 May 2010

Regional Support Team - BackgroundRegional Support Team - Background The Team comprises 3 Regional Support The Team comprises 3 Regional Support

Officer’s and a Co-ordinatorOfficer’s and a Co-ordinator Based within the Social Services Improvement Based within the Social Services Improvement

Agency within the WLGAAgency within the WLGA Operational since June 2009 and funded until Operational since June 2009 and funded until

March 2011March 2011 Offers considerable experience in ASD service Offers considerable experience in ASD service

development and delivery…development and delivery… ……as well as organisational development as well as organisational development

expertiseexpertise

Regional Support Team - Objectives Regional Support Team - Objectives Advise local ASD steering groups regarding Advise local ASD steering groups regarding

implementation of their action plansimplementation of their action plans Maintain professional networks, regionally and Maintain professional networks, regionally and

nationally, in order to share effective practice nationally, in order to share effective practice

Support communication across stakeholders Support communication across stakeholders regarding progress in delivering the Strategyregarding progress in delivering the Strategy

Enable users of ASD services to participate in Enable users of ASD services to participate in local decision-making which affects themlocal decision-making which affects them

ASD SAP AccountabilitiesASD SAP Accountabilities

ASD National Strategy Project BoardSRO: Director, Children’s Health and Social Care

Welsh Assembly Government

ASD National Strategy Delivery PlanSRO: ASD SAP Implementation Manager

Welsh Assembly Government

ASD Regional Support

TeamWelsh

Assembly Government

Local ASD Services

ASD Strategic Action Plan - ASD Strategic Action Plan - ObjectivesObjectives

Map prevalence of those with ASD, together with Map prevalence of those with ASD, together with their needs and existing services, across Walestheir needs and existing services, across Wales

Ensure there is commissioning of services for Ensure there is commissioning of services for those with ASD, their families and carersthose with ASD, their families and carers

Enhance “transitions” between services so that Enhance “transitions” between services so that those with ASD are supported at key stagesthose with ASD are supported at key stages

Raise awareness nationally regarding ASD Raise awareness nationally regarding ASD issuesissues

Develop service framework for adults with ASDDevelop service framework for adults with ASD

Map prevalence of those with Map prevalence of those with ASDASD

National Baseline Survey undertakenNational Baseline Survey undertaken 18 of 22 areas returned their survey for analysis18 of 22 areas returned their survey for analysis Revealed variation in estimated prevalence Revealed variation in estimated prevalence

across the 22 local areas (WHO 60/10000)across the 22 local areas (WHO 60/10000) Identified gaps in adults diagnostic provisionIdentified gaps in adults diagnostic provision

Commissioning ASD ServicesCommissioning ASD Services

Many areas have established frameworks for Many areas have established frameworks for commissioning ASD services commissioning ASD services

Task now is, in light of ASD Strategy, to de-Task now is, in light of ASD Strategy, to de-commission / design new ASD servicescommission / design new ASD services

Some area ASD action plans have actions to de-Some area ASD action plans have actions to de-commission existing / commission new ASD commission existing / commission new ASD servicesservices

Transitions between ServicesTransitions between Services

Ongoing work in WAG on developing Transitions Ongoing work in WAG on developing Transitions Framework to support local work in this areaFramework to support local work in this area

Most areas have existing Transitions ProtocolsMost areas have existing Transitions Protocols The task now is to amend these where The task now is to amend these where

appropriate take account of developments within appropriate take account of developments within local ASD serviceslocal ASD services

Develop Adults Service Develop Adults Service Framework 1Framework 1

WAG Adults Task and Finish Group reported to WAG Adults Task and Finish Group reported to Deputy Minister end of 2009Deputy Minister end of 2009

Deputy Minister accepted the Groups Deputy Minister accepted the Groups recommendations. These were:recommendations. These were:

Creation of adult diagnostic framework and post-Creation of adult diagnostic framework and post-diagnosis counselling service (£750,000: 3 yrs)diagnosis counselling service (£750,000: 3 yrs)

Establishment of regional adult community Establishment of regional adult community monitoring / support service (£740,000: 3 yrs)monitoring / support service (£740,000: 3 yrs)

Develop Adults Service Develop Adults Service Framework 2Framework 2

Research undertaken by Bangor / Cardiff / Research undertaken by Bangor / Cardiff / Glamorgan universities regarding needs of older Glamorgan universities regarding needs of older people with ASD recently reported people with ASD recently reported

Adults Conference in June 2010 to consider Adults Conference in June 2010 to consider research findings and the implications for research findings and the implications for practice in working with older peoplepractice in working with older people

Raise awareness of ASD issuesRaise awareness of ASD issues

WAG groups developing awareness-raising WAG groups developing awareness-raising materials for key audiencesmaterials for key audiences

““ASD Matters” (HOWIS) website will provide ASD Matters” (HOWIS) website will provide updates regarding progress in delivering updates regarding progress in delivering strategystrategy

““Connections” (SSIA) website supports effective Connections” (SSIA) website supports effective practice exchange for practitionerspractice exchange for practitioners

www.ssiacymru.org.uk/asdwww.ssiacymru.org.uk/asd

Research into Autism in WalesResearch into Autism in Wales Establishment of Chair in Autism post at Cardiff Establishment of Chair in Autism post at Cardiff

University (Professor Sue Leekam)University (Professor Sue Leekam) Evaluation of Children’s Diagnostic Services and Evaluation of Children’s Diagnostic Services and

Interventions across WalesInterventions across Wales Pilot of electronic register for children with ASD Pilot of electronic register for children with ASD

in Betsi Cadwaladr University Health Board area in Betsi Cadwaladr University Health Board area (Cardiff and Bangor universities)(Cardiff and Bangor universities)

Any Questions?Any Questions?