b d d i a b e t e s c e n t e r for c h i l d r e n a n d ... · came up with, dance for a cure, a...
TRANSCRIPT
1 diabetes. Ask your doctor or nurse for more information on
this important project.
*Our research paper, Glargine Basal-Bolus Insulin Regimen Versus Insulin Pump Therapy: A Comparison of Gycemic Control was published in the June issue of the Journal of Pediatric Endocrinology and Metabolism. This study showed equivalent Hemoglobin A1C values when patients on basal bolus insulin regimens using Lantus were compared to youth using insulin pumps over a 3 year period. Of interest, Hemoglobin A1C’s trended up in both groups after each therapy was started, most likely related to “diabetes
burnout”.
(Continued on page 7)
It’s hard to believe that summer is over, and it’s back to school time. In spite of a hurricane, earthquake and other not so minor distractions, a lot has been happening at the BD Diabetes Center. Let me share some
highlights:
*Our High Risk Family Focused Diabetes Program continues to grow. We presented research related to improving collaboration between the diabetes care team and families of youth with diabetes at the American Family Therapy Academy National Meeting in Baltimore this June. In addition, we shared our experience caring for high risk adolescents with diabetes in an abstract published by the American Diabetes Association this Spring. We are looking forward to presenting a poster on our more effectively working with
high risk youth at the International Society of Pediatric and Adolescent
Diabetes in Miami in October.
*With invaluable assistance from Elaine Nussbaum’s daughter Deborah and Grace Flores, a college student in the Seed Program, we have recruited close to 500 patients for the Type 1 Diabetes Exchange, a unique national database which plans to follow over 30,000 adults and youth over a 20 year period, in order to learn more about the best ways to care for type
Winter is coming and you know what that means…
it is FLU SEASON!!
This is a reminder to...
GET YOUR FLU SHOT!!
From the Director’s Desk, Harold Starkman, MD
B D D I A B E T E S C E N T E R
F O R
C H I L D R E N
A N D A D O L E S C E N T S
The Glucose Monitor F A L L / W I N T E R 2 0 1 1 V O L U M E 1 , I S S U E 2 ,
Goryeb Children’s Hospital
Morristown Medical Center
100 Madison Ave.
Morristown, NJ 07960
Phone: (973) 971-4340
Fax: (973) 290-7367
The Team
Physicians:
Harold Starkman, MD, Director
Tymara Berry, MD
Barbara Cerame, MD
Daisy Chin, MD
Frances M. Guevarra, MD
Lawrence Silverman, MD
Nurses:
Frances Melchionne, EdD, RN, CDE
Clinical Coordinator
Laurie Ebner-Lyon, RN, APN, CDE
Elaine Nussbaum, RN, APN, CDE
Christine Wagner, RN, MS, CDE
Nutritionist:
Connie Shirtz, RD, MS, CDE
Social Worker:
Nicole L Pilek, MSW, LCSW
Administrative Staff:
Donna Parente, Office Manager
Debby Ace, Endocrine Coordinator
Cheryl Baldwin
Ashaki Graham
Sheryl Irons
Joann Millman
Christy Murillo
Medical Assistants:
Martha Ortiz
Pamela Solomon
Pierre the Pancreas
P A G E 2
Insulin pump precautions: Airline Travel
SWEET TALK with team member CHRISTINE WAGNER Christine Wagner was a neonatal clinical nurse specialist, is a certified diabetes educator, and has earned a certification in advanced diabetes manage-ment. She received her bachelor’s degree in nursing from Villanova University, and her master’s degree from
Columbia University.
Chris started her career at Morristown Medical Center in 1980, and worked in adult intensive care, pediatrics and the neonatal intensive care unit (NICU). She left the Medical Center for five years to be home with her
three beautiful children. She returned in 1991 and worked as the inpatient clinical nurse specialist in the NICU. She also went on to positions in the pediatric emergency room and then the adult diabetes center. In 2004, Chris accepted a position at the BD Diabetes Center for Children and Adolescents. We hope this is her final destination at
MMC!
When not at work, Chris enjoys
yoga, cooking for her family
and friends, and spending time
at the beach.
3. After the airplane lands, disconnect the pump and prime with 2 units of insulin, then
reconnect.
These recommendations were
based on a very small study. We
suggest families be aware of the
possibility of hypoglycemia
while wearing a pump during air
travel, and be sure to check
blood sugars frequently during
and after air travel.
Additional travel suggestions for
pumpers include notifying
security if you or your child has
diabetes and carrying a travel
letter which the office can
provide. ALL diabetes supplies
should be carried on board and
in the original package. It is not
recommended that insulin pumps
go through an x-ray scanner.
You should wear your pump and
request a walk through with a
hand scanner if necessary. The
There have been some reports of children experiencing hypoglyce-mia after airplane travel. A small study published in Diabetes Care in September, 2011 (volume 34, pages 1932-33), looked at the effects of changes in atmospheric pressure on insulin pumps. The study placed 10 pumps on com-mercial airlines and found that the pumps delivered approximately 1 unit of excess insulin during take-off. During descent approxi-
mately 0.7 units of insulin was sucked back into the pumps. Mechanical function of the pumps was not affected by air-line travel. Based on the results of their study, the authors made the following
recommendations:
1. Disconnect the pump before takeoff.
2. During the flight at cruising altitude, take the cartridge out of the pump and remove any air bub-bles before reconnecting.
Department of Transportation
does not allow spare lithium
batteries in checked luggage.
Their recommendation is to
carry spare lithium batteries in
your carry-on luggage. If you are
changing time zones, you can
change the time setting on the
pump after reaching your
destination. Always remember to
carry Lantus and Novolog, as
well as written basal and bolus
doses, with you, to be used in the
event of a pump failure while
traveling. The Lantus dose
should be equivalent to the total
24-hour basal dose. The insulin
to carbohydrate ratios and
correction factor remain the
same as in the pump settings.
Make sure you are familiar with
all the pump settings prior to
travel and have them written
down. Being well prepared for
your flight eliminates potential
stress. T H E G L U C O S E M O N I T O R
Chris stops for a photo op with Dr. Goldstein,
a former endocrinologist at the BD Diabetes
Center, at his retirement celebration.
P A G E 3
Alyssa presents the
winner with her trophy
THE INSPIRATIONAL TYPE: ALYSSA ROTHMAN
Each June, the Peter Smith School of Irish Dancing holds an annual dance competition, called a feis. This year, on June 26, 2011, we held the first Dance For A Cure, at our feis. 156 dancers registered to dance and their registration fee was donated to JDRF. There were three age categories and the winner in each category won a perpetual trophy. The winner in the under age 11 category, won the trophy donated in my honor called, Alyssa’s Cup, Finding a Cure One Step At a Time. Each dancer that participated got a special glow-in-the-dark cup and a JDRF bracelet. In addition to the charity dance, we had t-shirts made that we sold our dancers and their
families with the proceeds going towards research for the
cure.
Our first Dance For A Cure
raised over $2600! We hope to hold the charity dance every year and continue to raise money for the cure of type 1 diabetes. Watching so many dancers participate in the charity dance made me feel so happy and proud because I helped to raise a lot of money. I know the money will be put to
good use to help find a cure!
T H E G L U C O S E M O N I T O R
Dance For A Cure
By Alyssa Rothman, age 11
When I was first diagnosed with type 1 diabetes, I knew I wanted to raise money for a cure. While I was still in the hospital, my mom called my Irish dance teacher, Amy Siegel Loxley. Amy’s hus-band, Ryan, also has type 1 diabetes, so she was really knowledgeable and was very helpful and supportive. My mom and I asked Amy if our Irish dance school, Peter Smith School of Irish Danc-ing, could help raise money for the cure. Together, we came up with, Dance For A
Cure, a charity dance that all Irish dancers could participate
in to benefit JDRF.
A Picture Is Worth A Thousand Words…Of Summer Fun!!
Beginning here and the next several pages, patients of the BD Diabetes Center share their favorite photos of the summer. It might be getting cold and winter may be quickly approaching, but hopefully the smiles and good times captured
will warm you right up!
P A G E 4 V O L U M E 1 , I S S U E 2 , F A L L / W I N T E R 2 0 1 1
.
T H E G L U C O S E M O N I T O R
P A G E 5 V O L U M E 1 , I S S U E 2 , F A L L / W I N T E R 2 0 1 1
.
T H E G L U C O S E M O N I T O R
P A G E 6 V O L U M E 1 , I S S U E 2 , F A L L / W I N T E R 2 0 1 1
.
T H E G L U C O S E M O N I T O R
From the Director’s Desk (con’t from page 1)
P A G E 7 V O L U M E 1 , I S S U E 2 ,
The BD Center Annual Picnic this June at Schooley’s Mountain Park in Long Valley was a great success, thanks to
the hard work of Nicole Pilek and Connie Shirtz, and “Team D”, our adolescent group. More information on 2011-2012 activities to
follow.
*BD Center doctors and nurses volunteered to help at Camp Nejeda (the NJ diabetes camp) on opening days this summer. In addition, Dr.’s Silverman and Berry volunteered to stay at Camp for one week in August to
care for campers and staff.
*On a less satisfying note, in July, Diamyd, a new medication which was hoped to protect remaining insulin producing cells in newly diagnosed patients with type 1 diabetes was found to be well tolerated but ineffective. This finding led to the termination of this study at the BD Center as well as at other clinical trial
sites in the US and abroad.
Hope to see you at an upcoming
BD Program!
Keirsten is a 10 year old girl living with type 1 diabetes. She doesn’t let it stop her from doing the thing she loves to do most: dance!! Keirsten is a student at the Dance Arts Academy in Boonton, NJ. She competed in Florida at the end of June of this year at the Dance Explosion Dance Competition. All her fellow dancers at the academy are very supportive of Keirsten and her diabetes. She is wonderful throughout the long day at practice...checking her blood sugar and making sure she doesn’t drop.
She doesn’t let it get her down and the results are living proof!
In Keirsten’s own words when she won...The Overalls were next to be an-
nounced and I was sitting on stage waiting for this moment for a long time. I had butterflies in my stomach and all of my friends were in a circle playing the game we made up, “Pass the Squeeze”, which makes you have even more butterflies in your stomach. They started calling the person that took 5th place. Then two of my friends got called for 3rd and 4th place. They called another person for 2nd place that wasn’t in my
dance school. Then the moment came...
websites that you can click on that can provide
support and information without even leaving
the comfort of your homes. Websites like
www.childrenwithdiabetes.com, www.jdrf.org,
www.diabetesnj.org www.diabetes.org,
www.diabetes-exercise.org and
www.thinklikeapancreas.com are invaluable
tools that can provide important information
with the click of the mouse. Websites like
www.calorieking.com can take your handheld
book to a whole new level. Cell phones are not
just for taking calls anymore. They are like
mini-computers. If you have the opportunity,
check out these resourceful websites. Please
share any diabetes-related apps for your
cell phone or iPad. E-mail
[email protected] and I
will include them next time.
We are living during a time when technology
is an incredible part of our daily lives. I
don’t know about you, but it becomes very
obvious during times when we lose
electricity, or cable service or a cell tower is
affected. Technology is a powerful way to
get information quickly to a vast majority
amount of people. Information about
diabetes is no exception. There are numerous
The SOCIAL (Net)WORK(er) notes from Nicole
THE INSPIRATIONAL TYPE: KEIRSTEN DUNN
“We’ve arranged a civilization in which most crucial elements profoundly depend on science and technology.” -Carl Sagan
T H E G L U C O S E M O N I T O R
“The first place high score for the Petite level is……..and they started to play my song, “Yes, Sir”. All my friends cheered for me as I went up to the front of the stage and got my trophy. I felt very excited and I was smiling so hard my cheeks hurt. It was amazing to get this award and I was very proud of myself. Like my dance teacher says,
“It’s all in the way you dance”. :)
P A G E 8
Dietitian Hint:
Counting the carbs in
pasta can be challenging.
If you use the same
brand and shape of pasta
regularly, the carb count-
ing can be made easier.
Usually pasta servings on
the box are given in dry
weight. Weigh the pasta
dry (usually 2 ounces)
and then cook it. After
cooking re-weigh or put
the cooked pasta in a
measuring cup. Write
down the conversion.
Then you can go back to
making a large pot of
pasta for your whole
family and pull out the
right amount for accu-
rate carb counting.
CARB COUNTING WITH CONNIE, the dietitian
Pumpkin Pie Cheesecake
Ingredients:
1 cup graham cracker crumbs
1/2 cup ground pecans
2 tablespoons white sugar
1/8 teaspoon ground ginger
1/4 cup butter, melted
1 (8 ounce) package cream cheese,
softened
3/4 cup packed brown sugar
3 eggs, beaten
1 (15 ounce) can solid pack pumpkin
puree
1/2 cup heavy whipping cream
1 teaspoon ground cinnamon
1/2 teaspoon ground ginger
1/4 teaspoon ground nutmeg
1/4 teaspoon ground cloves
1/2 teaspoon salt
Directions:
Preheat oven to 350 degrees F.
To Make Crust: In a medium
bowl, combine graham cracker
crumbs, ground pecans, white
sugar, and 1/8 teaspoon ground
ginger. Mix well, then pour in
melted butter. Stir until butter is
evenly distributed. Press mixture
into a 9-inch pie plate. Set aside.
To Make Filling: In a large bowl,
combine cream cheese and brown
sugar. Beat until smooth, then add
eggs, pumpkin puree, and cream.
Mix well. Stir in cinnamon,
ginger, nutmeg, cloves, and salt.
T H E G L U C O S E M O N I T O R
Bake in preheated oven for 35 to
40 minutes, until set in center.
Chill before serving. Garish with
whipped cream and pecan halves if
desired (not included in nutritional
information listed below).
Nutritional Information Serving per recipe: 16
Amount per serving:
Calories: 209
Total Fat: 14g
Cholesterol: 73mg
Sodium: 249.5mg
Total Carbs: 19.1g
Dietary Fiber: 1.3g
Protein: 3.4g
Feel free to substitute low-fat or fat-
free cream cheese and whipped cream
for a heart healthy version.
(recipe courtesy of 2011 allrecipes.com)
THE INSPIRATIONAL TYPE: AMY HOLDAWAY
P A G E 9 V O L U M E 1 , I S S U E 2 , F A L L / W I N T E R
Amy Holdaway decided to
take matters into her own
hands...
Amy was diagnosed with
type 1 diabetes at the
beginning of 2011. At the
time, she was 11 years old.
It was during this past
summer that Amy decided
to have a bake sale to raise
money for something very
important to her and so
many others—the cure for
type 1 diabetes. After
researching organizations,
Amy decided that the
proceeds from her bake sale
would go to the Juvenile
Diabetes Research
Foundation, or JDRF.
Amy’s family and
friends have always
supported Amy, es-
pecially at the time of
her diagnosis and the
months after, and her
bake sale would be no
exception. Amy’s sisters’
and friend spent hours
baking sugar-free and
regular sugar treats to sell.
On a warm, sunny summer
day, Amy and her “support
staff” arranged the goodies
into a beautiful display.
two years ago, and Nicole Pilek, our
social worker, reviewed the
different stages of child
development and how diabetes
influences these stages. Our nurses
shared clinical updates on topics
including continuous glucose
sensors, insulin pens, and proper
injection technique. Techniques of
advanced pumping were presented
by an Animas pump trainer. There
was also an overview of
carbohydrate counting, treatment of
low blood sugar as well as
beneficial exercise guidelines.
While most children had off on
Columbus Day, 58 of their school
nurses were in the amphitheater here
at Morristown Medical Center
learning how to better care for the
students in their school who have
diabetes. School nurses from Morris,
Somerset, Sussex and Essex county
attended the one day program. Dr.
Harold Starkman discussed the High
Risk program that was implemented
It looked too yummy to pass
up and all their efforts would
soon payoff! After about an
hour, the treats were gone
and Amy had raised
$150.00!!
Amazing, Amy!!
Amy takes a
break from
selling
delicious
goodies to
pose for a
picture with
her sisters
and good
friend!
Thank your school nurse if s/he
attended this program. If s/he
wasn’t able to attend, encourage
her/him to join us for the next one!
T H E G L U C O S E M O N I T O R
2011 School Nurse Program
The maginative Site:
P A G E 1 0 V O L U M E 1 , I S S U E 2 , F A L L / W I N T E R
Wanna share your artistic talent with others? Submit your drawings, paintings, photography or poems to Nicole via E-mail: [email protected]
Mail: BD Diabetes Center, Morristown Medical Center, Box 53, Morristown, NJ 07962, Attn: Nicole Pilek or just drop it off at your next appointment. Let the
creative person inside you out!!
The section to inject your creativity!!
T H E G L U C O S E M O N I T O R
Babysitters Wanted: Are you in need of a babysitter or interested in being a babysitter? Are you familiar with diabetes management?
Buddy/Mentor Program: Are you interested in being a buddy or mentor for a family with a
child with diabetes?
College Student Panel: Are you a college student interested in being on our College Student
Panel for our College and Diabetes Program in January 2012?
Please contact Nicole Pilek @ 973.971.6465 or e-mail
[email protected] about any of these programs/services.
THE Corre-X-tion FACTOR...
Dear D the advice column for ’tweens, teens and children written by a fellow patient.
And who’s “D”? That’s a secret we’ll never tell! ;)
Dear D,
Does practice make perfect?
Thanks,
Roxanne
Dear Roxanne,
Practice makes perfect in everything you do! Whether you are into music, sports or school, practice is the key to success. The
same is true with your diabetes care. There are a lot of tasks and scenarios associated with diabetes and each one should be
practiced to the same degree.
You need to practice carbohydrate “carb’ counting and measuring your food portions. Although people like to eat a variety of
foods, we tend to like certain foods over others. Therefore, even if you just practice counting carbs of your favorites, you will get
good at it. In no time at all you will automatically know how many carbs are in your favorite foods. This would allow you to
“eyeball it” when you can’t measure or weigh your food (like at a restaurant or at a party) and be able to tell yourself how many
carbs are on your plate.
You need to practice for different event scenarios in the same way as well. Scenarios such as high activity days – sports,
amusement parks, boardwalk and beach or low activity days – travel, movies, holidays and sick days. Make sure you practice
what to have on hand for these scenarios. Review all the “what ifs”, so you will be prepared for whatever happens. Think about
things like…Will you have enough treatment for highs and lows? Will you have enough insulin? Will you have enough supplies
for your specific diabetes care (pump vs. pens vs. syringes)? When you practice thinking about questions such as these, then you
won’t waste time trying to troubleshoot problems that might arise. By practicing, you will be able to handle any problems
quickly and get to enjoy yourself more.
In order to have good control of your diabetes, you need to practice all the tasks and scenarios. Your situation will be different
from others; only you will know what items you will need to pack. When you practice, you don’t have to think so closely about
what you’re doing, it comes to you naturally!
the section of our newsletter dedicated to the ‘tweens, teens and children
T H E G L U C O S E M O N I T O R
Goryeb Children’s Hospital at
Morristown Medical Center
Box 53
100 Madison Ave
Morristown, NJ 07962
Office Phone #: 973.971.4340
Emergency #: 888.231.5434
Fax #: 973.290.7367
Easier Prescription Refills!
There is a fast, and easy way to get your prescriptions refilled and it’s free!! Our office participates in Relay Health, a web-based secure service for requesting prescription refills. We strongly encourage patients to use Relay Health for efficient and timely renewals. Simply register online at www.relayhealth.com or provide your e-mail address
when you register for your next appointment.
Remember – After hours and weekends,
on-call physicians do not have access to your
child’s chart and cannot authorize
prescription refills.
A Pharmacist can dispense 3 days of diabetes related
supplies without a prescription; this may be an
out-of-pocket expense. It’s always best to request
your prescriptions at your scheduled diabetes
appointments, or by using Relay Health.
BD Diabetes Center for Children and
Adolescents
Think you know everything about diabetes? Check out Pierre
Pancreas and The Keytones at:
THINKLIKEAPANCREAS.COM
T H E G L U C O S E M O N I T O R
From all of us at the BD Diabetes Center…
Have a safe and Happy
Thanksgiving!!