big data in a small country from gene maps to apps€¦ · big data in a small country from gene...
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BIG DATA IN A SMALL COUNTRY FROM GENE MAPS TO APPS
-THE REGISTERS, COHORTS AND INTERACTIVE TOOLS
TOBIAS SONNE, ANDERS ERLANDSON & CARSTEN OBEL
THE FOODHOUSE, CHRISTIANSBORG, MARCH 16TH
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QUESTION OF THE DAY: HOW DO WE GET THE BEST USE OF OUR
POTENTIAL?
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BIG DATA FROM A DANISH PERSPECTIVE
• PERSONAL ID • BIOBANKS • REGISTERS • BIRTH COHORTS
• A LOT ABOUT RELATIONS
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GENETICS: RELATIONS MADE SIMPLE
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GENETICS RELATIONS MADE SIMPLE
• GWAS SAMPLE – SKIZOPHRENIA (5.5K) – AFFECTIVE (20K) – AUSTISM/ASD (16K) – ADHD (18K) – CONTROLS (25K)
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ENVIRONMENT (X GENES) RELATIONS MADE
COMPLICATED • PUBLIC REGISTERS: FIN, SWE AND DK (7,000 K)
– SIBLINGS • BIRTH COHORTS: NORWAY AND DK (200 K)
– EPIGENETICS • MUNICIPALITY INTERACTIVE COHORTS (? K)
– INTERVENTIONS
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LEARNING FROM RELATIONS
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RELATIONS THROUGH LIFE
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GROWING UP IN DENMARK
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THE BIG DANISH ISSUES
• WHY SHARE YOUR DATA? • COLLECTIVITY
– THE BEST SUPPORT/TREATMENT
• AUTHONOMY – NOT TO BE STIGMATISED
• WE USE DATA FOR THE BENEFIT OF THE USER
– USER INVOLVEMENT
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COLLECTIVE SHARING OF KNOWLEDGE
THE DANISH HEALTH AND WELLFARE SYSTEM
SOCIALE PLATFORMS
PRIVATE DRIVEN HEALTH SOLUTIONS
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QUESTION OF THE DAY: HOW DO WE GET THE BEST USE OF OUR
POTENTIAL?
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TIME FOR LUNCH AND MORE