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Binary Group at the LandWarNet Conference
"Transforming Cyber While at War"Tampa Convention CenterAugust 22-26, 2011
This document contains Binary Group, Inc. Proprietary and Confidential Business Information and is intended solely for the use and information of the client to whom it is addressed.
www.binarygroup.com
1911 N. Ft. Myer Dr, Ste 300, Arlington VA 22209
571.480.4444
The Binary Way from Strategy to Impact
• Knowing What You Know Can Help• The Team• Talking Points• Capabilities Matrix• Live Demo• Building the Traumatic Brain Injury
Knowledgebase Dashboard in the Cloud
19 August 2011 2
Knowing What You Know Can Help
• Justin (last name withheld), a relative of a Binary Group employee, suffered a Traumatic Brain Injury (TBI) in Iraq and was diagnosed with Post-Traumatic Stress Disorder (PTSD) upon his return home.
• We discovered that knowledge about TBI/PTSD is very significant in the outcome of our Wounded Warriors like Justin so we decide to develop a Knowledgebase in the Cloud for him and others for this conference using new state-of-the-art technologies.
5 April 2011 3
Knowing What You Know Can Help
• Furthermore, we suggest that DKO/AKO be mined for selected content and repurposed so that our military preserves authoritative knowledge and our Wound Warriors have a separate place where the knowledge they need is personalized for self-service care.
• The Binary Challenge is that we offer to pilot that for the DoD and VA and other Wounded Warriors like we have done here.
5 April 2011 4
The Team
19 August 2011 5
NOTE: I need the rest of your photos!
Rose Wang, CEO
Brand Niemann, Data Scientist
Talking Points
• The Binary Group provides Strategic Advice and Pilots Knowledge-Centric Systems (KCS) and Dynamic Case Management Systems (DCMS) for its clients.
• These KCS and DCMS leverage existing softwares and integrations to make them more agile and effective as knowledgebases, dashboards, Mobile Apps like for the iPad, and adaptive rules-ontology driven business activities.
• Our Pilots develop shared - collaborative services at four levels shown next with six new technologies using both your structured data and unstructured information.
19 August 2011 6
Talking Points
• Using our Expertise in these six technologies we have Piloted Traumatic Brain Injury for the LandWarNet Conference as shown in the Examples that follow.
• A unique feature of our Strategic Advice are one-to-five day workshops in which we work with our clients to architect and implement their Pilots.
• We invite you to take the Binary Group Challenge to let us work with you to produce a Pilot.
19 August 2011 7
Capabilities Matrix
Service Expertise Example1. Data - to - Knowledgebases Data Science Defense Veterans Brain Injury
Center Web Site Knowledgebase (MindTouch Wiki) and Psychological Health and Traumatic Brain Injury Research Program (MindTouch Wiki)
2. Knowledgebases - to - Semantic Search and Extraction
Semantic Science Multiple (Recorded Future, Semantic Insights Research Assistant, andVivoMind/Textrium)
3. Knowledgebases - to - Dashboards
Analytical Science Traumatic Brian Injury Dashboard (iPad for Spotfire)
4. Dashboards - to - Dynamic Case Management Solutions
Separate the Know from the Flow (But in Constant Dialogue)
Department of Defense (Office of the Inspector General and Be Informed Police Process for Dutch Government)
19 August 2011 8
1. Data-to-Knowledgebases
19 August 2011 9Wiki
This has been feed to the SemanticInsights Research Assistant forSemantic search, report writing,and ontology building.
2. Knowledgebases-to-Semantic Search and Extraction
19 August 2011 10Live Feed
See AOL Government Story
Hackers vow to destroy Facebook
3. Knowledgebases-to-Dashboards
19 August 2011 11Web Player
Everything you wanted to know about TBI
4. Dashboards-to-Dynamic Case Management Solutions
19 August 2011 12
You Tube
What Be Informed would look like in a typical police process. This demo shows how our dynamic activity plan makes it possible for the application to change by adapting the business rules.
Spotfire Dashboard
Build a TBI Knowledgebase Dashboard in the Cloud
• Google Search• Subject Matter Expertise• Knowledgebase• Unstructured to Structured Linked Open Data• Data Sets for Spotfire• Policy and Regulations for Be Informed (In
Process)
19 August 2011 13
Google Search
19 August 2011 14
http://www.google.com/search?aq=f&sourceid=chrome&ie=UTF-8&q=Traumatic+Brain+Injury
Wikipedia
Glossary
Wikipedia Media Wiki to MindTouch
19 August 2011 15
http://cloud.binarygroup.com/TBI_Research/Traumatic_Brain_Injury_Wikipedia
MindTouch is a “fork” fromMedia Wiki: Easier to useand more powerful!
We can repurpose all sortsof content into MindTouch!
Subject Matter Expertise
19 August 2011 16
http://cloud.binarygroup.com/Binary_at_LandWarNet_2011/TBI_Knowledgebase_Dashboard#Candidate_Data_Sources_for_Demo_Content
Multiple Subject MatterExperts Put Their IdeasInto the MindTouch Wiki
Knowledgebase*
19 August 2011 17
http://cloud.binarygroup.com/Binary_at_LandWarNet_2011/TBI_Knowledgebase_Dashboard
* Information Model (Ontology) and the Database (Instances) Are Together:The Architecture is Also the Application!
Unstructured Data
19 August 2011 18
http://www.brainline.org/function_pages/glossary.php
All in one page with only one Web address – not useful in a knowledgebase!
This is excellent content butit needs structure and well-defined Web addresses to beuseful in the knowledgebase. So we do that!
Unstructured to Structured Linked Open Data: Step 1
19 August 2011 19
http://cloud.binarygroup.com/Binary_at_LandWarNet_2011/The_Brain_Injury_Glossary
We have added structure and well-defined Web addresses to beuseful in the knowledgebase!
Unstructured to Structured Linked Open Data: Step 2
19 August 2011 20
http://cloud.binarygroup.com/@api/deki/files/61/=TBI.xlsx
Linked Data on the Way To Data IntegrationNote: We often do not have a Key Field like in relational database work to merge multiple tables.At least when we first start to build the knowledgebase.
Data Sets for Spotfire
19 August 2011 21
Brain Injury Glossary
PC Desktop Spotfire
Spotfire on the Web and iPad
19 August 2011 22Web Player
An Interoperability Interface forUnstructured and Structured Content!
See Spotfire Output to PowerPointIn the Remaining Slides.
Cover Page
2 March 2011 23
Build a TBI Knowledgebase Dashboard in the Cloud
DoD Annual Numbers For Tramautic Brain Injury (as of August 12, 2011)
Year
Do
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um
be
rs F
or
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um
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2000 2005 2010
30000
25000
20000
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10000
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TBI Milestones: Numerous screening safety nets to ensure capture of SMs requiring intervention
Date Location MilestoneAugust 2003 Walter Reed Army Medical Center MANDATORY TBI screening for all medically evacuated personnel, regardless of injury or illness
Summer 2005 Wilford Hall Medical Center MANDATORY TBI screening of all medically evacuated personnel
May 2006 Landstuhl Regional Medical Center MANDATORY TBI screening for all medically evacuated personnel, regardless of injury or illness
The Brain Injury Glossary As Linked Open Data
Term DefintionThe Brain Injury Glossary The Brain Injury Glossary was edited by L. Don Lehmkuhl, PhD, of the Texas Medical Center. Copyright 1992, HDI Publishers. Reprinted with permissions. Third-party reprints prohibited.
Abstract Concept A concept or idea not related to any specific instance or object and which potentially can be applied to many different situations or objects. Persons with cognitive deficits often have difficulty understanding abstract concepts.
Abstract Thinking Being able to apply abstract concepts to new situations and surroundings.
Acquired Brain Injury The implication of this term is that the individual experienced normal growth and development from conception through birth, until sustaining an insult to the brain at some later time which resulted in impairment of brain function.
Acute Care The phase of managing health problems which is conducted in a hospital on patients needing medical attention.
Acute Rehabilitation Based in a medical facility; accepts patient as soon as medically stable; focuses on intensive physical and cognitive restorative services in early months after injury; typical length of stay one week to several months (short term); identifiable team and program with specialized unit.
Acute Rehabilitation Program Primary emphasis is on the early phase of rehabilitation which usually begins as soon as the patient is medically stable. The program is designed to be comprehensive and based in a medical facility with a typical length of stay of 1-3 months. Treatment is provided by an identifiable team in a designated unit.
Adaptive Equipment A special device which assists in the performance of self-care, work or play/leisure activities or physical exercise.
ADL Activities of daily living. Routine activities carried out for personal hygiene and health (including bathing, dressing, feeding) and for operating a household.
Affect The observable emotional condition of an individual at any given time.
Agnosia Failure to recognize familiar objects although the sensory mechanism is intact. May occur for any sensory modality.
Defense Centers of Excellence for Psychological Health and Traumatic ...
2 March 2011 24
Brainline.org Topics
TopicsAll TBI Topics
About Traumatic Brain Injury
Accessibility
Advocacy
Anxiety & Stress
Assistive Technology
Behavioral & Emotional Symptoms
Brain Injury Rehabilitation
Brain Injury Symptoms
BrainLine Kids
Caregiving & Brain Injury
Coma / Vegetative State
Concussion / Mild TBI
Depression
Diagnosing & Treating Brain Injury
Employment & Training
Family Concerns
Finances
Headaches
Hospital Care
Intimate Relationships
Legal Issues
Living with Traumatic Brain Injury
Memory Problems
Military & Veterans
DVBI Web Site Map (as of August 12, 2010)
NameSite Map
2010 Brain Injury Awareness Activities
DOD Worldwide Numbers for TBI - Armed Forces Branch
DOD Worldwide Numbers for TBI - Total Diagnoses
DOD Worldwide Numbers for TBI - Severity
About DVBIC
Leadership
Job Opportunities
Newsroom
FAQs
LocationsDVBI Timeline
Year Description2011 DVBI Timeline
2010 DVBIC-Charlottesville Rehabiliation Programs (previously known as Lakeview Virginia NeuroCare, Inc) renamed
2009 3rd Annual TBI Military Training Conference held
2009 Veterans Affairs Boston Healthcare System joined DVBIC network
2009 DVBIC partnered with the Joint Chiefs of Staff on a mission to Iraq and Afghanistan, seeking to optimize and improve care of our wounded warriors with TBI and concussion
2009 DVBIC led the US delegation to the North Atlantic Treaty Organization (NATO) exploratory team on concussion/mild TBI (mTBI) to begin development of international standards
2009 Co-sponsored the scientific meeting of the International Brain Injury Association
2009 Participated in the first US-Japan TBI symposium as well as military information exchanges with both Israel and the Republic of Korea
2008 DVBIC Tele-TBI Clinic and Remote Assessment Center established
2008 Laurel Highlands Neuro-Rehabilitation Center renamed “DVBIC-Johnstown”
2008 Defense Health Board-appointed Family Caregiver Panel held first meeting
2008 Department of Veterans Affairs (VA)/Department of Defense (DoD) Evidence Based Work Group: convened to work on evidence based guidelines for mild Traumatic Brain Injury (mTBI)/concussion
Navigation and Metadata
Wiki Pages: http://cloud.binarygroup.com/Defense_and_Veterans_Brain_Injury_Center_Site_Map
http://cloud.binarygroup.com/Defense_and_Veterans_Brain_Injury_Center_Site_Map/DVBIC_Brainwaves_Newsletters
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DVBI Brainwaves Newsletters As Linked Open Data
Name URL1. DVBIC Brainwaves • Summer 2011http://cloud.binarygroup.com/Defense_and_Veterans_Brain_Injury_Center_Site_Map/DVBIC_Brainwaves_Newsletters#DVBIC_Brainwaves_.E2.80.A2_Summer_2011
1.1. Message From Jamie B. Grimes, MD COL, MC, USA National Director, DVBIChttp://cloud.binarygroup.com/Defense_and_Veterans_Brain_Injury_Center_Site_Map/DVBIC_Brainwaves_Newsletters#Message_From.C2.A0Jamie_B._Grimes.2C_MD.C2.A0COL.2C_MC.2C_USA.C2.A0National_Director.2C_DVBIC
1.2. Strategies for Restful Sleep After TBIhttp://cloud.binarygroup.com/Defense_and_Veterans_Brain_Injury_Center_Site_Map/DVBIC_Brainwaves_Newsletters#Strategies_for_Restful_Sleep_After_TBI
1.3. For Providers: New Training on Evaluating TBI- and PTSD-Related Disabilitieshttp://cloud.binarygroup.com/Defense_and_Veterans_Brain_Injury_Center_Site_Map/DVBIC_Brainwaves_Newsletters#For_Providers:_New_Training_on.C2.A0Evaluating_TBI-_and_PTSD-Related_Disabilities
1.4. PHS Officer Assumes Site Leadership at DVBIC-Johnstownhttp://cloud.binarygroup.com/Defense_and_Veterans_Brain_Injury_Center_Site_Map/DVBIC_Brainwaves_Newsletters#PHS_Officer_Assumes_Site.C2.A0Leadership_at_DVBIC-Johnstown
1.5. Two New TBI Educational Products Availablehttp://cloud.binarygroup.com/Defense_and_Veterans_Brain_Injury_Center_Site_Map/DVBIC_Brainwaves_Newsletters#Two_New_TBI_Educational.C2.A0Products_Available
1.6. DVBIC Headquarters http://cloud.binarygroup.com/Defense_and_Veterans_Brain_Injury_Center_Site_Map/DVBIC_Brainwaves_Newsletters#DVBIC_Headquarters
2. DVBIC Brainwaves • Spring 2011 http://cloud.binarygroup.com/Defense_and_Veterans_Brain_Injury_Center_Site_Map/DVBIC_Brainwaves_Newsletters#DVBIC_Brainwaves.C2.A0.E2.80.A2.C2.A0Spring_2011
2.1. Message From Jamie B. Grimes, MDhttp://cloud.binarygroup.com/Defense_and_Veterans_Brain_Injury_Center_Site_Map/DVBIC_Brainwaves_Newsletters#Message_From.C2.A0Jamie_B._Grimes.2C_MD
2.2. Help Raise Brain Injury Awareness This Monthhttp://cloud.binarygroup.com/Defense_and_Veterans_Brain_Injury_Center_Site_Map/DVBIC_Brainwaves_Newsletters#Help_Raise_Brain_Injury_Awareness_This_Month
2.3. Providers: Get Your Toolkit on Mild TBI and Co-occurring Disordershttp://cloud.binarygroup.com/Defense_and_Veterans_Brain_Injury_Center_Site_Map/DVBIC_Brainwaves_Newsletters#Providers:_Get_Your_Toolkit_on_Mild_TBI_and_Co-occurring_Disorders
2.4. Site Profile: At Fort Carson, No Soldier Left Untrainedhttp://cloud.binarygroup.com/Defense_and_Veterans_Brain_Injury_Center_Site_Map/DVBIC_Brainwaves_Newsletters#Site_Profile:_At_Fort_Carson.2C_No_Soldier_Left_Untrained
2.5. TBI Guide Available for Caregivershttp://cloud.binarygroup.com/Defense_and_Veterans_Brain_Injury_Center_Site_Map/DVBIC_Brainwaves_Newsletters#TBI_Guide_Available_for_Caregivers
2.6. DVBIC Headquarters http://cloud.binarygroup.com/Defense_and_Veterans_Brain_Injury_Center_Site_Map/DVBIC_Brainwaves_Newsletters#DVBIC_Headquarters_2
3. DVBIC Brainwaves • Winter 2010-11http://cloud.binarygroup.com/Defense_and_Veterans_Brain_Injury_Center_Site_Map/DVBIC_Brainwaves_Newsletters#DVBIC_Brainwaves_.E2.80.A2_Winter_2010-11
3.1. Message From Jamie B. Grimes, MDhttp://cloud.binarygroup.com/Defense_and_Veterans_Brain_Injury_Center_Site_Map/DVBIC_Brainwaves_Newsletters#Message_From.C2.A0Jamie_B._Grimes.2C_MD_2
Psychological Health and Traumatic Brain Injury Research Program
2 March 2011 25
Bar Chart
Fiscal Year
Sum
(Aw
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Am
ou...
2007 2009 2010 (Empty)
200000000
100000000
0
Data table:Psychological Health and Traumatic Brain Injury Research Program
Marking:Marking
Color byProgram
PH/TBI-IIRA-Broad Agency Announcement...
Psychological Health and Traumatic Brain Injury Research Program (as of August 17, 2011)
Data table:Psychological Health and Traumatic Brain Injury Research Program
Marking:Marking
Proposal Title Wiki URL Principal Investigator Publications Proposal NumberInstitutionSearch All http://cloud.binarygroup.com/Psychological_Health_and_Traumatic_Brain_Injury_Research_Program
A Blast Model of Traumatic Brain Injury in Swinehttp://cloud.binarygroup.com/Psychological_Health_and_Traumatic_Brain_Injury_Research_Program/A_Blast_Model_of_Traumatic_Brain_Injury_in_SwinePANTER, SAMUEL S PT073195 Institution: NORTHERN CALIFORNIA INSTITUTE FOR RESEARCH AND EDUCATION
A Brain-Machine-Brain Interface for Rewiring of Cortical Circuitry after Traumatic Brain Injuryhttp://cloud.binarygroup.com/Psychological_Health_and_Traumatic_Brain_Injury_Research_Program/A_Brain-Machine-Brain_Interface_for_Rewiring_of_Cortical_Circuitry_after_Traumatic_Brain_InjuryMOHSENI, PEDRAM PT090167 Institution: CASE WESTERN RESERVE UNIVERSITY
A Brain-Machine-Brain Interface for Rewiring of Cortical Circuitry after Traumatic Brain Injury1http://cloud.binarygroup.com/Psychological_Health_and_Traumatic_Brain_Injury_Research_Program/A_Brain-Machine-Brain_Interface_for_Rewiring_of_Cortical_Circuitry_after_Traumatic_Brain_Injury1NUDO, RANDOLPH J PT090167P1 Institution: KANSAS, UNIVERSITY OF, MEDICAL CENTER RESEARCH INSTITUTE, INC.
A Comprehensive Approach in Dissemination of Evidence-Based Care for PTSDhttp://cloud.binarygroup.com/Psychological_Health_and_Traumatic_Brain_Injury_Research_Program/A_Comprehensive_Approach_in_Dissemination_of_Evidence-Based_Care_for_PTSDDUFFY, FARIFTEH 2 PT073744
A Double Blind Trial of Divalproex Sodium for Affective Lability and Alcohol Use Following Traumatic Brain Injuryhttp://cloud.binarygroup.com/Psychological_Health_and_Traumatic_Brain_Injury_Research_Program/A_Double_Blind_Trial_of_Divalproex_Sodium_for_Affective_Lability_and_Alcohol_Use_Following_Traumatic_Brain_InjuryBERESFORD, THOMAS P PT075168 Institution: DENVER RESEARCH INSTITUTE
A Longitudinal Study of the Impact of Combat Deployments on Military Personnel and Their Familieshttp://cloud.binarygroup.com/Psychological_Health_and_Traumatic_Brain_Injury_Research_Program/A_Longitudinal_Study_of_the_Impact_of_Combat_Deployments_on_Military_Personnel_and_Their_FamiliesRIGGS, DAVID PT075150
A Multifunctional Blood Substitute (MBS) for Field Resuscitation of Polytrauma Combat Casualties with Brain Injury and Concomitant Hemorrhagic Shockhttp://cloud.binarygroup.com/Psychological_Health_and_Traumatic_Brain_Injury_Research_Program/A_Multifunctional_Blood_Substitute_(MBS)_for_Field_Resuscitation_of_Polytrauma_Combat_Casualties_with_Brain_Injury_and_Concomitant_Hemorrhagic_ShockMCCARRON, RICHARD PT074228
Navigation and Metadata
Web Page: http://cdmrp.army.mil/phtbi/default.shtml
Wiki Page: http://cloud.binarygroup.com/Psychological_Health_and_Traumatic_Brain_Injury_Research_Program
Data Source: http://cloud.binarygroup.com/@api/deki/files/321/=Awards.xlsx
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Knowledge-Centric System Knowledge Model
2 March 2011 26
TBI Medical Care - Reseach Ontology
Precursor Return to Duty/Disability/Reclassification Assessment Medical Capabilty Needed AttributesMedical Capabilty Needed Sub-AttributesBasic Science: 129 Studies; MODELING1. Head Injury Prevention and Protection RDT&E: Military Operational Medicine, Combat Casualty Care, Clinical and Rehabilita2ve MedicineProphylaxis, Medical Standards for Protective Equipment
2. Early Detection of Possible Head Injury RDT&E: Military Operational Medicine, Combat Casualty Care, Clinical and Rehabilita2ve MedicineObjective Measure of Head Impact Exposure
3. Head Injury Screening (DoD Guidelines RDT&E: Military Operational Medicine, Combat Casualty Care, Clinical and Rehabilita2ve MedicineValid Criteria & Objective Head Injury Screening Tool
4. Head Injury Assessment RDT&E: Military Operational Medicine, Combat Casualty Care, Clinical and Rehabilita2ve MedicinePortable or Fieldable Diagnostic Device
5. Treatment RDT&E: Military Operational Medicine, Combat Casualty Care, Clinical and Rehabilita2ve MedicineMedication Surgical Technology
6. Recovery RDT&E: Military Operational Medicine, Combat Casualty Care, Clinical and Rehabilita2ve MedicineRecovery Timecourse Rehabilitation
7. Reset RDT&E: Military Operational Medicine, Combat Casualty Care, Clinical and Rehabilita2ve MedicineValid RTD Standards & Measures
TBI Patient Care - Research Ontology
Event Education/Training Reinforcement and AssessmentMedical Capablity Needed AttributesEpidemiology / Basic Science / Neurobiological Mechanisms: 63 Studies1. Prevention/Education & Training Training, Risk Screen, Stress/Trauma, Coping Skills
Combat/Trauma Exposure 2. Early Screening/Intervention In-theater Debriefing, Decompression, Identification & Referral, Screening
3. Assessment Standard Clinical Assessments, Imaging/Biomarkers, Differential Diagnosis
4. Treatment Clinical Practice Guidelines: acute, chronic, Effective Medications, Cognitive/Behavioral Interventions
5. Recovery Recovery Protocols, Continuity of Care Models, RTD Standards
Return to Duty, MOS Change, Discharge6. Long-term Care/Follow-up Follow-up Care Model, Periodic Rescreening, Chronic/Refractory Care
Total
Navigation and Metadata
The Story:
MG James K. Gilman and/or Leslie Raulin (or their staff) knew how to do essentially a knowledge model (ontology) to describe the multiple dimensions of their work.
They captured that in slides 5 and 17 and then provided specific examples (instances) in slides 6-15 and
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Common Data Elements for TBI
2 March 2011 27
TBI Common Data Element Dictionary
CDE Name Definition / DescriptionCode List / Permissible ValuesDefinitions for Codes / Permissible ValuesDate of birth Date the participant/ subject was born
Sex Sex reported by the participant/ subjectFemale;Male;Unknown;UnspecifiedFemale; Male; Unknown; Unspecified = Undifferentiated/ Intersex
Racial category Race(s) the participant/ subject most closely identifies withAmerican Indian or Alaska Native; Asian; Black or African-American; Native Hawaiian or Other Pacific Islander; White; Unknown;Not reportedAmerican Indian or Alaska Native = A person having origins in any of the original peoples of North and South America (including Central America), and who maintains tribal affiliation or community attachment; Asian = A person having origins in any of the original peoples of the Far East, Southeast Asia, or the Indian subcontinent including, for example, Cambodia, China, India, Japan, Korea, Malaysia, Pakistan, the Philippine Islands, Thailand, and Vietnam; Black or African-American race = A person having origins in any of the black racial groups of Africa. Terms such as "Haitian" or "Negro" can be used in addition to "Black or African American."; Native Hawaiian or Other Pacific Islander = Denotes a person having origins in any of the original peoples of Hawaii, Guam, Samoa, or other Pacific Islands. The term covers particularly people who identify themselves as part-Hawaiian, Native Hawaiian, Guamanian or Chamorro, Carolinian, Samoan, Chuu; White = Denotes a person with European, Middle Eastern, or North African ancestral origin who identifies, or is identified, as White; Unknown = Could not be determined or unsure; Not reported = Not provided or available
Ethnicity Ethnicity the participant/ subject most closely identifies withHispanic or Latino; Not Hispanic or Latino; Unknown; Not reported Hispanic or Latino = A person of Mexican, Puerto Rican, Cuban, Central or South American or other Spanish culture or origin, regardless of race. Not Hispanic or Latino = A person not meeting the definition for Hispanic or Latino. Unknown = Could not be determined or unsure. Not reported = Not provided or available.
CDE Name Definition / DescriptionCode List / Permissible ValuesDefinitions for Codes / Permissible Values
Years of education Number of years of education completed
Employment status Paid employment status: Which of the following best describes the participant's/subject's job or work situation?Working at a job or business;With a job or business but not at work;Looking for work;Not working at a job or business;UnknownWorking at a job or business;With a job or business but not at work;Looking for work;Not working at a job or business;Unknown
School status Documents the type and extent of school participationGoing to school;On vacation from school (between grades);Neither;UnknownGoing to school;On vacation from school (between grades);Neither;Unknown
Marital/Partner statusCurrent marital/ partner statusNever Married; Married; Domestic partnership; Divorced; Separated; WidowedNever Married = A person who has never been married or whose only marriages have been annulled. Married = A person currently joined in matrimony. Classify common law marriage as married. Includes married couples living together and not living together. Domestic partnership = A person who is a member of an unmarried couple, including same sex couples, living together in longstanding relationships, that are registered or unregistered. Divorced = A person whose marriage has been legally dissolved and has not remarried. Separated = A person living apart from his/her spouse by legal arrangement. Widowed = A person who is no longer married because of the death of his/her spouse and who has not remarried.
Military service indicatorIndicates whether the subject/participant currently serves in the military or is a veteran of the militaryYes; No; Unknown Yes; No; Unknown
Military branch of serviceIf military, branch of serviceAirforce; Army; Marine Corps; Navy; OtherAirforce; Army; Marine Corps; Navy; Other
Military rank If military, rank Junior enlisted (lower than NCO); NCO (noncommissioned officer); Officer (and senior warrant officers); OtherJunior enlisted (lower than NCO); NCO (noncommissioned officer) = equivalent to: 'petty officer', 'unterofficer', 'corporal', 'sergeant'; Officer (and senior warrant officers); Other
Military occupation If military, combat or non-combatCombat; Non-combatCombat; Non-combat
Total number of deploymentsIf military, total number of deployments (including current)
Current injury during deploymentIf military, current injury during deployment?No; Yes; Unknown No; Yes; Unknown
CDE Name Definition / DescriptionCode List / Permissible ValuesDefinitions for Codes / Permissible Values
Medical History CategoryText term to identify a Review of Systems (ROS) component that consists of one or all members of an organ system/body region, and/or additional medical questionsCardiovascular (010); Endocrine (020); Eye, Ear, Nose, Throat (030); Gastrointestinal (040); Hematologic (050); Hepatic (060); Musculoskeletal (070); Neurologic (080); Previous TBI (089); Oncologic (090); Pulmonary (100); Psychiatric (110); Renal (120); Social History (130); Developmental History (140); Other (150)Cardiovascular (010); Endocrine (020); Eye, Ear, Nose, Throat (030); Gastrointestinal (040); Hematologic (050); Hepatic (060); Musculoskeletal (070); Neurologic (080); Previous TBI (089); Oncologic (090); Pulmonary (100); Psychiatric (110); Renal (120); Social History (130); Developmental History (140); Other (150)
Navigation and Metadata
Wiki Pages: http://cloud.binarygroup.com/Defense_and_Veterans_Brain_Injury_Center_Site_Map/Common_Data_Elements_for_Research_in_Psychological_Health_and_Traumatic_Brain_Injury
http://cloud.binarygroup.com/Defense_and_Veterans_Brain_Injury_Center_Site_Map/NINDS_Common_Data_Elements
Note: Needs Definitions of All Data Columns (in
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TBI Case Report Form (CRF) Modules As Linked Open Data
CRF Module/Guideline Description URL# of CDEsCRF Modules and Guidelines Table http://www.commondataelements.ninds.nih.gov/CRF.aspx
Demographics Contains data elements that are collected to describe the demographics of the study population relevant to traumatic brain injury research. [Examples of CDEs included: Date of birth, Gender, Race, Ethnicity, etc. (which are also part of the General CDEs)]http://www.commondataelements.ninds.nih.gov/CRFdetail.aspx?FormId=4214
Socioeconomic StatusContains data elements, beyond the basic demographic information, that are collected to further describe the traumatic brain injury study population. (Examples of CDEs included: Employment, Education, Marital/Partner status, and Military service details)http://www.commondataelements.ninds.nih.gov/CRFdetail.aspx?FormId=42910
Significant Medical HistoryContains data elements related to the study participant's/ subject's significant health history and medication history. Significant is defined as required/requiring specialist consultation and treatment. Medication history is collected in order to understand all medications taken in close proximity to the time of the traumatic brain injury.http://www.commondataelements.ninds.nih.gov/CRFdetail.aspx?FormId=4283
Behavioral History Contains data elements related to the behavioral history of the subject/participant regarding use/ consumption of tobacco, alcoholic beverages, and illicit drugs. (Examples of CDEs included: Past use and Use in last three months of Tobacco products, Alcoholic beverages, Sedatives/Sleeping pills, Cannabis, and Other drugs.)http://www.commondataelements.ninds.nih.gov/CRFdetail.aspx?FormId=42010
Definition of Traumatic Brain InjuryThis guideline serves to define Traumatic Brain Injury (TBI) and break down each element of the definition and provide symptoms/examples of each.http://www.commondataelements.ninds.nih.gov/CRFdetail.aspx?FormId=1650
Ohio State University TBI Identification Method Short FormOhio State University TBI Identification Method-Short Form (OSU TBI-ID-SF) is a shortened version of a structured interview developed using recommendations from the CDC for the detection of history of exposure to traumatic brain injury. It elicits self- or proxy-reports of TBI occurring over a person’s lifetime according to selected summary indices.http://www.commondataelements.ninds.nih.gov/CRFdetail.aspx?FormId=42515
Screening for TBI in Military PersonnelThis screening instruments contains four questions/data elements that are collected to help in screening military personnel for possible traumatic brain injury.http://www.commondataelements.ninds.nih.gov/CRFdetail.aspx?FormId=4264
Injury Presentation - Early/LateContains data elements that are collected upon arrival and admission to a hospital for a traumatic brain injury. (Examples of CDEs included: Date and time of TBI, Type of referral, Date and time of arrival first hospital, Date and time of arrival second hospital, and Reason for presentation.)http://www.commondataelements.ninds.nih.gov/CRFdetail.aspx?FormId=4235
Type, Place, Cause and Mechanism of InjuryContains data elements that describe the nature of the traumatic brain injury. (Examples of CDEs included: Type of injury, Place of injury, Cause of injury, and Type of victim in road traffic accident.)http://www.commondataelements.ninds.nih.gov/CRFdetail.aspx?FormId=4304
Injuries and Injury SeverityContains data elements related to the severity of the traumatic brain injury and any other injuries. The Highest Abbreviated Injury Scale (AIS) is used to score the severity of the injuries. (Examples of CDEs included: Highest AIS score, Head AIS score, Body region score, and Cervical spine and thoracic spine injury indicator.)http://www.commondataelements.ninds.nih.gov/CRFdetail.aspx?FormId=4226TBI Case Report Form (CRF) Guidelines
ClassificationIndicates “Core”, “Supplemental”, or “Emerging”Recommended Instrument to Assess/Measure Outcome DomainDescription of MeasureNumber and description of items and subscale structure if appropriateCode List/Permissible ValuesTotal range of scores (for GOS-E list values and labels) and range of subscales if appropriateCore Glasgow Outcome Scale (GOS) and Glasgow Outcome Scale - Extended (GOSE)The GOS is a one item scale with 5 possible ratings - Dead, Vegetative State, Severe Disability, Moderate Disability, and Good Recovery. The GOSE is a revision of the GOS that divides the upper three ratings into upper and lower categories - lower severe disability, upper severe disability, lower moderate disability, upper moderate disability, lower good recovery, upper good recovery.Ratings for the GOS range from 1 to 5 (Dead to Good Recovery). Ratings for the GOSE range from 1 to 8 (Dead to Upper Good Recovery).
SupplementalMayo-Portland Adaptability Inventory (4th edition; MPAI-4)30 items rated on a 5-point scale (0-4) ranging from normal for age to severely restricted. Items were selected to represent key indicators in three inter-related subdomains represented by three subscales: Ability Index (physical and cognitive abilities), Adjustment Index (emotional and behavioral self-regulation, interpersonal activities), Participation Index (community integration). An overall score and scores for each index may be obtained. Specified modifications to the rating scales allow the measure to be applied across the age span from childhood through adulthood.Total score range = 0-115. Raw total and index scores may be converted to T-scores with reference to a national sample of 386 individuals with brain injury.
SupplementalDisability Rating Scale (DRS)The DRS contains 8 items. The first three items ("Eye Opening," "Communication Ability", and "Motor Response" are a modification of the Glasgow Coma Scale (scored in reverse), and reflect impairment and level of consciousness. Cognitive ability for "Feeding", "Toileting" and "Grooming" reflect level of disability. "Level of Functioning" and "Employability" reflect handicap. Minimum score is 0 (without disability) and maximum score is 29 (extreme vegetative state). The first three items ("Arousability") are scored as the GCS, but in reverse (e.g., "Eye Opening" is scored 0-3, "Verbal" is scored 0-4, "Motor Response" is scored 0-5, with higher values representing greater impairment). The Cognitive ability items for "Feeding", "Toileting" and "Grooming" reflect level of disability and are scored 0-3. "Level of Functioning" is scored 0-5 and "Employability" is scored 0-3.
SupplementalShort Form-36 Medical Outcome Study (SF-36v2)The SF-36 is a generic subjective health status measure consisting of eleven items in a three to six-point Likert-scale item format. The eight subscales comprise physical functioning, physical role function, emotional role function, bodily pain, vitality, mental well-being, social functioning, and general health perception. An additional item assesses changes in health status during the last year. Two sum scores can be computed using a freely-available regression-based scoring syntax, the physical component score (PCS) and the mental component score (MCS).The scoring algorithm provides T-scores (mean = 50, SD = 10) for the eight subscales and the two composite scores (physical and mental component). Higher scores indicate better subjective health.
ClassificationIndicates “Core”, “Supplemental”, or “Emerging”Recommended Instrument to Assess/Measure Outcome DomainDescription of MeasureNumber and description of items and subscale structure if appropriateCode List/Permissible ValuesTotal range of scores (for GOS-E list values and labels) and range of subscales if appropriate
SupplementalJFK Coma recovery Scale-Revised (CRS-R)23 items comprising six hierarchically-arranged subscales addressing auditory, visual, motor, oromotor/verbal, communication and arousal functions. The lowest item on each subscale represents reflexive activity while the highest items represent cognitively-mediated behaviors. Total score range= 0-23. Diagnoses (Coma, Vegetative State, Minimally Conscious State, Emerged from Minimally Conscious State) are derived directly from subscale scores.
ClassificationIndicates “Core”, “Supplemental”, or “Emerging”Recommended Instrument to Assess/Measure Outcome DomainDescription of MeasureNumber and description of items and subscale structure if appropriateCode List/Permissible ValuesTotal range of scores (for GOS-E list values and labels) and range of subscales if appropriate
Core Rey Auditory Verbal Learning Test (RAVLT)Performance measure. 15 unrelated words repeated 5 times with recall after each presentation. Task includes immediate recall and delayed recall and recognitionTest yields a number of scores. More reliable and useful are the total score based on 5 recall trials and delayed recall.
Core Trail Making Test (TMT)It requires the examinee to connect, by making pencil lines, 25 encircled numbers randomly arranged on a page in proper sequence (Part A) and 25 encircled numbers and letters in alternating order (Part B). Scoring is expressed in terms of the time in seconds required for completion of both parts of the test.
Core Wechsler Adult Intelligence Scale III – Processing Speed Index (WAIS-PSI)Performance measure. This index is based on 2 subtests of the Wechsler Adult Intelligence Scale. For Digit Symbol, examinee must accurately fill in symbols, according to matched number-symbol pairs in a key in 120 seconds. For Symbol Search, examinee determines whether either of two target symbols match any of the symbols in a search group; examinee must respond to as many items as able in 120 seconds.The 2 subtests yield scaled scores adjusted for age with a mean of 10 and standard deviation of 3. The WAIS PS Index is based on the 2 subtests with a mean of 100 and standard deviation of 15 adjusted for age.
SupplementalBrief Visuospatial Memory Test-Revised (BVMT-R)Performance measure. Six simple geometric designs repeated over 3 trials. Score based on number of designs remembered and their location.Test yields a number of scores. More reliable and useful are the total score based on 3 recall trials and delayed recall.
SupplementalLetter-Number Sequencing subtest of the Wechsler Adult Intelligence Scale (WAIS-III)Performance measure. This is a complex span task involving simultaneous processing. The subject is presented with a mixed list of numbers and letters and their task is to repeat the list by saying the numbers first in ascending order and then the letters in alphabetical order.Performance on this measure is converted to scaled scores with a mean of 10 and standard deviation of 3. The scaled score is adjusted for age.
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Build a TBI Knowledgebase Dashboard in the Cloud
Source: Defense Centers of Excellence for Psychological Health and Traumatic Brain Injury, Captain Paul S. Hammer, MC, USN, Director, June 2, 2011, Slide Number 8. Also for DoD TBI Numbers (see to the right), Slide 9.
Wiki Pages: http://cloud.binarygroup.com/, http://cloud.binarygroup.com/The_Brain_Injury_Glossary, http://cloud.binarygroup.com/Traumatic_Brain_Injury_Wikipedia, http://cloud.binarygroup.com/Defense_and_Veterans_Brain_Injury_Center_Site_Map/DoD_Worldwide_Numbers_for_Traumatic_Brain_Injury
Created by: Brand Niemann and Binary Group Partners for the LandWarNet 2011 Conference, Tampa Convention Center, Tampa, FL, August 22-26, 2011. August 12, 2011, Updated August 20, 2011.
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DoD Annual Numbers For Tramautic Brain Injury (as of August 12, 2011)
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Term Defintion URL URL (2)The Brain Injury Glossary The Brain Injury Glossary was edited by L. Don Lehmkuhl, PhD, of the Texas Medical Center. Copyright 1992, HDI Publishers. Reprinted with permissions. Third-party reprints prohibited.http://www.brainline.org/function_pages/glossary.php
Abstract Concept A concept or idea not related to any specific instance or object and which potentially can be applied to many different situations or objects. Persons with cognitive deficits often have difficulty understanding abstract concepts.http://cloud.binarygroup.com/Traumatic_Brain_Injury_Knowledgebase/The_Brain_Injury_Glossary#Abstract_Concept
Abstract Thinking Being able to apply abstract concepts to new situations and surroundings.http://cloud.binarygroup.com/Traumatic_Brain_Injury_Knowledgebase/The_Brain_Injury_Glossary#Abstract_Thinking
Acquired Brain Injury The implication of this term is that the individual experienced normal growth and development from conception through birth, until sustaining an insult to the brain at some later time which resulted in impairment of brain function.http://cloud.binarygroup.com/Traumatic_Brain_Injury_Knowledgebase/The_Brain_Injury_Glossary#Acquired_Brain_Injury
Acute Care The phase of managing health problems which is conducted in a hospital on patients needing medical attention.http://cloud.binarygroup.com/Traumatic_Brain_Injury_Knowledgebase/The_Brain_Injury_Glossary#Acute_Care
Acute Rehabilitation Based in a medical facility; accepts patient as soon as medically stable; focuses on intensive physical and cognitive restorative services in early months after injury; typical length of stay one week to several months (short term); identifiable team and program with specialized unit.http://cloud.binarygroup.com/Traumatic_Brain_Injury_Knowledgebase/The_Brain_Injury_Glossary#Acute_Rehabilitation
Acute Rehabilitation Program Primary emphasis is on the early phase of rehabilitation which usually begins as soon as the patient is medically stable. The program is designed to be comprehensive and based in a medical facility with a typical length of stay of 1-3 months. Treatment is provided by an identifiable team in a designated unit.http://cloud.binarygroup.com/Traumatic_Brain_Injury_Knowledgebase/The_Brain_Injury_Glossary#Acute_Rehabilitation_Program
Adaptive Equipment A special device which assists in the performance of self-care, work or play/leisure activities or physical exercise.http://cloud.binarygroup.com/Traumatic_Brain_Injury_Knowledgebase/The_Brain_Injury_Glossary#Adaptive_Equipment
ADL Activities of daily living. Routine activities carried out for personal hygiene and health (including bathing, dressing, feeding) and for operating a household.http://cloud.binarygroup.com/Traumatic_Brain_Injury_Knowledgebase/The_Brain_Injury_Glossary#ADL
Affect The observable emotional condition of an individual at any given time.http://cloud.binarygroup.com/Traumatic_Brain_Injury_Knowledgebase/The_Brain_Injury_Glossary#Affect
Agnosia Failure to recognize familiar objects although the sensory mechanism is intact. May occur for any sensory modality.http://cloud.binarygroup.com/Traumatic_Brain_Injury_Knowledgebase/The_Brain_Injury_Glossary#Agnosia
Agraphia Inability to express thoughts in writing. http://cloud.binarygroup.com/Traumatic_Brain_Injury_Knowledgebase/The_Brain_Injury_Glossary#Agraphia
Alexia Inability to read. http://cloud.binarygroup.com/Traumatic_Brain_Injury_Knowledgebase/The_Brain_Injury_Glossary#Alexia
Alternative Communication Use of forms of communication other than speaking, such as: sign language, "yes, no" signals, gestures, picture board, and computerized speech systems to compensate (either temporarily or permanently) for severe expressive communication disorders.http://cloud.binarygroup.com/Traumatic_Brain_Injury_Knowledgebase/The_Brain_Injury_Glossary#Alternative_Communication
Ambulate To walk. http://cloud.binarygroup.com/Traumatic_Brain_Injury_Knowledgebase/The_Brain_Injury_Glossary#Ambulate
Amnesia Lack of memory about events occurring during a particular period of time.http://cloud.binarygroup.com/Traumatic_Brain_Injury_Knowledgebase/The_Brain_Injury_Glossary#Amnesia
Aneurysm A balloon-like deformity in the wall of a blood vessel. The wall weakens as the balloon grows larger, and may eventually burst, causing a hemorrhage.http://cloud.binarygroup.com/Traumatic_Brain_Injury_Knowledgebase/The_Brain_Injury_Glossary#Aneurysm
Anomia Inability to recall names of objects. Persons with this problem often can speak fluently but have to use other words to describe familiar objects. See also parietal lobe.http://cloud.binarygroup.com/Traumatic_Brain_Injury_Knowledgebase/The_Brain_Injury_Glossary#Anomia
Anosmia Loss of the sense of smell http://cloud.binarygroup.com/Traumatic_Brain_Injury_Knowledgebase/The_Brain_Injury_Glossary#Anosmia
Anoxia A lack of oxygen. Cells of the brain need oxygen to stay alive. When blood flow to the brain is reduced or when oxygen in the blood is too low, brain cells are damaged.http://cloud.binarygroup.com/Traumatic_Brain_Injury_Knowledgebase/The_Brain_Injury_Glossary#Anoxia
Anterograde Amnesia Inability to consolidate information about ongoing events. Difficulty with new learning.http://cloud.binarygroup.com/Traumatic_Brain_Injury_Knowledgebase/The_Brain_Injury_Glossary#Anterograde_Amnesia
Anticonvulsant Medication used to decrease the possibility of a seizure (e.g., Dilantin, Phenobarbital, Mysoline, Tegretol).http://cloud.binarygroup.com/Traumatic_Brain_Injury_Knowledgebase/The_Brain_Injury_Glossary#Anticonvulsant
Antidepressants Medication used to treat depression. http://cloud.binarygroup.com/Traumatic_Brain_Injury_Knowledgebase/The_Brain_Injury_Glossary#Antidepressants
Aphasia Loss of the ability to express oneself and/or to understand language. Caused by damage to brain cells rather than deficits in speech or hearing organs.http://cloud.binarygroup.com/Traumatic_Brain_Injury_Knowledgebase/The_Brain_Injury_Glossary#Aphasia
Apraxia Inability to carry out a complex or skilled movement; not due to paralysis, sensory changes, or deficiencies in understanding.http://cloud.binarygroup.com/Traumatic_Brain_Injury_Knowledgebase/The_Brain_Injury_Glossary#Apraxia
Arousal Being awake. Primitive state of alertness managed by the reticular activating system (extending from medulla to the thalamus in the core of the brain stem) activating the cortex. Cognition is not possible without some degree of arousal.http://cloud.binarygroup.com/Traumatic_Brain_Injury_Knowledgebase/The_Brain_Injury_Glossary#Arousal
The Brain Injury Glossary As Linked Open Data
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Date Location MilestoneAugust 2003 Walter Reed Army Medical Center MANDATORY TBI screening for all medically evacuated personnel, regardless of injury or illness
Summer 2005 Wilford Hall Medical Center MANDATORY TBI screening of all medically evacuated personnel
May 2006 Landstuhl Regional Medical Center MANDATORY TBI screening for all medically evacuated personnel, regardless of injury or illness
August 2006 Deployment of the Military Acute Concussion Evaluation (MACE) tool
January 2007 In-Theater Clinical Practice Guidelines (Version 1.0)
Aptil 2007 VA Facilities MANDATORY TBI screening
January 2008 Post-deployment Health Assessment & Reassessment (PDHA & PDHRA)Addition of TBI screening questions
Aptril 2009 VA/DoD/DCoE Evidence Based guidelines for mild TBICognitive rehabilitation consensus conference and clinical guidance package developed
May 2009 Pre-deployment Requirements Mandatory cognitive baselines on SMs (NCAT/ANAM)
June 2010 DCoE initiated Directive Type Memorandum (DTM) #09-033
TBI Milestones: Numerous screening safety nets to ensure capture o...