brisbane health-y data: licensing health and sensitive data
TRANSCRIPT
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Licensing Sensitive Data: Intros, Options, & Open-’ness’
Sarah Olesen ([email protected])
16 March 2016
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What is a licence?
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• A licence sets out how data can be (re)used and attributed
• All Australian data intended for reuse should have a licence
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What is a licence?
3Screenshot from: researchdata.ands.org.au
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What is a licence?
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Why apply a licence?
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• Promotes re-use and enables collaboration
• Gives owner control and credit
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How do I choose the right one?
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1. To apply a license you must have the rights to do soAre you the ‘owner’? (see your local IP policies)
2. Choose ‘most open’ licence you can
Creative Commons suite – 6 licences http://www.ausgoal.gov.au/creative-commons-v4.0 All are ‘OPEN’ licences allow some form of redistribution,
more/less restrictions on changing the data and licensing derivative work
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Consent? (For what?)
Potential for harm/discrimination?
Data modified to address identification, limit harm?
HREC approval
How open can I be?
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Spectrum of open-ness
8Screenshot from http://libguides.library.curtin.edu.au/
Open Closed
Conditional access
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‘Open / Shared / Closed: The world of data’CC-BY-SA Open Data Institute link
https://vimeo.com/125783029
Open Access vs. Conditions to access
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When CC licence not suitable
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Restrictive Licences can ‘bespoke’ your conditions of access and use
http://www.ausgoal.gov.au/restrictive-licence-template
*Check with your DM support, School/Department/Institution to see if one already exists for you to repurpose
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How do I apply a licence?
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• You must ‘own’ the data to apply the licence
• Look at your institution/s IP policies
• When partnering: agree – before collecting the data –who can apply the licence and what that licence will be.
• Include this info in HREC application
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http://www.ands.org.au/datamanagement/sensitivedata.html
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How do I apply a licence?
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• Just apply the marking (image) and/or statement
• http://creativecommons.org/about/downloads• http://www.ausgoal.gov.au/sample-copyright-notices
• Make it visible on the document, repository record, and/or attached to the data
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Take away
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• Take control! Be clear about who may reuse your data and for what purpose
• Where no licence is applied, uncertainty may lead to no reuse or inappropriate use
• Ensure you get the attribution you deserve
• Conditional access is a good option for sensitive health data
Gerry Ryder, ANDS e-RSA Seminar, Mar 26, 2015
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This work is licensed under a Creative Commons Attribution 4.0 International License
ANDS is supported by the Australian Government through the National Collaborative Research Infrastructure Strategy (NCRIS).