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Camden Integrated Digital Record (CIDR)

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Page 1: Camden Integrated Digital Record (CIDR)...Camden Integrated Digital Record (CIDR) • Camden CCG has developed an online record that links health and social care data together, working

Camden Integrated Digital Record (CIDR)

Page 2: Camden Integrated Digital Record (CIDR)...Camden Integrated Digital Record (CIDR) • Camden CCG has developed an online record that links health and social care data together, working

CIDR

Camden Integrated Digital Record (CIDR)

• Camden CCG has developed an online record that links health and social care data

together, working in partnership with health and social care providers in Camden. This is

called the Camden Integrated Digital Record (CIDR) system.

• A joined up digital record allows health and social care professionals to view vital

information about you at the right time, and place, to provide you with the best possible

care.

Page 3: Camden Integrated Digital Record (CIDR)...Camden Integrated Digital Record (CIDR) • Camden CCG has developed an online record that links health and social care data together, working

The CIDR system currently includes health and social care data from these different sources:

• Camden GPs

• University College London Hospitals (UCLH)

• Royal Free Hospital NHS Foundation Trust (RFH)

• Central and North West London NHS Foundation Trust (CNWL)

• Camden and Islington Foundation Trust (C&I)

• Coordinate My Care (CMC) (part of the Royal Marsden NHS Foundation Trust)

• London Borough of Camden (LBC)

What is an integrated digital record?

Page 4: Camden Integrated Digital Record (CIDR)...Camden Integrated Digital Record (CIDR) • Camden CCG has developed an online record that links health and social care data together, working

Benefits

What are the benefits of having an integrated digital record?

There are a number of benefits to linking up health and social care information into an integrated

digital record. These include:

Health and social care professionals being able to access the information required to provide

optimal care for you.

Potential safety benefits - as health and social care professionals will be more aware of important

information such as what prescription medications you are taking etc.

You will not have to repeat information about yourself to multiple different professionals -

improving your care experience.

Page 5: Camden Integrated Digital Record (CIDR)...Camden Integrated Digital Record (CIDR) • Camden CCG has developed an online record that links health and social care data together, working

CIDR Case Study

Page 6: Camden Integrated Digital Record (CIDR)...Camden Integrated Digital Record (CIDR) • Camden CCG has developed an online record that links health and social care data together, working

CIDR

Ethel’s Camden GP

University College London

Hospital (UCLH)

Ethel’s test

results View

Page 7: Camden Integrated Digital Record (CIDR)...Camden Integrated Digital Record (CIDR) • Camden CCG has developed an online record that links health and social care data together, working

CIDR

Royal Free Hospital A&E

Medications, allergies

and adverse reactions to

medications from Ethel’s

GP Record

View Warfarin and bad

reaction to morphine

Page 8: Camden Integrated Digital Record (CIDR)...Camden Integrated Digital Record (CIDR) • Camden CCG has developed an online record that links health and social care data together, working

CIDR

Hospital Discharge Team

View Contact details for

Ethel’s care team

Adult Social Care

Royal Free

Hospital Ethel’s Home

Page 9: Camden Integrated Digital Record (CIDR)...Camden Integrated Digital Record (CIDR) • Camden CCG has developed an online record that links health and social care data together, working

View

Ethel’s Occupational

Therapist

Community

Care

View

Ethel’s Camden GP

Adult Social Care

Occupational

Therapist details

Ethel receives the

care she needs to be

safe at home

Ethel's’ community

care information

Page 10: Camden Integrated Digital Record (CIDR)...Camden Integrated Digital Record (CIDR) • Camden CCG has developed an online record that links health and social care data together, working

Confidentiality and Security

The CIDR system is designed to provide a high level of both confidentiality and security to the

information that it holds. This includes the transfer, viewing and storage of all information in a secure

environment.

Access to the system and records within this are only provided to approved and authorised users which

are validated by their respective organisations. Access is based on their role and responsibility within

their respective organisation.

Access is limited to only users who have an approved N3 connection.

Access and use of the CIDR system is auditable in regards to access and usage of the system. The

internal audit functions have been developed line with the NHS Care Record Guarantee

Page 11: Camden Integrated Digital Record (CIDR)...Camden Integrated Digital Record (CIDR) • Camden CCG has developed an online record that links health and social care data together, working

Confidentiality and Security Only authorised health and social care professionals are permitted to use the CIDR system. There is a

robust process for professionals to be authorised by their organisation before their access is approved.

Staff with permission to use CIDR can only view your record once you have given consent for the

approved organisation to do so.

When a care professional views your record they will only be able to see information available to support

delivering care to you at that time.

All access is strictly monitored to ensure it is appropriate and legitimate.

In emergency cases, where time is limited and pre-defined justifications are met, a care professional may

view a record without explicit consent from the individual (e.g. there is clinical urgency and the individual is

unconscious).

Page 12: Camden Integrated Digital Record (CIDR)...Camden Integrated Digital Record (CIDR) • Camden CCG has developed an online record that links health and social care data together, working

• Yes you can.

• The CIDR system is designed to support your individual wishes in relation to both the creation

of a record and the level of information available.

• You can opt out entirely or you can reduce specific information that can be viewed in the

system.

• If you want to opt out, at any time you can discuss this with you GP practice.

• Alternatively, you can speak to your local NHS Trust (e.g. UCLH, RFH, CNWL and C&I) or the

Camden Council, to stop specific information from being included.

Can I choose not to have an integrated record?

Page 13: Camden Integrated Digital Record (CIDR)...Camden Integrated Digital Record (CIDR) • Camden CCG has developed an online record that links health and social care data together, working

Questions ?

Page 14: Camden Integrated Digital Record (CIDR)...Camden Integrated Digital Record (CIDR) • Camden CCG has developed an online record that links health and social care data together, working

• Posters and leaflets in practice, pharmacies, libraries

• Slide show and a version of the poster for your practice TV screen

• Communications pack for all practices including FAQ’s

• CCG website contains information and FAQs for the public.

• Patient survey underway

• Patient leaflet (currently being tested with patients)

Communications

Page 15: Camden Integrated Digital Record (CIDR)...Camden Integrated Digital Record (CIDR) • Camden CCG has developed an online record that links health and social care data together, working

Resident feedback

• Commissioned community researchers to survey 270 residents across

Camden

• Asked a series of questions to gather awareness of CIDR, views and

opinions on consent and the benefits to integrating records.

• Tested the patient leaflet (to be sent to all Camden residents registered

with a GP) and have incorporated feedback

• In six months will re-survey Camden residents to gauge feedback from

public awareness campaign

• Following slides snapshot of feedback

Page 16: Camden Integrated Digital Record (CIDR)...Camden Integrated Digital Record (CIDR) • Camden CCG has developed an online record that links health and social care data together, working

Base: All respondents (263)

No reply

1%

Yes

25%

No

70%

Not sure

4%

Q3) Are you aware of the Camden Integrated Digital Record?

Page 17: Camden Integrated Digital Record (CIDR)...Camden Integrated Digital Record (CIDR) • Camden CCG has developed an online record that links health and social care data together, working

Yes, I would give consent

72%

No, I would not give consent

16%

Not sure

12%

Q4) Based on this information, do you think you would give consent for a health professional to view your CIDR record inyour presence?

Page 18: Camden Integrated Digital Record (CIDR)...Camden Integrated Digital Record (CIDR) • Camden CCG has developed an online record that links health and social care data together, working

No reply

1%

Yes, I would give consent

69%

No, I would not give consent

13%

Not sure

17%

Q7) Having now read the leaflet, do you think you would give consent for a health professional to view your CIDR recordin your presence?

Page 19: Camden Integrated Digital Record (CIDR)...Camden Integrated Digital Record (CIDR) • Camden CCG has developed an online record that links health and social care data together, working

View

Ethel’s Occupational

Therapist

Community

Care

View

Ethel’s Camden GP

Adult Social Care

Occupational

Therapist details

Ethel receives the

care she needs to be

safe at home

Ethel's’ community

care information

Page 20: Camden Integrated Digital Record (CIDR)...Camden Integrated Digital Record (CIDR) • Camden CCG has developed an online record that links health and social care data together, working

• There is a CIDR website you can visit for more information: cidrportal.camdenccg.nhs.uk

• Camden CCG will publish information about any changes and developments to the CIDR system on the

website.

• If you can’t find the information you need on the CIDR website, you can use the ‘Feedback’ form on the

website to contact the CIDR team at Camden CCG. Or, you can email the team directly:

[email protected]

Where can I go for further information?

Page 21: Camden Integrated Digital Record (CIDR)...Camden Integrated Digital Record (CIDR) • Camden CCG has developed an online record that links health and social care data together, working

Questions ?