carlos rocha registry manager national cancer registration service (south west) west dean...

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Carlos Rocha Registry Manager National Cancer Registration Service (South West) West Dean Registration Improvement of Non- Melanoma skin cancer

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North West London West Midlands South West Northern & Yorkshire East Midlands Eastern Oxford Prior to Regional Offices 8 independent systems

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Page 1: Carlos Rocha Registry Manager National Cancer Registration Service (South West) West Dean Registration Improvement of Non-Melanoma skin cancer

Carlos RochaRegistry Manager

National Cancer Registration Service (South West)West Dean

Registration Improvement of Non-Melanoma skin cancer

Page 2: Carlos Rocha Registry Manager National Cancer Registration Service (South West) West Dean Registration Improvement of Non-Melanoma skin cancer

Background

Page 3: Carlos Rocha Registry Manager National Cancer Registration Service (South West) West Dean Registration Improvement of Non-Melanoma skin cancer

North West

London

West Midlands

South West

Northern & Yorkshire

East Midlands

Eastern

Oxford

Prior to 20138 Regional Offices

8 independent systems

Page 4: Carlos Rocha Registry Manager National Cancer Registration Service (South West) West Dean Registration Improvement of Non-Melanoma skin cancer

North West

London

West Midlands

South West

Northern & Yorkshire

East Midlands

Eastern

Oxford

2013 - 2015

Encore

Page 5: Carlos Rocha Registry Manager National Cancer Registration Service (South West) West Dean Registration Improvement of Non-Melanoma skin cancer

Radiotherapy

Pathology

PAS

CWT

Chemo

Radiology

COSD / MDT

Open Exeter

Encore

Audit

NH

S A

cute

Tru

st Reg

iona

l Offi

ce

ONS

Oxford

Death Cert

Page 6: Carlos Rocha Registry Manager National Cancer Registration Service (South West) West Dean Registration Improvement of Non-Melanoma skin cancer

Pathology

Page 7: Carlos Rocha Registry Manager National Cancer Registration Service (South West) West Dean Registration Improvement of Non-Melanoma skin cancer

What do we record at the moment?

• First occurrence of a BCC • First occurrence of an SCC• Link all subsequent data to the first occurrence e.g.

• Pathology• Surgery• Treatment e.g. radiotherapy

Page 8: Carlos Rocha Registry Manager National Cancer Registration Service (South West) West Dean Registration Improvement of Non-Melanoma skin cancer

Why do we do it this way?

• Resource• 2009 South West skin project:

• 5,385 SCC’s (1,520 extra cases)• 25,981 BCC’s (11,960 extra cases)

To process all NMSC cases manually for the whole of England the NCRS would need to employ an extra c.20 WTE registration officers.

But…not very efficient and we don’t really know the gap between what we receive and what we should be receiving!

Page 9: Carlos Rocha Registry Manager National Cancer Registration Service (South West) West Dean Registration Improvement of Non-Melanoma skin cancer

Project Aims

Page 10: Carlos Rocha Registry Manager National Cancer Registration Service (South West) West Dean Registration Improvement of Non-Melanoma skin cancer

What?

• Identify how many BCC + SCC reports we are receiving from each trust

• Liaise with trusts to determine whether we are receiving all reports, if not, how can we resolve this?

• Which histopathologists are/are not using proforma reporting?

• Why are some histopathologists not using proforma reporting and how do we encourage them to do so?

• How many BCC + SCC records are submitted in COSD submissions?

• How does the NCRS then identify proforma reports, provide initial feedback on pathology + COSD and then process them more efficiently in ENCORE?

Page 11: Carlos Rocha Registry Manager National Cancer Registration Service (South West) West Dean Registration Improvement of Non-Melanoma skin cancer

Who?

Michael Eden – Histopathologist (Cambridge University Hospitals NHS Foundation Trust

Karen Graham – Head of Data Improvement (NCRS)

Carlos Rocha – Registry Manager (NCRS South West)

Josie Horne – Data Quality Manager (NCRS South West)

Reporting to:

Dr Jem Rashbass – Director, Disease Registration, PHE

Page 12: Carlos Rocha Registry Manager National Cancer Registration Service (South West) West Dean Registration Improvement of Non-Melanoma skin cancer

Where do we want to be?

• Complete and consistent SNOMED coding on all Pathology reports.

• Trust Pathology extract criteria identifies all non melanoma skins.

• Proforma reporting on all non melanoma skin cancers (COSD xml pathology extracts will help with this).• NCRS record each and every occurrence of BCC + SCC by

processing the majority of pathology reports and COSD data automatically.

• Using the COSD reporting process to provide feedback on the completeness of the data (both submitted and processed).

• Detailed reports purely for NMSC.

Page 13: Carlos Rocha Registry Manager National Cancer Registration Service (South West) West Dean Registration Improvement of Non-Melanoma skin cancer

How many BCC & SCC reports are we receiving?

Page 14: Carlos Rocha Registry Manager National Cancer Registration Service (South West) West Dean Registration Improvement of Non-Melanoma skin cancer

BCC and SCC pathology reports received by the NCRS June ‘14

to May ‘15

North West

London

West Midlands

South West

Northern & Yorkshire

East Midlands

Eastern

Oxford

EncoreSCC: 3,055BCC: 13,716

SCC: BCC: SCC: 6,258

BCC: 22,370

SCC: 5,463BCC: 17,447

SCC: 1,717BCC: 6,099

SCC: 3,688 BCC: 13,441

SCC: 3,840 BCC: 14,387

SCC: 5,115BCC: 20,854

Page 15: Carlos Rocha Registry Manager National Cancer Registration Service (South West) West Dean Registration Improvement of Non-Melanoma skin cancer

Thank you!

Any further questions:[email protected]