cdc ehdi resources for states. cdc ehdi website cdc ehdi website purpose: to provide up-to-date
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CDC EHDI RESOURCES
for States
CDC EHDI Website CDC EHDI Website http://www.cdc.gov/ncbddd/ehdi/http://www.cdc.gov/ncbddd/ehdi/
Purpose:
To provide up-to-date information about EHDI-related topics, issues, and research to parents, professionals, and other interested parties.
Outline:
•World of EHDI
•Professionals and Parents
•Research, Findings, and State Data
•What CDC EHDI Does
http://www.cdc.gov/ncbddd/ehdi/http://www.cdc.gov/ncbddd/ehdi/
States Awarded 2001 CDC FundingStates Awarded 2001 CDC Funding
CDC EHDI WebBoardCDC EHDI WebBoardhttp://ehdi.forum.cdc.gov/http://ehdi.forum.cdc.gov/
Purpose: To facilitate the sharing of documents, announcements, and other relevant information between the CDC EHDI Program and its state grantees.
• CDC Announcements • Family Issues Committee • Using the WebBoard • Special Topic Calls • Conference Call Schedules • General Information & Articles • Executive Committee • Meeting Transcripts • Data Items Committee • Cooperative Agreements
Reviewing a messageReviewing a message
Posting a messagePosting a message
Attaching a fileAttaching a file
Joining the WebBoard
• Each state is welcome to have a representative on the CDC EHDI WebBoard. If your state is currently not a member and is interested in being represented please contact:
• Marcus Gaffney at [email protected] or (770) 488-3504
EHDI Listserv & Contact ListEHDI Listserv & Contact ListGeneral Listserv:
An e-mail list used to send EHDI information to representatives in states & territories with a CDC Cooperative Agreement.
EHDI Contact List: A directory of EHDI personnel at the CDC and in thestates with cooperative agreements.
Outline:•Name •Phone Number•Organization •Fax Number•Mailing Address •E-Mail Address
DSHPSHWA DataDSHPSHWA DataPurpose:
To give a perspective about the status of hearing
screening and intervention efforts among states
and territories.
Items asked: • # Infants screened
• # Infants referred for evaluation
• # Infants identified with a hearing loss
• # Infants enrolled in intervention
• # Birthing hospitals and UNHS hospitals
• Type and severity of identified cases of hearing loss
• Legislation status
2000 DSHPSHWA Form2000 DSHPSHWA Form
CDC EHDI Ad-Hoc TeleconferencesCDC EHDI Ad-Hoc Teleconferences
Purpose:
To serve as a forum in which people involved with newborn hearing screening and/or intervention can present, discuss, and share thoughts about EHDI issues, ideas, and activities with others.
Past topics have included: Data Integration, Family Issues, Cochlear Implants
AD-HOC Transcripts on the EHDI websiteAD-HOC Transcripts on the EHDI website
Summary of State EHDI Summary of State EHDI Family ResourcesFamily Resources
Purpose:
To serve as a reference guide
of information detailing each
state’s materials for families
of children who are screened,
referred for diagnostic evaluation,
and/or identified with a hearing
loss.
State EHDI Family ResourcesState EHDI Family Resources
Details state family resources concerning:• Structures of the ear• Definitions & causes of hearing loss• Impact of hearing loss on language and speech• Communication approaches & assistive technologies• Parenting a child with a hearing loss• Local & national resources• Availability in languages other than English
State EHDI Websites and State EHDI Websites and Protocol LinksProtocol Links
Purpose:
To provide information about which states have an EHDI website and/or links to information about state protocols for screening, assessment, etc…
Categories:
•Website •Early Intervention
•Screening •Medical
•Assessment •Family Resources
•Amplification •Genetics
EHDI Guidance ManualEHDI Guidance Manual
Purpose:
A guide for state health departments that are starting a new EHDI program or already have an EHDI program.
It is intended to:
1) Help plan and evaluate EHDI programs.
2) Provide recommendations about uniform data
collection and reports for monitoring EHDI program objectives.
EHDI Guidance ManualEHDI Guidance ManualSection 1: Planning & Evaluation
• Chapter 1 – Approach to Planning & Evaluation• Chapter 2 – Vision,Goals, & Performance Indicators• Chapter 3 – State EHDI Annual Report
Section 2: Data for Tracking & Evaluation
• Chapter 4 – Database & Information Systems• Chapter 5 – Tracking Infants & Children for EHDI
Screening & Referral
EHDI Guidance ManualEHDI Guidance Manual
Section 2: Data for Tracking & Evaluation (Cont.)
• Chapter 6 – Tracking Infants & Children for EHDI Diagnostic Evaluation & Referral
• Chapter 7 – Tracking Infants & Children for Intervention Services
• Chapter 8 – Registry of Infants & Children with Hearing Loss
• Chapter 9 – Privacy & Confidentiality of Data
EHDI Guidance ManualEHDI Guidance Manual
Section 3: Integration with Child Health Systems
• Chapter 10 – Links Between EHDI & Other State Health Departments
• Chapter 11 – Operating EHDI Screening, Referral, & Audiologic Services as Part of an Integrated Children Services Program
• Chapter 12 – Integration of Prevention & Medical Services for Infants
• Chapter 13 – Medical Home for Children• Chapter 14 – EHDI Websites
State ProfileState Profile
Purpose:
The state profile is a
repository of information
available to state health
departments, other
government agencies, and
those interested in learning
more about EHDI programming.
State ProfileState Profile
Chapters:1. State Program Information
2. State Legislation
3. State Program Description
4. State Program Funding
5. Screener Training
6. Hospital-Based Newborn Hearing Screening Programs
7. Hospital Newborn Hearing Screening: Data Reporting
8. Outpatient Re-Screening & Diagnostic Evaluation
9. Outpatient Re-Screening & Diagnostic Evaluation: Data
Reporting
State ProfileState Profile
Chapters (Cont.):10. State EHDI Screening Database
11. Early Intervention Services
12. Early Intervention: Data Reporting
13. Hearing Loss Registry
14. Reimbursement/Payment Policies
15. Medical Home
16. Coordinating EHDI Infant Tracking with Other States
17. Coordination with Other State EHDI Programs
18. Healthcare Promotional Items
19. Family Issues