center for hospice, palliative care & end-of-life studies at...
TRANSCRIPT
Center for Hospice, Palliative Care & End-of-Life Studies
at USF
13201 Bruce B. Downs Blvd., MHC 1305A, Tampa, FL 33612 813-974-9808
Mission Statement
The mission of the Center is to optimize care and systems of TTcare for patients and families faced with non-curable diseases
by generating new knowledge through interdisciplinary
research, using that knowledge to educate health and human
service professionals,
quality end of life care.
The USF Center for Hospice, Palliative Care & End-Of-Life Studies
Center for Hospice, Palliative Care &End-of-Life Studies at USF
2005 Annual Report
Other Center members are making headlines as well.
Kathleen Egan, MA, BSN, CHPN,Community Director of theCenter,Magno Excellence in Education and Leadership Award at the 7th
2005, at Capital Hospice, Falls Church, Virginia.
cal trial conducted by SusanMcMillan, PhD, ARNP, FAAN inthe journal Cancer in December
patients with cancer, and was conducted in collaboration with Center members Brent Small, PhD; Ronald Schonwetter, MD; and William E.
National Cancer Institute and the National Insti
lated to patients’ symptoms and caregiving tasks.
The Center is increasingly visible in our local area as well as regionally and nationally. An article about the Center and hospice care was published in MD News in November 2005. The Center’s
“Quality and Meaning at the End-of-Life: Practice, Research and Policy,” was attended
Southeast region and around the country.
Executive Summary
T
students associated with our Center.
Allison Burton, PhD, Center Graduate Research Assistant in 2001, has been appointed as
helping her to develop a training program dur
opportunities made available to her. Dr. Burton is
Elissa Foster, PhD,toral student in the Department
a Center Pilot Research Grant in
unteers.” Dr. Foster has written a book about her experiences entitled, “Communication and
Finding Magic in the Mundane,” which will be published in June 2006 by Lawrence Erlbaum Publishers. Dr. Foster is currently an Assistant
McMillan, PhD, RN, FAAN presented a work
Memphis, presented a workshop on process in
petitively selected research papers, and plenary
services.
chaired by Lori Roscoe, PhD, is planning our Building Bridges: Interdisciplinary
Paths to Palliative & End-of-Life Care for People with
Diverse Conditions (Cancer, Dementia and Heart Disease),the Renaissance Tampa Hotel International Plaza
Center—Susan McMillan, PhD, RN, FAAN; William Haley, PhD; and Ladislav Volicer, MD, PhD.
The Center has a new website, www.eolcenter.usf.edu,
as links to our community partners and other
William E. Haley, PhDCenter Academic Director
Professor and Director,School of Aging Studies
Kathleen Egan, MA, BSN, CHPNCenter Community DirectorVice President,The Hospice
Institute of the Florida Suncoast
Executive Committee & Staff
The Center is governed by an Executive Committee representing community providers and university
2006 Executive Committee
Academic Partners
William Haley, PhDAcademic Director
Iraida Carrion, MSW, LCSW
June Leland, MDJames A. Haley Veterans Hospital
Susan McMillan, PhD, ARPN, FAAN
Hana Osman, PhDCommunity and Family Health
Lori Roscoe, PhD
Staff
Nancy Hallford
2006 Executive Committee
Community Partners
Kathleen Egan, MA, BSN, CHPNCommunity Director
Suncoast
Kristine Donovan, PhD
Research Institute
Christina Gallagher, PhDHope Hospice and Palliative Care, Inc.
Sehwan Kim, PhD
Joseph Polubinski, PhD
Suncoast
Ronald Schonwetter, MD
Debra French, RN, MS, CSTideWell Hospice and Palliative Care
David Weiland, MD
Center Partners
University of South Florida
Health Sciences Center
H. Lee Moffitt Cancer Center
& Research Institute
• Founding Partners • • Sponsors •
The Hospice of Florida Suncoast TideWell Hospice and Palliative Care
Lifepath Hospice & Palliative Care, Inc. Hope of Southwest Florida
The Center’s Community PartnersThe Center’s Community Partners are com
TideWell Hospice and Palliative Care—as well at
H. Lee Moffitt Cancer Center & Research Institute
nated Comprehensive Cancer Center and serves
many exemplary research and clinical departments is its Psychosocial and Palliative Care Program. The program is designed to address the emotional, social, spiritual, and physical needs
provided by a multidisciplinary team comprised
work, hospital chaplaincy, clinical psychology,
rology, and pain management. Other services provided through the Psychosocial and Palliative
groups, rehabilitative services, the Arts in Medicine Program, the Integrative Medicine Program, and Families First Program, a program designed
The Center’s Hospice PartnersThe hospices that are partners in the Center
5,790 patients in 2005.
community partner hospices is described below.
The Hospice of Florida Suncoast
Pinellas County who were dedicated to improv
committed volunteers.The Hospice mission centers on patients and
well as providing comprehensive hospice and
comfort
– relief from pain and suffering – lessening anxious-ness – enhancing quality of life. Counseling and
lies are assisted as they become caregivers and
As a community hospice in tune with its neighbors, The Hospice provides individual
County, as well as various training and education
has always been directed by the philosophy that
its mission, developing innovative programs and services based upon their expressed needs and desires.
LifePath Hospice & Palliative Care, Inc.
pice in Hillsborough County and Good Shepherd
Hospice in Polk, Highlands and Hardee counties.
pice and Palliative Care, Inc. is to make the most
pice in the nation, LHPC continues to be a leader in program development, research and other
counties.
patients to LHPC and 172 nursing homes and
acute inpatient unit in Temple Terrace, ground
pice House at Palm Terrace in Lakeland, which was damaged and closed due to the devastating
consult service opened in 2005 with a partnership
A partnership with the National Hospice and Pal
communities. A $100,000 grant was awarded by
reavement and caregiver programs in that area.
cal, psychosocial and etiological research that
clinical trials in cooperation with major universities and a pharmaceutical company. Other intramural research projects conducted in 2005
among Hospice Patients.
Hope of Southwest FloridaHope of Southwest Florida
complex needs related to transitions, loss and
Hope Hospice, which enables seriously ill pa
Pathways of Hope, a community counseling
support groups, psychotherapy, crisis management, burnout prevention, consultation, training and education and supports schools, businesses,
other community organizations.
Hope LifeCare,
provided by a nursing home.
TideWell Hospice and Palliative CareTideWell Hospice and Palliative Care is a private,
sive care and services in hospice and palliative
and Saratsota counties. Emphasizing choice and
rpoviding direct support, education, and research at local state, and national levels. In addition,
through Journeys HomeCare and through Tran-sitions,hospice clients.
TideWell Hospice and Palliative Care is diligent in its commitment to the communities it serves.
reach.
TideWell Hospice and Palliative Care believes in
and palliative care with all its communities. Gen
a new emphasis on experiential learning oppor
medical colleges.
verse bereavement programs to all communities. Children and adolescents participate in school programs, camps, and individual and group support programs. Adults are supported with their
programs and in specialized classes including ex
MembersI
research and practice.
Committees
Executive Committee
Deborah French, RN, MS, CS, Administrative
Conference Planning Committee
tee, chaired by Lori Roscoe, PhD, was actively
Diverse Conditions (Cancer, Dementia, and Heart
PhD; David McGrew, MD; Susan C. McMillan, PhD, ARPN, FAAN; Cynthia Myers, PhD, LMT; Ronald Schonwetter, MD; and Ladislav Volicer, MD, PhD.
Susan McMillan, PhD, ARPN, FAAN; Hana Osman, PhD; Joseph Polubinski, PhD; Mary Lou Proch, EdD; Jocelyn Rowe, MD; Ronald Schonwetter, MD; and Ladislav Volicer, MD, PhD.
Research Committee
The Research Committee reviews abstracts
Committee was chaired by Susan McMillan, PhD, ARPN, FAAN; who was then succeeded by Joseph Polubinski, PhD. Members include Susan
and Brent Small, PhD.
Active Grant Projects
Psychosocial Impact of Stroke on Family CaregiversDavid Roth, PhD, (UAB)
William Haley, PhD
Caregivers of Cancer Pain Patients: Coping Intervention Susan McMillan, PhD,
ARNP, FAANBrent Small, PhD; Kristine
Donovan, PhD
Use of Standardized Assesssments to Improve Hospice Outcomes
Susan McMillan, PhD, ARNP, FAAN
William Haley, PhD; Brent Small, PhD; Ronald Schonwetter, MD
$1,700,000
Florida’s Minority Elders: An Assessment of Physical and Mental Health Service Needs
Jennifer Salmon, PhD; Kathryn Hyer, PhD
William E. Haley, PhD
USF Scholars in Patient-Oriented Research
Susan C. McMillan, PhD, ARNP, FAAN
Prospective Study of Sexual Health in Early Cervical Cancer
Kristine A. Donovan, PhD
American Cancer Society Mentored Research
Post-doctoral Public Sector Interdisciplinary TrainingVictor Molinari, PhD
William E. Haley, PhD
$667,767
University of South Florida Education and Information Core
Grant)
Huntington Potter, PhDWilliam E. Haley, PhD
Cognitive-Behavioral Aspects of Cancer-Related FatigueKristine A. Donovan, PhD
Istudies. Center members are indicated in bold type. Grants that were awarded or active during 2005
Massage Therapy for Children, Adolescents, and Young Adults at End of Life
Cynthia D. Myers, PhDSehwan Kim, PhD
Home-Based Massage and Relaxation for Sickle Cell Pain
Cynthia D. Myers, PhD
$250,000
Examining Disparities in Advance Care Planning Among Poor Elders in Southwest Florida
Kathy Black, PhDHana Osman, PhD; Sandra Reyn
olds, PhD
$20,000
Living with Memory Impairment—Assessing the Needs of Families with Mild Cognitive Impairment
William E. Haley, PhD
the Johnnie B. Byrd Sr. Alzheimer’s Center and Research Institute
Predictors of Sexual Heaalth in Early Stage Cervical Cancer
Kristine A. Donovan, PhD
$20,000American Cancer Society Institutional Grant
Understanding Communication about Symptoms in Children with Serious Illness
Cynthia Myers, PhD (Consultant)
Glaser Pediatric Research Network
2005 Center Meeting Presentations
January 25, 2005
Jennifer Salmon, PhD,andKathleen Egan, MA, BS, CHPN, The Hospice
March 22, 2005
Ladislav Volicer, MD, PhD
“Palliative Care for Individuals with a Progressive Degenerative Dementia”
May 24, 2005
Lora Azzarello, PhD
Institute“Depression in Geriatric Cancer Patients”
July 26, 2005
Dorothy Helen Moore, PhD
September 27, 2005
Ronald Schonwetter, MD,Palliative Care, Inc.Lori Roscoe, PhD,Sehwan Kim, PhD, Care, Inc.“Quality-of-Life and Symptom Control in Hospice Cancer Patients Receiving Chemotherapy”
November 29, 2005
Elizabeth Bergman, PhD,
“Hospice Bereavement Service Utilization and Preferences Among Spouses in Hospice”
Center members attend monthly meetings to get updates on projects, network about research opportunities, and share news about educational and policy initiatives. Every other month, a research presen
JANUARY
American Psychosocial Oncology Society2nd Annual Conference. Phoenix, Arizona
Azzarello, L.M., Small, B.J., Weitzner, M.A.,
“Major Depression at the End of Life”Donovan, K.A.,P.B.
“Problems with Sexual Interest or Activity in a Sample of Ambulatory Cancer Patients Referred for Pain Management”
Haley, W.E.“Family Caregiver Intervention in Hospice: Results of a Randomized Trial”
Donovan, K.A.,P.B.
American Association of Hospice andPalliative Medicine/Hospice and PalliativeNurses Association Annual ScientificMeeting, New Orleans, Louisiana
Schonwetter, R.S.Roscoe, L.A.
“Chemotherapy Use among Hospice Cancer Patients”
FEBRUARY
National Gerontological Social WorkConference at the Council on Social WorkEducation Annual Program Meeting, NewYork, New York
Black, K. “Social Workers’ Death Attitudes, Experiences, and Advance Directive Communication Behavior: Implica-tions for Training and Practice”
2005 Presentations by Center Membersat National Conferences
M2005. In addition, Center members gave numerous invited lectures and research presentations at local
MARCH
Quality and Meaning at the End-of-Life:Practice, Research and Policy,” Center forHospice, Palliative Care and End of LifeStudies at USF, Tampa, Florida
Bergmann, E., Polubinkski, J.P.“Both Sides of the Coin: Factors in the Decision to Choose or Not Choose Hospice”
Black, K.“Health Care Professionals’ Advance Directive Com-munication Practices with Hospitalized Elders”
Egan, K.
Myers, C.D.“Integrative Medicine: Complementary Therapies in Cancer Care”
Roscoe, L.A., Hyer, K., Engh, B.“Nursing and Hospice Staff Members’ Perceptions
Homes”
H. Lee Moffitt Cancer Center & ResearchInstitute, Skill Building in Psychosocial
Oncology, Tampa, FloridaDonovan, K.
“Identifying Patients in Need of Psychosocial Inter-vention”
Myers, C.D.“Integrative Medicine in Cancer Care”
The Academy of Elder Law Attorneys 2005
Elder Concert, Tampa, FloridaEgan, K.
APRIL
Twenty-sixth Annual Scientific Sessions ofthe Society of Behavioral Medicine, Boston,Massachusetts
Ransom, S., Jacobsen, P.B., Azzarello, L.M.,Weitzner, M.A.
“Religious Well-being of Terminal Cancer Patients and Caregiver Quality of Life: A Mediational Model”
Society of Behavioral Medicine AnnualMeeting, Boston, Massachusetts
Donovan, K.A., “Multidimensional Subgroups of Cancer Patients Referred for Pain Management”
National Hospice and Palliative CareOrganization: Clinical Team Conference VI,
Atlanta, GeorgiaConley, M. & Rigney, C.
“Lessons Learned: Implementation of a Disaster and Recovery Plan”
Egan, K.“Innovations in Community Caregiving Training”“Manager Development Program”“Spiritual Care”
Polubinski, J.P. & Egan, K.A.“Developing Infrastructure and Building Capacity for Research”
American Medical Directors Association
Annual Meeting, New Orleans, LouisianaVolicer, L.
“Namaste: A Holistic Program For Residents With Advanced Dementia”
MAY
Annual Educational Forum International,Waldenstrom’s MacroglobulinemiaFoundation, Tampa, Florida
Myers, C.D.“Complementary Therapies in Cancer Care”
American Geriatrics Society AnnualScientific Meeting, Orlando, Florida
Schonwetter, R.S., Roscoe, L.A., Nwosu, M.,
“Quality-of-life and Symptom Distress in Hospice Cancer Patients Taking Chemotherapy”
The Hospice of the Florida Suncoast CrossBayou Center, Largo, Florida
Egan, K. “ELNEC –Nursing Care at the End of Life Community Healthcare Training for Professionals”
JUNE
Johns Hopkins University, “Integration ofComplementary and Alternative Medicinein to Clinical Practice”
Myers, C.D. “Massage Therapies: Techniques and Indications”
Massage Therapy Foundation: HighlightingMassage in CAM Research Conference,Albuquerque, New Mexico
Myers, C.D.“Levels of Evidence”
Myers, C.D. “Pediatric Massage Research: Four Current Studies”
The Hospice of the Florida Suncoast CrossBayou Center, Largo, Florida
Egan, K. “ELNEC – Achieving Quality Care at the End of Life Community Healthcare Training for Professionals”“ELNEC – Cultural Considerations in End-of-Life Care Community Healthcare Training for Professionals”
AUGUST
American Psychological Association
Meetings, Washington, D.C.Haley, W.E.
“Needs and Expectations of Care Partners for Persons with MCI”
Florida Academy of Physician Assistants,Tampa, Florida
Pollett, A.“End of Life Decisions and the Hospice Choice”
NHPCO 1st National Conference on Accessto Hospice & Palliative Care, St. Louis,Missouri
Egan, K.“Access to Family Caregivers Upstream”
SEPTEMBER
2005 FACTors Breast Cancer EducationConference, Tampa, Florida
Donovan, K.“Distinguishing Fatigue and Depression in Women with Breast Cancer”
National Hospice and Palliative CareOrganization: 20th Management andLeadership Conference, Hollywood, Florida
Egan, K.“Connecting to Family Caregivers Upstream – Dispelling Hospice Myths and Increasing Access”
Polubinski, J.P. & Egan, K.A.“Developing Infrastructure and Building Capacity for Research”
International Psychogeriatric AssociationMeeting, Stockholm, Sweden
Volicer, L.“The Hospice Approach to Dementia”
Alzheimer International Meeting, Istanbul,Turkey
Volicer, L.“Strategies for Management of Challenging Behaviors”
Florida Osteopathic Medical Association,Tampa, FL
Pollett, A.“End of Life Decisions and the Hospice Choice”
National Hospice and Palliative CareOrganization: Inpatient Institute,Hollywood, Florida
Tonzi, A.“TideWell Hospice and Palliative Care Model for Inpatient Care”
OCTOBER
Green Ribbon Health Humana/Pfizer Health
Foundation, Tampa, FloridaEgan, K.
“End of Life Care”
International Society for Geriatric Oncology,Geneva, Switzerland
Robb, C., Jan, Y., Molinari, V., Overcash, J.,Haley, W.E., Extermann, M.
“Impact of Mastery on Older Breast Cancer Survivors”
1st National Cancer Research Institue CancerConference, Birmingham, England
Perkins, E.A., Small, B.J., Balducci, L., Extermann, M., Haley, W.E.
“The Salience of Health Status and Psychosocial Factors in Overall Well-being among Older Breast Cancer Survivors”
NCRI SuPaC International Workshop ofResearchers from the United Kingdom,Canada, and the U.S., National CancerInstitute, Birmingham, England
McMillan, S.C.“The Need for International Collaboration in PalliativeResearch”
Huntington Study Group Conference,Philadelphia, Pennsylvania
Roscoe, L.A., McCall, M., Haley, W.E.,
“Caregivers of Persons with Late-Stage Huntington’s Disease: Preliminary Observations”
Boston Alzheimer’s Symposium, Boston,Massachusetts
Volicer, L.“Enhancing Quality of Life in All Stages of Dementia”
NOVEMBER
58th Annual Scientific Meeting of the Ge-rontological Society of America, Orlando,Florida
Bergman, E.J., Small, B.J., Haley, W.E.“Depression, Social Support, and Utilization of Formal Bereavement Services”
Black, K.“Health Care Professionals’ Death Attitudes, Experi-ences, and Advance Directive Communication Behavior”
Burton, A.M., Haley, W.E., Small, B.J.“Bereavement after Caregiving or Unexpected Death:Effects on Elderly Spouses”
Burton, A.M., Kwak, J., Haley, W.E.“Assessing Bereaved Former Hospice Caregivers”
Haley, W.E., McMillan, S.C., Small, B.J.,Weitzner, M., Schonwetter, R.,Moody, L.
“Effectiveness of a Coping Skills Intervention for Hospice Family Caregivers: A Randomized Trial”
Roscoe, L.A., Hyer, K.,“Quality-of-life at the End-of-life for Nursing Home Residents: Perceptions of Hospice and Nursing Home Staff Members”
7th Annual Josefina Magno ConferenceSeries, Fairfax, Virginia
Egan, K.“Improving Palliative Care through Education & Research”
Conference on Legal, Medical & Ethical IssuesConcerning End of Life Decision Making,Suffolk University, Boston, Massachusetts
Volicer, L.“Medical Perspectives on End-of-life Dementia”
TBudget
DECEMBER
Florida Hospices and Palliative Care, Inc.,21st Annual Symposium, Orlando, Florida
Egan, K.“Connecting to Family Caregivers Upstream – Dispelling Hospice Myths and Increasing Access”
2005 Publications by Center MembersCand palliative care in 2005, both in collaboration with other Center members, as well as with research
Black, K. (2005). Social workers’ personal death attitudes, experiences, and advance directive communication behavior. Journal of Social Work in Palliative and End-of-Life Care,1
Black, K. (2005). Advance directive communica
interdisciplinary health care team. Social Work in Health Care, 40,
Black, K. The New Social Worker, 12,
Black, K., Osman, H. (2005). Concerned about
practice. Journal of Case Management, 6,
Donovan, K.A., Small, B.J., Andrykowski, M.A.,
cancer. Cancer,
Egan, K., Haley, W.E.
Tampa Bay M.D. News, Sunshine Media.
Egan, K., Labyak, M.Textbook of
Palliative Nursing, nd
Edition.
Ganzini, L., Volicer, L., Nelson, W. A., Fox, E. and
ing capacity. Journal of the American Medical Direc-tors Association, 6,
Haley, W.E. (2005). Clinical geropsychology in Clinical
Psychology: Science and Practice, 12,
Harper, D.G. Volicer, L.,
enous circadian rhythm in aging and Alzheimer disease. American Journal of Geriatric Psychiatry, 13,
Volicer, L.
an integrated network. Clinical Gerontologist, 29,
Holley, S.P, McMillan, S.C., Hagan, S., et al. (2005).
Believing in themselves. Oncology Nursing Forum, 32,
Hughes, J.C., Robinson, L. and Volicer, L. (2005). Specialist palliative care in dementia. British MedicalJournal, 330,
Jacobsen, P.B., Donovan, K.A.,
based approach. In Chang, A.E. et al (Eds.), Oncology: An evidence-based approach. New York,
Jacobsen, P.B., Donovan, K.A., Trask, P.C., Fleish
Cancer, 103,
Kwak, J., Haley, W.E. (2005). Current research
The Gerontologist,45,
McMillan, S.C.
attitudes. Oncology Nursing Forum, 32,
Molinari, V., Haley, W.E., Schinka, J., Hyer, K.,
Fellowship Model. Gerontology and Geriatrics Education, 25,
Mitchell, G.E., Kwak, J., Hospice length of stay among Florida Medicaid consumers.
Administration.
Myers, C.D., Jacobsen P. (2005). Integrative medi
editorial]. Cancer Control, 12,
Myers, C.D.,
alternative medicine use during childhood cancer. Cancer Control, 12,
Pang, M.S., Volicer, L., Leung, W.A. (2005). An
Chinese Journal of Geriatrics, 24,
Polubinski, J.P.,
setting. Journal of Pain and Symptom Management, 30,
Roscoe, L.A., Schonwetter, R.S.,
Teaching and Learning in Medicine, 17,
Roscoe, L.A., Schonwetter, R.S., (2005). Implementation and evaluation. Medical Education, 39, 511.
Roth, D.L., Mittelman, M., Clay, O., Madan, A., Haley, W.E. (2005). Changes in social sup
Alzheimer’s disease. Psychology and Aging, 20,
Salmon, J.R., Kwak, J.,Egan, K.
Journal of Pain and Symptom Management, 22,
Salmon, J.R., Kwak, J.,
American Journal of Hos-pice and Palliative Medicine, 29,
Black, K.
Schiavo. Death Studies, 29,
Tsao, J.C.I., Dobalian, A,. Myers, C.D.,
sons living with HIV. Journal of Pain and Symptom Management, 30,
Tsao, J.C.I., Myers, C.D., Craske, M.G., Bursch, B.,
sample. Journal of Psychopathology and Behavioral Assessment, 27,
Volicer, L.,
Journal of the American Medical Directors Association, 5,
Volicer, L.dementia in residential care settings.
, Alzheimer’s Association.
Volicer, L. (2005). Caregiver burden in dementia Current Psychosis
& Therapeutics Reports, 3,
Volicer, L.dementia. Alzheimers Care Quarterly, 6,
Myers, C.D.
Journal of Pediatric Psychology.