changing minds - an evidence review of the impact of participatory arts on older people

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Isabella Goldie, Head of Scotland – Mental Health Foundation and Amy Woodhouse Project Manager/Researcher. Presentation given at Alzheimer Scotland Conference: Creativity and dementia - policy and practice; June 2012, Glasgow

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Page 1: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People
Page 2: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People

An Evidence Review of the Impact of

Participatory Arts on Older People

Isabella Goldie Amy Woodhouse

Head of Scotland – MHF Project Manager/Researcher

Page 3: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People

• MHF have a long standing interest in the potential of the arts to improve mental health.

• Previous programmes of work includes: Art Therapies research (2003); Participatory Arts evaluation (2007); Scottish Mental Health Arts and Film Festival (2007 - )

• In 2011 MHF were commissioned by the Baring Foundation to undertake a review of Participatory Arts to better understand the impact on older people

• Baring Foundation have a long standing interest in the potential of the arts and have focused more recently on older people including the production of Ageing Artfully Report which mapped out Participatory Arts activity across the UK and made recommendations for strengthening this work.

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Page 4: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People
Page 5: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People

what we wanted to achieve …

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Page 6: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People

Study Aims• To capture the growing evidence base and raise

awareness of the impacts of participatory arts on health and well being of older people

• To provide evidence to funders, commissioners and service providers about the benefits

• To support arts organisations to their improve practice

Page 7: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People

we asked …

‘in what ways does participating in art impact on the wellbeing of older people and the ways in which older people are perceived in their communities, and by society in general?’

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Page 8: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People

how we went about it …

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Page 9: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People

Inclusion criteria* Participatory art: professional artists collaborate with people to

create artistic works that express participant’s experiences, outlook and community context

*Adults over 60 years of age

*Peer reviewed and grey literature in English within last ten years

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Page 10: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People

Excluded literature* Art therapies

* Audience participation

* Listening to music / background music

* Dance based exercise for older adults

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Page 11: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People

Step-wise approachStep 1 Search for high quality reviews (id gaps)

Step 2 Search for primary studies (id gaps) Step 3 Search for other evidence (grey

literature) Step 4 Map the evidence into categories and select best quality and most recent studies for inclusion.

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Page 12: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People

what we found….

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Page 13: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People

Overview of included studies

31 relevant studies(24 peer reviewed)

7 Music, 7 singing5 drama, 5 visual,

4 dance, 1 festivals1 storytelling,1

mixed

Most (n=29) about individual mental

and physicalimpacts

6 dementia studies

14 studies include community impactSome explore arts mediating impact

Page 14: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People

Dementia Studies

• Two music programmes (Martin 2004, Sixsmith 2007)

• Two visual arts programmes (Brownell 2008, Kinney 2005)

• One drama programme (Lapp 2003)

• One storytelling programme (Phillips 2010)

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Page 15: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People

Impact of Participatory Arts

Individual

Community

Societal

Page 16: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People

Impact - individual level

“Drum circles are a bonding experience. It gets you in your very soul. It is a really spiritual experience. It brings you up and out of yourself like a bird or eagle soaring above.” (participant, Martin 2004)

– Enhanced communication opportunities– Equality amongst participants regardless of

degree of impairment– Improved mood and self esteem, reduced

anxiety– Memory stimulation

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Page 17: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People

Impact – community level

“I think we have better contact now after the programme. We wink to each other and sing even more and give signs to each other” (caregiver, Lepp 2003)

– Meaningful social contact between participants and with family, carers and staff

– Improved carer relationships for those with dementia

– Addresses dementia discrimination by raising awareness and expectations and reduces stigmatising attitudes

Page 18: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People

Impact - societal level

• Contributes towards challenging external stigma towards ageing and dementia

• Challenges self stigma by providing opportunities to create something of worth

• Brings people together on an equal footing

Page 19: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People

Key issues We need to support engagement by:• actively facilitating initial and sustained

engagement• tailoring activities to abilities (but not

accepting that dementia limits creativity)• Pleasure and fulfilment in the moment as

an impact is equally important as a quality of life measure as impact after the moment

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Page 20: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People

what does this mean? ….

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Page 21: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People

Implications for health and social care providers

• Participative arts should be readily available for all those with dementia, including those with severe levels of impairment

• Nursing and care home staff would benefit from training to help them deliver arts activities for people with dementia

Page 22: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People

Implications for participatory arts organisations

• Actively facilitate engagement of people with dementia

• Build in flexible approaches• Challenge low expectations and an

over-emphasis on the limitations of dementia regarding ability to participate and create

• Build links with local organisations and networks representing and supporting people with dementia

Page 23: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People

Implications for funders and commissioners

• Proactivity in required to include people with dementia in arts based funding programmes

• Ensure arts projects have the capacity to evaluate, learn and improve – don’t just fund the art, fund the longer-term development of projects

• Support sustainability

Page 24: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People

Further research• Weak evidence base – reflective of lack of

investment in older people in general?• If participatory art for people with dementia is to

be credible as an approach we need to know more about what works:– Larger samples – joint/cross project

evaluations?– More detail on role of professional artists– Where, how, access strategies, target groups,

funding sources, sustainability, partnership with/support from other professionals / organisations

– Importance of artistic output versus process

Page 25: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People

Further information

Report downloadable from:www.mentalhealth.org.uk

Contact:Isabella Goldie / Amy [email protected] / [email protected]

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Page 26: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People

~A very special thanks to Baring Foundation who supported this review

Page 27: Changing Minds - An Evidence Review of the Impact of Participatory Arts on Older People

Isabella Goldie & Amy WoodhouseMental Health Foundation