Clinician, Family, Peer Clinician, Family, Peer PerspectivesPerspectives

Network SessionNetwork Session

National Education Alliance National Education Alliance Borderline Personality DisorderBorderline Personality Disorder

MissionMission

“NEA.BPD National Education Alliance for Borderline

Personality Disorder is a nationally recognized organization

dedicated to building better lives for millions of Americans affected by Borderline Personality

Disorder (BPD)”

National Education Alliance National Education Alliance Borderline Personality DisorderBorderline Personality Disorder

Approach Approach

To enhance the quality of life for those affected by this serious but treatable mental illness NEA.BPD:works with families and persons in recoveryraises public awarenessprovides education to professionalspromotes researchworks with Congress

National Education Alliance National Education Alliance Borderline Personality DisorderBorderline Personality Disorder

Not-for-profit (501 3(c) organization conceived August 2001Not-for-profit (501 3(c) organization conceived August 2001 Chartered by the Board of Regents of the State of New YorkChartered by the Board of Regents of the State of New York Co-founded by four family members, two consumers, Co-founded by four family members, two consumers,

one mental health professional one mental health professional All funding and donations support programsAll funding and donations support programs An all-volunteer organizationAn all-volunteer organization

Raising awarenessthrough

School talks on BPD

Raising awarenessthrough

The Borderline Walk

Improving access to care

through expanded DBT services

Peer supportthrough Family

Connections

Join us on twitter @SashbearOrg

The Sashbear Foundation

Networking at conferences

Hope for BPDHope for BPD

The mission of Hope for BPD is to educate persons diagnosed The mission of Hope for BPD is to educate persons diagnosed with borderline personality disorder and their families about with borderline personality disorder and their families about evidence-based treatment.evidence-based treatment.

The goal is to help connect people with compassionate clinicians The goal is to help connect people with compassionate clinicians and great treatment programs globally so they can make smart and great treatment programs globally so they can make smart health care decisions.health care decisions.

CLINICIAN PERSPECTIVESCLINICIAN PERSPECTIVES

Perry Hoffman, PhDNational Education Alliance for Borderline Personality

Disorder

Improving Communications: Improving Communications: Select InitiativesSelect Initiatives

Conferences: 60 national and international eventsConferences: 60 national and international events

Call-In Series; ~75 one-hour presentationsCall-In Series; ~75 one-hour presentations

Website : ~200 audio and video recordings Website : ~200 audio and video recordings

CoursesCourses Online courseOnline course Residency workshop at American Psychiatric AssociationResidency workshop at American Psychiatric Association BooksBooks American Psychiatric Association Gunderson & HoffmanAmerican Psychiatric Association Gunderson & Hoffman Haworth Press Hoffman & Steiner-GrossmanHaworth Press Hoffman & Steiner-Grossman

New Harbinger Hoffman and Gunderson (in press)New Harbinger Hoffman and Gunderson (in press)

Improving Communications: Improving Communications: NationalNational Collaborations Collaborations

CongressCongress House Resolution 1005 (2008): May Awareness MonthHouse Resolution 1005 (2008): May Awareness Month New York State Office of Mental Health (2012, 2013, 2014)New York State Office of Mental Health (2012, 2013, 2014)

SAMSHASAMSHA Report to Congress on BPD (2010)Report to Congress on BPD (2010)

Stakeholders’ Meeting (2011)Stakeholders’ Meeting (2011)

NAMINAMI

Priority Population (2006) Priority Population (2006)

FAMILY PERSPECTIVESFAMILY PERSPECTIVES

Joy SpragueNational Education Alliance for Borderline Personality Disorder

Lynn Courey, CSW Sashbear.org

Making Waves on BPD

Improving Communications: Improving Communications: Family Connections Family Connections

12 week, multiple-family group program12 week, multiple-family group program

Family members: parents, partners, spouses. adult childrenFamily members: parents, partners, spouses. adult children

DBT & family skills and strategies DBT & family skills and strategies

Standardized, semi-structured manual with teaching notesStandardized, semi-structured manual with teaching notes

Structure:1. homework review 2. teaching 3. sharing/consultationStructure:1. homework review 2. teaching 3. sharing/consultation ----------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------

Co-led: Family members and professionals trained by NEA.BPDCo-led: Family members and professionals trained by NEA.BPD

Community-based, no chargeCommunity-based, no charge

WHAT MAKES IT DIFFICULT FOR FAMILIES

• Wishing our life circumstances were other than what they are

• Having high and unrealistic expectations

• Lack of effective skills

• Grief

• Stigma

Improving Communications:Improving Communications:WHAT HELPS US BUILD A LIFE WORTH LIVING

AND COPE

• Self Care• Radical Acceptance • Non Judgment• Mindfulness• Skills• Validation• Hope• Unity• Advocacy

PEER PERSPECTIVESPEER PERSPECTIVES

Amanda L. Smith, LMSWHope for BPD

Cathleen Payne, JD

Improving Communications: Family Members and Friends

as DBT Skills Coaches

• Learning DBT helps everyone

• Family members and friends can help by• Understanding the language of DBT• Using a diary card• Talking openly about how they are using the skills• Being role models of skillful behavior

Improving Communications: Consumer Perspective

• Recognize when you are “dysregulated”• Learn to “take a break” and breathe - use your DBT Skills• Try not to talk when you are angry - think about all the times you

have talked and injured a loved one which you later regret• Come back to the topic after you have cooled down enough to say

how you were feeling when something happened

• Remember to listen to your loved one’s feelings too - even if it’s

painful - you can stand it for 60 seconds!

• Repair as needed• Say “I’m sorry for my ...(harsh tone, loud voice, sarcasm)”• Validate: “I can understand you feeling hurt, angry, afraid”• Say what you can do differently in the future

ALL PERSPECTIVES ALL PERSPECTIVES SUMMARYSUMMARY

• We’re all in this together• Balancing needs of family, loved one and clinician• Validate, validate, validate• Be mindful of our perspective and other’s perspectives• The power of being understood• We’re all working together

Clinician, Family, Peer

Perspectives Discussion Period

Questions

?