co-researching with carers: what difference does it make? terry blatter, valerie ganderton, rosemary...
TRANSCRIPT
Co-researching with carers: what
difference does it make?
Terry Blatter, Valerie Ganderton, Rosemary Littlechild and Denise Tanner:University of Birmingham
Our plan
Brief outline of the project Carer motivations to get involved The impact of carer involvement:
– on carer co-researchers– on carer participants– on research outcomes in policy and
practice
‘Understanding and Improving Transitions of Older People’
This project was funded by the National Institute for Health Research Service Delivery and Organisation Programme (Project No 08/1809/28).
The views and opinions expressed herein are those of the authors and do not necessarily reflect those of the Department of Health.
The presenters wish to acknowledge the major contribution made to this research by participants, co-researchers, partner organisations and academic colleagues.
The ‘Care Transitions’ project: starting points:
The research design
The participants: Transitions as experienced by four ‘groups’ of older people in different areas of England
Dementia(SOLIHULL)
BME group(LEICESTER)
Rural area(GLOUCESTERSHIRE)
Low population of older people(MANCHESTER)
Our approach
Participatory action research (PAR):
– partnerships – co-research model– involvement at all stages
Roles of the co-researchers Boosting recruitment Planning interview process and designing research
tools Carrying out interviews Informing ‘data’ via reflections Discussion and analysis of findings Planning and delivering feedback to stakeholders Follow-on implementation activities
Evaluation: “What has been the impact of the participatory approach on the research process and on the research outcomes?”
Semi-independent evaluation Telephone interviews (partner organisations) Interviews (academic leads) Focus groups (co-researchers) All Sites Day feedback (national advisory group
members and local managers)
What are the views and experiences of carer co-researchers about the impact of their involvement?
What motivated you to get involved in this project?
What difference has it made to you personally?
What difference do you think it made to the carers you interviewed?
What difference do you think it made to the impact of the research on policy and practice?
Perceptions of impact
http://www.netscc.ac.uk/hsdr/files/project/SDO_FR_08-1809-228_V01.pdf
Full Report
Understanding and improving transitions of older people: a user and carer centred approach Jo Ellins, Jon Glasby, Denise Tanner, Shirley McIver, Deborah Davidson, Rosemary Littlechild, Iain Snelling, Robin Miller, Kelly Hall, Katie Spence and the Care Transitions Project co-researchers.
Thank you!Contacts:Rosemary Littlechild: [email protected] Tanner: [email protected]
Institute for Applied Social StudiesUniversity of BirminghamBirmingham B15 2TTEngland