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Christie Moffatt History of Medicine Division National Library of Medicine National Institutes of Health U.S. Department of Health and Human Services Source: WHO, October 1, 2014

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Christie Moffatt

History of Medicine Divis ion

National L ibrary of Medicine

National Inst itutes of Health

U.S. Department of Health and Human Services

Source: WHO, October 1, 2014

The process of gathering up (harvesting) data that has been published on the Web, storing it, ensuring the data is preserved in an archive, and making the collected data available for future research.

--International Internet Preservation Consortium (IIPC)

2

Information published on the Web today will be the primary resources for future researchers.

“A significant amount of the data that permeates nearly all aspects of life, culture, and scholarship today will not be available at a library or an archives unless attention and priority is paid to actively collecting born-digital materials”

--National Digital Stewardship Alliance (NDSA)

3

Archiving NLM institutional content since 2003

NLM Web Collecting and Archiving Working Group

Archive-It partners since 2009

Pilot collection on Health and Medicine Blogs

4

Avian Influenza A (H7N9) Virus

Disorders of the Developing and Aging Brain: Autism and Alzheimer’s on the Web

NLM institutional web content

Global Health Events

5

“to collect and preserve scholarly and professional literature about health, medicine, and the biomedical sciences, irrespective of format.”

6

Record progress in research in biomedicine and the related areas of the life sciences

Document the practice and teaching of medicine broadly defined

Demonstrate how health services are organized, delivered and financed

Chronicle the development and implementation of policy that affects research and the delivery of health services

Illustrate the public perception of medical practice and public health

7

Collection development manual of the National Library of Medicine, 4th ed., 2004. http://www.nlm.nih.gov/tsd/acquisitions/cdm/

8

Addiction MedicineAerospace MedicineAllergy and ImmunologyAnatomyAnesthesiologyAnthropologyBehavioral MedicineBiochemistryBioengineeringBioethicsBioinformaticsBiological SciencesBiomathematicsBiomedical ImagingBiomedical ResearchBiophysicsCardiologyCell BiologyChemistryClinical Laboratory ScienceCognitive ScienceCommunication DisordersComplementary and Alternative MedicineCytologyDentistryDermatologyDisaster ManagementEducation for the Health ProfessionsEmbryologyEmergency MedicineEndocrinologyEnvironmental HealthExercise Science

Family PracticeForensic MedicineGastroenterology GeneticsGeriatricsGynecologyHealth CommunicationHealth EconomicsHealth FacilitiesHealth OccupationsHealth PolicyHealth Sciences LibrarianshipHealth Services ResearchHematologyHistologyHistory of MedicineHuman NutritionInfectious DiseasesInternal MedicineLaboratory Animal ScienceMedical BotanyMedical GeneticsMedical HumanitiesMedical InformaticsMedical SociologyMedicineMicrobiologyMilitary MedicineMolecular BiologyMolecular MedicineNephrologyNeurologyNeuroscienceNursing

ObstetricsOccupational Health and SafetyOncologyOphthalmologyOptometryOrthopedicsOtolaryngologyParasitologyPathologyPediatricsPharmacologyPharmacyPhysical Medicine and RehabilitationPhysiologyPlant BiologyPodiatryPreventive MedicinePrimatologyPsychiatryPsychologyPublic HealthPulmonary MedicineRadiologyReligion and MedicineReproductive MedicineRheumatologySpace Life SciencesSports MedicineSurgeryTherapeuticsToxicologyUrologyVeterinary Medicine

Disaster ManagementEmergency MedicineInfectious Diseases

Public Health

“NLM may select examples of broader works on disaster management to document the public response to specific events or the social, political and cultural context of public health.“ (NLM Collection Development Manual)

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• Health planning and policies

• Health facilities management

• Public health workforce training

• Communicable disease control

• Emergency medical services• Psychological preparedness

and response• Risk management• Health information systems • Laboratory diagnosis and

characterization

10

http://www.cdc.gov/ on October 2, 2014

riJli' Centers tor Disease Control and Prevention tn• . CDC 24(1· SOiling 1./vQs, PrOIQC!lng P9op!Q"'

Diseases & Conditions • Healthy Living • Travelers' Health • Emergency Preparedness • More CDC Topics •

2014 Ebola Epidemic

Learn about the Signs, Symptoms.

Transmission and Prevention of Ebola.

More

CDC Team Assisting in Dallas

CDC Team Assisting Ebola Response in

Dallas as Investigation of First U.S. Case

Underway.

More

News

Ebola case Diagnosed in u.s. Enterovirus D68

CDC and Texas Health Department Confirm Facts about Enterovirus 068

First u.s. Ebola Case.

More More

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http://sis.nlm.nih.gov/dimrc/ebola_2014.html

SIS Home I About Us I S1te Map & Search I SIS News I Contact Us

SIS Home > DIMRC Home > Disasters > Infectious Diseases > Ebola Outbreak

Ebola Outbreak 2014 - 2015: Information Resources

., U.S. Federal Organizations

., U.S. Organizations

., International Organizations

., National Government (non-U.S.) Web Sites

., Free Resources from Publishers for t-1edical Responders

., Biomedical Journal literature and Reports

., Ebolavirus Information Sources

., Diagnostic Testing for Ebola

., Ebola Treatment Drugs in Development & Trials

., dinical Trials

., Situation Reports

., Training for Healthcare Workers

., Children and Ebola

., Multimedia Communication Resources

., Social Media

., Maps

., Health Resources for the Public

., Multi-Language Resources

., Disdaimer

Text size: ~.!:!] .!:.] X

Share

Featured Sites

Disaster Distress Helpline 1-800-985-5990 Substance Abuse and Mental Health Administration, U.S. Department of Health and Human Services

For updates on Ebola info sources, subscribe to DISASTR-OUTREACH­U B .

Ebola-related documents and resources in the Disaster lit database .

Embed this page's content on your own Web page. More about Content Syndication .

12

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Ebola Eboe...-.., d~u~t ~ 1 se.en :f:e1 Glallnns.,hiiTIIOns.

WHJ h:lO ~~~~~x :1 n::;~:ir'lop to 9Ji<k en :I :oo·d n:x~ t 'IC int .. rn 'llnvl·"'"f'O,~rlttn thrrtnff'lfjo,-( "i th011 r bnl.-¥111 \ dl~aa~a In -.ut Af'ie:a TM r)Sd1\il9 alwc to cto~ :lr9:llll9 Ebola tran,wi,3icn \\IOtl:l\r,d! ..,a,., 6-! MOn:hs ~,.,;1e rzpdi',• m~:IJflg I'M C01't~t'ICta d~• l.rt "lff IO' Hrlilltr:al

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MSF'' Wet.t Afnca Eb<ll~ ruponH st~rt&d ir. Mardt 2()U and counts ac;tlo~ttlt!s In Guinea, L iberbi, and Stern+ L•en.. ln tespons.e to a coenfi,....,.(l ease in Uali, an IMSF tum alf1ve<lln the country this ~t to n!lnforce MSF's r egubn miui6n and pro~ ide teehniealsupport to the Mnlsuy of Heallh.

MS' currenlty m"ploys 26l lnl«na(]or:al and aroultd 3.0U kH:alty t-ire-d ~Ufl in tM r•gion TN Mgoutization opentts sf.l IEboll. ~:ue milna~me~ centers (CMCs), pf(Wicfing awox.matety 60e beds .., isdation. Since the ~Hgtnnlng of 1he outbruk, MSF has sent more than TOO interwartional s.bff lo the r~on and a<*Ntted more U.an 5,210 patknts, an~~ong W'"lon around 3..2)() were confinMd ac ha'oling Ebola. More ~an 1,200 patients

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14

• [bob SIIW.:Itlon Rt • EboY SilUiJtlon R•FOr( VOl • Ebola SltU311on Rtport Volt~ • Ebr:lb$1tU3tionRtpott_Vot1tl • [bob Uuatlon Rtpott_VoiUI • EbobS&ua11onRtport_VOI111 • EboLl$lu31onRtpott_VOI1U • Ebob!;iu3tlonR•pott_Vot11! • EDOia Sitl.lation Rt-polt_V011t4 • EDODI SilU311on Rtpon_ VOI11 3 • EbObSW3tlonRtf10tt_Vol112 • EbolaoSI.uatlonRt pott_Vol111 • Ebola saua• on Rtport_vot 11~ • EbOLlSku31ionRt~tLVol11:19 • Ebob stu31ion R•port Vo111ll • EDOia SI U31ionR9pott=Yoi1CI1 • fDOiol SIU3ton Rtport_VOI liH • EbOLlSiuationRt~Vol11:1~ • lDOiaSitwittonR•port_Vol1l)ol • Ebo1.111 Slt~o~a1ion Rt'pott_Vot 1CI:l • EbOLl SIU311011 Rt~rt VOI11)2 • Ebob Slua11on R•pott_Vot 11l1 • tbOIQ Sluation Rt-port_ Vol fl • fbola SIUiJ1Ion Rtport_ vot $1 • Ebola Sluation Rt~rt... Vol S7 • I bola SIU31Ion R•port_ Vof M • Ebo1.111 Sluallon Report_Vol':l • fbola $1~1011 Rtport_ Vot M • Ebob SIU3tion R•port_ Voi9J • Ebob SitWI'Iion Report_Vol•2

·~~" ., •• ••

Govemment of Sierra Leone Ministry of Health and Sanitation

EBOlA VIRUS DISEASE -SITUATION REPORT (Sit-Rep) - 29 September, 2014

Main highlights , For the 281" September 2014, a total of 181 new samples were received and analysed by the CDC Kenema

Lab, the Sooth Afncan NICD MLU Lai>-Westem lwa and the Chinese Lab-Jui: Kenema (13), Kambia (2), Koinadugu (1), Bombati (17), Tonkoliti (19), Port Loko (62), P\Jjehun (4), Bo (4) and Western Area (59). Ninety (90) of these saJ1'4)1es are positive, 72 are negative whle 19 suspected cases have been recommended lor a second test base on the symptoms onset.(See table 1) Two (2) samples (1 positive & 1 negative) are notlllduded in table 1 below because of missing <fJStrict variable The cumulative number of Laboratory confirmed cases are 2,090 vm.iles confirmed death is stil 522 with a Case Fatally Rate (CFR) based on confirmed cases of 25 0%.

Table 1 :National Cu mulativesummaryo fEbola Cases 23May-28Septemher20 14

15

II CDC . L

Unsafe bunal practices are a major cause of new Ebola cases 1n S1erra Leone ThiS week's EbolaB1gldea is SAFE BURIALS SAVE LIVES

29

Or. Tom Frieden 0. F or Nu 1

Sen Frist on Ebola • ... most effective way to protect the American people IS to extinguish th1s fire at its source • fxn ws/1 xyoykB

Dr. Tom Frieden

Health care workers: Watch video w/ important tips on proper PPE use, caring for patients w/ ~,.Ebola : bit.ly/11 iOqXQ

UNIIAEER UNMEER

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Opening of Island clinic, new t~-Ebola

treatment unit in Monrovia, #Liberia, with 1 00 beds goo.gl/uzjFq9

16

“We are trying to probe very gently whether there was anyone else who may have been in contact with him when he became sick. This is so that the health promotion and surveillance teams can follow up with the contacts to ensure that that if they are in quarantine that they have sufficient food, drinking water, mattresses and soap for infection control, and to address the concerns of the community and sensitize them about Ebola.”

17

uniceffl!)connect blogs.unicef.org

s· FREDERIC 8080R J""'ES ON FEB 20 15

Sierra Leone: staying at zero in an ex­Ebola hotspot Close to the centre of Komendeh luyama village In Sierra leone's Kenema district is a mud­

\lalled family home that looks much like the others - except the doors and vtindov/S [ ... ]

8 liE E E 1'\NOBU ll [I r:. ON 1 8 2 u • ( '2 ( ~ N

Ebola in Liberia: from secret burials to safe burials Secret burials v ere not in my vocabulary before I arrived in Liberia. When I think of burials I

think of services vtith a lot of people. PO\ terful speeches about the[ ... ]

8 Y GEE•A RAO GUPTA ON 00 FEB 2015 • I I "'MENT )

Witnessing rays of hope in West Africa's Ebola fight In late January, Deputy Executive Director for UNICEF, Geeta Rao Gupta, travelled to Sierra

leone, liberia and Guinea to support communities, partners and UNICEF staff as they

continue to battle [ ... ]

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EDITOR'S CHOICE EboU m U.S. • Hong KIHIQ • Grear American frealrour • ISIS • Aral Sea • Volat>O • Secret SIIVICO • Kansas Ciry Royals

DEVELOPING STORY

Is it time to panic?

THE LATEST

• NEW More bodoes found on vok:lno

• Protests in HK on Chona·s NatJonal Doy

• Mom sobs over teenage jthadi son • • • NEW The great Ameri<:an lreakout • Wolt Turkey send troops agaonst ISIS?

• U.S. has already spent SIB fighUng ISIS

• Olf'ocials: Mayor sho~ kolled by wile • NEW 5 things to start your day

• Pipe bombs found m Pa. manhunt

• NEW Schoot -shoohng suspect caught

• 4 more kids W1th mystery Illness • Death penalty on beheadong case?

• Source: DNA lmks cases or Va. women • Dad did double-take at suspecrs poe • Suspect m Realtor's ktllmg: 'Sorry'

• Royals wm Al Wild Card m tlasstc

• Bill Maher slammed for comments

• Morgan: Watman blames me?

OPINION

I 1st Ebola , diagnosis in U.S.

A patient at a Dallas hospital is the first person diagnosed \\ith Ebola in the U.S. Should we be concerned? FULL STORY

• Ebola Fast Facts 1 How to help

• How the Ebola virus spreads • Why tsn"t contatnment W\ o:1ung7

• Bleach is best friend In this foght • •

• Photos 1 Now what?

SECRET SERVICE SECURITY LAPSES

Armed man shared elevator with Obama

Testimony gi\·n by the ~or of the embattled U.S. Secret Senoice appears to conflict "ith the news that a pmote 50CIIrity contractor \\ith a gun shared an elentor "ith President Obama, in violation of protocol. FULL STORY Mote Oerector: WH inuusion 'unacceptable' • Secret Service: We're outraged -- • • When to use deadty force? ..

READ THIS, WATCH THAT

WATCH NOW

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20

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-O N T H E FRO N T LIN ES OF

EBOLA .

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IMPACT

" I've Never Had a Job Like This": Life Inside an Ebola Treatment Unit -.. -

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Dr. Pard.is Sabeti on Decod.ing the Ebola Genome

.. . . ... . .. . ·-- -~

The Histo rical Ro ots o f the Ebola Scare In the United States

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As of April 21, 2015:

254 starting point URLs

3,247,247 URLs

182 GB archived

Global Health Events collection is available at https://archive-it.org/collections/4887

21

22

MoJq,itO.t ar• the dHdiMtt o~ni mo~lt in tht world, but thty don't (.Jrry Eb~. !Nft'-beei'IN_ .. .......,., __ ,,_, ... -a.....-.... _......_.... ..... __,_,_1_ -.na.i-[Nit __ ...,. .. "'--' .. CIWJIOI!oo<

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23

“Six of seven blood samples from suspect cases tested at Institut Pasteur in Lyon, France were positive for Ebola virus by PCR, confirming the first Ebola haemorrhagic fever outbreak in Guinea.”

“It was the unanimous view of the Committee that the conditions for a Public Health Emergency of International Concern (PHEIC) have been met.”

24

“the FDA has seen and received consumer complaints about a variety of products claiming to either prevent the Ebola virus or treat the infection.”

Maintain record of scholarship and varied perspectives in the historical record

Preserve at-risk artifacts of cultural and technological change

Diversity of materials

Historians will be able to research digital collections in revealing and novel ways

25

26

http://apps.who.int/ebola/ (April 22, 2015 )

Current Situation Cases in the most affected countries

Guirw:a Sie:rral~e

,.,_ ........ ----··,....

A gap is starting to emerge between the types of materials that are being created and used in our society and the types of materials that make their way into libraries and archives.

The stewardship community must recognize this gap, understand why it exists, and determine how it could be addressed at local, regional, and national levels.

27

NLM Global Health Events web archive collectionhttps://archive-it.org/collections/4887

HMD blog Circulating Now http://circulatingnow.nlm.nih.gov/

HMD Pinterest collection on Ebola web collectinghttps://www.pinterest.com/NLMHistory/ebola-2014-a-web-archive-collection/

NDSA 2015 National Agenda for Digital Stewardshiphttp://www.digitalpreservation.gov/ndsa/documents/2015NationalAgenda.pdf

Questions? [email protected]

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